Getting A Fecal Transplant?! 💩 | Chronic Illness Vlog
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- เผยแพร่เมื่อ 7 ก.ย. 2024
- I'm so sorry I haven't uploaded in a couple of weeks! My life has been crazy between vacation and this! Thank you so much for watching and supporting my channel!
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Welcome to my channel! My name is Hannah and I live with a couple of chronic illnesses. I also love traveling and beauty. Thank you for supporting my channel!
Instagram: hannahr916
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first i just want to tell you how much of a fighter you are. second i cannot thank you enough for being brave enough to make this video. i personally have never had a fecal transplant but i have had my share of colonoscopies.. my frist one was years ago and no one talked about it on youtube, no one even dared vlog their journey and i canot tell you how scary it was. how uncomfortable it was and yes the drs tell you a little bit of what to expect but its nothing that i even expected. i still havent even managed to find the strength in me yet to share my health stories or some of the other things i have been though medically so i want to personally thank you for inspiring me and others to be confident and comfortable enough with ourselves and situations and for being able to share it for others who are completely new to the situation. yes its easy to talk about other things in life such as family issues, life issues, but personal things along the lines of this; its rare to find. thank you for helping others feel less alone. i am sending you all the positive energy i can your way and i wish you all the best
Thank you so much! I'm glad you found this helpful. Same to you!
Simply Hannah Please forgive me for asking , but WHY AND HOW Can you have a FECAL TRANSPLANT , I have NEVER HEARD of such a thing from London England
Shane Luke it’s meant to introduce the body to foreign bacterias I think
i had C-diff and it horrible. I lived on the toilet for 6 weeks. Seriously thought (& prayed to!) dying! With all the hateful ppl on youtube, you're one very brave young woman to put this out there. Taking a shower when one is in pain & has chronic diarrhea is Plenty! From one chronic pain warrior to another...you rock chickie!
I spent several months chronically ill due to embarrassment,NEVER AGAIN. Lost a large part of my colon,and now life has definitely changed. There are a lot of us out there. Your sharing is just KNOWLEDGE. God Bless. (I'm older then you,and I'm sad you have to go through this at your age).
YOU are a chronic illness WARRIOR, and never think different! When you spoke about pain so bad all you could do was lay in a darkened room, I could totally relate. I must admit that I'm usually in that room with silent tears running down my face wondering how much longer I can take the misery. We do not share the same conditions, so I can sympathize, but not completely empathize. I have severe Lupus and a host of syndromes, side diseases and problems that have occurred since the Lupus diagnosis. I was diagnosed when I was 16. I was only able to go to high school 2-3 days a week, and only for a few hours each day.
Things got better and worse in college. It took me 5 1/2 years to complete. I had 2 ankle surgeries and a hip replaced (thank you prednisone), but I lived on campus, joined a sorority, and had a normal social life. I also met a great guy, got engaged, and at 24 got married. I could not have kids due to physical risk, and then due to IV chemo frying my ovaries. But after 7 years of marriage we were able to adopt a 6 month old baby girl. She is 12 1/2 now, in February I will have been married 19 years. I had health enough to work as a teacher for 5 years, then work part time jobs while I earned 2 M.A. Degrees, and then was only able to work as a teacher at an online university bc I could do it from home in bed. The years have been rocky. The past 6 years especially rough. I lost my leg after I almost died from a MRSA infection where I went into septic shock and was on a ventilator for 5 days.
That was 6 years ago. Since then I end up in hospital 2-3 times a year with sepsis. I'm 43 now. I'm writing all this to show you that life with a chronic illness is not an easy life, but never give up hope that you can live your dreams (with some modifications). I've only given you a snippet of what I've been through, and yes, many times I battle depression and have pity parties. But I also think of what I've achieved, and the great little family I've built. I've been on bed rest for almost a year now. Our family eats in bed together, works on homework in bed, plays games in bed...my bed is like the dining room table. Our family dynamics can be a little strange, but it works for us. When I'm in pain that meds won't touch sometimes I just hold my daughters hand. We call it the magic touch bc somehow it does take the edge off. My hubby is a full time caretaker and breadwinner for the family.. I am lucky to have him and it takes a special kind of man to not run in the face of such difficulties, but they exist! We fight like every married couple, but we also try to laugh.
I want you to know that you are part of an elite group. Only those of us with chronic illness know what it is like to face every day like it's a battle. But if you ever feel down, or wonder if you will ever have a normal life, please remember my words. First throw out whatever you think normal means, bc you will be the one to write your own normal. Second, it's possible to have some of the things you always dreamed about having as you moved through the stages of life, it's just that you may end up getting them in a different form or with a lot of creativity. This is the first vlog I've watched of yours, and I subscribed bc you were brave enough to talk about a subject that others have kept hidden. Hopefully this leads to more openness about fecal transplants and maybe others coming forward to share their experience. You are a TH-cam pioneer! Stay brave, stay strong, and when the pain and tears come, bc we both know they always come back, let yourself have your pity party without guilt. I can tell that you will eventually rise out of it just a bit stronger mentally and ready for whatever else life throws your way, both good and bad. God bless you and keep you safe. - Diane from Tampa, FL
Oh my gosh, I can't thank you enough for your kind words of support. This means so much to me and it really does give me hope for the future. I will pray for you. Thank you again for this comment, it means a lot.
Thanks for sharing, you make great points, at age 57 and listening to my docs for years and only getting worse, I have fired them all and started again. So working on the immune system and going more holistic and avoiding the pain and other meds, not easy but in a year and a half I have reduced my inflammatory markers in half, I am at a plateau and finally got a service dog who has been great with all types of therapy, physical and meditative. It is just not easy, we all just need to share and pray and keep moving forward. Watch Chronically Jaquie she is good at organizing and trying to keep things focused if you ever need that. I was so confused by everything and getting over propolof I just was not moving forward or remembering to take care of myself. Much better now, but many days are rough. I just went to a pseudo-paleo low histmine diet which is better, hard but better. Blessings and Godspeed.
Diane Luke you brought me to tears. Tears of joy. Our lives are very similar ! Thank you for being so brave and transparent. One thing i will say to myself everyday. I create my own normal!!!! Love and blessings to everyone who sees this comment.
Diane Luke can I ask you, if most of what u went thru, was related to lupus!?,I was diagonsed with lupus a little over a year ago, I can't even explain to people, what a huge disease it is, with such a small word attached to it, called lupus, I'm slowly declining! And my doctors know I'm very sensitive, and so I believe they don't tell me the whole story of what's happeing to me, and I believe its because they really dont know themselves! Its crazy scarey! And I'm not made up to be in this type of disease, I have had an obstruction in small intestines since diagonesd, I thought it was just a bout of irritable bowel syndrome, so I played it off for as long as I could, until I figured out that I guess whatever doesn't come out comes up, and once I started vomiting blood every 5 minutes I knew that I needed to call an ambulance, by the time I got to the emergency room, they said if I would have waited another hour or two I would have obstructed and possibly died Kama, so I guess my question is since you've been diagnosed with lupus and at such a young age were you or are you getting better or is there any hope at all!!, and do you know of any organizations that I could get myself better educated on how to help myself exclamation point as a lot of the drugs that they try to control the lupus with don't seem to be working, and my friends that are nearest to me, since taking the lupus medication which would be Plaquenil, the only one that I can tolerate at this point and I have to take half of the dose that is recommended, because I can barely tolerate it and there are a lot of side effects with Plaquenil, I guess in some ways I'm just trying to reach out to somebody else that has lupus in order to maybe no if there is hope, and I know this was a Blog about this young lady who had a fecal transplant, I can't even imagine even imagine,, what that must be like, but I can tell you that I have had gastrointestinal problems for years and with the obstruction they said that it is systemic and it can happen again, at least this time I will be more prepared in knowing may be what it is and get to the hospital sooner, well my dear friend in lupus may we continue to get stronger and better and help all those that struggle with the same disease, and make people that don't have the disease or aware of how hard it is to do our daily life with this huge disease with such a small name attached to it... And sorry if I ran on on my sentences I'm talking to text LOL
Diane Luke I 2ish I didnt press read more this was torture
I about died from cdiff this summer and had a fecal transplant. It saved my life.
Thank you for bringing awareness to this. You're a warrior and I'm praying for you.
Shell Cshells are you still doing better? Yesterday morning I had a fecal transplant through endoscopy. How was yours administered?
@@praisedalord58How are you doing?
Amanda Whitley I’m in remission! Thank you! I do have Crohn’s now though.
I have c diff right now, in 6 days i haveto have one
How are you doing now ?
You put the NG tube yourself. You deserved a medal.
C DIFF is HORRID! I have been battling it for the last year! Thanks for posting about your story. I have IBS, Gastro-paresis, and my next step is donor fecal transplant.
I'm so sorry you have to go through all of that. Fecal transplants are life saving!
I lived with the agonizing pain and fatigue that you experience for over a decade. The solution in the end, was for me to take HCL with pepsin with my food until my stomach was able to produce enough acid again. The low acid production was the root of everything else wrong with me. Please look into this, because America's health care system will NEVER find this problem, and your gut is broken just like mine was.
Thank you. Thank you for being so brave, getting the word out for others, being real, getting past what you think we can’t handle and tell us the whole gross, painful truth! Please continue to educate all of us. You are a true compassionate wonderful teacher!
Yeah it's gross, but it's also a valid medical procedure and this video is very informative and can be very helpful to someone. Thank you!
Thanks so much for being honest and transparent. Don't feel weird about talking about this. It is a medical reality and is your reality right now. I have chronic fatigue and a candida overgrowth from taking lots of antibiotics when I was younger and am looking into getting a fecal transplant (even if I have to do it at home, by golly) and this information has been very helpful in understanding how FMT works. You're awesome!!! Keep us posted on your progress! Stay strong!
Thank you so much! Your comment really means a lot!
How inspiring!
You are so.....young to have went through ALL of this and to be sharing your story is just AMAZING!!!!
You are the literal definition of a WARRIOR!! I luvvvvv how strong and passionate you are 👏🏻👏🏻
It's so good that you have been so honest about your IBS and the fecal transplant, because understandably, I guess, hardly any one is willing to talk about this. It needs to be talked about so that people don't feel so alone with this kind of thing. So I applaud you for doing it. I have EDS POTS and MCAD Rheumatoid Arthritis and Ankylosing Spondylitis, GERD and they and others but they are kind of run of the mill types of things. They thought I had Ulcerative Colitis. But I was far too ill with my other conditions to have Any of the scopes for several years. There are gut symptoms in all of the diseases's I have. Yet when I finally had the Colonoscopy and Gastroscopy all they could find was Divaticulosis. So I just call what I have IBS and GERD these days. However for many, many years I have had that awful, unrelenting diarrhoea too. I also use allot of the tips you suggested but some of them I wish I knew about so much earlier, we shouldn't all have to learn it the hard way. It only through brave and honest people like you can our struggle become any easier down the track. One question I would like to ask is how does IBS lead to C Diff infections ? Thanks so much Hanna.
Thank you so much. Comments like this make me keep wanting to make videos! I'm so sorry you have to go through all of this. I had IBS diarrhea predominant for 4 years most likely from my POTS. Then I ended up getting pneumonia and had to be put on antibiotics which resulted in the C. Diff infection. I haven't been able to get rid of it since. I hope this helps, and please don't hesitate to ask anymore questions!
Simply Hannah the same thing happened to me, i got pneumonia and then was given so many anti biotics and other meds that i got c.diff and other bacterial overgrowths, thats when i noticed a major decline in my health - i never felt the same since. Our gut is so sensitive to any shifts in the microflora. I'm so glad i found your channel, Hannah. You're so wonderful for speaking so openly about this, it needs to be done more and more to raise awareness for what a lot of people do go through but feel embarassed to talk about.
Sorry you go through so much, I am a fellow sufferer, have you ever tried juicing and using holistic doctors to help with the immune system and GI syste,? Please share if you don't mind. Thanks, praying for you.
Ana Larson no, I haven't tried any holistic approaches
Considering the length of suffering I pray you would at least research it and see what naturally God may want you to do with the right doctor. Prayers and blessings.
I have sickle cell anemia and a list of other conditions including organ failure, ibs, acute gastritis, CGF, and i know other serious things are wrong but doctors refuse to test me. So im here learning from you!!! Ty "Brave Heart Princess" you arent alone. We are all fighting and each day we wake up, we are WINNING!
Thank you so much! Prayers you get some answers soon! I know how frustrating it is when doctors won't listen. 💜
I have never heard of this Illness, I have learned alot from your blog and you are very brave to share your story with the WORLD. I hope you feel better soon and this time will be the last time you will ever need to have that transplant done again, God Bless you
I have never heard of a fecal transplant and I am fascinated and excited that this exists. ok maybe its an awkward subject but all these procedures out there to help people is incredible. I hope you felt better soon after this
Thank you so much!!!
I feel so much better knowing there’s other out there my age having this done. It’s crazy how many young people are getting it, I didn’t even know it existed until I was diagnosed. This helps me a little more in case I should go though pain, mine is tomorrow and I’ve been freaking out. But this has gave me a personal insight. Stay strong 🙂 and thanks.
Good luck! You'll do great, honestly it's super easy. It does take a few weeks to take effect just a heads up. It literally changes lives and I'm so grateful it's a thing that can cure C. Diff!! Thank you so much!
This is not something I need but I found it very interesting I have chronic illness also and am so glad you decided to share this for ppl who may feel alone or uninformed
Thank you Hannah. I am fixing to hopefully have my first fecal transplant if my insurance goes through. This is my second time having cdiff. I am scared but knowing what's going to happen now. I am thanking you again for letting me know what to expect.
Hannah, I have Pots/NCS/MCAD, and gastroparesis. 7 GI docs tried everything to help me, including steroids and antibiotics that eventually caused me to develop drug induced psoriasis. This led me to look into functional medicine. I switched to water and fresh juices for about 3 days then 7 and worked up from there to 30 days. My psoriasis and severe GI issues are 100% gone and has been for over 2 years. If the transplant doesn't work (God forbid!), please look into a juice fast. This allowed my intestines to have a much needed rest and then I resumed eating (but no processed foods.) I know so many people who were on tube feeds even and they are now 80 to 90 percent improved. All the GI docs told me that it wouldn't help and dismissed it, they just do not believe in holistic anything, but functional medicine is a good middme ground and many practitioners take insurance now. It makes me mad that not one doctor told me this would help and just kept shoving drugs at me. I am so glad I finally just tried it out of desperation! A good place to start is following Jonny Juicer on Instagram. It is always worth a try! I have been able to stop 4 of my Pots meds as well. I wish you all the best and really admire your bravery. Xoxo
You are so freaking strong!!
You are a true fighter and I look up to you💜
I feel for you 100% I have urology problems for four years doctors denied that I had a problem and now I have to go once a week and still in so much pain and can hardly ever sleep I can't even express how much I feel for you good luck with this journey I pray for a pain free life for you !
Thank you so much. Prayers to you as well!
I have never heard of fecal transplants. Thank you for telling me about them. I am so sorry you have had to go thru all this. I can't imagine the pain you have gone through.
I’m so sorry for everything you’ve had to go through. I’ve had IBS all my life but thankfully haven’t had any severe illnesses. I can definitely empathize. Colon issues suck! I hope you feel better!
For any IBS sufferers out there...I finally was recommended something by my gastro that actually helps. I was diagnosed at 10 and have never taken meds for it until I was 34. I didn’t even know there were meds to help. I have an “emergency” sublingual drug for sudden attacks but he also suggested taking Align every day. In my mind the thought of a probiotic helping was a joke but I tried it. And it helps SO much. He emphasized to only take align; not the store brand or any other probiotics. It is not cheap unfortunately. It’s about $35 a month but it is worth it. I won’t say it is a cure but it really helps. If I run out and am too lazy to buy it for a couple days I really notice a difference. You have to take it consistently to maintain the benefits. If you have IBS give it a try. You have nothing to lose.
EVERYONE SHE DESERVES 1 MILLION SUBS, YEAH U HEARD ME.
Thank you thank you, I'm so glad I found your video today. Im on my 3rd diagnosis of CDiff this year. Currently on vanco for 6 weeks ,and having a rough time. I'm having such an awful time during this whole process. You're incredibly brave!
Damn savage af putting in your own ng tube! I’ve had ulcerative colitis for 17 years now and just got c diff in November and I’ve been on a downward spiral illness wise since
I suffer from bad ibs d and I thought I had it bad.. you are so strong. I was such a baby for my colonoscopy, couldn’t imagine doing that. ❤️
I just found your videos and you are so brave and courageous for putting all this out there! Huge props to you for doing your part to spread awareness about what you're going through and to educate other people.
Thank you so much!
Thank you, young lady, for being brave enough to bring the vid to us!
For all the pain she’s been through she deserves 1 million subscribers
Bless you Hannah, you are making the best of a difficult situation and struggling through undoubted pain. I think you will be helping many, many others with this video. I wish you all the best and hope you get well soon. x
Thank you so much. This comment really means a lot!
No thanks needed, just be glad to hear when your feeling better, Kindest.
Wow. Proud of you for being so tough! I have never needed a fecal transplant. Honestly, I was unaware that it was a thing. However as a nursing student this is good knowledge for me to have on the off chance that I ever encounter a patient who has the same illness as you.
Thank you so much!
I had Colitis once in my life and it was completely awful. I could barely stand and was crying as well as vomiting. I was miss diagnosed for a stomach flu until I received a cat scan. God bless!
I live in the Netherlands and a few months ago I read in the newspaper that they were searching for healthy fecal donors. I never knew there was such a thing but if it helps someone that’s awesome!
I’m wishing you all the best girl :)
Thank you so much! I hadn't heard of it either until I had c. diff for almost 2 years and was totally disgusted at the thought of it, but it has saved sooo many lives I'm so grateful it's an option!
Simply Hannah If I weren’t having bowel issues myself (very minor to you but still..) I would totally donate, it’s definitely one of the easier ways to haha. Also my grandmother suffered from Crohn disease so I know how terrible bowel issues can be. You rock girl and thank you to bringing this under attention :)
Girl, you are so brave! I am glad that you've posted this video. I don't struggle with this kind of illness, but I know that there are young women out there who are probably desperate to find videos made by someone who relates and can give them advice and can assure them that everything is going to be ok. Stay true to yourself, because there's a lot of over the top people out there who are not so honest about their illnesses in an effort to win people over. But being honest is beautiful, and you're doing great. Well done!
Thank you so much, this means so much to me. I can't thank you enough for your sweet comment!
You are a ROCK STAR! I pray for you to get healed and healthy. And thank you for bringing awareness to this procedure!!
Thank you so much!
I have had 2 FMT in 2015. I had c diff for 10 months. It nearly killed me. The transplants literally saved my life. People shouldnt be so ashamed to talk about poop. I have been c diff free for 2 years now. I hope this works for you!!
I'm so happy it worked for you! C. Diff is truly horrible and debilitating. Thank you so much!!
Vancomycin would have save you
I was on vancomycin for 3 years on and off along with flagyl and dificid. Nothing worked for me.
I am just starting to video my medical experiences. I too have had a fecal transplant and have POTS, EDS, MCAD, and others. I look forward to hearing about your medical journey and get to know you more.
Thank you for sharing! I’m having one in a few weeks and it does need to be shared!
Thank you! South park did an episode on this procedure tonight, so the floodgates are about to open. Anyone who can't handle this is a child, so ignore them!
Lynne again
I agree. I’m here b/c of South Park, but only out of curiosity b/c I had no idea this was a thing. I knew about C-diff b/c I used to be a CNA, but I didn’t know about fecal transplants. So I’m learning more about it. I’m glad this woman was brave enough to share her experience. I laugh at South Park, yes, but not real ppl suffering.
Happy Thanksgiving to all!
@@ladyscarfaceangel4616 same. I was a dentist before I got sick. So I knew c diff. And I was watching and looked at my husband Ann's was like, "everything else is true, let me look this up." The parkers may have had fun with it, but I think their real motive is awareness.
I’m about to get this next week
@@kayla0180 I hope it makes you feel better!
Thank you for sharing your story Hannah. I hope you are doing well now! Lots of love 💗
What a beautiful person you are 😘 your Mama raised some amazing ladies
Such an informative video! So helpful to see a patients perspective, wishing you the best for the future.
You are a beautiful inspiration to the world xxx
Thank you!! It really means a lot! 💜
So sorry the night doctor didn't take your pain seriously. Certain hospitals I've struggled with in terms of taking my pain and more importantly, my nausea, seriously. Pain meds make me vomit, so I usually refuse pain meds, but they still get stingy with nausea drugs. I know as of a month or two ago it hadn't worked. Crossing my fingers that they get a handle on your immunodeficiency, if that's what is happening, so you can beat C. diff for good.
🤗💟 this is the first video of yours that I watched. I pray you have more good days than not my friend.
Thank you so much!
Thank you...thank you....thank you sweet lady
Wow!!! Wish i could have took your pain. You are truly a real fighter
Doctors should keep patient 100% COMFORTABLE
I will pray for you. I lost 3ft of my colon plus c diff.... I'm losing weight.... I used to weigh 230 lb and now I'm down to 180 and have no other choice and know how difficult it can be so I'll keep my prayers for you . I hope it can help me to. I have been saying no to the idea but it's my last alternative
You are amazing and thank you for sharing and educating us. This is something I know nothing about and am very ignorant about. I appreciate you being so open. Thank you and we wish you the best.❤️
Thank you so much!
At first I thought the title was "facial transplant" but then I found out that it said fecal XD I am so sorry about the pain you have to go through! Stay positive!! ^-^
Hahaha Thank you!!
THANK YOU SO MUCH FOR BEING HONEST. I most likely have to have a fecal transplant and im so so so nervous.
Honestly, they aren't nearly as bad normally as they are in my case. I have other chronic illnesses that contribute to me being a very complex medical case. Normally, it's no worse than a regular colonoscopy and you can go home within an hour or so and don't need a hospital stay at all.
You are a fighter and keep fighting dont let anything stop you from getting better love you lots 😘😘😘❤️
You are a fighter!!!!!! I am inspired by you evrey video!!! Keep fighting you got this!!!!!
You're so brave. Just found you and subscribed today.. Thank you for sharing such a difficult journey 💓
I had watched a couple UC Davis Berkeley videos a year or so ago on fecal microbiota transplant which I thought was totally fascinating. I was amazed to come across your video - on your real life experience. I'm sure this video will help those scouring youtube for information on the procedure.
I am not sickned! You made believe, if you as a human can deal with this NIGHTMARE!! You showed me,just mentally keep moving. I was told 4 yrs ago, i had bad sepsis. I was told i have 75% chance of death in 96 hrs. You are definite 100% " proof people can do great things"
Thank you so much for sharing i suffer from CVS so I appreciate your information
And be strong you will get better and every body is praying for you be strong will be strong for you
Thank you so much for sharing Hannah. You are so brave . I had C Diff too but by the grace of God it's gone. I struggle with a few other chronic illnesses , thats how I ended up with the C Diff. Keep on keepin on . God bless you Hannah
Rubyyellow
Thank you so much! I am also in a similar situation with multiple chronic illnesses and had to be on antibiotics for pneumonia that wouldn't go away (we now know I have an immune deficiency). Prayers to you!
I wish you the best and to be well soon. You're amazing for enduring so much and keeping such an up-lifting attitude. Much love from Brazil
Thank you so much!! 💜
Thank you for posting this!! I’m about to have a fetal transplant very soon and couldn’t find any other videos. I’ve had cdiff 4 times and this time not even dificid helped me!
Girl I can relate to this I had liver surgery and had a feeding tube and I had and incident with my feeding tube it came out through my mouth and had had to go to emergency 🚨room and I was only 7 when I had liver surgery and I’m now 10 people in my class hate me sometimes cause I’m different but I’m not gonna just be rude I’m not gonna care what they think haters gonna hate but us girls are strong ya know you can do this no matter what gets in your way
Thank you so much for making this video. My sone who is a year old is going to go threw this soon and I have only been able to gather info online. I hope it worked!
I will be sending positive thoughts and prayers your family's way! Thank you so much for your sweet comment!
You are so brave to share your story thank you so much:)
I know it sounds crazy, or hippyish, but I’m saying this from someone who didn’t believe and raised to look at canabis as “bad” but it had been a lifesaver for myself and my husband. He was born with spina bifida and has had 6 surgeries on his spinal chord, was on constant dilaudid aka “hydromorphon” 4x a day. Myself suffer from an autoimmune disease that causes tons of nausea and cramping and I can honestly say medical canabis has not only given my life back, but my husband his life back and he no longer is on ANY kind of pain meds. We don’t even smoke it, we take capsules. There are just so many options. Hope you feel better!!! 🙏🏼🙏🏼🙏🏼
Really feel for you, my sis had horrific C diff and the fecal transplant saved her life .........Just curious how are you doing today and did it all work out, I hope, thanks Ro...
I've been in remission from c. diff for almost 2 years now!
Thank you for this! I’m high risk for C-Diff. I have POTS, gastroparesis (solely J-tube fed with a separate G-tube for venting/draining), MCAD, hEDS, and I’m immunosuppressed. I’ve had horrible motility and been so constipated for the past few years... I can’t even go to the restroom on my own without using suppositories, which I remember about every two weeks. It’s bad. Thanks for being so honest. I’m sure you helped several people scared of this procedure. I’m currently super nauseated from the GP which is making my POTS symptoms worse... I understand chronic pain. I tend to pass out too, which sucks. Sending you good vibes and lots of spoons. ✨
I do have an honest question about fecal transplants.. how do they find a donor? Can any healthy person just donate their poop? Lol, as odd as that sounds, I’ve just never thought about how that would work.
Skyler Gray the hospital I went to already has an anonymous donor lined up but a healthy family member can donate (as long as they go through the testing and the doctor gives the go ahead) or I know there is a place in Boston where they will ship you an anonymous donors poop.
I had a fecal transplant this past summer! People never know what it is I got it because of chronic cDiff!! Stay strong! Your amazing!!
Cydniwidni have you had cdiff since?
@Tyler McCarter
I thankfully have not I do how ever still suffer from severe IBS pain but i knew going into it that the IBS wouldnt go away. to answer your question no i havent not had it but i still have post treatment pain.
also i am now 6 months post transplant so i had to get tests done 1 month after 3 months after and then a follow up so i had my follow up and all is good right now thankfully (knock on wood) just thought i would tell you how long ive been since my FMT
You put the NG tube yourself you deserve a medal
Thank you for explaining the procedure think you are a brave girl with all you put up with best wishes for the future x
Thank you so much!
Thank you I’m always happy when it doesn’t turn into sugared story. Thank you for being brave.
Awesome. Thanks for sharing. I would LOVE to know if you noticed any changes after each donor specimen, like personality changes, more focus, ambitious or weight changes or anything! Some studies suggest that. I'd love to know. You should journal the before and after each donor. To look back on.
No I haven't noticed any changes like that.
I feel so bad for you but remember be brave and you can do it
Hope you are doing alot better
I have been drinking pickle juice and it has helped a great deal more than any medication I've tried so far and I've been struggling for 2 years. I know it sounds strange but I hope that you can give it a try and it works
Those preps are awful. I have chronic colitis which comes with a lot of swelling as well. I've had my fair share of colonoscopies and continue to have them yearly to check for cancer. I was diagnosed at age 16. Wishing you a speedy recovery!!
I'm so sorry! Thank you so much, same to you!!!
thank you so much for sharing this!!!
Thanks for sharing beautiful, considering getting one as I have blasto and streptococcus and very done with life, hopefully this helps
Idk what a fecal transplant does can you explain? Iam glad you made this video, your very brave and stay strong and sending prayers.
So when you have c. diff, all of the good bacteria in your colon dies off and the bad bacteria overgrows causing severe diarrhea, vomiting, pain, dehydration, malnutrition, etc. The transplant is supposed to put the good bacteria back into your colon by taking a healthy donors poop and doing a colonoscopy to place it directly into your colon. I hope this explains it well, I'm not very good at explaining it hahah. Thank you so much!
I'm getting this but not at least for a few months. Covid messed so much up for healthcare. Thanks for putting this out there.
I feel so so bad for you I hope you feel better
I had to do that to and I'm only 9 and it was dad I was sad and I had to sit on my said I was just siting there .
I wanna try this also. How many times do you get FMT? Is it daily or weekly? pls. I need your answer. Thanks for the info.
Not often at all. In order to get one in the United States, you have to have a C. Diff infection that is resistant to all antibiotics and you've had for months. That is the only FDA approval for it. I would talk to a doctor about it because I'm not an expert, but its only been shown to be an effective treatment for a C. Diff infection.
I've been sick for years and would like doctors opinion on this but don't know where to start. Recommendations are appreciated. Congratulations warrior.
I have gastrites I had it since 9years old it is horrible I didn't eat and I lost 2 pounds and we went to children's hospital 3 times until I got cured
What is gastrites:when you eat to much spicy food and until you get a stomach pain it is terrible 😥😥now it's feb
Keep on fighting Hannah never give up✊
Also look up Stem cell transplant, and CBD oil and for this disease look into going all natural in everything you do and eat a clean and healthy diet! That alone will help you to heal in your journey I pray for you in this, Thanks for sharing I hope this info helps you!
where do i sign up to be a donor ?
Thank you for sharing. I am about to go through the process as well. I have an ostomy (my 3rd one), port, and constant infections/ inflammation. It wears one out, and many just don't understand how draining it this can be. Sending prayers and a hug your way.
You're so welcome! I'm so sorry you have to go through all of this, but I will be thinking about you and praying all goes well! Thank you so much!
Thank you so very much!!! Like you, I had to deal with the gastric enema/ rectal pain...which is horrible. I have an ostomy with a disconnected J Pouch and I also have a port which I use to manage my IV hydration and IV medication. Like you, I have endometriosis, IBD, colitis, gastroparesis, GERD, reflux, and more. I could feel and hear your pain. As someone with a high pain tolerance, the fact that you can still focus and share is amazing. Sending you support and prayers your way.
Keep your head up never let up beuatiful 👑
😘😊
Do u live on the east coast?
I live in pa
But lived in ma ct va nc also
I am going to do it myself don't need them to do it, cause if it is that slow I need to do it.more concentrated.
Also yes I know how drs love changing your meds. They always want less pain meds and they even took away my heart meds. I almost died bc of that. I learned you have rights and you can ask for another opinion and say you know this is not right at all. This happened once to me but never again
Omg thank you for making this video. I may have to get one because I constantly keep getting c diff. I am really nervous about it.
Blood Bathory if you don’t have any other issues on top of c diff, it shouldn’t be this painful for you. I had the same exact problem and had a fecal transplant and I went out to eat after it. After I had the transplant, I haven’t relapsed at all
Yes, my medical case is very complicated and we have to take a lot of precautions. Normally it's a same day procedure and you can do everything normally within hours. It's no worse than a colonoscopy!
Ive had C-Diff for 3 months now. Flagyl for 3 months..It just doesn't work. Probiotics too. 3 times a day.Trying to get on Vancomycin but have to wait for insurance to ok it. It's a very expensive. last resort will be fecal transplant. Geez...this is awful.
prunella goodrich I almost died from Cdiff this summer. Flagyl didn't work. Vancomycin didn't work. Then they did Difficid... that didn't work.... the Fecal Microbiota Transplant saved my life. I'm praying for you.
I finally got the Vancomycin for 1100.00 co- pay. Been on it for a week and I see no difference. Dr. talked about doing something in her office and then I guess the transplant will be the last resort. I feel really good. Better than I have in a long time. But...I still have the diarrhea , but only twice a day. Thanks for your prayers.
prunella goodrich it really is quite the journey. Let us know how you are as you go along. Xxx
Take oregano oil capsules 3 times daily for a month
U can get vanco inpatient and insurance will pay for it.
For this type of procedure, does the donor have to go through the same procedures as donors for other transplants (matching of blood types, free of infections, etc)? I am just totally curious.
I'm not 100% sure because my hospital uses an anonymous donor, but I know you have to be clear of infections and autoimmune diseases. I don't think matching blood types matters though.
Stay strong hunnie
Have to watch these videos because I’m learning about this in science
I've had one of these. Never heard of anyone else who went through it