Finally Getting a J Tube?! | Feeding Tube Surgery
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- เผยแพร่เมื่อ 15 ก.พ. 2021
- Instagram: hannahr916
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Canon g7x mark II
Welcome to my channel! My name is Hannah and I live with a couple of chronic illnesses. I also love traveling and makeup. Thank you for supporting my channel!
For Business Inquiries ONLY: hannah-elizabeth98@hotmail.com
✨Hi Hannah I am a young supporter I am 11 years old and I know how you feel sadly.... It happened to me before but luckily I got healed and I can tell you god will heal you and there is no doubt!✨
YAY! You’re back on TH-cam! Great to see your videos again.
Hi Hannah. I can't imagine how frustrating this all must be for you. Just remember that everyone here wants to support and be here for you❤🧡💛💚💙💜
Whenever you post a video I’m always amazed at at how beautiful you are... not that it’s unexpected, but you’re just so pretty!!!
Always such a relief to see you post a video when it has been awhile since we have heard from you. It sucks to hear things haven't gone better for you as far as surgery results but you will get there honey. I'll keep you in my prayers and will be believing that this summer will find you living a much healthier and fuller life.❤ Keep your chin up!
She posts more frequently over on Instagram
Hannah - I am so, so sorry surgery has been so difficult and discouraging to recover from. Praying for renewed strength for you.
If it helps, you and your bravery to share your story had pushed me to fight my own health issues and pursue my education. I am in nursing school now after years on medical leave and I am pursuing working in GI and hopefully becoming a wound/ostomy nurse down the road. Keep sharing your journey and reaching out to others. We are here with you and you do make a difference!
So glad you are back.❤️ You look so pretty.
Saw that dangler tube, and almost cried. I kept telling my GI doc, I wanted a button. She said they don’t exist for adults. A no answer always Spurs me on. AMT and Mic-key both make adult buttons. Must have six months on dangler first. AMT has longer and wider sizes. Mic-key is limited in size. The doc never apologized for calling stupid. She was 9 months pregnant she got a pass. If your interest search google. Take info to md. You are amazing! Keep kicking
Hi Hannah. It's great to hear from you. You're such an inspiration as you struggle with all life has dealt you. Don't ever worry as how you say rambling. Its a privilege that you share your story on utube with us when you're not feeling well. When I see your stomach, I can imagine how much you've already endured. Time..what does that mean to you? Hurry up n finish is what I think. Praying 🙏you can feel better NOW. Take care ❤
Currently fighting a fever due to the covid vaccine and was complaining nonstop and stumbled upon your video. I need to calm tf down and practice gratitude. You’re inspiriting and such a fighter I can’t even imagine what you go through physically and mentally. Love you and rooting for you!
Oh no, praying you feel better! I got my vaccine and the side effects/fever were brutal for the first 24 hours. Thank you so much!!!!
I love Hannah she’s so nice and she’s such a fighter no one deserves this but she still makes her life so great! ilysm 🤟🏻
Great to see you once again Hannah
Praying for you, love. Glad to hear some positive updates! I love your posts regardless if you ramble :)
keep fighting girly. i was just diagnosed with gp yesterday and your videos are such a source of inspiration.
Don’t worry Hannah you can do this! Sending prayers 🥺❤️
Been checking back to see if there have been any new videos/updates.....praying for the best
Glad you’re back! It might take some time, but you will get off the TPN. Stay positive. I will keep you in my prayers.
From experience? It can take a while to tolerate tube feeds it will get better and depending on how bad your “flare” gets sometimes it gets worse.
I know it’s possibly already been considered but have you tried a elemental formula? When I got really bad I had luck with neonate splash. It’s a pediatric formula, and is functionally like clear liquids but a tube feed formula.
I love your new haircut, it looks awesome! Sending you rest and healing after the surgery! Sending you prayers! What did you watch on your computer in the hospital? I'm glad there was no complications for your surgery. That's frustrating and confusing they had to do the whole surgery again. I really hope your Uti gets better. Hopefully with time your J tube starts working again. Wishing you the best of luck moving forward. Your emotions are totally valid. I'm so glad you got your favorite flavors of drip drop.
Stay strong. 💪 It's one step at a time!
You’re a superstar! beautiful girl so brave & amazing! Keep pushing towards love from the UK 🇬🇧 ♥️♥️ healing wishes & positivity coming your way hoping things turn a corner for you soon you’ve been through so much xxx
Been wondering where u been. Happy to see you posted a video.
You can do it!!!! 💕💕
You’re one of the strongest people I’ve ever seen!! I’m always so impressed, you’re awesome!
You are a strong amazing person ❤ keep moving forward.....💖 you and sending good energy and vibes your way
Thank you so much for answering my nosy questions. It helped me more to understand things. Fight like hell as you have been. Love you ❤️❤️🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻❤️❤️🙏🏻🙏🏻🙏🏻❤️❤️
Of course!!!! Thank you so much 💗💗💗
So good to see you again Hannah, I'm so proud of you for finally getting that J tube.
Thanks for the tip on Drip Drop. I’ll try the watermelon 🍉 flavor. Wishing you the speediest recovery❣️
I wondered how you were doing. You look great. Mom has a PICC line and g- tube. You have helped me to help her. She is trying to get Adhesions removed but not strong enough for surgery. Faces many situations that you go through. You have helped us to keep strong. I wish you the very best. prayers too.
Hannah, I just binged your videos, I finished yesterday. I want you to know that you are very loved and supported. Your common theme is you think you're rambling and that your videos are too long.
It's been a couple of months since you posted, and I'm worried about you. I'd rather you post something more often than months between because you think you're boring or something. On the contrary, you are a ray of sunshine. I wish you didn't have to suffer like you do, and I can't imagine everything you've lived. Just know you're in my heart, and hope to hear from you soon ❤
Dude your lashes look BOMB
You're a real hero!
Sending love from Europe 💖
Hey missed ur vlogs and I’m in a bad gastroparesis flare rn gastroparesis isn’t fun didn’t sleep last night cause of it
Do you have MCAS? I’m afraid I have gastroparesis. In the process of getting tests done.
We will get our life back. I promise. And it will be so sweet after all of the suffering, can't wait 😇
Nice t "see" you again, Hannah, even though you're in pain and disgusted with TPN. I do hope in a couple of weeks you'll be feeling better and systems will be a "go". You're one tough kid.
Hi, Hannah. Can I ask if your iodine levels have ever been checked thoroughly? Thankyou for sharing your situation. You are very brave. ✨
Stay strong 💪 I hope you fill better soon.
Stay strong sweet Hannah you're so beautiful and stay positive sweetie
I'm so bloated I look pregnant, I FELT THAT
Sending you love!
Hello Hannah, hope you are doing well. I just had a question, maybe you already addressed it in a previous video. Have you ever been tested for antiphospholipid syndrome? One of the signs is migraines and blood clots including strokes. It is an inflammatory disease so it goes along with autoimmune. I have not been well recently either so i understand some of your frustration. I know that looking at other diseases isn't fun as you can spiral down a hole of searching for answers but I thought I would let you know just in case you haven't heard/ been tested for it. Praying that both of us start feeling some improvement soon. Stay strong Hannah!
I have been tested and it came back negative! My workup showed an elevation in my factor VIII though which they think is the cause for the stroke and clots. Thank you so much, same to you!
Feel better I am currently stuck in a dorm with no class all week and no internet. I luckily have cellular service and unlimited data. Service has been spotty until tonight though from all day.
Man I was hoping the G poem would have been successful and lasted for you. I’m so sorry for all you have to go through!! I have so many chronic conditions including gastro paresis but I’m able to survive of liquids and creamy boating food until I find a procedure that might help me . Really praying you get a break
Looking beautiful in the car scene. Love hair makeup and hoodie. So cute
I am glad you have finally got j tube. Hope improve soon have you thought of increasing feed by 1 ml/hr instead of 10
You look beautiful!
Be positive
Hope great better hope you up on your feed and feeling better. I hope you off tpn soon
Praying you continue to improve🙏🙏🙏🙏
Seriously, how do you make your lashes look so long and awesome? You are beautiful.
Hannah is so cool 😎
Please update a blog!!
Stay strong girl i can't imagine how your feeling my animia has been kicking my baby butt so I couldn't imagine going through all of this just stay strong sending love and good vibes I really hope you feel better soon ❤
God will heal you 🙏🏾🙏🏾🙏🏾
Sending hugs! Let me know if you ever need to chat with someone. I hope you start feeling better soon! 🥰
Just got out of the hospital again...I am thinking about you. I hope you are doing well. I just had another dissection so I could be better. Hang in there.
May God lay His healing hands on you
Hello Hannah, I was wondering have you ever take ciprofloxacin or any fluoroquinolone? I'm in the same boat as you... Oh, by the way i'm french! And i can't even tell you how endearing and lovely you are!♥♥♥
Just want to tell that i recently discovered that any fluoroquinolones can damage badly the CNS and trigger many problems like slow gastric emptying, pots syndrome, fatigue syndrome, damage the menstrual cycle and so on... By damaging mitochondria Even after one intake. Symptoms can appears after many months and be permanent. It's been many years that i feel most of the time miserable. I was previously healthy but can't remember it very well now... I highly suspect fluoroquinolone is for something in this story. I just wanted to share my discovery, just in case. I'm in my bed, in my small village and you break down the barriers, i feel close to you... See how wonderful you are ! Take care.
Me again. When you can't tolerate tube feeds. You have severe pain... do you throw up too?? 🙏🏻🙏🏻🙏🏻🙏🏻❤️🙏🏻🙏🏻🙏🏻❤️😢🙏🏻🙏🏻❤️
Yes, I have severe pain, bloating, nausea, and diarrhea
Hi Hannah you don't know me but, my name is Isabelle and I'm ten. I have something to say. Remember you are beautiful, strong, and last but not least you are worth it. Also you can let your smile change the world, but don't let the world change your smile.❤💛💚💙💜
What is TPN? What's tough about it? Can you explain the G tube, J tube and other tubes you spoke about simply.?.? And do you know what caused your gastroparisis? Spelling wrong 😑 lol. Will you ever be able to eat by mouth or is it a day by day wait and see..???? Please do not answer when your feeling bad. I've been following you for a few years... and I'm curious. Praying for you always. 🙏🏻🙏🏻❤️❤️🙏🏻🙏🏻🙏🏻❤️❤️❤️
TPN stands for total parenteral nutrition. Basically I get fed through a large vein in my chest which bypasses my entire GI tract. It comes with a lot of side effects and risks though like liver failure, sepsis, blood clots, etc. The G tube is the tube at the top of my belly (the tiny, button tube) and it goes through my skin directly into my stomach. I use it to drain bile so I don't throw up as much. The J tube is the one that is lower and dangles, I use this one for tube feed & medications as it goes directly into my intestine. We don't know what caused my gastroparesis. Thank you so much!!
@@SimplyHannah98
Could it be nerve damage
I wish we could talk. I have had c diff, twice. I'm so sorry you aren't getting better. I looked for you today and I couldn't find you. I hoped you were doing well.
You look fabulous, and your hair is a big part of it, also... that lipstick. (want to share? I tend to purchase lipsticks that look good on other people). Also really really sucks right now is just speaking the truth.
Thank you!! It's the colourpop lip tint in gimme s'more!
Hello! How are you doing now?💚💚
Hi sweetie xxxxxx
Dysautomia brain fog and Mom stuff, I had no idea you've had more set backs and surgeries. I'm sorry. Are you still going thru CC? 🙏
Do you have EDS? Your arm looks hyper-mobile. That could be the camera though.
Yes, I do have EDS
Is your stomach paralyze ? I wish you well
You are so strong. I cry a lot with all I am going thru.
MAN!!!!!! I pray.,,,,, Spiritually for the recovery of this beautiful souljia she got that LION strength gott Dan Hit!!
I also suffer gastroparesis. I know what you live....
0:42 You look more than semi-presentable to me.
3:37 It made sense to me.
9:13 How about trying 15? I mean, I don't know how small steps you can take.
I saw that there might be a rumor going around that she has passed on, is that true? I really hope not, she’s a wonderful person, and a huge inspiration to me and to others.
Nope, I’m still here!!
@@SimplyHannah98 thank you so very much, that’s a huge relief, I could cry right now.
Do you have an email
Why do u hate tpn so much
The side effects are awful and there are a ton of risks that come with it like sepsis & liver failure
Was this a fraudulent channel? Is this why she’s been off for so long?
No, just been dealing with a lot of medical stuff
Oh ok hope all is well soon
Rest in Peace Hannah ☹️
I'm still here lol