These symptoms are so exhausting, finding help is exhausting. Its either falling in the rabbit hole of Prolotherapy or Cranial cervical instability and then everyone saying don't go see chiros that crack because they cause more damage, go see an Atlas Orthogonal which that process and the NUCCA process feels like tons of hocus hocus , then the anxiety due to autonomic issues get so bad because of natural reasons and then gets worse from all the answer chasing. :-(
Thank you for your care and persistence to improve the quality of people’s lives with OI. I’m taking your insights to a specialist for hEDS+POTS treatments. Our lives are too precious to simply survive. we need hope that we can live better. Please keep up your work!
Completely brilliant. Please consider this: if there is a CSF leak, even if a very small diameter, brain buoyancy is reduced, putting pressure on the brain stem and thereby stressing the autonomic nervous system. The nervous system can become routinely dysregulated due to chronic stress and orthostatic pressure. This distresses the body and affects posture and neck, as well as systems you described. Such was my personal experience. Nervous system rehabilitation is an interesting process.
Being in this rodeo for almost a decade. Your videos are very good. I’ve been working with Dr Robert Wilson main campus Cleveland Clinic who been by my side since day one. I have Pots, Lems, pure autonomic failure and a celphacele. My skull cracked that’s a mystery and part of my brain mushroomed out into my sinus cavity plus two c-spine fusions. Things can be hard. Is there anyway you could reach out to Dr Wilson in hopes of finding any kind of treatment for us patients. You have a very clear explanation when you communicate thru these videos.
This is terrific. Are you familiar w/ Dr. Andrew J. Maxwell's theory of The Pentad Super Syndrome? One (of several) of the potential mechanisms he sees for folks who have a confluence of issues like dysautonomia, gut issues, EDS, autoimmune issues, high ICP, csf leaks, and many others is a compression at the cranio-cervical/Eagle space impacting the IJV, vagus nerve, probably baroreceptors, etc. It seems what you're talking about would fit in nicely as a piece of that.
Thanks again Nate for another really insightful video! Being able to assess the vestibular, visual and proprioceptive systems and seeing how they operate in relation to one another sounds really complex, but it's amazing just how much these 3 systems alone are driving our entire human experience. You can start to see how dysfunction in one or more of those systems could create multiple day-to-day symptoms for the afflicted individual; half of the problem is being able to identify these pathways being a potential issue (as the patient) and approaching the right practitioner to accurately assess and offer rehab solutions. Also I was looking for studies from those Doctors you recommended, Ogoh and Novak; but was struggling to find their exact names online. Did you mean Shigehiko Ogoh and Peter Novak? Cheers Nate!
I’ve mentioned this to my doctor and specialist several times, and they’re just dismissive and can’t see any connection between my neck, which is stiff, painful and unusually straight, and autonomic dysfunction.
That's probably best answered by the rather well known fact that as I keep hearing, MDs simply have very little training in the area of the ANS and then therefore all types of dysautonomias. In fact it's a really bad discrepancy or lacking of information in the medical schools curricula that really ought to be addressed.
That's probably best answered by the rather well known fact that as I keep hearing, MDs simply have very little training in the area of the ANS and then therefore all types of dysautonomias. In fact it's a really bad discrepancy or lacking of information in the medical schools curricula that really ought to be addressed.
My son has been suffering from pots for two years and no doctor or hospital helps him 😢now start taking him to the chiropractor neurologist hopefully it will help him
This makes a lot of sense, suffering from Cervivcal stenosis i suffer from it all. I hope SA doctors and chicopracters are catching up with the rest of the world. It can be exhausting when one does not get the help needed. Thank you for the helpful enlightening information. 🙏🙏❤️❤️
I just came across this channel tonight. I have watched ALOT of videos on dysautonomia(a lot of them being focused on POTS). I have to say these were the best videos I’ve seen. I haven’t heard anyone explain things in so much detail. Even some new things that I’ve never heard of. Nowadays, my pots is so much better. I do still struggle with extreme fatigue and the cloudy brain fog feeling. Also, I can’t explain it but the ear, neck and eye thing makes so much sense. It feels like the left and right side of my body aren’t connected if that makes any sense .Maybe someday I’ll be able to go this clinic.
Omg. This is eye opening. I have a bad neck bulged disks all the way up and bone spurs. All pain on the left side. I’ve Ben to drs for many years about dizzy spells. They always did EKGs check my blood sugar. Never found a problem for 20 years now. Just realized I have the symptoms of pots. Dizzy when I stand up my heart rate changes all the time, but never attributed that to lack of salt or anything else. I now realize I need to find a doctor that understand. What you study? Thank you so much.
Thank you Dr. Keiser. This is very useful information. I may have this problem. I will ask my chiropractor. Please keep these kinds of high heart rate related issues to our attention. I value your videos.
Wow, this video describes me to a tee. So insightful! Thank you. I had Vestibular testing done at John's Hopkins and it was clear. Did many weeks of Vestibular PT and it was not helpful at all. It only made my heart rate increase, and symptoms (dizziness, brain fog, blurred vision) worse. Neck pain is a constant. All of this has occurred after Covid infection sixteen months ago. Just curious if you do virtual appointments?
Of course it can. I have had a dislocation of my 1st or 2nd vertebrae since whenever, along others before and along the way. A chiropractor tried to put it back when I was 19, but given I have joint hypermobility (not EDS) none of it ever sticks. That is, there are plenty of avenues to go from there... Maybe if at 19 they had stabilised by neck... Now it's too late. I'm 50 and the condition is just systemic.
I have a neck hump and bad posture so I started doing exercises to fix that but my POTS asymptoms got worse so maybe that’s why 😮 another think I found out there is a link between pots , adhd , hyper mobility, fibromyalgia and I have all of em ,
I have autonomic dysfunction, neck problems, dystonia, Parkinsonism and more problems as a result of a rare hypoxic-iscemic brain damage which resulted in complete, symmetrical, bilateral, putamen infection (basal ganglia ) at age 30. I've had multiple injuries to my head due to falls since. I'm alone and too poor to afford a functional neurologist (chiropractor) like yourself. I'm at rock bottom. There's no Medicare covered medical care that can actually help me. Money buys health and health is the basis of happiness. I had to get 3 staples in my head for one of my falls. I'm 43 and I have 24/7 full body rigidity and all symptoms of Parkinson except tremors. My 24/7 neck stiffness sometimes causes an ice pick pain to my brain. I can't make close friends due to my fatigue (I have the high hr you described), anxiety and depression. There's a world renouned functional neurological chiropractor in my area (Portland, OR) but I can't afford him on ssdi. I wish I hadn't survived 😢
So sorry you're in this state of health. There are many of us for whom there are no real solutions, just expensive placebo hope. Wish you the best, sometimes things balance a bit over time, and/or we cope. Free pain management and lifestyle balance/simplicity may be your only real hope, unfortunately. Very best to you, friend.
I’m on a waiting list to see someone who does your kind of work, in the meantime while I wait, I see a chiro for my reverse neck curve and kinked back, if it is a neck or spine miss alignment, is it as simple as correcting those things to be cured or does it go deeper than that?
Hi Nathan, Thanks for making this video. I am suffering from the same thing you speak about in the video and get worse with movement and laying down….which is movement.😢
I was wondering if this was linked to my neck today . Then i found this ! Very early in terms of pots symptoms neck problem comes and gos. But my neck and shoulders and jaw (tmj) came first. Then the pots symptoms and today ive had terrible neck tightness and shoulders due to stress and anxiety. And the pots symptoms ive had today were also awful. I am going to discuss this with my doctor the possible link . I already said this made sense due to nerves in this area. For me the root cause is my anxiety and ptsd as they were what caused me to over tense my muscles and clenching my jaw. Mines much worse after standing and doing housework for some time. Much better when im lying down. Hopefully my gp refers me for a scan bevause firstly they have sent me to a physio which should be done of course . However I think I need a scan . Also having tingling around my mouth. My blood pressure checks arent convincing them but its catching it when it happens.
I have listened to this several times and still don't have a clear understanding as to the specifics of your therapy.. I don't mean to be callous but other than you mentioning the chamber you went on emotionally But did not hear anything regarding the specifics be it the meds or procedures that improved your condition. I've been to specialist with my daughter in New York City, North Carolina and buffalo and just a lot of vagaries
This is great info. I’ve had long covid since the first time I had it 3-4 years ago. I was having problems with head pressure, brain fog and other symptoms. I noticed gluten and sugar made it worse. I also have dystonia. When I had Covid I felt like I had Vertigo. I would get so dizzy even laying down. I had to prop up on pillow then I did some exercises for vertigo from TH-cam. It helped some. I also had tinnitus. I caught Covid again on Feb this year. Which I still had stymoms then it’s like I got real dizzy getting up and I fainted one time trying to kill a spider during the night. Which I went to my neurologist and they did nerve study because my legs go numb. It came back good. He has tried me on another medicine which help to sleep and some pain then in morning I be sore. So now going to physical therapy. The heart doctor put me on medicine to help with low blood pressure. Which has helped some. I do compression socks and eat salty food. This makes sense. I also have problems with vision with lazy eye since I was little. I get headaches too from neck and head pressure gets worse. I was wondering if it could be from my eyes too?
I have been 24/7365 dizzy for 12 years. I had all the vestibular testing (horrible btw) that didn't show a problem yet they still sent me to vestibular rehab twice. I have blood pooling inn my feet and hands and my neck always is stiff and I have a headache every morning all these years. My left ring and pinky swell as well as my right ankle every day. Gut issues too. I am wondering if my neck is the problem even though I have never had an injury? I always fail the romberg test also.
@@dockeiser Sure. Like what? I did lyme treatment, mold treatment, hormone replacement, chiro, PEMF, essential oils, suppplements and probably more I can't remember over the years.
@@sharonschauer3257 I’d actually like to know more about your history. Probably more than we can do in this format. If you’d like, email me at info@drkeiser.com
I have POTS, fibromyalgia, osteoarthritis and hypermobile EDS. I'm currently in lots of pain in my neck and shoulders and lower back and having arm and leg weakness and warmth. I suspect cranio cervical instability. I'm doing PT and other things- ice pack, massage, kinesio tape, a natural pain cream. Absolutely nothing is helping. I'm waiting for an MRI. In the meantime, since I cannot even sit upright today without pain and tachycardia, I was looking for helpful videos. I found a few to watch later, but, watched this one. This video confirms that the root of some of my issues is neck related. I just don't know what to do or not do. With hEDS, we have to be careful with doing too much. I used to be able to push myself until about 2 months ago. Then, my health just collapsed.
I am so sorry for you and I understand since I suffer from the same issues...can we talk somewhere else? I have insta or Facebook .I could use a talk to someone that shares the same issues. Sending big hugs
I finally went to a chiropractor, she gave me neck stretches to do daily with heat and cold packs. The ringing in my ears finally stopped after 3 years. All neck pain, shoulder pain, numbness in my arms legs stopped.
I’ve been sick since covid in 2022. I had every symptom imaginable and spent most of time in bed. After seeing many, many drs and having lots of different therapies, I went to Dr. Keiser’s clinic for 2 weeks and he changed my life by doing exactly what he described in this video. He is beyond amazing. If I could prevent people from suffering for 2. 1/2 years or more like I did, I would strongly suggest calling the clinic and make an appt to go there. I hope you get your life back like I did.
What if you have TOS? My 11 yo has severe POTS and I've been trying to get to the bottom of it for years. She has evidence of an unstable cervical spine in her MRIs, has a syrinx and 1 low tonsil as well as compression of the subclavian vein when she lifts her arm a little bit and huge collatoral veins down her arm. What is causing what and can we fix this without surgery?!
This answer would probably require more info than you can give me in a text box. Would you like to give a call or email and we can have a look at the problem better?
How much is your program for someone from out of state and how long does it take for initial program? Can you do virtual visits after the first few weeks when you visit more frequently?
Hi there! We would be happy to have you give our office a call. Claire would be happy to answer all of your questions about treatment costs and duration. (734)-707-5105
Wow! Using a family account but I have severe neck issues and lordosis problems and also pots syndrome that affects so much is this possibly due to my neck issues?
Can reverse neck cause POTS if there is some compression? Would symptoms such as feeling extra pressure in the head and face and fullness in the ears and hearing blood rushing in the ears upon laying down be related? Or for example when I stand up I feel a little extra pressure build in my head for a short while until my heart rate gets up? I am really kind of lost in this search for what is causing my POTS. I have a cardiologist, seen a neurosurgeon and have a chiro i see 4 days a week and I still have the very tight burning upper back and neck muscles plus the POTS. I see you in late July but was hoping for some answers or relief sooner. What direction can I go from here locally? Who can find the root cause if the lack of blood supply to my brain?
This is a great question. With all of those pieces in motion, I’d have to examine the problem to give a responsible answer. Is it possible? Yes. But to give more depth I need to collect more data. I understand how bad you just want to be done with this. I would feel the same. I don’t want to point you in the wrong direction. I am very much looking forward to seeing you in July. Feel free to keep supplying us information via the email. See you soon!
@832Pokemom I feel the pressure in the head and I also have a loss of curve it seems like there is some correlation with the neck but not 100% sure They say it can th-cam.com/video/Vs-SHWLmew8/w-d-xo.html
My 20 year old son’s symptoms. Hyper mobile/ Severe brain fog/ severe Weakness in arms and legs upon awakening lasting two hours to return to normal/ POTS/ both ears closed off. Any thoughts? HELP!
I have had ebrs palsy from birth ( my right arm was affected). i am now 38 and have been a cna most of my working life. Most people dont even realize i have erbs palsy( i am very blessed). For the past 4 years, i have been having POTs symptoms, and it was confirmed last year that it was POTs. I can't help but think it is linked to the ebrs palsy and my neck slowing shifting out of place agien. Would this be possible?
Helo im male 28. Last year i injured my left neck in a excercisse, its pained very hard. After this i get heart palpilations, and pain always on the left side. After i got this pain from the excercisse i can‘t sleep for 3 days, because of heart palpilations and massive neck pain, the Doktor says its all good, but the pain don‘t go. Cardiologist said all ok. But the neck hurts. When i sleep without a pillow, my neck dont hurts, and i can sleep again.. Now when i doing some excercisse, i got panic, and scary feelings.. and pots when i do special excersise, what can i do, im feeling like i am in a horror movie since 1 year..
I’m glad to hear this is information that helps you. This is a situation where it might be best to use someone who is trained rather than a diy approach. Obviously I don’t know your circumstances, but moving quickly and putting it in the rear view mirror may be worth considering. Good luck and keep us posted!!
I have been poorly for almost 5yrs Pots symptoms Chronic fatigue my neck hurts everyday the muscles are tight I have hemplegic migraine with aura, but even without a migraine attack I have headaches everyday, blood pooling in my legs Pins and needles all the time in different parts of my body, I literally want to give up as I can’t work I don’t go out much anymore I suffer anxeity the past two years since my life became housebound. I’ve seen nuro cardiology endocrinologist chest an pain clinic physio chiropractor osteopath acupuncture the list goes on what I have tried. I had a traumatic event to my neck when I was in my teens I fell backwards of a wall an hit my head in concrete but I recovered well, just before I got sick five years ago I was physically assaulted, my neck was compressed an a few days later my face started having electric shock type spasms that would shoot up my neck an into my face, this happened often turned my head a certain way an it would trigger it and then a headache lasting days, The mri was normal It progressed which is why I went down chiropractor then a few months later the pots symptoms and digestive issues happened I’ve not been able to get to the root cause of everything or help I’m on tramadol an codeine but that isn’t helping anymore, It almost feels like my head is too heavy for my body if that makes sense I have to lie down a lot as I can support my head for long periods of time as the pain is to much I don’t know what or where to go next apart from surrender
Bone growth into the hole that the blood vessel and nerve goes through on the side of the vertebrae. I can't think what the hole is called. I have this problem, but no dr has addressed it. I guess ill end up getting a stroke or something...who knows
@@dockeiser well I sought treatment for POTS as my main problem, though I have dysautonomia with balance problems and other symptoms. After 8 weeks of therapy and then a month of vacation with LOTS of sleep, my POTS symptoms are reduced quite a bit but I’m feeling significantly more off balance. My latest tilt table test shows improvement to almost normal HR and BP, and my CAPS test got better in 4 directions but worse in 4 other directions, and on my VHIT test the LARP and RALP gains all decreased.
Do you have any videos on hypotension only when supine (ie 96/58)? I can’t find any info on google other than hypotension during pregnancy. It’s sounds like the opposite of orthostatic hypotension. And, no major changes in heart rate.
You keep talking about pots caused by an injury. What about those of us who have it for genetic reasons? I'm pretty sure my mom had it, I have it, and my sons both have it. It's very possibly from EDS, but I haven't gotten the test results back yet.
@@jeah1827 Been looking into answering this question myself over the last 5 months. It all depends on what the genetic issue is. Think of it like poor eyesight.. There are many different reasons why people need glasses/have poor eyesight. Some genetic, some poor habits or injury. Some of the people who need glasses for genetic reasons can do some extra conditioning exercises to strengthen their eyes to keep their eyesight sharp. But some can't. Glasses might help some, but not others.
Hi Dr, I think I know where my pots symptoms have come from but I'm struggling to even get an help from my GP over the last year with it. I think it all started when I crashed a jet ski, I went in a sort of horizontal position and smacked my face in the jet ski. Since a few weeks after that I started get stomach issues, then the feeling that someone had filled my head with hot water and the worst continuous headache for 3 days. The headaches went over the course of a month. I'm now left with eye issues, new high BP and the tachycardia that goes along with pots. What I did notice is that I get pain in what I believe is the atlas/c1 part of my neck so I don't know if that is causing the issues
@@compscif5032 hi thanks for the reply. I've not really had any help to be honest, had some blood tests that were clear. No sort of scans or anything as my doctor just keeps telling me that it's anxiety so I've stopped having much faith in them to be honest. I saw a physiotherapist for a session and they identified an issue in the lower back that they believe is causing the pain in one of my legs so I think I'll go back to them and see if they can refer me further to my GP to get a scan of some sort. I just feel twisted all the time too, like I'm misaligned. I managed to get an ECG too which came back as sinus tachycardia, once again just brushed off as anxiety which is annoying
These symptoms are so exhausting, finding help is exhausting. Its either falling in the rabbit hole of Prolotherapy or Cranial cervical instability and then everyone saying don't go see chiros that crack because they cause more damage, go see an Atlas Orthogonal which that process and the NUCCA process feels like tons of hocus hocus , then the anxiety due to autonomic issues get so bad because of natural reasons and then gets worse from all the answer chasing. :-(
Your not alone, to have your health stolen is a shot in the gutt.
I’m right there with you, my friend
Thanks for mapping this out in your experience. Your experience will help me.
did you ever find relief?
Ugh!!!!😢
Thank you for your care and persistence to improve the quality of people’s lives with OI. I’m taking your insights to a specialist for hEDS+POTS treatments. Our lives are too precious to simply survive. we need hope that we can live better. Please keep up your work!
Completely brilliant.
Please consider this: if there is a CSF leak, even if a very small diameter, brain buoyancy is reduced, putting pressure on the brain stem and thereby stressing the autonomic nervous system. The nervous system can become routinely dysregulated due to chronic stress and orthostatic pressure. This distresses the body and affects posture and neck, as well as systems you described. Such was my personal experience. Nervous system rehabilitation is an interesting process.
How was the CSF leak diagnosed?
you can learn more about that from Stanford University's Dr Ian Carroll
Wow! A great blend of chiropractic and neurology, great job describing the effects of neck positions on the nervous system. Thank you!!
Thank you so much🙏 I really appreciate you saying that
Being in this rodeo for almost a decade. Your videos are very good. I’ve been working with Dr Robert Wilson main campus Cleveland Clinic who been by my side since day one. I have Pots, Lems, pure autonomic failure and a celphacele. My skull cracked that’s a mystery and part of my brain mushroomed out into my sinus cavity plus two c-spine fusions. Things can be hard. Is there anyway you could reach out to Dr Wilson in hopes of finding any kind of treatment for us patients. You have a very clear explanation when you communicate thru these videos.
This is terrific. Are you familiar w/ Dr. Andrew J. Maxwell's theory of The Pentad Super Syndrome? One (of several) of the potential mechanisms he sees for folks who have a confluence of issues like dysautonomia, gut issues, EDS, autoimmune issues, high ICP, csf leaks, and many others is a compression at the cranio-cervical/Eagle space impacting the IJV, vagus nerve, probably baroreceptors, etc. It seems what you're talking about would fit in nicely as a piece of that.
That sounds interesting. What type of treatment does it involve?
Thanks again Nate for another really insightful video! Being able to assess the vestibular, visual and proprioceptive systems and seeing how they operate in relation to one another sounds really complex, but it's amazing just how much these 3 systems alone are driving our entire human experience. You can start to see how dysfunction in one or more of those systems could create multiple day-to-day symptoms for the afflicted individual; half of the problem is being able to identify these pathways being a potential issue (as the patient) and approaching the right practitioner to accurately assess and offer rehab solutions.
Also I was looking for studies from those Doctors you recommended, Ogoh and Novak; but was struggling to find their exact names online. Did you mean Shigehiko Ogoh and Peter Novak? Cheers Nate!
Well stated Chris.
Those are the authors indeed! Happy reading
I’ve mentioned this to my doctor and specialist several times, and they’re just dismissive and can’t see any connection between my neck, which is stiff, painful and unusually straight, and autonomic dysfunction.
Of course not they don’t want people to get better 😢they are pushing pills
That's probably best answered by the rather well known fact that as I keep hearing, MDs simply have very little training in the area of the ANS and then therefore all types of dysautonomias. In fact it's a really bad discrepancy or lacking of information in the medical schools curricula that really ought to be addressed.
That's probably best answered by the rather well known fact that as I keep hearing, MDs simply have very little training in the area of the ANS and then therefore all types of dysautonomias. In fact it's a really bad discrepancy or lacking of information in the medical schools curricula that really ought to be addressed.
I have a stiff neck from a car accident 3 years ago and have had POTS like symptoms since. What kind of dr would treat something like this?
How do I find a Dr that can do this? Where are you? I am desperate for help.
My son has been suffering from pots for two years and no doctor or hospital helps him 😢now start taking him to the chiropractor neurologist hopefully it will help him
This makes a lot of sense, suffering from Cervivcal stenosis i suffer from it all. I hope SA doctors and chicopracters are catching up with the rest of the world. It can be exhausting when one does not get the help needed.
Thank you for the helpful enlightening information. 🙏🙏❤️❤️
I just came across this channel tonight. I have watched ALOT of videos on dysautonomia(a lot of them being focused on POTS). I have to say these were the best videos I’ve seen. I haven’t heard anyone explain things in so much detail. Even some new things that I’ve never heard of. Nowadays, my pots is so much better. I do still struggle with extreme fatigue and the cloudy brain fog feeling. Also, I can’t explain it but the ear, neck and eye thing makes so much sense. It feels like the left and right side of my body aren’t connected if that makes any sense .Maybe someday I’ll be able to go this clinic.
Omg. This is eye opening. I have a bad neck bulged disks all the way up and bone spurs. All pain on the left side. I’ve Ben to drs for many years about dizzy spells. They always did EKGs check my blood sugar. Never found a problem for 20 years now. Just realized I have the symptoms of pots. Dizzy when I stand up my heart rate changes all the time, but never attributed that to lack of salt or anything else. I now realize I need to find a doctor that understand. What you study? Thank you so much.
Thank you Dr. Keiser. This is very useful information. I may have this problem. I will ask my chiropractor. Please keep these kinds of high heart rate related issues to our attention. I value your videos.
Thanks so much. I hope you find it helpful
Hi, very interesting video, but what are some of your recommended therapeutic options?
Wow, this video describes me to a tee. So insightful! Thank you. I had Vestibular testing done at John's Hopkins and it was clear. Did many weeks of Vestibular PT and it was not helpful at all. It only made my heart rate increase, and symptoms (dizziness, brain fog, blurred vision) worse. Neck pain is a constant. All of this has occurred after Covid infection sixteen months ago. Just curious if you do virtual appointments?
Excellent piece! But where do you start for a diagnosis?
Of course it can. I have had a dislocation of my 1st or 2nd vertebrae since whenever, along others before and along the way. A chiropractor tried to put it back when I was 19, but given I have joint hypermobility (not EDS) none of it ever sticks.
That is, there are plenty of avenues to go from there... Maybe if at 19 they had stabilised by neck... Now it's too late. I'm 50 and the condition is just systemic.
What are the treatments?? And what type of doctor do you go to
Functional neurologist
I have a neck hump and bad posture so I started doing exercises to fix that but my POTS asymptoms got worse so maybe that’s why 😮 another think I found out there is a link between pots , adhd , hyper mobility, fibromyalgia and I have all of em ,
Same girl sameee !!! Did you find something that works
I have all those miserable syndromes and issues as well. Autism is also common with hypermobility.
I have autonomic dysfunction, neck problems, dystonia, Parkinsonism and more problems as a result of a rare hypoxic-iscemic brain damage which resulted in complete, symmetrical, bilateral, putamen infection (basal ganglia ) at age 30. I've had multiple injuries to my head due to falls since. I'm alone and too poor to afford a functional neurologist (chiropractor) like yourself. I'm at rock bottom. There's no Medicare covered medical care that can actually help me. Money buys health and health is the basis of happiness. I had to get 3 staples in my head for one of my falls. I'm 43 and I have 24/7 full body rigidity and all symptoms of Parkinson except tremors. My 24/7 neck stiffness sometimes causes an ice pick pain to my brain. I can't make close friends due to my fatigue (I have the high hr you described), anxiety and depression. There's a world renouned functional neurological chiropractor in my area (Portland, OR) but I can't afford him on ssdi. I wish I hadn't survived 😢
How r u now. Prayers fr u. One or the other way God vl help u.
I went to him pretty sure the one you're talking about. They couldn't help me
So sorry you're in this state of health. There are many of us for whom there are no real solutions, just expensive placebo hope. Wish you the best, sometimes things balance a bit over time, and/or we cope. Free pain management and lifestyle balance/simplicity may be your only real hope, unfortunately. Very best to you, friend.
I’m on a waiting list to see someone who does your kind of work, in the meantime while I wait, I see a chiro for my reverse neck curve and kinked back, if it is a neck or spine miss alignment, is it as simple as correcting those things to be cured or does it go deeper than that?
Wow, I could have written this script myself. Thanks for this very informative video.
Hi Nathan,
Thanks for making this video. I am suffering from the same thing you speak about in the video and get worse with movement and laying down….which is movement.😢
POTS has me ready conclude my existence
Aw please don’t do it.
This video was very informative thank you
Thankyou so much for explaining this all.
I was wondering if this was linked to my neck today . Then i found this ! Very early in terms of pots symptoms neck problem comes and gos. But my neck and shoulders and jaw (tmj) came first. Then the pots symptoms and today ive had terrible neck tightness and shoulders due to stress and anxiety. And the pots symptoms ive had today were also awful. I am going to discuss this with my doctor the possible link . I already said this made sense due to nerves in this area. For me the root cause is my anxiety and ptsd as they were what caused me to over tense my muscles and clenching my jaw. Mines much worse after standing and doing housework for some time. Much better when im lying down. Hopefully my gp refers me for a scan bevause firstly they have sent me to a physio which should be done of course . However I think I need a scan . Also having tingling around my mouth. My blood pressure checks arent convincing them but its catching it when it happens.
I have listened to this several times and still don't have a clear understanding as to the specifics of your therapy.. I don't mean to be callous but other than you mentioning the chamber you went on emotionally But did not hear anything regarding the specifics be it the meds or procedures that improved your condition. I've been to specialist with my daughter in New York City, North Carolina and buffalo and just a lot of vagaries
C2 compression fracture age 23 - age 58 - gone through so much , I done all this . Now , I’m just stuck .
I get it. Broken neck @ 22. Neck fused out of alignment. Can walk, just so exhausted. I'm 67.
@@krystel2856sorry 😢I feel you.
This is great info. I’ve had long covid since the first time I had it 3-4 years ago. I was having problems with head pressure, brain fog and other symptoms. I noticed gluten and sugar made it worse. I also have dystonia. When I had Covid I felt like I had Vertigo. I would get so dizzy even laying down. I had to prop up on pillow then I did some exercises for vertigo from TH-cam. It helped some. I also had tinnitus. I caught Covid again on Feb this year. Which I still had stymoms then it’s like I got real dizzy getting up and I fainted one time trying to kill a spider during the night. Which I went to my neurologist and they did nerve study because my legs go numb. It came back good. He has tried me on another medicine which help to sleep and some pain then in morning I be sore. So now going to physical therapy. The heart doctor put me on medicine to help with low blood pressure. Which has helped some. I do compression socks and eat salty food. This makes sense. I also have problems with vision with lazy eye since I was little. I get headaches too from neck and head pressure gets worse. I was wondering if it could be from my eyes too?
I have been 24/7365 dizzy for 12 years. I had all the vestibular testing (horrible btw) that didn't show a problem yet they still sent me to vestibular rehab twice. I have blood pooling inn my feet and hands and my neck always is stiff and I have a headache every morning all these years. My left ring and pinky swell as well as my right ankle every day. Gut issues too. I am wondering if my neck is the problem even though I have never had an injury? I always fail the romberg test also.
I would be really interested in learning more about your case if you can
@@dockeiser Sure. Like what? I did lyme treatment, mold treatment, hormone replacement, chiro, PEMF, essential oils, suppplements and probably more I can't remember over the years.
@@sharonschauer3257 I’d actually like to know more about your history. Probably more than we can do in this format.
If you’d like, email me at info@drkeiser.com
If we dont live near your office and cant travel, what sort of treatments or modalities should we be exploring ?
I have POTS, fibromyalgia, osteoarthritis and hypermobile EDS. I'm currently in lots of pain in my neck and shoulders and lower back and having arm and leg weakness and warmth. I suspect cranio cervical instability. I'm doing PT and other things- ice pack, massage, kinesio tape, a natural pain cream. Absolutely nothing is helping. I'm waiting for an MRI. In the meantime, since I cannot even sit upright today without pain and tachycardia, I was looking for helpful videos. I found a few to watch later, but, watched this one. This video confirms that the root of some of my issues is neck related. I just don't know what to do or not do. With hEDS, we have to be careful with doing too much. I used to be able to push myself until about 2 months ago. Then, my health just collapsed.
I am so sorry for you and I understand since I suffer from the same issues...can we talk somewhere else? I have insta or Facebook .I could use a talk to someone that shares the same issues. Sending big hugs
I finally went to a chiropractor, she gave me neck stretches to do daily with heat and cold packs. The ringing in my ears finally stopped after 3 years. All neck pain, shoulder pain, numbness in my arms legs stopped.
@@auraberglund5766I need help
How r u now
I’ve been sick since covid in 2022. I had every symptom imaginable and spent most of time in bed. After seeing many, many drs and having lots of different therapies, I went to Dr. Keiser’s clinic for 2 weeks and he changed my life by doing exactly what he described in this video. He is beyond amazing. If I could prevent people from suffering for 2. 1/2 years or more like I did, I would strongly suggest calling the clinic and make an appt to go there. I hope you get your life back like I did.
What if you have TOS? My 11 yo has severe POTS and I've been trying to get to the bottom of it for years. She has evidence of an unstable cervical spine in her MRIs, has a syrinx and 1 low tonsil as well as compression of the subclavian vein when she lifts her arm a little bit and huge collatoral veins down her arm. What is causing what and can we fix this without surgery?!
EDS of course....
This answer would probably require more info than you can give me in a text box. Would you like to give a call or email and we can have a look at the problem better?
Functional neurology ❤
How much is your program for someone from out of state and how long does it take for initial program? Can you do virtual visits after the first few weeks when you visit more frequently?
Hi there! We would be happy to have you give our office a call. Claire would be happy to answer all of your questions about treatment costs and duration. (734)-707-5105
Thanks for uploading this sir,
Regards
Vaibhav
Thanks for watching Vaibhav 😊💪
Wow! Using a family account but I have severe neck issues and lordosis problems and also pots syndrome that affects so much is this possibly due to my neck issues?
th-cam.com/video/mah5Ly0bJYY/w-d-xo.html this person recovered from pots
It’s hard to say for sure, but it might be worth looking into!
Fused from c3-7, 5 surgeries, spinal cord injury, cranial instability, I'm a damn mess at 56.
Can reverse neck cause POTS if there is some compression? Would symptoms such as feeling extra pressure in the head and face and fullness in the ears and hearing blood rushing in the ears upon laying down be related? Or for example when I stand up I feel a little extra pressure build in my head for a short while until my heart rate gets up? I am really kind of lost in this search for what is causing my POTS. I have a cardiologist, seen a neurosurgeon and have a chiro i see 4 days a week and I still have the very tight burning upper back and neck muscles plus the POTS. I see you in late July but was hoping for some answers or relief sooner. What direction can I go from here locally? Who can find the root cause if the lack of blood supply to my brain?
This is a great question. With all of those pieces in motion, I’d have to examine the problem to give a responsible answer. Is it possible? Yes. But to give more depth I need to collect more data. I understand how bad you just want to be done with this. I would feel the same. I don’t want to point you in the wrong direction. I am very much looking forward to seeing you in July. Feel free to keep supplying us information via the email. See you soon!
@832Pokemom I feel the pressure in the head and I also have a loss of curve it seems like there is some correlation with the neck but not 100% sure They say it can th-cam.com/video/Vs-SHWLmew8/w-d-xo.html
@@dockeiser 12:37
My 20 year old son’s symptoms. Hyper mobile/ Severe brain fog/ severe Weakness in arms and legs upon awakening lasting two hours to return to normal/ POTS/ both ears closed off. Any thoughts? HELP!
Give us a call to discuss or email info@drkeiser.com
Good luck 🙏
But what doctor treats your neck issues. ???
I have had ebrs palsy from birth ( my right arm was affected). i am now 38 and have been a cna most of my working life. Most people dont even realize i have erbs palsy( i am very blessed). For the past 4 years, i have been having POTs symptoms, and it was confirmed last year that it was POTs. I can't help but think it is linked to the ebrs palsy and my neck slowing shifting out of place agien. Would this be possible?
Helo im male 28.
Last year i injured my left neck in a excercisse, its pained very hard. After this i get heart palpilations, and pain always on the left side. After i got this pain from the excercisse i can‘t sleep for 3 days, because of heart palpilations and massive neck pain, the Doktor says its all good, but the pain don‘t go. Cardiologist said all ok.
But the neck hurts. When i sleep without a pillow, my neck dont hurts, and i can sleep again..
Now when i doing some excercisse, i got panic, and scary feelings.. and pots when i do special excersise, what can i do, im feeling like i am in a horror movie since 1 year..
That's so strange about the pillow because I'm the same I need like a flat pillow and never have I felt comfortable with that .
@@stephanieburt1662 yes really it is, now i put something on under my neck a hand towel, or something soft, and i didnt feel pain anymore…
@@keyylarr66update
Can wry neck be caused by pots syndrome that was one of my first symptoms of not being well also had a severe headache.
Could this happen after a TBI?
Very interesting information. I had suspicion it is part of my problems. But I don't know how to work on this without a doctor versed in this art :(
I’m glad to hear this is information that helps you. This is a situation where it might be best to use someone who is trained rather than a diy approach. Obviously I don’t know your circumstances, but moving quickly and putting it in the rear view mirror may be worth considering. Good luck and keep us posted!!
Awesome video thank you so much.
Glad you liked it! Thanks for the comment
Thank you for the very informative explanation. Sounds like what my wife has.
Could this possibly cause Central Apnea?
I have been poorly for almost 5yrs
Pots symptoms
Chronic fatigue my neck hurts everyday the muscles are tight I have hemplegic migraine with aura, but even without a migraine attack I have headaches everyday, blood pooling in my legs
Pins and needles all the time in different parts of my body,
I literally want to give up as I can’t work I don’t go out much anymore I suffer anxeity the past two years since my life became housebound.
I’ve seen nuro cardiology endocrinologist chest an pain clinic physio chiropractor osteopath acupuncture the list goes on what I have tried.
I had a traumatic event to my neck when I was in my teens I fell backwards of a wall an hit my head in concrete but I recovered well, just before I got sick five years ago I was physically assaulted, my neck was compressed an a few days later my face started having electric shock type spasms that would shoot up my neck an into my face, this happened often turned my head a certain way an it would trigger it and then a headache lasting days,
The mri was normal
It progressed which is why I went down chiropractor then a few months later the pots symptoms and digestive issues happened I’ve not been able to get to the root cause of everything or help I’m on tramadol an codeine but that isn’t helping anymore,
It almost feels like my head is too heavy for my body if that makes sense I have to lie down a lot as I can support my head for long periods of time as the pain is to much
I don’t know what or where to go next apart from surrender
Have you had your blood checked and have you been tested for autoimmune disorder or connective tissue disorders
It sounds like CCI-craniocervical instability
@@Mari-dl5wt they said the mri with contrast didn’t find it and now just left again :(
@@poisonpalette4663 You need an upright MRI or DMX (digital motion x ray).
Great info! Thanks
Thanks Ryan 😊
Bone growth into the hole that the blood vessel and nerve goes through on the side of the vertebrae. I can't think what the hole is called. I have this problem, but no dr has addressed it. I guess ill end up getting a stroke or something...who knows
I have so much pressure in my head could this be my problem
Thanks
Hi Dr Keizer, have you seen cases where the tachycardia reduces greatly but the Vestibular problems get worse? That seem to be the case for me.
Hi there, when you say vestibular problems what do you mean in particular?
@@dockeiser well I sought treatment for POTS as my main problem, though I have dysautonomia with balance problems and other symptoms. After 8 weeks of therapy and then a month of vacation with LOTS of sleep, my POTS symptoms are reduced quite a bit but I’m feeling significantly more off balance. My latest tilt table test shows improvement to almost normal HR and BP, and my CAPS test got better in 4 directions but worse in 4 other directions, and on my VHIT test the LARP and RALP gains all decreased.
And in the last week, I’ve felt much more off balance, while my heart rate has gone up a bit, but not to previously high levels.
Do you have any videos on hypotension only when supine (ie 96/58)? I can’t find any info on google other than hypotension during pregnancy. It’s sounds like the opposite of orthostatic hypotension. And, no major changes in heart rate.
Hi there! Is it normal when seated or upright and then drops?
where are you located?
You keep talking about pots caused by an injury. What about those of us who have it for genetic reasons? I'm pretty sure my mom had it, I have it, and my sons both have it. It's very possibly from EDS, but I haven't gotten the test results back yet.
Because the ones caused by injury can be changed or improved. Genetic acquired pots not so much
@@jeah1827 Been looking into answering this question myself over the last 5 months. It all depends on what the genetic issue is. Think of it like poor eyesight.. There are many different reasons why people need glasses/have poor eyesight. Some genetic, some poor habits or injury. Some of the people who need glasses for genetic reasons can do some extra conditioning exercises to strengthen their eyes to keep their eyesight sharp. But some can't. Glasses might help some, but not others.
Hi Dr, I think I know where my pots symptoms have come from but I'm struggling to even get an help from my GP over the last year with it. I think it all started when I crashed a jet ski, I went in a sort of horizontal position and smacked my face in the jet ski. Since a few weeks after that I started get stomach issues, then the feeling that someone had filled my head with hot water and the worst continuous headache for 3 days. The headaches went over the course of a month. I'm now left with eye issues, new high BP and the tachycardia that goes along with pots. What I did notice is that I get pain in what I believe is the atlas/c1 part of my neck so I don't know if that is causing the issues
@@compscif5032 hi thanks for the reply. I've not really had any help to be honest, had some blood tests that were clear. No sort of scans or anything as my doctor just keeps telling me that it's anxiety so I've stopped having much faith in them to be honest. I saw a physiotherapist for a session and they identified an issue in the lower back that they believe is causing the pain in one of my legs so I think I'll go back to them and see if they can refer me further to my GP to get a scan of some sort. I just feel twisted all the time too, like I'm misaligned. I managed to get an ECG too which came back as sinus tachycardia, once again just brushed off as anxiety which is annoying