The Truth About POTS: 27 Questions Answered!
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- เผยแพร่เมื่อ 25 เม.ย. 2023
- #mysteryillness #POTS #functionalmedicine
Postural orthostatic tachycardia syndrome (POTS) is a disease that I commonly encounter every day, but it is often overlooked. In this video, I have answered the top 27 questions that patients, doctors, providers, and practitioners from all over the country are asking me.
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POTS hasn’t killed me, but it has stolen my life.
We are so sorry to hear this. It must be really challenging living with POTS. We hope that our videos and blog series are helpful in providing you valuable insights on how to navigate through this condition.
You have problems when lying down ?
It’s hell but I beat it.
@@comicbossone2411How?
@@CerenYh it mostly took 8 months. A combination. Some will help you with the symptoms, some will help you with the underlying cause depending what it is. I developed mine after severe covid pneumonia. First of all and I can’t stress this enough. Throughout the day when you are awake, sit up. It’s the simplest and perhaps most important way to recondition.
Then look at using the following. H1 blocker centrazine, high dose absorbing acid in water, iron, b vitamins, potassium, magnesium, eat smaller meals, avoid histamine in your food.
Other things you may wish to consider, walking and recumbent reconditioning. I believe sitting instead of lying down during the day and gentle walking on flat surfaces, then stairs with antihistamines (just for a few months), together with ascorbic acid will get you back on your feet. It takes time but you can get it all back, you can beat it, it is not a god, it is not impossible but you are going to have to dig down deep to defeat it. If you do this you WILL win!
Good luck to you.
POTS absolutely sucks. I have it along with hEDS, fibromyalgia and other things. Some days, I can't stand or even sit. I have to lie down.
A cardiologist can diagnose POTS. My GI doctor suggested it to me. I'd been trying for at least 8 years to get a diagnosis. I suspected POTS and mentioned it to a few doctors. They didn't think it was that.
Well, when my GI doctor mentioned POTS, that was the validation I needed to keep pursuing a diagnosis.
Herbal products from Dr Oyalo have been a staple in my routine now. They help me feel more in control of my POTS and live a more normal life.”
Oh my word - I would love to be able to come see you. I’m a long Covid hot mess.
I had a tick on my neck when I was a kid. Probably completely unrelated. I fainted the first time when I was 11 from a hot bath. I fainted 4 other times throughout my life and so I learned to sit down when I felt light headed. I'd literally just stop dead in my tracks and sit until it passed. I lost mobility in my elbow joints about 10 years ago for no apparent reason, it eventually returned. Nausea is something I've always lived with, headaches, joint aches and memory is something I've struggled with for as long as I can remember 😉 as a child I was diagnosed with anxiety, asthma and plain old "bad nerves" I get tremors, im jerky in movement and extremely clumsy. I'm really hard on myself so the fatigue was just me being lazy and I'd just push myself to go harder. I was a runner. 5 miles a day and ate very healthy, then I opened my own business and could no longer find time for healthy meals and exercise. I've been to the ER via ambulance 5 times from November-January and had countless test by my pcp who's just referred me to a cardiologist. Rapid heart rate and low blood pressure. I've had all these symptoms my whole life and I can't believe there is an actual name for what I may have and I'm not just lazy, clumsy and forgetful.
Herbal products from Dr Oyalo have been a staple in my routine now. They help me feel more in control of my POTS and live a more normal life.”
Incredibly helpful thank you
We're finally targeting my GI issues. That kidney action was interesting. I haven't thought much about it except how very very active my kidneys like to be. My comorbidity is ME/CFS, likely triggered by mono. We have a LOT of long COVID suffers in our support group. There's so much overlap.
Herbal products from Dr Oyalo have been a staple in my routine now. They help me feel more in control of my POTS and live a more normal life.”
Thank you for this video! You helped fill in some of the gaps in my POTS understanding, such as why to lie on an incline. Very helpful details!
You are welcome! We are so glad you found this video helpful.
Herbal products from Dr Oyalo have been a staple in my routine now. They help me feel more in control of my POTS and live a more normal life.”
Thank you! 😊
You're welcome! Thank you for taking the time to watch the video.
I got it after covid pneumonia. I beat it!
That's amazing to hear! 💪 It's incredible how resilient the human body can be. If there's one thing that you learned and you would like to share, what would that be?
@@RIFMAdmin thank you. I wish I’d seen your vids some time ago. Too many things to narrow down, it’s a combination. People will tell you not to do this or that in terms of effort, they will say “stay within yourself”. They are well meaning but I would still be afflicted to this day if I’d adopted the same attitude.
I was mentally very strong before it happened. However, anyone who has had pots at its worse will tell you it takes the joy out of every aspect of life. It took 8 months and over that time I forged s new mental toughness, I did not give up and I used my 12 year old son for motivation as I’m all he has.
I am from a research background. Which proved to be both a blessing and a curse. Early on I found very little reason to be optimism with positive outcomes seemingly rare. However, I initially found one case and that was the moment I knew it was possible and if something is possible I knew I could do it.
As I studied further it became apparent there was probably an underlying cause. Given my symptoms and history I landed on MCAS and started stripping food and treating accordingly. Aware that it would take time as cell regeneration/recycling took place over months. So I knew it would be at least 6 months before I noticed any appreciable changes.
As well as stripping histamine from my diet I used s H1 blocker, B-complex vitamins, iron and water filled with vit c. The latter used as scaffolding to directly help the blood vessels on a daily basis.
Together with very gradual but consistent and persistent reconditioning and the love and willing on of my little boy I managed to make it back, at first to functionality which took 8 months (record territory I was told) to where I am now 2 and a half years later which is pretty normal. Now I have added potassium and magnesium rich food to my diet and I have no fear. It truly is a debilitating curse, it felt like being allergic to gravity. Imagine that, every second of every day. I felt totally pathetic and broken, now I am reforged. Videos like this, discussion, success stories and a positive outlook together with the details outlined above are the pathway forward. There is hope, there is a pathway and you must make it your mission to find it. I knew what it was and had regained functionality before meeting my cardiologist and having him diagnose it. I was very lucky, I only told him the symptoms and he got it in one. There had been an influx of patients post covid so he was familiar.
Thanks again for the work you put into making these videos, you will never know how much hope it brings the people searching for them and for answers.
Any specifc advice to help POTS from Long Covid?
There has to be an underlying cause of POTS. My 16 year old daughter is currently dealing with this. She had a covid type virus 3 months ago. She is now passing out 2-3 times per day, nausea, headaches, fatigue, etc. She was totally healthy before she caught the virus
I started with POTS about 13 years ago. After trying hundreds of different things only Vitamin B complement ando electrolytes have been helpful. I no longer drink plain water. I hope this can help your daughter. BTW. I never got COVID.
@@margaritasaborio4475hi, I was just diagnosed with POTS. Just wondering which brand of electrolytes have been working for you? And vitamin B ?
@@margaritasaborio4475hi, how are you now, do you have POTS yet? And how much your heart rate? Plus answer
Herbal products from Dr Oyalo have been a staple in my routine now. They help me feel more in control of my POTS and live a more normal life.”
All of these so called mystery illnesses have causes. My so called mystery illnesses are caused by yrs of having undiagnosed mold and tick diseases that caused my immune system to become compromised, I have bad nuerological problems, pots dysautonomia, autonomic nervous system problems, central nervous system problems and all dismissed by this conventional medical system.
How did you find out please? About the mold and tick bite?
@@christinagrant3252 conventional medicine did nothing to help. I went to a holistic naturopath dr. They ran specialized testing, the testing they used found the tick disease and mold toxins in my urine. There are tests that do work and find these illnesses, but they cost money. The first test that found the tick disease was the western blot and the elisa was negative but the western blot picked 3 bands up, then yrs later the naturopath dr found everything else. Buy treatments for these are difficult and confusing.
Herbal products from Dr Oyalo have been a staple in my routine now. They help me feel more in control of my POTS and live a more normal life.”
I have diabetes and was placed in the hospital for over a month with Covid and Pneumonia. After, I started to develop symptoms of POTS. It is now undeniable. I can barely stand for a minute and have been going through this for almost two years. No one seems to know enough about it. I'm suffering and can't work and no one understands. I'm also having a hard time with my foot healing from a diabetic ulcer. Imagine wearing a medical cast and boot for over a year in combination with POTS … I'm always off balance.
Herbal products from Dr Oyalo have been a staple in my routine now. They help me feel more in control of my POTS and live a more normal life.”
Where in Texas? Where did the person get treatment ?
There was actually a pilot study showing treatment. I don't recall which university the pilot study was on. The issue is that unless you're in a study like that at a university, you're not going to get IV IgG but you can do it by mouth. Here's the link to the article just in case you want to check it out casereports.bmj.com/content/2018/bcr-2017-221405.short
hello, what are your thoughts regarding regular iv fluids for pots? 3 to 4L per week.... 1L administered over 4hrs. thank you..
Hi there, getting IV fluids for POTS two to four liters per week is a sign that the person has a very unstable vasculature requiring large-grade fluids to help maintain their blood pressure. It's more of a marker of the degree of severity of their condition as far as getting these fluids long-term can have some issues but those people have bigger problems with actually just living because those POTS are so severe. So it becomes a risk-benefit thing. What's the best risk-benefit as determined by them or with their specialist usually it's determined that for them to function or have better activities of daily living IV fluids are the next thing to add on. But usually, that is one of the things done after multiple other therapies and things have been tried.
Herbal products from Dr Oyalo have been a staple in my routine now. They help me feel more in control of my POTS and live a more normal life.”
What do you use to treat the SIBO?
I typically use FC-Cidal and Dysbiocide by biotics research. This is a great combination of herbal wise, that works for many patients. Sometimes a little extra oregano can be added in for extra support.
I’m afraid I’m going to die
@@lisamccullough5150 It would be best to see a healthcare provider or meet with a Lyme literate doctor or someone who's familiar with it to get treatment.
@@lisamccullough5150Cape searching so the best method for you. I am 74 years old and I am finally getting out of the long Covid symptoms I have had for over three years. I’m saying a prayer for you.
If you've had issues for 15 years - is it possible to recover any health....or only to maintain the current level of health if disease is stabilized?
Your body was made to heal and self-repair. There is always hope and you can always get better. It's just finding a path forward and implementing it and not getting discouraged. If someone's been sick for a long time they also tend to have a trauma response, which needs to be addressed as well.
Herbal products from Dr Oyalo have been a staple in my routine now. They help me feel more in control of my POTS and live a more normal life.”
Long covid created this. Thank u
Lyme 😔
Can Pots swell your hands ?
Yes, some types of dysautonomia. People with third space or have fluid build up in their hands and legs.
Yet another Doctor more concerned with a mythological god than his profession. Huge red flags.