It's MS Awareness Month! Ask-Me-Anything Multiple Sclerosis!
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- เผยแพร่เมื่อ 4 ส.ค. 2024
- LIVESTREAM! It's MS Awareness Month! Ask-Me-Anything Multiple Sclerosis!
The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
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COMMENT with your thoughts and questions below! I look forward to reading and responding!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
You are a dog lover? Fantastic!!! I own two labs, both females. I'm a disabled veterans that after my deployment to the middle east, developed MS symptoms because of taking the anthrax vaccine (at least that is what the VA says). My older sister has MS too.
I had a very difficult time walking today due to MS, and this is just what I needed. To connect with an MS community.
I think the last video on what can cause death in MS was very tastefully done and you came across as being very caring and sensitive to this difficult topic. Thank you!
I love this thumbnail, Doc Bos'! I love that eyeball portrait, haha!
Your pup is gorgeous! Thank you for such educational videos. I have learned so much from watching them. MS is a scary thing for me personally. My mom has MS as well and I am used to taking care of her, never really thought my back issues would turn out to be ms! I was just dx in dec of 2018. Watching and learning from these videos lessons my anxiety. ✌🏻
Hi i from Holland
Thanks for al your knowlege
I learn a lot 👌
Thank you for answering my question last night, I really appreciate it. Wishing you a high quality day!
Right on!
Ms doctors can’t diagnose me unless they see lesions but I have all the sensations , heavy weight in my head, balance issues , all types of tingles but mri is clear ! Muscles twitches for one year all over too
Also , she hallucinated, always thought baby or kids were around us, and also she always accused "ppl"??? Of taking&stealing her things. My poor girl thank you LindaMathis
Hi dr. B.
I have Been watching your channel for a couple of weeks wanting to try to catch you live and un- successful with that so I will just leave my comment and my questions here.
1. monetizing the channel and offering the profits of that to your staff, any staff is great.
education is always wonderful and assisting other people's on their path is what you are doing.
2. Is there a specific something that you can do for nerve pain in the face specific nerve pain going through the jaw and in the teeth?
It doesn't always happen but it is annoying on a daily basis?
3. When I had my hysterectomy 3 yrs.ago in hospital I had an intense MS flare I could barely walk They made me walk with a Walker instead of my cane in hospital for safety..now am 58 yrs old,have had MS 26 yrs. when I got home from the hospital 2nd day after journey home and rest from the 2 hrs. Drive home.
I wake up from a nap and I come into the kitchen not seeing or knowing what was happening in here and I'm starting to heaving and hurling throwing up before I even knew what was going on in the kitchen and husband was cooking us all dinner like any other day.
He was cooking meat.
be for this surgery I was a meat eater for 13 yrs. I also have fibromyalgia too of 3-4 yrs ago.
Now presently 3 years later I'm still not able to smell:meat eggs fish, any dairy products, now I'm vegan my husband is not comfortable with that as he loves his meat... he is working with it and older than me and grumbles quite a bit about him having to go out and cook outside.
Is there anything that I can do in this situation.
my husband and I are older and I am taking Tecfidera.
before that I did take Copaxone for 2 years then became allergic. Allergic reaction happened to it at a little after 2 yr mark.
while I was taking Copaxone and still is present taking Tecfidera now.
Hi Dr B.....it’s Janet B from the UK x
Howdy Janet!
I had an appointment with my neurologist ARNP Jennifer Fairbank and I mentioned you and how I understand her decision to switch me from Copaxone to Aubagio better because of the draining pool analogy when she told me she saw you at a dinner get together a few days ago!!! It's such a small world.
Right on! Please give her my regards next time you see her! #WeHaveMS
you are too wholesome
not so sure about all that CantingPython!
Holland, Michigan By learning new things can grow plasticity to short-term memories for ppl with MS?
Hi! I’m not sure if it’s too late to ask a question but I was diagnosed 9/2018 but have had symptoms for quite some time. I am not certain but most of my symptoms started when I had Parvo virus in 2015 and everything was out of wack but no other work up was done. In April 2018 I started having complete memory loss, tremor, muscle spasms, extreme coldness and fatigue. I also had vertigo. Neuro did an MRI with lists of MS signatures and I had to see a few neuros before getting someone to take me serious.
I was originally told I “don’t look sick enough”. I’m 37 and a Masters degree Nurse Practitioner. My cognitive issues were a major issue. Finally diagnosed in 9/2018 after more neuro exams and a spinal tap but only 2 or 3 O bands.
Anyway, my cognitive issues have gotten VERY bad. I’ve never had an actual “relapse” that was obvious like optic neuritis etc. everything seems to just be slowly getting worse. Does this sound like progressive from the start?
I also have the MS hug that is a complete nightmare. Get it almost daily to weekly and causes me to not be able to talk or breath well for over 10 minutes. Had all kinds of GI work up and didn’t connect the dots until my brain MRI
So.. I’m considering applying for disability due to being unable to do my work because of my cognitive issues and difficulty with the Hug coming on frequently and the tremor. Is this too early to apply or does it sound like I have significant symptoms?
Also, do cognitive symptoms seem to stay about the same and progress or do they ever improve? I was told they don’t get better :(
Suzanne Sesbreno/ Sudbury,ontario,Canada/ dear good doc. do U think I should be with meds again for my m.s.
Hi Dr B. You mention that the brain is great at rewiring itself. Does being intelligent help that? Basically what makes the brain rewire?
thought one of your children was called 'River Bear' for a moment! (and why not?) But I think it suits a dog better - he looks splendid! What breed?
Rebecca Thomas she’s an American Mastiff & turns 4yo next month!
My daughter used tecifibera for management of ms symptoms for 10 yrs, In July, Dr decided to pull her off, said it was no longer stopping progression of disease, talked with her&myself(her mom) about recieving hospice care at that point. She had been progressing rapidly, also they said she had dementia for several yrs, due to ms. So, my daughter passed away on Oct 9/2020. Up until June, July she started declining rapidly. What could have caused her rapidness of death?? I understand tht dementia makes the brain, literally fall apart, could it have been that?
Susie from NC
Regarding monetizing your videos. To pay or not to pay, that is your concern? Simple, use the trust principle and monetize your website, but have another button and trust people that they'll be truthful that they really can't afford your videos whatever cost.
I want to send you funds. Even though this year I no longer meet the tax threshold to itemize, I still want to support organizations that either help me or things I'm concerned about.
Can you explain what White hyper intensity between the hemispheres of the brain mean? I’ve been told don’t worry come back in a year, with no information. I hate when doctors says something but don’t explain. Just wait.
I say use the money to educate your team.
TY for your vote Terri
Hello Doctor Good Morning.. First of all thank you so much for your time. My girl friend is having symptoms difficult to diagonose. It's been three yeas. 1 Her body feels always tight, difficult breathing, twisting but not visible. 2. She feel movement sensations in all body.. Not like numbness or crawling but sensation of something moving inside.. Also if you touch her legs she feels it on face. Kinda.. No pain.. 3. She feels not right.. She always feel her body is twisting.. And she is always worried 24 by 7.. Eyes walking hearing muscle movememts diet sleeping digestion everything else is good. She is always complaining and touching her body.. Is it MS OR Psychatric issue.. She talks about her symptoms all day all day along.. Pls advise.. We have been to many doctors...
So for easy math if the 40-year-old male was diagnosed with PPMS in 2010. Now it is 2018 and his EDSS is close to nine. Other than HSCt that was done in 2014 and and EDSS and 6.5 no treatment has been applied other than good habits. Is there any treatment that said client can look at?
Yes. Ocrevus for example, which is FDA approved for PPMS.
👍🏻
You were doing a cannabis and ms video? I can’t seem to find it.
My understanding is that Dr. B did a presentation on MS and MJ at a recent conference, but his vid equipment failed to capture it. He might be waiting to see if anyone from the conference will come forward with footage of his presentation OR to make a version of the info for his channel. In other words, I don 't think it's finished yet. Dr. B can correct me if I'm wrong. :)
100% spot on. I think I have access to a copy and I'm working on it!
I am in the process of receiving a thorough neurological workup. My greatest problem is when doctors learn I take 150 mg of seroquel at bedtime. I feel as if I am dismissed. Any advice?
Be upfront. Ask the prescribing doc to provide a letter explaining why you're on it maybe. These things may help. They should listen to you.
Hi, Emily. I had a similar experience. I had severe depression around age 17. It resolved. A few years later, when I started having MS symptoms, I was constantly dismissed. 4 General Neuro's dismissed me as an hysteric before I got one who bothered to take an actual Neuro exam and realized within a few minutes that I wasn't "faking it" or making it up. It's maddening that so many docs, though, see a psych diagnosis in the med record, and mentally dismiss any patients' complaints before the patient even says them. Thank goodness that now, as my mood symptoms have redeveloped., I have a care team that allows me to have credibility when I report my symptoms. I'd respectfully "confront" my doctor and make sure he doesn't have that dismissive attitude. If I detected it, I would never go back. It also seems weird that if you're reporting that the med is not helping you, per your experience, and the doc hasn't suggest to you one of the other million options. It sounds like maybe you need to see an actual Psychiatrist (who mostly do prescribing these days) and discuss all your medications and ask which alternatives you might try. A Psychiatrist might be able to talk to your MS Doctor and see if she/he can detect that dismissive attitude, and refer you to another Neuro. I hope you're able to see an MS Specialist -- who "should" understand that MS can be intertwined with mood and sleep issues, and knows more about which meds help us, specifically.
@@ccollins2890 Thank you. I am so frustrated because most of my adult life I have been in psychiatric care yet I live a pretty mainstream life. I have. An appt May 28 with a new neurological specialties clinic with a great reputation. I am just praying they will help me.
@@emilycarpenter8769 Be upfront about your sense that previous doctors have used your mental health history as an excuse to not really hear or believe you. Therefore, you're worried your MS is not being treated appropriately. Tell them you know your body, and that you responsibly take your psych issues to your psych person. Let the new doc know you're hoping that all your doctors will be part of a team approach. Tell them up front that you're relieved to be seeing someone who might not pigeon-hole you like your former doc did. Expect your new docs take your reports about your physical symptoms and reactions to medications seriously, because although you have a psych diagnosis, you ALSO have MS. You expect to be taken seriously as a whole person. I'm too lucky, in many ways, to have Dr. Boster as my MS Specialist, and that he "knows" by reputation that my Psych doctor is FANTASTIC. Dr. B would never, ever consider me as without credibility about my MS because I, too, have a Psych diagnosis. Instead, he'd do what he does -- he'd add my Psych doc to my "team." I hope all goes well for you from here. Expressing your disappointment in how you have been treated in the past just might make your new doc try to avoid those same mistakes.
Weird. I can’t see all the comments on this video. I only see three and know there must be many many more.
You should be able to read them while watching the REPLAY I think. Can a community member help Marie please?
Found them
Got a question can we donate Blood or organs?
There is no contraindication to donate blood because someone has MS. You should talk to your provider of course to find out what's best for you. There is no contraindication to donating your organs.
@@AaronBosterMD Thank you
Can dst cause an exacerbateion
How do I read your message
How do I read your reply’s
On montization... _ super chat, OH MY!!!
Dear Dr .erin,
~ plz don't do this Dr Erin. Although this is not my choice.its solely ur decision, I still find you have a wonderful, & certianly steller platform to raise money in such better ways. Where you could get full donations.while $ is not the sole purpose it's a topic still. *Maybe post a link to a OSU fund rasier. or even make a new one that u can fully control?*
~ I believe it takes away from the channel, sometimes can even b very distracting,- depending on what adds are used.furthermore it ***comprimises the soul of the channel on some respects. It almost saddens me to a level ***if I was complete and honest. As I always am.
~ only partial donations are recieved, you tube gets a pretty high percent in my opinion.& because of the lengthy payment process amount received often can be different the what u may originally believe. Not to mention all the views u would need.for pennies ...per say.
***Also with super chat I don't like how it would force u to answer a question because of a donation.
It should always be your decision, you should have complete control over this, specifically on a creative level, and I truly believe it would take a way from that.
TY for sharing Divine, I value your input. I'm still trying to sort out if I turn it off or use proceeds towards a training fund to help educate team members. I'm sorry you are hurting and grateful you care enough to voice your opinion. It matters to me.
@@AaronBosterMD Dear Dr erin, thxu,..
and furthermore,sadly after this took way too long to write,my decision was sound,
~I've decided *to take a break, * as I struggle to find words, and fight through pain to try to have a voice In the hopes I can help just one person, or even to brush my hair, i fear m.s. has gotten the upper hand today, as i had to *leave live Q and A for the first time early, as m.s. seamed to completely mute me,* ▪geeze this is surely a sentence I never thought I'd write. I still don't at all believe in letting m,s, win.anyhow, I'm just overwhelmed, with horrible symptoms,
~thank you for all your kind words, and most of all your kind heart, which I believe must be what drives u everyday, that's a rare gift to find in a Dr sometimes. Please always stay good at what u do, and stay as compassionate as you are today in ten, even 20... years from now.
Ps, I'm sorry for my length of how I speak, I had some life changing moments(I lost most of my family and friends, to death~early in my life) and I guess it changed me, so I always talk as if I'm speaking to some one, I apologize if that equals a long comment.
God bless,
Sincerely,
Divine.
Aka
Cyn.
♡tedtalk♡♡
As I've used all my spoons to write this, I hope to dream up a bigger set of spoons moving foward...