Grieving Loss and Celebrating Success in Multiple Sclerosis

แชร์
ฝัง
  • เผยแพร่เมื่อ 4 ส.ค. 2024
  • Grieving Loss and Celebrating Success in Multiple Sclerosis
    The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
    **********************************************************
    COMMENT with your thoughts and questions below! I look forward to reading and responding!
    SHARE this video: • Grieving Loss and Cele...
    SHARE the first IMPROVEMENTS IN MS video: • The MS Improvement Pro...
    SHARE the 2nd IMPROVEMENTS IN MS video: • The MS Improvement Pro...
    SHARE video on Improvement in MS: • Neurological Improveme...
    SHARE video on CDI in MS: • Confirmed Disability I...
    ***********************************************************
    FOLLOW on Twitter: / aaronbostermd
    FRIEND on Facebook: / aaronbostermd
    SUBSCRIBE on TH-cam: / aaronbostermd
    VISIT US on the web: bosterms.com/
    VISIT us on web: BosterMS.com
    ***********************************************************
    NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!

ความคิดเห็น • 160

  • @AaronBosterMD
    @AaronBosterMD  5 ปีที่แล้ว +22

    This was a rather emotional LIVE STREAM for me. Thank you for participating/watching. I challenge you to share with this global online village
    1. a loss you have or are currently grieving
    2. a success/victory, regardless of how small, you celebrate.
    Remember, you are NOT alone. #WeHaveMS!

    • @desiredecove5815
      @desiredecove5815 5 ปีที่แล้ว

      Aaron Boster MD gotcha and resharing in numerous places

    • @angelahite75
      @angelahite75 5 ปีที่แล้ว

      Dr Boster thank you for all you do.
      I want to share a channel that has kept me upbeat through many days. His name is Andy Bailey. Hes in the uk I believe. He uses a wonderful 360 camera, and lives by the ocean. So his videos allow us to see some beautiful country.
      This man is always so upbeat, and hilarious! He does live stream stationary bicycling. Many join on and cycle with him. Its a small chanell, and I think others would benifit.
      He just started a new treatment, and we are all hoping it helps him. However, lately I can tell hes worried. He made a comment "Im not dead yet lol". Its not like him.
      I was wondering if you could check him out? If you agree it could be helpful for others by giving him a shout out, I know it will benifit him to have his "village" grow.
      He has no idea I am reaching out to you. Im not sure he has seen your channel. It has just been heavy on my heart to try and connect the two of you for some reason.
      Thanks again!
      th-cam.com/users/andyandms

    • @roberture5903
      @roberture5903 5 ปีที่แล้ว

      I want to thank you Aaron for always acknowledging my comments.The fact that you see them and respond at least 9 times out of 10 means a great deal).

    • @everhernandez915
      @everhernandez915 3 ปีที่แล้ว

      I've lost of family members , my license, I'm ability to walk and my right arm my right leg aren't functioning properly at all so that's just a part of what I've lost ..but I'm still here

  • @cateharding
    @cateharding 5 ปีที่แล้ว +10

    I've lost the ability to work..."but I don't look sick"

    • @billielewis5562
      @billielewis5562 5 ปีที่แล้ว

      Catherine Harding so hard isn’t it? I just don’t know what to do

    • @Jerusalem_Warrior
      @Jerusalem_Warrior 5 ปีที่แล้ว +1

      Ugh, "you look great", that's what everyone says. Just give them a pat answer and stick to chats like this. We understand, you're not alone.

    • @Jerusalem_Warrior
      @Jerusalem_Warrior 5 ปีที่แล้ว

      Catherine, you listen to Angela! I learned the script from her, she knows her stuff! Love from Jerusalem! ❤

  • @newlynatural5374
    @newlynatural5374 5 ปีที่แล้ว +16

    SUCCESS- 1 SON IN COLLEGE- I'M A SINGLE MOM W MS😳 I RETURNED BACK TO WORK- GOT OFF SOCIAL SECURITY - SAME JOB 14 YEAR'S

    • @billielewis5562
      @billielewis5562 5 ปีที่แล้ว +1

      NewlyNatural awesome 👏

    • @newlynatural5374
      @newlynatural5374 5 ปีที่แล้ว +1

      THANKS SO MUCH for the encouragement and well wishes- God BLESS !!

    • @newlynatural5374
      @newlynatural5374 5 ปีที่แล้ว +1

      @@THELOLCOWREPORT WENDY- THANKS SO MU3 FOR YOUR ENCOURAGEMENT! NOW MY ENCOURAGEMENT TO YOU- TAKE ONE STEP AT A TIME- DIET N EXERCISE IS MY NEXT GOAL IS DATING ONCE AGAIN💕💖💗

    • @newlynatural5374
      @newlynatural5374 5 ปีที่แล้ว +2

      @@billielewis5562 ADELE- THANKS FOR YOUR SUPPORTIVE RESPONSE! HERE'S AN ENCOURAGING WORD FOR YOU- TAKE ONE STEP AT A TIME! GOD BLESS💖

    • @newlynatural5374
      @newlynatural5374 5 ปีที่แล้ว +1

      @@THELOLCOWREPORT Hi Wendy- THANKS SO MUCH FOR ENCOURAGING ME! THAT MEANS SO MUCH TO ME💝 GOD BLESS💕

  • @kittysmith2258
    @kittysmith2258 5 ปีที่แล้ว +5

    I am grieving terribly, the loss of my identity. I am a Nurse Practitioner and I am now deciding that I am unable to work due to my cognitive symptoms. I’ve worked for this so long and so hard and being a nurse practitioner is part of my identity. I feel a loss of myself. I have been feeling this for a while and this video came along at exactly the right time. Thank you all.

    • @kittysmith2258
      @kittysmith2258 5 ปีที่แล้ว

      Angela Harrell thank you so much. I hope I can find my new purpose too.

  • @newlynatural5374
    @newlynatural5374 5 ปีที่แล้ว +10

    Good News! Moved from walker to cane😳 Can't wait to regain ALL my abilities!

  • @lizcrittenden8744
    @lizcrittenden8744 5 ปีที่แล้ว +13

    I feel many losses, I really miss driving my car, my balance, my stamina, my strength, being able to walk up stairs, dancing, running, jumping and I am SO moody.
    As much as it’s taken from me it’s given me the opportunity to be patient, to see other peoples perspectives,

    • @nancycasta5359
      @nancycasta5359 4 ปีที่แล้ว

      Liz Crittenden you have said everything that I am feeling completely!!

  • @tamara401
    @tamara401 5 ปีที่แล้ว +12

    Success : i had terrible relapse with completely numb legs and abdomen, but I went to work and had 7 hours shift ER and managed so many patients ♥️♥️

  • @socallynn6735
    @socallynn6735 5 ปีที่แล้ว +3

    My victory is that I wanted to stave off the progression of my PPMS & reverse the progression of my Diabetes. AND I DID!

  • @roberture5903
    @roberture5903 5 ปีที่แล้ว +5

    Thankyou Aaron, I lost my ability to do my job last year and had to retire on disability. This has been a tough pill to swallow after being active and busy most of my life.

    • @roberture5903
      @roberture5903 5 ปีที่แล้ว

      @Angela Harrell , Thankyou for sharing your experience with me. It sounds like you're been going through this a lot longer than I have. We're pretty close age wise,I'm 53 myself but the fact that I had to retire 3 years early has been tough to take. Financially I'm being well compensated through my pension and disability Plus I was able to keep my health insurance, so I'm grateful for that. Right now I'm trying to concentrate I'm getting healthy as I can be, going to the gym three times a week and also doing PT once a week. Little by little I'm picking myself up again. Thank you Angela for your words of encouragement God bless you.

  • @roberture5903
    @roberture5903 5 ปีที่แล้ว +2

    Hello to Aaron boster and the restof the village, last week when you did the livestream on grieving losses and so pretty victories I made some comments about a loss that I'm grieving. I know it's a little late but this week I would like to share with all of you a little victory that I experienced recently. This past Friday I went out to a friend of mine's house to mow his property which I've been doing all summer with a zero-turn Rider of course. I was in his backfield with about 5 minutes left of mowing the rider ran out of gas and of course I left my cane down at the other side of the barn. Needless to say the walk down to the other end of the barn was a little hairy to say the least but I did it without falling. I retrieved my cane, got the gas can and off I was to finish the job. I'm sorry I'm about a week late but I just wanted to share this with you Aaron and the rest of the village God bless you all.

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +1

      That is a fantastic victory Robert, congratulation and THANK YOU for sharing with us! The village will celebrate with you!

  • @janewatts135
    @janewatts135 5 ปีที่แล้ว +1

    Dr. Boster, Jane here from Co.Mayo Rep Ireland.
    I experienced the loss of a very good friend three years ago to pancreatic cancer, I attended the wake & funeral which was over a weekend.
    I was physically better then but over the three years I've failed dramatically my neurologist last Monday confirmed my physical failing.
    I still feel broken hearted at the loss of this friend, the world was a better place when he was a part of it.
    Thank you Dr. Boster.

  • @darlene1187
    @darlene1187 5 ปีที่แล้ว +2

    Dr. Boster. Aside from this Community, I hope that you have people in place that you can speak to about your losses. One sign of a true empathetic personality is that they feel and almost absorb the pain of those for whom they care about. I hope that this video has been therapeutic for you! It is an important reminder that you are vulnerable to being raised up by our success and pulled down by all of our losses. That is a great deal for one person to shoulder! Thank-you.

  • @cherylvl1036
    @cherylvl1036 5 ปีที่แล้ว +7

    I felt like I grieved the loss of my health and my ability to walk for nearly 4 years. Was diagnosed February 2014 and I’ve only been feeling better about my MS for the last year. It’s a direct correlation with getting a scooter and an accessible van with a ramp and hand controls last year. I have regained my independence. I’m only 45 so I’m hoping to be able to keep driving for many years. MS hit me hard and I finally feel better about it. I also found a new friend with MS and I think having a support person helps a lot. Thanks for this livestream❤️.

  • @atticus6866
    @atticus6866 5 ปีที่แล้ว +8

    你好!that means hello,I'm from China. Your channel definitely enpower me. Thank you so much, dr.boster.

    • @atticus6866
      @atticus6866 5 ปีที่แล้ว

      Hi,@Bon’s Keep Moving MS What are surprise ! Never thought about can get Chinese reply from here.It's great to know you.

  • @laurah3282
    @laurah3282 5 ปีที่แล้ว +11

    What i am grieving is the loss of myself. What i have gained is being able to hold my camera again and take pics😊. Thank you Dr. B

  • @georginal4174
    @georginal4174 5 ปีที่แล้ว +5

    I grieve the loss of choice.

  • @acappellasingbr
    @acappellasingbr 5 ปีที่แล้ว +2

    Freeland, MI Thank you Dr. Boster for bringing this into our village!! I have been struggling to address this within my own counseling. Thank you, thank you, thank you!! I struggled with the loss of my ability to do sports, let alone walk a half mile. I had done just about every outdoor sports year round in the four seasons. Now i rejoice when I am able to do 1000 steps a day.....sometimes with my cane....but 1000 steps.

  • @mindyvanhorn3199
    @mindyvanhorn3199 5 ปีที่แล้ว +1

    I grieve the loss of energy, not being able to work full time, waking up and going to sleep with severe pain. I celebrate the fact that I CAN work part time, I can drive, I can prepare simple meals for myself, I can engage a little with my kids and grandkids. I can make a difference in someone life and ease their burdens!

  • @stephenvoorwinde9370
    @stephenvoorwinde9370 5 ปีที่แล้ว +2

    Hi Dr B. Your talk was so electrifying that even your long hair stood on end! Look at the video and see for yourself. 😀 My losses include lack of energy, vertigo, inability to swallow, bad laryngeal spasms . . . First came the diagnosis 48 years ago, then two months in the hospital. But two years later I married and moved to Australia. I had two children and have made the trip back to the US twelve times. Now I’m getting more bad symptoms again. It’s been quite a roller coaster ride.Nancy

  • @kathrynbarclay2462
    @kathrynbarclay2462 5 ปีที่แล้ว +2

    I had to quit my gardening hobby
    🌺 which I loved very much. However, I have begun working just in my hanging baskets which is a big win for me!
    Thank you for your marvelous videos that help countless MS warriors around the globe.🧡

  • @laurahines4923
    @laurahines4923 5 ปีที่แล้ว +4

    I am able to drive again! I'm from Virginia

  • @kathrynmcvean2514
    @kathrynmcvean2514 5 ปีที่แล้ว +2

    I’ve lost my ability to walk without a type of limp. Uneven ground is quite hard and the sand of a beach is next to impossible. Going up and down stairs is hard and slow and scary. My short term memory and energy level are impacted. So tired. I know it could all be so much worse. I know I am not so bad off.
    A success I celebrate is all about my outlook. I have started Ocrevus infusions and have high hopes to prevent further progression. I work on being 4 for 4 every day! My future is my focus and I’m feeling good about it!
    Thank you Dr. Boster, for this video and all you do for this online village. You are a wonderful, rare and special doctor.

  • @vanhorne9376
    @vanhorne9376 5 ปีที่แล้ว +9

    GREAT LIVE Video. Definetely hit home and a tear maker.. Awesome Job As Usual Dr B

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      TY for sharing Van Horne! LOVE ❤

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว

      TY for sharing Van Horne! LOVE ❤

  • @rebeccathomas2573
    @rebeccathomas2573 5 ปีที่แล้ว +1

    Watching on catch up from sunny London

  • @LH-zx7bz
    @LH-zx7bz 5 ปีที่แล้ว +1

    What a powerful video. Thank you for sharing. I grieve a purpose driven life. Loss of the dreams my spouse and I had before MS. A success is literally being here typing this comment. I am alive today. A success would also be my marriage and having spouse who supports me. God blessed me!

  • @meloneyparker
    @meloneyparker 5 ปีที่แล้ว +7

    Thank you for sharing your happy and difficult stories with us. You gave me a lot to think about. I didn't realize how much I have been grieving and that I am more normal than I thought. I say that b/c MS is isolating- for me at least. It was helpful to see other people's losses. While we don't all know each other, I felt less alone.

    • @AaronBosterMD
      @AaronBosterMD  5 ปีที่แล้ว +1

      Your comment made my day. TY for feeling comfortable sharing with us Meloney! #WeHaveMS

    • @camywitulski5817
      @camywitulski5817 4 ปีที่แล้ว

      You are not alone. You're stuck with all these village members whether you like it or not. LOL.

    • @blakelee9940
      @blakelee9940 2 ปีที่แล้ว

      Much love ❤️ I was diagnosed earlier this year and I’ve felt very much the same way it’s lonely

  • @mswarriorandautoimmunepodcast
    @mswarriorandautoimmunepodcast 5 ปีที่แล้ว +1

    Great video, very informative and uplifting

  • @Jerusalem_Warrior
    @Jerusalem_Warrior 5 ปีที่แล้ว +1

    OK. Loss: Not free to run around Jerusalem checking out what's out there to see and buy, or to jump on a bus to the grandkids in Haifa. Success: Fighting to be 4 for 4: Ocravus treatments, healthy diet and supplements, physiotherapy and just being complacent, grateful and not resentful. Thanks from Jerusalem for this one, Dr. B!

  • @caseymarchal3214
    @caseymarchal3214 ปีที่แล้ว

    Grieving is extreemly important. I have been allowing myself to grieve and let go of the person who ive evolved away from. I use to own a cleaning business. I had 20 clients a month to myself and i was so proud. My health began declining, and i eventually had to give it up. I was in my mid 20s. These days, I cant work as much as i want to, and im greiving that. But i am now bbuilding a craft business, and am excited that with the help of my village, The Woodall Homestead Creations will have their first sale booth at the end of March. My life isnt over, its just evolving as my health evolves. Its hard, and some days are pretty dark, but I know I will be okay.

  • @janiceg7890
    @janiceg7890 5 ปีที่แล้ว +1

    Thank You:)

  • @barbaraables6656
    @barbaraables6656 5 ปีที่แล้ว +1

    Dr.Boster great video! All so true!

  • @enrogers09
    @enrogers09 4 ปีที่แล้ว +1

    ❤️ Thank you Dr. B. ... This one really hit home. I watched this after the live, it's September 16, and it's one year +2 days since I was forced FMLA and fired. Due to they were unable to continue modified duties while undergoing diagnosis and treatment for MS... My primary physician was concerned due to the loss of strength and fine motor skills in my dominant hand along with essential tremors progressing, and EMG study on leg confirming muscle/nerve issues (numb leg drop foot), she was concerned I was not able to protect my firearm and intermittent run when needed (several other random symptoms as well). As a law enforcement officer that's pretty important and major role. I pleaded with my city officials to continue letting me work my career while going through the diagnosis process (that I had just started a month prior) ... I was asked why I didn't take a typing position until my symptoms were "fixed" ... 3 months later my 13-year successful LEO career ended because my symptoms weren't "fixed" by the date they provided. I felt defeated, not only was my body attacking itself, it was able to be used against me to destroy my career. Not only that grief, but the immediate loss of purpose, the feeling of betrayal. The comments of "well she can't do her job what else does she expect" ... To the comments of "why is it taking her so long to get diagnosed, is she making it up?" ... It's taking more of an emotional heartache which has also instigated quite a few other symptoms to decide they want to play too... My mentor a very important sergeant of mine made a comment to me when HR told us either I take FMLA or I'm no longer City employee starting informed me "'I'm meant for more than this" ... He contacted me this weekend to check in on me. Now since the situation happened a year ago I don't hear from anybody up there anymore due to a gag order email advising I'm not allowed to be talked about due to HIPPA. He reminded me he knows I will do great things and misses my tinacity... I woke up the next morning 1 year plus one day and said I'm done I AM meant for more than this... My success story from it is I climbed out of that sadness, heartache, isolation, hatred and most importantly the feeling of defeat and being felt like I was broken.
    ❤️

  • @ccgt6667
    @ccgt6667 5 ปีที่แล้ว +1

    I sometimes think that I would rather have had a terminal disease instead of this. Yet, here I am. Trying to re-invent myself and trying to figure out what it is that life is trying to teach me. What it is that this disease is telling me.
    I hate that I can't be autonomous anymore, I hate that I need to ask for help to do many things, I hate being taken care of and above all I'm tired of being tired.
    But it is what it is. And in some strange way I want to believe that I will come through and have a more or less "normal" life in the years to come.
    Thanks for the reminder: we aren't dead yet...

  • @AzitaKhosravi
    @AzitaKhosravi 11 หลายเดือนก่อน

    thank you

  • @lw5682
    @lw5682 5 ปีที่แล้ว +3

    This was an absolutely amazing livestream! Just what I needed to hear. I had to go on leave from work recently, the demands on my body were way too much with MS. I’m not likely to go back at prior schedule. I cried on and off for days. However......I now feel human again, I feel like myself again! I was approved for short term disability, and have the opportunity to go back working a small amount and applying for long term disability benefits as well. Thank you so much for this amazing livestream🥰🥰🥰

  • @Ginaroth27
    @Ginaroth27 5 ปีที่แล้ว +1

    Hello from Williamsport PA! 🤗

  • @socallynn6735
    @socallynn6735 5 ปีที่แล้ว +2

    The loss of my retirement plans when I discovered, at age 57, that I could no longer work at a professional level that I had worked a lifetime to achieve. 4.5 years is all the time I spent at that pinnacle.

  • @patriciarivas5369
    @patriciarivas5369 5 ปีที่แล้ว +2

    I am returning to college. I am holding a part time job. I did a 5k MS walk. I am holding my home.

  • @tamara401
    @tamara401 5 ปีที่แล้ว +4

    We need doctor like you in every country your emotions made me shed tears

  • @lizstacy09
    @lizstacy09 5 ปีที่แล้ว +4

    I grieve for the athletic outdoorsy, energetic and active in the summer woman I used to be. (Heat intolerance + living in Florida). It's hard sometimes but I'm grateful I am still mobile and am lucky enough to work. For now, that's enough. ❤😊 I didn't expect to get emotional tonight, thank you for sharing.

  • @laurahines4923
    @laurahines4923 5 ปีที่แล้ว +4

    My loss was the ability to climb further full time in a job I loved. I can only work parttime now.

  • @sharongillkerson2985
    @sharongillkerson2985 5 ปีที่แล้ว +5

    I’m grieving for the loss of my car, my legs not working as they should and for continued fatigue. I’m from the UK

  • @bonnies5651
    @bonnies5651 5 ปีที่แล้ว +3

    I grieve the loss of being able to hike in the mountains.

  • @stevo6969
    @stevo6969 5 ปีที่แล้ว +6

    Dr Boster, you really do care a lot. I can feel it with your emotions. I think you're an amazing and engaging practitioner. I wish you were my MS practitioner.Your patient case load is very fortunate indeed.

  • @rebeccathomas2573
    @rebeccathomas2573 5 ปีที่แล้ว +1

    Thanks Dr B. I needed to hear that today xx

  • @sharongillkerson2985
    @sharongillkerson2985 5 ปีที่แล้ว +3

    My success is going on my first sail day with some of Hampshire MS society friends, on Wednesday of this week. I’m nervous but will still do it.

  • @newlynatural5374
    @newlynatural5374 5 ปีที่แล้ว +4

    Thanks Doc and ALL! GOD BLESS💕

  • @stjernoga
    @stjernoga 5 ปีที่แล้ว +2

    1, that I lost my personal assistens for my autism when i got MS 2016 ( right timing 😢), that i get tired even faster now, anxiety ,fear,, feeling really lonely and not understood.
    2, after my third relapse within a year i was in wheelchair couldnt write etc but today i can walk, write, paint, drive my car( often )and i've been NEDA for 2 1/2 year. So im very grateful for that and trying to cope with the trouble i get when i get tired or have much anxiety. And i found you and this village ❤️. Lots of love from Sara, sweden

  • @Haveagoodtime3
    @Haveagoodtime3 5 ปีที่แล้ว +1

    Loss of the ability to take a walk, in woods, fields, villages, cities. Walk and explore wherever you are, either alone or with a friend or girlfriend. Walk and think of something else than walking. Visit musea. But it all comes down to the same. Explore while being on foot. The satisfactory feeling of being tired (in a healthy way) after a day of exploring.

  • @elaineclerkin2220
    @elaineclerkin2220 5 ปีที่แล้ว +1

    Thanks you for sharing this video Dr B. So real and powerfully motivating 🤗

  • @anonymousgirl799
    @anonymousgirl799 5 ปีที่แล้ว +2

    I lost all to MS - California, independence, career, residence, invitations to gatherings, lifestyle, ability to live alone. They say MS is not a "death sentence", it's even worse - a life sentence lived in bondage.

  • @jedemrich5383
    @jedemrich5383 ปีที่แล้ว

    You are doing powerful work my friend. I am a 66 yo man, MS for almost 20 years, your message had me in tears.

  • @wandareller8303
    @wandareller8303 5 ปีที่แล้ว +4

    Within weeks I lost my job, my ability to walk and most of the use of my hands. Hoping to start treatment soon.

  • @elaineclerkin2220
    @elaineclerkin2220 5 ปีที่แล้ว +3

    Loss of a walk longer than 100 metres😭

  • @GiaNescio
    @GiaNescio 5 ปีที่แล้ว +2

    I just want to say thank you!!! I am here with you and here with the village! I am grieving the loss of my job after multiple relapses just can't work a 9 to 5 with my clients. I was a psychotherapist that worked with trauma. I loved my work, my career, my clients. I guess it is time for me to take care of myself. What next I am really not sure. I will say that right now it is time to be an awesome mom to my 2 year old son, Sending love to you!

  • @shellycrivolio9091
    @shellycrivolio9091 3 ปีที่แล้ว +1

    I celebrate being able to walk unassisted after 6 years in that wheelchair! Regaining my former cognitive abilities! Making new friends!

  • @wendynthegreyhounds
    @wendynthegreyhounds 4 ปีที่แล้ว +1

    I wear high heels nearly everyday and I walk a lot! I have always been known for wearing cute and colorful heels. People constantly tell me not to wear them and I tell them that I am not giving up that part of me...it is my way of flipping the bird to my MS. I switch to flats as needed, but my heels, just like hers in the story, are important to me being me

  • @patriciarivas5369
    @patriciarivas5369 5 ปีที่แล้ว +2

    I lost my mother, a month later, my financé of 12 years. I lost my dog and a couple cats. I lost my ability to walk my dog. I cannot I go to the state fair. I lost my aunts and uncle. I lost my job. All in 4 years.

  • @angelineferguson5723
    @angelineferguson5723 5 ปีที่แล้ว +2

    Can't walk but thankful for Ocrevus coming soon. Thankful to God!

  • @nadinejohnson1942
    @nadinejohnson1942 5 ปีที่แล้ว +4

    I'm grieving the loss of myself and my significant other sorry I missed live feed I was receiving my home food delivery

  • @lizcrittenden8744
    @lizcrittenden8744 5 ปีที่แล้ว +3

    I’m watching this from Folsom California

    • @AcidRetroArtiboe
      @AcidRetroArtiboe 5 ปีที่แล้ว

      I've had Ms a long time and lost many physical abilities. The most painful to me is the loss of the ability to play the piano. Brad From Lexington, KY

  • @shellycrivolio9091
    @shellycrivolio9091 3 ปีที่แล้ว

    I love you for this. I've never been able to talk about my grief with anyone in 16 years. I've written about it, but had never had anyone ever share my grief out loud. Thank you.

  • @countryrose1128
    @countryrose1128 5 ปีที่แล้ว +5

    To many losses to enumerate or remember:-(
    Retraining my mind and body to function at its capacity at this stage of life living with MS :-)

  • @kellyitchell5176
    @kellyitchell5176 ปีที่แล้ว

    The ability to be fully independent, my career. My ability to play with small grandkids the way I always dreamed of

  • @newlynatural5374
    @newlynatural5374 5 ปีที่แล้ว +4

    Jeanine from DC!!

  • @kittysmith2258
    @kittysmith2258 5 ปีที่แล้ว +1

    My recent success may seem silly, but my biggest symptom is memory/cognitive issues. Recently, my husband was going to retell me something because he knew I didn’t remember but as he started to tell me, I remembered it! I was so excited. Ironically, I can not remember what the conversation was anymore but I did for that moment.

  • @tamara401
    @tamara401 5 ปีที่แล้ว +2

    I’m grieving the loss of hope , the loss of the love of my life ,

    • @tamara401
      @tamara401 5 ปีที่แล้ว

      Thank you so much for your emotions ♥️ no I won’t give up but I need time to cope ♥️♥️

  • @countryrose1128
    @countryrose1128 5 ปีที่แล้ว +2

    From East TN live in AR.
    Great channel!
    Thank you

  • @elizabethkarroll9278
    @elizabethkarroll9278 5 ปีที่แล้ว +3

    The loss of driving my car, & riding a bicycle.

  • @Kitty-gk1gi
    @Kitty-gk1gi 5 ปีที่แล้ว +2

    Put it in the live chat, but I'll leave some of it here too.
    Still waiting on a diagnosis. Have some tests coming up and have been taken off work for a while. My functional reserve now with work seems to be 3 days max before I've over done it. I also normally am very detail oriented and have a very visual based memory. With cog fog... That's all gone out the window. Those would be losses to me.
    Successes would also be that I'm off work for a bit and am able to rest while hopefully getting some answers as to what is going on.
    You are awesome. No matter what my diagnosis is, I will continue watching your videos. They are awesome and so educational and inspiring.

    • @Jerusalem_Warrior
      @Jerusalem_Warrior 5 ปีที่แล้ว +2

      Let us know what happens, Anna. You are not alone.

    • @Kitty-gk1gi
      @Kitty-gk1gi 5 ปีที่แล้ว

      @@Jerusalem_Warrior thank you! I definitely will. I got blood work back this morning and got medication, kidneys knocked off the list. And also I don't have any muscle wasting going on with the constant muscle twitching. Which is a huuuuge relief!

    • @Jerusalem_Warrior
      @Jerusalem_Warrior 5 ปีที่แล้ว

      @@Kitty-gk1gi What about the brain MRI? That's the bottom line. BTW, where are you from?

    • @Kitty-gk1gi
      @Kitty-gk1gi 5 ปีที่แล้ว

      @@Jerusalem_Warrior I'm from Tennessee. Brain MRI was good. I think they are worried that whatever is going on is happening with my spinal cord.

    • @Jerusalem_Warrior
      @Jerusalem_Warrior 5 ปีที่แล้ว +1

      @@Kitty-gk1gi Right, also important. Post the results. Good luck from Jerusalem.

  • @lourdescabrera2544
    @lourdescabrera2544 4 ปีที่แล้ว +1

    Hello Dr.Bostom here from Nee York City.my lose is my legs.

  • @newlynatural5374
    @newlynatural5374 5 ปีที่แล้ว +2

    Celebrate SUCCESS! ALL SUCCESS!! THANKS DOC ! I. NEEDED THAT!!

  • @newlynatural5374
    @newlynatural5374 5 ปีที่แล้ว +6

    I WANT TO BECOME A TEACHER NOW, AFTER 14Y. AS ASSISTANT. KINDA SCARED - PROCRASTINATINGASTING

  • @toyazylstra6736
    @toyazylstra6736 5 ปีที่แล้ว +4

    My daughter asks her dad to help her first because my fatigue is so debilitating, which hurts my heart.

  • @silvanahansen3304
    @silvanahansen3304 5 ปีที่แล้ว +2

    I grieve the loss of my independence and strength, walking fast and straight, being able to clean my whole house. I have managed to keep on working on a checkout but am tired of the effort involved and am almost hoping to be made redundant soon. Success comes in little things like changing the bedding. Going to a family social event. Sorting out the paperwork and slowly de cluttering my house. I see any small thing as an achievement.

  • @daviasmith3753
    @daviasmith3753 5 ปีที่แล้ว +1

    I am grieving the loss of my ignorant bliss. I got an mri last week and went from c.i.s. To MS, I also moved into college ( I am a sophomore) and my car quit! Before the mri I didn’t know about the silent lesion. Lots of decisions to make.

    • @Jerusalem_Warrior
      @Jerusalem_Warrior 5 ปีที่แล้ว

      We guys with the holes in our brains, are generally saner and more sensitive than the average egocentrics walking around out there. Blessings from Jerusalem.

  • @susanhoppe4104
    @susanhoppe4104 6 หลายเดือนก่อน

    My vict ory was riding with paramedics and they made me part of the team even though I was legally blind Due to toxoplasmosis not MS but a victory none the less. Watching on replay

  • @bruceripley6385
    @bruceripley6385 5 ปีที่แล้ว +1

    To be able to walk without effort.

  • @lorifoster8637
    @lorifoster8637 ปีที่แล้ว

    I’ve had MS since 2006. In the past 2 1/2 years, I’ve lost my only sibling, my fiancé, my ability to walk and my job as an RN. Whew 😢

  • @tomnrisa2905
    @tomnrisa2905 5 ปีที่แล้ว +3

    Hi, Risa from Massachusetts.

    • @meloneyparker
      @meloneyparker 5 ปีที่แล้ว +1

      Hi Risa, I am in Massachusetts, too. I currently am in the Milford, Bellingam, Franklin area.😁

  • @rebeccathomas2573
    @rebeccathomas2573 5 ปีที่แล้ว +2

    Hypersensitivity caused by MS made cuddles and sex uncomfortable for me - too much tingling when my skin was touched! :( Taking Duloxetine solved this problem - prescribed off-label by a thoughtful GP :) A great success story for me!

  • @leilaramos1326
    @leilaramos1326 5 ปีที่แล้ว +1

    Im from Brazil. I have MS, and the medicine I use is ocrevos. This medicine made the symptons almost non existant, which made my life alot easier and better. The goverment dont give this medication, coz its more expensive. So my laywer helps me to get It for free. Unfortunately i cant watch your Channel because i dont speak english, my dauther is writing this for me. Im Glad to know other People around the world also talks about MS, and inform people about It. Thank you for that and good luck.

    • @Jerusalem_Warrior
      @Jerusalem_Warrior 5 ปีที่แล้ว +1

      I'm lucky to live in Israel: Free medical insurance, including the Ocravus. Best regards from Jerusalem.

  • @diannoriordan5206
    @diannoriordan5206 5 ปีที่แล้ว +1

    Contiplating successes for 2 hours. I am thankful for life. Having ability to see and be with hubby, kids and grandkids. They r my world!

  • @beckybarnes1484
    @beckybarnes1484 5 ปีที่แล้ว +2

    I've lost vision in one eye and have damage to my other eye...my precious vision I miss it so much. I can't draw anymore because I can't focus well. I've also lost the use of my right leg so it won't lift to walk. I can't walk my dog how I want to. It really bloody sucks

  • @susanhoppe4104
    @susanhoppe4104 6 หลายเดือนก่อน

    I2 have had several losses. One of my biggest losses was my guide dog got valley fever and hcame blind then he passed away when he was 12 and a half. I miss him. He was the sweetest boy ever.

  • @laurajohnson762
    @laurajohnson762 3 ปีที่แล้ว +1

    My Son a year ago the 20th

  • @newlynatural5374
    @newlynatural5374 5 ปีที่แล้ว +1

    Watching from TH-cam.
    Loss ability to wear high heels, be in relationships ,bladder issues, had to quit grad school n have t student loan debt STILL- AND OF COURSE GRIEVING THE LOSS OF DEAR LOVED ONES- JEANINE- DC

    • @diannoriordan5206
      @diannoriordan5206 5 ปีที่แล้ว +1

      I was able to get my student loans forgiven. Cant remember name of place but can look ut up if u need it.

  • @rebeccathomas2573
    @rebeccathomas2573 5 ปีที่แล้ว +3

    I've lost the ability to go to and enjoy or appreciate events where there are lots of people (more than 4 or 5). I get cognitive overload very quickly. I had to leave my brother-in-law's wake after an hour because I realised I was shutting down. I wanted to stay and support my sister but I couldn't. Same for fun parties and gatherings.

  • @MariaInocentes
    @MariaInocentes 5 ปีที่แล้ว +4

    Is very dificult to fight this when my own mother don’t allow me to do it or help me to improve my problems. My bladder is crazy right now and the only thing my mother thanks are the price off the things I don’t need anymore and she doesn’t allow me to left I don’t have reason for that. I say I don’t want that and she says I can’t do that because she doesnt want it. My MD don’t told her how to talk with me. I couldn’t do the MRI because a crazy MD decided I was moving my head. And even when I was saying that they didn’t gave me the contrast and they where saying I was crazy. I am on a will chair. My problem started with problems in my left leg(Knee) and now I can’t walk but can use it. Some days better than others and 5 September have an appointment with a phidiatra to help me get better. I fight with a smile on my face. And my fiancé help me to deal with MS. And a lot more and with that I get better and makes me happy without ask me anything for that only becauses cares for me. With MS we need real support. And that is why I like to see, listen your videos gave me hope do live more and better. And when I marry I pass the fotos walkying on that day. Thank you. I am from Portugal 🇵🇹

    • @newlynatural5374
      @newlynatural5374 5 ปีที่แล้ว

      Congrats on the marriage! N finding someone to share your burdens with. I miss that right now.

    • @newlynatural5374
      @newlynatural5374 5 ปีที่แล้ว

      THANKS DOCTOR BOSTER FOR MY NEW VILLAGE!!😳

  • @elizabethkarroll9278
    @elizabethkarroll9278 5 ปีที่แล้ว +2

    I’m from LaGrange, KY

  • @cateharding
    @cateharding 5 ปีที่แล้ว +1

    Roanoke, VA please come to our MS Conference next year!!!!

  • @diannoriordan5206
    @diannoriordan5206 5 ปีที่แล้ว +5

    Too many losers really to count!
    1. Ability to finish masters degree. This was 1st. Loss of cognitive/executive functions. One of biggest initial things. I have accounting degree and can barely do simple math.

    • @diannoriordan5206
      @diannoriordan5206 5 ปีที่แล้ว +1

      Cant work due to cogfog and energy. Stopped driving 3 yrs ago for safety of others on road. Cant carry grandbabies. Or play like I used to. (R 16 yo to 9 mo old)

  • @toyazylstra6736
    @toyazylstra6736 5 ปีที่แล้ว +3

    Grand rapids mi.
    #spartyon

  • @pandora8478
    @pandora8478 5 ปีที่แล้ว +2

    Howdy! Love from London.

  • @shellycrivolio9091
    @shellycrivolio9091 3 ปีที่แล้ว

    Loss of my sense of control of my life. Lost my ability to walk, my marriage, my loss of friends, going from caretaker to requiring care, loss of my pursuit of my Master's degree, my dream of becoming a PA-C, loss of my outer beauty (hello, steroids?).

  • @newlynatural5374
    @newlynatural5374 5 ปีที่แล้ว +3

    Loss o walking wo a cane!

  • @ren681
    @ren681 5 ปีที่แล้ว +4

    O'Captain! My Captain! Thank you for this video! (From Italy). My grief is slowly losing also left hand function, that was become dominant. Celebrate starting Smart working from home. Celebrate also the small trips with MS self-help group: in wheelchair, with cane or walker nobody stops us 😀

  • @toyazylstra6736
    @toyazylstra6736 5 ปีที่แล้ว +1

    Loud and clear here

  • @camywitulski5817
    @camywitulski5817 4 ปีที่แล้ว

    Hi Dr. B. Watching this video in February 2020 after my fiancee ended our relationship because "he can't deal with the constant changes MS brings to my health." I feel that I've not only lost him and the things we did day to day. But I also feel like I've lost my hope and future.
    I wonder how much more this damn disease is going to take from me and if it will ever end.

  • @kathyfloydflashy1
    @kathyfloydflashy1 5 ปีที่แล้ว +4

    I would really love to know the name of the doctor in North Carolina. I travel to North Carolina And would like to maybe see him.