What's on your mind? LIVE chat with Dr. B!
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- เผยแพร่เมื่อ 4 ส.ค. 2024
- What's on your mind? LIVE chat with Dr. B!
The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
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COMMENT with your thoughts and questions below! I look forward to reading and responding!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
I had a massive a migraine so missed this 😭
Hope you feel better soon! I hope you can enjoy the replay soon (headache free!) #WeHaveMS
I have a friend who suffers with migraines. Hope you find some relief!
Biracial “brown” girl with MS here! 🙋🏾♀️ I somehow missed this live, but excellent content as always!
that is one of the examples i always give people with how i feel all the time...the how it feels when your leg or foot falls asleep and you walk on it. that has always been the best example i have for people
TY for sharing!
"Exotic areas like India, Mexico.... Chicago. "
This made me chuckle
Really like the livestreams but rarely catch them. The format of mix and match is the jam! It is obvious you enjoy doing this. That makes this exp even better! Smiles all around! 😁
Great feedback! TY
I'm sorry I missed your live stream today,I ended being pretty busy getting the last of the fall cleanup done on the rider.I also managed to get a new pair of boots to prepare for a significant snowfall that we have coming to upstate New York tomorrow evening. MS hasn't been too kind to me this past year but I've come off gilenya and I'll be starting tysabri next month. Aaron you and this Village have helped me through some tough times this year and I thank you.
Just looked over the live stream chat and noted that one EVA FROM BUDAPEST said that she got red blotches during Ocravus treatment. She should be informed that allergic reactions are common (I had one during my first treatment) and can be controlled by giving an antihistamine before (or during) the infusion.
Thank you for for your livestream on what’s on your mind. Doug coffee in hand from lyndhurst.
Sadly missed the live stream, but good talk. :)
And as far as the posting style of doing a few live streams and collecting questions for latter videos, I think it's great. It really helps people in the village(though I think we are tipping over into the classification of township based on how many people have joined the online clan) feel connected, because if one person is wondering it, there is bound to be a few others also struggling with the question, whether they know it or not. It also helps you so your not constantly having to jog your brain trying to think of topics off the top of your head. It also helps you link people to other videos you have put out in the past that may help them gain a better understanding (like your video on fatigue or how different DMTs work).
Tl:Dr: I enjoy them, and judging by the comments, it seems lots of other village members do as well. :)
Hi Beverly in San Diego! I’m Lynn in Chula Vista, it costs a fortune to live out here, but WOW, is it worth it! I have heat AND cold sensitivity and there isn’t anywhere else I’d rather be! By the way, I was born, raised and raised my family in Ohio! I left 25 years ago and I know I couldn’t live there again! LOL I love you Dr. B but 😜
OLD SCHOOL NEURO vs NEW UPDATED NEURO question... Why do old school neuros glance/skim through only T1 MRI images and say everything is good. when t2 and flares have the bright glowing spots. When you asked about the white glowing SPOTS (identify juxtacortical, parietal white matter lesions) it's oh that's on flare or T2's .... Isn't that the point? And then all ur new spots are dismissed
Hello from Australia. Your Question then Answer, YT format is the jam. 👍 This knowledge helps me feel less isolated and more pro-active when living in a remote region. Grateful for your shared learning. You are a GOOD HEART 💚 Dr B.
Question : Do you have PRO PREP TIPS for people 72hours out, from starting OCREVUS.
We DO LIKE Your question-answering videos Dr.A+! Especially the format where You group questions by topic. Yes, yes, please keep it up :-)
TY for the feedback Martin! I'll keep making content like this then!
@@AaronBosterMD Thank YOU, doctor A+. I have just watched Your captivating lecture from Oct22nd,2015 on MS Views&News. Im planning to try giving lectures to patients...
Hi Dr. B. I just found your channel and can't stop watching. I just received an early MS diagnosis after a MRI showed active lesions and a LP showed high total protein and Oli bands. Besides extreme fatigue, my first symptoms were loss of or altered smell and taste. This was in April, and I'm no better. Is this something I will have to endure forever?
Hi! Bummed I missed the livestream. QUESTION: How do you combat steroid weight gain? Fatigue, heat intolerance and vertigo make it virtually impossible to exercise. Thank you! 👊😊
Great Question! I'll add this to my list of topics for a vid!
Hi from Michigan!
Howdy!
I love the educational videos and live chat format! I am a member of many Facebook support groups for MS and find that a big issue is getting a diagnosis. Many have been suffering for years with symptoms, positive lumbar puncture, minimal lesions that are not enough to meet diagnostic criteria. They end up with damage that could have been prevented. SDifferential diagnosis is often hard because if an autoimmune disease is causing the CNS damage, the auto-antibodies tests are many times negative. Most recently, a study came out that indicated MS patients have low IGG. If IGG is low or receiving IVIG treatment it then makes differential diagnosis tough. Not to mention, many times someone may have MS with another autoimmune. It would be great to learn more about complicated diagnoses......Could the number of OCB’s play a role in determining which disease is causing the CNS inflammation?
Would you consider coming to MSConnect, on November 16, in Halifax, NS? I just want to have you there because of the WOW factor! The local MS Clinic has said I need a Neurologist's referal. I would like to see them scramble a bit once they think we are friends!!! 😜 Free home cooked meals, free accommodations, access to unlimited karate training, all you can drink water, Halifax sightseeing AND a chance to get me some respect, in the MS Diagnostic World!
Gracias amigo for your help
You are welcome Joaquin
I like the QA, lots of love from Sara, sweden 💕
Thank you! Right on stjemoga!
Scott from Grove City Ohio. Have you ever heard of Rapid onset extreme muscle fatigue? I can't underscore extreme muscle fatigue more
I'd certainly want to bring this to the attention of my doc right away scott.
Hello, I’m from New Mexico. I’m totally bummed I keep missing your lives. Dx in 2009 with RRMS and approximately 2011/2012 neuro stated it progressed to SPMS. I decided to take a holistic approach in which has totally helped. My question is it possible to ever digress back to RRMS? Thank you!! 🧡
Howdy Deeanza. Currently, I don't think so. Just my opinion
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#WeHaveMS
Could you give us your view of lasik eye procedures for people with MS? There seams to be conflicting opinions on whether or not it should be done?
must be sorted out talking to YOUR MS provider and YOUR ophthalmologist for sure. I'm not aware of a strict contraindication for lasix just b/c a person has MS
I am currently in the process of being tested for MS. I see my neuro this week and I've had an MRI which lists demylinating disease as a differential diagnoses (migraine and ischemic changes in blood vessels also listed) I have a question about Lhermitte's sign. I often get electric shock pains. They do not run from my neck or seem to be dependent on neck movement though. They shoot from my torso and typically down my arm seemingly randomly. Also have a weird one. There is a spot on my hip that is perfect kitchen counter height so that when I lean against it a painful shock runs from that spot up my torso and down my arm and into the back of my hand to the third knuckle. Every time. Is that a thing or am I just wired wrong? LOL. Love your channel, thanks for what you do!
Question about steroid treatment for new symptoms:
I developed trigeminal neuralgia last month. My MS provider ordered an MRI, labs, and increased my tegratol and it helped. She didn’t see any contrast enhancement or lesions in my brain stem or obvious infections. She didn’t suggest any steroids or call this a “relapse”. Should something like this be considered a relapse and treated with steroids regardless of enhancement? Aren’t brainstem lesions difficult to see at times? Currently on Ocrevus.
Exotic location like Chicago? Is that not a rather burthensome epithet for the Windy City?
Question - does MS cause a person to not be able to stand up? My husband thinks I can fight it, can I do that?
Love those husbands who want you to just fight it. My ex used to quote an expression that means, "You can, you just don't want to". It even rhymes in Russian!! You have MY sympathy, anyway. 💖
I just had an MRI five days ago. I have spms.My neurologist said the preliminary results looked good. Brain good. Most lesions and activity in brain stem and spine.
But she said they found I have a sinus infection. She said to see my primary care phys. I didn't feel sick at the time but five days later i am getting sick. Most the time they don't treat with antibiotics. But I have an ocrevus infususion in December. Should I suggest to doctor to treat it aggressively to make sure I am infection free?
Hey Dr. B. What's your opinion of the old "Hot bath test" as a testing instrument for MS?
not sensitive nor specific, but part of our history in the field for sure.
Snap i missed the chance of asking you questions! Do you have an email adress i can send questions to? Thanks in advance 👍👍
Hello Sir; May i ask if you can still have MS with no lesions showing on mri or spinal tap..I would be so open for your opinion,..my thanks indeed.
My thanks for your blessed heart message. God Bless you Sir..
I have MS and my spec has me on Tysabri every 60 days in an effort to eliminate PML.How do u feel about that?
Dr. B when I had my first attack they said transverse myelitis. Two months later they said MS. Are they the same? Would you have both tm and ms or is it just ms?
Will answer this in a soon to be published video!
What do you mean progression in spms? Does this mean you aren’t having “attacks.” Per say, but worsening symptoms such as cognitive or walking?
To answer your question: Lesions? Lol
#WeHaveMS
Hi from New Zealand
Howdy!
I would like to find out if you know how one can find out about what vitamins and supplements are helpful for MS thank Doc Christine Tina65 for Wisconsin