At age 55 it hit me like a ton of bricks, 6 months later I could barely walk, had a hard time dressing myself, it was terrible. The VA sent me to their Pittsburgh hospital, I was diagnosed with Psoriatic Arthritis and was put on Humira Pen injections twice a month, That was about 9 years ago, I have lived a normal life for the past 9 years thanks to my medication. Anyone who has this disease I wish you the best.
@@samkitty5894 The Doctor at the VA hospital in Pittsburgh that I see her name is Dr.Brackney, not sure of the spelling, I do not have to go in person anymore I just see her over the CCTV now.
@@Erdem-x1e Before going up stairs I had to do it one step at a time, Now I walk up stairs normally, Also I can now bend over and tie my shoes while standing up, before I had to sit down on a chair. So things are much better, But keep in mind I am 65 years old.
I went from playing football to wheel chair in 4 months. My legs feel like they are full of broken glass and nails. Every step I make hurts beyond belief. Getting out of bed in the morning is the worst.
I'm 28, I was diagnosed 2.5 years ago, just after I turned 26. Here in Canada, and more specifically in the province of Quebec, your rheumatologist becomes the head of your medical team when you have PsA. I constantly get told that I'm exaggerating when I say I can't do something or I'm too tired (doesn't help that I naturally have a low tolerance for pain). In the 3 years I've been suffering, I've lost or put an end to many jobs because the PsA got in the way, making me unable to do the work. It felt good to watch this video, to see that Mark is not letting it control his life. I cried happy tears for him because he's got control of it, sad tears for all the others that aren't so fortunate because it has destroyed their bodies and mental health, and annoyed tears because I know what I have to do to help myself but I think I'm still in denial...
I'm 48 & PsA started properly 11 years ago (although diagnosis took 6 years so I have permanent irreversible damage in most joints) I also get recurrent chest infections so have to take preventative antibiotics. So it's a constant battle with D-Mards (tried 2) biologic called Tofacitinib which doesn't dampen the immune system as much but it stopped working & a viral infection put me in hospital so I came off them. I hate what PsA has took off me. My job, family home, husband threw me out (the one good thing to cone from PsA as he was very cohesive) because I lost my job so wasn't bringing money in. Lost friends through it, had to stop driving lessons, I was doing an nvq at work but lost my job, lost all & any confidence I had, lost any self respect because my body was failing me. I really was at rock bottom. I'm still struggling to live a 'normal' life .. whatever that is these days. I just wanted you to know that you're NOT exaggerating anything! You are stronger than you think. It's not easy living with psoriatic arthritis but you're not alone in what you deal with. From the UK ❤
Thank you for these encouraging stories. As a 25 year old who has struggled with pain and fatigue for most of my adulthood up until recently. As I’ve struggled with studies, had surgeries and failing in sports.. These stories hits close to heart.
It stopped me living my life. I had no choice in the matter. I have complications and other medical issues but it is the severe enthesitis in my feet and back that cripples me and often leaves me bedbound. Plz be accurate in what you say. It impacts ppls understanding of the desease. It didnt stop "you" from living your life.
I have psoriatic arthritis. I am 33 and I started methotrexate and humera a year ago. It's really helped my joints. I still can't make a fist but I can kneel now and my joints don't hurt as much.
I'm 67 and this shit hit me a year and a half ago.. Predazone kicks its ass...my knees and hands haven't felt this good in years...I can have a full blown rash on half my body, arms and hands like hamburger over itching...3 days of predazone 20 mg a day and it's all gone...the last day the wrecked skin turns to dust....cant get a dic to give me enough for more than a week or 2...I dont have occasional flair up...by the 3rd day without pred it all comes back..predictable like clockwork...met a guy just last week..exact sames symptoms. 4 metatrexlat onece a week he says it's like magic...docs around here suck..keep giving me creams and lotions...the problem is on the inside and it does not help my knees at all...docs dont get it...I cant walk I cant work, I cant work I dont eat...keep telling me about long term side effects...dumbshit, I'm 67 there is nothing in my life long term....best of luck with your deal...sucks getting g it when you are so young...modern medicine is nothing but stupid on this deal...other than its genitic..my dad had myasthenia gravis..autoimmune deal...took predazone for 10 years..never had any side efftcts
Humira stopped working for me after 2 years. My body created antibodies against it. I am now on taltz and it’s not working. I’m in a journey with my rheumatologist to once again find the right medication. I am also on methotrexate and take prednisone when I have bad flare ups. Some people are on humira for years. I hope it continues to work for you.
Walking has become so painful for me. I believe my decline was having standing, walking physical roles and transitioned to seated positions only which has left me aching and inflammed vs being active. Personally, my difficulties are apparent after being still and seated. I was diagnosed seven years ago, with Psa. I had to be my own advocate. I asked to be tested for it by markers and physical tests. It took a year and 8 months for me to find proper care. I was turned away by so many physicians stating that I didn't even have psoriasis! Long waits in the states, I would be able to self manage to the point of no clinical appearance. I'm now in an active psa flare, this time with back involvement, plantar inflammation, wrists, toes, fingers and even inflammation in my heart. I'm 34. I was raised by my family to accept and inform others about psoriasis from the age of 5. I had a tough childhood, informing my peers didn't keep bullies away. I had became ill at age 27, and development serious psoriatic disease complications with 92 percent of body coverage. During the time I was turned away, I had spontaneous fractures, repeated fractures and even hot, inflamed joints. After some immediate intervention finally, a year and a half later, my psa went barely noticeable by me. After a recent surgery, I noticed a few weeks later some new aches, like being stiff to get out of bed, stiff to bend. The bottoms of my feet burn. I try to write notes and letters, a brief two sentences is crippling to my hands. It's so hard for me to say that and accept it. Outwardly, almost no skin involvement this time. I'm used to being used to psoriatic disease, but these new complications have me feeling extremely vulnerable, hard to connect with others and feeling weak as a person. It feels like my strength mentally and physically has been taken. I'm upset and frantically trying to do anything to stop the progression. It's been a hard few months, self admittedly, and even harder few weeks. I'm hoping that I too, can say that psoriatic arthritis doesn't have a hold on me.
I got diagnosed at 13, handling it well at the moment at 20 now other than extreme laxity in my right thumb. It's a bit of a struggle but im glad im still going, i've grown to accept that one day i'll be in a wheelchair.
I have the 3 aspects of Psoriatic Arthritis.... Skin condition, painful joints (my knees and the fibromyalgia aspect (enthesitis)... in my hands, wrists, ankles and feet.
Oh my goodness. I really believe this is what I am going through. I'm 33 and my hands are getting out of control. I SWORE I was too young!!! I'm going tomorrow!!!!!!
Might be a good idea no not self diagnose...I told 3 docs that I was pretty sure that was what I had...they tried to tell me it was anything but that...third doc, I told her I dont care what it is, predaxone shuts it off like a switch...after all, that all that really matters..I just got kinda lucky and figured out what works
I was diagnosed at 38, I saw this because I just needed to know if I was going crazy. The pain is so bad it makes me appreciate the days I get that I can walk with a dull pain. And I can hold a drink. Man I just wish don't know how u guys handle the pain. Walking sometimes feels like I broke my feet, and my hands I can't even dry myself or open a jar a bottle. How about is it like this for you?
@@WeededRican I’m trying to cut out certain foods including bread and dairy. However, it’s still to be seen if it will have any impacts. Two things do seem to help me. 1) Intermittent fasting, 2) Keto diet, 3) Ice baths. Yes, the last one is strange. However, I took a WIM Hof class which included taking an ice bath for 2 minutes. I was pain free for two days. I just hate the thought of an ice bath every two days.
My uncle struggled with Psoriatic Arthritis for years, enduring pain and discomfort. Thanks to Ayurveda, he found complete relief. The holistic approach not only alleviated his symptoms but also improved his overall well-being. We’re grateful for this natural healing path that restored his quality of life and brought him joy again!
I have read that natural anti-inflammatories like ginger and curcumin can significantly help to reduce inflammation and pain and you can easily consume them with food, just add them while cooking. Also, moringa tea has great results in all kinds of arthritis. I suggest you do your research and discuss it with your rheumatologist and GP, as we must always make sure that a medicine/herb we consume is safe for us. Some may hurt the liver, for example, or have other issues. An other good way to reduce inflammation is by cutting out all processed food (trans fats), margarines and plant-based oils (soya, sun-flower, canola oil...). They are high in Omega-6 which is responsible for inflammation. Pure olive oil and food rich in Omega 3 fats are healthy choices. Vitamin D3 is also vital to combat inflammation, low levels only make the condition worse. Please stay active, moderate exercise like walking will keep the joints lubricated and help not to lose muscle.
Have you tried Moringa leafs and also Ginger root capsules, Both act as anti-inflamatory's Google them also watch some video's on TH-cam about Moringa,
I got this disease in my 30s, was on all types of strong drugs for years which eventually caused stomach bleeds. I was told to come off the drugs for a horrendous month of cold turkey, pain was unreal.. however, the pain finally eased off and I've never went back to them. I still have the scars of the disease, some fused joints and poor neck rotation, but I'm drug free and enjoying a healthy life full of sports. If it wasn't for the bleeds, I'd probably still be on the medication.
I'm 30 and was diagnosed 2 yrs ago... the pain get to me every day... it seems to get worse... started lyfludimide, and methotrexate. No noticeable difference yet.
Watch out for that methotrexate it can be very hard on a persons liver, I tried it for two weeks but my blood work numbers became terrible very quickly and had to stop taking it. Just a warning, maybe it does not effect everyone the same way.
I was diagnosed with this after I developed some lumps on my fingers and hands but it was a misdiagnosis.It had begun with skin problems back around 2005 and a GP diagnosed me with eczema but after it got worse and worse I ended up at the hospital and they decided it was psoriasis.Then some lumps came which lead to an amputation.A biopsy showed that these lumps where actually cancerous malignant tumours and where being generated by the advanced form of a rare Lymphoma called Mycosis Fungoides and was/is staged at stage 2b the beginning of the advanced more aggressive form of the disorder.
Hate these sorts of videos. This sounds like a very mild case and doesn't do justice to people having to deal with moderate to severe symptoms. Many people, with a variety of conditions, struggle with fatigue. This guy can walk 22km a day, I can't walk 22 steps without a walking stick (on a 'good' day) No mention of not being able to type, carry a bag, etc. Other than a diagnoses and fatigue, what does he know about PsA! Maybe those not affected by the disease would be more understandig if we didn't have videos like this diluting the seriousness of it.
At age 55 it hit me like a ton of bricks, 6 months later I could barely walk, had a hard time dressing myself, it was terrible. The VA sent me to their Pittsburgh hospital, I was diagnosed with Psoriatic Arthritis and was put on Humira Pen injections twice a month, That was about 9 years ago, I have lived a normal life for the past 9 years thanks to my medication. Anyone who has this disease I wish you the best.
Which specialist were you seeing?
@rayberger2694 Can you go up and down stairs comfortably now? For example, can you squat deeply?
@@samkitty5894 The Doctor at the VA hospital in Pittsburgh that I see her name is Dr.Brackney, not sure of the spelling, I do not have to go in person anymore I just see her over the CCTV now.
@@Erdem-x1e Before going up stairs I had to do it one step at a time, Now I walk up stairs normally, Also I can now bend over and tie my shoes while standing up, before I had to sit down on a chair. So things are much better, But keep in mind I am 65 years old.
I went from playing football to wheel chair in 4 months. My legs feel like they are full of broken glass and nails. Every step I make hurts beyond belief. Getting out of bed in the morning is the worst.
I'm 28, I was diagnosed 2.5 years ago, just after I turned 26. Here in Canada, and more specifically in the province of Quebec, your rheumatologist becomes the head of your medical team when you have PsA. I constantly get told that I'm exaggerating when I say I can't do something or I'm too tired (doesn't help that I naturally have a low tolerance for pain). In the 3 years I've been suffering, I've lost or put an end to many jobs because the PsA got in the way, making me unable to do the work. It felt good to watch this video, to see that Mark is not letting it control his life. I cried happy tears for him because he's got control of it, sad tears for all the others that aren't so fortunate because it has destroyed their bodies and mental health, and annoyed tears because I know what I have to do to help myself but I think I'm still in denial...
Apply for disability
😊😊😊😊
I'm 48 & PsA started properly 11 years ago (although diagnosis took 6 years so I have permanent irreversible damage in most joints) I also get recurrent chest infections so have to take preventative antibiotics. So it's a constant battle with D-Mards (tried 2) biologic called Tofacitinib which doesn't dampen the immune system as much but it stopped working & a viral infection put me in hospital so I came off them.
I hate what PsA has took off me. My job, family home, husband threw me out (the one good thing to cone from PsA as he was very cohesive) because I lost my job so wasn't bringing money in. Lost friends through it, had to stop driving lessons, I was doing an nvq at work but lost my job, lost all & any confidence I had, lost any self respect because my body was failing me. I really was at rock bottom.
I'm still struggling to live a 'normal' life .. whatever that is these days.
I just wanted you to know that you're NOT exaggerating anything! You are stronger than you think. It's not easy living with psoriatic arthritis but you're not alone in what you deal with.
From the UK ❤
Lawyer with psoriatic arthritis here. Thank you for making this video!
Thank you for these encouraging stories. As a 25 year old who has struggled with pain and fatigue for most of my adulthood up until recently. As I’ve struggled with studies, had surgeries and failing in sports.. These stories hits close to heart.
Thank you for sharing Mark! Recently diagnosed PSA warrior here and I’m terrified.
It stopped me living my life. I had no choice in the matter. I have complications and other medical issues but it is the severe enthesitis in my feet and back that cripples me and often leaves me bedbound. Plz be accurate in what you say. It impacts ppls understanding of the desease. It didnt stop "you" from living your life.
I have psoriatic arthritis. I am 33 and I started methotrexate and humera a year ago. It's really helped my joints. I still can't make a fist but I can kneel now and my joints don't hurt as much.
I'm 67 and this shit hit me a year and a half ago..
Predazone kicks its ass...my knees and hands haven't felt this good in years...I can have a full blown rash on half my body, arms and hands like hamburger over itching...3 days of predazone 20 mg a day and it's all gone...the last day the wrecked skin turns to dust....cant get a dic to give me enough for more than a week or 2...I dont have occasional flair up...by the 3rd day without pred it all comes back..predictable like clockwork...met a guy just last week..exact sames symptoms. 4 metatrexlat onece a week he says it's like magic...docs around here suck..keep giving me creams and lotions...the problem is on the inside and it does not help my knees at all...docs dont get it...I cant walk I cant work, I cant work I dont eat...keep telling me about long term side effects...dumbshit, I'm 67 there is nothing in my life long term....best of luck with your deal...sucks getting g it when you are so young...modern medicine is nothing but stupid on this deal...other than its genitic..my dad had myasthenia gravis..autoimmune deal...took predazone for 10 years..never had any side efftcts
Methotrexate accelerated the growth of nodules in me.
Pls help me some brablem madam
Humira stopped working for me after 2 years. My body created antibodies against it. I am now on taltz and it’s not working. I’m in a journey with my rheumatologist to once again find the right medication. I am also on methotrexate and take prednisone when I have bad flare ups. Some people are on humira for years. I hope it continues to work for you.
I was diagnosed at age 21 and ive never bern controlled...the extreme tiredness is just too too much! 😢
Hope hes well but im 40 and im not lucky like him im on biologics
Walking has become so painful for me. I believe my decline was having standing, walking physical roles and transitioned to seated positions only which has left me aching and inflammed vs being active. Personally, my difficulties are apparent after being still and seated. I was diagnosed seven years ago, with Psa. I had to be my own advocate. I asked to be tested for it by markers and physical tests. It took a year and 8 months for me to find proper care. I was turned away by so many physicians stating that I didn't even have psoriasis! Long waits in the states, I would be able to self manage to the point of no clinical appearance. I'm now in an active psa flare, this time with back involvement, plantar inflammation, wrists, toes, fingers and even inflammation in my heart. I'm 34. I was raised by my family to accept and inform others about psoriasis from the age of 5. I had a tough childhood, informing my peers didn't keep bullies away. I had became ill at age 27, and development serious psoriatic disease complications with 92 percent of body coverage. During the time I was turned away, I had spontaneous fractures, repeated fractures and even hot, inflamed joints. After some immediate intervention finally, a year and a half later, my psa went barely noticeable by me. After a recent surgery, I noticed a few weeks later some new aches, like being stiff to get out of bed, stiff to bend. The bottoms of my feet burn. I try to write notes and letters, a brief two sentences is crippling to my hands. It's so hard for me to say that and accept it. Outwardly, almost no skin involvement this time. I'm used to being used to psoriatic disease, but these new complications have me feeling extremely vulnerable, hard to connect with others and feeling weak as a person. It feels like my strength mentally and physically has been taken. I'm upset and frantically trying to do anything to stop the progression. It's been a hard few months, self admittedly, and even harder few weeks. I'm hoping that I too, can say that psoriatic arthritis doesn't have a hold on me.
I got diagnosed at 13, handling it well at the moment at 20 now other than extreme laxity in my right thumb. It's a bit of a struggle but im glad im still going, i've grown to accept that one day i'll be in a wheelchair.
I have the 3 aspects of Psoriatic Arthritis.... Skin condition, painful joints (my knees and the fibromyalgia aspect (enthesitis)... in my hands, wrists, ankles and feet.
Same here. It started just last month
Oh my goodness. I really believe this is what I am going through. I'm 33 and my hands are getting out of control. I SWORE I was too young!!! I'm going tomorrow!!!!!!
Might be a good idea no not self diagnose...I told 3 docs that I was pretty sure that was what I had...they tried to tell me it was anything but that...third doc, I told her I dont care what it is, predaxone shuts it off like a switch...after all, that all that really matters..I just got kinda lucky and figured out what works
I was diagnosed at 38, I saw this because I just needed to know if I was going crazy. The pain is so bad it makes me appreciate the days I get that I can walk with a dull pain. And I can hold a drink. Man I just wish don't know how u guys handle the pain. Walking sometimes feels like I broke my feet, and my hands I can't even dry myself or open a jar a bottle. How about is it like this for you?
@@WeededRican I’m trying to cut out certain foods including bread and dairy. However, it’s still to be seen if it will have any impacts. Two things do seem to help me. 1) Intermittent fasting, 2) Keto diet, 3) Ice baths. Yes, the last one is strange. However, I took a WIM Hof class which included taking an ice bath for 2 minutes. I was pain free for two days. I just hate the thought of an ice bath every two days.
My uncle struggled with Psoriatic Arthritis for years, enduring pain and discomfort. Thanks to Ayurveda, he found complete relief. The holistic approach not only alleviated his symptoms but also improved his overall well-being. We’re grateful for this natural healing path that restored his quality of life and brought him joy again!
i cant take any of the meds for PSA ,so i live with it ,yesterday was a good day ,today a bad day .
I have read that natural anti-inflammatories like ginger and curcumin can significantly help to reduce inflammation and pain and you can easily consume them with food, just add them while cooking. Also, moringa tea has great results in all kinds of arthritis. I suggest you do your research and discuss it with your rheumatologist and GP, as we must always make sure that a medicine/herb we consume is safe for us. Some may hurt the liver, for example, or have other issues. An other good way to reduce inflammation is by cutting out all processed food (trans fats), margarines and plant-based oils (soya, sun-flower, canola oil...). They are high in Omega-6 which is responsible for inflammation. Pure olive oil and food rich in Omega 3 fats are healthy choices. Vitamin D3 is also vital to combat inflammation, low levels only make the condition worse. Please stay active, moderate exercise like walking will keep the joints lubricated and help not to lose muscle.
I understand what you mean. I am wishing for more better days ahead for you!
Have you tried Moringa leafs and also Ginger root capsules, Both act as anti-inflamatory's Google them also watch some video's on TH-cam about Moringa,
Thanks for the information
I got this disease in my 30s, was on all types of strong drugs for years which eventually caused stomach bleeds. I was told to come off the drugs for a horrendous month of cold turkey, pain was unreal.. however, the pain finally eased off and I've never went back to them. I still have the scars of the disease, some fused joints and poor neck rotation, but I'm drug free and enjoying a healthy life full of sports. If it wasn't for the bleeds, I'd probably still be on the medication.
How are you now?
Methotrexate???
Exactly the age i was when I was diagnosed.
Thank you so much for sharing
Thank you 🙏 I have been diagnosed with this on top of my Fybromylgia and know one believe s me other then the drs of course 😀
A very nice video, thank you.
Thank you so much to you.youre such an inspiration to all of us..somewhere
I'm 30 and was diagnosed 2 yrs ago... the pain get to me every day... it seems to get worse... started lyfludimide, and methotrexate. No noticeable difference yet.
Watch out for that methotrexate it can be very hard on a persons liver, I tried it for two weeks but my blood work numbers became terrible very quickly and had to stop taking it. Just a warning, maybe it does not effect everyone the same way.
@rayberger2694 all my level come back good normally.
@@rayberger2694 but they always make me check before they'll prescribe it
@@shawnmills4358 I am glad that you are able to handle it.
This guy is lucky if they call that advanced I’m screwed
I was diagnosed with this after I developed some lumps on my fingers and hands but it was a misdiagnosis.It had begun with skin problems back around 2005 and a GP diagnosed me with eczema but after it got worse and worse I ended up at the hospital and they decided it was psoriasis.Then some lumps came which lead to an amputation.A biopsy showed that these lumps where actually cancerous malignant tumours and where being generated by the advanced form of a rare Lymphoma called Mycosis Fungoides and was/is staged at stage 2b the beginning of the advanced more aggressive form of the disorder.
Cut the music.
Hate these sorts of videos. This sounds like a very mild case and doesn't do justice to people having to deal with moderate to severe symptoms.
Many people, with a variety of conditions, struggle with fatigue. This guy can walk 22km a day, I can't walk 22 steps without a walking stick (on a 'good' day) No mention of not being able to type, carry a bag, etc. Other than a diagnoses and fatigue, what does he know about PsA!
Maybe those not affected by the disease would be more understandig if we didn't have videos like this diluting the seriousness of it.
Agreed!! I've never been able to walk 22km ever, much less daily.
Got it after taking the aztraneca vaccine 😢
is shit. is not life/ worst what can be - its have kids and spread broken genes. I had my from parents