Braleigh's Syndrome (The Only Known Case Ever)
ฝัง
- เผยแพร่เมื่อ 18 ต.ค. 2023
- Braleigh lives with a syndrome so rare, they named it after her. She is the only person in the world ever known to have this genetic disorder, but all she wants to do is laugh with friends and pet her dog.
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Braleigh is definitely unique! Her parents are really nice! Raelyn is a very sweet and supportive sister! Smoky is really adorable!
Chris has a way to communicate and create a bond with everyone no matter the type of disability!
He is such an angel himself… of course he connects with these little angels ❤
I agree 💯! Well said! ♥️♥️
She looks a lot like her dad! I love how she's so comfortable with Chris. So joyful 😄❤
Yes I agree, you can obviously tell by her looks that he’s her Dad!
True
What a precious little girl with a precious little pup, I love their special bond. Just adorably sweet! She has a wonderful protective sister!
Yes!❤
"My favorite thing about my sister is that I get to spend some time with her."
This absolutely melted my heart! I can't deal with how incredibly sweet that was.🥰🥰🥰 Beautiful sisters with a beautiful and special connection...
❤❤❤
I love how her little sister specified that they became friends when she was 6 and BFF when she was 7 on top of being sister’s already😄 So cute and sweet!
What an absolutely adorable family! They are all so caring and loving. I adore that they have rescued Smokey! Blessings to you all!
That little tongue curl of hers when she laughs so cute, and she’s got the best friend in the world in Smokey
I love it! Lol noticed that as well! Super cute! & I tried that myself! Lol didn’t come close to that sound! Lol nor did I even look that cute as she did!😩😬🤦🏻♀️🤭
I love her laugh ❤
I was thinking the exact thing❤ what an adorable kid.
Chris, my daughter has left college and become a para pro in a low income special needs class with older elementary students and is so in love with her work. I am so very thankful to you for teaching me over the years how to approach, not be afraid, and understand the people you advocate for. It allows me to be able to connect with my daughter in a way I would never have been able to otherwise. Your work is so important. Thank you
Braleigh is adorable and she obviously understands much more than most people might imagine. Never underestimate people only because they are non-verbal; they have different type of communication! And what a lovely family! ❤
IIndeed ❤
Chris I’m always amazed at how you instantly connect and interact with the kids. Watching you and Braleigh copying each other and communicating in that way was such a delight! I also love how while conducting these interviews you always focus on the person and their personalities as opposed to their diagnosis.
I have literally been look for a comment on someone to talk about just how truly amazing Chris is with each child he interviews! He is truly a special man!
Smokey is the lovingest cute dog I’m so glad he was adopted..perfect companion for Braleigh❤
This family is BEYOND amazing. Keep doing what you’re doing. EVERY BEHAVIOR IS COMMUNICATION. THEY TELL US WHATBTHEY WANT or need. We needcto listen.
Damn right
My daughter is one of the 150 with 2q37.3 Deletion Syndrome! Thank you for sharing your story.
Could I ask you what are the problems of this syndrome? Is she mute, can she eat, walk . What is the deficit? Ty 😊
My child at 8 years old and her conditions from 2q37.3 are, seizures, autism, low muscle tone, thicken white brain matter, enlarged ventricles, lack of 4 digit knuckles in hands and feet, and low immune system. As far as her day to day life and how all those effect her, she is in a wheelchair, non-verbal, she eats via g-tube. She is also very musically gifted, has many songs memorized and hums the song to communicate. In the morning when she wants to get out of bed she'll hum "are you sleeping, are you sleeping, brother John..." for asking for affection she will hum "and a great big hug and a kiss from me to you, won't you say you love me too?". She's a sweet, happy girl! And if you Google 2q37.3 they all have a typical look in their faces, my girl falls in line with the common face features.
@@amandastrickland3303communicating musically sounds magical. Thank you for sharing.
GOD bless your daughter and her family 😀❤
@@amandastrickland3303 Thank you very much for sharing! I wish you all The very Best. Hugs and kisses from Argentina 🇦🇷 🤗🥰❤🌺
She is precious! And looks so much like her dad. She has such joyful energy. And her bond with her pup is adorable. So sweet! Thanks for sharing Braleigh with us❤❤
My dad was a special Ed teacher for 28 years. I have a special place in my heart for those who work with special needs people Thank you Chris 💚
Shoutout to him!! I remember in high school I was in a group called circle of friends wheee we get partnered with a special needs kid. My Buddy was fully disabled and I didn’t realize how much you have to invest in them. And he was just one boy! Those teachers def deserve all the praise in the world for staying patient and taking care of all the special needs kids
Same, expect with my mom ❤
Such patience. I'm already getting initiated with the repetitive laughter ..imagine having a toddler and knowing that phase is never going to stop one day and finally be over. Its just going to always be like that even when she's 60.
Thanks for bringing this child to SBSK. She is just precious, and so is her lovely family. Chris, SBSK makes it a joyful celebration when y’all meet these special and extraordinary families. I look forward to it every week.❤
What a lovely family! Smoky is such a good doggo. Sometimes angels have fur and waggy tails.
well i don’t like how she was hitting the dog with her toy. (approx 13:30 ish)
@@00zarzu00oui le papa ne l a pas vu j imagine 🙄
@@00zarzu00 yes, but it wasn't with force and he just moved away instead of showing any sign of aggression. Some dogs are not good to have around kids because kids do stuff like that, but he is clearly suited for a household with kids. He seems comfortable around her, and she didn't do anything that could hurt him. If a dog is truly upset by something, they will let you know. I'm sure the parents would intervene well before something like that could happen, because she's otherwise gentle with Smoky.
This video just had so much joy and love filled in it, full to the brim that its even flowing over into the world and I felt it so immensely within!! Thank you ❤❤!!! Wishing the best life has to offer to the family and Braleigh. Such a sweet, sweet happy girl 🧿🌟
Thanks for the content Chris, we love you.
Her sister is so kind and patient with her for example when she took off her glasses twice she didn’t even bat an eye. I am so impressed by her wow . ❤
I love your channel and all of your amazing friends. So grateful that you are introducing them to us. Dancing with you and Braleigh 💝💃🎉
This little girl made me feel so happy. She is absolutely adorable and has a beautiful aura around her. I love her beautiful mom, dad, and sister. They are awesome and I want to thank all of you for sharing her video. God bless all of you ❤️
Chris, you are such an inspiration. the way that you are able to make a connection with anyone regardless of there disabilities or special needs drives me to be better, I value your work and i applaud your efforts to bring differently abled people to the spotlight. one love keep it up
What a beautiful kid, hope her life is full of fun and hapiness 😊❤❤
She actually seems to understand what you guys are talking about, and wanting to understand and be a part of the normal conversation. Seems she also responds, but nobody reacts when she is pointing - it's like she is asking, I mean, and nobody telling her what it is, and what you are doing. Her sister is just the sweetest sister 💖💖💖
Whatta beautiful family. Braleigh is such an awesome and adorable lil' girl as is her sister. Her smile and laugh are so contagious. I couldn't help but smile 😊 throughout the video. I wish this wonderful family all the very best of everything! Thank you for sharing your story. 😁💝
She’s such a funny person I love when she giggles.
Oh my😢❤❤❤ This family is truly amazing! I wish that every child could grow up with people like you guys.
That sistership is pure love💕❤️
I want you to truly understand, I’m looking on you tube for a reason to be happy and continue my life!! I came across this video!! My goodness!! Her laugh, her love…her palatable joy? I can properly thank you and this wonderful girl for showing me what is important and to keep being!!!
This channel has opened my mind to….oh my gosh….more than I imagined I’d be opened to!!
Her joy & laughter is absolutely contagious! What a beautiful girl with a beautiful soul. Just watching this one video, watching her, it really does help you forget about all the bad in the world today & helps you to just live in the moment. ♥️
I am so happy you keep this project going. The Mr. Rogers of our generation.
💜 You brighten my day with your videos. There’s always a bit of sunshine ☀️ in every interaction.
what a great family and a happy kid! I love that this channel is still going strong!
Hi Braleigh🤗 I was excited to watch your very own video, and your smile made me smile too! Oh and I love your puppy dog, he was super adorable ❤
She has brought out the best in her parents. I hope she keeps her laughter and I hope life rewards her with much blessings and a awesome future.
Really admire her parents, they see her as a blessing and not a burden and her sister standing up for her, so sweet!!!
It's not like they really have much of a choice. Trying to have a positive outlook can make a negative or difficult situation more bearable and manageable.
@@blairariavanderkamp3405there is plenty of choices. They could have given her up for adoption, put her in a facility, left her at the hospital safe haven. Tha they chose not to do any of those things speaks to their humanity. They knew it would be hard and they rose to the challenge. A lot of people don't.
True, and that makes their story very encouraging!
@@blairariavanderkamp3405 Но в точно такой же степени создает иллюзии, к сожалению
Absolutely beautiful family! Thank you so much for bringing awareness to their situation ❤️
Braleigh is such a gift...thank you for sharing her with us!! Much love to you all!!
I love mom's final message to the world, so heartfelt and inspiring.
Thank you, Chris! ❤
She is such a happy and beautiful girl❤️ Her family are blessed with her and her little sister is the cutest❤️
These videos are so wholesome and teach so much. You are amazing with all these kids too. Keep up the great work, Chris!
What a lovely sweet thing Braleigh is. Her laugh made my entire day ❤ And wow...bless those parents. That must be incredibely hard to have a child to have diagnosis that only your child has.
Right? I have a rare condition that only 1 in 20,000 have, and I often feel like the only one. I can’t even begin to imagine how Braleigh and her parents feel!
@@FelinePoetryif you don’t mind me asking, what is your condition?
The world is an interesting place with so many differences that it just boggles my mind every time I see something or someone who brings another beautiful picture to learn about and meet. Difference’s are what make us unique.Thanks for sharing her with us.What a ray of sunshine!
Her smile and her laugh are so contagious it just makes you smile along with her. What a unique and special girl she is❤
What a beautiful girl! And the joy she has is contagious 💖
I truly believe these children bring light to the world.
It is so nice learning about special people it’s just so interesting and I love this channel
What an amazing family! her parents and sister are so incredibly kind and loving, I'm so happy Braleigh landed in a family like this. Her laugh was the cutest!!
Her laugh is contagious! What a beautiful, sweet, smart & curious little girl who Loves life.
She is so precious! We can all learn a lot from individuals with disabilities. I love your videos and the individuals we get to know about through them.
this is truly one of the only TH-cam channels I watch and feel like my time was well spent afterwards - thank you for what you do, I’ve learned so much just from watching ❤
What an amazing and adorable sense of humour she has. So clever how she uses that to connect with others. Braleigh is a gorgeous girl!
She’s my smile for today. I spent most of the day depressed and crying. How can I cry when Braleigh’s smile and laugh are so infectious! Thank you, Braleigh! A big 😂, a big 😊 and a snort, too!
And thanks to Braleigh’s sister, dog, mom and dad, too.
What a beautiful family! Braleigh is a beautiful young girl with a lot of spirit. I love how Chris connects with each kid. He is an angel in my eyes. Raelyn is an awesome sister and I’m happy they have each other. 🥰♥️
what a sweet family. loved seeing braleigh dance to chris' singing. thanks for sharing your story with us & here's wishing you all, all the best. 😻💖😻💖😻💖😻💖😻💖
This beautiful angel brings such joy to everyone. Her sister is adorable and will always be clise. Beautiful faily. God Bless you all!
The families are just as wonderful as the kids!! I love meeting these wonderful people!
If everybody could be Like Braleigh, the world would be a more fun place to be. Thanks to you, her family, and most importantly Braleigh for sharing her story.
Braleigh is a special little girl. I love her laugh. She's so sweet and precious.
Such a wonderful family ❣️ Thanks for sharing Braleigh's story with us, Chris ❤
Chis does such a great job connecting with all kinds of people 💖💖💖 adorable sisters and family 💖
She’s such a sweetheart and an intelligent little lady ❤God bless you with a long, happy life!
Such a wonderful family. So much love, you can sense the closeness. So dear❤
So amazing this family touched my heart. I have a unique happy boy myself and love your attitude. You want them to be happy. They teach us about being happy. Many happy happys to you all!
i love watching these videos. just seeing how people can be so different in so many ways and still live the best lives ever is so heart warming ❤
I wasn't even noticing myself when I was watching her laugh and sitting with that man I don't know who that was and I noticed all of a sudden that I was almost laughing and smiling she makes me happy I'm 89 years old what a happy child what a blessing thank you for the video.🥰🥰🥰🥰🥰🥰
I love your channel, I love all these people.
Aw, what a sweet heart :D God bless you all, and great work SBSK!
I always get a surprise when a new video from this channel pops up. Another beautiful soul to fight for
Such a sweet & happy kid. She has good & loving parents. And you have to love Chris. Don't know if this guy has kids but he would make a fantastic father.
would have loved to learn a little more about how she’s similar and how she’s different from other kids her age :) she’s so playful and bubbly but it’s hard for me to envision what her day to day activities and functioning is like outside of school.
She is just so adorable! So happy and pure! The whole family is truly beautiful! ❤
This is another exceptional family with exceptional children. They each exemplify the highest love and happiness that each of us is able to create. So does Chris! I would be very happy to just get to know them better. I won't forget them and will seek to keep sending them all the love and happiness I can create to them through God All Loving and All Wise.
She's so cute! How could anyone watch this episode and not smile and laugh the whole time? This is such a sweet family 😁👋👋
Chris, might you consider doing a video on Myalgic Encephalomyelitis (aka ME/cfs) please? I have this complex & incurable disability and i have found hardly anyone has ever heard of it ?? Including doctors !! I have been watching you for years and I simply adore your work. Thank you so much for all you do❤
I had a huge smile during the entire video Chris.....my cheeks hurt now lol. This little girl is an absolute angel,!
Chris, you are the loveliest person, you connect so easily with these children and are so empathetic ❤
whoever is reading this keep going, you're doing fine! No matter how slow your progress, each new week is filled with tiny steps forward. Be proud of yourself you got this! Much Love from Germany ❤
Very kind, sensible and succinctly put. Thank you from Canada.
I needed this. Thank you friend.
Thank you, I really needed that today! Much love from Sweden❤
So ein schöner Zufall. Genau was ich jetzt gebruaucht habe. Danke schön❤
Same to you!! Much love from Oregon, USA
She is such a beautiful, happy little girl. Her happiness is contagious.
Smokey is just too cute! What a special bond those two have 😊
She seems so happy, I hope everyone gives her the love and respect she deserves for the rest of her life.
Just started this video, and already, I can’t help but laugh with her 😊❤ just such a ray of sunshine
Braleigh, thanks for such an important reminder about finding joy in the small things. What a wonderful, loving family ❤
Braleigh is so precious. The whole family is loving and supportive . Love Smokey the dog 🐶
She's following the conversation. When he asks a question she turns to look for the answer. Sweet little girl
I became a disability support worker after watching these for years, it’s truely helped so much in how I interact with people and educate others. Thank you so much!!
the sweet relationship between the sisters makes me so happy 🥹🩷
Hi, Braleigh! It’s delightful to meet you! It’s so nice to meet your wonderful family, and your cute dog, too!
She has a gift to brings so much positive energy and love around her family and every one she meets..thats precious and a blessing❤
Loved the use of intensive interaction here. It's such a basic communication tool but so, so , so important. Really wish more people understood it and used it.
She’s beautiful ! Definitely a one of a kind special young lady with a wonderful aura ❤❤❤
Such a wholesome video. I love it! I hope everything goes well for you Braleigh. Sending love to you and family.❤❤
Wonderful loving family , Im sure they have had bad times and it can be challenging sometimes but its clear that she is a blessing to her family and brings much love and happiness to them all. May God surround them with His love and may He give them strength and bless them all.
LOVE 💖💖💖her LAUGHTER! So uplifting and contagious! And her family is so sweet and caring!
She is so comunitive you just need to pay attention. Such beautiful little girls. I wish this lovely family all the best.
Such a delight. Thanks for the smiles Braleigh :)
I would love to praise not only Braleigh but even her sister who is clearly so patient and loving to her! I am so proud of this family
She is the cutest ❤ So is her sister. Great job family. Love how gentle her puppy is.
I would love to see these amazing people in images of how they have grown from babies and now. Like a montages put at the end of the video. The videos always end so abruptly but I think it'd be a way to end the video and help more connect with each individual you highlight.
Great family!❤I also liked how the sister defended her and the father explained how his daughter has taught him to enjoy the present moment!❤
She is precious and her little sister is so loving and protective of her. Sweet girls❤