Fibromyalgia?
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- เผยแพร่เมื่อ 26 เม.ย. 2023
- In this video, we dive into the question, "What does fibromyalgia feel like?" It's a complicated diagnosis with a variety of symptoms that can be difficult to pin down. But when you break down the word "fibromyalgia."
It becomes clear that it's a pain in every fiber of your being. For some, the pain comes in the form of headaches and neck pain, while for others, it's trigger points across the body.
Fibromyalgia can also be accompanied by anxiety, chronic fatigue syndrome, and other symptoms. We explore how the spine and body being in a locked, stressed, misaligned state can contribute to fibromyalgia and offer tips and tricks for improving your health and quality of life.
If you know someone with fibromyalgia, or is always taking the same medications and treatments but not getting better, contact us today!
Call us today! 724-772-7060
Or fill your information out here and one of our doctors will be in contact with you!
mailchi.mp/reviveucc/talk-to-... - วิทยาศาสตร์และเทคโนโลยี
www.reviveucc.com/conditions/neurological-disorders/
I feel like i am sunburn all over in side and out
Brain fog is terrible with fibromyalgia and going through the women change
Finally able to get back to you Cheryl ❣️ Not good going through Fibromyalgia alone. It's been 38 years, hard to believe 😭. We have to be the strongest woman in the world.🙄 I look back and realize I never talked about it because nobody wanted to hear about it since it didn't "show". Well I've been bed ridden primarily, had to leave my career at 38 and in on
I’m going through the same thing! Im so lonely and depressed with anxiety 24-7 along either all the other pain and insomnia
Always fatigued.
My Dr is not much help and Ive seen several specialists
I’ve had all kinds of tests, 7 years now and ongoing! It’s only getting worse.
I’ve not hats any treatment or meds that gives me relief.
I don’t know what else to do
Me too it’s horrible I had to give up my nursing career, nobody understands unless they are suffering with fibromyalgia/chronic fatigue/ME etc too!
I’m fed up with trying to explain when people ask the same questions over and over!
Or they totally ignore- we Don’t want sympathy just understanding and consideration!
My mother only says “but I can’t do anything “!
She doesn’t have any empathy at all!
It’s a lonely life but having some little hobbies when I’m feeling up to it helps- finding joy in small moments!
Sending love to everyone going through this horrible illness!
I focus on the future research and hopefully med bed technology will come soon!
❤️💜❤️😘🤗🙏🌎
You explained fibromyalgia perfectly!
Thank you!
How is your Fibromyalgia doing, you texted a year ago ⁉️
Its pain and fatigue all over
I am thankful to for my Flexeril tor muscles.
I would say excruciating and soul crushing but sure
good description.
Oh yeah join the club huh⁉️🙄😭 We can only do our best. We should keep in touch and compare notes. I have some suggestions that help. More later my arms and hands need a break. 👍🙏✌️💖🤙
Pain in every fiber of your being exactly!!!!!
We are sorry to hear that! It is really rough, but if you would like to talk to one of our doctors, feel free to visit our website to contact us or if you are not in our area can check out our referral map to find an upper cervical specialist in your area www.reviveucc.com/referralmap/
Well this reel defined my 10 year painfull journey with my shoulders and feet .
It's torture. Ungodly. 38 years half my life. Doing this alone. I've had enough.🙄🦋
Oh, god me too!😭
I feel your pain and I am so sorry! Not being believed has been the hardest!! Why would I lie about something for 30 yrs?!?!?
I'm way over and it just gets worst doing it alone to.
fibromyalgia was created by the pharmaceutical companies and the government to drug and control you. Brainwashing at its finest
Its been almost 22 years for me. It use to come and go, but now it is constant.
The way it started for me was feeling like I did when I hadn’t worked out for a long time and then decided to do full body-hardcore exercise with Lactic Acid spread throughout my entire body. I had already hurt my back at work lifting a heavy patient up in bed when I heard a pop. I was also working at a terribly stressful job where we would get stuck working up to 17 hours and then would have to drive several hours home and then get back up at 4:00 am with no sleep. I truly believe that sleep issues is the primary cause for this happening because your body isn’t getting that rest and recovery that comes with restful sleep. Working split shifts with them flipping us nurses around from nights to days with no time in between is miserable, you can’t get home at 8 am and then have to be at work the next day at 7 am. You have to force yourself to stay awake so that you can hopefully sleep before you go back to a day shift. It’s not healthy!
Same with me... During the covid I used to work from home sitting in front of the computer for 16+ hours as my husband was unemployed, I quit after he got a nice job. So I decided to focus on my health and started working out... Strenuous exercises led me to 5 slip discs initially... And it only kept getting worse from then and here I am today wid FM. It's been 3 years since I am suffering every minute of my life
You explained this perfectly my hip and shoulder is higher on one side and the tension in my neck ans shoulders is so bad they feel like a rock doesn't matter howmuch I stretch it never loosens up its awful I haven't been diagnosed but I've got every symptom and some thanks for this video !!!!
you are very welcome Rhonda. best wishes to you!
PS: you can visit www.ReviveUCC.com/referralmap and see if there are any UC clinics nearby as well.
My neck is tight , my shoulders hurt, my back is sore. And I'm losing money because of time off.
I know how your feeling. Tried Trazodone for sleep. It just messed me up. The best thing for me is gabapentin. Stopped it for couple of weeks. Started it again. Feeling refreshed today after taking it before bed last night.
Me too. Plus I am in debt up to my eyeballs getting treatment that do t work!
I lost my home
@@Dma712be careful of gabapentin it works for shingles and ebar , I take anxiety med , trazadone for me was okay not what I expected and gabapentin was horrible but it work with pain , I don't take that no more , but however anxiety meds do help better for me , just saying be careful with those meds some work great for others and others it does not , good luck to you
Hope doctors can find a cure .I get all what you just explained. Ty amen 🙏
I live in Germany and the doctors have no idea about this illness. I've been sent from one doctor to the next and ended up in a mental clinic saying it's in my mind 😢
Cheryl have to continue in a little while. Tell me about you 💖
They cured my fibro...really...I'm not playing!
Who cured?
What treatments did you take part in? Also what was your pain limitations?
You obviously had a mild case. Trust me I know ‼️😭🙏✌️💖
@@meghanodonoghue9066good answer Meghan👍
😭
I'm back Cheryl. We can talk to each other if you want. (misery loves company lol 😉) I never knew anyone with Fibromyalgia to talk and compare notes. I have some good info to share. I don't try to push myself much anymore to alleviate any pain I can for however long. It's short of course. Hope to hear from you. The doctor wants to hear from us too I'm sure. I'll keep in touch ❣️
You explain it so well, I have suffered from it for a long time but only recently diagnosed I am trying to learn about it. All the comments I can relate to thank you for sharing.
I have every trigger point in fibromyalgia, from my head to toes. 😢
So sorry to hear this. See if there are any UC clinics near you here and let us know if not: www.ReviveUCC.com/ReferralMap
@@ReviveUCC thank you so much, I sure will
@@ReviveUCC I looked it up and I didn't see one where I live but I will be moving to Pittsburgh pa and I see one there. I will be checking it out, in the meantime I will be checking out the website. Thank you again
What about migraines?
Good morning. I've been diagnosed with fibromyalgia for a year now. I tell you I'm so restless I don't sleep, and I'm always in pain I could barely walk half a block without crying. My headache has increased so much. I go to pain management and rheumatology. These Doctor's give me so much medicine but nothing is working. I see a shrink because my anxiety and depression is so high I really want to die because this pain is unbearable I'm always home don't know what else to do with myself. Lord is there something I can do to sleep and walk again my brain is about to pop. Many blessings to you and your family 🙏🙏
Уважаемый, Вы держитесь, надо бороться. Я 12 лет мучаюсь, часто не могу даже поесть, попить, глотать- боли адские, бывают сутки. Потом 2 дня восстанавливаюсь.
Состояние, что меня перемололи катком😢🤦♀️.
Я борюсь, утром еле еле спускаюсь на улицу и через боль тяну все мышцы, ходьба с дыханием, быстро. Через час становится легче.
Я из России . ❤️🙏
Прошу вас всех- давайте не будем терять надежду, фибромиалгию надо побеждать.
Anxiety med might help you
You understand. Around 16 years thus far. Long journey but I'm taking my body back.
All we can do is keep trying and be positive as possible. And we should keep in touch to regain our sanity LoL ✌️💖
So many misdiagnosed with fibro when it's actually lyme disease
My neck, entire back, and hips are always in pain. My spine pain becomes unbearable. Sometimes something being my left shoulder blade feels like it pulls. My hips only feel a little better after I get injections for Bursitis. I also have ME/CFS. Oh and all of the medicine approved for Fibro nerve pain I had a bad reaction to. I feel like I'm being tortured.
Perfect explanation! THANKS FOR YOUR BRILLIANT EXPLANATION a lot of people don't understand what it is!
Thank you for the positive feedback! Anything we can do to help reaise awarness and give people options.
Pain thats comes in different parts of body.
Man, I wish you guys were in my town. I really need help.
Feel free to check out our referral map! If there is not one close enough feel free to message us www.reviveucc.com/referralmap/
Totally agree. I had to fly to Oregon once a year to world specialist and head of Rheumatology at Oregon Health Sciences University 1990 to 2001 when he retired. I set up an interview with Maria Shriver and Dr. Robert M Bennett on NBC. I have copy on tape and DVD. I have information he gave me that helps some patients.
@@ReviveUCCthank you ❣️
The nerves over-react to stimulus. And interpret sensation...fine, touch...and then the nervous system feels pain with the touch stimulus. There's been some interesting brain studies on us. There's some atrophy in areas of our brains from the chronic over-reactions. Also we have ADHD when we never had it as children.
There is also research that shows that spinal adjustments to the neck help the brain interpret stimuli from the hand.
@@ReviveUCC Can neck misalignment cause low blood pressure? I have neck and upperback pain and experience symptoms such as muscle/fiber pain, fatigue, palpitations and low blood pressure, especially with exertion.
@@joser83111I have this exactly cab you describe in what way your neck feels misaligned? So I can relate to my situation because I feel like I have a literal misalignement in throat and neck that feels like I cant breathe.😢
I am presently working on an ADHD/ADD diagnosis, I am beginning to believe that this could be a compounding factor in why medications are not effective.
Thank you!
You need to come to NYC because these doctors are not understanding what in the world is fibromyalgia omg I'm on so much medication that honestly I don't sleep. I pase back and forth in my apartment. Geeze Louise I also go to physical therapy it's ok while I'm there but then the pain tends to get worse like I really don't know what to do with myself anymore. Thank you for understanding what I'm going through. Many blessings to you and your family. 🙏🙏🙏🙏🙏🙏🙏🙏🙏
We understand it is extremely difficult and painful, but do not give up there is hope. There are incredible upper cervical doctors in NY! Check out our referral map with doctors we know and trust!
www.reviveucc.com/referralmap/
I hope EVERYBODY CAN SEE THIS!
I SOLVED IT! The solution:Visualize your whole inner neck = the tendons that form the structure, relaxing and massage without muscle resisting tense back for the effect to work. WHAT you should feel is crackling and crutching sensations that will make your life come back. After that the rest of the body triggers will be easier to relieve. THIS is because of a habit of tensing neck and nothing with nervous system not working hense no one is born with fibromyalgia and get it sometime later in life❤❤
How do you massage your neck?
My fibromyalgia pain is in the back butt legs and ankles, and burning of the legs is never ending. I’m looking at diet now, I’m celiac and dairy in tolerant so
that’s been out for years, sugar and GF bread is my poison so that has to go. It’s now an elimination game. 🤷🏼♀️
Rheumatoid arthritis is painful too. What is the difference between Fibromyalgia and Rheumatoid arthritis?
I have fibromyalgia and hypothyroidism so I have IBs and Anxiety I take CBD oil for my pain but this past year I've had bursitis on my hips and recently took out my shoulder and had to have another MRI yesterday I literally feel like a glass doll any little movement hurts and without trying I get injured
You are spot on! 👍🏻
Thanks for the feedback!
I get sore throats and pain in all my limbs. Hands and feet. Pain beside my eyes. Shooting nerve pain all over. Chemical burn feeling sometimes on my skin. Chest tightness. Feelings of having a heart attack. Chest soreness. And days I’m too weak to walk to the bathroom. Pain when I press around my uterus to that causes excruciating pain. I’ve seen so many doctors who can’t figure it out. Is this also fibromyalgia? My doctors say it’s not from my autoimmune disease
I get sore throats and pain in all my limbs. Hands and feet. Pain beside my eyes. Shooting nerve pain all over. Is this also fibromyalgia? My doctors say it’s not from my autoimmune disease
I wish you were closer to me. My fibromyalgia is so bad right now. 😪😪
Hi there, so sorry to hear about this. Please visit www.ReviveUCC.com/ReferralMap and see if there is anyone near you that provides similar care? Happy to help in any way we can.
In what way are you helping? By telling is something we already know?
How to contact you ? Pls provide. I'm a Fibro Patient
It also causes irritable bowel syndrome, it’s horrible.
Please help me I m suffering from this type of pain for last 7 years
Fascia?
So what do you do for the pain?
Wow I'll just shoe people this thanks
It's like you have bruises from head to toe
I’m trying to figure out if that’s what I’ve had for 30 years!!! I was in remission for 25 years and it started coming back maybe 5 years ago. I have positive ANA but I realize fibromyalgia may or may not be an autoimmune disease or syndrome. Unfortunately, we don’t know much about these diseases/syndromes which sucks. Thought I had sjogrens because I have very dry eyes and mouth but my tests came back negative??? My symptoms fit both. I have many doctor appointments set up. Already had ex rays and MRIs showing nothing, definitely not my bones.
I get lots of pain and stiffness in in my neck and shouldersi cannot have chiropractor treatments anymore due to osteoporosis. I am age 66.iget ,migraines..my hips higher on one side ..thank goi can fet legit pain i management.I also got Burning Mouth Syndrome.its like your entire mouthson fire. I live with CPTSD. Awful Depression and Bad Anxiety..it gets worse as i get older .I am 66.i live in Awful Pain .sorry to Ramble.😊😊😮😮
Try adding multiple myeloma to the mix… it’s a roller coaster thrill ride of PAIN….
I have so many symptoms of fybromyalgia, I've had a left hip replacement and I'm in constant pain. How do I get a diagnosis from my doctor? I feel like she thinks I'm making the pain up, I very often can't sleep at night because of the pain then I'm left exhausted for days and have to stay in bed. ❤🙏🏻🙏🏻🇦🇺
th-cam.com/users/shorts_UIG3DQmL6Q?feature=share
Here’s a video to hopefully encouraging you in your searching journey! It is NOT easy but do not give up on it!
Where would I send my husband to get diagnosed or tested?
Hi can you help me in diagnosing fibromyalgia
What if you've been diagnosed with cervical herniation and disc disease. My lower back is no better. My neurologist thinks there's fibromyalgia too. So confusing and depressing. Pain is off the charts. 😢
It is TMS!
Thanks for the comment!
Hi I was just diagnosed with fibromyalgia and migraines and I was wondering if you think going to the chiropractor would help with my neck and back pain
They are guessing. Haven't found one doctor who knows what they are talking. Just regurgitating same info. There aren't any answers
Sleep less is my nightmare need help
I read up on this. Apparently there is no test for fibromyalgia, which concerns me. I have been tested for arthritis and immune deceases, but blood test came out negative.
I have had pain in my left upper bottocks and left hip (also on the right side but much worse). My neck is permanently stiff (i thought it was stress) and I feel like not a single pillow can support it. My whole body is tense. Its painful to sleep on my back and both my sides. If I sleep on my side the outside of my ear would hurt so much - as if I slept on a rock. I am 36. It this possible? I dont have menstrual cramps or urinary problems like research suggest.
Hopefully this helps th-cam.com/users/shorts4i_El7_EmCY?feature=share
Here is a referral map to hopefully find a doctor who can help you & we are here if you have any other questions www.reviveucc.com/referralmap/
Do you have the tendency to hold more tightly when you hold something?
Due to stiffness in arms?
Did you have any infection in the past or are you genetically disposed to some diseases or did you deal with severe mental or physical trauma or have your lifestyle choices been unhealthy for a long time, which has to do with your nutrition, sleep pattern, activity,exposure to toxins etc,you can also check for nutritional deficiencies or an ongoing disease your body is fighting which is evading detection in the labs.Check for all autoimmune disorders as well as meningitis as well.
Blood tests
Thank you for the video .actually, having fibromyalgia muscle pain so much that I could not exercise, but I found a way with a new technology that awake my inner doctor with the help of redox molecules cells communications in my body now start to work and regenerate…. It works after years I can now stretching without that feeling of inflammation….and join pain is better my gut does not hurt anymore and I can digest better cause I also took an amazing probiotic product…. My blood circulation and immune system start to be restored …If someone want to know more i can help with more informations…
Hi pls help me
Doctor, I was suffering from a crack in the neck and the pain was moving from the neck to the head. Headaches daily, with boils appearing on the scalp and a burning sensation in them and all over my body. When I press on my bones and flesh, I feel pain. Recently, I started feeling cold and I cannot drink medicines. When I drink them, I feel the situation is getting worse. I even had a sleep disorder. I am 27 years old and I am very worried about my health condition and I fear that I will remain like this for the rest of my life. Please answer me. Where is your clinic located? Is there any hope for my recovery? I feel numbness and tingling in my body, especially when movement wher are you doctor help me please
I also have Chari malformation in neck any advice
Best advice is to see an upper cervical doctor. The upper cervical Blair adjustment is safe AND gentle enough and we personally have had patients who have gone through care with Chari. If you are near us, feel free to reach out, if not you can find a referral map on our website to find one closer to you
Www.ReviveUCC.com
Do you help people in Minnesota?
We are located in Pittsburgh, but we have a referral map here: www.ReviveUCC.com/referralmap
Best wishes!
Okay, so I have been getting blood work and they are trying to determine what I have. She thinks fibromyalgia. But mine is more joint spots. Is it not really joints and actually muscles surrounding those joints?
The truth is that it can be both. The alignment of the spine and body has a massive role to play in both the tension of the muscles, but the joints as well. We would love to help. www.reviveucc.com/connect/contact-us/
Can fibromyalgia cause ear fullness, pain tht feels like toothache but it isnt & i feel numbness on my nose….also i hv never slept with pillow in my life so my spine was never bn in a gud position so much pressure on spine, also hv a forhead osteoma can tht cause fibromyalgia?
Very sorry to hear about all these issues. It is hard to say without a proper examination. It sounds like these are all symptoms of a larger problem, and Fibromyalgia is more of a result/symptom and not a cause.
@@ReviveUCC thnk you for info
Umm yes I have exactly all that . On top of joint pains . I was diagnosed by a rheumatologist after ruling out everything else . I have tingling on my nose and parts of my face also and imaginary tooth pain
You can also have infection
Carnivore diet is the answer plain and simple
U look like Ben Affleck
It is such a vague disease. Sounds like I should see a chiropractor.
Does fibromyalgia start suddenly
not in most cases. In most cases people experience a growing list of inexplicable pains throughout their body, and the final diagnosis is often given after other possoble causes are ruled out.
th-cam.com/users/shortsUCponlfYCVQ?feature=share
HELL ON EARTH😢
Feels like the flu.
HARDCORE CARNIVORE UK 🇬🇧
Explore Ayurvedic lifestyle practices alongside Planet Ayurveda products to promote overall well-being for fibromyalgia patients.
Well where in the world are you at sir..please help me
Currently on fire..😢
Sorry to hear that you are "on fire"! Our clinic is in Pittsburgh Pennsylvania. However, if you need someone closer, you can see if we have someone listed on our website: www.ReviveUCC.com/referralmap If no one is listed nearby, you can email drbulow@ReviveUCC.com and ask him to double check for you. One way or another we will do our best to find you the help you are looking for!
It could be a flare up with infection most likely, some antibiotics will work to get rid of that temporary
And you could be allergic to foods?