Living with Gastroparesis and the Symptoms we manage daily.

#AugustGastroparesisAwarenessMonth I share some of my most #debilitating #symptoms of #gp and how I work through them. #Gastroparesis is an #invisiblechronicillness but to those who struggle with this condition? It's definitely NOT invisible to us.
I could talk for hours about what GP has been like for me but for everyone's sake? 😉 I am sharing some of the lows I think many other #GPers may experience as well.
When we know better? We do better. Please share your #gastroparesisexperience and what your struggles are. Together, we can help each other and our #caregivers.
I'll share more tmrw night as I promised. Lastly, I ask PLEASE do the #GPPieFaceChallenge. This is our chance at a cure and for #gpawareness. We want to be #cured not #managed.
Stay strong. Stay healthy. Fight on. You are a #gpwarrior! And, special thanks for those who take care of us. We know it's hard. But, we thank you and speaking for me? I don't think those who have shown up for me? Know exactly how much it means to me but I will die trying to make sure they do. Love to you.
💚,
Me
#paralyzedstomach #digestivetractparalysis #dtp #ici #chronicnausea #vomiting #fatigue #anxiety #preandprobiotics #guthealth #curegp #malnutrition #feedingtubes #spoonie #tubie #gpproblems

[@jondoe4756]

Smoking marijuana has helped me soo much with wanting to throw up.. iknow its unhealthy, but It really helps.

[@ProppahYisrael]

honey I feel everything you said...you just described my life...I am a single mom of six ..most my kids are grown ..I have a 10 yr old with Autism and an 8 year old..it get tough caring for them..ugh😔 I pray alot
#GP

[@trechellemorris]

Thank you so much for sharing your story !! So many of your symptoms I resonated with. I didn’t know what was going on especially as I got older it felt like my body was under attack. I was recently diagnosed with GP after doing test trying to figure out what was going on since birth. I am relieved to get a diagnosis but now it definitely is hard to find the do’s and the don’t’s. I never knew really that I had anxiety but now it’s it at a all time high. It’s like I am scared of food, drinks or even to go out. I have IBS as well and I just feel like I can’t get a break especially after thinking I was crazy for years. Even being told by many doctors to see a psychiatrist. Thank you so much for sharing it helped me to know that there are more people like me out there. Also to give a little hope that I can have some good days maybe 🤔. I have to see what works with my body.

[@christa526]

Thank you and bless you for sharing your story. This is such a lonely and depressing disease. You are so right about the lack of education and the lack of knowledge. Preach sister.

[@tziporahyisrael7254]

Im a mom of a toddler and the guilt I feel about my fatigue is tremendous.

[@sherritrella5283]

Thank you for share your story.i was diagnosed with gastroparesis in Nov 2015 with it.i keep throw up.pain 24/7 going in. And out of er.tired still just feel yuck

[@Brandi98225]

Thank you for sharing your story. I had an endoscopy yesterday and I have undigested food in my stomach the reason they did the endoscopy is because back in April I ended up having to have ER surgery for an ulcer in my upper intesitnes. The Dr. that did the Endoscopy suggested I may have GP. I feel very full all the time, I went from 184 pounds last August to who knows how much I weigh anymore. I feel nausious after eating sometimes it comes and goes. I am always and I mean always tired I practicaly live off of ice cream cause that is all I can totlerate at this time. I have to take anti-Gas meds OTC cause I am always bloated. On top of that I also have Fibromyalgia to. But they are going to have to re-do the test and he suggested a Barum test to see if I do have GP which I pretty much guarntee I do. Excuse my misspellings I normally can type. It sucks what you are going through my hair is falling out but not because of voimting but because I am not getting any nurtion. I am so sorry you are sick but your right you have to keep positive and keep going never give up and never surrender also never let them see you sweat a little joke to make you laugh.

[@devinpeterman2638]

I find people think I am lying about having GP. Mostly because I am over weight. The only one who realy see what I go through is my 17 year old who takes care of me .She is my life saver.

[@suegoeswest]

What are you taking for nausea? Have you tried nortriptyline or remeron?

[@thePhoenixxx1983]

When I was treated poorly by my GP over a long period, experienced many autoimmune challenges and now realize I've experienced a 12 year flare of very serious complications as I have a late stage (received it at age 36) diagnosis of Ehlers-danlos syndrome, it is likely Vascular type which has very high complications even 4 that condition, so I've been turned down 4 life saving surgery now, I learned about something called the Gerson Therapy while looking 4 ways to help myself cope. Even without doing the full therapy, there are parts of it which are esp helpful and deal specifically with assisting motility. I learned about using castor oil and coffee to assist with severe vomiting which nothing helped- I've been in ICU 2 x from the motility complications and my body not accepting food. I've been on cancer meds 4 vomiting assist they did not work- blood flow to my gut is very restricted- I have had a lot of success using NG tube I learned how to use with help from info and people at The Oley Foundation, and with the parts of Gerson therapy, it has allowed me to eat small amts with use of I call them "motility shots' and coffee enemas, which also assist motility and are part of the autoimmune and cancer healing Gerson Therapy. The "motility shot" is as follows, the therapy uses a whole 30 mg castor oil which because I have SMAS and it is also an upper quadrant GI blockage, overwhelms my body, so I've adjusted it to be 1/2 the amt at 15mL:
The Gerson Therapy says to use regular brewed black coffee, which is very hard to brew the exact same, and same gives same results. So to make sure it's the same, I use instant, and I used specifically Nescafe Nespresso, the original instant espresso, in the 1 tsp dose. I use 1/3 c water- more gives a more watery bm- your kidneys have to sort out the pH and the fluids so it assists your kidney to make it this amt -this is like a "motility corrector" it resets the pH of your stomach, duodenum, and strong signal to the kidney to give downward pressure signals or peristalsis, not upper which is vomiting. You measure the coffee with 1 tsp Nescafe nespresso, 1 tsp dark brown sugar -this is a Chinese Medical ingredient and assists blood stagnation so with coffee and castor oil it combines further to get things moving in your gut and awaken your peristalsis signal, 1/3 cup hot as you can tolerate it water, and 15mL castor oil. Mix the coffee and sugar, measure a d pour the oil on top, stir it and take it all at once - fast like a shot. After this youd immediately follow with a coffee enema and within 15 min, motility will absolutely occur if you've prepared things correctly. If you're trying to stop vomiting, just using the oral shit without the enema works, but vomiting is usually due to things not moving all the way out-just another way your body says too much (stuff I cant use) and that's why slow motility sufferers with have fluids releasing like vomiting and watery diarrhea- your body reacts and produces another imbalance to cause itself to purge. The coffee castor oil shot and coffee enema (you use a different type of coffee 4 the enema) is a controlled way to get the stuff out that's causing you to feel unwell. I've been using this to cope 4 over 7 years after my EDS flare couldnt be controlled and the wait and delay for refer of hospital care put me into the ICU twice from low body weight and medical starvation-from recurrent vomiting which caused the weight loss. This is 4 sure a TMI but hoping this info serves you and anyone that finds it as something they didnt know about and can look into as an option since traditional means is often too slow to respond in a helpful way. Peace, love, and light. Sorry 4 long comment but spreading enlightenment and universal love was the goal 💜💖

[@toniprice4394]

i have it to bad