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Hello from Tenn

I see you haven’t been uploading, I hope you’re doing well.

I have been in and out of hospitals for 6 years and ongoing ans i understand your pain and it is hard, very hard!

Diagnosed at 26 in and out of hospitals still trying to manage the disease and i am sorry you have this and you are great! I understand how awful this is, i have not been able to live a healthy life, people bot understanding, the pain of throwing up and not being able to do anything, i have the experience to know how this disease makes it feel like it will destroy you, missing out on life, this ia very hard and i qant you to know how beave you are sharing this story, it crushes you and makes you feel like you are are losing and that you will never make it to the finish line but i have a ateing feeling that you will!!! I have cried after 6 years of not knowing what is wrong and how you wonder how you are going to make it to the next day wondering if waking up and suffering again is even bearable, and how you want to be mad at the world and everything abiut it, windering why, i get it. No i truly do people don't understand this at times and they mock which is unfair even if they don't understand

Hi my name is Barbara, I want to talk to you about my journey I found out about two-and-a-half years ago that I had but before I found out I was always sick for about 3 years. I went to doctors they didn't know what was going on. Until finally one doctor said I want to do a test on you. Then to find out I had gastroparesis. I really was new to it and didn't know what it was so I read up on it. I felt fine on certain days other days it was my off day. The only thing the doctor told me was to go on to a diet and walk. So I did so. So now it's been two and a half years since I found out and it's. And it's getting worse everyday. To the point I can't work. Cuz I'm always sick. People ask me how are you doing. All I say is I'm tired or exhausted. No one understands the pain. I've been called lazy. I quit faking. I don't go many places to stay at home. No one truly understands the least you're going through it. They don't understand it's a daily. Mentally and physically. I listened to your stories and it's like I'm looking in the mirror and listening to my self.

When I was treated poorly by my GP over a long period, experienced many autoimmune challenges and now realize I've experienced a 12 year flare of very serious complications as I have a late stage (received it at age 36) diagnosis of Ehlers-danlos syndrome, it is likely Vascular type which has very high complications even 4 that condition, so I've been turned down 4 life saving surgery now, I learned about something called the Gerson Therapy while looking 4 ways to help myself cope. Even without doing the full therapy, there are parts of it which are esp helpful and deal specifically with assisting motility. I learned about using castor oil and coffee to assist with severe vomiting which nothing helped- I've been in ICU 2 x from the motility complications and my body not accepting food. I've been on cancer meds 4 vomiting assist they did not work- blood flow to my gut is very restricted- I have had a lot of success using NG tube I learned how to use with help from info and people at The Oley Foundation, and with the parts of Gerson therapy, it has allowed me to eat small amts with use of I call them "motility shots' and coffee enemas, which also assist motility and are part of the autoimmune and cancer healing Gerson Therapy. The "motility shot" is as follows, the therapy uses a whole 30 mg castor oil which because I have SMAS and it is also an upper quadrant GI blockage, overwhelms my body, so I've adjusted it to be 1/2 the amt at 15mL: The Gerson Therapy says to use regular brewed black coffee, which is very hard to brew the exact same, and same gives same results. So to make sure it's the same, I use instant, and I used specifically Nescafe Nespresso, the original instant espresso, in the 1 tsp dose. I use 1/3 c water- more gives a more watery bm- your kidneys have to sort out the pH and the fluids so it assists your kidney to make it this amt -this is like a "motility corrector" it resets the pH of your stomach, duodenum, and strong signal to the kidney to give downward pressure signals or peristalsis, not upper which is vomiting. You measure the coffee with 1 tsp Nescafe nespresso, 1 tsp dark brown sugar -this is a Chinese Medical ingredient and assists blood stagnation so with coffee and castor oil it combines further to get things moving in your gut and awaken your peristalsis signal, 1/3 cup hot as you can tolerate it water, and 15mL castor oil. Mix the coffee and sugar, measure a d pour the oil on top, stir it and take it all at once - fast like a shot. After this youd immediately follow with a coffee enema and within 15 min, motility will absolutely occur if you've prepared things correctly. If you're trying to stop vomiting, just using the oral shit without the enema works, but vomiting is usually due to things not moving all the way out-just another way your body says too much (stuff I cant use) and that's why slow motility sufferers with have fluids releasing like vomiting and watery diarrhea- your body reacts and produces another imbalance to cause itself to purge. The coffee castor oil shot and coffee enema (you use a different type of coffee 4 the enema) is a controlled way to get the stuff out that's causing you to feel unwell. I've been using this to cope 4 over 7 years after my EDS flare couldnt be controlled and the wait and delay for refer of hospital care put me into the ICU twice from low body weight and medical starvation-from recurrent vomiting which caused the weight loss. This is 4 sure a TMI but hoping this info serves you and anyone that finds it as something they didnt know about and can look into as an option since traditional means is often too slow to respond in a helpful way. Peace, love, and light. Sorry 4 long comment but spreading enlightenment and universal love was the goal 💜💖

How are you now honey ?? Xxxx

Things I mean lol 😂 chronic fatigue. I love 💕 your videos and get so much from them. Thank you xxxxx

I feel exactly the same. I’m so sorry for you but I can’t forgive myself for not being able to do them. Big hugs xxxxx ❤

I totally understand how you feel. I’m exactly the same flower 🌺 and I’m a talker too. When I’m quiet 🤐 my hubby knows something is wrong. Please make videos when you can as it helps us so much. I’ve just payed and waiting for my thrive supplements too honey xxx 😘 big hugs

I am having my EndoFlip hopefully next month with botox injections. I am so hopeful. My main symptoms are nausea and bloating too. I'm so glad to hear you had good results.

u except this disease that owns you now! Like a crazy ride you just hold on trying your best!

Death is what flairs are like! No help your on your own! I am been eating extremely light but just went crazy last night eating pork chops lol just one but wow and today I am paying for it but new that n just couldn't stop eating for I hardly eat! Either way I will make it for I love Jesus and solely Trust in Him! I am sorry honey know ur not alone! Yes they say all that trying to help you but no answers to fix this! God bless you and all who suffer! We just want them to help us! I want to be left alone though when I suffer I don't want to put it on others for they can do nothing! Of course they can pray which is the best solution yet!

I want pain meds for my flairs so painful left to suffer no help your on your own! Yes GP owns you! If consumes you as you try to fight it daily! I just ate after many days of not eating! Yuck food :( I haven't found one great tip to pass on except miralax I don't care about my friends not understanding I am suffering! They either love you or don't with or without gastroparesis! Good friends stay! Yes mom says I can count my dearest of friends on three fingers n she felt blessed to do so! That is the way for all usually! I have vented myself to death almost for this is all I can do! It doesn't work for me I go to Jesus for healing and help! I love my sweet friends n all friends are used as a sounding board to some degree! Again that is normal no matter what our problem is, we all go to are friends you will get sick of venting n just suck it up quietly like i do no help your left on your own nothing docs give helps!

Thank you so much for sharing your story !! So many of your symptoms I resonated with. I didn’t know what was going on especially as I got older it felt like my body was under attack. I was recently diagnosed with GP after doing test trying to figure out what was going on since birth. I am relieved to get a diagnosis but now it definitely is hard to find the do’s and the don’t’s. I never knew really that I had anxiety but now it’s it at a all time high. It’s like I am scared of food, drinks or even to go out. I have IBS as well and I just feel like I can’t get a break especially after thinking I was crazy for years. Even being told by many doctors to see a psychiatrist. Thank you so much for sharing it helped me to know that there are more people like me out there. Also to give a little hope that I can have some good days maybe 🤔. I have to see what works with my body.

I don’t sleep much either when In a flare like tonight I’m not sleeping yet its 12am I’m usually falling asleep by now I’ve been in a flare for like 2 months started in January

I have not heard from you on here in years I often think of you and pray your well. I was diagnosed in 2018 and since then this disease has progress your day seem like my days now I struggle a lot I pray that you contact me I’ll Postel kind of video to let us know that you’re OK when I first got diagnosed I will watch your videos and they help me out a lot a lot I didn’t understand they just told me that he sick small meals a day take these medication can you tell me that he would get like this please contact me or post a video I pray that you will as can be . God bless you and your family merry Christmas

Please make a updated video to let me us know how you are. I pray your well I’m fighting every day myself god bless each GI Warrior 💚

I have suffered from gastroparesis for eight years nonstop, when you got emotional from finally getting relief, I felt that.

I’m having this done on Tuesday! Thank you so much for this 💚💚💚

Getting mine done on Monday....I've had GP for only 4 months but in that time i lost my job due to being sick too much...

Hang in there GP warriors! There are different paths to relief for all of us. We are strong and we will conquer this! I believe that!

Im a mom of a toddler and the guilt I feel about my fatigue is tremendous.

i have it to bad

Watching this before I have the same procedure! This made me feel so much better. I struggle w gastroparesis and i was so nervous about this!

I lost 2 friends this past summer because of flares and me having to cancel so much. I've also had to give up my business because of chronic illness. Thanks for spreading awareness. ♥️

I like to talk to you if you talk with people, I so so Sick, I hate going to the ER just for being Dyhrated

I like to know more about what meds you take?? I wondering if you tried Reglan, if you don't mind me asking?? I been on @ off for over 2 years, I just finding out now, more about how I got Gastro Paresis , people should REALLY WATCH there meds. They take, too many meds. SLOW Your System way down, I have 2 daughters, my baby helped me right away, You need your family

God Bless you, good luck, I know how you feel, I can't even get out of bed, listening to you, Let's me understand my disease Better, Ty

What did they say, was the Reason you got Gastro Paresis, did you have any operations or a Colonoscopy just before you were Diagnosed with Gastro Paresis

How long have you had Gastro Paresis, I have had it since July 2018, I am Very sick every day @ take Reglan and meds. To help me , but I have Severe now it's September of 2020

I WOULD LOVE TO TALK WITH YOU. GOD KNOWS I NEED YOUR WISDOM IM SCARED I DONT UNDERSTAND WHY IM SO TIRED ALL THE TIME I CANT EAT MUCH NOW . PLEASE CONTACT ME GOD BLESS YOU I PRAY YOUR DOING BETTER CONTACTE ON FACEBOOK AT JODY FORD

I'm waiting to have this you have me hope

I love your videos I can relate to them. I don’t have no one I can talk about this. So I watch some of your videos it feel like I know someone who have the same issue as myself. I would love yo talk to you some how one on one if not I understand ty and god bless you 🙏🏽

I’m having my procedure this Wednesday and hope it works, I either vomit or am nausea daily n it’s ruined my teeth.

honey I feel everything you said...you just described my life...I am a single mom of six ..most my kids are grown ..I have a 10 yr old with Autism and an 8 year old..it get tough caring for them..ugh😔 I pray alot #GP

I can related to this message so much. I going through it . It’s hRd I have no one to talk to. If some how this reach you . Please contact me. I need someone who understands and who is going though the same thing. God bless you 🙏🏽

I getting mines Done on November 20th I Hope 🤞🏽 I get Good results 😀I’m so glad for your testimonys

I've had this problem for 5 1/2 yrs now. I had 2/3 of my stomach removed due to cancer. With that being said I thought all my problems and being nausea was due to that. I found out 3 weeks ago that it's was a spastic piloric. They did the upper GI and inflated a balloon which opened the piloric. I had taste buds again, not sick all the time, and was able to eat, it lasted 5 days. This Friday I'm having the Botox of the piloric. I'm looking forward to being back to taste buds and not being sick all the time.

Smoking marijuana has helped me soo much with wanting to throw up.. iknow its unhealthy, but It really helps.

I also have Gastroparesis as a result of a medical malpractice. I understand your frustration because my condition is severe. What I did was to go to the Cleveland Clinic to get the POP procedure and I’ve had a great improvement (no vomits, sleeping well, now I fell hungry and I hear the movement of my stomach). What I know is the Botox is just temporary and you feel relief just for few days but if Botox works fine those few days. The POP procedure could be a good alternative for you. Regards and Blessings.

Thank you hun for sharing a life changing story. You have given me enormous hope. I'll let you know how mine goes and I get what you've been through. So incredibly brave. Amen to you Sister from NZ xx

Hey, can I please talk to you, or anyone about this condition?? My girlfriend suffers from this plus other illnesses and I'm clueless, helpless and would just like to talk to someone thanks

I’m Having A Procedure Called The POEM On Next Week. When I 1st Was Told About It, I Was Apprehensive, BUT After So Many Other Measures Of Trying To DEAL COOE & LIVE WithH GP I Figure I Have Nothing Else To Loose. With Courage & Strength WE Will Get Through This! 🙏🏾❤️

Have you heard of the GPOEM procedure?

Thank you and bless you for sharing your story. This is such a lonely and depressing disease. You are so right about the lack of education and the lack of knowledge. Preach sister.

Thank you for sharing from the heart. It is obviously quite an emotional journey. You are right, a little kindness goes a long way and what good is wealth without health?! May you experience a true and lasting healing. God bless.

Please watch this clip and subscribe. My wife has been dealing with the same thing since October 2018. Thank you for your videos it really helped me with my research. th-cam.com/video/mMAjNOlYc8o/w-d-xo.html

THANK YOU FOR THIS VIDEO. PLEASE WATCH THIS VIDEO! MY WIFE IS DEALING WITH THE SAME THING. th-cam.com/video/ncrw2DUfdfA/w-d-xo.html

I having the same thing done. Been sick for almost a year and half now. It has been really depressing. I will be following your channel! I am have so worried about getting this done. You have helped me to feel a little better about this.