Cancer Survivor Story: My Successful Targeted Therapy Treatment | Ashley's Story (2 of 3)
ฝัง
- เผยแพร่เมื่อ 8 ก.ค. 2024
- In this segment, Ashley shares how she was able to land on a newly FDA-approved targeted treatment (osimertinib or Tagrisso) that allowed her to skip chemotherapy through an IV at the hospital and instead, take a daily pill. She shares how she was able to get such a new drug approved through her insurance, her follow-up schedule with her oncologist, and delves also into the side effects and how she’s been able to get through them as best as she can every day.
Navigation → see below for time codes to different subsections.
In this Series: Our 3-part series with Ashley covers her from how she got diagnosed, to the targeted therapy that had just been approved for her cancer subtype and genetic mutation (EGFR+ T790M) that allowed her to take a pill (osimertinib or Tagrisso) instead of traditional chemotherapy, through how she lives with her incurable but treatable disease.
Full story & transcript →www.thepatientstory.com/patie...
The interview has only been edited for clarity.
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Contents of this video:
0:00 - Intro: Treatment & Testing
0:57 - Describe the scan of your lungs
1:59 - Deciding where to get treatment
4:48 - The Genomic Testing
11:42 - Targeted Therapy (osimertinib) Schedule
13:07 - Dealing with side effects
21:45 - Giving yourself Grace
25:28 - Experience of brand new treatment
31:49 - Monitoring schedule with oncologist
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#LungCancer #Cancer #ThePatientStory
#egfr #genomictesting #clinicaltrials #targetedtherapy #osimertinib #tagrisso #astrazeneca
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Taking Tigrisso for almost 3years doing very well no side affects
this is so expensive. were you able to get at a cheaper cost? i'll lost fortune buying this tagrisso.
Today is my birthday and I am sooooooooo blessed to celebrate it.
Last years this time I had a cough that would not go away and felt sooooooooo weak. I thought I had pneumonia or long Covid. After a Chest XRAY, C.T., Lung Biopsy turns out I had Stage IV Lung
Cancer.
I have been taking Tagrisso since April 2022 and right now so far no serious side effects.
I try not to think too much of my diagnosis because that would make me depressed or anxious but instead try to thank God every day I'm still alive so instead enjoy every day with family and friends.
My hero.
I am glad you pointed out that we may appear fine to others, but we are actually not okay and fighting stage 4 cancer
As a new Tagriso patient I am so thankful for this video. Very helpful!!
Douglas, so glad this was helpful! Best of wishes on your treatment :). -Stephanie
I am taking tagrisso for 2 months now..I started July 23,2022..this is the drug my oncologist given to me so far I have more energy and good appetite. Before the treatment I have no energy. I am very lucky I can tolerated this drug with only minimal adverse reactions..thank god.I agreed on the video sometimes I felt exhausted but I make sure I take rest..i make sure I stayed hydrated to flushed all the toxin from my body.I drink organic coconut juice and add some sparkling water they taste so good. Coconut water is a high source natural electrolyte with less sugar..Diet I cut back my sugar intake ..so far tagrisso is working good for me...will give some update next time .
Hope you are doing well.
Thank you for sharing Ashley . I just got diagnosed and this is really helpful . Stephanie you are asking all the right questions that I also have and you are so compassionate you get the patients to share this valuable information. Thank you and my God bless us all .
Yvette, I am so sorry to hear about your diagnosis. Thinking of you as you go through this - and wishing you get the best care you deserve. ❤️ -Stephanie
My husband takes Tagrisso for only two months but he already notices when he is dehydrated. You are doing so well.
Thank you for sharing! I’ve been on Tagrisso since May…hearing your story gives me so much hope. I’ve been off of Facebook for 2 years…might have to sign up again for the support group! 😍
Thank you so much for this video l have been on Giotrif for 3 year's, and as, it has stopped working, l started Tagriso today.
So you have both given me my husband and children a lot of hope. ☺️😘 Thank you once again for all your hard work 😉
Nice to see you back dear Ashley
Pleased you are doing well
Hugs
I am so sorry for the way you diagnosis was given to you! Just some perspective though - as awful as it feels when you’re the patient doctors who work with cancer patients have to give devastating news a bunch of times every day and if they don’t keep a certain degree of emotional distance they’ll burn out really fast. And if they burn out then there’ll be nobody left to care for cancer patients. So be assured that your doctor likely cared much more than he let on.
Feeling fatigued is very helpful to know
Thank you helpful, thankful for discovering biomarkers and targeted therapy.
God bless stay strong.😎💚
I have egfr mutuaion and on the same drug since november it is both lungs but bigger in right and three small in left mine a now smaller in size good luck my treatment at my hospital in queensland australia has been wonderful
Been on Tagrisso for 5 days and I do feel fatigue at times but am happy for pills instead of infusion therapy.
Been on tagrisso two and a half years now side effects sure 😃 but doing well stage four lung cancer
Three years on tagriss9 and in r emission nine months stage four original diagnosis during COVID-19 was in hospital sixteen days had chemotherapy and radiation doing ok
So good I take it too
Would love to know how Ashley is doing today.
Sorry taking tagrisso for 5 weeks now
It must be a powerful drug to combat cancer.. that’s probably why you feel so tired.
I got diagnosed about a month ago. Test say I have the EGFR mutation, and I'm supposed to start Tagrisso next week. I worried about side effects and the way quality of life, ability to stay active, will be impacted.
Been taking Tagrisso for about a year.
Don't waste your time worrying about side effects or your diagnosis
Just enjoy your life.
Treat each day as a gift. That's why it's called "the present"
Is Ashly still living ?
❤❤❤❤
Please let me know people if you can see my comment? I have been leaving comments and it seems that many are unable to view my comments for some reason
Been on it for one year nine months thx b to God
Tagrisso didn’t work for my mother made her terribly sick and she died
1:54
Why do some people put on weight and others end up terribly thin.
For the love of god why can’t these be uploaded as just one long video
This channels videos even got way more Views when it was one video
Thanks for the feedback! We have to take in all feedback and actually got more requests to break these down into segments so that they were more specific to people's questions/searches. We can try to do a better job of making sure the right video plays right after and/or linking better. If you have other thoughts, we'd love to hear them in detail (support@thepatientstory.com).
Its usually not an issue when the videos are broken up, but more and more it seems to be difficult to find the next video in a series.
@@delinquense I agree! I’ve stopped watching because of it. I wish the channel would take this into consideration- I’ve commented multiple times
Is she still alive ???
Yes, it seems her facebook account has been updated with new videos of her sharing beauty tips.
@@loveguitar07 could you share her Facebook account, I can’t find it?