Unexplained Hip Pain - Theresa | Multiple Myeloma | The Patient Story
ฝัง
- เผยแพร่เมื่อ 28 มี.ค. 2024
- Theresa was diagnosed with multiple myeloma in 2012 after months of unexplained and worsening pain in her right hip. In this cancer vlog, she shares her frustrating journey getting bounced between doctors as she struggled with increasing pain, fatigue and needing a cane, before finally receiving the shocking myeloma diagnosis.
She opens up about processing this incurable blood cancer and the emotional process of coming to terms with it. She recounts the challenges of finding the right treatment plan, going through multiple rounds of chemotherapy, debilitating side effects and eventually being put on a clinical trial with selinexor.
#cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #multiplemyeloma #myeloma #bloodcancer #mmsm #cancersymptoms #selinexor
The Patient Story:
The Patient Story is led by a dedicated team of medical, editorial, and video experts, committed to authentically portraying the cancer patient experience. Sharing your story holds transformative power, culturally and personally. We handle each narrative with utmost care, compassion, and scientific rigor.
Our editorial process adheres to the highest journalistic standards, ensuring medically researched, vetted, and fact-checked content. Backed by experienced medical professionals, we offer insights into the latest medical advancements.
Beyond patient narratives, we provide comprehensive coverage of cancer news and medical resources. From symptoms to clinical trials, insurance, finances, and support groups, we offer guidance in a humanized manner.
Join Our Community:
Sign up for our FREE website: thepatientstory.com/
Facebook: / thepatientstory
Instagram: / thepatientstory
Twitter: / patient_story
Tik Tok: / patientstory
The interview has only been edited for clarity. The interview has only been edited for clarity.
Thank you to Karyopharm Therapeutics for its support of our patient education program!
The Patient Story retains full editorial control over all content.
Thank you all for your kind remarks. ❤❤❤ Hang in there everyone!
Very inspirational person, can we all agree the cutest?!! The light you shine is a beacon to others and that in and of itself is healing to all. Hugs and keep on rockin life like you always have.
Thank you so much. I am doing the best I am able.
What a lovely lady. Truly good through & through with a very supportive loving husband. Bless you two
My Mother had this cancer. She was diagnosed 1987 and she had a lot of treatments, and blood transfusion multiple times, but sadly she passed away in april 1996. I was then 31 years old, and I was 21 when she got sick.
It's a horrible cancer, slow, but my Mother had so much pain and had really bad fatigue. When she passed, it was so sad, but at the same time a relief for her to not have this horrible pain. I miss her every day 😢❤
🫂🕊️🙏❤️🕯️
Bless you! I’m sorry she went through that.
@@mellimel1174thank You ❤️
@@ElephantsRock19 thank You ❤️
My faher died in May 1996 after just 2 years with Myeloma
Love her sense of humor--I can tell she's a firecracker and living in the moment. We could definitely hang out.
Theresa, I also have kappa light chain multiple myeloma -- since 2010. I am surprised that seemingly at no point were you given bisphosphenate injections (e.g., Zometa) to help build up bone strength.[[I was on monthly bisphosphenate for 2 years]. But if your hematologist saw no need, then that is fine (especially because the bisphosphenate can have strong side effect of fatigue). The dexamethasone for me caused notable weight gain. I believe that it is less needed than some other medicines. The first medicine that my hematologist "weaned" me off of was dexamethasone.
After diagnosis, I started with Revlimid and dexamethasone. This brought the count of cancer cells in my body down by 40% or so. Then I was put on Velcade, which brought the count of cancer cells to near zero, which it has remained for several years. [I would guess 9 years now]. I only see the hematologist twice a year now.
*I commend you for your efforts to advance medical science and help provide better cures through your participation in clinical trials.* (I never found one that was right for my particular circumstances)
*Good luck to you and your fine, supportive husband.*
Congratulations on your healing journey 🙏
I also have multiple myeloma with severe bone involvement. I have been reluctant to do the bisphosphonate treatment but will have to now; can you please share how you felt on this bone treatment? Any bad side effects?
@@emmanuelking9988 The primary side effect that I noticed was sharp fatigue for 3 days (and feeling a little foggy) or so after the administration of the bisphosphonate. I was told that this could be reduced a bit if one swallowed an acetaminophen tablet just prior to the injection of the drug. This worked a little for me.
Having stated all this about the side effects, let me state that *I do believe that the bisphosphonate does in fact strengthen bones notably weakened (eroded) by the cancer cells. One can get through the injection okay.*
Finally, I just point out that if you anticipate dental surgery or have dental problems, mention this to the doctor. Certain types of oral surgery should not be done to people undergoing the bisphosphonate treatment. Good luck.
I did get Zometa for around two years. I guess it did not make the cut in the video. It is listed on the timeline on the actual Patient Story website. Yes Dex is evil. I gained weight too for a while. We reduced the amount to minimum anytime I needed it. Any of you out there tell your doctor about the side effects and he or she may reduce the dose for you depending. I am so glad your remission is so wonderful. Good luck to you as well. I am so lucky to have my husband!!!
@@emmanuelking9988 I don't remember any specific bad side effects from the Zometa. That said, it can cause jaw bone problems. If you follow directions and have good dental hygiene it likely will not be a problem. Speak with your doctor about this. One does not need to stay on it for more that 2 years. It has a @ 10 year half life.
Encouraging story. Stay blessed!
I also have the same type of multiple myeloma she has, so her journey has really resonated with me. Lovely lady, may God continue to heal her 🙏🌹
I was told about my cancer diagnosis from a medical assistant! I was shocked and angry. It was so upsetting not to hear from a doctor or even an RN. But I prevailed and survived. I’m glad you made it so far! Good for you for taking care of yourself!
Who really cares who tells you as long as they're giving you treatment? Either way, you still have it. Whoever has the most free time should tell you.
. That's like your mother in law telling you your husband wants a divorce! Yeah it matters, it's careless.
You were shocked and angry about the person who told you that you had cancer?!?!? Why does that even matter?🤷🏼♀️
@@luminacosmosa2324hardly.
@@Hollyucinogen, I certainly don’t agree with you… there are lots of questions you may have and a Dr. should be the one to tell you…
🙏 ❤️ 🙏
For You & All
Always & Forever
My beautiful lady ❤I hope the best for you 🙏🙏🙏
God bless you!!
What a strong woman you are…. an inspiration to all 🙏🏼🙏🏼
Thank you for sharing! You look great! Would've never known you hv been through all that you said. You look the picture of health. Hoping it doesn't return. My family & I are going through related cancer & it is hard. Hugs & support your way!!
Support to you as well. As a T-shirt given to me by a friend says: Cancer Sucks.
Best Wishes to you, mame. Thank you for sharing your story.
I have had right hip pain a long time. Hand joint pain. Strange ache in femur bone. I tell the doctor and the blood tests and X-rays don’t show anything. I don’t know why I have to press the doctors to look into things more and/or take some biopsies. Especially in today’s age, when cancers are increasing, you’d think the doctor would want to be extremely proactive.
This was so very much appreciated. Thank you❤
My husband has the same cancer so I know what you guys going through ❤❤
I was recently diagnosed with multiple myeloma by an oncologist at the Mayo Clinic. I saw an oncologist where I live and he confirmed the diagnosis. I saw a second oncologist where I live and he said there was nothing wrong with me. This is the first story I have read that is similar to mine. The doctors would not listen to me.
Did your second local doctor review your biopsy or scans?
No, he did not. He took blood. My calcium is 12.5. He completely ignored my symptoms of severe bone pain in my hip area, my rib cage, left calf and foot. He didn't answer any of my questions. It was extremely frustrating. @@mellimel1174
My dad was repeatedly told their was nothing wrong with him ,until he went through the ER where the doctor finally diagnosed him with Multiple Myeloma and he died a month later. Doctors need to learn to listen.
You must see a myeloma specialist. You may not have an active case but it likely will advance. ALWAYS fight for yourself. Or bring a friend/relative. If your doctor does not listen, go to another one. Good luck.
I am currently a patient at the Mayo Clinic in Phoenix AZ.@@TheresaTimpson
After beating Breast Cancer, then learning I have a second non related precancer. But it's at10% already and now terrible Anemia, having already broke a bone I probably have progressed to active Cancer. I have decided I don't want to receive treatments that will make me sicker since it's all about managing this. I simply can't go through more chemo or radiation.
I had no symptoms. A large plasmacytoma was found on my sacrum and it snowballed from there, recently had a stem cell transplant and doing fine.
Doctor recently found a plasmacytoma in my sacrum. Will start treatments soon. Tell me more about the stem cell transplant. Is that immunotherapy?
@@joheming801 sorry to read about your illness. While I was going though the transplant it was hell. But I'm glad I did. There are so many good videos on TH-cam about it. Look them up.
I've seen a video that sqys that biospecific antibodies are perhaps the hope for a cure. That treatment is being given as the first treatment in many patients now. I hope it works for you. Good luck and God bless.
Sounds like what im gy through! Im taking motrin Tylenol Advil for my hip ! Been to an orthopedic doc nobody's knows! In the mean time im killing my liver and kidneys
Exodus 15:26,
Matthew 4:23-24,
cancer feeds on (eats ) sugar
and processed foods,
🤍
Doesn't make any sense why blood tests didn't reveal Multiple Myeloma, there are 18 different readings in a blood chemistry profile that would show numbers consistent with Myeloma
The composition of a routine biochemistry screen will likely vary from lab to lab, so please don't blame the labs - their panel may not routinely include the appropriate tests to diagnose something like this.
@@JT1358 Strongly disagree, Platelets, WBC, RBC are standard for even the cheapest blood tests--Also, other readings are Calcium,Protein, A/G Ratio, Total Globulin, Serum Albumin,Sodium, BUN/Creatine Ratio, Creatine, Hemocrit, Hemoglobin, Immature Grans, Monocytes, MCH, MCV,RDW, Lymphs--This isn't the 1950's
@@Whatt787 could you tell me what the levels would be to show cancer in the blood tests? I have been sick for 6 months with no answers and I'm trying to figure out what is going on with my body. I have had multiple blood tests done with the results all over the place. Everytime I go to the ER a different organ is inflammed. It is so hard to find a Dr. that wants to help get to the bottom of things.
@@bearytalebear Doctors determine Myeloma by several different readings, not just one--A RBC level below 3.3, WBC below 3.0, Hemoglobin below 12, Hemocrit below 40, Platelets below 100, MCV below 80, MCH below 25,RDW below 11,Calcium above 11, A/G ratio below 1.2,Sodium below 130, Absolute Monocytes above 1.0, Albumin below 3.0, Protein above 9--all of these are consistent with Myeloma--Also, Protein in the urine--Frequently, Anemia is the first sign of Myeloma
@@Whatt787 thank you so much. If you have a spare minute, could I ask your opinion about lab results? If it points towards anything?
WBC 14.2, MPV 11.3, albumin 4.9, A/G ratio 2.9, chloride 111, co2 22, glucose 107, %Band 9, Lymphocyte 2, Band Absolute 1.3, Neutrophil 88, Monocyte 2, ASEG 12.5, Lymphocyte Absolute 0.3. If you have the time. Thank you in advance.
Glad you're ok.
But in my opinion if I was given the news of an illness like cancer of any kind. I'd get my affairs in order, make my peace with God & let go. I can even imagine putting loved ones thru the agony of them giving up their life to care for me & watch me die a long dreadful death. Plus the medical expenses & sadness for my husband. I just don't want anyone to feel like I'm a burden. 😢
If I did that I would be dead 10 years ago and would have missed so much life. A long death can be dreadful, but not all recovery is awful or drawn out. Education is key. I hope I know and have the strength to know when my time is up. Until then I have to keep my feet on the sunny side of the street.
“Cancer of any kind”? Not all cancers result in a long dreadful death. Yes, many do, but many more can be treated successfully. In any case, no one can know what they would do until they’re actually confronted with it.
I had uterine cancer 10 years ago. I had chemotherapy, surgery and radiation. I have yearly checkups and have not had a reoccurrence……
No one has given up their life to care for me and watch me die a long and painful death..
I bet she didn't do intermittent fasting and consumed highly-processed foods/ drinks such as refined carbohydrates, because she looks bloated
Probably just living life like everyone else. She didn’t ask for this. I hope God heals her.
@@Laura-hy6bu Cultural foods and drinks have been badly affecting some people's health
Of all the things you could’ve said, this is what you chose? Keep quiet, your judgement isn’t needed.
@@user-jk4ck9vw9p The comment isn't a judgement, but an advice for other people to prevent cancer
@@containedhurricanemaybe keep your troll opinions to yourself?
God bless you @lorraineamicothemakeupartist