Jack And Amy's Bartonellosis Success Story | Cat Scratch, Bartonella Treatment, Dysautonomia, & More
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- เผยแพร่เมื่อ 8 ก.ค. 2024
- Jack was a healthy 11-year-old boy, until a stray kitten scratch turned his life and his family's life upside down. Jack and his mother, Amy, tell their story of their fight to regain his health. Jack endured many painful and uncomfortable symptoms: extreme fatigue, joint pain, tendonitis, abdominal pain, osteolytic lesions, anxiety, uveitis, brain fog, dysautonomia in the form of postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome, and striae. Jack saw over 30 doctors across 19 different specialties. He was misdiagnosed with many illnesses, including Lyme disease and an infection with Babesia. When he started antibiotic therapy for bartonellosis, he began to heal and has recently returned to high school for his senior year.
As a result of her family's immense hardship and heartache, Amy started her 501(c)(3) non-profit called Louisiana One Health in Action (LOHA). One Health is an initiative that recognizes the health of humans, animals, and the environment are inextricably linked. The mission of LOHA is to put the "One Health Initiative into action so as to raise public awareness and foster a collaborative mindset and openness among human, animal, and environmental health professions. [They] also will help provide and organize opportunities allowing medical professionals and other One Health advocates to further the initiative and involve local communities. All proceeds will go to raising awareness and supporting One Health issues, advancing research, and/or improving testing and treatments." To learn more, visit: www.louisianaonehealthinactio...
→ SHOP MY MERCH HERE: bartonella-babe.creator-sprin...
✩ Thank you for supporting my hard work and my channel!
✩ 25% of all proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. To donate directly to the Bartonella Project, donate via this link through the Bartonella/Vector Borne Disease Research Fund:
securelb.imodules.com/s/1209/...
0:00 Jack's cat scratch
2:30 Initial illness and symptoms
4:18 High EBV titers, mononucleosis misdiagnosis
5:40 Autoimmune dysautonomia diagnosis
6:38 Negative ANA but other positive auto-antibodies
7:31 Upper abdominal pain, nerve blocks
11:05 Dysautonomia/POTS symptoms and testing
15:05 Possible vector exposure
15:42 Misdiagnosis of Lyme and Babesia
16:21 Lymphocytoma after starting antibiotics
17:34 Managing school and peers
20:32 Hospitalization, IVIG, physical therapy
25:02 Osteolytic lesion, rheumatologists, negative infectious disease tests
26:38 Intensive PT and aquatic therapy
28:11 Joint pain, striae-like lesions, bone marrow inflammation
31:34 Clarithromycin and rifampin
32:20 Emotional aspects
36:04 Meeting Dr. Mozayeni
38:36 Switch to rifabutin, titration, "Herxing," healing
41:16 Resistant strain in Mississippi corridor?
41:43 Tlab confocal microscopy Bartonella test
43:01 Friendship, passing time
45:33 3 rifabutin as a single dose, uveitis
52:08 Feeling better, running! negative TLab tests
55:05 Galaxy's digital droplet PCR (ddPCR)
56:04 Mast cell activation syndrome (MCAS), B12
57:30 Magnesium, Zoloft, diet
58:57 Striae-like lesions, pictures
1:01:00 Buhner's herbs
1:02:40 Future plans, keeping hope, some tears!
1:07:40 Amy's Louisiana One Health in Action non-profit
Links mentioned:
Case report, woman with bartonellosis treating with clindamycin:
Mozayeni, B. R., Maggi, R. G., Bradley, J. M., & Breitschwerdt, E. B. (2018). Rheumatological presentation of Bartonella koehlerae and Bartonella henselae bacteremias: A case report. Medicine, 97(17).
www.ncbi.nlm.nih.gov/pmc/arti...
Understanding Bartonella Webinar:
• Understanding Bartonel...
Magnesium is a mast cell stabilizer and many people are deficient in magnesium. Learn more here: ods.od.nih.gov/factsheets/Mag...
Best diagnostic testing:
www.galaxydx.com
Dr. B. Robert Mozayeni's research use only confocal laser scanning microscope with fluorescent tags for Bartonella henselae:
www.tlabdx.com/
BREAKING DOWN BARTONELLA Facebook educational/support group:
/ 1104493829902071
Instagram: @bartonella_babe / bartonella_babe
Facebook: bartonellababe
Inquiries: jakethebartonellababe@gmail.com
Podcast with Dr. Bob Mozayeni and Dr. Ed Breitschwerdt:
tmgmd.com/907-ticks-fleas-mys...
Mast Cell Activation Resources:
tmsforacure.org/
www.mastattack.org/
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→ SHOP MY MERCH HERE: bartonella-babe.creator-spring.com
✩ Thank you for supporting my hard work and my channel!
✩ 25% of all proceeds go to the Bartonella Project at the North Carolina State University College of Veterinary Medicine. To donate directly to the Bartonella Project donate via this link through the Bartonella/Vector Borne Disease Research Fund:
securelb.imodules.com/s/1209/giving/plain.aspx?sid=1209&gid=214&pgid=3813&cid=6343&appealcode=LB000278&dids=3869&bledit=1&sort=1&fid=6343
I've cried harder than I knew that I could. Thank you all so much for giving me the feeling of not being completely alone for a while.
Jack's story is all of our stories.... god bless him and his mother. You won because you refused to give up. Good for you.
I'm happy for anyone that get the right help and gets better from any of these tick diseases and or environmental illnesses because I still don't know where to begin still and don't have the energy to do anything.
Not many moms would put their heart and soul into medical research of their kids illness, she is something special
Agree!
Wow! Three beautiful determined people making miracles ❤🎉
excellent interview - wonderful interviewer, nice style, great questions - God bless this mom for finding out so much, she is more of an expert than many doctors
That she is! And she takes that expertise into her advocacy work
Hi! Someone on the Healingwell Lyme forum just posted about this video, so I watched it. This is a fantastic video! Thank you so much for putting this on TH-cam. I am not on F’book, so I don’t have access to those groups. So thankful that Jack is getting his life and health back! Amy, you are a rock of a mom and an amazing person! The lady conducting the interview did an excellent job. Very well done👍. God bless you all🙏
Thank you so much for watching! And yes Amy never gave up and Jack is so lucky that Amy is his mom. Make sure to check out the other interviews and “edutainment” videos on Bartonella on my channel 😉
Wow God is good glad he’s feeling better and thanks to Jake for this video also give it up for the mom! Jesus! Thank you. 💜🙏
Yes! Amy did not freaking give up! Jack is very lucky in that regard. Maybe not so lucky with that cat scratch 🥴
I’m surprised doctors couldn’t pick it up. We need better ways to diagnose these diseases. There are so many who probably haven’t been diagnosed properly.
My 12 year old daughter and I both have suffered through Bartonella due to a car scratch. Horrible headaches, very large, swollen and painful lymph nodes in the neck and fatigue. My daughter is much better. I took her to the Dr for what looked like an absess on her eyelid. Turns out it was actually where she was scratched by one of our new kittens (we had 6 cats at the time, 3 of them being newborn kittens). I am still fairly sick. Our Physician was not educated about Bartonella so she spoke with a pediatric infectious disease specialist after a full round of Clindamycin, a very strong antibiotic. The specialist sent in a script for Doxycycline and that did the trick. I just started the same medication and am praying for some relief soon. Bartonella is such an unknown disease and it’s nice to know we are not the only ones who suffer from this.
So sorry to hear of your family's struggles but it sounds like you got onto therapy pretty quickly, which I think can make the healing process a little easier. Chronic bartonellosis is not recognized by mainstream medicine and is so difficult to treat for many reasons but there is hope!
Amazing story Im happy for them. I got sick when I was 24 I’m now 26 and just found out two months ago I have bartonella after being told I didnt have anything. Currently on meds so fingers crossed 🤞
Jack and Amy, thanks for sharing your story. Keep up the good work!
This is amazing. Thanks for putting this up Jake!
Glad you enjoyed it!
Yes 👍
My PCP thinks Only children suffer from Bartonellosis
Such a great interview. I suffer bart and see the other Lyme doctor in Louisiana. I also use Buhners book. Appreciate you sharing Prayers for more research and cure.
Sorry to hear you're suffering from Bartonella but I'm glad you appreciated this interview. Amy is doing great work to get more research for Bartonella. Wishing you health ASAP
@@BartonellaBabe you as well honey. God bless and heal you asap. The mcas and the bartonella. I pray you will be out there enjoying your life to the fullest real soon!!
Ahhh wow! Jack's story is heart touching, what a journey, and he looks so healthy and happy now, so great to see! :) I have been dealing with, undiagnosable health symptoms since I was a child, and I was also scratched by a stray cat, at age 6, bit by a dog, etc. it feels sooo likely that I have been dealing with this Bartonella H. bacteria, I am so grateful to finally be getting some answers, thank you god! I am wondering, if you know of any specialist doctors on the West Coast, that would be good to go and see to assist me in diagnosing this, I know diagnoses and testing can be quite challenging at times, does anyone know of a good doctor on the West Coast? I am in CA. Thank you all so much, Visualizing healing for all of us, and around this issue!
Was very helpful to watch this. Thank you
Can I ask what the most helpful parts were so I can continue incorporate them in my future interviews?
@@BartonellaBabe I just found hearing about someone else's experience with bartonellosis and getting through it to be a morale boost.
@@jasonkeck3438 thank you! More to come in the future then :)
@@BartonellaBabe it really helped my mom and I too. Thank you for making these videos Jake! This was wonderfully done everything was inspiring and comforting to hear how it can get better even after so much
@@kristenjohansson3084 aww I’m so glad it helped you and your mom! It’s so hard to hold onto hope sometimes but Jack came through the other side after quite a ride (that rhymes) so we know it’s possible. Thanks for watching ❤️
Yes “invisible illness”
Thanks so much Bart Babe and Amy and Jack for sharing........we have been dealing with bart for 6 yrs....I would like to chit chat with you regarding this.......
Hi Janice! Glad you found this video helpful. I am pretty sure you're in out Breaking Down Bartonella Facebook group. I'm one of the admin and you can find me there
I sure hope this young lady is doing well.
Jake....you doing well?
Just rewatching this as I wait for my TLab results and try to remain hopeful. It is giving me the dose of hope I need, so thanks! Also, I have decided that your celebrity lookalike is Lily Collins!
You know what’s funny? I had never gotten that until Roger/Andrew from our group told me that and then the front desk woman from my doctor’s office and now you! A few months ago, I contoured my nose, cheeks, and lips to look more like hers and brought my eyebrows in a bit and it was weird (and fun!) When I used to die my hair blond, I would get Hayden Panettiere. Hoping for some clarity from your Tlab test!
@@BartonellaBabe Jake in Paris! hahah. Thank youuu! Sent it in last week, and I'm like, "Has it been 3.5 weeks yet?"
Hahaha I died at Jake in Paris. I could go for kissing that hot guy lol. I know it’s going to be a long three weeks
Hey, how does one get that test done these days? Is it only certain docs that have early relationships there? The site looks really basic.
Any doctor can order a test from them. Best to call/email them any questions. If you’re in our Facebook group, someone might be able to answer your questions who has had their doctor order recently
Great job putting out these videos really really helpful. I do wish there were more details on the exact treatment esp. in regards to dosing.
I've been using the biaxin rifampin combo with methylene blue to very encouraging results so far at 4 months.
Thank you so much for watching. Are you part of our Breaking Down Bartonella FB group? Lots of info there and people talking about dosaging etc. I know some people really hate FB but you could make one just for the group. Glad to hear you're making progress!!
@@BartonellaBabeok thanks for the info! I might have to join. I've tried to avoid social media with this illness it was too demoralizing and the vibe is always so black.
@@shredgnar I understand. We try to keep the vibe primarily educational and as positive as possible
I have to second that FB groups can be really helpful…the only reason I use FB is for the Lyme Warrior group. I too despise social media so of course if it’s not right for you I totally understand that.
Iv had this for over 30 years a few years ago l got tested by a homeopath and tested positive for Lyme rocky mountain spotted fever. UK tests were negative. Atm l can't walk. I have never been believed. There's no proper testing nor can l find or afford treatment. I'm a single mum iv tried many things. I had to give up work as a nurse over 20 years ago. My children are sick too l have no way to beat this and as no one has ever believed me l have no support iv been on Lyme disease support groups before and l can't afford it the NHS don't want to know me they treat me like a leper so l just live with it. I hate it pain in my feet makes me cry my knees hurt it's relentless it's got worse over the years
Hi bart babe! Looking good keep up the good work 😉thanks for putting these vidz out. I just found out i have Bartonella, im not the biggest fan of antibiotics but i know they might be Necessary for something like this but I would like to try the natural route first. Do you know what would be the strongest herbs to tackle this? Im heading to LymeStop next week if that don’t work im going to try the herbs then if neither of those plans work out i plan on hitting it hard with the antibiotics. Whitch are the strongest for this infection?
I'm no expert on herbs but lots of people try Buhner's herbs or some modification of his protocol. I guess I would say I hear the most about Japanese Knotweed and Sida Acuta. Dr. M is also using Allimed (allicin extract from garlic) with success in some patients. As far as antibiotics go, I plan on doing what Jack did in this video, which is Dr. M's protocol. If you want to hear more about other people's experiences with herbs, I suggest you join our Breaking Down Bartonella Facebook group
Have you read Buhners book on Bartonella? It’s called Healing Lyme Co-infections: Bartonella and Mycoplasma. All the supplements and herbs are in there with doses.
Hola..muy interesante!! Tenemos esperanza !! Yo tengo lyme , bartonella, y me causan mielitis trasversa.. me dejo en silla de ruedas..😊
Lo lamento. Se avecinan más investigaciones sobre Bartonella!
❤❤❤❤
Thank You for your Work and sharing the videos with us!
2). “Susan” is my alias
3) Amy is so knowledgeable
4 ??
Noted Jack was asked about getting around in a wheelchair and he indicated that he didn’t actually use one so ~ how soon in Bartonellosis can mod of us anticipate needing a wheelchair?
Hi Susan. I would say most people with bartonellosis don't end up needing a wheelchair unless pain or fatigue is so bad that they can't walk
He did actually use a wheelchair, just not at school. That's what he meant by that in the context of that statement. He was homebound from school while he needed the wheelchair which is why he didn't actually use it at school. Not everyone with Bartonellosis needs a wheelchair, for sure.
Can you find people to interview that covers Is the psychological aspects of bartenella? I'm curious because I used to have serious anger issues growing up and I'm starting to wonder if this was the cause
I will certainly try! We do know that Bartonella can affect the brain because bartonellosis is a small vessel vasculitis and the white matter of the brain has bad collateral flow
@@BartonellaBabe I was in special ed from 3 to 5 grade because of anger issues and Im really starting to believe it was caused by an infection of bartonella. We have a problem of excessive sweating in the family that runs back to my grandmother on my father's side. I think this has been passed down for 3 generations.
I have a bartonella and I’m going to try ozone therapy I think is working good I try already the medicines and help me a little bit but my stomach was bad so let see what happens with the ozone
Hoping you can find relief!
Any updates?
Ami renember crying for help i couldnt see but medical wiuldnt help us 😢
I have another question for Jack and Amy, if I may. Did Jack use any proteolytic enzymes - Boluoke, lumbrokinase, or serrapeptase - during his treatment? If so, did he notice if they helped his symptoms at all?
He used serrapeptase throughout to address biofilms in addition to NAC
If you want a response from Amy herself, perhaps respond in the thread below where she responded to you and "reply" to her username Aleboeuf specifically 🙂
@@BartonellaBabe does Dr. Mozayeni (sorry I know I’m probably not spelling correctly) treat biofilms with biofilm disruptors? Does he believe that’s important for chronic Bartonella? Does he also use herbs for treatment? And does he treat Lyme and coinfections or only Bartonella? Thank you!
Question - Near the end, Amy said Dr M was going to send the latest sample to Galaxy to make sure there was “nothing else” there. Can you update us on how those results came out?
Hi there! I know Jack had a clear Tlab test (blood) and I am *pretty* sure he also had a clear punch biopsy of skin but I just messaged Amy and asked about Galaxy and to double check and will get back to you ASAP
Hi, yes! ePCR at Galaxy was negative.
@@amykempy Awesome!! Nothing like a clean bill of health!
@@amykempy I have another question for Jack and Amy, if I may. Did Jack use any proteolytic enzymes - Boluoke, lumbrokinase, or serrapeptase - during his treatment? If so, did he notice if they helped his symptoms at all?
Yes, serrepeptase.
Do you know if Jack recovered from dysautonomia/pots as well?
yes he did! He has no symptoms whatsoever
@@BartonellaBabe wow that is amazing!! I developed POTS and many other symptoms three months after a cat scratch and bite. Totally changed my life. My LLMD clinically diagnosed me with Bartonella. Just starting treatment now. Jack's story is so inspiring. Thank you for making this video ❤
@@sandypants so glad you’re properly diagnosed and getting treatment. I will have more videos like this in the future so stay tuned ❤️
What is the reason that Everyone scratched by a cat or bitten by a cat flea infected with Bartonella?
So the reason that not everyone that gets scratched by a cat or bitten by a cat flea is because not every cat flea is infested with Bartonella and some people's immune systems can fight off the infection better than other people's. I hope that answers your question?
im suffering fatigue, eurotaty but thought it might be mercury so confused and BROKE!!! life is gone
there is hope. you can seek testing and or treatment
Isn’t ^^
Word...up. And that's all I can contribute as one who does not have Bartonella. An Anti-Bartonellian? An Anti-Bartonellaonite? :)
Maybe non-Bartonellaonite because anti makes you sound like you're against us!!!
@@BartonellaBabe I'm against Bartonella...I'm pro people. :)
Jake - am I seeing correctly that you have a Facebook group??? The BB group deleted my post sharing the above video and censored my post questioning it. Here is the last sentence I shared with their supreme leader: " My family has seen enough one sided close minded doctors - we don't need that same treatment from a FB group."
yes! Just admitted you. I saw what Matt wrote. Several months ago he took offense to the name "Bartonella Babe" and thought I was just doing my channel for stardom 😂 I would hardly call less than 800 subscribers stardom! Never mind all the research I do and the fact that I'm still very sick. I politely defended myself and he then blocked me from the group. Then I made my own group and Amy came along and so did Kathleen. He has been very rude to all of us, which does a disservice to people in his group. I never particularly wanted to have to make my own group but it has turned out for the better. Our group is focused on the science 😊 ahhhh Facebook drama!
@@BartonellaBabe I had been a member of that group for a long time until today that is. Guess Matt wants to look and feel important despite the harm he may be doing by censorship. Amy and Kathleen were/are wonderful. With their responses on BB I could almost feel their hand on my shoulder in a reassuring way - wonderful to know that will continue.
@@stevecrim4557 so sweet thank you!
Wexe dor rhetr attention n ow ❤🙏
Is her kid on drugs too?* wake u and save livesxx❤
Irisolpg ❤🎉