My childhood friend just passed away at age 39 from CF. He had a double lung transplant in July of 2013 and had rejection issues for the past 3 years. I find myself going through all these CF videos to truly understand this disease. Thank you for your video.
"You don't look sick" drives me insane!! Like you are absolutely right, you aren't a walking X-Ray and you can't see that my bones are degenerating and that my blood is filled with inflammation. I also struggle with PTSD and for me that also means anxiety and depression and its like "you're right, that's because my meds are working today. Come back tomorrow or when my prescription runs out and see if I seem fine to you!" Mary, you are absolutely beautiful, as i have said before, BUT I don't believe that is because you are a "CF Patient" but rather, it is your spirit and your love for God and the joy you CHOOSE every single day. I have watched vlogs where you are nearing collapsing on Ollie and then when you catch your breath you crack a joke. You are such a wonderful example to all of us, and while I am sure you have BAD days emotionally where you would just rather forget about it all or toss in the towel the fact that you bounce back to your true self is whats so beautiful. I love how Peter so tenderly cares for you while not necessarily being over protective or freaking out or anything. He is such a great role-model for caregivers of anyone with an illness, because it doesn't matter WHAT we have or how visible it is, some days we need more assistance and encouragement and other days we just need to feel in control and he seems to give you that. I may have a disease, but it doesn't have me! #CFAWARENESS
Julia thanks Julia. Mary and Peter are definitely an inspiration as individuals and as a couple. I LOVE how when she is in the hospital he is too while also getting everything else needed on the outside finished. He is so devoted. Not many men (or women) would choose to sleep in the hospital for a week so their partner isn't alone, but it is probably one of the most selfless things you can witness in a marriage is Peter doing that. He chooses the physical discomfort of not his own bed, dry air middle of the night nurses, and isolation all to make HER stay more pleasurable.
I was born with Spina Bifida (SB), and went to summer camp with kids who had CF in my teens. In those days, the median life expectancy for someone with CF was 25, so while 40 is still extremely young (I'm 45 now), I am so happy to hear that the prognosis for someone with CF has improved since the '80s-early '90s.
It would be really cool to see Peter do a video like this one on what it's like to be the primary caregiver/support system for a CF patient. I bet it would be helpful for other people with a loved one who has CF to hear his perspective!
indeed it would. A friend of my niece is living with CF. I've seen what her parents go through quite a bit. But many people don't get that opportunity.
This was incredibly informative and clearly communicated. Thanks so much! There's a family at our kids school with a couple of CF kids. This really helps us understand what they're going through. Thank you! You are definitely an overcomer!
I was diagnosed with CF at the age of 4 months old and I am 12 now. This video has explained many things about CF and all the facts that you have mentioned are very much true. I’ve been watching many of your videos and it’s made me a bunch more comfortable with the condition. THANK YOU SO VERY MUCH.
"The Frey Life" is changing lives. And you're changing the lives of some people who don't even have CF. Thanks to the completely unselfish efforts of you, Peter, and Oliver, we are all learning courage, tenacity, positivity, the importance of laughter, lessons in eating well, lessons in love, etc., etc., etc. I could fill a page. I've only recently found your vlog and have been following you for only a couple of months. I'm 61 years old - I don't have CF but I do have some chronic diseases that have been difficult to deal with. In a short time, you guys and your vlog have reminded me of values and lessons that I've allowed to collect some dust and cobwebs. THANK YOU for helping me to remember those things. Thank you for what you're doing for the 1000's of people who follow you. I'm grateful that our paths have crossed in this way and wish that I could help you as you have me. My promise to you guys is that I will pay it forward with the grace and spirit that I've learned from yo
I am none of the people that you mentioned I am someone who is interested to learn more about CF. I have autoimmune diseases and somedays are harder than others. So it is nice to see and take some inspiration from someone else with complex, complicated health issues. Thank you for the information you shared today, I learned a lot
Before I watched this video I didn't even know what cystic fibrosis was. This really helped me understand what it was like to have this disease. I am praying for you.
When I was 8 a little girl moved to my school and we became friends. She had cystic fibrosis and passed away last year. I had no idea what it meant. I thought that when you're "sick" you just take some medicine and get better, but I had no idea. After she passed I discovered your channel, and I love you guys so much. Stay strong Mary.
Great job mary👍🏻 I'm not a CF patient, but I got another chronic illness, so I feel so glad, that I can be part of this awesome freylifefamily😊 because I have been following your journey a long time now, I think I now a lot of things about CF, but this video was so informative and I loved watching it and chairing it with as many people as possible to give a awareness to this invisible disease😊 keep going and thanks for letting so many people be part of your life👍🏻💛
You're the only youtuber I feel like I would be comfortable hanging out with because you're so sweet and down to earth and don't talk as if you're above people but are equal and are willing to lend a helping hand.
+BasqueBolivian I mean, let's be honest, we're all human and we all burp, and today my burp tasted like a banana (as seen in the bloopers). soooo I guess what I'm saying is, I'm glad my true humanity can be seen in our videos...I am in no way "above others". I'm just thankful great people like YOU want to be a part of This journey with us! Thanks!
Mary, you are nothing short of amazing. I have Lupus, Rheumatoid Arthritis, and Diabetes. Chronic illness is no fun. You are a source of inspiration for me. Thank you for making vlogs and sharing your life with us. And before I forget - Peter, you are pretty amazing yourself.
Excellent presentation Mary! I am 55 years old and living in Australia. I hope you are keeping okay. Big Hugs to you for sharing a clear and concise video for You-Tube. Best Wishes.
thanks so much Mary for explaining what CF is. I'm almost 60 years old and never really knew what it was nor have I ever met anyone with that. I was just in the hospital Saturday and Sunday with fluid on my lungs and wow was it hard to breathe. I can't imagine living a life and constantly having to battle for breath. Thanks for showing me how to really relish every moment, that life is a precious gift and of course to laugh along the way. Bless you my friend
Wow, that's how you found out about your liver issue? My 9 y.o. daughter found out through an annual routine CF X-ray since her liver was in the field of view. Three cheers for God's provision for you both in finding it sooner than later! Thanks for the video, I am sure it took longer than we realize to put together.
At first right before I was born the doctors thought I would have cystic fibrosis, but luckily when I was born I didn't have it. My parents had me tested to see if I was a CF carrier, and it turns out I am. I'm just glad I don't have CF, and I'm glad that Mary has made it this far in life with such an optimistic attitude. I love you guys😘
hi Mary my name is yasmeen and i am thirteen years old i have been watching for for over a year now and decided to study Cf and make it my science fair project and i will talk to doctors and other cf patients to try and figure out why cf patients are living longer than they used to back in the day! thank you so much for making my day brighter and i hope i could figure out the genetic reasoning :)
Mary, you are such an inspiration to me. Although I have lupus and not CF I feel more drawn to your videos because of your outlook and tenacity. I can totally relate to looking fine outside with a war going on inside. I was in the ER the other day and instead of getting too down I thought of you and your husband and it made my experience easier to accept and take in stride. God bless both of you! Love you guys!
Hi Mary. Thank you so much for this video. We have a 3 month old just recently diagnosed with cf. We have a great team at sick kids Toronto who are awesome and our son Finnegan at the moment is doing very well especially since beginning with his enzymes. I really appreciate your positivity and energy and I too am a positive person. It has helped my family as we shared the news with them knowing that we are positive and I hope my son is the same as he grows and deals with this disease. So thank you. You are a light for those in the dark. Keep shining bright.
Mary, You are an inspiration. I have had Epilepsy for 30 years. I have been seizure free for a little over 6 years. My medication is very important. I have been subscribed to your channel for a while, and feel I've known you, Peter, and Oliver like I know my own family. Keep up the great work. Praying for you guys always.. Karen...🐞
You are welcome Mary, it is a tough road, and I intend to reach 60 and beyond. Lungs low at 33% but will get that back up in time, a lot of hard work means nothing to people like us. Hope your day is going well. Best Wishes.
Mary I just want to thank you. I started watching your videos about 2 weeks ago and I have spent my free time binge watching your channel. Thank you for reminding me to laugh! and you are an over comer and you inspire other to keep fighting. Keep laughing and hug Ollie for me. He sure is a cutie!
Not only you make me inspire but also helping me understand what really is cystic fibrosis. I am a newly graduate nursing student and your video about OVERCOMER (CF) make so much sense now! I am studying for board exam and you definitely help me alot! Thank you so much. You have such an amazing personality and when i see people complaining of their day i will remember you for having a good day just for the reason that you have able to breath greatly. I see some people nowadays (including me) get so negative with just a tiny reason but you are an awesome OVERCOMER! You are inspirational! God bless you sweetie!
Oh Mary... that was FANTASTIC!! How do you know so much about CF. I mean.. it's different in everybody, but you cover it all. I have Lupus and I couldn't even do a 5 minute video. You are so graceful and well spoken... Even though I'm 26 years older than you (in a few days) ... I am learning how to live with this chronic illness.... and this month is also Lupus Awareness Month.... YAY for us both!!!...lol... see you tomorrow
Hi Mary! I'm a young CF patient and would just like too say I watch your videos everyday whilst doing my physio and nebulisers! They help me realise how important it is to keep up with my treatment! Keep fighting x 😉
There are so many invisible conditions out there and this vid has clearly opened my eyes to another. You are an inspiration to all... I dont know why this came up in my suggestions but I'm so pleased it did.. Col from Liverpool UK
I was diagnosed at 6 months, and it's been a struggle for the last 7yrs...I dont identify myself as anything lol...Ive just learned to accept it and talk about it...this vid is great! I will be posting vids now that I'm ok about talking about it! Anf EVERYTHING you said in this video is ACCURATE 100%!
I'm so glad to hear that I was able to communicate some of the things you feel as well. Thanks for your support and keep on doing the best you can to care for your body! We are cheering for you!
Mary, you are such a beautiful soul and encouraging person!! You did an amazing job on this video! My 9yr old and I watched it together, we both learned so much and just loved watching you! Knowing a little more about what is going on inside your body, helps us understand your daily struggle so much more! To see the joy on your face through your daily battle is such an inspiration!! May God continue to carry you through, and bless you beyond what you could imagine, in this life journey!!💗
Hi Mary, when I was a little girl, both me and my brother had a child in our class each (brother and sister in the same family) who had CF. Sadly, the girl passed aged 7, it was incredibly sad. But I am glad that things are most definitely improving. When I did my nursing, the life expectancy was much lower than 40 - I am so happy that it has increased. May God keep you and your family safe xxxx
Out of all the many videos of yours that I have watched, THIS was by far the best ever!!!! It was so nice of you to help us understand a little bit about CF and your daily life. I learned several things I didn't know about CF today. You are an amazing young woman and God bless you on your journey. You can teach us how to love and savor every day as a gift and a joy. There aren't enough good things to say about this video and about you. Thank you very much and God bless you Mary and keep you safe in his arms. Take care...........
Hi from the UK, you are both such an inspiration, Mary your optimism and laughter is infectious and Peter you are so dedicated to Mary it is truly heart warming. I wish you love laughter, good luck and good times in your beautiful life xxx
❤️ we found you on accident a few months ago. We have watched all of your vlogs since then. My children adore Oli boy. We love your smiles and your positive outlook every day.
Happy CF Awareness Month, Mary! Because of your channel, we all know SO much more about the disease and how we can help fight it. We love being a part of the Frey Life family and getting to share in your journey. 💗
I just recently was diagnosed and I’m 37 .. I have three kids and was missed diagnosed for years.. Thank you for your positive attitude. It has really helped me understand better and not be so afraid 😘
my sister has down syndrome. she also has a hard life. can't drive, can't cook for herself, eats probably 5 diff foods, can't move out, can't get married, can't really do anything without mom and dad, shortened life. she also had open heart surgery at a week old. I've dealt with her getting made fun of my whole life. it's very hard and just wish people would just accept others. we are not chosen to be born this way.
Mary you did a great job on this video. I am so proud to be part of the frey life family. I wish you much happiness and joy for you and Peter. (Of course Olie too)
Thank you for this, your explanation is so easy to understand! I posted this on FB, too. I knew CF was very serious, but didn't understand how it, erm, worked. Praying for you guys every day💜
I love that you explained it well, I didn't know about CF I happen to be on Facebook and found you guys one day and actually I was having a bad day... I live with spine degenerative disease with other chronic illness and people don't understand my struggles and I am in pain 24/7 and I know you and me don't have the same stuff but you guys inspire me and keep me smiling thanks so much for your videos and inspiration....
I have been so interested in CF as a nurse I actually talk about it with others and I really am thinking about my graduate nurse year in a CF ward in Australia thank you Mary
One day we can say that CF stands for Cure Found. I am currently in the hospital getting a tune up and on the road to start Orkambi. I have a cat at home that is always alert to whenever I start coughing or something else (never trained to do it) and he will jump up on my lap or lay next to me and start purring to help my body calm down. He loves giving me sandpaper kisses just for the saltiness of my skin. I was diagnosed at 1 month with CF and have made it to 28 soon to be 29.
I don't have CF but i do have diabetes. I feel like i can relate to your life in a way. I know it's not t he same but it's struggling every day with an invisible illness. it can be hard and I admire your strength. you are inspiring and help me feel I'm not alone. Thank you. :)
Happy CF Awareness Month! This was so well done, Mary! Thank you for explaining CF in common terms and being such an amazing Overcomer! Keep up the good work and especially be sure to laugh every day! Best medicine and advice I have ever heard! As always, wishing you the very best and so proud of your courage and faith each and every day! xx
Wonderful video Mary...you answered every question I have had. Overcomer is an excellent description of you...I gain new respect for you and for Peter each and every day. God Bless you both, and thank you for becoming a part of my life, and for helping me be thankful to the Lord for everything...little things as well as big. Can't wait to meet you both in glory!!!
I share your video with her teachers every school year! Thank you for making this video! And making it so much easier to understand out of us in this community. Weather it's patients, family members, and friends.
Good job Mary!!😊 you are so beautiful inside and out and bringing CF awareness and loving support to so many. Yes, you are an overcomer and an achiever in so many ways. I love you so much, thanks for being you. 😘
Mary, you really are so eloquent!! And you're basically a superhero. I mean, you live everyday with what us non-CFers would compare to an aggressive form of bronchitis (and that is ONLY the lung part! Not to mention other organs infected, plus regular bronchitis can't even compare to CF!), and you STILL can form intelligent sentences and speak with a smile on your face! You pretty much make the rest of us look like these lower level humans and you're over there this amazing, incredible, strong, OVERCOMING human AND encouraging others along the way! I mean, it doesn't get more superhero than that! :-) Loved this video! I did a good bit of research on CF last week (?) and am now informed so that I can inform others and spread awareness! Because awareness= research = finding a cure!! #iminthefightagainstcysticfibrosis
I agree 100%. I'd be such a whimpering, complaining sissy about the whole thing. Mary needs a great big S on her t-shirt. So does Peter, cuz his job isn't easy either. They both ROCK!
THANK YOU for making this video. I've seen other CF videos but this one is by far the most informative one. I appreciate that you are willing to share you life with us.
Today is the first day I came across your Vlog/inspiring life. You are so strong and I am in Awe of how positive, uplifting and just so beautiful you are! THANK YOU for sharing with us your life. May God Bless you and your family ❤️🙏🏻 Your newest fan from Wisconsin Xoxox
I am so, so, so happy that I found your channel! This video was SO good, and I just hav to say that you are so beautiful in this video and your smile makes me so happy! Thank you Mary, and thanks to you, the Frey family for everything you do for us. You make my days! Keep on fighting Mary, you are such a fighter, such a overcomer! Lots of love, Matilda
Hi Mary I just found out i suffer from CF ..and i was reading Mayo clinic info about it when i finished reading and on my browser your face showed up with your video and as you described the CF it was exactly as Mayo clinic detailed in its info..i am amazed at the volume of info you presented..i hope you are still fighting it since this video is 4 years back. I am interested in knowing more about it.thanks a lot George
Job well done Mary! Mary God has reasons and you are one of his best ideas. Thank you for your giving heart and thank you for giving us a chance to know you.
FANTASTIC vlog Mary!! Great job!!!!!Xoxo gonna pass this one along to my CF clinic and to my local CF Chapter to use for families w a newly disgnosed loved one w CF!Best always, Cyster... xo
I just found y'all while browsing TH-cam. This video was very thorough, interesting, & well communicated. You & your little family are just too cute & I can't get enough of your positivity! I definately subscribed! :)
Hi Mary! I have been following you (and Peter and Ollie) for the last couple of months. It's great to see you add juicing to your diet. You spoke in this video about enzyme deficiencies and malabsorption issues. Juicing is a wonderful way to break down the food prior to eating/drinking...and make it easy on the body to absorb the nutrients.
+Shelley Hooper Thank you! It took more thought than you would think...I just wanted to be sure to talk about the major points, and tried to keep it as short as possible! Thank you for your support!
The Frey Life you are an 'F' er!!! 'f'ing amazing!!! Seriously......amazing!!!!! I never swear but you almost made me....in a good way!! You are totally incredible!! God loves you so,so much. Keep fighting gorgeous girl. Xx
Great info & video Mary! Well done! I hope the month of May brings awareness to millions more and that it will encourage researchers to step up their game for you and those in the CF community! I'm cheering you on!!
Thank you so much for sharing, Mary! We appreciate you sharing your journey with us everyday and my prayers are always with you! May is also autoimmune arthritis awareness month. :) I was diagnosed at 14 and am now 20. The inflammation took my colon in early April (I had surgery to have it removed) and we're still playing the medication game-- lots of injection trials and low dose chemotherapy...but each day is a gift and we have to keep going! Thank you for inspiring me in my own fight. :)
Hi Mary, Peter and Ollie 😃 I have recently subscribed to your Chanel and just wanted to congratulate you all on the great videos! Thank you Mary for this video. Huge thumbs up!
I shared this video, and not just for the gifts. This video was truly inspiring and will really help me show and explain what my cystic fibrosis is really like to my friends and family, so thank you for that! 💜 Also, I hope you have a wonderful, easy-breathing day!
Excellent Vlog. Thank you for the fantastic delivery, clear, and concise description of what cystic fibrosis is all about. Anyone looking to learn the facts and an easy way to understand, will be very glad they found this video. We love you Mary and you look beautiful as always! *** Love in the back drop with your new terrariums and Peter's sister's creation plus the flowers. I can't remember.... are they chrysanthemums? PO knees?HAHAHA! That was supposed to say "PEONIES" "Don't forget to love every day!" We love you FreyLife! ⭕️❌
Very good information for us out in the world who are often too judgemental for our own good. I had a friend pass when I was a kid about 50 yrs ago, and thought it was just about lungs, too. Now I am learning the real story and feel kind of silly. BUT I did say to my other friends that I didn't understand why people weren't donors. I actually said something like, "They aren't using their lungs after they are dead, so why don't they give them to someone who IS alive and needs them." Transplantation was in it's infancy back then, too. I have always been a donor and have had the pink dot on all my drivers licenses. I also agree about not thinking we know who needs that parking space by the door. We can not tell by look at a person if they have a handicap or not. HOWEVER, do not use it if you don't have a disability and deprive someone who really needs it of the spot. Oh, dear! I am being so preachy today. Sorry! Peace, Love and Light.
Great video Mary ive cfrd not great lung functions and 4 injections a day plus bad digestive system, love you and your hubby and doggie. I live in Belfast, Northern Ireland.
What have you found that helps your lungs feel their best? Some people say walking or exercise really helps their lungs. I find that after my two hours of vest airway clearance my lungs tend to feel their best. And recently I have been trying a 20-30 minute workout video in the middle of the day, which has been a fun challenge...sometimes not so fun ;) I hope you have a restful night and perhaps tomorrow you will be feeling great :)
I have cfrd as well...I'm one of few African Americans that suffer from cf, so it took the dr awhile to dignose me...This video was very helpful to me..Thank You...#cfovercomer
My best friend passed from CF in 2012. I miss her so much. Keep fighting! ❤
My childhood friend just passed away at age 39 from CF. He had a double lung transplant in July of 2013 and had rejection issues for the past 3 years. I find myself going through all these CF videos to truly understand this disease. Thank you for your video.
It's a selenium deficiency
"You don't look sick" drives me insane!! Like you are absolutely right, you aren't a walking X-Ray and you can't see that my bones are degenerating and that my blood is filled with inflammation. I also struggle with PTSD and for me that also means anxiety and depression and its like "you're right, that's because my meds are working today. Come back tomorrow or when my prescription runs out and see if I seem fine to you!"
Mary, you are absolutely beautiful, as i have said before, BUT I don't believe that is because you are a "CF Patient" but rather, it is your spirit and your love for God and the joy you CHOOSE every single day. I have watched vlogs where you are nearing collapsing on Ollie and then when you catch your breath you crack a joke. You are such a wonderful example to all of us, and while I am sure you have BAD days emotionally where you would just rather forget about it all or toss in the towel the fact that you bounce back to your true self is whats so beautiful. I love how Peter so tenderly cares for you while not necessarily being over protective or freaking out or anything. He is such a great role-model for caregivers of anyone with an illness, because it doesn't matter WHAT we have or how visible it is, some days we need more assistance and encouragement and other days we just need to feel in control and he seems to give you that. I may have a disease, but it doesn't have me! #CFAWARENESS
I really like what you wrote. Really nice!
Julia thanks Julia. Mary and Peter are definitely an inspiration as individuals and as a couple. I LOVE how when she is in the hospital he is too while also getting everything else needed on the outside finished. He is so devoted. Not many men (or women) would choose to sleep in the hospital for a week so their partner isn't alone, but it is probably one of the most selfless things you can witness in a marriage is Peter doing that. He chooses the physical discomfort of not his own bed, dry air middle of the night nurses, and isolation all to make HER stay more pleasurable.
Yes, you are right! He is really nice and very helpful.
I was born with Spina Bifida (SB), and went to summer camp with kids who had CF in my teens. In those days, the median life expectancy for someone with CF was 25, so while 40 is still extremely young (I'm 45 now), I am so happy to hear that the prognosis for someone with CF has improved since the '80s-early '90s.
It would be really cool to see Peter do a video like this one on what it's like to be the primary caregiver/support system for a CF patient. I bet it would be helpful for other people with a loved one who has CF to hear his perspective!
indeed it would. A friend of my niece is living with CF. I've seen what her parents go through quite a bit. But many people don't get that opportunity.
Christina Maki ß
This was incredibly informative and clearly communicated. Thanks so much!
There's a family at our kids school with a couple of CF kids. This really helps us understand what they're going through.
Thank you! You are definitely an overcomer!
Hey dale tribe love watching your videos
The Dale Tribe Hi, Dale Tribe!
The Dale Tribe I know I have a kid in my class who has that
The Dale Tribe hi
The Dale Tribe I love videos so much! #tribemember
I was diagnosed with CF at the age of 4 months old and I am 12 now. This video has explained many things about CF and all the facts that you have mentioned are very much true. I’ve been watching many of your videos and it’s made me a bunch more comfortable with the condition. THANK YOU SO VERY MUCH.
"The Frey Life" is changing lives. And you're changing the lives of some people who don't even have CF. Thanks to the completely unselfish efforts of you, Peter, and Oliver, we are all learning courage, tenacity, positivity, the importance of laughter, lessons in eating well, lessons in love, etc., etc., etc. I could fill a page. I've only recently found your vlog and have been following you for only a couple of months. I'm 61 years old - I don't have CF but I do have some chronic diseases that have been difficult to deal with. In a short time, you guys and your vlog have reminded me of values and lessons that I've allowed to collect some dust and cobwebs. THANK YOU for helping me to remember those things. Thank you for what you're doing for the 1000's of people who follow you. I'm grateful that our paths have crossed in this way and wish that I could help you as you have me. My promise to you guys is that I will pay it forward with the grace and spirit that I've learned from yo
+Jeanie Puckett Thank you so much for your encouraging words!
I am none of the people that you mentioned I am someone who is interested to learn more about CF. I have autoimmune diseases and somedays are harder than others. So it is nice to see and take some inspiration from someone else with complex, complicated health issues. Thank you for the information you shared today, I learned a lot
Before I watched this video I didn't even know what cystic fibrosis was. This really helped me understand what it was like to have this disease. I am praying for you.
When I was 8 a little girl moved to my school and we became friends. She had cystic fibrosis and passed away last year. I had no idea what it meant. I thought that when you're "sick" you just take some medicine and get better, but I had no idea. After she passed I discovered your channel, and I love you guys so much. Stay strong Mary.
One man was actually diagnosed with CF in his 80s! I bet you'll live that long. I pray you do :)
That's called pneumonia.
No , there are several cases of adults being diagnosed. There is a different mutation. Look it up
Great job mary👍🏻 I'm not a CF patient, but I got another chronic illness, so I feel so glad, that I can be part of this awesome freylifefamily😊 because I have been following your journey a long time now, I think I now a lot of things about CF, but this video was so informative and I loved watching it and chairing it with as many people as possible to give a awareness to this invisible disease😊 keep going and thanks for letting so many people be part of your life👍🏻💛
You're the only youtuber I feel like I would be comfortable hanging out with because you're so sweet and down to earth and don't talk as if you're above people but are equal and are willing to lend a helping hand.
+BasqueBolivian I mean, let's be honest, we're all human and we all burp, and today my burp tasted like a banana (as seen in the bloopers). soooo I guess what I'm saying is, I'm glad my true humanity can be seen in our videos...I am in no way "above others". I'm just thankful great people like YOU want to be a part of This journey with us! Thanks!
The Frey Life
Mary, you are nothing short of amazing. I have Lupus, Rheumatoid Arthritis, and Diabetes. Chronic illness is no fun. You are a source of inspiration for me. Thank you for making vlogs and sharing your life with us. And before I forget - Peter, you are pretty amazing yourself.
Excellent presentation Mary! I am 55 years old and living in Australia. I hope you are keeping okay. Big Hugs to you for sharing a clear and concise video for You-Tube. Best Wishes.
Awe, thank you so much! Thanks for your encouragement!
thanks so much Mary for explaining what CF is. I'm almost 60 years old and never really knew what it was nor have I ever met anyone with that. I was just in the hospital Saturday and Sunday with fluid on my lungs and wow was it hard to breathe. I can't imagine living a life and constantly having to battle for breath. Thanks for showing me how to really relish every moment, that life is a precious gift and of course to laugh along the way. Bless you my friend
Wow, that's how you found out about your liver issue? My 9 y.o. daughter found out through an annual routine CF X-ray since her liver was in the field of view. Three cheers for God's provision for you both in finding it sooner than later! Thanks for the video, I am sure it took longer than we realize to put together.
At first right before I was born the doctors thought I would have cystic fibrosis, but luckily when I was born I didn't have it. My parents had me tested to see if I was a CF carrier, and it turns out I am. I'm just glad I don't have CF, and I'm glad that Mary has made it this far in life with such an optimistic attitude. I love you guys😘
hi Mary my name is yasmeen and i am thirteen years old i have been watching for for over a year now and decided to study Cf and make it my science fair project and i will talk to doctors and other cf patients to try and figure out why cf patients are living longer than they used to back in the day! thank you so much for making my day brighter and i hope i could figure out the genetic reasoning :)
I'm so glad I discovered this channel because I heard about cystic fibrosis on TikTok and wanted to learn more about it.
Mary, you are such an inspiration to me. Although I have lupus and not CF I feel more drawn to your videos because of your outlook and tenacity. I can totally relate to looking fine outside with a war going on inside. I was in the ER the other day and instead of getting too down I thought of you and your husband and it made my experience easier to accept and take in stride. God bless both of you! Love you guys!
Hi Mary. Thank you so much for this video. We have a 3 month old just recently diagnosed with cf. We have a great team at sick kids Toronto who are awesome and our son Finnegan at the moment is doing very well especially since beginning with his enzymes. I really appreciate your positivity and energy and I too am a positive person. It has helped my family as we shared the news with them knowing that we are positive and I hope my son is the same as he grows and deals with this disease. So thank you. You are a light for those in the dark. Keep shining bright.
Mary, You are an inspiration. I have had Epilepsy for 30 years. I have been seizure free for a little over 6 years. My medication is very important. I have been subscribed to your channel for a while, and feel I've known you, Peter, and Oliver like I know my own family. Keep up the great work. Praying for you guys always.. Karen...🐞
I am sorry: I asked in another video how you manage being so thin... now I learned why. Thank your for this informative video!
So glad you found this video helpful :)
She’s not even thin 🙄
You are welcome Mary, it is a tough road, and I intend to reach 60 and beyond. Lungs low at 33% but will get that back up in time, a lot of hard work means nothing to people like us. Hope your day is going well. Best Wishes.
Mary I just want to thank you. I started watching your videos about 2 weeks ago and I have spent my free time binge watching your channel. Thank you for reminding me to laugh! and you are an over comer and you inspire other to keep fighting. Keep laughing and hug Ollie for me. He sure is a cutie!
A health care professional could not have donr a better job explaining CF. Mary, you did a wonderful blog!
+K Butler Awe, that's sweet!
Not only you make me inspire but also helping me understand what really is cystic fibrosis. I am a newly graduate nursing student and your video about OVERCOMER (CF) make so much sense now! I am studying for board exam and you definitely help me alot! Thank you so much. You have such an amazing personality and when i see people complaining of their day i will remember you for having a good day just for the reason that you have able to breath greatly. I see some people nowadays (including me) get so negative with just a tiny reason but you are an awesome OVERCOMER! You are inspirational! God bless you sweetie!
Oh Mary... that was FANTASTIC!! How do you know so much about CF. I mean.. it's different in everybody, but you cover it all. I have Lupus and I couldn't even do a 5 minute video. You are so graceful and well spoken... Even though I'm 26 years older than you (in a few days) ... I am learning how to live with this chronic illness.... and this month is also Lupus Awareness Month.... YAY for us both!!!...lol... see you tomorrow
+JOY S SMITH Awareness month twinsies! Happy birthday soon!!!
I would be honored to be your twin...lol... twinsies it is!!! And thank you for the birthday wishes.
Heard of CF, as a disease, but never got that deep into the subject. Thank you for that simple explanation. You're a well done!
Probably the best explanation on TH-cam.
Hi Mary! I'm a young CF patient and would just like too say I watch your videos everyday whilst doing my physio and nebulisers! They help me realise how important it is to keep up with my treatment! Keep fighting x 😉
+Cystic Fibrosis Unicorn That's so great that we can hang out (in video form) while you keep up taking care of your body! Keep up the good work!
There are so many invisible conditions out there and this vid has clearly opened my eyes to another. You are an inspiration to all... I dont know why this came up in my suggestions but I'm so pleased it did.. Col from Liverpool UK
I was diagnosed at 6 months, and it's been a struggle for the last 7yrs...I dont identify myself as anything lol...Ive just learned to accept it and talk about it...this vid is great! I will be posting vids now that I'm ok about talking about it! Anf EVERYTHING you said in this video is ACCURATE 100%!
I'm so glad to hear that I was able to communicate some of the things you feel as well. Thanks for your support and keep on doing the best you can to care for your body! We are cheering for you!
Mary, you are such a beautiful soul and encouraging person!! You did an amazing job on this video! My 9yr old and I watched it together, we both learned so much and just loved watching you! Knowing a little more about what is going on inside your body, helps us understand your daily struggle so much more! To see the joy on your face through your daily battle is such an inspiration!! May God continue to carry you through, and bless you beyond what you could imagine, in this life journey!!💗
Hi Mary,
when I was a little girl, both me and my brother had a child in our class each (brother and sister in the same family) who had CF.
Sadly, the girl passed aged 7, it was incredibly sad. But I am glad that things are most definitely improving. When I did my nursing, the life expectancy was much lower than 40 - I am so happy that it has increased.
May God keep you and your family safe xxxx
Out of all the many videos of yours that I have watched, THIS was by far the best ever!!!! It was so nice of you to help us understand a little bit about CF and your daily life. I learned several things I didn't know about CF today. You are an amazing young woman and God bless you on your journey. You can teach us how to love and savor every day as a gift and a joy. There aren't enough good things to say about this video and about you. Thank you very much and God bless you Mary and keep you safe in his arms. Take care...........
+Pamela Ruth Thank you so much for those kind words. I'm so thankful to hear that this video could be helpful!
I was about to write a comment, complementing Mary on a job well done, but you've said it all.
So I'll just add..."Yeah, what SHE said." :-)
Hi from the UK, you are both such an inspiration, Mary your optimism and laughter is infectious and Peter you are so dedicated to Mary it is truly heart warming. I wish you love laughter, good luck and good times in your beautiful life xxx
❤️ we found you on accident a few months ago. We have watched all of your vlogs since then. My children adore Oli boy. We love your smiles and your positive outlook every day.
+Samantha I :) So glad to hear that!
Happy CF Awareness Month, Mary! Because of your channel, we all know SO much more about the disease and how we can help fight it. We love being a part of the Frey Life family and getting to share in your journey. 💗
I just recently was diagnosed and I’m 37 .. I have three kids and was missed diagnosed for years.. Thank you for your positive attitude. It has really helped me understand better and not be so afraid 😘
my sister has down syndrome. she also has a hard life. can't drive, can't cook for herself, eats probably 5 diff foods, can't move out, can't get married, can't really do anything without mom and dad, shortened life. she also had open heart surgery at a week old. I've dealt with her getting made fun of my whole life. it's very hard and just wish people would just accept others. we are not chosen to be born this way.
Josh H I hope you and your sister are doing well... don’t pay attention to losers that make fun. , those people are very sad
I am a person with ASD, I hate the ignorance that comes from people. They don't see my disability, and how I am on the inside. It enrages me!
My friend who has CF taught me to live life to the fullest everyday! I love your channel! You are such a pretty girl! Keep fighting!
Mary you did a great job on this video. I am so proud to be part of the frey life family. I wish you much happiness and joy for you and Peter. (Of course Olie too)
Thank you for this, your explanation is so easy to understand! I posted this on FB, too. I knew CF was very serious, but didn't understand how it, erm, worked. Praying for you guys every day💜
I love that you explained it well, I didn't know about CF I happen to be on Facebook and found you guys one day and actually I was having a bad day... I live with spine degenerative disease with other chronic illness and people don't understand my struggles and I am in pain 24/7 and I know you and me don't have the same stuff but you guys inspire me and keep me smiling thanks so much for your videos and inspiration....
Sorry not Facebook was TH-cam
I have been so interested in CF as a nurse I actually talk about it with others and I really am thinking about my graduate nurse year in a CF ward in Australia thank you Mary
+Helen Vaka That would be so awesome if you could become a CF nurse!
+The Frey Life I know right I would love to nurse cf people too
Mary you did a great job at explaining CF to us the layman. You are such an inspiration young lady 😊❤
One day we can say that CF stands for Cure Found. I am currently in the hospital getting a tune up and on the road to start Orkambi. I have a cat at home that is always alert to whenever I start coughing or something else (never trained to do it) and he will jump up on my lap or lay next to me and start purring to help my body calm down. He loves giving me sandpaper kisses just for the saltiness of my skin. I was diagnosed at 1 month with CF and have made it to 28 soon to be 29.
I don't have CF but i do have diabetes. I feel like i can relate to your life in a way. I know it's not t he same but it's struggling every day with an invisible illness. it can be hard and I admire your strength. you are inspiring and help me feel I'm not alone. Thank you. :)
Thank you so much for sharing your life and explaining what CF is. It is so important to share your story and be an advocate.
I have a project on cystic fibrosis due soon, and I wasn't really understanding it, and this video helped so much! Thank you Mary!!!
+Cali Asaro So glad it could be helpful!
Happy CF Awareness Month! This was so well done, Mary! Thank you for explaining CF in common terms and being such an amazing Overcomer! Keep up the good work and especially be sure to laugh every day! Best medicine and advice I have ever heard! As always, wishing you the very best and so proud of your courage and faith each and every day! xx
Wonderful video Mary...you answered every question I have had. Overcomer is an excellent description of you...I gain new respect for you and for Peter each and every day. God Bless you both, and thank you for becoming a part of my life, and for helping me be thankful to the Lord for everything...little things as well as big. Can't wait to meet you both in glory!!!
I just love you, Mary! I'm so so glad I found The Frey Life!
+Michelle Ryczko Thank you so much :)
I share your video with her teachers every school year! Thank you for making this video! And making it so much easier to understand out of us in this community. Weather it's patients, family members, and friends.
Wonderful explanation! I'm a nursing student and used this to teach about CF. Thank you!
Good job Mary!!😊 you are so beautiful inside and out and bringing CF awareness and loving support to so many. Yes, you are an overcomer and an achiever in so many ways. I love you so much, thanks for being you. 😘
Mary, you really are so eloquent!! And you're basically a superhero. I mean, you live everyday with what us non-CFers would compare to an aggressive form of bronchitis (and that is ONLY the lung part! Not to mention other organs infected, plus regular bronchitis can't even compare to CF!), and you STILL can form intelligent sentences and speak with a smile on your face! You pretty much make the rest of us look like these lower level humans and you're over there this amazing, incredible, strong, OVERCOMING human AND encouraging others along the way! I mean, it doesn't get more superhero than that! :-) Loved this video! I did a good bit of research on CF last week (?) and am now informed so that I can inform others and spread awareness! Because awareness= research = finding a cure!! #iminthefightagainstcysticfibrosis
Meant to say "affected"* about organs, but I guess I could research if they are infected like the lungs are, too!
+savedbygrace Thank you so much for your encouraging words! You encouragement helps me to keep pushing!
I agree 100%. I'd be such a whimpering, complaining sissy about the whole thing.
Mary needs a great big S on her t-shirt. So does Peter, cuz his job isn't easy either.
They both ROCK!
Every part of this video was so well done
+Joyce L Thank you so much!
Mary you did such a great job explaining this! I learned a lot!!!😃😃😃 God bless you in your fight !
sorry. i was commenting on ur cf explanation video and my comment popped up here!
Shout out to all the CF and type 1 Diabetics out there!
Woop Woop, You are a rockstar!
So are YOU! You go girl!
Mary Ruedin and leukemia! I do NOT have leukemia, but my new friend, Morgan had it.
Great video Mary! I'm cheering and praying for you everyday!
+Lisa E. Thank you so much!
I'm 33 years old and I have trouble breathing and I love your videos
I want to Thank you for this...you will help so many with this video!
Good luck with your journey I know how cf is because both my aunts passed away from it at a young age so what your doing really inspires me
THANK YOU for making this video. I've seen other CF videos but this one is by far the most informative one. I appreciate that you are willing to share you life with us.
Today is the first day I came across your Vlog/inspiring life. You are so strong and I am in Awe of how positive, uplifting and just so beautiful you are! THANK YOU for sharing with us your life.
May God Bless you and your family ❤️🙏🏻
Your newest fan from Wisconsin
Xoxox
This is truly amazing for you to share all this information with your viewers! I love this ! Great video and hope you continue to get better !
I am so, so, so happy that I found your channel! This video was SO good, and I just hav to say that you are so beautiful in this video and your smile makes me so happy! Thank you Mary, and thanks to you, the Frey family for everything you do for us. You make my days! Keep on fighting Mary, you are such a fighter, such a overcomer!
Lots of love, Matilda
+Matilda Blomqvist Thank you for your encouragement!
Hi Mary I just found out i suffer from CF ..and i was reading Mayo clinic info about it when i finished reading and on my browser your face showed up with your video and as you described the CF it was exactly as Mayo clinic detailed in its info..i am amazed at the volume of info you presented..i hope you are still fighting it since this video is 4 years back. I am interested in knowing more about it.thanks a lot
George
Job well done Mary! Mary God has reasons and you are one of his best ideas. Thank you for your giving heart and thank you for giving us a chance to know you.
I have cf myself and this has explained it so much. Great Video and keep fighting cyster 💜
+Chelsie Griffiths So glad it could be helpful! Keep on keeping on!
+The Frey Life I have just shared it on my Facebook as I get a lot of questions at school on what cf is 💜
You are doing so good I lost my sister to CF she was 27 but you are doing good love your channel
Awesome video. Yes every day is a gift.
FANTASTIC vlog Mary!! Great job!!!!!Xoxo gonna pass this one along to my CF clinic and to my local CF Chapter to use for families w a newly disgnosed loved one w CF!Best always, Cyster... xo
+Lori Reynolds Thank you so much Lori!
I just found y'all while browsing TH-cam. This video was very thorough, interesting, & well communicated. You & your little family are just too cute & I can't get enough of your positivity! I definately subscribed! :)
Hi Mary! I have been following you (and Peter and Ollie) for the last couple of months. It's great to see you add juicing to your diet. You spoke in this video about enzyme deficiencies and malabsorption issues. Juicing is a wonderful way to break down the food prior to eating/drinking...and make it easy on the body to absorb the nutrients.
"You don't look sick."
+Jenn S (JennS90) And I recently found out May is Lupus awareness month and color are the same as CF! Twinsies ;)
+The Frey Life Hahaha, yes!
+Jenn S (JennS90) I always get this one too. I have CFS and ehlers danlos syndrome, type 3. And May is also EDS awareness month!
Your such a joy... living with this must be so hard and yet your so happy!! Your amazing. :)
I was thinking the same thing!! Such a joy to watch!!
great vlog Mary!! You explained CF so well!
+Shelley Hooper Thank you! It took more thought than you would think...I just wanted to be sure to talk about the major points, and tried to keep it as short as possible! Thank you for your support!
The Frey Life you are an 'F' er!!! 'f'ing amazing!!! Seriously......amazing!!!!! I never swear but you almost made me....in a good way!! You are totally incredible!! God loves you so,so much. Keep fighting gorgeous girl. Xx
Shared on fb.. I have cousins that have CF they are brothers...I have learned a lot from your daily videos.
I just saw on Facebook last week a beautiful little 8 year old girl passed away last month from CF. So very very heart breaking! 💔😢
Excellent video. I learned a lot from this. Thank you!
Great info & video Mary! Well done! I hope the month of May brings awareness to millions more and that it will encourage researchers to step up their game for you and those in the CF community! I'm cheering you on!!
Thank you so much for sharing, Mary! We appreciate you sharing your journey with us everyday and my prayers are always with you!
May is also autoimmune arthritis awareness month. :) I was diagnosed at 14 and am now 20. The inflammation took my colon in early April (I had surgery to have it removed) and we're still playing the medication game-- lots of injection trials and low dose chemotherapy...but each day is a gift and we have to keep going! Thank you for inspiring me in my own fight. :)
Hi Mary, Peter and Ollie 😃
I have recently subscribed to your Chanel and just wanted to congratulate you all on the great videos!
Thank you Mary for this video. Huge thumbs up!
Just ordered some merchandise! Can't wait to get it! Love your blogs, Mary, Peter & Ollie! 😊👍
OMG you guys are almost at 50,000 subs!!! Also great video :) :)
I shared this video, and not just for the gifts. This video was truly inspiring and will really help me show and explain what my cystic fibrosis is really like to my friends and family, so thank you for that! 💜 Also, I hope you have a wonderful, easy-breathing day!
+Maddie Wags So glad the video was helpful for you!
Excellent Vlog. Thank you for the fantastic delivery, clear, and concise description of what cystic fibrosis is all about. Anyone looking to learn the facts and an easy way to understand, will be very glad they found this video. We love you Mary and you look beautiful as always!
***
Love in the back drop with your new terrariums and Peter's sister's creation plus the flowers. I can't remember.... are they chrysanthemums? PO knees?HAHAHA! That was supposed to say "PEONIES" "Don't forget to love every day!"
We love you FreyLife! ⭕️❌
Shared again today! Invited my Facebook friends to the walk this weekend:)
Very good information for us out in the world who are often too judgemental for our own good. I had a friend pass when I was a kid about 50 yrs ago, and thought it was just about lungs, too. Now I am learning the real story and feel kind of silly. BUT I did say to my other friends that I didn't understand why people weren't donors. I actually said something like, "They aren't using their lungs after they are dead, so why don't they give them to someone who IS alive and needs them." Transplantation was in it's infancy back then, too. I have always been a donor and have had the pink dot on all my drivers licenses. I also agree about not thinking we know who needs that parking space by the door. We can not tell by look at a person if they have a handicap or not. HOWEVER, do not use it if you don't have a disability and deprive someone who really needs it of the spot.
Oh, dear! I am being so preachy today. Sorry!
Peace, Love and Light.
Good video, explained what you're going through. Peace to you Mary, Peter & Ollie 🎈
My baby cousin Seth has cf both types this help me out a lot thank you
Great video Mary ive cfrd not great lung functions and 4 injections a day plus bad digestive system, love you and your hubby and doggie. I live in Belfast, Northern Ireland.
What have you found that helps your lungs feel their best? Some people say walking or exercise really helps their lungs. I find that after my two hours of vest airway clearance my lungs tend to feel their best. And recently I have been trying a 20-30 minute workout video in the middle of the day, which has been a fun challenge...sometimes not so fun ;) I hope you have a restful night and perhaps tomorrow you will be feeling great :)
Hi Mary, I love your video on cf. I learned a lot more about it and thank you for doing a video on it. Great job! :)
I have cfrd as well...I'm one of few African Americans that suffer from cf, so it took the dr awhile to dignose me...This video was very helpful to me..Thank You...#cfovercomer
Way to go, fellow overcomer!!!!
i believe your going to live a long life, you have a great attitude and a big heart !!! God bless !!!!