Jill, I've had, twice, a hospital pharmacist refuse to rx my meds the way they were prescribed. Once after major back surgery, once after an open sternotomy. My husband saved my life as no one had a clue what was going on. Please report this error to the safe prescribing agency. They track, monitor and make recommendations
Such a great catch on your part. Could have been so different if missed. I find that we have to advocate for ourselves so strongly even just to stay safe. My pharmacy are pretty good and understand my situation. When I had a crisis Oct last year and I was admitted to hospital and though they had my emergency treatment card which stated I needed the IV of HC immediately (was running out of injection time, had 2 hours left of the 6hrs cover it gives) they gave the saline but made me wait 7 hrs till a doctor could give the ok for the iv HC. Between deep sleeping (consciousness ?) I grabbed my own tablets and took a 20mg stress dose. We have to look after ourselves ❤
Like you, I have a good relationship with my local pharmacist, as I did with the one before. But, similarly, the moment there is a locum as the usual one is not present, mistakes creep in, typically using makes of medication that contain an ingredient to which I have a physical reaction. I have every prescription sent from the doctor to the pharmacy explicitly say to avoid that ingredient, and it’s on the pharmacy’s system too, but it still happens. I’ve even had a locum say to me that a small amount won’t be a problem - it is, and it’s cumulative, the effect getting worse with each extra bit. Half-life is a concept that so many people misunderstand. Almost every day I see people posting about how quickly medications leave the body, completely misunderstanding what half-life means. I recently put together a spreadsheet to allow me to graph both the theoretical plasma and biological effects of the dosing schedule I follow based on each half life. Doing that, I have much improved my dosing schedule and am now functional in the mornings again, whereas on the schedule typically recommended I was no use to anybody until lunchtime
WOW...thank you for sharing...LOVE that you use the half lives...I don't understand why doctors do not use this BASE concept of drugs to improve our quality of lives and manage this disease....LOVE that you have accomplished this. Thank you again for sharing and I am so glad you are feeling better...love to have you on the podcast ❤️
@@chronicallyfit_withjill Thank you. Perhaps once I am further along on my journey. Got a couple of question marks over latest test results that I'd like to get to the bottom of before talking about things (don't like uncertainty 🙂)
So glad you noticed their errors and got things sorted! That's so scary! This past Tuesday my cardiologist prescribed me Fludrocortisone because the Midodrine I've been on for my POTs & hypotension hasn't been helping increase my blood pressure enough. Finally my doctors seem to be starting to take my symptoms seriously after I had a 24hr blood pressure monitor and was just told that my average bp is 88/55! My cardiologist is sending me back to redo my morning cortisol because she believes I have Addison's. My concern however, is that they keep prescribing me things without having all of my medical information... I had to remind my cardiologist that I have autoimmune thyroiditis because my gp never provided her with that important information. Then I get home and realise that my hormonal IUD for suspected endometriosis may interact with my medications and also has an impact on cortisol and thyroid hormone test results, and this is another thing that my doctors haven't considered. It's so frustrating and scary when you have to keep doing all your own research to make sure that you're not being harmed by the people and treatments that are meant to help us! **Sorry for the novel!! I don't really have anyone who understands...** 😅🧂🥒
![Sale of Medicine by Doctors [Dispensing of Medicines by Doctors in their Clinics]](http://i.ytimg.com/vi/rEqGVlfZC-Y/mqdefault.jpg)
Jill, I've had, twice, a hospital pharmacist refuse to rx my meds the way they were prescribed. Once after major back surgery, once after an open sternotomy. My husband saved my life as no one had a clue what was going on. Please report this error to the safe prescribing agency. They track, monitor and make recommendations
Oh my that is horrible...how can they do that???? OH MY! We always need to be prepared. ❤️
It seems they know better than anyone apparently. Medical PTSD is real. @@chronicallyfit_withjill
Such a great catch on your part. Could have been so different if
missed. I find that we have to advocate for ourselves so strongly even just to stay safe. My pharmacy are pretty good and understand my situation.
When I had a crisis Oct last year and I was admitted to hospital and though they had my emergency treatment card which stated I needed the IV of HC immediately (was running out of injection time, had 2 hours left of the 6hrs cover it gives) they gave the saline but made me wait 7 hrs till a doctor could give the ok for the iv HC. Between deep sleeping (consciousness ?) I grabbed my own tablets and took a 20mg stress dose. We have to look after ourselves ❤
You are right...we need to be always watching and be ready. so much misunderstanding with this illness...take care my friend ❤️
Like you, I have a good relationship with my local pharmacist, as I did with the one before. But, similarly, the moment there is a locum as the usual one is not present, mistakes creep in, typically using makes of medication that contain an ingredient to which I have a physical reaction. I have every prescription sent from the doctor to the pharmacy explicitly say to avoid that ingredient, and it’s on the pharmacy’s system too, but it still happens. I’ve even had a locum say to me that a small amount won’t be a problem - it is, and it’s cumulative, the effect getting worse with each extra bit.
Half-life is a concept that so many people misunderstand. Almost every day I see people posting about how quickly medications leave the body, completely misunderstanding what half-life means. I recently put together a spreadsheet to allow me to graph both the theoretical plasma and biological effects of the dosing schedule I follow based on each half life. Doing that, I have much improved my dosing schedule and am now functional in the mornings again, whereas on the schedule typically recommended I was no use to anybody until lunchtime
WOW...thank you for sharing...LOVE that you use the half lives...I don't understand why doctors do not use this BASE concept of drugs to improve our quality of lives and manage this disease....LOVE that you have accomplished this. Thank you again for sharing and I am so glad you are feeling better...love to have you on the podcast ❤️
@@chronicallyfit_withjill Thank you. Perhaps once I am further along on my journey. Got a couple of question marks over latest test results that I'd like to get to the bottom of before talking about things (don't like uncertainty 🙂)
So glad you noticed their errors and got things sorted! That's so scary!
This past Tuesday my cardiologist prescribed me Fludrocortisone because the Midodrine I've been on for my POTs & hypotension hasn't been helping increase my blood pressure enough. Finally my doctors seem to be starting to take my symptoms seriously after I had a 24hr blood pressure monitor and was just told that my average bp is 88/55! My cardiologist is sending me back to redo my morning cortisol because she believes I have Addison's.
My concern however, is that they keep prescribing me things without having all of my medical information... I had to remind my cardiologist that I have autoimmune thyroiditis because my gp never provided her with that important information.
Then I get home and realise that my hormonal IUD for suspected endometriosis may interact with my medications and also has an impact on cortisol and thyroid hormone test results, and this is another thing that my doctors haven't considered.
It's so frustrating and scary when you have to keep doing all your own research to make sure that you're not being harmed by the people and treatments that are meant to help us!
**Sorry for the novel!! I don't really have anyone who understands...** 😅🧂🥒
@@Tess.of.all.trades oh my friend. So much to think about. So happy you are being proactive. We need to be. Take care and keep fighting hard ❤️