I so relate with the being overstimulated & dealing with people. "Go away, but stay & love me" 🤣 it takes special people to give us our space to be us ❤
Thank you for sharing your story. I was diagnosed in July 21 from having a crisis. Determined Addison Disease was caused from immunotherapy treatment for cancer. I was put on Hydrocortisone treatment and have had several crisis where I was rushed by rescue to local ER.
Im an ER nurse and I find it shocking that there’s stories about Addisons not being treated. Addisons is a part of our curriculum. Also, the BC ambulance service carried hydrocortisone for adrenal crisis as of this year :)
Oh Jill. This is so completely how my crises have gone! I’m amazed that they gave you fluids and your Solucortef without a ‘doctor’s’ orders!! So wonderful! I had a crisis 2 weeks ago… went to the ER and they played ‘let’s google Addison’s’ 😞 I don’t remember much, but I do remember sitting in triage breathing so shallowly and the triage nurse telling me to ‘stop breathing so heavily, I’d hyperventilate’. I looked up at my husband and said, ‘please don’t let me die’. The fear is SO real. I’m so glad you’re doing better now.. and bless sweet Harley for getting you the immediate attention you needed! 💗
Oh friend...I am so sorry you went through that but yes an unfortunate reality of this illness...please take care! My little wonder girl Harley passed away...I miss her so much.
Reading this and waiting for my doctor to come back on Monday to read my blood work. I have read it. From what i can decern from the blood work, i have hypopituitarism - a form of Addisons supposedly quite rare. Regardless treatment is cortisol replacement. MRI, Endocrinologist to determine if it is tumor related on the pituitary gland. I should be scared and am worried,but I had a dog, Papillon, with Primary Addisons. He lived to be 15 with medication ( Cortisol and Percorten). Good luck to all of us.
I have primary Addison 's due to immunotherapy for cancer. I just recently got my emergency Injection kit , it took me two years since diagnosis and 2.5 years since onset. Thank you for all the information!
I just saw my doctor and he threw out the words adrenal insufficiency. My cortisol is 130 mnol at 9 am. I have been sick for over a year but recently started having issues with potassium and other electrolytes. Im not sure if I have addisons or not yet. He ordered other testing. But man I feel like garbage
Just came across your profile and can’t believe your mini dachshund looks so much like mine 😍. Dachshunds are the best. 🧡 Just had my 24th Addisonian crisis since my diagnosis (which was in July 2023) today and now am curious what your crises are like. In case anyone wonders: I’m severely ill, that’s why my Addison’s disease freaks out so much and frequently.
Thank you for sharing your story. I don't take any chances with my Addison's and give myself an injection when I know I'm failing. Don't wait-use your emergency injection!! I did have a crisis when two injections in 1 hour didn't help. Spent 4 days in the hospital and it took me 4 weeks to feel better.
Great advice friend...it takes so long to recover...truly a sign of how hard our bodies have to fight in a crisis....be well friend...thanks for watching my videos!
I’ve got secondary adrenal insufficiency. I had my first adrenal crisis a few weeks ago. It was scary. I called 911. Luckily the paramedics understood adrenal insufficiency so they started iv with steroids and fluids.
This sounds like all of my symptoms and pretty sure I’ve experienced crisis..my dhea and low CO2 came out but cortisol was a 9 which doctor said it was normal. Two days ago I got sick with a cold and my sugars would drop to 40s 50s the most 60s and I know when someone is sick normally sugars are up. And whenever I have these crazy episodes of stomach pains throwing up and diarrhea it’s always between 12am-3am. 😩
My endocrinologist is young and his trying to figure out but he’s puzzled becasue my 8am cortisol was a 9 and acth was a 12 but I think from what I’ve read I think a stim test needs to be done if cortisol is between 3-18 but idk maybe I need to suggest stimulation test
Thank you for doing this video, God be with you... I'm in the diagnosis phase right now. Turns out, imaging showed an enlarged left adrenal gland back in 2016. I had an episode a couple weeks ago, blood pressure shot up, landed in the ER, it was a nightmare, 4 days later I'm back in a different ER, tests and imaging, no real answers but blood pressure comes back down, I'm released but have follow-ups. (This is actually the third episode I've had since 2012 but undiagnosed till now) So I go to the doctor, he listens to what led up to my ER visit, does a review of previous image reports and right off the bat he says "you have an enlarged adrenal gland, (although he didn't really go into detail on what it meant. I think he wants all the new results before he goes there). So now I'm driving myself crazy trying to research and learn while going through these preliminary testing of kidneys, pulmonary, heart, bone and so forth ... It's all very overwhelming... May the Lord be with you
If you had stress dose of the solucortef in the home, why did you hold off giving yourself a dose? For myself feeling fatigue with vomiting more than 2 times or any sign of diarrhea is stress dose time immediately followed by getting to the hospital. Two adrenal crisis events caused me to code blue in the hospital, I’m not telling you this to scare you but to maybe advise you to take action sooner. It’s a terrifying illness to live with, I give you a lot of credit that you can still hold a job. I had to leave my career 27 years ago. Thanks for sharing your story. Take care💕
I'm pretty sure I'm experiencing adrenal insufficiency and quite possibly an adrenal crisis but I'm not currently diagnosed with addison's/adrenal insufficiency... At the age of 15 I had mono and ended up quite sick- other than the mono they never did find anything else. I've experienced symptoms on and off since (I'll experience a flare anywhere from a few weeks to several months, even a year and then have a period of remission for a few weeks to a few months) and I'm now in my mid 30s. We've ruled out pretty much everything else and though I have pretty much every sign/symptom of adrenal insufficiency they can't see the correlation... and thus they won't do the lab worked needed. They referred to endocrinology but they don't have avail appts til October (2023)... when I go to the ER and try to explain this they say it's not something the ER is set up for and to follow up with PCP/specialist.... Wish I could find people that understood this more and didn't dismiss it so quickly just b/c they don't understand it and/or haven't been exposed to it (b/c its rare). So glad you have the support system and care team you do. God bless! 🙏
@@chronicallyfit_withjill Thank You for your reply! I'm in Central Virginia -pretty much between Richmond and Charlottesville. The county health clinic I've been going to won't do the tests I've requested (Vitamin/Minerals, ACTH, and hormone-all of them Cortisol, aldosterone, estrogen, progesterone, thyroid)... the PCP stated he did not see how my symptoms were related to Addison's/adrenal insufficiency as my CBC and Metabolic panels were coming back "normal" (and this was after my pointing out that while they are normal, things like my sodium and potassium are on the low end of normal and my CO2 and BUN levels have been low + I recently had a syncopal episode/catatonic like state (due to orthostatic hypotension which I have a hx of as well as bradycardia and sinus arrhythmia) + an overall health hx that supports this as a dx-pretty much every sign/symptom I have had at sometime point, on/off, or presently); so, he put in a referral to endocrinology...and their first avail appt is in october.... When I've gone to the ER for symptoms (severe abdom pain/right side abdom and flank pain) and push for them to run tests for this they tell me they can tell I've done a lot of research into this but the ER can't do those tests/ b/c it's possibly related to an on going issue/a complication of known GI issues and to follow up with my PCP &/or a specialist... our medical model/western medicine these days seems to be a joke/and endless loop of people passing the buck (it's all about the $ vs actually healing/helping people). So, for now, since it's an apparent waiting game I just pray the Good Lord sees fit to keep me holding on and keep myself educated (thankfully I used to be an EMT and worked in a critical care unit so God has blessed me with being able to understand medicine/the human body) and pass it on to my fiance in case something happens between now and the endocrinology appt. Thank You again for your reply! and for your content on your channel. I pray you are able to keep a good medical care and support team where you are. Please reach out/message if you ever need support/prayers on your Addison's Journey.
@@BS-dq1kz No I did not. The endocrinologist that I was referred to decided to cancel my appointment - because the thyroid labs (TSH only) my PCP ran were "normal", they didn't see where their expertise was needed and advised to follow-up with PCP. I've since gotten an appoint with another family medicine doc for a second opinion ...still waiting for that appt though.
@@BS-dq1kz In July of 2024 we finally started getting some answers. I've had 2 doctors now confirm/dx adrenal insufficiency("adrenal fatigue"). Also, we've learned I have dysautonomia (POTS) and am hypermobile. This doctor we recently found has been a blessing (Dr. Gharbo with VCU)- hopefully we will get more answers and/or determine a management plan + treatment for flares plan.
You are so lucky you have someone who will stick around after having to call an ambulance for you. I knew he’d leave me if I went to the hospital and he did. I’ve been abandoned. No friends or family. I have had lab tests for this and EDS as well
I am so sorry you had to go through this. I have SAI, disgnosed about 2 mo ago. I appreciate your podcasts so much. I was just curious as to why you didnt give yourself the solucortef injection earlier? My script came with no syringes or saline. I have those now. Folks should check that they uave all the supplies and are trained how to administer as well as someone in their home if available. Anyhow, very glad you ended up okay!!
@@chronicallyfit_withjill makes sense....it is really scary to go into a crisis. Glad in the end you had skilled first responders and life saving care :)
Hi Jill Thanks for sharing your story. It made me realise how serious adrenal insufficiency is. Have you had your potassium and sodium levels checked using hair tissue mineral analysis? The hair is an extension of our nervous system and tells us everything I believe. My results showed extremely low potassium and sodium. Can you try cream of tartar, and let me know if it helps your stress? I’ve just discovered it for healing adrenals, along with Vitamin A from Cod liver oil and organ meet liver. My BP went down to 80/40 at Drs, just told me I was depressed and sent me home.Hynoticjerks in night thousands of times, pain in chest, poor concentration and memory, for past few years, no idea why! Until now! Was diagnosed with chronic fatigue 20 years ago! Should have been adrenal insufficiency! And been given cream of tartar and salt in the right ratio. I also have high levels of Mercury -again hair testing showed this!! Rick Fischer is in Canada and works with ppl all over the world. You can heal I believe from this! I’m publish ing a book soon on my discoveries! To help others! 🙏💕🙏
Thanks for sharing! Happy that you were well treated. I was diagnosed 5 years with Addison and so far no crisis. I'm afraid of having one because there are so many bad stories with er and addison crisis. I live in Quebec and paramedics cannot inject medication!
Hey there...be as prepared on. you can be for a crisis..send me a message at chronicallyfit@rogers.com and I will send you a free adrenal crisis kit. Documents on my website to www.chronicallyfitcanada.com that you can download for free
I hope you find my journey and the guest episodes helpful. Prof Wass episode was amazing and I highlight recommend the book he contributed too! must have!
Please help! I fully and completely believe I have addison's disease, I have all the symptoms and have been getting worse and worse lately. My blood pressure is around 90/60 and drops from there.... I have not yet been diagnosed with anything other than autoimmune thyroiditis. Can you please tell me what your cortisol level was when you were diagnosed?? My cortisol level was checked a couple times and each time they said it was 'within range' but it was checked when I felt fine...
I am so sorry to hear you are struggling...my cortisol levels were normal my ACTH hormone from my pituitary gland was extremely high indicating my adrenals were failing. I did not go into an adrenal crisis when I was dx...I was just very close it. If I had a crisis then my cortisol would have been low. My sodium and potassium levels were normal as well. Please ask any questions happy to share my journey
It’s life changing n some times u want to ignore it but it’s very serious Iv add for 18 years n my life the same n hospital don’t understand n you tell them n there just don’t no n Iv been on antibiotics for 15 weeks n u feel so drained and worn down and if u got anything u think your in crisis u ring ambulance n tell them u shud buy rights u shud have card u carry everywhere n I add heart attack and the pain hurts so much you have got to tell them but dr get funny staff my blood pressure very low and it gave me nervous break down feel fee add me on Facebook anyone it’s so serious n ppl think it’s not x
I have had adrenal insufficiency for last few years, if not 20 years. At my worst I got hypnotic jerks at night, urges of being sick. Anyway, cream of tartar has potassium and is helping me with stress. I hope this helps someone 🙏
I'm confused. Didn't they tell you to take emergency doses with vomiting or even the earlier symptoms? I've had Addison's since 2009. The standing order is 30mgs additional to your regular dose.. I take 20mgs of cortef in the am and 10 in the afternoon. But. If I need an emergency dose, I take that 30mgs the same time the next 2 days. For a total of 30mgs additional for three days. Now, if I don't feel better after the 30mgs, it's ER time. I understand how confusing it can be to never know if it's a crisis or a flu, etc. I'm a retired paramedic, and I understand the logistics. It's so different as a patient. Little tidbits, I have emergency doses taped to water bottles in little med ziploc bags. Because I get so weak, I can't speak or move when it's bad. Wear your Medic alert ALWAYS, even in the shower. Put a tag on your purse that you are an Addisons patient. Buy a bag 🎒 a red one. You can find them on Amazon and Etsy that have your name and diagnosis on it to carry your cortef injection. Most ambulances nowadays DO NOT CARRY CORTEF or any form of steroids!!! You can call your local responders and ask if they carry cortef. I'm so sorry you have this as well. It is life changing. I wish I could say you'll adapt to it. But, I've been caught completely off guard by a crisis often. Having your support people in place is key. I am lucky enough to have adopted a 9 yr old cat that seems to know when I am going into a crisis before I do! He keeps holding eye contact and will force me to stop whatever I am doing. Little guy has saved me a few times from the ER. Sending love and light to all my fellow warriors. ❤
Yes thank you...great reminders for safety for everyone....this was my first crisis and it was sudden and I really was mentally paralyzed on what to do...ER is very close so we headed there and they gave me 100 mg (my standard) bed side...I have never done a shot before and I was so scared...thank you for your comment ❤
Ive got secoundry but caused by taking prednisone long term. I also have type 2 diabetes and cant absorb insulin properly, so i would be acting the same.
Thank You for sharing. I’ve had a few serious episodes of something similar but no throwing up but I have all the other symptoms. Two episodes happened the morning after I had Alcohol, the other happened because I was worn down. I’ve been told that it’s a panic attack but I don’t believe that. I realized after the 3rd attack the correlation was low blood pressure, shallow breathing that one time got to the point that I felt paralyzed and was going to stop breathing, extreme cold. What Blood Type are you? I’m A-
Thanks for this video. I have it and never want to experience that. Of course the chances are I probably will, Strangely I am big with swelling and appetite with the Prednisolone as I seem to need a big dose. One thing they don't say about it is the psychological symptoms that Addison first described I am looking for info on my diabetic oral pills semiglutamide and whether they affect AI. I know they cause dehydration, am on the intro month and have been very poorly tonight. Wonder if they affect cortisol? God bless. They cause loss of appetite and I am wondering if they are dropping cortisol because of course we know this does that.
I was in the hospital and they gave me cortisol. They told me I had Addison’s disease I’m not taking nothing for it but it does affect my brain and I try to stay calm I drink salty water and I really don’t know how to function with it. I’m not on medication.
Hey there...if you have addison's disease you would require daily medication for treatment..why don't you need steroids? Addison's patients do not produce adequate amounts of cortisol and required daily replacement.
@@chronicallyfit_withjill I went into the hospital and they give me papers and tell me I had Addison’s disease I’m not on any medication right now, but I still have attack, and I am trying to prevent from having to takeit She does not have me on it my doctor right now hoping prayerfully that I can eat right and rest and do my best is all I know I can do
8:00 pm Thurs. Jill I have a story about my Addison disease and a crisis that put me in a coma for three weeks and three months in hospital. I was diagnosed in 2020. Long story but we can shorten it up. Just don’t know where to put out at to share with you. I can give you my phone # if you need it.
For me i cannot tolerate steroids in amy form , i am hyper responsive to the eye drops , cream , nasal spray & oral . Also severely allergic to injected steroids . But isnt this how adrenal issues are managed !!! 😢
You could try cream of tartar, for potassium. Advanced TRS for detox safely, there is a support group on Facebook with 169,000 people. You can heal I believe, naturally. I’m about to publish a book on my healing journey from adrenal insufficiency- My BP got to 80/40 As low as a baby. Single mum, two kids. I healed my gut I used castor oil packs I worked out potassium To sodium ratio via Dr Berg Is key. At Least 4700mg potassium a day And 1 teaspoon of quality salt Ian Clark at activation products has black sesame oil to rejuvenate adrenals Make sure eating organ meat and or supplements DMG is key for methylation and oxygenation of body. ATP in form a D Ribose helped me with energy too Much love ❤️
![일상 속 기분 좋음 [Proto disco meme]](http://i.ytimg.com/vi/DwmEIaZ7XGQ/mqdefault.jpg)
I so relate with the being overstimulated & dealing with people. "Go away, but stay & love me" 🤣 it takes special people to give us our space to be us ❤
Thank you for sharing your story. I was diagnosed in July 21 from having a crisis. Determined Addison Disease was caused from immunotherapy treatment for cancer. I was put on Hydrocortisone treatment and have had several crisis where I was rushed by rescue to local ER.
@timsimmons4615 this is going on with me now. My health was fine before immunotherapy.
I have said this way to many times I would know I was alive if I didn’t feel pain. 😮
Im an ER nurse and I find it shocking that there’s stories about Addisons not being treated. Addisons is a part of our curriculum. Also, the BC ambulance service carried hydrocortisone for adrenal crisis as of this year :)
I agree but its true 🙁 that is great they now carry HC. Progress!!! ❤️❤️
Oh Jill. This is so completely how my crises have gone! I’m amazed that they gave you fluids and your Solucortef without a ‘doctor’s’ orders!! So wonderful! I had a crisis 2 weeks ago… went to the ER and they played ‘let’s google Addison’s’ 😞 I don’t remember much, but I do remember sitting in triage breathing so shallowly and the triage nurse telling me to ‘stop breathing so heavily, I’d hyperventilate’. I looked up at my husband and said, ‘please don’t let me die’. The fear is SO real. I’m so glad you’re doing better now.. and bless sweet Harley for getting you the immediate attention you needed! 💗
Oh friend...I am so sorry you went through that but yes an unfortunate reality of this illness...please take care! My little wonder girl Harley passed away...I miss her so much.
Thank you for this video I'm 53 year old male i was born with Addisons Disease been taking steroids all these years.
Thank you for watching and the comment...please take care friend!
J
I have adrenal insufficiency
I love your story
i learn a lot
Thank you for the comment...take care friend.
Reading this and waiting for my doctor to come back on Monday to read my blood work. I have read it. From what i can decern from the blood work, i have hypopituitarism - a form of Addisons supposedly quite rare. Regardless treatment is cortisol replacement. MRI, Endocrinologist to determine if it is tumor related on the pituitary gland. I should be scared and am worried,but I had a dog, Papillon, with Primary Addisons. He lived to be 15 with medication ( Cortisol and Percorten). Good luck to all of us.
Take care friend!
I have primary Addison 's due to immunotherapy for cancer. I just recently got my emergency Injection kit , it took me two years since diagnosis and 2.5 years since onset. Thank you for all the information!
Take care friend..I hope you find the information helpful!
I just saw my doctor and he threw out the words adrenal insufficiency. My cortisol is 130 mnol at 9 am. I have been sick for over a year but recently started having issues with potassium and other electrolytes. Im not sure if I have addisons or not yet. He ordered other testing. But man I feel like garbage
So many of these after the coof v@x
Did you ever find out?
Just came across your profile and can’t believe your mini dachshund looks so much like mine 😍. Dachshunds are the best. 🧡 Just had my 24th Addisonian crisis since my diagnosis (which was in July 2023) today and now am curious what your crises are like. In case anyone wonders: I’m severely ill, that’s why my Addison’s disease freaks out so much and frequently.
How can I help....miss my Harley so much she passed away in Sept 2022. How are you feeling?
Thank you for sharing your story. I don't take any chances with my Addison's and give myself an injection when I know I'm failing. Don't wait-use your emergency injection!! I did have a crisis when two injections in 1 hour didn't help. Spent 4 days in the hospital and it took me 4 weeks to feel better.
Great advice friend...it takes so long to recover...truly a sign of how hard our bodies have to fight in a crisis....be well friend...thanks for watching my videos!
I’ve got secondary adrenal insufficiency. I had my first adrenal crisis a few weeks ago. It was scary. I called 911. Luckily the paramedics understood adrenal insufficiency so they started iv with steroids and fluids.
Be safe friend...glad you had proper care
What did that feel like
This sounds like all of my symptoms and pretty sure I’ve experienced crisis..my dhea and low CO2 came out but cortisol was a 9 which doctor said it was normal. Two days ago I got sick with a cold and my sugars would drop to 40s 50s the most 60s and I know when someone is sick normally sugars are up. And whenever I have these crazy episodes of stomach pains throwing up and diarrhea it’s always between 12am-3am. 😩
oh no friend...what kind of testing have they done? Anything I can do to help?
My endocrinologist is young and his trying to figure out but he’s puzzled becasue my 8am cortisol was a 9 and acth was a 12 but I think from what I’ve read I think a stim test needs to be done if cortisol is between 3-18 but idk maybe I need to suggest stimulation test
Thank you! I’m so glad you are still here with us! Wishing you good health! 🇨🇦💖🧡💛💚💙💜🤍
Thank you for doing this video, God be with you...
I'm in the diagnosis phase right now. Turns out, imaging showed an enlarged left adrenal gland back in 2016. I had an episode a couple weeks ago, blood pressure shot up, landed in the ER, it was a nightmare, 4 days later I'm back in a different ER, tests and imaging, no real answers but blood pressure comes back down, I'm released but have follow-ups. (This is actually the third episode I've had since 2012 but undiagnosed till now)
So I go to the doctor, he listens to what led up to my ER visit, does a review of previous image reports and right off the bat he says "you have an enlarged adrenal gland, (although he didn't really go into detail on what it meant. I think he wants all the new results before he goes there).
So now I'm driving myself crazy trying to research and learn while going through these preliminary testing of kidneys, pulmonary, heart, bone and so forth ... It's all very overwhelming...
May the Lord be with you
Take care friend...thank you for watching and the comment...I hope you find them helpful xxoo
This is both frightening &extraordinary thank you x
If you had stress dose of the solucortef in the home, why did you hold off giving yourself a dose? For myself feeling fatigue with vomiting more than 2 times or any sign of diarrhea is stress dose time immediately followed by getting to the hospital. Two adrenal crisis events caused me to code blue in the hospital, I’m not telling you this to scare you but to maybe advise you to take action sooner. It’s a terrifying illness to live with, I give you a lot of credit that you can still hold a job. I had to leave my career 27 years ago. Thanks for sharing your story. Take care💕
My crisis came on very very fast and took me down before I could make an rational decisions...it was my first major crisis...I learned a lot from it!
I'm pretty sure I'm experiencing adrenal insufficiency and quite possibly an adrenal crisis but I'm not currently diagnosed with addison's/adrenal insufficiency...
At the age of 15 I had mono and ended up quite sick- other than the mono they never did find anything else. I've experienced symptoms on and off since (I'll experience a flare anywhere from a few weeks to several months, even a year and then have a period of remission for a few weeks to a few months) and I'm now in my mid 30s. We've ruled out pretty much everything else and though I have pretty much every sign/symptom of adrenal insufficiency they can't see the correlation... and thus they won't do the lab worked needed. They referred to endocrinology but they don't have avail appts til October (2023)... when I go to the ER and try to explain this they say it's not something the ER is set up for and to follow up with PCP/specialist....
Wish I could find people that understood this more and didn't dismiss it so quickly just b/c they don't understand it and/or haven't been exposed to it (b/c its rare).
So glad you have the support system and care team you do. God bless! 🙏
Where r you located. Please msg me if I can help. Can u pressure for more tests sooner? Please be safe ❤️❤️❤️
@@chronicallyfit_withjill Thank You for your reply! I'm in Central Virginia -pretty much between Richmond and Charlottesville. The county health clinic I've been going to won't do the tests I've requested (Vitamin/Minerals, ACTH, and hormone-all of them Cortisol, aldosterone, estrogen, progesterone, thyroid)... the PCP stated he did not see how my symptoms were related to Addison's/adrenal insufficiency as my CBC and Metabolic panels were coming back "normal" (and this was after my pointing out that while they are normal, things like my sodium and potassium are on the low end of normal and my CO2 and BUN levels have been low + I recently had a syncopal episode/catatonic like state (due to orthostatic hypotension which I have a hx of as well as bradycardia and sinus arrhythmia) + an overall health hx that supports this as a dx-pretty much every sign/symptom I have had at sometime point, on/off, or presently); so, he put in a referral to endocrinology...and their first avail appt is in october....
When I've gone to the ER for symptoms (severe abdom pain/right side abdom and flank pain) and push for them to run tests for this they tell me they can tell I've done a lot of research into this but the ER can't do those tests/ b/c it's possibly related to an on going issue/a complication of known GI issues and to follow up with my PCP &/or a specialist... our medical model/western medicine these days seems to be a joke/and endless loop of people passing the buck (it's all about the $ vs actually healing/helping people). So, for now, since it's an apparent waiting game I just pray the Good Lord sees fit to keep me holding on and keep myself educated (thankfully I used to be an EMT and worked in a critical care unit so God has blessed me with being able to understand medicine/the human body) and pass it on to my fiance in case something happens between now and the endocrinology appt.
Thank You again for your reply! and for your content on your channel. I pray you are able to keep a good medical care and support team where you are. Please reach out/message if you ever need support/prayers on your Addison's Journey.
@@Melissa_PhoenixRisingBlogDid you ever get any answers? I hope so!
@@BS-dq1kz No I did not. The endocrinologist that I was referred to decided to cancel my appointment - because the thyroid labs (TSH only) my PCP ran were "normal", they didn't see where their expertise was needed and advised to follow-up with PCP. I've since gotten an appoint with another family medicine doc for a second opinion ...still waiting for that appt though.
@@BS-dq1kz In July of 2024 we finally started getting some answers. I've had 2 doctors now confirm/dx adrenal insufficiency("adrenal fatigue"). Also, we've learned I have dysautonomia (POTS) and am hypermobile. This doctor we recently found has been a blessing (Dr. Gharbo with VCU)- hopefully we will get more answers and/or determine a management plan + treatment for flares plan.
You just made me start balling crying! Thank goodness! Thank you for want to share your story!
Ahhh friend...thank you for your comment and compassion ❤
You are so lucky you have someone who will stick around after having to call an ambulance for you. I knew he’d leave me if I went to the hospital and he did. I’ve been abandoned. No friends or family. I have had lab tests for this and EDS as well
Oh friend I am so saddened to read this. You have us to help anyway we can ❤️❤️
I am so sorry you had to go through this. I have SAI, disgnosed about 2 mo ago. I appreciate your podcasts so much. I was just curious as to why you didnt give yourself the solucortef injection earlier? My script came with no syringes or saline. I have those now. Folks should check that they uave all the supplies and are trained how to administer as well as someone in their home if available.
Anyhow, very glad you ended up okay!!
You are right I should have...but it came on so fast and I was confused and scared. So scary....❤
@@chronicallyfit_withjill makes sense....it is really scary to go into a crisis. Glad in the end you had skilled first responders and life saving care :)
@@dietriche6798 yes very scary and it was fast I couldn't think. thank you friend ❤
Hi Jill
Thanks for sharing your story. It made me realise how serious adrenal insufficiency is.
Have you had your potassium and sodium levels checked using hair tissue mineral analysis?
The hair is an extension of our nervous system and tells us everything I believe.
My results showed extremely low potassium and sodium.
Can you try cream of tartar, and let me know if it helps your stress?
I’ve just discovered it for healing adrenals, along with Vitamin A from Cod liver oil and organ meet liver.
My BP went down to 80/40 at Drs, just told me I was depressed and sent me home.Hynoticjerks in night thousands of times, pain in chest, poor concentration and memory, for past few years, no idea why! Until now!
Was diagnosed with chronic fatigue 20 years ago! Should have been adrenal insufficiency! And been given cream of tartar and salt in the right ratio. I also have high levels of Mercury -again hair testing showed this!!
Rick Fischer is in Canada and works with ppl all over the world. You can heal I believe from this!
I’m publish ing a book soon on my discoveries! To help others! 🙏💕🙏
Thanks for sharing! Happy that you were well treated. I was diagnosed 5 years with Addison and so far no crisis. I'm afraid of having one because there are so many bad stories with er and addison crisis. I live in Quebec and paramedics cannot inject medication!
Hey there...be as prepared on. you can be for a crisis..send me a message at chronicallyfit@rogers.com and I will send you a free adrenal crisis kit. Documents on my website to www.chronicallyfitcanada.com that you can download for free
Thank you for your candor. This really helps me understand the seriousness of my sons girlfriends condition. God bless@
Thank you for your comment. I hope it’s helpful ❤️❤️
Thank you for the knowledge it’s power! I have Addisons and can’t seem to get people to understand.
it is so hard to explain to people the ups and downs and how it literally effects EVERY CELL in our bodies. ❤
Thank goodness u r ok and they knew what to do.
Yes so scary...we need to prepared and I was and I learned a lot for the next one!
This one is making me tear up
ahhhh...friend...thank you for watching my story.
@@chronicallyfit_withjill you are welcome
Thank you for sharing. Recently diagnosed and have been borderline myself a couple of times. It helps to learn from others experiences.
I hope you find my journey and the guest episodes helpful. Prof Wass episode was amazing and I highlight recommend the book he contributed too! must have!
Wonderful! Thank you for the info
Please help! I fully and completely believe I have addison's disease, I have all the symptoms and have been getting worse and worse lately. My blood pressure is around 90/60 and drops from there.... I have not yet been diagnosed with anything other than autoimmune thyroiditis. Can you please tell me what your cortisol level was when you were diagnosed?? My cortisol level was checked a couple times and each time they said it was 'within range' but it was checked when I felt fine...
I am so sorry to hear you are struggling...my cortisol levels were normal my ACTH hormone from my pituitary gland was extremely high indicating my adrenals were failing. I did not go into an adrenal crisis when I was dx...I was just very close it. If I had a crisis then my cortisol would have been low. My sodium and potassium levels were normal as well. Please ask any questions happy to share my journey
It’s life changing n some times u want to ignore it but it’s very serious Iv add for 18 years n my life the same n hospital don’t understand n you tell them n there just don’t no n Iv been on antibiotics for 15 weeks n u feel so drained and worn down and if u got anything u think your in crisis u ring ambulance n tell them u shud buy rights u shud have card u carry everywhere n I add heart attack and the pain hurts so much you have got to tell them but dr get funny staff my blood pressure very low and it gave me nervous break down feel fee add me on Facebook anyone it’s so serious n ppl think it’s not x
Thank you so much ❤️
❤️❤️❤️ thank you for watching ❤️❤️❤️
Harley is beautiful🥰
thank you so was so sweet..miss her dearly
Do you get brain spasms and hypnic jerk specially when you try to sleep?!?
YES I DO!
Same exact thing here 😭
I have had adrenal insufficiency for last few years, if not 20 years. At my worst I got hypnotic jerks at night, urges of being sick. Anyway, cream of tartar has potassium and is helping me with stress. I hope this helps someone 🙏
I'm confused. Didn't they tell you to take emergency doses with vomiting or even the earlier symptoms? I've had Addison's since 2009. The standing order is 30mgs additional to your regular dose.. I take 20mgs of cortef in the am and 10 in the afternoon. But. If I need an emergency dose, I take that 30mgs the same time the next 2 days. For a total of 30mgs additional for three days. Now, if I don't feel better after the 30mgs, it's ER time. I understand how confusing it can be to never know if it's a crisis or a flu, etc. I'm a retired paramedic, and I understand the logistics. It's so different as a patient. Little tidbits, I have emergency doses taped to water bottles in little med ziploc bags. Because I get so weak, I can't speak or move when it's bad. Wear your Medic alert ALWAYS, even in the shower. Put a tag on your purse that you are an Addisons patient. Buy a bag 🎒 a red one. You can find them on Amazon and Etsy that have your name and diagnosis on it to carry your cortef injection. Most ambulances nowadays DO NOT CARRY CORTEF or any form of steroids!!! You can call your local responders and ask if they carry cortef. I'm so sorry you have this as well. It is life changing. I wish I could say you'll adapt to it. But, I've been caught completely off guard by a crisis often. Having your support people in place is key. I am lucky enough to have adopted a 9 yr old cat that seems to know when I am going into a crisis before I do! He keeps holding eye contact and will force me to stop whatever I am doing. Little guy has saved me a few times from the ER. Sending love and light to all my fellow warriors. ❤
Yes thank you...great reminders for safety for everyone....this was my first crisis and it was sudden and I really was mentally paralyzed on what to do...ER is very close so we headed there and they gave me 100 mg (my standard) bed side...I have never done a shot before and I was so scared...thank you for your comment ❤
Ive got secoundry but caused by taking prednisone long term.
I also have type 2 diabetes and cant absorb insulin properly, so i would be acting the same.
Yes our roads to AI are different but treated the same basically ❤️❤️
Thank You for sharing. I’ve had a few serious episodes of something similar but no throwing up but I have all the other symptoms. Two episodes happened the morning after I had Alcohol, the other happened because I was worn down. I’ve been told that it’s a panic attack but I don’t believe that. I realized after the 3rd attack the correlation was low blood pressure, shallow breathing that one time got to the point that I felt paralyzed and was going to stop breathing, extreme cold. What Blood Type are you? I’m A-
Good question I need to find out my blood type.
I’ve had 5 in my life I think
Be safe ❤️❤️
Thanks for this video. I have it and never want to experience that. Of course the chances are I probably will, Strangely I am big with swelling and appetite with the Prednisolone as I seem to need a big dose. One thing they don't say about it is the psychological symptoms that Addison first described
I am looking for info on my diabetic oral pills semiglutamide and whether they affect AI. I know they cause dehydration, am on the intro month and have been very poorly tonight. Wonder if they affect cortisol? God bless.
They cause loss of appetite and I am wondering if they are dropping cortisol because of course we know this does that.
Hope you find your answers ❤️ and the psychology effects of low cortisol are very real ❤️
Thanks ever so much, pray that is the first and last one of those you ever have xxx@@chronicallyfit_withjill
I was in the hospital and they gave me cortisol. They told me I had Addison’s disease I’m not taking nothing for it but it does affect my brain and I try to stay calm I drink salty water and I really don’t know how to function with it. I’m not on medication.
Hey there...if you have addison's disease you would require daily medication for treatment..why don't you need steroids? Addison's patients do not produce adequate amounts of cortisol and required daily replacement.
@@chronicallyfit_withjill I went into the hospital and they give me papers and tell me I had Addison’s disease I’m not on any medication right now, but I still have attack, and I am trying to prevent from having to takeit She does not have me on it my doctor right now hoping prayerfully that I can eat right and rest and do my best is all I know I can do
Have you noticed any tremors or leg cramps with this condition? Unable to sleep because your system is presenting fight or flight response?
Hey personally no issues sleeping but i do get cramps and small tremors. Thank you for the comment ❤️
@@chronicallyfit_withjill thank you! 🙏
8:00 pm Thurs.
Jill I have a story about my Addison disease and a crisis that put me in a coma for three weeks and three months in hospital.
I was diagnosed in 2020. Long story but we can shorten it up. Just don’t know where to put out at to share with you. I can give you my phone # if you need it.
Send me a message. www.chronicallyfitcanada.com ❤️
For me i cannot tolerate steroids in amy form , i am hyper responsive to the eye drops , cream , nasal spray & oral . Also severely allergic to injected steroids . But isnt this how adrenal issues are managed !!! 😢
You could try cream of tartar, for potassium.
Advanced TRS for detox safely, there is a support group on Facebook with 169,000 people.
You can heal I believe, naturally.
I’m about to publish a book on my healing journey from adrenal insufficiency-
My BP got to 80/40
As low as a baby.
Single mum, two kids.
I healed my gut
I used castor oil packs
I worked out potassium
To sodium ratio via Dr Berg
Is key.
At
Least 4700mg potassium a day
And 1 teaspoon of quality salt
Ian Clark at activation products has black sesame oil to rejuvenate adrenals
Make sure eating organ meat and or supplements
DMG is key for methylation and oxygenation of body.
ATP in form a D Ribose helped me with energy too
Much love ❤️
Yes it's managed with steroids