Just at 8:22 and as someone who definitely has PDA, id say that its not that I dont recognise or understand the social things you mentioned, "social rank", "reciprocity" etc, its that i actively don't believe in them. I think they are false. I will recognise things which i feel are real and good to respond to but i will absolutely not do anything just because "its the thing to do" or "because others do it" or because its a social norm etc.
Exactly! I find it SO WEIRD that neurotypicals just do these things without questioning them; they’re like sheep to me. It’s like… they don’t even recognize that things DON’T HAVE TO BE THIS WAY.
I'd be interested to know what Dr Gabor Mate thinks about the new PDA label. It doesn't sound useful to me, I don't see what the benefit would be for a person to have that label. Most of the kids I work with have these kinds of behaviors, but they are symptoms of underlying processing challenges or just autism biology. As a clinician the approach I would use would not change at all by adding another set of labels to the alphabet soup. As mentioned in the podcast, the label itself speaks to obedience (or the lack of), and when I personally hear the term, it feels very much like it's saying a "PDA'er" chooses to be "defiant". Often these types of behaviors are about providing safety and security and the brain actually being in a fight/flight/freeze mode which makes it difficult to access higher level cortical functions. I'd love to know what actual "PDA'er"s feel about it. Are there any adults at this point or is it all children who have this label?
I'm 33 and I'm an autistic PDAer, why do you care about the labels that much? There are no high functioning, or low functioning autistic labels anyway, because autism is a broad spectrum that isn't measured on a linear scale from 1 to 10 in severity. The spectrum is more like a gradient color wheel. It's no different than all of the hundreds of fake pronouns that the LGBTQIAWTF woke people are now using to describe themselves. Why would you take the labels away like the term Aspergers too? Honestly, I don't care what labels are used, as long as it's meaningful to a broad audience to describe Autism Spectrum Condition or ASC rather than ASD. I also prefer label-first language rather than person-first language, such as an autistic person, rather than saying that a person merely has autism, or a person with autism. I'm not woke, but I can still appreciate the labels that the LGBTQIA+ community use despite the fact that they're nonsensical terms, because we have to respect others wishes to self-identify how they wish. If the consensus within the autistic community wants to use the labels Aspergers, ASC, and PDA why can't we just embrace it, because we've earned the right to use any labels that we want, because we're differently abled, and not necessarily disabled. Elon Musk is the richest person in the world, and he uses the term Aspergers to describe himself, so get over it April DeAngelis.
@@Traybair Again it’s about how the *individual’s* experience of Autism is paramount, not what a bunch of others think about it- high needs is high needs with regards a culture that *measures* individuals in terms of output and ‘productivity’, rather than simply asking the question ‘what does this individual need in order to live their best life as decided by them?’. Disability only exists in a miasm in which there’s a ‘normal’ that is decided upon; when an individual’s personal lived experience and circumstances are seen as _their_ normal, ‘disability’ isn’t the marker. Any ‘disability’ I have as an Autistic individual is created by the external dictates and demands of a culture that thinks _it_ is ‘normal’ when in fact that’s an entirely artificial marker based on a whole bunch of other artificial constructs. Autistics would create a very different, much more egalitarian and accepting society than allistics have created… that’s my experience.
@@aprildeangelis999 I use the label because the best descriptions of what it is are the best descriptions of my autistic traits. I don't accept the actual literal meaning of the label though, "pathological" especially not.
I do. Basically when my threat response becomes triggered, my need to avoid becomes overwhelming, and my nervous system takes over, kicking me out of my thinking brain. PDA is basically where the nervous systems need for autonomy and controll is greater then all other basic needs… including sleep and eating (when triggered) For example, sometimes my own need to go to the bathroom at night triggers my pda avoidance, which causes me to freeze. When I’m in the grip of my pda it feels almost physically painful to go against my threat responses. It almost feels like claustrophobia. But when my pda “let’s go” I can go to the bathroom. Usually when my need to pee outweighs or becomes “bigger” then the pda. It’s just that usually the pda is bigger then other needs at a baseline. That’s what makes it pda
I mean the need for autonomy is the first card in my stack of needs (we all have basic needs like a need for freedom, need to eat, need to be loved…), it’s the biggest need compared to all the others (or flares up the strongest when triggered that it outweighs all the others when presently active). My nervous system perceives lack of autonomy as the biggest threat to my life, it truly feels life threatening when my autonomy is compromised. I am able to hide it but usually end up burning out after a while ignoring my need of autonomy. I e been in burnout for years still recovering from my experience in school and working experience even though I graduated so long ago and haven’t worked (could not work) for a year. Still very much in burnout, my pda is hypersensitive and I get triggered easily due to still not perceiving safety in my environment. But I’m starting to finally heal now.
Just at 8:22 and as someone who definitely has PDA, id say that its not that I dont recognise or understand the social things you mentioned, "social rank", "reciprocity" etc, its that i actively don't believe in them. I think they are false. I will recognise things which i feel are real and good to respond to but i will absolutely not do anything just because "its the thing to do" or "because others do it" or because its a social norm etc.
Exactly! I find it SO WEIRD that neurotypicals just do these things without questioning them; they’re like sheep to me. It’s like… they don’t even recognize that things DON’T HAVE TO BE THIS WAY.
@marissahicks3529 Lol ❤️
Thank you so much , I’m struggling getting my 9 yr old daughter help
I'd be interested to know what Dr Gabor Mate thinks about the new PDA label. It doesn't sound useful to me, I don't see what the benefit would be for a person to have that label. Most of the kids I work with have these kinds of behaviors, but they are symptoms of underlying processing challenges or just autism biology. As a clinician the approach I would use would not change at all by adding another set of labels to the alphabet soup. As mentioned in the podcast, the label itself speaks to obedience (or the lack of), and when I personally hear the term, it feels very much like it's saying a "PDA'er" chooses to be "defiant". Often these types of behaviors are about providing safety and security and the brain actually being in a fight/flight/freeze mode which makes it difficult to access higher level cortical functions. I'd love to know what actual "PDA'er"s feel about it. Are there any adults at this point or is it all children who have this label?
I'm 33 and I'm an autistic PDAer, why do you care about the labels that much? There are no high functioning, or low functioning autistic labels anyway, because autism is a broad spectrum that isn't measured on a linear scale from 1 to 10 in severity. The spectrum is more like a gradient color wheel. It's no different than all of the hundreds of fake pronouns that the LGBTQIAWTF woke people are now using to describe themselves. Why would you take the labels away like the term Aspergers too? Honestly, I don't care what labels are used, as long as it's meaningful to a broad audience to describe Autism Spectrum Condition or ASC rather than ASD. I also prefer label-first language rather than person-first language, such as an autistic person, rather than saying that a person merely has autism, or a person with autism. I'm not woke, but I can still appreciate the labels that the LGBTQIA+ community use despite the fact that they're nonsensical terms, because we have to respect others wishes to self-identify how they wish. If the consensus within the autistic community wants to use the labels Aspergers, ASC, and PDA why can't we just embrace it, because we've earned the right to use any labels that we want, because we're differently abled, and not necessarily disabled. Elon Musk is the richest person in the world, and he uses the term Aspergers to describe himself, so get over it April DeAngelis.
@@Traybair Again it’s about how the *individual’s* experience of Autism is paramount, not what a bunch of others think about it- high needs is high needs with regards a culture that *measures* individuals in terms of output and ‘productivity’, rather than simply asking the question ‘what does this individual need in order to live their best life as decided by them?’. Disability only exists in a miasm in which there’s a ‘normal’ that is decided upon; when an individual’s personal lived experience and circumstances are seen as _their_ normal, ‘disability’ isn’t the marker. Any ‘disability’ I have as an Autistic individual is created by the external dictates and demands of a culture that thinks _it_ is ‘normal’ when in fact that’s an entirely artificial marker based on a whole bunch of other artificial constructs. Autistics would create a very different, much more egalitarian and accepting society than allistics have created… that’s my experience.
@@aprildeangelis999 I use the label because the best descriptions of what it is are the best descriptions of my autistic traits. I don't accept the actual literal meaning of the label though, "pathological" especially not.
I do. Basically when my threat response becomes triggered, my need to avoid becomes overwhelming, and my nervous system takes over, kicking me out of my thinking brain. PDA is basically where the nervous systems need for autonomy and controll is greater then all other basic needs… including sleep and eating (when triggered) For example, sometimes my own need to go to the bathroom at night triggers my pda avoidance, which causes me to freeze. When I’m in the grip of my pda it feels almost physically painful to go against my threat responses. It almost feels like claustrophobia. But when my pda “let’s go” I can go to the bathroom. Usually when my need to pee outweighs or becomes “bigger” then the pda. It’s just that usually the pda is bigger then other needs at a baseline. That’s what makes it pda
I mean the need for autonomy is the first card in my stack of needs (we all have basic needs like a need for freedom, need to eat, need to be loved…), it’s the biggest need compared to all the others (or flares up the strongest when triggered that it outweighs all the others when presently active). My nervous system perceives lack of autonomy as the biggest threat to my life, it truly feels life threatening when my autonomy is compromised. I am able to hide it but usually end up burning out after a while ignoring my need of autonomy. I e been in burnout for years still recovering from my experience in school and working experience even though I graduated so long ago and haven’t worked (could not work) for a year. Still very much in burnout, my pda is hypersensitive and I get triggered easily due to still not perceiving safety in my environment. But I’m starting to finally heal now.
I also strongly disagree that this trait is celebrated in adults. I have found the exact opposite and to an extreme degree.