Vascular Ehlers Danlos: An Overview (Virtual Medical Symposium Series - 3/18/19)

Sherene Shalhub, MD, MPH, University of Washington, and Shaine Morris, MD, MPH,Texas Children’s Hospital, provide an overview of vascular Ehlers Danlos syndrome. In this webinar, they discuss the genetic cause, the most common features, monitoring, and treatments.
If you'd like a copy of the slides from this presentation, please visit our website: www.marfan.org...
The Marfan Foundation will offer more information on vEDS at its 35th Annual Conference, July 11-14, in Houston. For the first time, we provide a series of workshops specifically for people with vEDS. Visit marfan.org/conference19 for information.
For more on the Virtual Medical Symposium series and to register for upcoming webinars, visit www.marfan.org...

[@melissafarrugia9531]

The information from these symposiums is so greatly appreciated, thank you very much ❤

[@melissafarrugia9531]

Thanks so very much for this upload. 42:41 just the comments on the tendency towards the thin side therefore not perhaps a candidate for weight loss surgery. ❤ Thankyou
My gastroenterologist unfortunately didn’t know this and said I could not have EDS because I had weight loss. Unfortunately he also didn’t think my caecum lying lower than the normal position was of importance, although it can be found in literature as a rare manifestation of EDS to have any abdominal organs lying lower than normal. I truly hope that more awareness is exponentially growing with every view of EDS content.
❤

[@nw9395]

Is it normal for your vains to burn if you have vascular EDS?