‘It shouldn’t be this hard to survive’: 28-year-old talks life as a COVID long-hauler l GMA
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- เผยแพร่เมื่อ 10 มี.ค. 2022
- Nicole Wahler, a former science teacher from New Jersey, shares how she went from weightlifting to battling multiple chronic illnesses after testing positive for COVID-19 in 2020.
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Mercy!!! I am so tired of being told “YOU HAVE ANXIETY”!!!!!!!! I feel your pain🙏🙏
Do you have MVP(Mitral Valve Prolapse) ? My cardiologist told me that's what causes these symptoms, including "anxiety".
I had anxiety when I had covid a couple of years ago. A few days after catching it the anxiety started and lasted about 2 months with my heart rate being higher then normal. But when the heart rate was normal the anxiety left. I know it was from the covid. I also started losing my hair after about 3 months. I've talked to some people that had the same thing happen, and some didn't. Everyone seems to be effected in different ways.❤
I've had these conditions for ten years now. The really tragic silver-lining to this whole pandemic has been that light is being shed on post-viral illness like POTS, CFS, MCAS, etc. we've been suffering in silence for so long
I couldn’t agree with you more. I was reading an article the other day regarding neurological disorders due to virus infections. Párkinsons is a disorder that starts with loss of smell, so we will probably see in the future more people being diagnosed with Parkinsons and probably dementia or Alzheimer. Most autoimmune conditions are due to prior virus infections that linger in the body.
Agreed!!
Western medicine has been self-serving for a long long time now, this really is OLD NEWS ,,, JUST A DIFFERENT CHAPTER ,,, nothing changes in the fishbowl world 🌎 😞
Yes. I contracted an virus much like Covid before the pandemic and once “recovered”, I have never been the same. I’m not this severe, but definitely had to switch to low histamine diet and supplements. But still not the same
I wish they would talk more about MCAS . My son is super sick every summer because of pollen.
This is what daily life is like for many of us people with autoimmune disorders.
@@Matt-fl8uy to raise awareness?? Lol
@@Matt-fl8uy Because she wanted to let the poster know that she's not alone? Why did you take it out of context to the extent that you have to make a big deal of it? Calm down dude...
I'm a long hauler with Lupus and rheumatoid arthritis (autoimmune disorders) before covid I was in front of the bus after covid... I'm under it. Some people will never understand, so don't waste your precious breath Katie!!
@@Matt-fl8uy They're literally talking about the same thing. Post-infection symptoms are under a huge umbrella of auto-immune illnesses. You're quite a silly goose aren't you lol
@@Matt-fl8uy As a nurse who has worked on the covid unit of 4 hospitals, I can tell you that a shi!t ton of covid patients have lingering symptoms. It's overwhelmingly from the younger patients; maybe because they're the ones that survived while the older patients died. So twenty years from now(if armageddon continues to be late)we're gonna see an uptick in all kinds of crap & the only link will be having fvcking covid way back when.
Two year long hauler here as well, so much love to all the survivors! Thank you for sharing your story and for keeping up the fight! Such an inspiration!
@@annveronica7795 thank you for gracing me (and the interwebs) with this ridiculous, unproductive, inconsiderate comment. It makes me wonder-what hole are you trying to fill by being a troll on TH-cam? And is it working? Or are you still inadequate?
@@annveronica7795 so let me get this straight-if I’m reading you correctly, your lack of experience with the virus is your accreditation to expertise on my actual experience with the virus and post-viral affliction, then? And in your expert opinion, my medically documented and diagnosed disability is either all in my head or caused by something other than my initial infection with COVID, after which my disability began and before which my health was irreproachable? (An infection that occurred long before vaccines were released, by the way, which I lay out in my initial comment some six months ago.) And “they,” whomever “they” may be, are not even trying to hide that fact that my disability is a sham of simple psychological distress or, more aptly to your evangelistic and unrelated response to my original post, the diabolical plot of time travelers who inoculated me prior to disability? Bless your heart, Ann, but if you truly believe that your viewpoint is logically coherent, in any way related to my post, and is in any way supportive, informative, and/or helpful to individuals like myself who have real world experience with a condition you claim is conspiratorial, then I sincerely hope YOU recover.
14 months with long covid and my doctor still says its anxiety I understand completely what she's going through everyday is a wave of different symptoms it doesn't end
Lol even your doctor told you to stop. You need a job and/or a hobby
@@74nova36 dont talk unless you go through the same shit. I bet this shit would having crying like a bitch
nothing is more toxic than someone who denies the existence of your condition. im in the same boat. sorry for your pain.
Are you fine yet?
@@weebo19 same here….no one will get it until they GET IT🙁 Everything is not anxiety!!! I hope you are better🙏
THANK YOU for shedding more light on Long Covid! My husband has dealt with it for over a year now. Completely uprooted his health. I've been chronically ill my entire life and now he takes more medications than me. This is a serious issue that many people don't even take seriously.
Yeah, there are still some who think Covid isn’t even real since they never experienced symptoms or didn’t know anyone who did. It affects everyone differently. Some don’t even have symptoms if they come in contact with it.
Very sad when family thinks you are over being over dramatic and you should just snap out of it. 😢
@@AnnaD25 I can relate, but strength comes from within. Hope for all improving
@@email4664 👍
You and your husband should check out a doctor named Stephen Cabral. He is EXTREMELY knowledgeable on how to help people who have health issues. He has a very resourceful podcast and runs a clinic called EquiLife where he will literally send you labs for testing if you live away from his practice. Im one of his patients. I recently got a whole comprehensive lab test done to see what’s going on with my body as a whole. He then gives you personalized protocols to nurse your body back to health. I’m literally starting a 21 day detox tomorrow.
Anyway, I wanted to share this with you because I would want someone to share potentially helpful resources with me. God bless you on your journey!
I really feel for her. I was at my peak fitness before becoming the most ill and debilitated. Not with covid, but still it is a DEVASTATING experience to lose your vitality like this
Yes, I can relate to thisas well. From fit to incurable cripple. It's hard.
Same, never got covid but I was always super cautious but still ended up gaining 60 lbs from being bedridden for the last 2-3 years off and on with chronic fatigue syndrome, cyclic vomiting syndrome and IBS which all in turn trigger each other amongst a whole lotta other problems.
I understand you 100% and will pray for you. Before covid I was a health strong athletic 42 year old man. In better shape than a lot of 25 year olds. I ran. And completed a Spartan race a year before. After covid I deal with crippling fatigue, GI issues, elevated heart rate even at rest, brain fog and yesterday was admitted to the ER for 103 fever of unknown origin and rapid heart rate. 2 IVs an intravenous steroid 800mg ibuprofen and 1000mg Tylenol later and Im home and doing ok. But I was never like this before covid….Praying we all get well soon ❤️
Can totally relate my friend, 4 months into long hauling
How are u now?
I had exactly the same experience as this beautiful young lady. I suffered covid in March 2020 I was not tested but told by the helpline that the symptoms were of Covid. The paramedic I spoke to when I couldn't breathe in not so many words said I was better off at home. I thought it was the end. But the worst was yet to come I suffered severely with the same symptoms as this young lady for about 6 months. As soon as my breathing improved I was determined to exercise myself to health which - I did. I still have down days but they are so much less often as time goes by. Glad she is ok and on her way up - things really will get better and better. God bless ❤🙏🏼
Omg me too … I think I had covid in summer of 2020 , never tested because had no symptoms but I had long haul covid symptoms for 11 months (finally it stopped and I can never take health for granted I didn’t feel like a human fit nearly a year)
🙏
My daughter was in physical therapy for a torn ACL and MCL in her leg. Every appointment she attended over 6 months had long haul covid patients in physical therapy to rebuild muscle strength, lung capacity, and other health issues.
I have a compromised immune system Mega blastic anemia and my great-grandmother lived on the Blackfoot reservation and then Native Americans will use special herbs to kill super viruses there's retroviruses that have been around since the dinosaur ranges and those are worse and covid virus people in South America have herbs to fight off malaria which you can die from very easily I recommend breathing in green tea and sea salt generals were to the sea salt to kill bacteria when soldiers ran out of antibiotics elderberry zinc Rishi cordycepin a mushroom civically built up immunity in the lungs salmon build up your interferons your strongest white blood count lion's mane heels nerve damage crushed chia seeds build up immunity in your lungs it's got more calcium than milk calcium kills cancer you want to increase it significantly High if it can kill cancer kills covid pretty fast I have a compromised immune system and I never ended up in the hospital I just fold this regimen and I felt better the next day and I fully got better in a week and it keeps the fatigue away
@@jasminefrichtl806 🙏
Ppl think this can’t happen to them but this can happen so randomly and I’m not trying to be a case.
I hope she and all those with these symptoms get better. It sounds so incredibly difficult
Keep going, you are so brave! My prayers are that you gain this battle against COVID 19🙏✨❤️
You-,split-the-sea
So-ican-walk-thru-it
My-fears-are-drowned
In-perfect-love
Faith-over-fear-here
?????????
The vaccinated all need to take ivermectin daily!!!!!!! Will stop these symptoms!!!!!!
May God bring forth a full restoration of her body and make her even healthier than she was before. There are many others in her situation who do not have access to good health care or even health care at all. Keep fighting!
I can so relate with her. I have been battling since 12/2020. I too was at my peak for health and had just came back to healthcare as an RN after raising family. I haven’t worked since and I am no longer active. It is very frustrating.
I have long haulers,and am almost fully recovered in about 9 months. I was hospitalized for a few days so they could run me through the tests to see why my heart rate was so high ,and very high blood pressure spikes.all tests showed nothing wrong. They medicate me for those issues ,but I was bed ridden for months. I fought as hard as I could to get better ,and I did. I still take meds ,but by slowly pushing my exercise a bit at a time ,and doing house chores again one at a time till I could do all I did before including playing my drums again I am almost through this. I still have a bit of trouble with shortness of breath every once in a while, but not as bad as it used to be. We all heal in our own time,but don't give up no matter what. You have to fight this to get through it.you will get better . Hang in there.
I had Covid twice. The first time was just a really bad chest cold, but the second time was so much worse with the fatigue and brain fog. You have to nebulizer immediately when you get Covid to Break up that mess, or you may end up in the hospital with a ventilator.
Were you vaccinated?
@@Matt-fl8uy I want to know the answer to this as well
Dang, "E Mail" told me to "grow up" and then blocked me. Would be happy to have a conversation if they weren't such a coward.
@@Matt-fl8uy Then we have to assume the answer was no
@@KnowledgeSeeker78491my, daughter, my son, his wife, my mother, and my father all had shots and boosters. All had Covid in the last few months. They have already let us know everyone will eventually get one of the variants
March 9th 2020 here. Took 14 months of babysteps. Dropped my guard and 2nd long haul happened with tons of neurological issues. On month 6 2nd long covid now. It's such a hard journey. I came back once. Gonna keep going till I'm back to 100%. Babysteps.
I was exactly like her...thinnest I'd been all my life...allergic reactions to food...high heart rate. But after two years, much better and back to full time work. The trick is to completely rest. I rested (not out of choice) for two years and think that helped my recovery a lot. She'll get there slowly...
Please eat plant based
I would love to talk with you about ypur journey.
@@cristobaljames4072 happy to answer any questions you have
Did you work during this period of time? Did anything help you besides resting? Were you able to exercise? Was there anything you can think of that made your symptoms worst?
@@cristobaljames4072 couldn't work for about 2 years. Could not exercise at all and still do very little to this day.
Things that helped: long covid support groups, fasting, iron supplements, multivitamins esp vitamin D, low histamine diet, antihistamines, stomach acid reducers, inhalers, amitriptyline, vaccine, boluoke & turmeric for anti-clotting (all taken at different times within those two years and with supervision from doctors, practitioners etc)
Things made worse by: exercise/ high activity, high histamine foods & sugar.
This is me. I throw up for no reason now. I have trouble carrying my daughter and when I take her to the park I can physically feel how weak I got from covid. I also lost a lot of weight and I can honestly can go days without eating because covid destroyed my appetite and makes things taste rotten.
@kokocrunch40 i will thank you. I’ll mention it to my neurologist next visit. I have epilepsy and we just thought because I have a preexisting condition that’s why I’m struggling
I completely understand as a mom, too. Having long haul covid felt like I could pass out most days from just playing at the park. I also struggled with eating because i lost my taste and smell a while back. I got them back, but a lot of things taste and smell different ever since. I got covid Dec 2020, and 2 months ago Jan 2022 I finally felt mostly back to normal. Hang in there mama💕
Possibly consider the following:
The spike protein of the virus is using the TLR4 protein on T Cells to Trigger an inflammatory immune response. This is to cause deregulated release of Cortisol that lowers inflammation. TLR4 can stimulate the release of Cortisol from adrenal cells to combat inflammation but Cortisol then suppresses lymphocyte gamma interferons and IL-8 cytokines and effectively suppresses the primary immune response allowing the virus to spread. Cortisol also primes the secondary immune response and you get increased cytokine inflammation. To promote CD4+ helper T Cells you get elevated Extracellular ATP (the energy molecule) that increases Il-18 cytokines that in turn promote CD4+ helper T-Cells and increase lymphocyte gamma interferons. IL-18 cytokines are also linked to deep vain thrombosis so ATP has to help break down these blood clots causing fatigue.IL-18 cytokines can also cause release of histamine from Mast Cells that helps fight infection but can also cause inflammation. Cortisol at elevated levels also disrupts gastric secretions, lowers circulating testosterone needed to regulate systematic inflammation, increases ROS which in turn increases oxidative stress. Increased oxidative stress causes cells to increase extracellular ATP they in turn increases IL18 cytokines. Elevated IL-18 cytokines cause deep vain thrombosis. Cortisol also causes insulin resistance and increase blood glucose leading to diabetes. Cortisol is also correlated with homocysteine. At elevated levels homocysteine is linked to stimulation of platelet activation (in vitro), COPD, Alzheimer’s, brain shrinkage and hardening of blood vessels and blood clots. With the original SARS the virus was found to be infecting the ACE2 receptors of cells in the endothelial wall. In response homocysteine increased the adhesive molecules on the surface of immune cells binding them to the infection causing inflammation.Blockage along the lining of blood vessels can cause cortisol to inhibit IL-10 signalling which regulates inflammation. By disrupting gastric secretions this means the ph levels are not low enough to promote secretions of the digestive enzyme Pepsin. Pepsin not only helps absorption of vitamins and minerals but also helps fight bacteria and viruses and in vitro break down upper respiratory blood clots. Cortisol can also increase TNF-Alpha cytokines by causing muscle cells to stop using glucose and start degranulating proteins. Excessive cortisol production can lead to adrenal fatigue which can cause chronic inflammation, fatigue, digestive issues and autoimmune disease. (Pernicious Anaemia is one such autoimmune disease identified. A blood test checking for B12 deficiency can identify this but allow for antibody interference as this can give false normal or even elevated levels of B12. Intrinsic factor antibodies can be considered) Disruption to gastric secretions can lead to a condition called Hypochlorhydria or low stomach acid. This means that food cannot be sterilised or digested properly and lead to a build up of bad bacteria and toxins. This can lead to bloating, diarrhoea, vomiting and acid reflux symptoms often misdiagnosed as high stomach acid. The acid reflux can be caused by build up of bad bacteria and toxins pushing out into the base of the oesophagus carrying particles of stomach acid causing inflammation at the base of the oesophagus. Inflammation at the base of the oesophagus can cause the top of the oesophagus to contract causing the sensation of a lump in the throat. You can also develop flood allergies and various vitamin and mineral deficiencies. Possibly consider the following (Always under medical supervision).
1. Taking a combination of 4,000 IU of Vitamin D3, C, B12, B5,B6 and magnesium and zinc. (This combination treats adrenal fatigue but also vitamin D blocks the release of Cortisol and lowers the expression of TLR4 proteins, magnesium and vitamin C lower cortisol levels)
2. Drink twice daily 250 ml of water with 1/4 teaspoon of salt. This will help to increase electrolytes to treat adrenal fatigue and the virus may be hijacking the protease the body uses to regulate salt and water absorption.
3. Taking a gradual increasing dosage of Betaine HCL (500mg) with Pepsin (24mg)
Betaine HCL inhibits TLR4 proteins, lowers key cytokines IL-18, IL1-b and TNF-a. It also increases IL-8 cytokines that promotes CD4 and CD8 T Cell immune response. (In a form of TB IL-8 cytokines were found to bind to the infection and stimulate a CD4+ and CD8 T Cell response)
It reverses insulin resistance and lowers cellular atp.
Betaine also lowers cortisol and homocysteine and increases testosterone needed to regulate systematic inflammation.
Betaine HCL with pepsin is ineffective at low dosage but must only be considered under medical supervision as it can affect cellular atp needed to provide energy to cells and the body and also increases IL-8 cytokines that can cause inflammation in blood vessels. It cannot be take with aspirin, ibuprofen, Tylenol, steroids or Pepcid Famotidine as it can cause bleeding and ulceration to the stomach. It also cannot be taken during pregnancy. The dosage is 1 pill with each meal 3 times per day gradually increasing to 2 pills depending on tolerance. If the higher dosage causes nausea, vomiting or diarrhoea then lower the dosage. Any medication should only be considered under medical supervision. I hope this information helps
I feel like this everyday.
OMG!! I got really sick in March of 2020 I was 28 as well. Till now, my legs are always hurting, it feels like there are knots in my legs all day. No matter what I do, walk, sit, exercise nothing helps. It feels like no matter how much I sleep, it's not enough. There are nights when I just feel like taking a chainsaw and chopping off my legs. The first year after I got COVID, I would cough up sooo much mucus all day every day. Randomly get dizzy and have hypoglycemia episodes. I feel like stress really exacerbates my leg pain. I pray with all my heart there is treatment soon. Anyone reading this who is gone through or going through this, please don't lose hope. There were times I didn't want to live anymore but you just have to keep going
Hi! I use a very firm roller for my legs, and go verrrrry slowly so my muscles basically Have to submit. Just wanted to share incase that might help.
@@QurVgn what kind of roller? Do you have a Amazon link for it?
My two small kids got Covid along with us and it’s so frustrating and devastating to see them sick for the past three months I just pray that god hears my prayers their so little and it’s so hard to see them struggle no one should have to struggle with their health my prayers who are going through it mentally and physically 🙏🏼
I pray that she continues to improve. It’s a blessing to have the possibility of a healthy, functional future. Most chronically ppl will be so for the rest of their lives though we find the joy, hope, and gift in that, too.
Thank you for sharing your story. I hope things get better soon.
She is an inspiration! To keep fighting and not give up. I wish her many blessing!
People just don’t get it. Covid was never a joke. So sad.
I have had the similar symptoms I had Covid May 2021 my life has not been the same. I had Brain fog , fatigue , severe anxiety for months. This Pandemic is no joke. I still trying to find my way back.
How are you now?
how do you feel right now? any improvements? any better
I wish you a very quick recovery young lady. Peace&love from Cape Breton, Nova Scotia.
There is so many people like this and there’s still people that think covid it’s real or it’s a cold!!! Almost 1 million Americans dead but we as a country are still not caring for humanity!!!
Thank you for sharing your story, and God bless your recovery!
God Bless her❤️🙏🏼
Bless you!
Thank you so much for sharing your story and raising awareness. 💚
Thank you for sharing your story best wishes 💗
I am wishing her well and praying for a complete recovery. That’s why when people tell me that they won’t get vaccinated because they are young and healthy and their bodies can fight it, I always say go ahead and roll the dice hopefully you won’t get long covid.
2 years in, there is no convincing them. Just focused on helping those who actually care.
You can also get vaccine long Covid as well. I had it for 6 months , extremely debilitating
@@hayleycole2488 Glad you were vaccinated. If you weren't, you probably would have died.
@@Matt-fl8uy Gaslighting through the roof
I was vaccinated and still got the virus 6 months ago, now I am praying to get over this long haul🙏🙏
Gob bless this baby 😢💔
God bless you precious!!!
Over a year and still suffering from fatigue, brain fog, and daytime sleepiness. Its the hardest thing ive been through.
How are u now?
@@shaft657 doing a lot better but that’s after learning about the polyvagal theory. Once I understood that I did certain exercises to calm the nervous system and I’m not after 1.5 years I can work full time again.
Wow - I hope more and more doctors start asking patients if they have had Covid at some point. Without that knowledge I think a lot of doctors are incorrectly treating their patients. I had Covid in November 2020 and honestly have had health issues ever since. In early 2021 I began to struggle with skin inflammation which I saw a derm for and unfortunately the medication they gave me caused me to have a severe skin reaction. Ever since then I have struggled with overheating, fatigue and even a fast heart rate at times (plus low blood pressure esp when exerting myself). I also overheat and flare a lot of times when I eat or even when I'm doing nothing. My doctor wants me to get checked out for POTS to see if that is an issue. It's crazy how Covid has messed so many of us up.
I developed POTS 4 years ago out of the blue. The doctors now think it was probably from a virus. It took 3 years to get a vague diagnosis of "your nervous system is broken" and a trip to Mayo Clinic to officially get diagnosed with POTS. I was initially misdiagnosed with anxiety and had another doctor offer me an anti depressant. To doctors I looked perfectly healthy and my blood work was ideal. After passing out about a hundred times I decided to go to as many doctors as I needed to and scream real loud until someone listened. Now I'm managing my condition. I have MCAS symptoms as well and get extreme facial flushing followed by flu like aches and fatigue. It's been a bit of a science experiment on myself to see what helps. High Salt and water intake all through the day, cool showers, recumbent biking each morning and a whole foods diet has helped me manage. That being said I still have bad days. I still pass out sometimes too. Feeling a lot of empathy for anyone dealing with chronic health conditions.
I went from being able to practically sprint a whole mile and haul super heavy things several years ago to being diagnosed with POTS after years of trying to figure out my fainting issues, to not being able to stand for more than ten minutes now.
Do you have MVP(Mitral Valve Prolapse) ? My cardiologist told me that's what causes these symptoms, including "anxiety".
@@CelestialTrailblazer I've had several ECG and a stress test for my heart and so far haven't shown any heart abnormalities. I did find out I have extremely low blood volume which explains some symptoms.
After some research I decided to get weekly saline infusions when I am extremely symptomatic. (If insurance covered it I would get it weekly but I have to pay for this myself). I tried one liter of saline and it didn't make much of a difference. If I get two liters of saline then they do make me symptom free for a few days. I did it for about 6 weeks and then was able to stop getting them and still felt good.
I also started getting Nicotinamide adenine dinucleotide shots. My energy since getting the shots has been amazing. It lasts for about 4 weeks then I start fading again so I get one a month.
@@tiannapetty3945 What test detects low blood volume? Is it shown in a standard regular blood test ? For example: the CBC WITH PLATELET section of a standard blood test ? Also, do you experience shortness of breath ? If so, how would you describe your shortness of breath ? Is it like you are unable to take a deep, satisfactory breath ? You can only take that deep satisfactory breath after multiple attempts ?
I'm not a doctor, but it sounds like you have electrolyte imbalance caused by malabsorption of certain nutrients, especially sodium due to gastritis or gastrointestinal tract inflammation.
@@CelestialTrailblazer I had the low blood volume diagnosed when I went into surgery to remove a Teratoma in my ovary. I had it done at Mayo in Rochester. I'm not sure what tests they ran but right before my surgery they brought in a different anesthesiologist right before surgery and said I was Hypovolemic. My blood work for years came back normal except for high red blood count. The doctor said that was an indication of low blood volume. I also have very low blood pressure.
I did have an abdominal CT done which showed inflammation to my colon. The doctor suggested possibly ulcerative colitis. I have been working with a nutritionist that did suggest electrolyte imbalance as a cause to my other symptoms. I have yet to go to a GI specialist but I know it's probably next on my list. I live in an area with very few specialists which makes it challenging to get in anywhere locally.
Imagine if you weren't at your peak health before catching it. That you had to no muscle mass or lung capacity to lose. You might not have lived to tell the tale. All the effort you put into achieving that peak health was worth every second to keep you alive. You treated your body well before, and now it's fighting tooth and nail on your behalf to recover. Thank you for telling your story.
Wow! I needed to read this beautiful comment. As I am going through this difficult journey of long COVID, your words help me have gratitude for the work i put into taking care of my health and fitness before I got sick, which I really took for granted. It is not always easy to be grateful going through this. You’ve helped me see things in a different way, thank you.
@@jdea419 You're body thanks you for the good work done and will be with you every step of the way to get well. May you find new progress in your recovery everyday!
❤❤❤❤
My mom and I are on week 6 of long Covid. I’m finally home and on oxygen and for my mom, Covid has done something to her stomach and colon, she’s lost 24lbs so far. I’ve also had stomach issues, Covid brain, forgetfulness, nausea, diarrhea, extremely high heart rate, fevers, severe anxiety, hallucinations, not wanting to be alone, being scared, fatigue, weakness. Before Covid I already had Dysautonomia, CIDP, RA, IBS, IC, Fibromyalgia, Spinal stenosis.
How are u now?
how do you feel right now? any improvements? any better
As per my experience as a long hauler there are some points for which we are worried:
1.Breathlessness
2.Palpitations
3.Fatigue
4.Brain fog.
5.Chest tightness and pain with tenderness on deep breathing
6.Blurring of vision.
7.Anxiety,and the fear whether i would be normal again( This is the biggest worry for all of us.)
I myself is a doctor and suffered with severe infection in april 2021 and still struggling with post covid symptoms.Every day is a fight with some good and some very bad days.I have many radiologist and chest physician friends.According to them post covid changes in lungs ie scarring getting healed gradually unlike idiopathic fibrosis which is a good news.The recovery is very slow but fortunately many ppl are recovering.So we must be positive and let the time heal the body.I know its not that easy to live with these symptoms daily and going to bed daily exhausted but these are temporary and we ll be normal again. ALL THE BEST EVERYONE
How are youm
🙏 for your full recovery
Re-posting since someone wasn't being nice earlier. I pray all of you will recover. From my experience with the health care system, the doctor might not have all the answers...Just keep asking, keep trying to test for different things. I too have been fighting a long term illness for the past 4 years and I am only 39. Good luck and God bless you all here. ❤️❤️
God bless! Such a strong person. I hope you feel better and stronger each and everyday. 🤗
I also have long haul covid. Been going on for 8 months now. Stay strong well get threw this!
Just knowing you are in the world fighting the battle with all of us who have MCAS makes me feel so much less alone. Thank you. And you are so young. I was healthy until age 43.5.
My heart goes out to you, my brother is a long hauler. Wishing both of you health 🙏✝️❤💪
((HUGS)) Your not alone. I couldn't relate more to this. Slow and steady steps, we will get through.
Right there with you. I understand ❤️❤️❤️
So proud of you 👍🏾
You are so blessed that you had your mother to help care for you and all of the wonderful people in your life....Some people are all by themselves with no one to help... You’re doing a wonderful job fighting and God bless you 💕🌹
You are loved 🥰
First off, I’m so sorry for your illness, I got lymes disease 12 years ago, was only diagnosed finally with POTS syndrome and Dysautonomia about a year ago.. I am at the same level you are right now with my health, celebrating every moment I can eat small amounts, wash my hair, and blow dry it😊 your story gives me strength to keep fighting, may god bless you, and all the others dealing with these illnesses❤️
I had covid for 6 months straight. I kept saying..." it feels like my body made a blueprint of this covid ". It would lie dormant and just reactivate itself once a day. I was fine then it would activate. It was a cycle and no one could help me. I just said ENOUGH! I'm going to beat this, I can't live like this. I survived! The cycle finally stopped!
🙌
What did you do to beat it?
How ?
May you share some tips on how ? Pls
how do you feel right now? any improvements? any better
I got a virua 2011. Slowly built my way back up. I relate to so much of what she is going through. It gets better. Agonizingly slow roller coaster
Praying 🙏🏾 for you, Nicole. Also for the thousands we still do not know about.
Oh my heart. You are a brave girl. God is giving you strength your life has a purpose. I am so thankful for God’s grace over us.
Keep fighting!! Don't give up!
I cried. This is something else
Lost my taste and smell early on in April of 2020 from Covid. Still has never really recovered and has affected my mood. It sucks and can't believe I have been without it for 2 years now. :/
I hope that beautiful lady is still recovering and reclaiming her life
Praying that she has a full recovery🙏🙏🙏🙏
Praying
That-this-paid-actors
Get-another-job
Stop-paniking-fools
More-than-what-they-are?????
Faith-over-fear-here???????
I pray for everyone who is dealing with any issues!! I pray you all heal
I had the higher heart rate from covid but within 2 months it went back to normal. I had people praying for me. I was 65 when I had it and not vaxed. I had viral pneumonia and spent 5 days in hospital. I thank God for coming through it and that it wasn't that bad. The worse part was being in hospital and I did have anxiety along with it for a couple of months.
I hope for her complete recovery asap. You can do it!
I also was sick and ordered into quarantine March 13th, 2020. It was a Friday...Friday the 13th, 2020. So sorry she is going through this. I was a long hauler until the 2nd pfizer vaccine, which brought me back to health for the most part. People do not know how horrific covid is unless they go through it. Hugs to her.
I hope things get better for her
this was me too...march 2020 till now
Hang in there Nicole, I'm proud of you too! Never give up 💜🙏
Oh my goodness. 😢
Stay strong, Nicole! Keep a positive mindset and strive for all the good things life have to offer you! You're brave...you're strong...you're determined...you WILL beat this!!
With federal support into research of treatments. Sadly, Long COVID is apperently a political issue that some want to deny. So cruel!
One step at time, god is with you every step of the way.
It's unimaginable.
2018 I got into a really bad car accident. I’ve been dealing with chronic pain since. No one cared when this was happening to me. I had no one to talk to. Now COVID hits. Now people will understand what we have been going through for years before COVID. Before my chronic pain, I was a weight lifter. I was at my most fit time. Then it was all lost. To all COVID sufferers, you will survive. Stay strong. Keep moving forth. So many of us already suffered before you. Keep this in mind. 💕
YOU are going to get through this and be an example to others who are just beginning this journey..like me...thank you dear one and never give up hope and gratitude. Always think and 'feel' a better thought..a better thought!!
Take your health SERIOUSLY !!Thats the message. Count your blessings. Best of wishes to her.
She did take care of her health but that didn't help.
Yeah that's exactly what I'm going threw with my mom right now
This brought me to tears!! I am a long hauler and see light now too, almost 1 year and a half later. Everything she described reminded me of how far I have come, truly miraculous!! Literally crying..Keep going Nicole, stop, rest pace and build up your endurance one step at a time. Please review info from Medical Medium the supplements helped changed my life, also energy medicine for the vagas nerve helped me dizziness, and food sensitivites. I had to slowly incorporate news foods little bits at a time. No doctor understood, many said it was anxiety.. i could barley walk some days, i tried to make it up parking lot from my condo and back everyday. Sending light, love and strength to you Nicole. We got this!!!
how are you doing today? having covid symptoms for 1.5 years, my mom has it not nearly as long but it's really hard to be there for her seeing how sad she is.. life is really hard right now
@@CodCats I am doing so much better. I am sorry to hear about your mother. I had been through much ptsd and depression. I researched many things and found things that worked for me. Energy medicine for the Vagas nerve started my healing and then supplementation and I do some of the protocols like detox smoothies and celery juice. I had to slowly start on those little by little. I believe EBV was activated and it affected my nervous system and autonomic systems. I would watch medical medium you tube to find out supplementation and certain protocols that eventually helped me so much. I would recommend others to talk with their doctor, I just had to find things that worked for me. I pray for your mother. I know what it is like to feel so sad. I hope she finds healing. it is still a process and I do not feel my body can do 40 hr work weeks but a can do small studies. A pacing program is key too. Start small doing little activities and move forward. I wish her all the best and healing!
I was crying too... 6 month and just have no idea how to get through this
I had Covid Dec 2020 and 2 months ago Jan 2022 I finally felt completely energized and back to normal. Worst 2 years of my life. I struggled with High Blood Pressure before while pregnant, and after covid it felt as if my heart rate would go up for no reason and I had the worst fatigue and brain fog. Being a mom of 2 under 4 yrs old was the hardest because I couldn't be my best for them. This makes me cry so much because covid literally fucking sucks
How are you now ??? Did you fully recovered and get your previous strength back ??
how do you feel right now? any improvements? any better
People with CFS have been living this hell for decades
Had corona 2 weeks ago , now i got a low fever everyday , some fotigue but mostly joint pains (fingers knees etc) gives me anexiety alot . Hope it will go away amd that its nothing serious. Anyone esle got joint pain after covid ? Or burning sensations?
As a parent of a long haul Lyme and co-infection child and then it happening to me, it makes complete sense! I'm so sorry this is happening to you! Sending prayers! It's absolutely heart breaking and so painful! Hang in there! ❤🤗🙏 Sounds exactly like what we are living!! The COVID can activate this. Sounds like POTS dysautonomia. EBV can also be an issue.
Sadly many people thing COVID is political. That's such an insult to millions of Americans suffering the consequences.
@@Matt-fl8uy I agree! The frontline workers and people of every occupation can attest to losing family members or friends or becoming disabled by this. It's real. Might have been man made but very real!
how do he feel right now? any improvements? any better
I have been sick with covid fatigue syndrome for almost a year. Six months ago I could hardly eat and I had diarrhea, both relapse symptoms of covid19 fatigue.
I was a medical professional with both holistic and medical job experience so my knowledge of the human body helps me a lot. 10 months into bedridden fatigue, I am now at last able to cook simple meals and clean up, but then I have to lay down again.
I had thick beautiful waist length hair until my last episode with covid virus last year. Covid chemical viral toxins ruined my hair and made a tangled mess. I had to cut all my hair off, it had turned to straw and was falling out. My hair is slowly recovering now and it is growing out.
I wish her the I went through a very similar experience after several bouts of pneumonia MRSA pneumonia and sepsis then C.diff infection that lasted 6 months that was 2013 I just really started getting better in the last year
I hope you got on Fluvoxamine. 3+ years in and it’s the one med that does work for the brain inflammation.
I see this is a year old. I hope you’ve gotten better over the past year. ❤
Yes I totally understand for iv been living it my self we are in this together gaining momentum and rejoicing the victorious ❤
Stay strong. I'm still suffering with fatigue, rash, taste, smell etc. I'm older but I too was in great shape physically when I got sick December 2020.
How are u now?
how do you feel right now? any improvements? any better
Wow!
I am so proud of you too! I may have some tips that can help you! I have battled lupus & fibromyalgia! I especially know the mobility loss, chronic fatigue and brain fog.
Me and my dad have suffered for 19 months now. I’m 41 and dad is 62. He’s in a life threatening situation right now 😢
Had Covid twice but the first time around change my life and health it been two years that I have long Covid and is a long journey but It get better but it’s take times
💯 agree! Luckily I work from home. There are times I get brain fog and fatigue. My anxiety often increases during zoom meetings, hoping I don't get brain fog when talking in the meeting. Only happened once but still...very concerning over a flu-like virus that happens every year now.
I can relate to a lot of what you shared being a teen suffering from Myalgic Encephalomyelitis.
From my understanding, Long COVID has many overlapping symptoms with ME and can benefit from similar management strategies.
On my channel ‘ME and me’ I share how my life has changed and how I am learning to live with ME/CFS.
Hope to see more stories like hers
I still have those same symptoms and I'm on oxygen supplement...my oxygen will go down to 86 at times...and my heart rate will go over 130 just standing up.
This happened to me too. I had covid twice. Then a year ago after we moved, I got a relapse. I've been bed ridden for 10 months now with covid19 fatigue syndrome. Previously I was an above average very strong healthy adult who has never been sick in my life.
I have had extreme fatigue, brain fog and asthma for years. I changed my diet and it seems to help a little. Never had Covid but did get H1-N1 and really bad Bronchitis when that was going around. It sucks.
Thank you for sharing!! This is terrifying and isolating. It is hard to just survive. I’m 27 and have been dealing with this as well. I could cry just hearing someone speaking out about this reality.
It shouldn't be this hard to get through the day . Its very debilitating I dont have the high heart rate but have all kinds of other symptoms. Im 30 years old and am bed ridden almost all day its hard to care for myself. Been going on for 3 years now . 15 months after the reinfection and these last 15 months have been the hardest times of my life
i am praying for you! I am fighting this too since december 2021 and i was double vaxxed. God bLess you!
I have had PoTS for a few years (diagnosed before the pandemic), it's a huge struggle. There was never much research done into the condition until people with long-COVID started to develop POTS. It's terrible that people have to suffer from the condition, but it has meant that more research is being done to understand it now than ever before. Until recently, many doctors had never heard of it!
this is me too