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- เผยแพร่เมื่อ 16 พ.ย. 2022
- ABC News' Phil Lipof looks into the stories of those suffering from long-lasting symptoms of COVID-19 and the medical challenges of treating these patients in the U.S.
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One thing I learned from chronic illness is that it’s not possible to understand what chronic fatigue is unless you have it. I got it from an autoimmune rheumatic illness, but when I heard about long Covid I knew exactly how serious things were going to be for these patients. How their issues would be dismissed because they “look fine.” My disability took many years to develop, so I had time to adjust. These poor folks got hit with it virtually overnight. I’ve seen friends who were forces of nature before lose everything to fibromyalgia as their doctors told them it was all in their head. This kind of disability is one of the worst things that can happen to you. There are no effective treatments for chronic fatigue. Everything is a struggle. I only hope the research Covid inspired will lead to a better understanding and some kind of relief for these desperate folks. Chronic illness is a lonely business. You lose everything that gave your life meaning. It’s the most helpless feeling.
@@michele0324 It's a slow and excruciating progression of loss accompanied by feelings of helplessness and denial. Friends slowly disappear and activities reduce to only critical things like staying housed and fed. If you're lucky to have resources and a strong support system it's a bit easier. I would not wish this on anybody. You slowly become invisible, which is one reason this issue doesn't get the focus it needs. It's a very quiet minority shut in their homes if they still have them.
Yup, I went from a perfectly healthy and very active 35yo lifestyle before covid to now having aggressive RA from the 2nd dose of the vax which did nothing to stop me from getting covid 3 times now. I gave up on all my hobbies, dreams and career aspirations because I just don't have the energy or mental clarity. I used to love my life and job, but now I just hope they don't fire me because working 40+ hours like before is almost impossible. I've tried but it just feels like I'm going to die and I end up getting sick and then loosing even more time and I can't afford to pay for all my doctors and medications keeping me alive plus food and rent. Just wish this thing killed me already because this isn't living, or surviving even, its just a slow and torturing death.
@@glovere2 not really a minority. There are many people with complex chronic illnesses that have these symptoms. I’ve had a rare form of systemic lupus erythematosis for 30 years (SLE CNS Vasculitis). It took nearly 5 years to diagnose and I was misdiagnosed several times, told I needed depression medication, etc. I was so sick from my lupus I ended up having a stroke by the time they finally got my diagnosis right. After I got in remission from chemo, I put myself through RN school to help others. There is life after chronic illness. I’ve had to take time off work on and off because of the fatigue, pain, and symptoms, but getting into hopelessness and self-pity is the worst thing for you.
In this position now and I couldn’t have said this better
@@Cwgrlup I agree that self-pity and hopelessness isn't helpful. It's also inevitable that you will land there from time to time and it's OK to feel those things, too. Not to wallow in it obviously, but it can also not be denied. I am almost more irritated by people who are terminally cheerful and those who make you feel bad for any hint of negativity. Some call it toxic optimism. It's OK to acknowledge that you drew a very challenging hand. It's normal to mourn what you have lost. I'm a very hopeful person generally and I do my best to encourage others. The video was about the challenges of chronic illnesses. I feel like I have done pretty well adjusting to mine considering what I have lost. Having said that, there are times I let myself wallow for a bit. I think that is normal as well. I would also never assume what others should do about their situation. The last thing I want to do is tell them how to feel. I will be there for them no matter what they are feeling at the moment.
A dear friend contracted COVID in March of 2020. She was hospitalized for 3 weeks and almost died. Nine months passed before she was able to return to work. She continues to suffer from extreme fatigue. Her physician doesn’t take her complaints seriously because all of her test results are normal. She gets home from work at 4pm and is usually asleep by 6:30pm. She used to love gardening and had the most beautiful yard in the neighborhood. Now she barely has the energy to keep a few houseplants alive. She survived but her quality of life is much diminished.
I got pushed out of the medical system. Absolutely no assistance at any level from the medical professionals for my Long Covid. One neurologist said I was just getting old. I was 50 at the time and suffered periodic dementia. Along with about 50 other symptoms. After about 2 years of being sick I got better. Hearing these stories brings back so many painful memories. Helps me see how far I've come. Brain being cooked is pretty accurate. Like a spicy concussion with a side order of depersonalization.
Listen carefully, I was one of them, couldn’t keep myself awake, dizzy and weak had to stay in bed around 20 hours per day. One day I made an effort to go to our Messianic synagogue. My friend from church had the same issue and explained the solution that worked for me too. IV with multivitamin, took 1 each week on the first 3 weeks, then 1 every 2 weeks for 4 weeks (2 Ivs total) I was scared as I finally started acting normal, and didn’t know if it was going to last. Then again I felt exhausted after a month so I got 1 iv monthly. After 6 months I was down to 1 iv every other month. They fired me bc I was slow in my job, I was dying slowly with covid, now after 10 months after covid Im normal!! Mind you I keep an eye on my health and I’m taking vitamins daily, if I see myself over exhausted again I’ll for sure go and get a multivitamin iv. You have to find a place where there’s a nurse, don’t go to a beauty parlor to get an iv, don’t be stupid. Get real medical help, not a beauty expert trying to heal you. Ask your doctor just in case. But I tell you NOTHING healed me! God in all His mercy made me know this when I made a crazy effort to go to church to beg God for help and He granted me my health back. Pray and I hope God helps you as He helped me. It’s a bit expensive but it’s more expensive to be a victim, to not being able to work or care for your children. I’m alive! I just jogged in the park this afternoon, I have been working hard and I can take care of my children! I got my life back and you can get yours too! God bless you all!
There are people out there who still don’t know what long covid is and when you tell them you’re suffering from it, they’ll look at you like you’re crazy. Today is my 1 year anniversary with long covid. I did everything I could to recover from it but it has taken over my life. My life is on a pause because I am waiting to recover but at times I feel like I am wasting my time. We need more research, more answers and more help to be able to live with this mysterious virus.
im also suffering joint pains and stiffness after one year 🙁
This will help you: th-cam.com/video/Tc917dtoFLc/w-d-xo.html
Thank you for continuing to speak out ...my prayers are that you and others ..with long covid... will get the proper care and treatment you so desperately require...it's got to be exhausting to self advocate...within our broken health care system
This is horrible to hear, if you want to try something that will cure you. Search up vervine, If you soak it and drink it. I promise your issue will go away. Stay away from all processed food and drink a lot of water. No fanta, coke and soft drinks. If all else fails, go on a carbohydrate diet. No carbs for 2 weeks, eat vegetables and fruits only. Make sure to stay away from dairy. Take prebiotic pills and cod liver oil. This should take care of everything, the most important step is vervine. Drink it, find it I promise it will help.
@@twc_zo thank you, I will try that.
My prayers go out to these people.
Aaaaalaaaaaaahhhhhh
🐑🐑🐑🐑
Cucks died
Thank you
One of my basketball friends told me the same 22 months ago. Now, he’s in the same situation as me. Long-Covid, ME/CFS, MCAS, etc. suffering is real!
Our government doesn’t give a crap about the people. We’re all screwed.
I’m a 33 yr old guy who’s been struggling like hell for 17 month now. I was a totally normal guy with a great career living on my own. I’ve been forced to take a leave from work and move back w parents. It’s absolutely devastating. The ungodly fatigue that I have is the worse by far. You could not imagine how it feels unless you’ve experienced it yourself. And I got it before the vaccine so to anyone thinking it’s the vaccine no, though I will say that can also cause similar problems and those people aren’t getting help either. It’s awful. We need help now! There is a drug in development in Germany called BC007 that can help us but we need politicians to step in and fast track it!
Hi Sam I am so so sorry that happened to you. My story is similar in many ways but I did get it from the vaccine, as you pointed out it does unfortunately happen. I have done medical grade hyperbaric oxygen chamber (there are NIH recognized trials oversees that have had success rates in the 90’s%) and it has been revolutionary for me. (As well as LDN, and antihistamine diet) I am half way through and hoping to return to work soon. (It’s been 1.5yrs of this) I just wanted to mention these as they are available in the US right now and perhaps they might be helpful for you as I hope you to can get back to the life you had. Best wishes
@@shelbywells4624 Hi Shelby, thank you for commenting and I’m sorry to hear your situation but glad you’ve found things that help! I actually tried HBOT but unfortunately became claustrophobic! Really stinks. It’s still on my list of things to try tho if I could somehow overcome claustrophobia. It’s also expensive tho if I knew it would help would be worth it for sure. How many sessions will you do and at what pressure? Is debilitating fatigue an issue for you too? I’m thinking I just have ME/CFS at this point but I’m still pursuing diff treatment to hopefully get at least some better
Hey Sam. I can relate to you so much. Everything you stated is correct. The body pain. The fatigue. Out of breath. I actually have the hardest time washing my hair. Feeding my pets. Going around the block feels like I will die. I used to be an athlete. I competed in Judo. I played violin. Those things are done. I have no strength to hold my violin. No matter what I eat. How much I rest. How much I hydrate it is just not getting better. I have a good long cry every week just so I can feel I'm still alive. I don't understand what has happened to humanity. Is it a virus or a biological war against people. I can't figure it out. I pray for you to get better and for all the people of this world. One day maybe things will be better. Maybe. ❣️
It is so frustrating, it doesn’t matter how we get all these symptoms if it’s because of Covid or the vaccine. The people affected are begging for relief and so far no doctor can provide it, I ask them questions and they just said “there is a lot we don’t know yet”.
In my experience I got very similar symptoms when I got the vaccine. I’ve been dealing with aches & pain, severe migraines, palpitations, pins/needles. I had nausea for 2 consecutive months, I lost almost 20lbs after vax. I developed Leukopenia (low white blood cells), and to complete the nightmare I showed a positive ANA Test, but still no explanation. I’ve been seeing so many doctors and none of them want to deal with anything about the vaccine. I can’t believe this is happening 😔
@@etzivero4189 yep, it’s a travesty. So many ignorant and uninformed people out there. People have become so irrational and illogical w all this.
28 years old, no health problems before Covid. Still suffering daily 2 years post Covid. No help, No answers
Same here mate. 32 months of being disabled now. Hang in there.
@@Cepar. are you vaccinated?
Are you vaccinated?
@@Not-A-Sheep Yes but I've had this condition for a year prior to getting vaccinated. Its not the vaccine in my case, but it's possible to get it from vaccination even. However, most people have gotten it from just a covid infection even without getting vaccinated. Assumption is that it's related to the viral spike protein in some way, which the vaccine is based on.
@@Not-A-Sheep nope got sick even before vaccines were available and dont rlly plan on getting it either.
I still have brain fog and fatigue. Every day is a struggle. I have learned to adapt. Please stay safe. It is not a cold.
No it's not a cold it's a shot
@@lady4191 im 30 unvaxxed and fuked from this. Been a year still bed ridden. I look healthy but im the complete opposite
I have the same. Very low energy & very bad fatigue & headaches
@@barbaramatthews696 I'm so sorry you are dealing with it too. Hopefully we will get to somewhat normal again. Sending you healing hugs.
@@kathrynnebrown262 Thank you The same to you. Better days ahead 🤗
And yet, no one (person or government) has been held accountable.
I feel like people who don't have long covid have no idea it could happen to them. It can. Stay safe.
People keep politicizing protection measures when this can happen to anyone.
One of my basketball friends told me the same 22 months ago. Now, he’s in the same situation as me. It can happen to the fittest!
Hey chesty pants, do you have any leggy shirts?
After my Covid in 2020, I suffered loss of appetite for almost a year ( lost weight) and suffered from nausea most morning. I also suffered from a skin condition because during my Covid I had extreme chills. My Covid lasted 2 months and I literally was in bed the entire 60 days. Thank God for my Daughter who took care of me, fed me , gave me meds. Then she put me on a vitamin and exercise regimen and we did this aggressively all of 2021. Today I am 100% better.
antivaxxers
This greatly angers me....2.5 years later and health care doesn't seem any closer to helping people with long covid ....and our health care system continues to fail them...similar to decades long problems with the VA, Workers Comp....I have a close friend who continues to fight through this illness and our broken health care system...
The medical community has not solved AIDS yet and it has been forty years now.
We tried to warn you, but you called us conspiracy theorist. The cure is right there. Horse paste works. look it up for yourself.
I know… it breaks my heart 💔
This has actually been decades in the making. Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis is what doctors have been saying is "all in people's heads" for decades. It's caused by an immune system trigger and can happen to anyone. There's no research funding for it. Long COVID = Chronic Fatigue Syndrome
Yeah, it’s TOTALLY WRONG that they don’t have a cure for EVERYTHING!!! I think it’s a CONSPIRACY!!!!!!
This is terrifying. It's been 47 days since I got Covid, so it's not yet long covid, but I can't imagine feeling like this for years as some of these people have. My heart hurts for them.
My biggest issues is dyspnea and asthma. My asthma is out of control. I have to use my nebulizer every 4 hours (I used to use a rescue inhaler maybe once a month, if that.) ... nights are getting a little better. I used to wake up at the 4th hour but can now sleep 6 hours before I need a treatment. My shortness of breath is a little better. I used huff and puff just standing up. Now I can walk across the room or to the bathroom without gasping. Doctor told me not to worry. That my symptoms were normal. I am frequently hoarse from coughing. If I sit still my symptoms are under control but moving, walking starts me coughing until I vomit. My ribs ache from all the couging. My heart races with movement. I have to take naps.
I am a singer and I was supposed to start teaching voice this month but I had to cancel everything. My voice is hoarse from coughing and while I do breathing exercises, I am pretty sure, singing will making me cough. Not to mention, I worry about the damage the couging is doing to my vocal cords.
Many of my family have had Covid but none had symptoms after a week or 2. My husband was only sick for a day and a half. We are both fully vaccinated.
I pray my doctor is right, that this will be all over in another month or so. To see how this illness has devastated so many young people with the long-term effects, breaks my heart. And I have to question, are those in the know really doing anything about those suffering from long-term Covid. And why on earth isn't this talked about more so people quit acting like everything is back to normal or that Covid is no big deal?
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins.
@@User98681 what symptoms did u have with LC? I am LH for over a year- fatigue, dyspnea, brainfog… i m not myself anymore. Is this caused by the spike proteins? Did your symptoms go away after fasting?
@@puhacz4271 I am LH now a year myself. Heart palpitations, insomnia, brain fog, anxiety, dysautonmia, pots, depression, PEM . I’ve done a 4 day, two 3 days, a 2 day and 18/6, and OMAD all in the past month and have seen a SIGNIFICANT decrease in symptoms. They are all about 50-75% better given any day and get better every prolonged fast I do! I will fast until I am 100% back to normal and will continue to fast afterwards. I have also lost 25lbs down to 14% bf
@@User98681 thats great to hear u see improvements:) i really do not see any other solution other than fasting. If i eat normally, i dont see a difference so.. why not try fasting. Btw i remember Once I did a 1 day of a fast or I ate almost nothing - that was the only time i woke up next day feeling kinda refreshed. I just cant seem to prolong it but I will do it as you did.
@@puhacz4271 it is not easy. Make sure to drink lots of water and get your electrolytes in. 17h+ is when autophagy occcurs and begins to clear the spike protein. The longer you stay in autophagy the better! I always remind myself when I am in a fasted state that there is nothing to go back to and it’s served me very well. At this rate I will be back to work within a couple months I am hoping. Cheers , God bless and let me know how it goes!
So many are willing to dismiss Covid, because it doesn’t play into their need to delude themselves.
@@rasputinspickledpeepee1976 👏 👏 👏 👏
You didn't mention your Vaxx status. Hmmm.
Once you get sick, your opinions are about as worthless as your thoughts and prayers. 😂
I wish there wasn't so much backlash against masking, vaccines, lockdowns, etc. Every year that goes by, I see more people around me getting sicker and having worse symptoms that last for longer. If this trend continues for enough time, it could be a *huge* global problem for the economy, the workforce, for everything.
It was all a farce and caused more harm than good.
I got covid March 2020 was no big deal at all for me, no real lingering symptoms. I foolishly believed this would be the last of it, and that natural immunity would suffice, after all that's how its works. Covid is no normal illness and now I have a super long bout with constant dizziness.
@@Julius064 and your age etc?
Bingo
I will never understand why basic public health measures ever became political. This is going to be in history books for one of the stupidest things humanity has ever done. We've failed ourselves, and we've failed future generations.
I had my third bout of Covid in February this year. I had it when it was first discovered in January 2020, then again in March, 2021 and again in February, 2023. The first time was so bad, I thought I would die. The second was the worst because I was hallucinating and went into fits where I tore my clothing and bedsheets. This last time was much milder, but no picnic. Now, I'm left with impaired memory, vision alterations that have made my glasses useless, and serious sleep issues. For a month, I lost my sense of balance and nearly killed myself falling to the pavement when stepping of a curb downtown. I'm still foggy, can't do arithmetic, suffer from bouts of severe depression and anxiety, and just feel like I'm half the man I used to be. Long Covid is not a fantasy. It does exist, but my doctors can't give me any treatment because they know so little about it.
People with chronic fatigue syndrome have been dealing with this for decades..
Exactly! ME/CFS is basically the same thing.
@@jann4sundown agreed
Yup and Fibro.
Those are the symptoms that people living with ME/CFS live with every single day.
I know I have suffered for years with these other medical conditions but now it is worse
Sending hugs out there to all of you suffering from this.
I've never been the same either since getting covid. It's like I'm aging faster because of lack of stamina. And the same here, I've been diagnosed with Long Covid. But no explanation on what's wrong. Something is wrong with my heart but even after all of the major testing and images etc no answers as to why it's not pumping correctly. It's so sad what has happened to all of us dealing with this... God be with us and continue to give all of us suffering, the courage to keep moving forward. Let's all keep the faith.
are u vaxxed,maybe u should be looking at that
You took the fauci ouchie. You deserve what happens you guinea pig
@JusticeForDanMarkel You are the issue!
@@riverdean7 Another cretin who likes to wilfully ignore that long covid existed before the vaccines did.
Because you taken the jab.. we tried to warn you
Was able to get in on my Dream Company finally, but I'm having such a hard time doing my simple task. Brain Fog, constantly making mistakes and also the difficulty in focusing. All these made me quit cause I'm ashamed of the weekly QA Audit failures. I just hope we can finally get a treatment for this, it's too much.
In the meantime try daily meditation and prayer ☯️
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins.
Listen carefully, I was one of them, couldn’t keep myself awake, dizzy and weak had to stay in bed around 20 hours per day. One day I made an effort to go to our Messianic synagogue. My friend from church had the same issue and explained the solution that worked for me too. IV with multivitamin, took 1 each week on the first 3 weeks, then 1 every 2 weeks for 4 weeks (2 Ivs total) I was scared as I finally started acting normal, and didn’t know if it was going to last. Then again I felt exhausted after a month so I got 1 iv monthly. After 6 months I was down to 1 iv every other month. They fired me bc I was slow in my job, I was dying slowly with covid, now after 10 months after covid Im normal!! Mind you I keep an eye on my health and I’m taking vitamins daily, if I see myself over exhausted again I’ll for sure go and get a multivitamin iv. You have to find a place where there’s a nurse, don’t go to a beauty parlor to get an iv, don’t be stupid. Get real medical help, not a beauty expert trying to heal you. Ask your doctor just in case. But I tell you NOTHING healed me! God in all His mercy made me know this when I made a crazy effort to go to church to beg God for help and He granted me my health back. Pray and I hope God helps you as He helped me. It’s a bit expensive but it’s more expensive to be a victim, to not being able to work or care for your children. I’m alive! I just jogged in the park this afternoon, I have been working hard and I can take care of my children! I got my life back and you can get yours too! God bless you all!
It's more common than they know. A lot of under reported cases
Thankfully I don't have any evident pain but the digestive, cognitive, heart issues, andy jaw snapping shut when I'm trying to sleep just lead to constant exhaustion. But the worst by far is the tremors. I can sometimes see parts of my torso move on their own, and it took me an embarrasingly long time to type this.
Wow. Try to keep your energy and home cleansed at all times ☯️
You are definitley not alone suffering these symptoms!!!!
The fact that you persisted through the difficulty in typing, isn't embarrassing it's ENDURANCE. I am a richer person for having read your comment as I had no idea of the extent and variety of the symptoms you experience.
I bet you got the injection!?! Yes?
@Anthony Guzman You’ve already decided the vaccine is bad regardless of their answer, so what’s the point of begging the question like this? People are weird in the way they hop around the internet indefinitely just to seek any opportunity that “confirms” their already pre-determined stances.
This is very similar to chronic fatigue, I was hoping that it would get a lot of attention and research and the answer to long covid would help with cfs! 3 to 4 years ago I regularly walked 3 to 6 miles (paced due to pain). I used to boondock camp, my favorite thing to do. 2019 I had a multitude of issues and now I'm down to 5 to 10 min exertion. For the last 4 years my strength and abilities have diminished! Take a shower, rest, vacuum 1 room, rest... So sorry for all these victims! Maybe now there will be some interest! And yes, a multitude of symptoms that did not exist 4 years ago! Crippling headaches, bone pain, fast heart rate upon getting up from sit or lying down, muscle pain, ... Been to multitude of Dr and they all say well don't know what to tell you,.I don't know what's wrong with you!! Some blood levels are out of range, but not enough to interest the drs! White spot on brain and lung, but hey, no big!!
The insurance companies aren't interested...
@@katew7131 please. Their attention is simply diverted to more critical illnesses. They are working on it more today than before
@@radscorpion8 insurance companies? No... Research institutions? Yes. Insurance companies would prefer no one ever got any treatments for anything. Doctors and hospitals want paid. Insurance companies do NOT want to pay for ANYTHING.
@@radscorpion8in a perfect world maybe. but currently in america, no. healthcare here is masking pain and profit; simple as! a ton of people are being made aware of this problem. subsequently taking their health into their own matter.
@@radscorpion8 the insurance companies don’t care. Nor are insurance companies looking for a cure.
My insurance company doesn’t want to cover certain tests and Treatment.
So please yourself
Welcome to the our world! Sad your here! CFS and Fibromyalgia sufferers have been dismissed for decades that our health issues were not real! Because there is no testing to prove our issues. Having CFS and fibro and then it get worse from Long Covid is PURE HELL!! I'm one of those and it's devastating!!! My cognitive function declined 100 times worse than before Covid. And I struggled already because of CFS&Fibro, I'm sorry these people have to suffer the way CFS and Fibro sufferers have for decades!!
i'm a gang stalking victim, I know how you feel.
I made the same connections when they started talking about long Covid. My symptoms have worsened since having Covid for a 2nd time a couple of months ago.
I wish I can help relieve your pain and suffering.
Worst case of fibro flare I've ever experienced! Diagnosed with fibro at 24 I'm now 53. Had covid twice. Second time one year ago and just overwhelmed by it. Now with long covid maybe drs/health industry will find treatments. With millions of people having the same symptoms, we can't all be crazy.
This is my story, I got sick the day before Thanksgiving 2022, and I haven't been right ever since. I spent so much time with my Dr in his office and through email, and I'm sure he is annoyed with me. I finally read long covid stories and figured out what was wrong with me. All those visits and emails with my Dr and he never mentioned LONG COVID. He can't help me, so I just don't bother him anymore. I just wanted to know what was wrong with me.
I have shortness of breath, I talk in my sleep, I never did that before, I have nightmares, I have to sleep elevated because if I don't, I always feel like I'm drowning or I'm going to die (they said sleep apnea is part of long covid too) so I started recording my sleep patterns on the sleep app. The brain fog, headaches, dizziness, and tiredness. The best way I can describe it to people is that I feel like I'm drunk all the time. I been drunk twice in my life, that's why I don't drink! I hate not having control of my mind and body! I was complaining every week to people, but no one understood, so now I just live in this hell. My house used to be spotless, I still have stuff out from Thanksgiving I haven't put away. Doing simple chores takes everything out of me. Going out to eat, I just want to come home right after for a nap. It's so heartbreaking because no one around me understands. My poor honey doesn't understand how I went from this active, cycling, and hiking, 42 year old women to a BUM! He's so patient with me. I'm so lucky. But I just want to get better. Someone give us some answers!
Someone is invading your personal space and draining your energy. Daily meditation and burning of Palo Santo incense before bed should help ☯️
I wrote this, hope it could help you too. Ask your doctor though, Listen carefully, I was one of them, couldn’t keep myself awake, dizzy and weak had to stay in bed around 20 hours per day. One day I made an effort to go to our Messianic synagogue. My friend from church had the same issue and explained the solution that worked for me too. IV with multivitamin, took 1 each week on the first 3 weeks, then 1 every 2 weeks for 4 weeks (2 Ivs total) I was scared as I finally started acting normal, and didn’t know if it was going to last. Then again I felt exhausted after a month so I got 1 iv monthly. After 6 months I was down to 1 iv every other month. They fired me bc I was slow in my job, I was dying slowly with covid, now after 10 months after covid Im normal!! Mind you I keep an eye on my health and I’m taking vitamins daily, if I see myself over exhausted again I’ll for sure go and get a multivitamin iv. You have to find a place where there’s a nurse, don’t go to a beauty parlor to get an iv, don’t be stupid. Get real medical help, not a beauty expert trying to heal you. Ask your doctor just in case. But I tell you NOTHING healed me! God in all His mercy made me know this when I made a crazy effort to go to church to beg God for help and He granted me my health back. Pray and I hope God helps you as He helped me. It’s a bit expensive but it’s more expensive to be a victim, to not being able to work or care for your children. I’m alive! I just jogged in the park this afternoon, I have been working hard and I can take care of my children! I got my life back and you can get yours too! God bless you all!
@E 2nd Coming Soon thank you! I cried reading your post. I'm getting better, but I still feel wonky some days. It's the shortness of breath and waking up feeling like I didn't get enough sleep, even though I slept for 6-8 hours.
I'm on the Gulf Coast for vacation for 2 weeks, and I have been doing a lot of walking, and I'm exhausted when I get back to the room, but I don't take a nap like I would normally do, so I know, I'm getting there. I will look into IV treatments when I get back to the West Coast. I appreciate you!
These guys provide personalized support for long-haulers!
Have a look: myskiks.com
@@peacenholiness6855 Oh shut up. Insignificance suits you well
Thank god some one is bringing this to light . Most channels are focusing on elections or other stuff .
Yes
I’m 70 next month. I was sick for 5 weeks at the end of February 2020 into march. I have never got my energy back. Docs told me I had the flu, but I’m able to go to doc appointments and then back to bed. I had prednisone for 5 weeks and felt great. Off prednisone back fatigue and always easily out of breath. Before I got sick I walked a fast walk 2 miles daily. My primary encourages me to force myself to exercise then I’m back to bed. My life is not as horrible as the Karen in this reporting. I do feel my life as I knew it is gone. Im easily overwhelmed on simple tasks. I was the only family member that ran to every whim of my narcissistic mother all my life. At the time I didn’t know what narcissistic abuse was. Now that black hearted women is dead at 96 and I don’t have any energy for me
It may not help, but hugs and love xxx
@@katew7131 big hugs and love always help the immune system. Thank you so very much. ❤️
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins. 🙏🏼
I'm constantly sick from Covid since I got Covid in January this year. Here it is late August and I'm still dealing with this. Count me in the 9 million. I'm scared to death that I will get denied by SSDI.
Millions have been here for decades, possibly diagnosed with chronic fatigue, adrenal fatigue. Gaslit, no answers, its all your head, try counseling, yoga......
@@rasputinspickledpeepee1976 That's actually 100% true. Fauici gets patent royalties on every jab! And Congress made that 100% legal. Yeah, WADC-NOVA!
I have ME/CFS caused bh exposure to burn pit in Iraq. They are connecting the dots the Long Covid and ME/CFS while not the same disease present the same and have the same mechanisms in play (the difference being covid starts long covid whereas any disease, traumatic event, or random exposures can cause ME/CFS.) There are a couple theories but the one I find most prominent is that it's a nervous system disorder. I'm in the bottom quarter of patients I'm mostly housebound from the effects. This has been going on longer then covid they determined it existed in the 1960s.
I’m sorry Rob. That’s shitty and I hope you heal. I’ll pray for you. Kick those problems in the ass!
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins. 🙏🏼
@Liam Tytgat if I had a Nickle for every time someone recommended me something I've already done I'd be a millionaire. This has been 4 years going. I've done IF. I've done OMAD. Veteran Marine who used to wrestle BJJ, 10 years of expereince didnt just decide to lay down one day. A disease doesnt care if you fast. Fasting isn't the cure all you think it is friend. Trust me I've been there. At the height of 2019 before the sickness really set in, I was the thinnest I'd been since the Marine corps, and was putting muscle back on. I looked fantastic and felt great. The sickness had already started. The unfortunate thing with mecfs is you can't exercise and eat it away. This disease targets the ability to exert. Do you understand that. It dies it in many nefarious and painful ways. From sun up to sun down it feels like every muscle has already reached muscle fatigue. Then if you do exert and push past that, the next day is more intense.
What do you think I did before I knew what was wrong with me. I'm a Marine. What would have been my go to in year one. To work out. To try to cleanse and healthy myself in every possible way. This was the worst thing I could have done because I didn't k ow what enemy I was facing. I was giving ym enemy ammo with every attempt at working out. Now I'm housebound and in pain all day every day. On bad days I can't get out of bed. So could I improve my diet. Sure I've done it numerous times its really easy. I'm in a cell however serving an unknown term for no crime other then serving my country and working a burn pit.
Gee whiz I wish fasting was the key but ya know what I just don't think it is.
@@TiredTimelord I’m sorry to hear that Rob. Your service is appreciated and y’all don’t get enough credit for what you did. I’m a Canadian young man, a bricklayer was in good shape at one point too. Been housebound for 7 months and slowly getting better. Fasting has tremendously helped me so I thought I’d pass along the great news. I believe your situation is much more severe by the sounds of it from you contracting your illness via Chem leak. Have you tried prolonged fasting? 15+ days? The body begins to clean the unpruified cells and junk out through a aprocess called autophagy. So yes it does care if you fast because the disease is recycled into new cells! Anyways, Best of luck brother, you are appreciated for your service!🙏🏼
I’m so sad for u netia may god bless u. Prayers to you and your loved ones.
I'm so glad the internet didn't exist during the polio outbreak. The amount of disinformation would have been catastrophic.
Says a classic 🐏.
You didn't mention your Vaxx status. Hmmm.
I've had it 8months. I want to sleep all the time, very weak. I have 3 children I can't look after. My eldest child has to cook. My relationship with my partner is strained. He accuses me of making it up ☹️ My children get upset with me because I can't do much with them. I worry I will die all the time I feel close to death. I'm going to try get oxygen from my doctor. I had no jab and was too scared to go to the hospital when I caught it and couldn't breathe because I kept hearing that the ventilators were killing people. My lungs are damaged and I'm waiting for an ecg. Sending love to everyone and I hope we all get better soon 😞💗💓
💕
I’m sorry! I have long covid too. I want children but feel I can’t have them now.
@@lanaduong2450 Thankyou ❤️ You should recover at some point. You should still be able to have children. I hope you recover soon 💜💜
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins. 🙏🏼
@@lanaduong2450 I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins. 🙏🏼
3 years in December 2023. The pain is unreal and the fatigue is chronic
I can relate 100% I’ve not been the same since 2020 March ! But I’m pushing myself the best I can
I have no push left. OMG I can't do anything anymore
The fear-mongering never stops
@@garfield2439 same Without hope and with more wishes to die, I have nothing more to do
The struggle is real...This covid has changed us , for the worst unfortunately
Some of this can occur after any serious illness, peoples fitness levels drop, thus their energy levels drop and their mental state deteriorates, this is not necessarily "just" a Covid thing, but knowing this doesn't make it any better.
Long haulers, COVID warriors! I do believe that research in this area will ultimately benefit all auto immune illnesses. Stay strong! 🗽
Covid recovery doesn't cause auto-immunity. mRNA Vaxx causes auto-immunity. In fact, that's the ENTIRE BASIS of the mRNA experiment, to stimulate your own auto-immunity.
let's hope...
The most underfunded illness in history.
It's very telling.
It's either too complicated to fix.
Too expensive.
Or the damage is done and we are done.
@@Analoguedialog Try to get a consult with a rheumatologist. That's probably the most likely specialist to have a sense of "long haul" syndrome. Stay determined!
My life has been like this for 2 years. I have never felt the same. I had every single symptom I now have more health issues than I never had before. The Healthcare system can’t help me !
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins. 🙏🏼
Listen carefully, I was one of them, couldn’t keep myself awake, dizzy and weak had to stay in bed around 20 hours per day. One day I made an effort to go to our Messianic synagogue. My friend from church had the same issue and explained the solution that worked for me too. IV with multivitamin, took 1 each week on the first 3 weeks, then 1 every 2 weeks for 4 weeks (2 Ivs total) I was scared as I finally started acting normal, and didn’t know if it was going to last. Then again I felt exhausted after a month so I got 1 iv monthly. After 6 months I was down to 1 iv every other month. They fired me bc I was slow in my job, I was dying slowly with covid, now after 10 months after covid Im normal!! Mind you I keep an eye on my health and I’m taking vitamins daily, if I see myself over exhausted again I’ll for sure go and get a multivitamin iv. You have to find a place where there’s a nurse, don’t go to a beauty parlor to get an iv, don’t be stupid. Get real medical help, not a beauty expert trying to heal you. Ask your doctor just in case. But I tell you NOTHING healed me! God in all His mercy made me know this when I made a crazy effort to go to church to beg God for help and He granted me my health back. Pray and I hope God helps you as He helped me. It’s a bit expensive but it’s more expensive to be a victim, to not being able to work or care for your children. I’m alive! I just jogged in the park this afternoon, I have been working hard and I can take care of my children! I got my life back and you can get yours too! God bless you all!
We also have children struggling with long covid but no mention of that.
I was a Semi Truck Driver with Long Covid and wanting to keep working so bad that I would hold my thumb on the Cruise Control Cancel button in case I passed out while driving, I did not want to hurt any innocent drivers or myself. I don't drive or work anymore, I wish I could, Doctors do not know enough about this and sadly there is no medication or treatment, I tell everyone who doesn't believe me to look at my non existent Medical Record before I got long Covid it does not exist!
All those out there struggling, My blessings 🙌 🙏🏻 go out to each & everyone that is dealing wit this unfortunate 😞 😕 😔 disease!!
I can definitely relate with this young lady I’m 47 years old and I’m at 2 years and 5 months since I had Covid virus, and I feel like my body isn’t mine anymore. I’m exhausted, fatigued, my whole body aches and always in pain, headaches, smell and taste are gone, I already have asthma and it’s just made my breathing much worse and I am unable to get up my stairs to my apartment. I could go on forever with all of the other symptoms I have that I never had before the Covid, I was exercising, losing weight, energetic, happy, and it feels like my body has done a 180 on me! It’s awful, when I got the Covid on December 25 2020, I had a fever of 103, headaches, dizziness, my balance was off, out of breath just walking up the stairs for the first time in a long time I had to use my nebulizar so I could breathe! We don’t have any clinics here in Massachusetts for Covid therapy, so I’ve just been pacing myself and taking it slow, I can’t even stretch right now my heart races even when I’m in a sitting position,
Yeah.. hr palpatation and high hr is still there. I am 3 years in and still have to control what I eat to manage hr rate issues.
I can only eat anti histamine diet and blood pressure diet.
I totally understand where your at hun, it sucks how even after we are done and beat it, it still lingers even after 3 years , awful to think that they don’t even know enough about it to truly help out more than they can now. Hoping that sooner or later that they will have more information about how to manage this long haulers thing! Stay strong my friend
When I had the first variant of Covid I felt like someone threw me out a 20 story building, beat me with a metal baseball bat, and then hit me with a Mac truck, all at once, I don’t even remember anything when I was sick with it, I just remember all of the pain and the only way I could sit up in a chair was to take 2 ibuprofen and that was horrible I feel for everyone here that is experiencing these problems, I just want my old self back again, I can’t even remember simple things anymore, I point at , (the refrigerator) and I can’t find the word of what the item is so I say”you know that thing in the kitchen “ it’s horrible neurological wise as well, simple words, phrases, items , movies I always watched , it’s scary
I can relate to this so much. Since I caught at the beginning of Covid last month, my life hasn't been the same. Sleep issues, eating issues, brain fog, severe eye pain, headaches, severe fatigue, mental health issues, and body pain. I wish people had taken things seriously in 2020. Because people said it's "just a flu", now me and millions of others are having to pay the price. I didn't even have it that bad, just a little worse then the swine flu. But this is pure hell.
Like to know,Did you have V.a.x? I notice,all who took it ,are getting c.l.o.t.s,c.a.n.c.e.r, & c.o.v.I.d. The un- V are fine.
You should get away from the city and you'll notice your radiation poisoning symptoms decrease.
So you weren't vaccinated? You are a liar
Vaxxed???
Liar
I still can't work and live like I used to. Am a young woman who was fit and strong, until I collapsed in covid.
Brain fog, severe pain, numbness and anxiety are just some of the symptoms I have been struggling with for two years now.
Have you tried low dose naltrexone? It cured mine!
This will help you! th-cam.com/video/Tc917dtoFLc/w-d-xo.html
Me too - I'm a 21-year-old man. Fainted the night after having my booster vaccine. Been struggling with shortness of breath, chronic fatigue, anxiety and pain.
@@Yasmine-mm1yc Yes, but about six months after I got sick with covid.
You guys should stop asking for help and just start helping yourself. Looking to the people who help create this mess for a solution isnt' the answer.
I had ME/CFS over twenty years ago. Long Covid sounds so much like that. Worse, even. I'm so sorry if you're reading this and you suffer from it. It's hell.
2.5 years of long-covid and counting here. Diagnosed with ME/CFS. Every day is the same.
🧘♂️🙏☯️
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins. 🙏🏼
These stories of long covid break my heart and make me want to cry. We are all rooting for you guys.
🐑🐑🐑🐑
@@wakeupsheeple513 STFU !!
Better hope you don't get karma illness from your stupid and insensitive comment. If you do, you'll know what goes around comes around.
@@richardcogbill6791 why don't you s the fun u-p. Better hope the poison doesn't mess u up little sheeple. I haven't gotten Bogus19 and I haven't gotten the poison. But wait a minute ain't I suppose to be on a ventilator or de-ad? Since I didn't take it. Isn't that what those psychopaths said? They said if you don't take it you will be on a ventilator or de-ad, and yet here I am alive and well. The same goes for the other millions of people who didn't take it either. It's been two years and nothings happened to me. If nothing has happened to me by now then it never will. Go tell your lies to someone who cares.
@@wakeupsheeple513 He is displacing classic narcissist behavior here - he does not care - he just wants to talk about him and how good he is.
May all of u covid nobodies die so that we can live healthy existence.
It’s hell dealing with this 9 months in going on 10
11 months for me!!! It's horrible!!!
🧘♂️🙏☯️
I also live with post covid symptoms. Very frustrating.
My journey has been intense. Had it for the whole month of January. Terrible symptoms. Affected my health, fitness, finance, martial life, etc.
My heart goes out to everyone with this new reality
I have had for 11 months now!!! Different symptoms every months,, totally debilitating and definitely not in our heads!!! It's a nightmare and nothing short of it!! All of the long covid clinics are far from me!!!
@@doloresdemar2347 🧘♂️🙏☯️
Did you get the shots? That is the more likely culprit
@@anthonyguzman2081 No.. It's not the shots. My family didn't get any shot. Not at all. I got COVID twice. Once from my vaccinated brother and once from a masked testing center for my license. Irony.
Martial life lol
I have a question, and this may be a controversial one but important. Do you think you can categorize this as being the same or similar as fibromyalgia ME or chronic fatigue sydrome?
Yes! You can see this link: en.wikipedia.org/wiki/Long_COVID#Similarities_to_other_syndromes. ME/CFS is listed as you suggested. I also saw that fact being reiterated in another news report, but I don't remember where. But basically symptoms like these have been seen for a long time
Jeremy Goldberg, all of those are symptoms of a serious disease. So many Chronic Lyme patients, myself included were all diagnosed with those symptoms and given pain killers and muscle relaxers. Because our government would take away Dr.s medical license of they told us the truth. That we had Chronic Lyme. Some told us that it was all psychological and suggested counseling. I went 25 years without being diagnosed with Lyme. Twenty five YEARS!!!!! Finally, a doctor I was paying $900. -$1,200. a session per treatments of Prolotherapy all out of pocket. Suggested I see a Funtional MD. And that was when I was finally diagnosed with Chronic Lyme and all it's coinfections. But these dr.s typically charge $600. per hour. And that is not sustainable for most folks. Insurance does not cover Lyme disease for most folks. I pay every month for my medical insurance. But haven't been to a Dr. in over 2 years. I only use a dr.s office for a diagnosis because I treat naturally. These autoimmune diseases effect every organ. Every system of our bodies. And modern medicine has no idea how to treat other than to cover up the sypmtoms with drugs. That only cause more health issues and drain our limited resources.
It's the same thing.
My husband has fibro. I have chronic fatigue. No one understands why we take Covid so seriously! We already live with Covid symptoms, so we aren’t going to risk actually having Covid too.
Are there any facilities around Washington County & Allegheny County MD ,that are performing studies on patients with Long Hauler COVID ?
@@rasputinspickledpeepee1976, Lol.. I guess there's a few that are truck drivers. No, If you google long hauler's covid, it's what long covid was called first.
Any in NYC, I’d like to go.
30 months ongoing here with LC.
Constant Breathing problems, heart ahrytmeas, fried eyes, severe pain, voice problems, internal vibrations etc. Cant function anymore. Same as lady in video. Social security just denied me even if i worked 50%, but 100% will destroy me in a couple of days
What is fried eyes? Burning eyes?
@@cragler eyes that are very light/screen sensitive and eyes that cant focus, pinpoint, navigate the environment and movements property.
I am going to jump in and warn you: Please be respectful to everyone especially the one who are suffering rather long and painful long covid. Do not make bad comment or bad name calling others who are suffering long covid. It is very put down and it can make them more depress. So don't you dare make terrible comment like that. Just keep the bad comment to yourself.
I have got long covid and I am still struggling every day! And I am not the only one. There are MILLIONS of people suffered it after catching either from rather mild covid to severe. Doesn't matter. Doesn't matter if they are vaccinated or not! Vaccination DOES NOT causes long covid, END OF STORY! So watch your mouth and think twice before you post comment here.
If you fear covid like I do, and you are vaccinated, please take the time to look at alternatives. Have Quercetin, Zinc, D3, and C, on hand. They are all safe and over the counter, and may save yours or your love ones life, and more better save you the cost of a hospital bill. If you are brave, get some horse paste. and keep it for extreme circumstances. But educate yourself and your love ones about them before you get sick. For your friends who suffered long covid, tell them to take it too. It may not be too late as these drugs will help heal and prevent further inflammation. Like everything there is no guarentee. GL.
@@ex8280 Australia still cannot cope with outbreak at all. The hospital is too full and running out of bed. It keeps getting worse all the time with no sign of relief yet. Many people are refusing to help to mitigate spreading. It's impossible for me to live a normal life here in Australia. It's just too easy to catch it and get sick over again. New variants keep evading natural immunity and vaccination.
cordyceps lions mane melatonin, d3, zinc and n-acetylcysteine take daily and u will feel improvement
I had covid19. It's no big deal. I have been rehabilitated over a short time. These people are faking it to get free help. It's all in your head. I'm 23. I recovered with a strong mind and back to normal living. You must be a chronic hypochondriac.
@@naththoau If you are really that scared, prep yourself by following FLCCC protocol. Most of the stuff they recommend are over the counter, cost about 60 dollars. So there is no need to fear, we have overcome the worst variant and are now dealing with Omicron and it's sub-variants. But have those supplements ready, just in case, and take it as soon as possible.
3 SSDI denials by MD who doesn't know what myositis is, only physical exam was bend over and touch you toes, take 3 steps across the room.. you are fit to work as RN. Other guy they wanted me to see was dude 2.5 hrs away who ran urgent care and medical salon...he was going to evaluate what 3 neurologists said??? Then I got Covid and was in bed 14 hrs a day so could use the bipap and oxygen and still denied. Why is it you have to have attorney to get SSDI? How much money is being wasted on multilayer obfuscation?? Then there is the medical gaslighting that goes on where if you have no fever, normal bloodwork it must be in your head OR they throw meds at you which if you took them all would give you more fatigue, liver failure and other lovely side effects.
I hear you about the fatigue ,shortness of breath. I used to be active but now, I am bedbound. I have to take care of my LTR who has organ failure. I still have to take care of him but after 2 hours, I am wiped out. I fall.asleep on his bed. One night he had to call an ambulance for me
Suddenly makes the people who suffer ME/CFS, who are still so disbelieved by the majority of the medical profession, not seem so "psychologically dysfunctional"...often that illness also strikes after some sort of viral illness...maybe suddenly chronic fatigue syndrome will become as important as long COVID...the parallel!s can't really be overlooked can they???...🙄
A lot of studies that are studying long covid are also studying ME/CFS now. Sucks that it took a Global pandemic and a mass disabling event for ME patients to be believed. But ME is getting a huge boost. Some who have LC and also Vax Injury (like myself) have ME/CFS. I have hope that they will be coming up with ME treatments within the next few years
yup. I've had a chronic autoimmune disease for a long time, and no one gave a sh*t. I know what this feels like...
Took the words out of my mouth. Makes me so frustrated to these. İ can't even remember my old life. İt is devastating
I have ME (and fibromyalgia) and recently took part in a university brain study for ME and long covid. At least it puts long covid puts ME / CFS on the radar and maybe we'll all get some help!
ME/CFS has a lot of overlap with POTS, a type of dysautonomia that’s been laughed at in the medical community for years as well. I developed POTS after a viral infection and hearing these peoples stories is like hearing my experience all over again. It took years to recondition, and even now I have flare ups that debilitate me.
Prayers for everyone affected by this 🙏🏽
Pain jumps to different joints in my body, when the pain hits I cannot sleep. 2 years of my life of pain and swollen joints I am fed up and in tears. God please help me.
It’s just horrible what covid did to this country. Have hope friends. There’s got to be a way through and back to restoration. Stay strong.
Thank you Netia and Karyn. I along millions of long haulers suffer along side with you. Our voices need heard and need listening. Thank you for sharing your story. I hope we see our governments, medical community and our leaders prioritize long covid. It's the silent Pandemic that needs light shined upon. Blessings.
🐑🐑🐑🐑
@@wakeupsheeple513 I'm reporting you as child abuse and sexually explicit.
@@richardcogbill6791 seek help now!!!
@@richardcogbill6791 I'm reporting you to you piece of crap.
@@richardcogbill6791 go bleep yourself
I feel every word this beautiful woman said, there are too many of us dealing with this and help is a foreign concept to the ones who can do for us the people God bless all affected 🙏🏽
Listen carefully, I was one of them, couldn’t keep myself awake, dizzy and weak had to stay in bed around 20 hours per day. One day I made an effort to go to our Messianic synagogue. My friend from church had the same issue and explained the solution that worked for me too. IV with multivitamin, took 1 each week on the first 3 weeks, then 1 every 2 weeks for 4 weeks (2 Ivs total) I was scared as I finally started acting normal, and didn’t know if it was going to last. Then again I felt exhausted after a month so I got 1 iv monthly. After 6 months I was down to 1 iv every other month. They fired me bc I was slow in my job, I was dying slowly with covid, now after 10 months after covid Im normal!! Mind you I keep an eye on my health and I’m taking vitamins daily, if I see myself over exhausted again I’ll for sure go and get a multivitamin iv. You have to find a place where there’s a nurse, don’t go to a beauty parlor to get an iv, don’t be stupid. Get real medical help, not a beauty expert trying to heal you. Ask your doctor just in case. But I tell you NOTHING healed me! God in all His mercy made me know this when I made a crazy effort to go to church to beg God for help and He granted me my health back. Pray and I hope God helps you as He helped me. It’s a bit expensive but it’s more expensive to be a victim, to not being able to work or care for your children. I’m alive! I just jogged in the park this afternoon, I have been working hard and I can take care of my children! I got my life back and you can get yours too! God bless you all!
@@e2ndcomingsoon655 oh shut up.
I have had this for several years. I got it after a severe infection. But that disease called ME/cfs for us. Awful disease. This is a awful disease. I was healthy before. You think it can't happend to you! It can, you, your family members, kids. Let's find a treatment for us who live with post disease. You will not get back to work. Until it's a medicine or treatment. You will be disabeld. I tried to get back to work and got worse.
Thought I live in Canada but I can totally relate to the struggle. Since I got covid in Jan this year, I was never the same person again. I have been ofd work since due to many LC symtoms that are mostly neurological. I get migraines everyday, i have dizzy episodes everyday, i have PEM, I have brain fog, severe light sensitivity and many more. I am still working on appealing for my disability as it was declined. It is truly life altering. I used to be very active, working out everyday and now, even walking my dog makes me so tired after. I pray that there is help for all who are struggling with LC. We may look fine, but we are dying inside..
mom is dealing with all the symptoms of long covid without treatment or testing'...been to the ER once twice to the community clinic.. have all the symptoms like everyone else'...no financial support'.. scared...
I got covid in september 2020 i had fatigue and brain fog for atleast 18 months.now i cant say my energy levels are fully back to what they were im much better than i was.but my smell and taste hasnt fully recovered
You didn't mention your Vaxx status. Hmmm.
@@robertmarmaduke186 im unvaccinated
@@robertmarmaduke186 You need to see a shrink you clown
@@robertmarmaduke186 They got Long Covid before the vaccines as these only became available in December 2020.
@@robertmarmaduke186 you didn't reply to his reply hmmm
I'm lucky. I'm retired and financially comfortable. I have long covid. I am homebound though I can take care of myself, unless I have a crash. There is no way I could continue my old work, I was a teacher. There is no way I could take care of a family. I am managing but these people need help.
When people talk about shortage of workers in the workforce why is this not brought up? I am just appalled that large businesses became wealthier during the pandemic, yet we can not take care of our people, some of who contracted Covid on the job! So so sad.
This poor poor woman. My wife hasn’t tasted or smelled in a year and a half. Breaks my heart every day that she can’t enjoy such simple things like smelling and tasting. It’s torture. Quality of life has definitely been decreased.
This will help her: th-cam.com/video/Tc917dtoFLc/w-d-xo.html
I had lost of taste too for 1.5 year
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins.
I've had a broken sense of smell and broken taste since July 2020. Broken as in some things are detectable, just nowhere near as good as before. The complete lack of smell/taste only lasted about a month. The strange thing is that I have had a few "good days" where my sense of smell is back like it used to be, but I have a bad headache and some of the other long COVID symptoms make a return to remind me I'm not in the clear. I swear it has something to do with inflammation or the immune system. Doctors have only said it's a strange virus and to drink water, get rest, eat well, I don't need to smell and to be happy it didn't kill me. Thankfully those "good days" have me hopeful that something will change and maybe not include the headache, heart palpitation, or tingly feet/fingers the next time I have one.
@@danieln.9638 fasting will clear inflammation and rebuild your immune system!
I can relate as well. I got COVID-19 in April and I still have long haul symptoms
Still?
With a name like user-gf5kg I’m sure you are totally real and telling the truth.
@@MH-eu1dr your name is the same. See ^ ?
@@ClaytonJeans it can last years. Some people who had covid in March 2020 still have long covid symptoms today.
@@bumblebootwiddletoes5185 weird. I guess TH-cam thinks I’m a bot. Oh well.
I received an initial two-step vaccine in 2021. I did not get boosted. In Nov. 2022 I contracted the Omicron variant and was sick for almost a month but was not hospitalized. Mind you, I do have osteoporosis, rheumatoid arthritis and a history of other auto-immune illness. I also live in the very Republican state of Indiana. After testing positive in Nov. 2022, I began to experience heart palpitations which increased to the point where I was unable to sleep. Finally, on Christmas Eve, I went to the ER where I was told it was just anxiety. (Although my EKG report via my patient portal access showed an enlarged left ventricle which the ER doc failed to mention). I was given a mild anti-anxiety med and sent home. I followed up with my GP and mentioned my ER visit and the possibility of long-COVID since my BP was high and it's historically low...she downplayed my symptom as MD visit anxiety. I had a mental health tele-appt with my insurance carrier, recounted my COVID experience and it was basically ignored as well (as did my therapist who is just north of Indianapolis). On top of everything else, ever since COVID, I have been absolutely exhausted and breathless after minimal exertion. I am unable to sleep through the night - up every 2-3 hrs - due to fatigue and body aches that are almost constant now. My tinnitus has drastically increased (which they blame on my meds which I had been in previously with no auditory issues). The days are filled with fatigue and pushing to do the bear minimums. In the meantime, my in-laws have basically accused me of faking my symptoms and 'milking' it. Why do I share this long post? Because, like these folks in this video, I'd like to be heard and validated - even if there is nothing that can be done. Long-COVID is real and it would be nice if the naysayers would accept that the consequences of the pandemic exist. I had more energy 3 mos. from major back surgery - lifting and playing with my grandchildren - than I do now and it is so demoralizing to have to prove the reality of your post-COVID body to others. Thank you for this video (and if anyone read my post this far - thank you for caring enough to do so).
2 yrs still can't smell anything , its miserable ,can't taste and if you do taste its not what you remember
Uh huh
When you hear that people can "retrain" your sense of taste or brain I wondered if that is possible. I cannot imagine your experience.
BS
Go buy a Janssen swimming suit and a 6 months pass to your local swimming pool. Work out at least 1/2 hour until your head feels hot. Swim at least 8 laps to warm up, then power sprint, if they let you wear fins or hand paddles. You won't notice when it does come back.
I had a persimmon today, it wasn’t even the usual rancid garbage Russian roulette taste today, it was weird like brain was literally like wtf is this, tasted like straight chemicals, my mom looked at me like I was crazy while she ate it and said it was perfectly ripe and juicy. 😢
i too have long covid, it beat my lungs up pretty bad, i dont smoke but i still struggle wit being short of breath most times, fatigue, heart palpatations and brain fog, and i feel terrible at work everyday
Story of my life!
how do you make it through work?
Same here. It sucks
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins. 🙏🏼
@@shaniquechin9449 I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins. 🙏🏼
How about reporting about the challenges of getting vaccine injuries??
Yeeeesss!
@@shelbywells4624 No, I never took the vax. But I know it's 💩. Mainstream media won't report about its negative effects because they're sponsored by the vaccine makers.
Batik fatigue and endocrinology problems not able to do things used to. She was a box say and did hard-core exercises 3 to 4 times a week. It’s been a year that she has not been able to exercise cause she gets out of breath.
I caught this nasty, evil virus early 2020 before vaccinations. I'm on Disability now. I was so very sick. I still am. Sometimes it seems I'm having less symptoms, then bam, back again. I feel like crap every day. At the beginning, my left lung collapsed, opacities on my lungs (white lung). My left toe felt like it was blowing up. The next day skin was falling off. Then the toenail fell off. My Asthma is out of control and exherting myself makes me sick. So yea, it's been oh so freaking fun. Horrible how this country doesn't care about us. The only reason I got on Disability is because of chronic pain, Asthma. I wouldn't of gotten on it just for Long Covid. Nope. Not in the US. We have been forgotten.
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins. 🙏🏼
Please also showcase people with other types of long term illness. We have been ignored for our whole lives
@JusticeForDanMarkel as someone who is also chronically ill, why are you all making this about you? Other people are allowed to feel things too.
This is tough because social security is already running out of money at the rate it's going now, to add all these long covid people to it would bankrupt it even faster yet they are having a hard time keeping a job...I really don't know what the answer is
1. Any company that does any business in the US, even indirectly, must pay its highest earner no more than 10x what it pays its lowest earner (including bonuses and nonmonetary compensation).
2. Every transfer of value must have a tax with a rate determined by the overall assets of the parties to the transaction.
Tell karen ,I feel her !
I used to run a roofing company and was a spastic individual ,hardly ever sat down ,now, I CANT MOVE or walk more than 600yrds or an hour ! I used fish ever weekend ,now I dont go anywhere !
The loss of enjoyment of life is real in long haulers !
Covid is nasty stuff ,about killed me , but it did cripple me !!
The worst part is doctors not believing what I say. Now kidneys are failing. They blame me.
I hate seeing fellow 92 babies hurting! We didn’t deserve this struggle!
I get woozy (dizzy ) ...do yall?
What causes this wooziness ?
Yes i feel dizzy the whole day... Happening from 8 months😢
Get tested for pots. Postural orthostatic tachycardia.
2 years in Long Covid.
PoTS, MCaS, BP issues, brainfog, extreme joint pain, extreme fatigue, sleep problems, blurry vision. 0 improvement and feel suicidal every fckin day...
Hang in there dude. I may have only been going for 6 months but it's hell. Can't imagine 2 years
@@DayzHacksful i feel you brother. First months worse than anything :/
Same here “I want to die” I utter multiple times a day
@@michele0324 Same. I have EDS too. But i was ok just joint pains, no pots dysautonomia etc until covid. Now almost 3 years in, im still disabled.
@@michele0324 Same for you. 🥹
🙏 hoping better results. My heart goes out to this victims covid and this dam sistemas.
I’m still living with the bullshit. This playing Russian roulette with my food and smell. Brain fog, fatigue. SMH. Life is living at half full. It’s frustrating. Been 2 years. People think I’m over exaggerating but I have to live like this.
Are you vaccinated?
Workers Comp and getting SSI shouldn't be blocked as is for the disable...
0:23 Netia McCray, ~25 y. o., Boston
2:28 got C. in March 2020
3:08 got seizures in 2021
Would be important to know of she has been spiked in 2021 or 2022?
5:20 Karyn Bishof, 30 y. o., Florida, got C. in early 2020
Perhaps it’s from the constant spraying of toxic heavy metals.
That’s life with a chronic health condition, now Drs might actually get what we have been experiencing for years too.
They don’t care
Doctors are actually getting long covid now Which is a shame but amusing as they dismiss it normally.
My long covid in the worst stages lasted about a month or two, just getting up from the couch and walking to the front door shot my heart up to 150 bpm. but then again, i was postpartum birth. I don't know if the birth made it worse or something, but I caught omicron a day after giving birth. I feel like im getting a little stronger, but I cant gain weight. When I had covid, I didn't eat at all, I lost over 40 lbs within 2 weeks. Yes, 2 weeks. And now im struggling to gain it back 10 months later at 88lbs 5'2 19 years old.
Today; monkey bizmiss is going to infect u.
There're just not enough of doctors out there that know how to treat Long Covid, and the Goverment isn't doing much to help Long Haulers. So what can we do about it? We help ourselves when no one will.
I’m recruiting participants for Project More Spoons - a 12-week nutritional pilot program for US-based Longhaulers. We’ll use personalized supplements to target methylation, an important pathway that overlaps with inflammation, among many other things. This pathway is highly personal based on genes (you may have heard of MTHFR), and we’ll use a functional medicine approach and optional DNA and blood tests as guidance.
If interested, please DM me so I can send you our pilot overview.
@@leonwu0422 gates little fascist; r u rich already?
I'm so sorry! The same thing is happening to me, although I didn't lose weight.
Me too i had covid from feb and by may i still felt ill. Normally fit 39years old . I had shortness of breath constant nausea . Pale lethargic . Weight fell off me. Eye infections . Cold sores. Thankfully nausea subsided by august . But im out of breath so easily and sooo tired. Its not like any bug ive ever had ever. This makes me think this was bio engineered in a lab. Its not normal . All these unrelated symptoms. My inner voice is like theres some thing very wrong here . I can't shift it 🙁☹
I have long covid after my infection last November: heart palpitations, breathing problems, debilitating exhaustion and more. But because I have experienced fighting my way back from a (previously) undiagnosed autoimmune disease before, I know how long it takes, how much patience you need, when to "push" and when to back off when it comes to recovery. I have been improving very, very slowly over the last year. I am not (long covid) symptom free yet, but at least my heart palpitations and irregular blood pressure have stabilized. I still need a lot of rest and can't exercise, sleep sometimes half a day, but the mental up and downs are much better. I know I will get through this. I do eat a very low inflammatory diet (gluten-free and lactose-free) with almost no processed foods. That's the only way to go. I also have a great homeopath who has helped me before, I get regular vitamin B injections. I take a supplement against burn-out (ginseng, licorice root and more) which has helped me before, but I know I have to take this for several months to claw my way back. Don't give up, guys! Get yourself a (good!) alternative health practitioner. Drs sadly have only ever made it worse for me...
I also had the heart palpatations and I had Chest pain too, it's been 5 months now and they have improved a lot but every now and then i'll get the heart palpatations but it is nothing like it was before it's way less frequent, good luck on your recovery
@@MissAmazanda I am glad to hear that you are improving as well. Don't overdo it too early. You'll get there eventually. Good luck with your recovery!
Hope you get better. You can som what call a long covid a blood system disease. Diabetes type 2 is generally a life style disease. 1/3 third of the u.s population are basically pre diabetic. Not meaning to affend you as a person. But you guys have let it go down hill preatty bad. I don't care/think What they say about any one can get it. Ther's a reason for it. Even young people. You may look healthy on the outside, but you weren't on the inside.
It's this modern times insane carb loading. I run my engine on a high fat dieat. 50-60% if not more of calories i guess. But i never touch vegtebale oils ect... Fats don't spike insulin at all. Which is one of the main players getting this disease. I have had covid twice and no vaccine. Feelt it for a week and all good after.
@@bendikkirkbakk1833 yes, carbs/sugars can be a real problem. Very inflammatory. Lots of good fats help. I've been eating avocados almost every day, it's really helped. I also try to eat plenty of fish.
I have long Covid! It blows!
Brain on fire yes. Those of us with M.E are familiar with all the symptoms they speak of though we were considered crazy until covid.
Exactly!!!
I can relate. I have been sick for 13 months. Now my doctor decided it’s time to go back to work. There is not a chance. But the more I talk about long covid, the more they label me depressed, anxious, and now they are starting to make up that I might be on the autism spectrum. My doctor says that even if I got a long covid diagnosis it wouldn’t help, and I wouldn’t get paid sickness leave for chronic fatigue because apparently it is not accepted in Sweden. Yes, Sweden. Apparently if you have chronic fatigue it’s your problem. 28 year old, just started a career in data science. In the worst moments death sounds like sweet rest.
But I am supposed to “try” working in a few weeks. I have no idea what I will do with my life now, my plan is to keep up with this bs as long as I can, and then fly back to my father and live with what I earned until now. When that’s gone I have no idea. But that’s for later. I’m not afraid of death or life long sickness. But the idea of working myself miserable and not being able to explain it and be believed, on top of possible devastating post-exertional malaise is really heavy, that’s why I just want to leave all this and live on the money I have as long as I can
@@adriannicoli464 I follow this girl on youtube because she had this crazy side effect from vaccination where her brain is inflammed. She is going through some interesting ways to tackle her side effects. But in her latest video she discusses Lumbrokinase and how it has solved her issues but solve other issues related to Covid. It is over the counter on Amazon, but a bit expensive(50 dollars for month supply). but might be worth it for people like yourself who is suffering from long covid. The link is here th-cam.com/video/tJovwlN_5HU/w-d-xo.html . Good luck, don't stop fighting, there are solutions out there, we just need to all figure it out.
@@ex8280 it’s not the type of comment I was expecting a reply from, but I appreciate the suggestions. I am writing all of this down as I am sure some of these will actually help!
Yup. I'm hoping that the recognition of long COVID will help us all.
So my questions are: what is different in the 1 in 13 who get long COVID and the other 12 who do not? Why are so many medical professionals so quick to diminish, dismiss, and "doctor-'splain" away the victims' complaints? As others have said: symptoms have a lot of overlap with fibromyalgia, chronic fatigue syndrome and even POTS. And the obvious question: do people with long COVID still have lower blood oxygenation levels like people sick with COVID might have, and if so, what is preventing the recovery to normal?
I also had catraracts and I am the youngest patient my eye doctor has had to remove cataract from. He said he has seen so many strange issues with people's eye's who had COVID.
my eyes definitely havent felt the same since 2022 thats for sure
This is my daughter's life, she had to move back home. She only goes out of the house for physical, speech and psychological therapy on a weekly basis and monthly to see her 3 specialists. She has never tested positive for COVID, yet 4 times she has had all the symptoms. She cannot interact with the public because she catches everything! She had thyroid cancer 10 years ago and now her thyroid hormone replacement medication is no longer working. Her lungs are in great shape yet she cannot take a full breath. It took a full year to find that her voice box is not opening when it should, The doctors now feel that issue is because the nerve endings in her brain to the voice box were damaged during her last illness. Her fatigue, is most problematic in her mind. She misses out of so much interaction even within our family because she is always sleeping.
Very sorry to hear that. The struggle is absolutely awful. This may sound like an odd question, but did your daughter ever get a covid shot?
Hi Pat, I’m am so so sorry to you and your daughter. Did she get the vaccine? (I got SEVERE post COVID type symptoms following my 2nd PFizer dose) For a year and a half I have been soooooo sick. I now am doing medical grade hyperbaric oxygen treatment and anti-histamine meds and I am finally gaining ground. I had all the issues on this video and others. Doctors still have no idea how the vaccine could bring that on. Sending prayers to you. (And everyone here and struggling with this) NOTE: this is not an anti-vax post AT ALL. I got the vaccine to try to protect myself and the community. I am aware my case is unusual but I am trying to share it with others to know they’re not alone
medication's r good! Keep on swallowing!!!
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins. 🙏🏼
I just got Covid the first week of October and I’ve been on work disability since. Right now my worse symptom is now migraines. While I have chronic migraines I FINALLY had gotten them under control a year ago. And now they are daily which was never the case before. Between that and the fatigue im miserable. I just want to be back to normal again 😭
@Josh didn’t realize you work for my employer 👍🏻 Also you OBVIOUSLY know the difference in physical and mental illness. 🙄 Not sure the point of your comment but OKAYYYY.
I just got covid this week I’m still positive on day 4 😢
@@eliselawless5410 oh no!! I think it took me a week to not test positive! I hope you feel better soon! Tylenol cold and flu meds was my go to and afrin the first two weeks of Covid for me and my husband. Hoping you don’t end up with long Covid like me 🥴
@@larissawhitt9922 I have to have 2 negative tests as I work in a hospital and I think I got it from work
@@eliselawless5410 oh man!!! Praying you test negative soon and feel better as soon as possible!
I got Covid the last day of September and now dealing with long COVID
It has been 12 months with Long Haul covid for me. I just want to hear from others who have had long haul but have come out of it and are doing well
I reccomend prolonged fasting. DYOR on the topic and make sure your in the right health to do it safely. I have seen a great improvement in my LC after a 3 day water fast paired with supplementing RESVERATROL & QUEURCITIN. This triggers autophagy and clears the blood of spike proteins. 🙏🏼
This is what disabled people on SSI deal with daily SSI doesn't pay much so you still have to work
I've had it, one of the times was after the vaccine, none of them my fault as I'm a shut-in but I lived in a household with one extremely irresponsible person.
The second time it wasn't as bad, but the first time I couldn't even eat because I ran out of breath from just sitting up and the splitting headaches made me see white spots.
Now I have temp regulating issues, my allergies got worse, every so often I run out of breath even going upstairs, joint pain is unbelievable some days, and I get more headaches than before and now they're usually in the middle of my forehead, I have more stomach problems now than before, I get phantom smells, I can't smell nor taste certain things either. And the brain fog is unbelievable. Also sleeping problems on top of the ones I already had, and all this creates depression, I can't work a regular job either because of this...
I followed the doctors' instructions every time I had it, I was a minor athlete in my youth, and barring my scoliosis I was pretty healthy. I got my vaccines, too. But since this is Mexico, long covid here is a myth, so there's no testing treatments or anything, and I have to add it to my long list of disabilities that will probably never get treated...