Living With A Feeding Tube 24/7 | TRULY

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  • เผยแพร่เมื่อ 9 ก.ย. 2018
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    A young woman is frequently accused of having an eating disorder because of her feeding tube. When Amy Lee Fisher goes out to eat it’s not uncommon for complete strangers to come up and start talking to Amy about her health. Because of her feeding tube and slight frame, Amy has got used to people assuming she has an eating disorder - when in fact the 22-year-old suffers from gastroparesis, a condition that makes eating incredibly painful and causes sickness and even seizures. Check out Amy's channel here: / @amyslife4457
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ความคิดเห็น • 2K

  • @amyslife4457
    @amyslife4457 5 ปีที่แล้ว +7552

    I honestly had the best time filming with Barcroft! I hope you guys liked it 💓

    • @supermegadeath309
      @supermegadeath309 5 ปีที่แล้ว +47

      this was so great! love your channel ❤

    • @phoebejoy5365
      @phoebejoy5365 5 ปีที่แล้ว +27

      Amy this was so interesting and informative! Clicked on this straight away when I saw it was you hehe! Sending hugs x

    • @thatwittywolf419
      @thatwittywolf419 5 ปีที่แล้ว +9

      Good luck!

    • @westberry1
      @westberry1 5 ปีที่แล้ว +15

      Amy's Life why do you have a temporary feeding tube so long. I am a nurse and if someone need a Feeding tube they get a PEG tube which is permanent. That is weird that you have a GT temporary.

    • @amyslife4457
      @amyslife4457 5 ปีที่แล้ว +26

      westberry1 I have a PEG-J now. I had they NJ for so long because we were trying other options first like gastric pacing and a surgical tube isn’t somthing to rush into! 😅😅

  • @AllisonLinner
    @AllisonLinner 5 ปีที่แล้ว +5604

    Even if she WERE anorexic or bulimic, (and I understand she's not,) that would still be ridiculous to say to someone. Telling an anorexic to "just eat it's not that hard", is like saying to someone with paranoid schizophrenia "oh just stop hearing voices and having hallucinations it's not that hard." It's absurd, ignorant, and rude.

    • @Saphireproductions1
      @Saphireproductions1 5 ปีที่แล้ว +109

      Allison Linner it is really hard hearing that as someone with anorexia and had a feeding tube whenever people say stupid stuff like that I feel like I want to punch them in the face it makes me so angry that I’m not able to explain what I was going through and what I am still going through

    • @missskittles144
      @missskittles144 5 ปีที่แล้ว +117

      Allison Linner or when you have anxiety and someone tells you to just calm down

    • @annathecreativeindividual3648
      @annathecreativeindividual3648 5 ปีที่แล้ว +37

      Allison Linner Yeah, I agree with you! People have little knowledge about all of this stuff. There should be more educational campaigns to make people aware of the fact that there are such diseases. It’s easy to judge when you don’t know what it’s like to live day by day with such a disease. It’s truly sad how ignorant people can be towards others...

    • @jetblackmoon
      @jetblackmoon 5 ปีที่แล้ว +59

      Yeah like if someone has depression, “just cheer up it’s not that hard”

    • @annathecreativeindividual3648
      @annathecreativeindividual3648 5 ปีที่แล้ว +15

      Lizards With Liz yeah and then you suddenly have a strong feeling to punch them in the face because of what they said... it’s pretty sad to see how ignorant ppl can be

  • @Mimi-bx6mn
    @Mimi-bx6mn 3 ปีที่แล้ว +1643

    Amy passed away about a week ago. God bless her in Heaven, she was a true fighter. RIP.

    • @zeesaleh4683
      @zeesaleh4683 3 ปีที่แล้ว +66

      I know I’m heartbroken 💔💔 May she Rest In Peace. Hopefully she’s free from her pain now ❤️

    • @buccichola1487
      @buccichola1487 3 ปีที่แล้ว +82

      I'm terrified as I have the exact same conditions as her... without prying, does anyone know the precise cause of death ? 🥺

    • @xyz956
      @xyz956 3 ปีที่แล้ว +30

      Ohh that's why she was inactive on yt .
      RIP
      I really like her channel.

    • @mikal3987
      @mikal3987 3 ปีที่แล้ว +143

      @@buccichola1487sadley she had a sever Heart faileur and was in hospital for the last 5/6 month, also she got sepsis and a lung embolism 😢 her family didn't say what was the exact cause but i gess her body gave up, she was fighting so hard with so much! Poor sweet angel 😭
      Hope You are ok with your health and do not panic, everybody is diferent!

    • @buccichola1487
      @buccichola1487 3 ปีที่แล้ว +25

      @@mikal3987 Oh goodness... This saddens and worries me tremendously... thank you for letting me know 🥺💗

  • @Melanie-yz2px
    @Melanie-yz2px 3 ปีที่แล้ว +542

    She was so strong. My heart is broken for her and her family 🤍 Rest in peace angel

    • @noelepeterson2036
      @noelepeterson2036 3 ปีที่แล้ว +11

      WAIT. SHE DIED?!?!?! WHEN?!?!?!

    • @Melanie-yz2px
      @Melanie-yz2px 3 ปีที่แล้ว +14

      @@noelepeterson2036 1 April. Tom uploaded a video on her channel. She had heart failure.

    • @F1Samantha
      @F1Samantha 3 ปีที่แล้ว +9

      So sad, been following her for years. She fought all the way to the end 😕

    • @noputhebird8239
      @noputhebird8239 2 ปีที่แล้ว

      @@Melanie-yz2px name of his channel

    • @thaminauddin3600
      @thaminauddin3600 2 ปีที่แล้ว

      @@F1Samantha amy Lee Fisher

  • @blobster91
    @blobster91 5 ปีที่แล้ว +2596

    I had a tube just for two weeks and godddd was it uncomfortable and painful.i can’t imagine her going through it every day.Shes soooooo brave.

    • @lunar2815
      @lunar2815 5 ปีที่แล้ว +50

      lubna s I live with a tube as well it does get better over time but yes it’s really uncomfortable 😣

    • @blobster91
      @blobster91 5 ปีที่แล้ว +34

      Rhianna loves Harry Potter oh wish you good health and hope they take it out soon.Youre strong to withstand daily pain.

    • @lunar2815
      @lunar2815 5 ปีที่แล้ว +12

      lubna s thank you so much most people are just like eat be healthy but I’m the healthy one out of them and I just can’t absorb all my calories and nutrition from eating

    • @ameliehoward9342
      @ameliehoward9342 5 ปีที่แล้ว +18

      I’ve had four tubes my longest was for two weeks and it’s so painful. I’m just so grateful that Amy got the stomach tube so she doesn’t have to deal with the nasal tube

    • @aliki_1079
      @aliki_1079 5 ปีที่แล้ว +4

      me too! I legit cried the whole day and begged my mom to get an doctor to get it out :/

  • @vincentrose2212
    @vincentrose2212 5 ปีที่แล้ว +2156

    I find it so unbelievable that people tell her "It's disgusting what you're doing to yourself. Just eat, it's not that hard." Because even if it was an eating disorder it would be just that /a disorder/ it's not exactly simple, it's a complex mental illness. It's just like how people with depression can't just "be happy" just because you tell them to or think they should be like that, it doesn't work that way.
    Anyways I really love this video she's such an amazing girl, bless her!

    • @aballetgal6788
      @aballetgal6788 5 ปีที่แล้ว +8

      Vincent Elian Fay Rose Yeah, I have family with ED and it is really hard. ED is a way of coping for them, and it will be there for their whole life, or the majority

    • @karomariee
      @karomariee 5 ปีที่แล้ว +17

      the number of times i hear "just be happy, its not hard".... makes me so angry and more upset. if it was a choice of course i would choose it!! i dont enjoy having depression!

    • @alexissmith5801
      @alexissmith5801 5 ปีที่แล้ว +4

      yes!! i’m so happy someone understands that, as someone with an eating disorder everyday is hard, even if recovered. I’m not open about ed because so many people don’t understand or take it as a joke.

    • @TaylorShantell
      @TaylorShantell 5 ปีที่แล้ว +2

      EXACTLY WHAT I WAS THINKING
      Love this comment

    • @aballetgal6788
      @aballetgal6788 5 ปีที่แล้ว +1

      ED isn’t as easy as just eating. There is so much more behind it, behind the person with it. ED is a silent struggle with a voice that screams and is never silent. But know, you are not alone, you are worth recovery.

  • @emilydavis408
    @emilydavis408 3 ปีที่แล้ว +657

    Hey guys Amy just passed away after a battle with pulmonary embolism, heart failure and sepsis. She passed on 01/04/2021 ... we all loved her verry much.

    • @laurasinfield2431
      @laurasinfield2431 3 ปีที่แล้ว +15

      heartbreaking. So sorry X

    • @reidchambers2521
      @reidchambers2521 2 ปีที่แล้ว +2

      She brought it on herself because of Munchhausens

    • @jennifertustin6629
      @jennifertustin6629 2 ปีที่แล้ว +40

      @@reidchambers2521 Dude I have EDS and dysautonomia not nearly as bad as her though it’s no joke. Rest In Peace Amy.

    • @ottelisezipporah-isadora8070
      @ottelisezipporah-isadora8070 2 ปีที่แล้ว +8

      R.I.P. Amy

    • @Christian-zg1eg
      @Christian-zg1eg 2 ปีที่แล้ว +5

      Rest in peace beautiful amy

  • @athenalasagna9600
    @athenalasagna9600 5 ปีที่แล้ว +460

    "Just eat it's not that hard"
    That's like saying someone with a food allergy, "Just don't get sick from it not that hard"

    • @muls9571
      @muls9571 4 ปีที่แล้ว +14

      @@InvalidUserHandle ok. Let's make a mental illness comparison then.
      That's like saying to someone with anxiety 'just stop worrying about it, it's not that hard'.
      Are you going to get off your high horse now?

    • @itsyourmethod
      @itsyourmethod 4 ปีที่แล้ว +2

      Yeah, u re so right!

    • @lordfarquaad1202
      @lordfarquaad1202 3 ปีที่แล้ว +6

      @Ron WIMBERLY that's so disrespectful?! To see your reaction?! Really??? Allergies could be small, Like a runny nose. But if it cause your death why would people do that? That's so mean!

    • @shart4281
      @shart4281 3 ปีที่แล้ว +3

      @Carlie Jo My brother has a peanut allergy, and one day some kid at his school rubbed a trail mix with peanuts in his face. Luckily, it was still closed and he was fine. It’s just absurd!

    • @loveqie
      @loveqie 3 ปีที่แล้ว

      @Cheerlife Semi paralyzed people do that with me, But with chips

  • @samanthastroud2175
    @samanthastroud2175 5 ปีที่แล้ว +3485

    “Just eat it’s not that hard” that just made me laugh. Do people not realize how ridiculous they sound when they ask that? Her stomach is paralyzed so yes, it is that hard for her. It may not be hard for us because we have a working stomach.

    • @LauraBidingCitizen
      @LauraBidingCitizen 5 ปีที่แล้ว +30

      samantha stroud Yes but people are saying that to her in terms of believing she has an eating disorder, they aren’t aware she has this condition. That’s what she was saying; that she gets people making those remarks with the belief she’s starving herself when she isn’t.

    • @sophie-xg1zu
      @sophie-xg1zu 5 ปีที่แล้ว +99

      Laura Williams even saying that to a person with an eating disorder would be incredibly ignorant though, like saying 'just eat' to a stranger is just ignorant in all circumstance x

    • @aballetgal6788
      @aballetgal6788 5 ปีที่แล้ว +9

      Sophie Adams Thank you for being open about ED. I think you can help other people share their stories and inspire them to recover

    • @aballetgal6788
      @aballetgal6788 5 ปีที่แล้ว +1

      Redditor Yep. So true

    • @sharonlys1406
      @sharonlys1406 5 ปีที่แล้ว +3

      Hi all of you you shall really listen to William branhams sermons they are very important don't ignore our life depend on

  • @vibeplaylisting5526
    @vibeplaylisting5526 3 ปีที่แล้ว +77

    Rest in Peace Amy. You are loved, missed, and always supported. Tom, you are an amazing person and I'm always here for you. Fight strong everyone, I believe in all of you.

  • @MillieWYT
    @MillieWYT 3 ปีที่แล้ว +133

    She inspired me so much, she was such a positive person despite her struggles. RIP Amy 💓

  • @Astralkidd0
    @Astralkidd0 3 ปีที่แล้ว +22

    R.I.P you strong woman, you fought your best fight. i hope now you can rest, eat whatever you want, run, jump, move your fingers and body as you want to and most importantly that you can have all the good night sleeps that you didn't have. i hope now you are in a place where pain is not something you feel anymore.
    and i also hope that doctors stop saying everything is anxiety.

  • @clairekermode4090
    @clairekermode4090 5 ปีที่แล้ว +139

    I have Ehlers Danlos. Pots, and gastroparesis. I have avoided feeding tubes so far but am disabled. It's a daily struggle! Thank you for being an Invisible illness warrior!

    • @nobuddy5781
      @nobuddy5781 4 ปีที่แล้ว

      What foods do you eat?

    • @eyebrowsatan5481
      @eyebrowsatan5481 4 ปีที่แล้ว +6

      Sean Knows Some people with gastroparesis can digest certain foods if their stomach is not entirely paralyzed. It is recommended that they avoid foods saturated with fat and fiber. It’s easiest for them to digest soups.

    • @jennifertustin6629
      @jennifertustin6629 4 ปีที่แล้ว +4

      I have Ehlers Danlos hypermobility type as well.

    • @elizabethmathews4450
      @elizabethmathews4450 4 ปีที่แล้ว +4

      POTS and hEDS here too!

    • @professionalcommenter
      @professionalcommenter 3 ปีที่แล้ว

      Eds here too!

  • @13juniper
    @13juniper 3 ปีที่แล้ว +49

    This video randomly popped up in my feed and my heart sank. Rest peacefully, sweet Amy

    • @tatteredquilt
      @tatteredquilt 6 หลายเดือนก่อน

      Same here, in Jan 2024.

  • @mimikellers
    @mimikellers 3 ปีที่แล้ว +48

    Rip Amy so sorry you lost your battle with your illnesses you really fought it so hard

  • @macamarhabaan2946
    @macamarhabaan2946 4 ปีที่แล้ว +384

    I hateee when doctors blame everything on anxiety, they did the same thing in my case and i ended up having heart surgery 😣. I hope you are doing great, you are so strong!! 💚💚

    • @MrsSaraJingles
      @MrsSaraJingles 4 ปีที่แล้ว +24

      I was told it was just anxiety and/or depression. I was sent to an allergist after getting hives and told it is lupus. Why can't they just listen.

    • @jj-rl7ii
      @jj-rl7ii 3 ปีที่แล้ว +17

      i’m a 22yo woman and two years ago i was extremely tired and in a lot of pain. the doctor told me that everybody was tired and that the pain was in my head, i just needed to sleep more. guess what ? cancer !

    • @umehifsa3819
      @umehifsa3819 3 ปีที่แล้ว +5

      She passed away last week😓

    • @sgsan705
      @sgsan705 3 ปีที่แล้ว

      @@jj-rl7ii how was it finally diagnosed?

    • @jj-rl7ii
      @jj-rl7ii 3 ปีที่แล้ว +2

      @@sgsan705 i went to see an other doctor when it became worse and he saw right away that something was wrong with my neck

  • @missmolls3150
    @missmolls3150 5 ปีที่แล้ว +648

    Awww. I’m so glad she was featured! She’s such a babe 😍 love her channel

    • @mollie4630
      @mollie4630 5 ปีที่แล้ว +2

      Miss Molls what’s her channel?

    • @angels_up_in_heavenxx8365
      @angels_up_in_heavenxx8365 5 ปีที่แล้ว +4

      Her channel is Amy lee fisher

    • @kristens.7879
      @kristens.7879 5 ปีที่แล้ว +1

      Lisa M tyyyy

    • @laughonk100
      @laughonk100 5 ปีที่แล้ว

      Its Amy's life. She has two channels, her daily vlog is where she shares her struggles with disabilities. She commented above with her daily vlog account.

  • @ashton8289
    @ashton8289 5 ปีที่แล้ว +180

    Even if it was an eating disorder, you shouldn’t say something like that to someone. Someone with anorexia/bullimia has just as much as real struggle eating as someone with another condition that stops them from eating normally.

  • @lilliemerson2056
    @lilliemerson2056 3 ปีที่แล้ว +85

    Just want to say this I am very sorry to the people reading this Amy has sadly past away on the 4th April 2021 I can’t even describe how hurt I am by this news 😭😞😞

    • @tweedyparam8951
      @tweedyparam8951 3 ปีที่แล้ว +2

      Oh... RIP Amy heaven needed an angel 🙏

    • @mikal3987
      @mikal3987 3 ปีที่แล้ว +8

      On the 1st, no 4th 😢

    • @norkwayfitnessnwf9835
      @norkwayfitnessnwf9835 3 ปีที่แล้ว +4

      I know your next Life Amy shall be amazing and full of happiness on your rebirth. RIP! you have touched the hearts and souls of so many people.

  • @TheAlexgallardo2000
    @TheAlexgallardo2000 3 ปีที่แล้ว +25

    Coming back here and knowing that she’s passed makes this so sad extremely sad Rest easy Amy 😔😔😔

  • @baileyboo1643
    @baileyboo1643 3 ปีที่แล้ว +17

    She is truly an inspiration. I had to have a feeding tube in for about a week, and I couldnt talk, I would throw up, and just to touch the tube would hurt. To have a tube in 24/7 takes major guts. This girl is so strong💕

  • @quinn2014
    @quinn2014 ปีที่แล้ว +12

    Rest in peace Amy. You were loved by many.

  • @StefanieRoyMusic
    @StefanieRoyMusic 5 ปีที่แล้ว +305

    I'd like to report that since this video, Amy has had a few issues with her nutrition. She now has a surgical feeding tube and a hickman line (or broviac? Correct me if I'm wrong!) to supplement with TPN. Amy is such a cool person and she inspires a lot of people, myself included!

    • @dagmar0904
      @dagmar0904 4 ปีที่แล้ว +2

      oh, thank you :) i wanted to ask why she dont have one of these

    • @freeingmichele3295
      @freeingmichele3295 4 ปีที่แล้ว

      I was wondering why she didn't have a peg tube instead. It is so much easier, and doesn't show to the world.

    • @Megan-yt5ks
      @Megan-yt5ks 4 ปีที่แล้ว +1

      @@freeingmichele3295 if you want to keep up she has two channels Amy's life and amy Lee Fisher

    • @paullongmire2659
      @paullongmire2659 3 ปีที่แล้ว

      I was wondering that too. We tried the NG tube for several months with our 3-year old daughter. Switching to the surgical feeding tube was WAY easier and didn't get the stares and comments.

  • @wyattkoehler8023
    @wyattkoehler8023 4 ปีที่แล้ว +17

    I’m a guy who had anorexia 2 years ago, I had a feeding tube for 7 weeks, the worst part was when they put the tube in, also when you feel the food going into you it feels wrong because you can’t taste it all you feel is the warmth or cold of the tube. Each time you breathe the tube would move and sometimes hurt as she said in the video. They are a lot worse then you think. The worst thing about the anorexia was when people jus told me to eat. Now I’m healthy and happy. Have a good day to all of you who read this comment(:

  • @aoife700
    @aoife700 3 ปีที่แล้ว +49

    Crazy to think Amy has heart failure and sepsis end of 2020, here’s hoping a better year for 2021 for her. She’s a massive inspiration and positive individual and light in the chronic illness community!

  • @11falloutgirl11
    @11falloutgirl11 3 ปีที่แล้ว +21

    Rest in peace, darling ✝️🙏🏻

  • @Nobody-vn2dv
    @Nobody-vn2dv 5 ปีที่แล้ว +36

    I just appreciated my stomach system so much more that I ever had before

    • @deborahsayers3826
      @deborahsayers3826 4 ปีที่แล้ว +1

      Bless your heart, you are a very pretty girl this just breaks my heart and you are mature for a young woman and you seem to handle it quite well, i will pray for you that God will heal you and help,you. You have an amazing attitude.

    • @itsyourmethod
      @itsyourmethod 4 ปีที่แล้ว +1

      Yeah, after this, me too. Cheers from Germany

  • @RiahSmith
    @RiahSmith 5 ปีที่แล้ว +26

    I love her channel so much , I'm so happy that she's getting the recognition that she wanted for her illnesses. She is SUCH an inspiration. I actually am going to see my GI Doctor today and her channel actually helped me get past the fear i had of going. Thank you so much for your honesty.

  • @rosesnow2013
    @rosesnow2013 5 ปีที่แล้ว +55

    This was so relatable! I never followed Amy on instagram because, although I know she has gastroparesis the same as me, her photos really show off her tiny frame and I found myself wanting to be that skinny again, I thought she must love being so skinny. When I was so underweight I wore baggy clothes and was self conscious, I’m now almost at a healthy weight! But as a society its so engrained in us that weight gain is bad, so its hard sometimes. Hearing this has made me understand her more than I could from her photos and she seems like a lovely, kind and determined person. I might try following her, she is not responsible for how we react to her- we are responsible for our own reactions

  • @jasmina.6181
    @jasmina.6181 5 ปีที่แล้ว +36

    I have learned one thing from Barcroft: NEVER JUDGE!!! You have no idea what someone is really going through.

  • @HannahTinsel
    @HannahTinsel 3 ปีที่แล้ว +6

    Rest in Peace, Amy. Thank you for spending your life advocating for us with gastroparesis

  • @iloilee
    @iloilee 5 ปีที่แล้ว +218

    She’s amazing. An inspiration!
    But as a fellow POTS patient, I must clarify that POTS is not a heart condition. Its a type of dysautonomia, which is a disorder of the autonomic nervous system (ANS). Which basically means that I have a faulty ANS and it doesn’t do its job, especially when I’m standing upright. The main symptom is tachycardia upon standing. The ANS controls the bodily functions we don’t think about, such as heart rate, blood pressure, pupil dilation, bladder control, sweating, temperature regulation, blood vessel contraction, digestion, etc.
    So when you have POTS/Dysautonomia, the body fails to do these things properly.
    In POTS specifically, when you stand up, the ANS doesn’t tell the blood vessels in the body to constrict properly, so the blood pools down into the extremities and the heart has to pump blood faster to compensate.
    It’s a very uncomfortable, painful, debilitating condition. But even though the heart rate is affected, the heart itself is perfectly fine (unless you have a heart condition along with POTS)
    :)

    • @chloeprint-lambert4750
      @chloeprint-lambert4750 5 ปีที่แล้ว +10

      Delilah Phillips amy doesn’t just have POTS, she has other heart issues also. In these types of videos its difficult to describe something so complex in a short period of time but yes she has other heart issues beyond POTS and you can learn more about that on her youtube or instagram etc 🙂

    • @iloilee
      @iloilee 5 ปีที่แล้ว +19

      Chloe Print-Lambert Yes but she said “I have postural orthostatic tachycardia syndrome, which is a heart condition...”

    • @chloeprint-lambert4750
      @chloeprint-lambert4750 5 ปีที่แล้ว +7

      Delilah Phillips when you have a very short period of time to explain something complex you do it to the best of your ability, so that people without medical knowledge can grasp its affect. I know that if this whole video was for Amy to explain POTS course her answer would be different but she did what any of us would do to get a basic explanation in a few seconds.

    • @iloilee
      @iloilee 5 ปีที่แล้ว +24

      Chloe Print-Lambert Yeah, I mean I guess she could’ve said “...which affects my heart rate” or something.
      But as a POTSie, it’s just a big pet peeve when people refer to it as a heart condition, because it’s not :)

    • @chloeprint-lambert4750
      @chloeprint-lambert4750 5 ปีที่แล้ว +11

      Delilah Phillips id never consider myself a ‘potsie’ as its a condition not an identity, but as someone with the condition who has been in the media spotlight a number of times you quickly learn that it isn’t always worth picking up on small wording issues, the great part is that it is getting recognition.

  • @ginpye2002
    @ginpye2002 5 ปีที่แล้ว +9

    I’m so glad that you guys are working to inform people about chronic health issues and feeding tubes in particular. People can be close-minded or downright ignorant, but maybe this will help them understand what people like Amy have to live through every second of every day.

  • @kymreid2847
    @kymreid2847 3 ปีที่แล้ว +8

    R.i.p Amy ❤️ I followed your journey on and off over the years, but you were and still are truly inspiring x

  • @susanfisher773
    @susanfisher773 3 ปีที่แล้ว +8

    Amy was so precious. I wish her peace and freedom from pain 💜💙💚. As long as I live I will remember that wonderful lady 💗🌷

  • @animechatroomcreator
    @animechatroomcreator 5 ปีที่แล้ว +706

    Why does BarcfoftTV never include a link to their TH-cam? I want to subscribe but I don’t know her TH-cam.
    Edit: thanks y’all

    • @StephanieOhFoSho
      @StephanieOhFoSho 5 ปีที่แล้ว +10

      th-cam.com/channels/nrMs985SDFiM40arKM75-w.html

    • @marieked
      @marieked 5 ปีที่แล้ว +5

      Amy’s Life and Amy Lee Fisher are her two TH-cam accounts

    • @ApRiL3706
      @ApRiL3706 5 ปีที่แล้ว +5

      They want to keep the views to themselves

    • @JudyNepune
      @JudyNepune 5 ปีที่แล้ว

      That's true, that's nasty

    • @91jjaaddee
      @91jjaaddee 5 ปีที่แล้ว +2

      She has two channels one is Amy's life and the other is Amy Lee fisher.

  • @jeffreyc8499
    @jeffreyc8499 5 ปีที่แล้ว +119

    This is so INCREDIBLE watching how strong she is. I pray she gets better soon and congratulations on finding love.

    • @theend1199
      @theend1199 5 ปีที่แล้ว +3

      Jeffrey Chandler thats so nice to say🙂 your so right

    • @jeffreyc8499
      @jeffreyc8499 5 ปีที่แล้ว +3

      @@theend1199 Thank you!

    • @theend1199
      @theend1199 5 ปีที่แล้ว +3

      Jeffrey Chandler your welcome🙂 its good to ppl who wish others well and wish others love.. instead of hating and nit wishing good for others. Greetings from The Netherlands

    • @HyacinthMedium
      @HyacinthMedium 3 ปีที่แล้ว +1

      She's not going to really get better. That is not how the condition works. With EDS it is very likely her condition will keep worsening

    • @cannonball6372
      @cannonball6372 3 ปีที่แล้ว

      She died 2 months ago

  • @laineyerin5801
    @laineyerin5801 3 ปีที่แล้ว +18

    RIP Amy. So so sad when I found out. I thought about her often and how long she may live. Too soon even given the circumstances.

    • @Predestinated1
      @Predestinated1 3 ปีที่แล้ว +1

      what do you assume she's dead? that's cruel!! 😓 are you depressed?

    • @dont_harsh_my_mellow
      @dont_harsh_my_mellow 3 ปีที่แล้ว

      @@Predestinated1 She is...she passed on April 1.

  • @jarkkoviitala9870
    @jarkkoviitala9870 3 ปีที่แล้ว +11

    I'm so so sad how this all went. RIP Amy I hope You are in heaven. We'll see each other. ❤️❤️❤️

  • @aleynavenus9394
    @aleynavenus9394 5 ปีที่แล้ว +7

    I’m so happy Amy got featured. Ive been watching her channel for ages

  • @illuminus4420
    @illuminus4420 5 ปีที่แล้ว +44

    That is so sad! I wish her the best.🌞💓

  • @cailin3758
    @cailin3758 5 ปีที่แล้ว +3

    Love this girl! Keeping up with her videos while I’m in and out of hospital helps me to stay strong, truely an inspiration to me x

  • @lifeaschronicallyingrid
    @lifeaschronicallyingrid 2 ปีที่แล้ว +1

    Amy was the reason I have learned so much about my Gastroparesis diagnosis. She always inspired me to look on the bright side and this video is how I found her TH-cam channel. Thanks for everything Amy. I hope you’re in heaven enjoying all kinds of foods 💖

  • @tashpatten5897
    @tashpatten5897 5 ปีที่แล้ว +4

    Honestly have genuinely had conversations with Amy and she has helped me through so much and i dont think ive ever known a stronger, happier individual that is poorly, she looks at life with the most amazing view and i think everyone should look at it the way Amy does!

  • @keithtilghman3360
    @keithtilghman3360 5 ปีที่แล้ว +5

    Omg that brought so many memories of having a feeding tube when I was battling cancer at 17 I am glad that stage over cause I applaud she can do it 24/7 and still be positive.

  • @tofutofutofu444
    @tofutofutofu444 5 ปีที่แล้ว +1

    ive been watching amy's videos for so long and she always makes me so happy and helps me everyday with my own illnesses. im so glad she's had this opportunity to talk about gastroparesis, thank u!!!

  • @lauriesch28
    @lauriesch28 3 ปีที่แล้ว +4

    Anyone here after she passed away? She's now an angel back home💫❤

  • @paramuthals
    @paramuthals 3 ปีที่แล้ว +3

    Rest in peace ,my inspiration ❤️

  • @nos676
    @nos676 5 ปีที่แล้ว +1

    your a true inspiration Amy. that's why I watch your channel. also, this just happened to come out on my birthday. I'm really glad that you've got Tom by your side to help you through all this.

  • @LindseyN1223
    @LindseyN1223 3 ปีที่แล้ว +1

    I absolutely love her channel! I love how positive yet realistic she is, and I enjoy learning about the often unheard of health experiences people have.

  • @Ava_Orchid
    @Ava_Orchid 5 ปีที่แล้ว +26

    Update the gastric pacemaker didnt help and she is now on tpn through a central line

    • @RebelRhiannon
      @RebelRhiannon 4 ปีที่แล้ว

      Central lines rock! Makes life 10000 times easier

  • @TheSmbrown
    @TheSmbrown 5 ปีที่แล้ว +5

    Amy is amazing, I watch her vlogs all the time. I suffer from multiple autoimmune diseases, including Gastroparesis related to/caused by these autoimmune diseases. Every disabled or chronically ill person Ive spoken to has been harrassed/bullied by strangers, who make ignorant assumptions. It's extremely hurtful and isolates us even more than we already are.
    Those of us who have Disabled Parking Placards, we have to have a doctor's order for, really experience harrassment because not all disabilities are obvious or visable. Thank you making videos like this, for attempting to educate the public and for supporting those of us with chronic illnesses. Please continue to do so.

  • @alecquinn4895
    @alecquinn4895 3 ปีที่แล้ว +6

    Rip beautiful, i watched you for years and it brought me to tears knowing you are at your final resting place. I hope you’re at peace up there finally, without anymore pain❤️

    • @abda9393
      @abda9393 2 ปีที่แล้ว

      😭

  • @ayakotami3318
    @ayakotami3318 ปีที่แล้ว

    RIP Amy Lee Fisher. You were such an inspiration for me. Your story abf channel still is even after your sudden passing. I still watch your channel every so often. My own health isn't great, but your channel helps through hard times. Rest in Peace Amy.

  • @stephanyroberts9850
    @stephanyroberts9850 ปีที่แล้ว +4

    I miss her. Watching her videos made me realize what others are going through behind closed doors. Her videos were so educational.

  • @gracematulovic
    @gracematulovic 5 ปีที่แล้ว +418

    Feeding tubes are so uncomfortable especially when they insert them.
    (Edit) thanks for the likes

    • @ApRiL3706
      @ApRiL3706 5 ปีที่แล้ว +67

      i'm a nurse and I hate inserting feeding tubes in my patient's because I know it will make them uncomfortable. I hate inflicting discomfort or pain but it's something they need

    • @codydrapela8818
      @codydrapela8818 5 ปีที่แล้ว +15

      Yes they are, I had a G-button whenever I was little, i guess it’s kind of like a feeding tube, and the day when they pulled it out I will never forget that’s for sure

    • @TheZKarenz
      @TheZKarenz 5 ปีที่แล้ว +4

      It's not that bad,inserting
      mine didn' t hurt.

    • @codydrapela8818
      @codydrapela8818 5 ปีที่แล้ว +3

      TheZKarenz I don’t remember them inserting one, giving that I was an infant at the time, but getting it taken out was a different story

    • @greeneyes12346
      @greeneyes12346 5 ปีที่แล้ว +4

      Cody Drapela yeah a button is a feeding tube as well just a different type. Also g buttons are placed during surgery and can be removed in clinic.

  • @StephenMatrese
    @StephenMatrese 5 ปีที่แล้ว +1

    I've been watching her channel for a while. My wife and I both have Ehlers-Danlos. It's great to have that sense of community and I'm so glad that this channel is sharing her story.

  • @notflorette4833
    @notflorette4833 3 ปีที่แล้ว +2

    May you rest in peace, Amy

  • @disneyprincessintraining2725
    @disneyprincessintraining2725 5 ปีที่แล้ว +5

    I’m actually really glad to know you can swim and do things with a feeding tube! I’m very blessed to be in good physical health, but it comforts me to know people with feeding tubes and if I (heaven forbid) ever needed a long term feeding tube, I would be able to still do some active things

  • @zahraafahim7838
    @zahraafahim7838 3 ปีที่แล้ว +4

    I can't understand people in the comment ... she does not have any of those eating disorders.. she has a gastroparesis which mean that her stomach is not working at all because it's paralysed..

  • @Curavera
    @Curavera 5 ปีที่แล้ว

    I love Amy so much! She's such an inspiration! Ive been watching her for a while now and she has taught me so much about illness and mental health

  • @piggywiggyxX
    @piggywiggyxX 2 ปีที่แล้ว

    Bless you amy.... bumped into your videos because i'm so sick with gastroparesis and i'm scared of what's next. i'm glad she didn't let the haters get her down. what a strong woman and even an inspiration to me... rest easy sweet heart...

  • @jillgor3
    @jillgor3 5 ปีที่แล้ว +156

    i love amy's channel, she's awesome!

    • @Jimmybeck14
      @Jimmybeck14 5 ปีที่แล้ว +1

      jillgor3 I thought she died

    • @marieked
      @marieked 5 ปีที่แล้ว +2

      Jimmybeck14 nope, she’s alive and posts new videos weekly.

    • @kidwaithe
      @kidwaithe 5 ปีที่แล้ว +1

      jillgor3 I

    • @itsyourmethod
      @itsyourmethod 4 ปีที่แล้ว +1

      I checked it out! Thank u so much for mantioning it!

    • @sharitaweaver6379
      @sharitaweaver6379 4 ปีที่แล้ว

      jillgor3 what's her channels name

  • @nenashowalter1976
    @nenashowalter1976 3 ปีที่แล้ว +3

    You inspire me so much to not be ashamed with my disability that I got because of a car accident I was in all I want to say is a big thank you for doing these videos

    • @Flo-yy5wb
      @Flo-yy5wb 3 ปีที่แล้ว

      I’m so sorry to say but she sadly passed away last week, on the 01.04.21

  • @zenderlee
    @zenderlee 2 ปีที่แล้ว

    Still miss you Amy... your videos were such a source of inspiration and help to me. RIP lovely girl.

  • @robinbelt8832
    @robinbelt8832 3 ปีที่แล้ว +2

    Rest in peace beautiful young lady. You struggled here on Earth all the while with a bright smile on your face.

  • @nnehkyenoh2734
    @nnehkyenoh2734 4 ปีที่แล้ว +3

    i was crying for hours earlier then thought to open youtube then saw this video
    now my problem seems to be so small compare to what you're going through
    im sorry and thank you
    you can conquer this!!

  • @moth.monster
    @moth.monster 5 ปีที่แล้ว +61

    Just eat? Yeah, that's what the tube's for. Makes eating easier. Invisible disabilities are just the worst. Personally, I have fun autism that leads me to fall apart frequently, making me unable to do basically anything but sit around, for a few hours at a time. It's not great, and most of the time I just get accused of being a liar, or that I'm just avoiding work. But I really can't control it and I can't stop it. Doesn't help that when i'm not falling apart I'm somewhat functional in most ways and even "smart". Of course, not being able to work on a moment's notice isn't exactly great for getting a job. Add in some other issues that are too complex to describe for a TH-cam comment with strangers and I'm basically going to need a caretaker for my entire life. Hopefully I can find someone who can do that for me.

    • @lockergremlin2822
      @lockergremlin2822 4 ปีที่แล้ว +2

      I have mild cerebral palsy, I can walk but not well, I have a loud limp and people are constantly telling me to stop stomping.

    • @friendsfan087
      @friendsfan087 3 ปีที่แล้ว

      @@lockergremlin2822 what does that have to do with this ?

    • @PinkSparklerToontown
      @PinkSparklerToontown 3 ปีที่แล้ว +4

      @@friendsfan087 invisible disabilities. They were relating themselves to the original comment

  • @maddietillem6778
    @maddietillem6778 5 ปีที่แล้ว

    I love Amy's channel! So glad she's getting more recognition!

  • @Missislamae
    @Missislamae 4 ปีที่แล้ว +2

    My heart goes out to this beautiful girl. What a hero ❤❤❤❤

  • @missdracula4641
    @missdracula4641 5 ปีที่แล้ว +3

    OMGG I LOVE HER . I’ve been watching her channel for ever 😭😭😭😭

  • @nowaybecky5023
    @nowaybecky5023 2 ปีที่แล้ว +5

    Amy is still a shining light in this dreary world despite no longer being with us. She will always be a hero for positivity.🤟🏼

  • @aspooniquelife6812
    @aspooniquelife6812 4 ปีที่แล้ว

    Thank you so much for this! I've been so nervous about getting my tube but watching your videos truly help and I know everything will be okay especially as my health is more important than what others think♡

  • @SyntaxScout
    @SyntaxScout 4 ปีที่แล้ว +2

    You have the spirit of a warrior, a great love for life, keep fighting.

  • @charityshumba6189
    @charityshumba6189 5 ปีที่แล้ว +23

    Hey, she's from the channel ''Amy Lee Fisher''!! i love her so much

  • @robinlodge7081
    @robinlodge7081 5 ปีที่แล้ว +19

    Amy your awesome. I have Gastroparesis too and know how frustrating it can be. Some days all I want to do is eat but I really don’t want the side effects that come with it. I hope you know how much I appreciate that you are spreading awareness for Gastroparesis and EDS

    • @BadActingWYIM
      @BadActingWYIM 5 ปีที่แล้ว

      I'm so scared. My 24 yr old sis my only sibling. Got diagnosed last year. Shes lost 100 lbs. Her body had sever reactions to all treatments and now all there is left is gpoem. But she needs a 4hr ges scan and she doesnt want to do it. Her body rejected the feeding tube to. She is trying to stay strong but idk what to do.

    • @denial_buddyman
      @denial_buddyman 4 ปีที่แล้ว

      @@BadActingWYIM is your sister feeling better?

  • @kaylove8663
    @kaylove8663 3 ปีที่แล้ว +2

    Omg my heart goes out to her 💔 this has to be hard to deal with especially with the feeding tube causing pain and blisters. She really does a have a great additude.... I hope they will find more ways to help her and people like her

  • @mementomori4685
    @mementomori4685 4 ปีที่แล้ว

    she seems like such a good person.
    i wish her the best in life.

  • @saraluciano24
    @saraluciano24 3 ปีที่แล้ว +4

    Amy passed away last week so I'm sending my prayers to the family ❤️

  • @DKO666
    @DKO666 3 ปีที่แล้ว +5

    Rest in peace Amy

  • @sorchaoreilly2633
    @sorchaoreilly2633 5 ปีที่แล้ว +1

    Woo-hoo! So glad you got featured Amy and glad to see awareness being raised 😊

  • @YukiMokazu
    @YukiMokazu 3 ปีที่แล้ว +1

    Amy, you have helped so many people in your life. We all miss you. Please rest easy, love.

  • @TiffanyLeClair
    @TiffanyLeClair 5 ปีที่แล้ว +3

    I wasn’t sure if taste is my favorite sense until now. I can’t imagine the kind of solitude she must feel. I appreciate her openness.

    • @VeryAmazingGrace
      @VeryAmazingGrace 5 ปีที่แล้ว +1

      Wait so you would rather be able to taste than hear or see

  • @unknowasmr9868
    @unknowasmr9868 5 ปีที่แล้ว +4

    My girlfriend has Elhers Danlos too and that's really hard for her, she has constant pain in her stomach, back, fingerjoins and every time she eats It's worse (digestive issues) , she also have heart issues and has to have a lot of exams done for that soon . But she is fighting every day of her life, she is courageous and really never complain about that and I love her for that she's the boss.
    I may don't really understand what you're going throught (because I don't have that) but I know that's really hard and painfull and you're amazing and inspiring.
    Wish you the best !
    (Sorry for my english I'm french so yeah might have quite a fews mistakes)

  • @myo4220
    @myo4220 3 ปีที่แล้ว +1

    Thankful for your channel. You inspire and bring hope to my family. I have learned so much from your videos. No words to express our gratitude for your selfless actions. Thank you for your willingness to bring forth such insight. You are loved 🥰 Love A Daughter’s Love for her mommy...

  • @moritz9848606
    @moritz9848606 5 ปีที่แล้ว

    very impressive how she is dealing with this chronic illness. got so much respect for her she is truly inspiring and makes me appreciate my health much much more!

  • @biddy745
    @biddy745 5 ปีที่แล้ว +3

    Very strong woman. She’s amazing. ❤️❤️

  • @EscapeReality94
    @EscapeReality94 3 ปีที่แล้ว +4

    RIP amy!!! We will always love and miss you!!!! You had such a beautiful soul!!! ❤️❤️❤️

  • @victoriapickard1096
    @victoriapickard1096 5 ปีที่แล้ว +1

    I clicked on this because I figured it was about Gastroparesis, I'm so suprised someone with my illnesses was featured on such a big channel! I really hope that more research funds start going towards things like EDS and Gastroparesis, maybe videos like this will help raise more awareness.

  • @Bettinasisrg
    @Bettinasisrg ปีที่แล้ว +2

    Very difficult to explain an illness, I suffer from horrible migraine headaches and when you say headache they only have a normal headache to compare and I always see the eye rolls like I'm just a big baby. Hats off to her for being brave and strong.

    • @Sufi_Shadow_Bunny
      @Sufi_Shadow_Bunny ปีที่แล้ว

      I’m with you. My migraines wipe me out and I have brain fog for a few days after. I can also get the aura migraines and those are the worst if not caught at very first eye flicker.

  • @emelycava
    @emelycava 3 ปีที่แล้ว +4

    This hurts to watch after knowing she passed away. Rest in peace

  • @ChurchillCaneCorso
    @ChurchillCaneCorso 5 ปีที่แล้ว +14

    Aaaaaggghhhhhh!! Amy you did amazing explaining.. You are amazing yourself.. Together we all need to spread the word, to get the word out there.. The hate and negative comments and dirty looks need to stop.. I love you.. I'm here for you..

    • @itsyourmethod
      @itsyourmethod 4 ปีที่แล้ว +1

      Wow, u re so kind! Wish everyone would see it, the way u do! Thanks for your comment! Love that u re such a beautiful beeing!

  • @susankilgore6812
    @susankilgore6812 4 ปีที่แล้ว

    I am so thankful to have come across you! I have gastroparesis as well and I fully understand your condition. I don't have a feeding tube but am at a good place for the first time in 8 years. I am also a dialysis patient so nutrition is imperative for my survival. If I start having issues as bad as before, because you inspire me, I will definitely talk to my drs about a feeding tube. God bless you and keep living your best life♡♡♡

  • @edsgirl9290
    @edsgirl9290 5 ปีที่แล้ว +1

    It’s so great to see more and more awareness for these three illnesses, I have ehlers danlos myself and will be seeing if I have POTS hopefully very soon, my mom has Gastro as well as eds and POTS, you are so strong! Thank you for doing this video 💗🤟

  • @finnransfield3192
    @finnransfield3192 3 ปีที่แล้ว +4

    Rest in Peace beautiful🕊 You will be missed x

  • @sabrinaibrahim4293
    @sabrinaibrahim4293 5 ปีที่แล้ว +3

    I have a feeding tube i had got it whaen 12 months i now how you help ho though hard time you inspire me i wish i had some one like you in my life my mom and dad died in a car crash i am the only child i live with my dad brother you help me get through deprsion when i here you story i am thankful i have someone like me

  • @miafolwell8459
    @miafolwell8459 5 ปีที่แล้ว +1

    ahh I love amy! she’s just the best, amazing seeing her here!

  • @Brundleslife
    @Brundleslife 4 ปีที่แล้ว +2

    I’m all the way over here in Canada. Wanted to say how proud I am of you.

  • @Senura101
    @Senura101 5 ปีที่แล้ว +17

    She is a fighter 😊 Plus she is cute 😍 Iam sure she will be okay 👌 May the triple gem bless you !!!!

  • @aussie8114
    @aussie8114 2 ปีที่แล้ว +4

    R.I.P. young lady 🙏🏼 You were very courageous.