♡ My Evening Routine with Chronic Illness! | Amy Lee Fisher ♡
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♡ Evening Routine with Chronic Illness ♡
TPN Set Up Video: • ♡ I EAT THROUGH MY CHE...
Why I use Catheters Video: • ♡ All About My Cathete...
My Most Asked Questions: • ♡ My Most Asked Questi...
My Morning Routine with Chronic Illness: • ♡ Morning Routine with...
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♡ MORE INFO ABOUT MY HEALTH ♡
• HKPP: medlineplus.gov/ency/article/...
• POTS: www.nhs.uk/conditions/postural...
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• FIBRO: www.nhs.uk/Conditions/ Fibromyalgia/Pages/Introduction.aspx
• EDS: www.nhs.uk/Conditions/ehlers-d...
• GASTROPARESIS: www.nhs.uk/conditions/gastropa...
• MCAD: www.ukmasto.org/ukmasto-medica...
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"I need to be beautiful again"
Girl you ARE beautiful.
To be honest she really gorgeous 😯
@mareyasilen 💕💕💕
More than me
yes
Simp Slayer thanks for submitting your opinion
how does she do this, get an education, have a social life, a youtube channel, travel or do anything at all?? major respect for this girl it would be so hard
I don’t know I do home school and I’m not vary enything enymore
Its amazing what people can get used to
I have a bunch of health issues and I look up to her for all she does and because of her I have a job, go to school, and do extracurricular activities
Alyssa Sharp Could you rephrase that?
Micheala W I think she means “I don’t know how she does it! I don’t do anything much anymore because i’m homeschooled now. I’m not very anything anymore haha”
I find myself rewatching videos in light of Amy's passing. This was the video that introduced me to her, and made me subscribe. Not only was it great educationally, I subscribed to her vlogging channel too, because she just had a beautiful, vibrant personality I wanted to see more of. The entire pandemic I've periodically thought and worried about her, particularly the fear and isolation of the pandemic. I noticed when she started posting sporadically late last year, then stopped entirely. I had hoped that it was just her taking time off in order to heal and recover from her hip surgery and other stuff, but unfortunately that was not the case.
Rest in Peace Amy, I hope that wherever you are, you know how much you helped and affected people, and that you can eat as many churros as you want
Same. I actually just found her channel. I'm not sure why this video was in my recommended, I don't personally have any health issues but the light Amy had was just unreal. She dealt with so much but still had that beautiful smile on her face in every video and was so determined to spread awareness and help others. Just by watching her videos she has affected me greatly. It really puts in perspective for me that I really really need to be grateful for my health and I need to live up every single day and appreciate those days. Not that I don't but its easy to kinda get lost and forget what truly matters and she has shown me through her videos what truly matters in life. R.I.P to her beautiful soul that has touched my heart in so many ways. She is someone I will never ever forget that's for sure.
Is nobody gonna talk about how *CLEAN* her cursive is?
Bruh she has Chronic Illnes and u just admiring her cursive......
Scorch Porch because its pretty!!! What am i going to compliment her for how organized her medicines are? 🙄
Scorch Porch she is more than her illness
Violet Playz yeah ik thats the point -3-
Violet Playz Oh ty :3
It's pretty amazing how multiple parts of the body that aren't working proprely can be replaced by tubes, catheters, meds... Modern medicine is kinda extraordinary...
Amy Gn should do nursing :)
one of the reasons I wanna become a doctor. Thanks for motivating me to do my stupid assignments instead of sleeping lol
Indeed it is! ❤️
ikr..
as a nurse I agree but I would like to point out that these things can't replace anything. for example, you do dialysis when your liver doesn't function properly but you don't function as you would with a working liver - you feel tired, and just not 100%. i wish in the future that there will be solutions that are so good that the patient almost feels completely healthy.
I'm lazy to brush my teeth sometime and this would be really hard for me... Wish you luck
Veronika Maťašovská michaaaael ❤️🤪
@@anivmj4259 💕😁
Veronika Maťašovská same girl 😂😂😂
same :))
My mom thinks I’m the only one who’s lazy to brush my teeth. Luckily, now I know I’m not the only one! (Also, I don’t really like showers)
Hello. I was watching your video for the first time and I noticed at time stamp 11:51 you were drawing up your injection from a glass ampule using the same needle you injected yourself with. Glass ampules can have microscopic shards of glass that you can suck up into your syringe and inadvertently inject yourself with. You should ask your doctor about filter needles to prevent this from occurring. Other than that, you are doing an amazing job caring for yourself.
Hun I think she knows what she’s doing
@@jennyhynes9537 Theyre just looking out for her!
Obviously, do whatever is best for you and well done to you! I am a nurse and we always use a filter needle to draw up drugs from any glass ampule :) might be different in a hospital setting tho x
Honestly, maybe it is the case but we did the same in the hospital where I did my 3-weeks internship so... I guess maybe it is not that dangerous ? Howewer I did once cut myself opening a glass ampule and I had to throw everything away (including the drug).
I was thinking the same thing about asking for filter needles. Another thing you can do to prevent from getting cut by the glass ampule when opening it is use a alcohol wipe that’s still in the wrapper to open it. It gives you a layer of protection between the glass and your skin and I’ve never cut myself using this method. The one time I opened one without using a barrier, of course, I cut myself.
It's incredible what you needed to do every single day to stay alive. Many things that healthy people take for granted. You did this and still have a smile and positive attidute. You wree amazing. RIP beatiful soul. I hope you don't have to fight anymore
This makes me appreciate my health so much more. Idk how she goes through all of this every day! How is she able to travel or go out?!
lyla I know she’s a saint
She usually only connects to the monitor (tpn) at night. I know she has issues eating but in terms of mobility she goes out quite often, to Uni and get her nails and see her friends
lyla i love flowers too
i like your icon
Sorry everyone for the late response! My notifications haven't been working 😭🙃 lol
Don’t get me wrong, she certainly has it rough. But, I’m seeing people in the comments belittle others, in a way, who don’t “have it as bad as her”. She may have more problems with her life, but that doesn’t excuse people from not acknowledging those who still suffer, even if it is deemed as “not that bad”. Everyone has their problems, so please don’t overlook that: if you do.
Thank you for saying this!
For example; I have hydrocephalus, but that doesn't have anything to do with me of being an actual person that had brain issues. I'm one of the smartest people in my class, and the sweetest! So never doubt yourself guys~ ❤❤
I’m almost completely bedridden from illness. I always encourage the people around me to share their problems with me. I remind them that, my problems, don’t make your problems, any easier for you. They struggle with things regardless of whether someone has it worse or better than them. People should always be understanding.
decency is always in need...
D D I have hydrocephalus too! omg i never met anyone else with it! 😭do you have any social media? i would love to have someone to talk to that understands!
@@happythinkingishealthy4358 I sadly don't have any social media, but if I did, I would love to talk to you too! I never met someone else with the same condition I have! ❤❤😀
As a nurse I'm just so in awe about you doing this all by yourself.. I have so much respect for you omygod especially that you catheterize yourself every night. You're absolutely beautiful and so strong.
A question? Do you never use a gauze for opening the vile for the injection? That way the chance you'll cut yourself will be almost non-existence
It's very normal that chronically ill patients are taught how to do a lot of things; we're not all put in care facilities or anything haha. They want us to stay living at home independently! What often happens is you are taught in hospital by a nurse or a nurse comes to your home to teach you if it's special equipment sometimes, it depends on the case and insurance and stuff.
Also, I bet her bf knows how to do all of this and went through the same training if she ever feels to unwell to do any of/all of it herself too. That's pretty standard that you'd have a second person get trained with you on how to do all your stuff!
@@winterrrsea1674 Oh I know! A young girl like her shouldn't be in a care facility if there's even slightly a chance that she can do it herself, it doesn't change that I think it's amazing that she does everything herself.. I live In the Netherlands so idk how it is in other countries but here we have like ''home care'' where nurses come if needed 1-6 times a day to help you with anything you need help with.
Thank you for explaining :)
@@simplymichelle4561 Nice system!
@@simplymichelle4561
You still do everything you can yourself.
And even when you need it you often have to fight for it.
R.I.P Amy, thank you so much for being you, you made more of a difference to so many lives, than you’ll ever know. Love you ❤️❤️
I just found you channel! I am a 12 year Registered Nurse in a Surgical Intensive Care Unit. I do want to make a couple of suggestions...You might want to invest in filter needles when you are drawing up your medications from glass vials. Sometimes you can get micro glass shards in your medication when opening the vial. You would just use a filter needle to draw up your medication and then use your regular needle to inject your medication. Also when you pop the top off of your glass vial, you can use a small piece of gauze to hold the top part of the vial when you break it. That way you won't cut yourself again. I hope that helps in some way!
For a second I thought you said you were a 12 year old registered nurse as in like, you were 12. 😂😂😂
@@ehigginsx same 😂
hope she sees this
Good tips :) There are those little rubber caps that you can use to safely break the vials as well. Little suprised they didn't come with the medication.
RN as well. I second what she says!
Can I say one thing?
SHES BEAUTIFUL
yeah . she is .
Facts bro
Lmao, bruh, I thought you were gonna say *one thing*
Colin Askey 😂
Princess Vane that’s really nice and all but would u say that if she didn’t have all those hard things in her life?
To the almost 600 ppl who disliked this, what the hell is wrong with you. I have quite a few chronic issues and anyone who has to deal with those regardless of severity, deserve respect
It's over 700 now...
@@aidenwestdahl1255 maybe because she wants to breed and have 50% chance of "gifting" her offspring with that wonderful affliction?
gbursson if she can live with it, so can her child. Are you suggesting that it would have been better for her to not have been born than to live with this illness?
Of course. She wants to breed while knowing how awful that is.
Th3L0st0n3 XD its definetly sexist men doing so
She is so productive. I can’t even walk after I force myself to wake up
I've never laughed out loud at a comment till this
Hey
Just found this channel. I have Gastroparesis also and by the time I get my bed time routine done. I’m absolutely exhausted.
Not even taking into account that you are in pain or are connected to machines, like it makes sense that people like this can't work because this is literally like a full time job. He amount of time you out into taking care of yourself is insane. Thank you so much for sharing this!
Brigh Geal it’s amazing how she manages to live a normal life and actually get out and do things with the amount of time all this takes. Health problems are a full time job x
Try proving to that to the Australian government. I have several chronic illnesses which consume my life and they still are trying to get me to work.
Self-care, as well as caregiving, does take a lot of time. More time then you would think. My mother had complications from surgery around 4-5 years ago and I quit the part-time job I had to be her full-time caregiver. I dealt with the TPN and flushing lines and wound care. Thankfully she is on the mend and everything involved with caring for her isn't as intense anymore. Also, I was so lucky/blessed to have found a legit work from home job that allows me to be here when she needs me. But yea, I've learned a lot of patience and a lot about the human body over the last few years lol.
@@nesha934 keep fighting you are strong for dealing with this I also have a weird disease and I havnt been diagnosed but I know what I have but no one believes me and they tell me I'll be fine but I know I wont and just want to be diagnosed so I can get help with money. Also they scheduled an MRI for me in 2 months which is ridiculous since my disease will keep progressing till then.
j f Thankyou so much! I hope you find the answers you need soon. Remember you are your best advocate, so don’t take no for an answer.
I like that you describe what you're doing in your videos. It helps me out a lot as i am blind.
my multiple life I couldn't agree more. I too am blind, and this is really helpful. :)
How did you type this ?
Mitch Finn I use an iPhone, which comes with a built in screen reader called voiceover. It reads information that is presented visually on the screen, and I use a variety of gestures to interact with the phone. When I want to type, I swipe across the screen and voiceover will read the letter that I am currently focused on. When I lift my finger the letter is typed. I can do it at a fairly fast pace as I have pretty much memorised the position of the letters on the keyboard over the years. I hope this answers your question :)
Lauren Downie wow u r determined, that’s a long paragraph describing how you type. 👍🏻😅
My multiple life I watch your videos
She’s so beautiful and young I can’t believe she’s gone 🥺
Huh?
@@lauraleighpennington5342 Amy passed away on April 1st this year.
@@santtunen8722 this is sad sad to hear
oh amy. we all wish you were here still. we all love you and hope you’re happy and not suffering anymore. thank you for being amazing, and thank you for educating. we will never forget you. ❤️
You are incredibly strong! I respect people like you!
i dont understand how you stay so happy with all of this. it must be a lot. keep going girl
I'm guessing it's because shes used to it and is free to move because some people cant move at all and are in extreme pain.
Just gotta keep going.
3:29
End of the sponsor, if anyone is in a rush and can’t watch it all. Of course if you do have time watch it and maybe even buy some of the shampoo she’s advertising! It’s 20% off with the link in the description 😊
You’re so strong and I can’t believe you do all of this, I could never. Especially being able to hold a great social life, education, etc. I’m in awe- have a great day today Amy- and everyone else. :)
Rest In Peace baby girl ❤️❤️❤️❤️❤️❤️
i have type 1 diabetes and i very often feel completely overwhelmed by it so i cant imagine how strong you must be x
I have type 1 diabetes too I know how you feel 😘😜
i have type 1 diabeted also and its complicated so coming across this video i cant imagine what shes going through
another type 1 diabetic over here! whenever i feel like i’m bitter about it, i just remember how much more other people deal with and am glad we can usually live healthily and happily.
I have type 1 too
Mybe because blood sugar literally affect ur mood??
idk why YT recommended this to me, but thank you for sharing.
she’s a veryyyyyyyy strong woman to be able to do all of this everyday cause i would probably cry all day everyday ❤️
We miss you AMY 🌷 I know your happy and healthy in heaven watching over your loved ones now.
Omg, as a type 1 diabetic i cannot beleive you deal with this everyday! A routine like this only happens when im extremely sick, you are such a trooper, much love from canada
Yes!! Video on bullet journaling. Dont know much about it but looks interesting.
I agree
It’s upsetting that she has passed....she was so great!! 😞🥺✨❤️
My mom just started going onto a tpn. This video has really helped me understand it more, My mom has been sick with gastroparesis my whole life so I get what your going through. Never give up
Rest in peace angel
What a cool way to use your bullet journal! I've always relied on apps to track my health stuff but I love how you make the recording of some inevitably less fun times so cute.
While there are people who just have to get out of bed and breathe to live a new day, she does all these procedures every day, the repetition must be overwhelming.
I have loads of family who are very insecure about there chronic illnesses, and I showed them your videos and it really helped them out. Your such a beautiful inspiration, we love you!! ❤❤❤
Rest In Peace beautiful babe!
Wait WHAT
I always hated taking my 10-15 pills a day but this kind of opened my eyes to actually thinking that having so many pills and tablets are better than having tubes and such. Good luck and stay strong, beautiful. ❤❤
Going to miss your videos. Thank you for being so open about your journey. ❤️❤️❤️❤️
I just want to let you know that you are amazingly strong! I can barely deal with my chronic pain which doesn't entail all the cleaning and prepping of pumps and other medications. You are so strong for being able to live with this and still be happy. I'm really proud of you!
My god. You are insanely strong. I love how you talk about your routine so positively. This makes me appreciate the fact that my 30 mins getting ready for bed is so short. Thank you for sharing your story.
On bad pain days i'm very attached to my heating pad, I got one that can cover my stomach and lower back. I find the heat very soothing and sometimes can still fall asleep in pain with the heat going.
angellina fosse
I would suggest avoiding sleeping with a heat pad, just from the risk of burns, but it’s great that you found something comfortable :)
xXThat_Weird_EnbyXx I used to sleep with a heating blanket wrapped around my legs or arms because of the pain, I’d always have it on high and it never burnt me. But maybe it depends on the brand
Can we just take a moment to appreciate how beautifully organised her note book is ? ❤
You truly are an amazing person! I can't imagine how hard your everyday must be, but you seem so happy and positive! You are an inspiration!
Just a tip, when cracking open the ampule, hold it with a 2x2 of gauze and crack it away from you.
You're a very strong person to me , I look up to you and I wish you the best
I miss you so muchhhhh amy! No more pain now😢😢😢
I have a chronic illness too, lupus and watching this video made me cry. The blood transfusions and dextrose that I been crying to because I felt uncomfortable is nothing compared to what you’re going through right now. God bless you, Amy! You’re such an inspiration to people like us.
I watch your video and cry .... I wish you a lot of strength .... you have my absolute admiration
So i m sitting here
Wondering why the sweet God i am always sad bc of my heart problems (nothing this bad) and i m watching how strong you are. I hope everything will ne fine.. you will see.. never lose your faith.. even tho sometimes your wish is to have another life.. a normal normal one.. we all have a reason to leave and to be happy... Don t worry and i hope God will bless you with some good news... about your health
You are so strong. This is the second video I’ve watched of yours and you are just a role model and i am in awe. You go girl!!!!
I’m so glad I found your channel I’ve been going through the same thing since I was 10 with being on tpn and lipids at night. I have intestinal problems since I was a baby and being able you watch your videos and relate so much makes me feel like I’m not alone and wasn’t alone during the time I was on the at home meds. I’ve had plenty of pic lines and broviacs in my life. I’ve been off of tpn and lipids now for about 6 years and during that time I was taking caring of my meds by myself with my parents help of course. It has taught me so much at a young age medical wise. I still get sick very easily and have to have a pretty strict diet to help me gain weight. I’ve just discovered your channel and defiantly be watching more. ❤️
yessss girl, get that sponsorship 💖 proud of you!
I feel like your so positive about this and I don’t even think about this stuff because it never comes to mind
I'm so glad I found this video so interesting, I'm currently studying as a medical student here in the UK, and its quite eye-opening to see this from a patient viewpoint dealing with this type of illness as I only really see this is an acute health care situation and it can be easy to forget that you still have to go home and carry on with your life especially as a medical student where you can get carried away with being interested in the science and studying about a disease., so thank you for reminding me to never forgot the personal element. I'm just blown away too by how well you deal with this and I wish you all the best in life.
I’ve been crying throughout the video, I have major respect for you!
You are so brave keep up the positive attitude because you will get through it ❤️
Lily Crouch what’s her illness?
When you were talking about low blood sugar and it was 3.8 I saw 38 and my heart dropped. Then you explained.
I saw your CRPS/RSD ribbon, I have CRPS too so I know the struggle. I hope you are having a low pain day :)
We miss you so much Amy. In the face of it all you loved with courage and bravery. I looked up to you as someone with a chronic illness. I still do. You showed me there can be good. I know you’re no longer sick and hurting. I wish you could still be here without these illnesses. Rest in peace Amy
When she pricked her finger I was like”aw hell nah, I can’t do that”
Once, while I was pregnant, I had to check mine 4x a day for two weeks. It's really not TOO bad, but it's not fun obviously. You get used to it.
Isabelle Luehring it’s normal for people with problems like hers, diabetics have to do this everyday/meal to check their blood sugar
My dad has diabetes and i watch him prick his finger ALOT and its not too hard to watch for me Hahaha its weird seeing these comments ( No hate towards you)
I was in class with a diabetic stundent for seven years. At the end other kids wanted to get poked and test their blood sugar level
I have type 1 diabetes and I have done 5 or 6 pokes a day every day for 6 years 😁 it's not fun but it becomes your new normal and you do what you have to do to stay alive.
Rest In Peace sweet soul
Gurl ur really strong and brave. Blessings all the way from Bangladesh
OMG, HUGE RESPECT, I was a bit scared to watch this and you have to live with this routine. I wish you luck.
Tbh you are so inspiring with the helping machine and you still be able to talk confidently, everyone needs to be like you 💗💗
I need to stop complaining about my life when hers is much harder! YOUR SO STORNG KEEP WORKING HARD! YOU ARE SO SMART AND BEAUTIFUL!!! I LOVE YOU SO MUCH!! ❤️❤️❤️KEEP WORKING HARD AND GOING THREW ALL THE PAIN!!
maybe its cause im high but i literally went and bought that shampoo as soon as i saw this ad
Wtf 😂😂😂
Was it good shampoo? Lmao
Me too
Is it any good though
Im sad 😭😭 you’re still smile happily even when you had to go through all that routines everyday. So proud of you 😭😭
Thank you for sharing your story. This is amazing. Your bullet journal is beautiful I'd love to see a video on that. I have chronic illnesses as well but my routine is my no means as complicated. Videos like yours increase awareness and compassion, so thank you, you truly inspire me!
Omg your handwriting is gorgeous 😍. I wish I had the time, energy and patience to own a bullet journal
You do! The best bit about bullet journalling is that if you only have five minutes to spend on bullet journalling a week, that's all you need to do. Do whatever you wanna do girl lol 💜
Ok I love how she just casually says "stomach juices" ok yup. Now I've heard it all.
You are incredible! You seem to maintain an optimistic attitude towards life, despite all of the hard things you go through. I can’t imagine how hard this is for you ❤️
the person that helps you, god bless them. and you're beautiful
YOU ARE SO STRONG THIS VIDEO MADE ME APPRECIATE LIFE AND HEALTH
GOD BLESS YOU!
Bless your sweet soul and your boyfriend/husband what amazing humans you both are!
You are one of the strongest people I ever know.
I am not familiar with your illness
But you make me respect you so much by just watching you.
Stay strong
Total respect from me. Your daily routine is so involved. Well done Tom too, good lad, he obviously loves you a lot.
The only chronic illness I have is Type 1 Diabetes and even that is difficult so major props to you for this amazing routine you seem to have down so well, such an inspiration for others in the chronic illness world!
You are amazing 👏 ❤ I can't believe I found you too late 😥💔😢💔😭
im literally on tears. i complain all the time about my diabetes while there's people like you so strong and responsible dealing with harder things. best wishes for you ❣️
This is amazing, so much you have to do just to stay healthy and you manage to still be a positive productive person. Truly awesome and i wish you the best of luck!
YOUR👏🏻MAKEUP👏🏻LOOKS👏🏻SO👏🏻GOOD!
Perfect lippie shade!
You are so brave. I love you 😍 thank you for sharing and I admire you for having to do this every night. And thank you for the recommendation I’ll definitely try it 💕
What a lovely positive young lady!Bless her, inspiration to all of us.
I'm shaking... and very happy to se her pulling all this out. A real inspiration ♥
Just asking , it's normal that I am not scared of needles?
I’m not either it’s perfectly fine lol
I mean I get a lot of needles so I’m not that scared when i get them but before getting them I get a bit nervous sometimes
thehappy zebra ;3 I’m not
I'm not scared of needles cause before I used to get sick all the time so I had to get a lot of shots
Me neither tbh I don’t even make a face when I get a shot. It doesn’t hurt for me
Rest in peace at least I hope that you're not suffering anymore rest in peace amy 🕊️🕊️
You are amazing and so brave. This is day after day. No taking a day off. How many of us could do this? Thank you Amy for this incredible video. Much respect ❤️
Amy, you're already so much stronger than me, you're are an amazing person and you just gave me the motivation to make more of my life. Thank you, let's live this life:3
I’ve tried the function of beauty shampoo and condition and I absolutely love them. My hair is so much healthier and less frizzy and stronger and it makes me so happy. I chose the peach scent and it smells amazing!!
Omg, I'm so glad you have a code to get 20% off the shampoo and conditioner! I've been wanting to try it but never did bc of the price. Now I can! Yay! 😁
im so sorry that you have to go through all of this but keep fighting? you will make it through!
I squealed quite a bit watching through this, but you help me get used to medical equipment, needles and stuff. It makes me really nervous watching this but you're such an inspiration girl!! so proud ♥
You are such a strong and inspiring person! 😍
oh god man..... Good luck for you..... YOU ARE A HERO DOING THAT
you are a lovely human being. thank you for uploading this.
why am i crying... darling, stay strong! you're so brave..
I really really love function of beauty I’ve been getting their shampoo for a year now amazing!! My hair is sooo long now and super soft! 😍❤️
Just ordered the shampoo + conditioner :) I'm always looking for the right shampoo for my needy hair, and I have always wanted to try one of those customizable products, but I never found one whose price wasn't crazy until I saw this video! It arrives in 2 weeks, we'll see how it goes :) mine is purple with a peach scent, and it's for curly coarse hair!
What a process... kudos to you, girl 🙏🏻 you’re so strong
ahhh i have so much respect for you💕💕 you’re such a strong person and i admire that💕💕