✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment below (for age 16 years and older) appointment.dromardanoun.com/ In USA, please call the clinic
hello doctor, which number or clinic to call for appointment with you in USA,also please let me know which city you are in,i wanna recommend one of my friend who is suffering from PNES i guess
Daughter is on max dose of Keppra, Lamictal, and zonisamide but still struggles with refractory epilepsy. She has an inoperable brain tumor. She tried the keto diet but felt it gave her an eating disorder. Would love for there to be more avenues to treat epilepsy and brain tumors.
I'm glad to see you're making videos again! They help me cope with the uncertainty. It's nice to have an explanation for what is happening in my body even if it isn't the full picture.
This is a super interesting channel to find. When I got epilepsy at 21 years old, my doctor just said you have epilepsy because you’ve had 2 seizures. Literally no explanation for it. It was extremely frustrating for a young person. I was so frustrated that I just basically checked out on even trying to understand it. It took years to finally accept my behavior had to be different from my peers, and I had many seizures, but is now under control for 10 years. I still don’t understand it but at least accepted the reality
I get what your saying I have had epilepsy most of my life for 40 years, and I have seen many neurologists with moving around, and not one has ever explained things in depth to me, basically you have epilepsy, you will not grow out of it you will be on medication the rest of your life! Not even any information on what can better improve my life! It's frustrating! I got more information feom a chiropractor that treated my epilepsy as an alignment issue, at least he tried alternative routes
Question I have seen your video on Briviact possible replacement for Keppra have you used it in your practice for generalized since it hasn’t been FDA approved for generalized and it’s fairly new ?
Michigan resident here. My son was diagnosed with a rare genetic condition called KCNB1 10 months ago. I came across your videos when researching his condition and that he could develop seizures at some point in his life. We have seen so many specialists who have never heard of his genetic condition. Theres a few families here in Michigan who have come together via Facebook but we would love more specialists doing research and bringing awareness here in Michigan ❤❤. Many of our kiddos have drug resistant epilepsy. My son has not been diagnosed but I have suspected seizures.
I used to have seizures. EFT (Emotional freedom technique) helped tremendously. Bioenergetics TRE and Havening . All of these work on the body, mind, thoughts connection. My seizures were triggered by past memories where I repressed the natural instinct to speak, walk away, be angry, fight etc. We don’t know internally how someone has shut down that mechanism. In my experience seizures were the result of my body no longer being able to hold on to the trauma. God speed.
As a neuropsychiatric nurse practitioner that specializes in acquired brain injury…I see patients with post traumatic seizures…I’ll point them towards your videos…I make some of my own videos…but these are excellent for any patient with seizures, regardless of etiology and are easy for patients to understand…
Many thanks, Dr Danone, for taking the time to make these very informative videos. I have am currently on Keppra, which is effective for me. I have made lifestyle changes, including eliminating carbohydrates, sugar and alcohol. Animal based food intake, including dairy. 64 yo female, active outdoor lifestyle. I do experience bouts of fatigue and feel I am affected by changes in barometric pressure, particularly wind. Overall. I consider myself very fortunate to be ble to live a ‘normal’ life! You provide an excellent educational resource here. Thank you again.🙂
Can you please make a video on the common things that people do that can increase people's odds of having seizures such as smoking cannabis and drinking alcohol or low sodium. Thank you sir 🙏
Thank Dr, evertime im listening to U, i get so much relieved, im on treatment for 3Months now n was so scared about everything, i was diagnosed 3months back, I done EGG waiting for my results going for scan next month, but I'm no longer scared because of u
Does anybody here experience seizures caused by loud school bells, dog barking or sharp abrupt noises? I have been told it's a rare form called startle seizures.
Hi Dr Oman, can you do a video on antibiotics induced seizure ? Such as fluoroquinolone antibiotics induced seizure,what seizure category do they fall into and the treatments required to treat such seizure.
I have idiopathic generalized tonic clonic, I went into status epilepticus in June last year and almost died. I got epilepsy in my early 20s I’m 27 this year and have bpd and other psychiatric issues, I can’t believe I found out now Keppra as elevated side effects.. however I also had myoclonic jerks and had a 7day eeg and was put on lamictal aswell lol I guess it balances it out in the end
The age of 8 was diagnosed with Epilepsy, most likely caused by high temperature, causing febrile seizures when I was an infant. At the age of 22, I had a temporal lobectomy, where they removed scar tissue on the left temporal lobe. I went from 22 pills a day to 6 a day to zero pills. I went seizure free for 19 years and suffered a TBI at work and now suffer from, guess what, you got it. I now suffer again from dacrystic seizures and back on seizure medicine have a VNS implant. I found that when given multiplication math problems during my seizures shorten the episode and recover quicker. This is something you might want to study. My years of seizure free after the temporal lobectomy I became a firefighter and was driving fire apparatus. I had to retire after suffering the TBI. I have been a patient to 4 well known Medical Centers (UVA, VCU, Cleveland Mayo Clinic and Duke University. That is what Epilepsy did to me.
Bummer. I went seizure free for many years. UNTIL a doktor broke my nose during a simple biopsy on my face, which caused a concussion. It's sad that so many suffer from other people's negligence, stupidity, and arrogance. Wishing you well. We got better once, we can do it again. Don't give up.
I had a head injury that’s how I developed it a long time ago and I have generalized epilepsy. I have had so many MRIs and EEGs.Now I am honestly curious if I have MS.
I have normal EEG, lesions in the brain on MRI and have seizures they told me they were PNES but I continued to have them in my sleep at night and bite my tongue. I finally got a new Dr and he said PNES will not allow you to bite your tongue and you wont have those type when asleep.
That exact thing happened to me too I started having seizures in October of 2014 in 2016 I was diagnosed with PNES and then finally in November of 2022 I went to a another neurologist and they found that I have a rare form of epilepsy. And they, too, said the same that the PNES can't happen at night.
My episodes happen when I’m asleep. I know I have an episode because I bite my tongue. That being said, my doctor told me I could be having episodes that don’t cause me to bite my tongue, but I’m asleep so don’t know it. I’ve been on several meds, none of them work.
What are your thoughts on EMU. If a patient has witnessed tonic-clonic seizures can an EMU be beneficial? If so how beneficial? Would it be worth the risk of starting seizures again?
My Epilepsy is related to a head injury, it's a good thing I didn't go into a coma. I've been on several different medications to control the seizures, so I can return to a normal of lifestyle. Although I didn't completely escape free from my accident, I had amnesia for a while, then facing possible leg amputation (if my leg gets any worst)
Thank you for all this useful info. My daughter is 12 and her seizures are back after 3 years , she was weaned off zonisamide ,and I heard you say it suits people with alcoho abusel? Was it not suitable for her age? Her seizures are generalized.is it true you can't go back to old medication you stopped? Hope you reply .thank you
Do they have the neck malformation chiari? I do and I have severe tonic clonic convulsions told it’s epilepsy by the specialists selling pills pushing pills for 💰I see through em all now. Brain stem herniation is sure to trigger convulsions not epileptic types but stroke like types
Hi Doc Omar you are amazing. I am 49 and I am from India. I am watching your videos and getting clarity about focal seizures. I am getting them for last 8 years and I was diagnosed in the year 2021as focal seizures with discognetive features. The cause is Covernoma. I am taking 1. Lacosamide 200 and 2. Brivaracet 50. The frequency and intensity came down but still getting them. Am I getting the right medication. Or am I drug resistant. Could you please suggest correct new medication. I am 77 kg.
I had a traumatic childhood and when I started having children and really working on my emotional issues my seizures began. I got an mri and found a lesion in my right temporal lobe. The focal aware seizures seem to get triggered the more I “heal” and work on being calm over panicking which my brain grew used to my entire life. Could my healing actually be what’s triggering my seizures? Love your content
@@DrOmarDanoun Can you do a video about how does the potasium & sodium channel triggers seizures? I thought it has to do with the potasium & sodium levels in the body. Thanks!
Hi hope you're well... I've been seizure free for about 4 years but had a sudden seizure few months ago, i took meds as normal withou missing however i would like to find what the cause of my vreak through seizure was. I was under work stress and lack of sleep
I hope there's an upcoming medication that can control the seizures like Keppra and Depakote without the side effects, which is what I've been on now for 7 years. I tried Lamictal in the past and felt great with no side effects, but unfortunately, became drug resistant and increased my seizure frequency after a year. Thank you for your videos.
Hi Dr Danoun I have absenance generalized seizures. I started having my seizures when I was 17 years old. My seizures started when I started having my menstrual. I have tried every thing to get me seizures under control. I take Keppra, vimpact, Lamictal, dilation, Tegretal, vegal nerve stimulator. I started Cenobamate a week ago. It helped but then I had a seizure. Do you think my hormones could cause my seizures keep happening?
Fantastic video, I wondered if cannabis is good for epilepsy as I was told it is? I have tried it and found, my grand mal and petit mal fits, make me more restful when I sleep at night, would like to hear your advice on it thank you. 👍👍
I asked GP practice for all my records but the didn’t give me, my seizures results for Ct scan that I got at emergency room care from 7th October 2005 and lumbar puncture & MRI scan results and the EEG results I was prescribed phenytoin, jump to 14 august 2019 test in sleep clinic for sleep study for sleep apnea, 82 breathing pauses per hour from 10pm -3am then doctors said that will be given the Resmed machine to take home as that will help a lot Not sure why those paperwork aren’t with the rest of my records I’m from Scotland
Sir, I am also an epileptic seizure patient. My first seizure occurred in 2018. After check up by doctors I was well for few years. On 2022, again I suffered from seizure occurred. Where doctors told me to take "Levetiracetam" (Levipil - 500) , after which I constantly started suffering from " seizure Aura". After my first seizure only I started suffering Aura ( like, Deja Vu, fear, etc.) , But it occurred rarely. But, After taking levetiracetam I suffered from seizure constantly (2 to 3 times a week). Can you tell me how to treat this?
I started having seizures by age 24 ... first one was focal turned generalized, tried Keppra.. immediately stopped then went to a oxcarbazepine but the seizures didn't stop (mri showed no issues) eeg showed "slow waving" HOWEVER by age 27 they became focal turned generalized, L.O.C with shaking/ dropping to floor. I NEVER had seizures before 24 but I did have severe complex ptsd and depression from family abuse ever since I was 2 yrs old, and starvation from mother. When I turned 23 I started feeling like I was "splitting" felt like I was in the kitchen cooking, at my computer drawing in living room, brushing teeth in bathroom and laying in the bed BUT I was only in bed. It got harder to stay in reality and I felt detached with urge to drool/puke CONSTANTLY... now my seizures come with fake memories or a bitter voice that is hostile 😢
Hi Dr. Omar I have absent generalized seizures. I not gotten my seizures under control. My medication hasn't helped. I have a vegal nerve stimulator it didn't help. I saw where vitamin D has helped for seizures. Do you think vitamin D 500-2000iu would help me?
It depends on what is the evidence that led to the diagnosis.. Sometimes can be wrong EEG reading like we mentioned in the video. Please discuss with your neurologist
Keppra and Briviact are too strong for me. I need something with less side effects like being dizzy, tired, paranoid ect.. 69 years old I had a seizure in my sleep. Doctors had MRI and EEG done with no problems found. Two months later a second less severe seizure after falling asleep in a recliner. VCU neurology put me on Keppra and I was lucky to not get divorced or locked up for fighting. I even cut the dose and it didn't change much. VCU doc. said you're free to go elsewhere. I did, Duke and was placed on Briviact 25mg twice X daily. It wasn't bad at first but now six months is similar to Keppra but I feel more dizzy and paranoid. Since I'm on blood thinners Duke says I'm limited to what medications can be given. I drink very little alcohol but finding one beer will give me a headache lasting into the next day. Duke neurology doesn't want me to cut the dose even a little bit. I'm very sensitive to chemical smells and household cleaning products. I feel like if I have even a minimal amount of the drug in my system I'll have some protection. This class of drug all seems to have the same side effects and that's not good for my active quality of life. I bass fish and stand all day on a boat hit by waves from Wake Boats, Jet Skies, and everything else. I'm not quitting and need a suggestion on what to do. I want to throw all the drugs in the trash.
Hello Doctor, I am epilepsy patient can you please make video for breath exercise for us to do to relax , calmness , reduce anxiety and stress and overthinking which we can do safely and help us. Please itS really request i am looking for guidance and help from very long time please
That I have seizures epilepsy butts that I also have stress non seizures and I've never had that before it's something new to me let it feels like a seizure. All the symptoms are the same it just feels like when I was younger when I first started getting my grandma seizures like I said do you work in New York City
Hellou, Im from Slovakia. I hawe focal epilepsy, still I woud like to know your opinion if I send you a video of a seizure and will write you what I hawe for meds to stop the seizures. Thank you for the replay
Alot of the time I get scared of what put medications get cause of not sure what 2 expect. I when I get put on new medication I never get informed by my neurologist of what side effects 2 expect until it happens . That worrys me
I've had seizures since I was 4 years old. I have what they call the petite MI seizures. After I gave birth to my daughter . In my mid-twenties my seizures became Grandma seizures. Remind me to 30s my seizures became uncontrollable I would lose control of my bladder. They put a VMS in my chest. And gave me medication to control my seizures mind you before this I was having 8 grand mal seizures a day unknown small seizures. Need to know do you work in New York. They change one of my medications.
I've had epilepsy since I was 2. Having epilepsy feels like I have been cursed that's how it feels 2 me the Epilepsy I have is related to Tuberous sclerosis having TSC feels I have been cursed it feels like a curse 2 me having the hole condition gets me depressed I suffer with Depression and take pills 2 help it I still get my good and bad days of being depressed
**How can patients find out if the person reading the EEG is good or not, so they will be read correctly? •Clinics won't tell •Patient reviews mean nothing. They don't know if the results are read correctly. •Get a 2nd opinion? Insurance may or may not pay for it. •Have two people at the clinic read it? I doubt that is done unless there is a question. Help us out, please. Do you have any suggestions? Thank you in advance.
Regarding the EEG experience.. It shows from the profile of the doctor if they did training in EEG caller clinical Neurophysiology fellowship or epilepsy fellowship... Regarding second opinion, yes I recommend to get a second opinion if your seizures are not controlled and go to the nearest epilepsy center.. Just search epilepsy center in x city and you should find it
I have scarring on the brain. I have catamenial epilepsy and Left temporal lobe scarring . My change in diet and lifestyle has helped greatly but I’m worried about menopause
@@kyliejacobs6817 Hi, may I ask if any medication in particular helped stabilize your seizures? I started experiencing seizures monthly during the same week 3yrs ago which makes me feel as though my hormones are causing them.
@ I started ketogenic diet and it’s been 12 months now and I have found a decrease in my monthly auras etc I don’t get them as often as I used to or so strong like I used to prior ketogenic diet and daily exercise too
Yep. I was born w/one. I'm a past volunteer for the epilepsy foundation. Epilepsy is only diagnosed after 2 or more unprovoked similar in pattern seizure
So what causes Temporal Lobe Epilepsy???? I was diagnosed with Temporal Lobe Epilepsy in 2018. I never had a seizure in my life until 2018 and it’s crazy because my Cousin, Aunt and Uncle all passed away from seizures in there sleep
@@DrOmarDanoun I think mines came from stress and popping ecstasy. Yes I’ve had multiple EEG test and it was a lot of activity on the left side of my brain 🧠 I had to stay in the hospital for a week and I also had a test where they I was sent home with a machine and had to bring it back after a week.! But my doctor couldn’t tell me why I was having seizures
I came across your video as i have epilepsy. I had my first seizure aged 25. I had it as a one off. I had come home from work and i didnt feel well. My mum said i shouted its coming. I was then foaming at the mouth. Bit my tongue and had a seizure. Didnt have another one so thought it was just a one off. 10 years later i started to have a cluster of seizures in my sleep. I went for tests and they said mine was called a tonic clonic seizure. I dont know what causes mine as i am confused because the causes you have explained i have none of these so dont know where my epilepsy has come from. The last time i had one i was pregnant and the nurses said to me i more than likely had a seizure because my pregnancy was soaking up most of my medications as when they ran tests on me my epilepsy medication levels were low. How can i just have epilepsy out of the blue when nobody in my family suffers from them and ive had no family history. Im a fit and healthy person but i have noticed that if i am overly stressed i can have a seizure. If i miss a tablet i feel very sick and get brain fog. I then get bad anxiety when i feel ill and can have a seizure then. Its an overwhelming horrible feeling. Wud appreciate any advice please x
Epilepsy is unpredictable it can happen I think over 60% of people don't have a direct cause but it doesn't matter. What's important is how u live your life now
Hi Dr Omar, I am from India, my father is taking anti epileptic medicines for the last 40 years. Presently he is taking : 1) Brevipil 100mg in the morning / 50 mg in the afternoon / 100mg at night 2) Locaset = 100 mg in the morning , afternoon and at night each time. 3) Topomac = 25mg in the morning and evening each time. 4) Frisium 5 mg only at night Still he is having seizures episodes every second month. Please suggest which action to take? Is there any other method to control it except adding more medicines if any?
Hi, I am also from India, did you find any visual disturbances or mental health issues in your father because of using brevipil tablet I also use the same tablet.
Hi my son is 8 with autism and hyperative (sensory issues) how to resolve it air. Recently he is throwing all the things at fan. How to work on please guide.😊
An angiogram could help rule out some things. Seeing how blood flow could interrupt firing off…… I now know many scenarios are overlooked by my neurologist thanks for creating a pill factory neurologists and leaving my chiari to compress my nerves and arteries 😂🤣🥳😆good doctors 🤣
Yes I recommend you to see an Epilepsy center. If you are in the USA you can come over to my clinic and if you are outside the USA then you can do video consult with and the link to book is under the video or first comment
My dad started having seizures in his late 60s, he's on sodium vslporate 1000mg, it keeps coming back,can it even be cured? We feel helpless whenever it starts, I love him so much to watch him suffer
As a person who's partner has epilepsy I can understand why you feel so upset. As the good doc said there is no one treatment fights all people. So a good doctor is very important. First what country do you live in, is he taking his medication, are you making a log of his episodes. You could review see if there is a better medication, consider cbd oil.
he skims over it for just a few seconds around 10:10 and calling it metabolic. i.e., deficiency. When we listen carefully...most will never seek anything other than "treat". If hoping to reverse or prevent the condition, it's up to yourself. Or get lucky to find one to help with testing. Highly likely the roads all lead to calcium. Which means deficient or problems with VitD, or Mg, or B1, or B6 - or all of the above...as they are interdependent. Getting that figured out is hard. But not compared to getting anyone to even listen or consider it...which is much, much harder. Almost to the point that it might be easier to not even know. And the "treatment" very often is a guarantee that if a person even thinks for a second about not taking them. = episode.
Hi doctor I am following your videos regularly these very informative I need you help in my case What could be the issue if the seizures coming continuously since 2 and half months? Doctors diagnosed that autoimmune encephalitis as all tests results as negative, no genetic issues, no scars in brain nothing it’s clear when got the first seizure after two weeks in second MRI small small bright spots found in fourth MRI it looks bit bigger now it almost more than two months the bright spot in brain bit decreased after months of seizures medication and rituximab but focal seizures still getting 24 hr every day please suggest what could be done or todo please doctor please help please pray for him
I notice when my son get covid. He stop doing seizure for 5-7day.. Once covid out his system then he start doing seizure daily again. Do you know why is that?
@@DrOmarDanoun currently I don’t have that much money for appointment booking. I have spent lot of money already I am running out of funds for treatments so if possible I will pay later. It looks bad but it’s my current situation is this so please help with appointment.
Do you know anything about Auditory seziures? Im hearing things that aren't there. Like musical tunes, but im hearing just phrases that I've heard from music or tv or something. I can point to where it's "coming from"
I found one of them from looking online. It was so uncanny how exact it was. And I don't listen to the artist Journey, but I'm hearing that specifically. Just one word.
Hello Dr. Danoun. Thank you for sharing. I started having seizures in 2021 after receiving an emergency blood transfusion due to being anemic. Since then, the seizures come during the same week of the month, every month which seems to be hormonal (possibly catamenial). I was diagnosed 2 months ago with autoimmune epilepsy after 3 years of monthly seizures. Meds aren’t helping, the seizures come monthly and my epileptologist stated that my epilepsy could be catamenial as well as autoimmune, but he hasn’t treated me for the catamenial epilepsy. I truly feel that my hormones are causing the monthly seizures. How can this be treated to get the seizures to stop ?
@@DrOmarDanoun Thank you so much for replying. I had a grandmal lastnight, I’m currently taking Clobazapam, I’ve tried other medications, but still having monthly seizures.
I had eeg and mri IN 22. dr say I has 3 Concussion the dr said they r fine. But mentally I was not. I told him I'm not person who body I'm in. He said I faking memories lost after car accident. 1yr half I has grand mal seizure. I don't remember last 2 yr flashes I get. He won't do another eeg and mri.
I have seizure for 4yrs now. It started when I had miscarriage. Now Im getting worried. It is generalized seizure because after my episode I lost my memory.
I also Want to ask you that how can we understand ourself before zeisure will start take place in our body before 1 or 2 minutes..... I am having Brain injury Epilepsy. Thank You.
From early childhood I suffered debilitating head pounding pressurized pain filled headaches which began with tunnel-vision then flashing neon type lights . Could these have been seizures? My seizures are general I believe, but not sure. I'm on two seizure meds. I was told that they found evidence of a stroke that happened when I was young...a child. I remember my face and limbs being very heavy. I made it home in time to try to tell my mother but my words were garbled. She got mad at me and sent me to my room 😢.
If you're medicated u have seizures. Migraines and seizures are very similar even in eeg it's hard to tell. I had an in utero stroke and have both migraine and epilepsy. Don't worry about what may have happened in the past worry about now because u may never get an answer and it doesn't matter. U can't change the past
My son juat started having seizures or we are more aware of it. Eitherway this is all so very confusing and i feel like the only neurologist in the middle of no where is dismissing me and not being thorough. I cant get calla back. Im just totally lost right now. His seizures are so weird and idk what to even look for and i have no guidance here. Please your videos help but these seizures are very hard to pin point we only know he had one bc hes so pale and tired after. His grades bombed this semester and hes always had good grades. And in 2 months we have Fs across the board.
Went to Duke and had a 5 day eeg, wow they triggered 10 auras in 1 day, i chewed my tongue so badly... The epileptologist got all the info he needed on that day. I wanted that RNS, but the Dr said brain surgery was my best option. Thanks for the video!
@sewmeonekenobi639 next month I'll have an SEEG done, 17 electrodes! After that I'm hoping they still feel Lazer surgery over an implant is the way to go. So what did you think of the food at Duke? 🤮
I found the gene causing my epilepsy, and it indeed disrupts the ion channels and causes uncontrolled glutamate. In fact, glutamate foods are my number 1 trigger. Seems the blood brain barrier is disrupted as well since glutamate in foods shouldnt cross it. Im doing well on clobazam and memantine. Many other meds only made it all worse.
I have autoimmune encephalitis so it's autoimmune epilepsy. They sent my case to Mayo clinic and they decided a VNS (Vagus nerve stimulator) implant was a good idea. I've had my disease for 3 years now, and in the first year and a half my disease was really bad. I've had 7 seizures during that time, the longest one had me in a coma for 4 days. Thankfully I'm at a year and a half no seizure now, it's really an amazing feeling. All the seizures I had were tonic clonic and I just drop
Wow that's Awesome my daughter has the same condition but had a temprol lobe surgery having short term memory loss we are from South Africa any suggestions pls would really Appreciate
@@ushabasitheva8174 I can't personally give any suggestions. They sent my case to Mayo clinic in the US to figure out the best course for me to go. I had to do an in hospital eeg where they took me off all my seizure meds so they could see where my seizures were coming from and they found this. I'm lucky I live in Chicago and have some of the best doctors. I had really bad memory loss after one of my seizures based on where the inflammation in my brain was but that recovered over time, still not perfect, but I lost a lot of time from that one b
Hi, may I ask what caused the autoimmune epilepsy ? I was diagnosed with autoimmune epilepsy a few months ago but I started having seizures 3yrs ago after receiving a blood transfusion
My son is now in danger because he is sleeping at nights and he’s pointing and showing me things that I can’t see hurting him self biting, hitting his head and kicking, please help me to understand what I can do to help him
✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment below (for age 16 years and older) appointment.dromardanoun.com/
In USA, please call the clinic
Can you make a video on brivaracetam
Yes already made it @@LVAudits
can you pls recommend a dr. how does online consulting for kids?
hello doctor, which number or clinic to call for appointment with you in USA,also please let me know which city you are in,i wanna recommend one of my friend who is suffering from PNES i guess
Daughter is on max dose of Keppra, Lamictal, and zonisamide but still struggles with refractory epilepsy. She has an inoperable brain tumor. She tried the keto diet but felt it gave her an eating disorder. Would love for there to be more avenues to treat epilepsy and brain tumors.
I am so thankful for your help with this channel. My whole life is upside down since I am now officially in the club.
I had 5 seizures in a row, ended up breaking my nose busted my lip. Recovering slowly now. Videos are educational.
I'm glad to see you're making videos again! They help me cope with the uncertainty. It's nice to have an explanation for what is happening in my body even if it isn't the full picture.
Thank you.. Glad to hear that. Yes I will continue making videos
This is a super interesting channel to find. When I got epilepsy at 21 years old, my doctor just said you have epilepsy because you’ve had 2 seizures. Literally no explanation for it. It was extremely frustrating for a young person. I was so frustrated that I just basically checked out on even trying to understand it. It took years to finally accept my behavior had to be different from my peers, and I had many seizures, but is now under control for 10 years. I still don’t understand it but at least accepted the reality
I get what your saying I have had epilepsy most of my life for 40 years, and I have seen many neurologists with moving around, and not one has ever explained things in depth to me, basically you have epilepsy, you will not grow out of it you will be on medication the rest of your life! Not even any information on what can better improve my life! It's frustrating! I got more information feom a chiropractor that treated my epilepsy as an alignment issue, at least he tried alternative routes
My daughter, 20 had her first one two mornings ago. She’s in a terrible mindset to deal wait. Doesn’t want to change her lifestyle
Thank you. In Canada neurology appointments are 15 mins and there is no time for such helpful explanations.
This is a great video DrOmar! ☺️ Are you able to make a video about the side effects of different epilepsy medications?
Yes there videos about each one
I have learned so much from your videos. Thank you.
Glad to hear that!
Man where have you been Doc? Thanks for the upload 💜
Glad to be back! thank you for stopping bye
Question I have seen your video on Briviact possible replacement for Keppra have you used it in your practice for generalized since it hasn’t been FDA approved for generalized and it’s fairly new ?
Michigan resident here. My son was diagnosed with a rare genetic condition called KCNB1 10 months ago. I came across your videos when researching his condition and that he could develop seizures at some point in his life. We have seen so many specialists who have never heard of his genetic condition. Theres a few families here in Michigan who have come together via Facebook but we would love more specialists doing research and bringing awareness here in Michigan ❤❤. Many of our kiddos have drug resistant epilepsy. My son has not been diagnosed but I have suspected seizures.
I used to have seizures. EFT (Emotional freedom technique) helped tremendously. Bioenergetics TRE and Havening . All of these work on the body, mind, thoughts connection. My seizures were triggered by past memories where I repressed the natural instinct to speak, walk away, be angry, fight etc. We don’t know internally how someone has shut down that mechanism. In my experience seizures were the result of my body no longer being able to hold on to the trauma. God speed.
One video is also needed on management of epilepsy in pregnancy
Yes.. I made one video on epilepsy in pregnancy in depth if you want to review it
As a neuropsychiatric nurse practitioner that specializes in acquired brain injury…I see patients with post traumatic seizures…I’ll point them towards your videos…I make some of my own videos…but these are excellent for any patient with seizures, regardless of etiology and are easy for patients to understand…
Many thanks, Dr Danone, for taking the time to make these very informative videos.
I have am currently on Keppra, which is effective for me.
I have made lifestyle changes, including eliminating carbohydrates, sugar and alcohol.
Animal based food intake, including dairy.
64 yo female, active outdoor lifestyle.
I do experience bouts of fatigue and feel I am affected by changes in barometric pressure, particularly wind.
Overall. I consider myself very fortunate to be ble to live a ‘normal’ life!
You provide an excellent educational resource here. Thank you again.🙂
Can you please make a video on the common things that people do that can increase people's odds of having seizures such as smoking cannabis and drinking alcohol or low sodium. Thank you sir 🙏
Yes next one hopefully will be on that
@@DrOmarDanoun thanks so much.
Things for Do's and Dont's for Patient having Epilepsy.
Dear, Dr. I request you to please answer us for this.
Would be interesting to see if smoking cannabis is a trigger to seizures.
@susannecoleman5726 for me it was. When I smoked it I was having 2-3 seizures a week. After I quit I have only had 2-3 seizures in the last year.
Thank Dr, evertime im listening to U, i get so much relieved, im on treatment for 3Months now n was so scared about everything, i was diagnosed 3months back, I done EGG waiting for my results going for scan next month, but I'm no longer scared because of u
Does anybody here experience seizures caused by loud school bells, dog barking or sharp abrupt noises? I have been told it's a rare form called startle seizures.
It can happen, if the seizures happen in the auditory cortex where the hearing occur
.....so I'm not alone, mine are triggered by music or cadence at the moment. Only difference is i have "fake memories" 😢
@ check out startle seizures
@@MetroMetro-zs8ksnot alone. I'm having all that as well.
Ty soo much for this! I am 4 years on this journey
Great video, thank you for your time!
My pleasure!
Can you please make more videos about auras!!? Thank you for all your videos. My seizures are well controlled but I have 4-6 auras a week. 😢
Auras are actually small seizures that haven't generalized yet or won't. They're simple partial/focal seizures
Excellent video. Thank you so much. 😊
You are so welcome!
Hi Dr Oman, can you do a video on antibiotics induced seizure ? Such as fluoroquinolone antibiotics induced seizure,what seizure category do they fall into and the treatments required to treat such seizure.
Yes already done named medications to avoid in epilepsy
I have idiopathic generalized tonic clonic, I went into status epilepticus in June last year and almost died.
I got epilepsy in my early 20s I’m 27 this year and have bpd and other psychiatric issues, I can’t believe I found out now Keppra as elevated side effects.. however I also had myoclonic jerks and had a 7day eeg and was put on lamictal aswell
lol I guess it balances it out in the end
If you’re ever looking for epilepsy related topics please make a video about Lennox-Gastaut syndrome as well corpus callosotomy.
Thank you in advance!
God bless you sir. Thank you for everything
The age of 8 was diagnosed with Epilepsy, most likely caused by high temperature, causing febrile seizures when I was an infant. At the age of 22, I had a temporal lobectomy, where they removed scar tissue on the left temporal lobe. I went from 22 pills a day to 6 a day to zero pills. I went seizure free for 19 years and suffered a TBI at work and now suffer from, guess what, you got it. I now suffer again from dacrystic seizures and back on seizure medicine have a VNS implant. I found that when given multiplication math problems during my seizures shorten the episode and recover quicker. This is something you might want to study.
My years of seizure free after the temporal lobectomy I became a firefighter and was driving fire apparatus. I had to retire after suffering the TBI. I have been a patient to 4 well known Medical Centers (UVA, VCU, Cleveland Mayo Clinic and Duke University. That is what Epilepsy did to me.
Bummer. I went seizure free for many years. UNTIL a doktor broke my nose during a simple biopsy on my face, which caused a concussion. It's sad that so many suffer from other people's negligence, stupidity, and arrogance. Wishing you well. We got better once, we can do it again. Don't give up.
@@chinookvalley I am now a stay at home dad, who also builds wood toys for hospitalized children.
God bless you for all those you have helped in your career
Thank you.. You too 🙏
Will you please explain what slow waves mean on an EEG? Ty
I had a head injury that’s how I developed it a long time ago and I have generalized epilepsy. I have had so many MRIs and EEGs.Now I am honestly curious if I have MS.
I have normal EEG, lesions in the brain on MRI and have seizures they told me they were PNES but I continued to have them in my sleep at night and bite my tongue. I finally got a new Dr and he said PNES will not allow you to bite your tongue and you wont have those type when asleep.
That exact thing happened to me too I started having seizures in October of 2014 in 2016 I was diagnosed with PNES and then finally in November of 2022 I went to a another neurologist and they found that I have a rare form of epilepsy. And they, too, said the same that the PNES can't happen at night.
My episodes happen when I’m asleep. I know I have an episode because I bite my tongue. That being said, my doctor told me I could be having episodes that don’t cause me to bite my tongue, but I’m asleep so don’t know it. I’ve been on several meds, none of them work.
Hello Dr. Danoun Can you please make a complete video on oxcarbazepine
Yes I can do that.. I made one on Carbamazepine which is very similar
What are your thoughts on EMU. If a patient has witnessed tonic-clonic seizures can an EMU be beneficial? If so how beneficial? Would it be worth the risk of starting seizures again?
If seizures are still happening then EMU is the best way to start
My Epilepsy is related to a head injury, it's a good thing I didn't go into a coma. I've been on several different medications to control the seizures, so I can return to a normal of lifestyle. Although I didn't completely escape free from my accident, I had amnesia for a while, then facing possible leg amputation (if my leg gets any worst)
Thank you for all this useful info. My daughter is 12 and her seizures are back after 3 years , she was weaned off zonisamide ,and I heard you say it suits people with alcoho abusel? Was it not suitable for her age? Her seizures are generalized.is it true you can't go back to old medication you stopped? Hope you reply .thank you
My son used to have a mild epilepsy but now it’s getting worse
Do they have the neck malformation chiari? I do and I have severe tonic clonic convulsions told it’s epilepsy by the specialists selling pills pushing pills for 💰I see through em all now. Brain stem herniation is sure to trigger convulsions not epileptic types but stroke like types
Hi Doc Omar you are amazing. I am 49 and I am from India. I am watching your videos and getting clarity about focal seizures. I am getting them for last 8 years and I was diagnosed in the year 2021as focal seizures with discognetive features. The cause is Covernoma. I am taking 1. Lacosamide 200 and 2. Brivaracet 50. The frequency and intensity came down but still getting them. Am I getting the right medication. Or am I drug resistant. Could you please suggest correct new medication. I am 77 kg.
Thank you very much your channel is amazing
Glad you enjoy it!
I had a traumatic childhood and when I started having children and really working on my emotional issues my seizures began. I got an mri and found a lesion in my right temporal lobe. The focal aware seizures seem to get triggered the more I “heal” and work on being calm over panicking which my brain grew used to my entire life. Could my healing actually be what’s triggering my seizures? Love your content
I can't say about a specific case but traumatic brain injury can cause epilepsy
Does the chloride and potassium channels system not working well have to do with poor potasium/ minerals in the body???
Thanks!
No not related directly to the levels of the minerals
@@DrOmarDanoun
Ok, thanks very much!
@@DrOmarDanoun
Can you do a video about how does the potasium & sodium channel triggers seizures?
I thought it has to do with the potasium & sodium levels in the body.
Thanks!
Hi Doc. Is MRI is still possible even the seizures happend 1 month ago? Thank you Doc❤
Yes
Hi hope you're well... I've been seizure free for about 4 years but had a sudden seizure few months ago, i took meds as normal withou missing however i would like to find what the cause of my vreak through seizure was. I was under work stress and lack of sleep
Can you do a video on Lesionectomy please?
I hope there's an upcoming medication that can control the seizures like Keppra and Depakote without the side effects, which is what I've been on now for 7 years. I tried Lamictal in the past and felt great with no side effects, but unfortunately, became drug resistant and increased my seizure frequency after a year. Thank you for your videos.
Can you please make a video on epilepsy of babies 0-6 years ....please
Doctor Omar Can You Please Tell Us that is their any kind of Brain Surgery from which the Patient can Get Rid of Epilepsy forever?
Hi Dr Danoun I have absenance generalized seizures. I started having my seizures when I was 17 years old. My seizures started when I started having my menstrual. I have tried every thing to get me seizures under control. I take Keppra, vimpact, Lamictal, dilation, Tegretal, vegal nerve stimulator. I started Cenobamate a week ago. It helped but then I had a seizure. Do you think my hormones could cause my seizures keep happening?
بارك الله فيك ياحكبم❤
وإياكم
Fantastic video, I wondered if cannabis is good for epilepsy as I was told it is? I have tried it and found, my grand mal and petit mal fits, make me more restful when I sleep at night, would like to hear your advice on it thank you. 👍👍
I asked GP practice for all my records but the didn’t give me, my seizures results for Ct scan that I got at emergency room care from 7th October 2005 and lumbar puncture & MRI scan results and the EEG results I was prescribed phenytoin, jump to 14 august 2019 test in sleep clinic for sleep study for sleep apnea, 82 breathing pauses per hour from 10pm -3am then doctors said that will be given the Resmed machine to take home as that will help a lot
Not sure why those paperwork aren’t with the rest of my records I’m from Scotland
Sir, I am also an epileptic seizure patient. My first seizure occurred in 2018. After check up by doctors I was well for few years. On 2022, again I suffered from seizure occurred. Where doctors told me to take "Levetiracetam" (Levipil - 500) , after which I constantly started suffering from " seizure Aura".
After my first seizure only I started suffering Aura ( like, Deja Vu, fear, etc.) , But it occurred rarely. But, After taking levetiracetam I suffered from seizure constantly (2 to 3 times a week).
Can you tell me how to treat this?
I started having seizures by age 24 ... first one was focal turned generalized, tried Keppra.. immediately stopped then went to a oxcarbazepine but the seizures didn't stop (mri showed no issues) eeg showed "slow waving" HOWEVER by age 27 they became focal turned generalized, L.O.C with shaking/ dropping to floor. I NEVER had seizures before 24 but I did have severe complex ptsd and depression from family abuse ever since I was 2 yrs old, and starvation from mother.
When I turned 23 I started feeling like I was "splitting" felt like I was in the kitchen cooking, at my computer drawing in living room, brushing teeth in bathroom and laying in the bed BUT I was only in bed. It got harder to stay in reality and I felt detached with urge to drool/puke CONSTANTLY... now my seizures come with fake memories or a bitter voice that is hostile 😢
How are you. Please connect with me
@dayantugonon9326 still trying to get my seizures to calm down, lately I feel high
Hi Dr. Omar I have absent generalized seizures. I not gotten my seizures under control. My medication hasn't helped. I have a vegal nerve stimulator it didn't help. I saw where vitamin D has helped for seizures. Do you think vitamin D 500-2000iu would help me?
How come my seizures started coming out of nowhere. Can I get in contact with you
can you make a video about stoke doc please ihad operation wake craniotomy and im stoke now paralized my left side
my brain tumor placed in right frontobtemporal lobes
I have just been diagnosed with temporal lobe epilepsy yet ive never suffered a seizure/fit???? Is this possible??
It depends on what is the evidence that led to the diagnosis.. Sometimes can be wrong EEG reading like we mentioned in the video. Please discuss with your neurologist
Not all seizures cause convulsions so yes its possible
I want more videos and how to treat them
Keppra and Briviact are too strong for me. I need something with less side effects like being dizzy, tired, paranoid ect.. 69 years old I had a seizure in my sleep. Doctors had MRI and EEG done with no problems found. Two months later a second less severe seizure after falling asleep in a recliner. VCU neurology put me on Keppra and I was lucky to not get divorced or locked up for fighting. I even cut the dose and it didn't change much. VCU doc. said you're free to go elsewhere. I did, Duke and was placed on Briviact 25mg twice X daily. It wasn't bad at first but now six months is similar to Keppra but I feel more dizzy and paranoid. Since I'm on blood thinners Duke says I'm limited to what medications can be given. I drink very little alcohol but finding one beer will give me a headache lasting into the next day. Duke neurology doesn't want me to cut the dose even a little bit. I'm very sensitive to chemical smells and household cleaning products. I feel like if I have even a minimal amount of the drug in my system I'll have some protection. This class of drug all seems to have the same side effects and that's not good for my active quality of life. I bass fish and stand all day on a boat hit by waves from Wake Boats, Jet Skies, and everything else. I'm not quitting and need a suggestion on what to do. I want to throw all the drugs in the trash.
Hello Doctor,
I am epilepsy patient can you please make video for breath exercise for us to do to relax , calmness , reduce anxiety and stress and overthinking which we can do safely and help us. Please itS really request i am looking for guidance and help from very long time please
That I have seizures epilepsy butts that I also have stress non seizures and I've never had that before it's something new to me let it feels like a seizure. All the symptoms are the same it just feels like when I was younger when I first started getting my grandma seizures like I said do you work in New York City
Hellou, Im from Slovakia. I hawe focal epilepsy, still I woud like to know your opinion if I send you a video of a seizure and will write you what I hawe for meds to stop the seizures. Thank you for the replay
We can do an evaluation yes. You can book your appointment now on the link appointment.dromardanoun.com/
I was take mri 8 years ago
Alot of the time I get scared of what put medications get cause of not sure what 2 expect. I when I get put on new medication I never get informed by my neurologist of what side effects 2 expect until it happens . That worrys me
I've had seizures since I was 4 years old. I have what they call the petite MI seizures. After I gave birth to my daughter
. In my mid-twenties my seizures became Grandma seizures. Remind me to 30s my seizures became uncontrollable I would lose control of my bladder. They put a VMS in my chest. And gave me medication to control my seizures mind you before this I was having 8 grand mal seizures a day unknown small seizures. Need to know do you work in New York. They change one of my medications.
My son started having epilepsy very young age at about three years old
I've had epilepsy since I was 2. Having epilepsy feels like I have been cursed that's how it feels 2 me the Epilepsy I have is related to Tuberous sclerosis having TSC feels I have been cursed it feels like a curse 2 me having the hole condition gets me depressed I suffer with Depression and take pills 2 help it I still get my good and bad days of being depressed
**How can patients find out if the person reading the EEG is good or not, so they will be read correctly?
•Clinics won't tell
•Patient reviews mean nothing. They don't know if the results are read correctly.
•Get a 2nd opinion? Insurance may or may not pay for it.
•Have two people at the clinic read it? I doubt that is done unless there is a question.
Help us out, please. Do you have any suggestions?
Thank you in advance.
Regarding the EEG experience.. It shows from the profile of the doctor if they did training in EEG caller clinical Neurophysiology fellowship or epilepsy fellowship...
Regarding second opinion, yes I recommend to get a second opinion if your seizures are not controlled and go to the nearest epilepsy center.. Just search epilepsy center in x city and you should find it
Thank you! This is very helpful so we have a means of becoming more confident.
My Daughter is 4.5 years old, how can I reach out to you online. I have her EEG report and MRI handy. She is on epilepsy medicine from last 3 years.
Thanks doctor. I'm looking for an epileptologist hopefully in my young adulthood.
Best of luck!
@@DrOmarDanoun I have been looking. Do you have any recommendations doctor?
I have scarring on the brain. I have catamenial epilepsy and Left temporal lobe scarring . My change in diet and lifestyle has helped greatly but I’m worried about menopause
@@kyliejacobs6817 Hi, may I ask if any medication in particular helped stabilize your seizures? I started experiencing seizures monthly during the same week 3yrs ago which makes me feel as though my hormones are causing them.
@ I started ketogenic diet and it’s been 12 months now and I have found a decrease in my monthly auras etc I don’t get them as often as I used to or so strong like I used to prior ketogenic diet and daily exercise too
@@quierrashontae6762 am I. Keppra 1250 mg twice a day and clobazam 1 tab a day and propranolol
I'm perimenopause. I choose not to worry about something we have no control over and I'm epileptic
Can a cyst in the brain cause seizures? I am using the terms seizure and epilepsy interchangeably - I hope correctly.
Yep. I was born w/one. I'm a past volunteer for the epilepsy foundation. Epilepsy is only diagnosed after 2 or more unprovoked similar in pattern seizure
"Its not Keppra for everybody" 🤣🤣🤣 THANK YOU! 😂😂😂😂
Epileptic seizures are pretty much glitches in the brain, but these glitches don’t allow for better speed run times on Mario world
So what causes Temporal Lobe Epilepsy???? I was diagnosed with Temporal Lobe Epilepsy in 2018. I never had a seizure in my life until 2018 and it’s crazy because my Cousin, Aunt and Uncle all passed away from seizures in there sleep
There is a whole video on temporal lobe epilepsy please review it
@@DrOmarDanoun I think mines came from stress and popping ecstasy. Yes I’ve had multiple EEG test and it was a lot of activity on the left side of my brain 🧠 I had to stay in the hospital for a week and I also had a test where they I was sent home with a machine and had to bring it back after a week.! But my doctor couldn’t tell me why I was having seizures
I came across your video as i have epilepsy. I had my first seizure aged 25. I had it as a one off. I had come home from work and i didnt feel well. My mum said i shouted its coming. I was then foaming at the mouth. Bit my tongue and had a seizure. Didnt have another one so thought it was just a one off. 10 years later i started to have a cluster of seizures in my sleep. I went for tests and they said mine was called a tonic clonic seizure. I dont know what causes mine as i am confused because the causes you have explained i have none of these so dont know where my epilepsy has come from. The last time i had one i was pregnant and the nurses said to me i more than likely had a seizure because my pregnancy was soaking up most of my medications as when they ran tests on me my epilepsy medication levels were low. How can i just have epilepsy out of the blue when nobody in my family suffers from them and ive had no family history. Im a fit and healthy person but i have noticed that if i am overly stressed i can have a seizure. If i miss a tablet i feel very sick and get brain fog. I then get bad anxiety when i feel ill and can have a seizure then. Its an overwhelming horrible feeling. Wud appreciate any advice please x
Epilepsy is unpredictable it can happen I think over 60% of people don't have a direct cause but it doesn't matter. What's important is how u live your life now
can you please make a video on nocturnal epilepsy? manifestations and treatments? Can it be hereditary? thank you.
Hi doctor i have video of my daughter i have somw question to ask and send you the video of my daughter how to contact?
Hi Dr Omar,
I am from India, my father is taking anti epileptic medicines for the last 40 years. Presently he is taking :
1) Brevipil 100mg in the morning / 50 mg in the afternoon / 100mg at night
2) Locaset = 100 mg in the morning , afternoon and at night each time.
3) Topomac = 25mg in the morning and evening each time.
4) Frisium 5 mg only at night
Still he is having seizures episodes every second month. Please suggest which action to take? Is there any other method to control it except adding more medicines if any?
Hi, I am also from India, did you find any visual disturbances or mental health issues in your father because of using brevipil tablet
I also use the same tablet.
Hi my son is 8 with autism and hyperative (sensory issues) how to resolve it air. Recently he is throwing all the things at fan. How to work on please guide.😊
Hi Dr. I want to know alcohol can cause seizure
Yes and there is a whole video about it
An angiogram could help rule out some things. Seeing how blood flow could interrupt firing off…… I now know many scenarios are overlooked by my neurologist thanks for creating a pill factory neurologists and leaving my chiari to compress my nerves and arteries 😂🤣🥳😆good doctors 🤣
Hello Doc! Does kepra damage kidney?
No but in kidney issues the Keppra dose needs adjustment
I am 42, and I just started having seizures out of nowhere a year ago. I don’t know what kind but they are not managed at all. I need help!
Yes I recommend you to see an Epilepsy center. If you are in the USA you can come over to my clinic and if you are outside the USA then you can do video consult with and the link to book is under the video or first comment
Definitely go to an epileptologist and not just a general neurologist. I made that mistake growing up.
@@amandah.4864 have a neurologist follow you.
Can you make a video on brivaracetam?
Yes I already did..please review it
Is tegretol CR goog for treatment?
One of the treatments.. I made a whole video on this medicine you can review
My dad started having seizures in his late 60s, he's on sodium vslporate 1000mg, it keeps coming back,can it even be cured? We feel helpless whenever it starts, I love him so much to watch him suffer
As a person who's partner has epilepsy I can understand why you feel so upset. As the good doc said there is no one treatment fights all people. So a good doctor is very important. First what country do you live in, is he taking his medication, are you making a log of his episodes.
You could review see if there is a better medication, consider cbd oil.
he skims over it for just a few seconds around 10:10 and calling it metabolic. i.e., deficiency.
When we listen carefully...most will never seek anything other than "treat".
If hoping to reverse or prevent the condition, it's up to yourself. Or get lucky to find one to help with testing.
Highly likely the roads all lead to calcium. Which means deficient or problems with VitD, or Mg, or B1, or B6 - or all of the above...as they are interdependent.
Getting that figured out is hard. But not compared to getting anyone to even listen or consider it...which is much, much harder. Almost to the point that it might be easier to not even know. And the "treatment" very often is a guarantee that if a person even thinks for a second about not taking them. = episode.
Hi doctor I am following your videos regularly these very informative
I need you help in my case
What could be the issue if the seizures coming continuously since 2 and half months? Doctors diagnosed that autoimmune encephalitis as all tests results as negative, no genetic issues, no scars in brain nothing it’s clear when got the first seizure
after two weeks in second MRI small small bright spots found
in fourth MRI it looks bit bigger
now it almost more than two months the bright spot in brain bit decreased after months of seizures medication and rituximab
but focal seizures still getting 24 hr every day please suggest what could be done or todo please doctor
please help
please pray for him
It is hard to tell without evaluating the patient. You can get an appointment for evaluation if you want
I notice when my son get covid. He stop doing seizure for 5-7day.. Once covid out his system then he start doing seizure daily again. Do you know why is that?
@@DrOmarDanoun sure
@@DrOmarDanoun currently I don’t have that much money for appointment booking. I have spent lot of money already I am running out of funds for treatments so if possible I will pay later. It looks bad but it’s my current situation is this so please help with appointment.
@@DrOmarDanoun seizure coming during morning and some time it triggering by self thoughts, angry or thinking like etc
Do you know anything about Auditory seziures? Im hearing things that aren't there. Like musical tunes, but im hearing just phrases that I've heard from music or tv or something. I can point to where it's "coming from"
I found one of them from looking online. It was so uncanny how exact it was. And I don't listen to the artist Journey, but I'm hearing that specifically. Just one word.
Help me treat my son having zeisure which happens onces in every three months
Hello Dr. Danoun. Thank you for sharing. I started having seizures in 2021 after receiving an emergency blood transfusion due to being anemic. Since then, the seizures come during the same week of the month, every month which seems to be hormonal (possibly catamenial). I was diagnosed 2 months ago with autoimmune epilepsy after 3 years of monthly seizures. Meds aren’t helping, the seizures come monthly and my epileptologist stated that my epilepsy could be catamenial as well as autoimmune, but he hasn’t treated me for the catamenial epilepsy. I truly feel that my hormones are causing the monthly seizures. How can this be treated to get the seizures to stop ?
Possible. I mentioned all the treatments in the video on catamenial epilepsy
@@DrOmarDanoun Thank you so much for replying. I had a grandmal lastnight, I’m currently taking Clobazapam, I’ve tried other medications, but still having monthly seizures.
I had eeg and mri IN 22. dr say I has 3 Concussion the dr said they r fine. But mentally I was not. I told him I'm not person who body I'm in. He said I faking memories lost after car accident. 1yr half I has grand mal seizure. I don't remember last 2 yr flashes I get. He won't do another eeg and mri.
Thank you for sharing your experience
Please make a video on Clobazam.
Yes I can
I have seizure for 4yrs now. It started when I had miscarriage. Now Im getting worried. It is generalized seizure because after my episode I lost my memory.
Its like I lost my confidence in work… most of my seizure is while sleeping.
I also Want to ask you that how can we understand ourself before zeisure will start take place in our body before 1 or 2 minutes.....
I am having Brain injury Epilepsy.
Thank You.
Please review the video on aura it has some information on this
From early childhood I suffered debilitating head pounding pressurized pain filled headaches which began with tunnel-vision then flashing neon type lights . Could these have been seizures? My seizures are general I believe, but not sure. I'm on two seizure meds. I was told that they found evidence of a stroke that happened when I was young...a child. I remember my face and limbs being very heavy. I made it home in time to try to tell my mother but my words were garbled. She got mad at me and sent me to my room 😢.
If you're medicated u have seizures. Migraines and seizures are very similar even in eeg it's hard to tell. I had an in utero stroke and have both migraine and epilepsy. Don't worry about what may have happened in the past worry about now because u may never get an answer and it doesn't matter. U can't change the past
My son juat started having seizures or we are more aware of it. Eitherway this is all so very confusing and i feel like the only neurologist in the middle of no where is dismissing me and not being thorough. I cant get calla back. Im just totally lost right now. His seizures are so weird and idk what to even look for and i have no guidance here. Please your videos help but these seizures are very hard to pin point we only know he had one bc hes so pale and tired after. His grades bombed this semester and hes always had good grades. And in 2 months we have Fs across the board.
Call your local epilepsy foundation
Went to Duke and had a 5 day eeg, wow they triggered 10 auras in 1 day, i chewed my tongue so badly... The epileptologist got all the info he needed on that day. I wanted that RNS, but the Dr said brain surgery was my best option. Thanks for the video!
Thank you for sharing your experience
I went to Duke too. They only did the ambulatory EEG. It didn’t show anything. They prescribed medication, which also didn’t do anything.
@sewmeonekenobi639 next month I'll have an SEEG done, 17 electrodes! After that I'm hoping they still feel Lazer surgery over an implant is the way to go. So what did you think of the food at Duke? 🤮
@ I didn’t eat any of it. Lol
I found the gene causing my epilepsy, and it indeed disrupts the ion channels and causes uncontrolled glutamate. In fact, glutamate foods are my number 1 trigger. Seems the blood brain barrier is disrupted as well since glutamate in foods shouldnt cross it.
Im doing well on clobazam and memantine. Many other meds only made it all worse.
This was coursed by head injury hit with tree fall
I love your videos
I have autoimmune encephalitis so it's autoimmune epilepsy. They sent my case to Mayo clinic and they decided a VNS (Vagus nerve stimulator) implant was a good idea. I've had my disease for 3 years now, and in the first year and a half my disease was really bad. I've had 7 seizures during that time, the longest one had me in a coma for 4 days. Thankfully I'm at a year and a half no seizure now, it's really an amazing feeling. All the seizures I had were tonic clonic and I just drop
Glad to hear that.. Thank you for sharing your experience
Wow that's Awesome my daughter has the same condition but had a temprol lobe surgery having short term memory loss we are from South Africa any suggestions pls would really Appreciate
@@ushabasitheva8174 I can't personally give any suggestions. They sent my case to Mayo clinic in the US to figure out the best course for me to go. I had to do an in hospital eeg where they took me off all my seizure meds so they could see where my seizures were coming from and they found this. I'm lucky I live in Chicago and have some of the best doctors.
I had really bad memory loss after one of my seizures based on where the inflammation in my brain was but that recovered over time, still not perfect, but I lost a lot of time from that one b
Hi, may I ask what caused the autoimmune epilepsy ? I was diagnosed with autoimmune epilepsy a few months ago but I started having seizures 3yrs ago after receiving a blood transfusion
@quierrashontae6762 autoimmune diseases have no cause. They just pop up. I've gotten 4 in 10 years. Just happens.
My son is now in danger because he is sleeping at nights and he’s pointing and showing me things that I can’t see hurting him self biting, hitting his head and kicking, please help me to understand what I can do to help him
Sounds more like psychiatric symptoms you're describing. Have you spoken to the doctor?