Doctor my son h inas epilepsy since five years .doctor said he has dre epilepsy.evry medication failed .we are worry about our son.plz reply me I am from Pakistan.
Hello doctor how do I get in touch with you my husband developed epilepsy about 7 years ago he is 60 years old but fit and healthy Alhumdillah apart from epilepsy there is no medical cause for his condition
We are SO VERY LUCKY to have you as our Epileptologist! After 27 meds & 37 years you have finally found way to give my daughter almost complete control over her Tonic-Clonic seizures God bless you, Dr. Danoun and thank you for your efforts to educate us, especially through your vudeos.
Hi Dr. Danoun. I just found your channel. I am 66 years old and have had tonic clonic Seizures since the age of 15. I am on several medications but over the years I have had break through Seizures. I was hoping when I was younger they would go away. But sadly that isn't the case. Its good to know that there are Doctors like you out there educating the public on this disease. Thank You and God Bless You. ☺🙏♥️🕊✝️
@kerryD-h7u And good luck to you as well. What helped me cope with having Epilepsy was a girlfriend many years ago when she was studying to be a nurse said that in Ancient Greek times that it was thought people who were having Seizures were conversing with the gods. Nice thought. I said back to her that I wish they didn't want to talk to me. 🤣 But as long as we are on the right meds, stay on them and get our rest, we live normal lives. Although I have never driven and that’s okay. I don't want to be driving, have a seizure and hurt someone. God Bless You 🙏💖🕊✝️
Since stopping carbs and sugars my anger issues with keppra have disappeared , I used to have anger spells and get angry but honestly with ceasing sugar and carb consumption I’ve not been moody or angry like I did prior ketosis
Hello from Hamburg, Germany, I had focal seizures with speech arrest, also status epilepsy. Then the diagnosis: Lamotrigine and Briviact since then. Initially many problems with side effects such as tremor (I am a doctor). Also many problems with aggression from others. 3 MRIs without any changes in findings, long-term EEG for 14 days. Fortunately now off Briviact. Just want to say very happy to have such informative blogs. Thanks for that
I had my first seizure in September of 2012. I was home alone and it was terrifying. I remember coming out of the seizure and I didn't recognize any of the name in my phone. Two weeks later, I was admitted to the hospital with double pneumonia . I was about to be released when my MRI showed a lesion on my right frontal lobe . Had a craniotomy the next day. However, I did make a remarkable physical recovery.. emotionally, it took a couple of years. 😊
Dr Danoun, I am viewing your talk from Australia. I am learning so much from your talks. Thank you for taking the time to share your detailed extensive knowledge. I have gained further insights to my own history and now feel confident in discussing ongoing medication adjustments at my next consult with my local neurologist.👏😊
I wish I was here for this, my daughter (5) has terrible epilepsy and it is almost impossible to control! We’ve tried so many epilepsy meds, she’s got the cleanest diet, and she’s still having hundreds of seizures daily !
Don't know what you mean by "the cleanest diet," but have you tried the Keto diet? My seizures stopped when I changed to Keto and I don't need seizure medication anymore. You need a (Medical) Nutritionist to design it for your child. Check into the history of why/how it was originally developed to treat epilepsy.
@@suzybearheart530 we’ve tried CBD and epidiolex only made her worse. She’s highly disabled so we have to weigh up impact on tone and personality greatly when we look at side effects. We aren’t keen on keto as the high levels of fat would just cause massive constipation as she can’t stand so has low motility
@@lastcall295 we aren’t keen on keto as due to high fat content she’d become massively compacted by constipation. She can’t walk or stand so already struggles with low motility and constipation is a msssive trigger for her
I recommend ketogenic diet for epilepsy. I have epilepsy and i had grandmal seizures. Also vitamins and you can recommend spinal tap but doctors usually don't want to take it because epilepsy is business, cured patient is lost customer. Also test toxoplasmosis, even in latent it can cause seizures. Demand lumpar punchture.
Hi Dr. Danoun ~ Thankyou so much for this! Ive learned more in an hour than in 4 decades with Neurologists in multiple centres and hospitals 😮😢 Thanks so very much 😊🙏🏻🎵
Have had epilepsy for 7 years now. I don’t get seizures frequently but what I have is Auras 4-6 times a week and my current doctor is trying to stop them. With keppra, xcorpi, and clobazam. Watching from Tulsa Oklahoma
@@cindygurrola10315 I'm on Kepra and clobozam too and 2 other ones, and I just got a VNS implant. I get auras sometimes, not too often thankfully they used to be way more. Like I just overexerted myself at my job way too much and had a small seizure there
I wish I was here for this stream. I have AE and got a VNS implant in december of last year, I've had one small seizure since and they had to turn it up but I'm doing better, my last bad seizure was February of last year after having 7 in about a year and a half. I live in Chicago and go to Northwestern there and they even sent my case to Mayo clinic to choose the Vns for me.
@@DrOmarDanoun Thanks Doc, they are. Like I said I'm really lucky to have such good doctors, I have 2 pnuero immunologists in the city that take really good care of me. They took a brain sample from my right temple in February of 23 and found CNS vasculitis unfortunately, but I don't notice that. I've had Crohns for years 11 years so I've been sick a long time now.
Arlington Heights, Illinois My 16 year old granddaughter has epilepsy. She is taking Keppra, but I feel she is experiencing negative side effects. But it is controlling her seizures. She was allergic to lamotrigine. I appreciate your knowledge.
I have myoclonic jerks and hade 3 seizures attack. 2 attacks happened probably when I did not have enough sleep and the recent one was when I did not have enough sleep and I was kinda drunk from a party. I'm on Keppra for almost 1 year, it kinda works and help to stabilize my jerks so far the only side effects I had was tired and sleepy but after awhile I'm used to it and push through the day. People with suicidal or emotional kinda person shouldn't take keppra
@Sydopath it's best to see different doctors to see if their opinions are a match or good enough for you. Also to record when your child having the seizures and show it to the doctors. I'm 41 now and the dose is 250mg. Wish you all the best
Thank you for this valuable page, I’ve learned so much from you. Daughter has an inoperable brain tumor causing refractory epilepsy (she’s on Keppra, Lamictal, and zonisamide). Is epilepsy surgery a possibility for her or will it be pointless considering the brain tumor is the root cause?
I’ve tried multiple medicines and have been diagnosed with bilateral focal epilepsy. I currently have a VNS implant and taking medications, I still have seizures with these also. I’m currently being studied for an RNS implant to see if that could possibly help more.
Hello Dr. I have had tonic clonic seizures since 14, i am 54, i had menengitis as an infant, i have been on tegretol since 15, and about 10 years ago my dr added topamax, are these good! They have tried weaning me off tegretol and it didnt work, it seems to work well for me! I worry about being on these meds for so many years! Also my seizures are only in my sleep!
Wigan, UK Hi Dr Omar, I’ve currently started to ween off Topiramate and starting the new anti-seizure medication Cenobamate, can you tell me side effects of Cenobamate please ? Thank you 😊
I was started on Keppra and it made me very fatigued, so after three months my doctor put me on something else which is much better!! So I encourage you to ask your doctor to have you try something else based on what type of epilepsy you have.
From Modesto California and I'm going to Stanford California for my treatment and I'm looking into brain surgery is my next step for my left temporal lobe I have epilepsy for 53 years
Arlington Heights, Illinois My 16 year old granddaughter has epilepsy. She is taking Keppra, but I feel she is experiencing negative side effects. But it is controlling her seizures. She was allergic to lamotrigine. I appreciate your knowledge. Can another medication be used to counteract the negative effects, in addition to the Keppra ?
Drink water, get good sleep and don't eat or drink anything with unnatural food colorings or caffeine. Around her periods the symptoms intensify, she just has to know it's the symptoms of meds and the meds fighting off seizures. I have to relax alot and even the type of music I listen to helps relax me. It gets easier the longer you're on Keppra. I hope the best for your daughter. Oh and pasta and white bread are a no go.
@marywilczenski5893 •Also remember she is a teenager ,having Epilepsy being a teenager .Nether are easy if it's stopping her daily life ?You need ether seek a second opinion I was in Hospital while they figured my Three lots of gradually building up she has the stress of exams -Don't rock the boat .Talk to her about what makes her happy etc first time I had a seizure I had a rash up my neck I was off the stuff before I was almost started they do not want to risk it -My sons not epileptic and I pray he doesn't get it .He has dealt with other kids at his school because he knows from me ,my Mum etc -I just would not want to rock the boat .Esp if she is mid exams she might not want to talk to about anything .Maybe take her out for a glow up ..Plan something fun I have sone that made me feel dreadfully clobbered my mental health was never great ,but I would never want another seizure in my life ..I also would not want to risk my own mental health I have Clonazepam 9 mg /Max of lamotrigine and Carbamaine Slow Release .I been on just about every flipping one .Remember Epilepsy Treatment has hugely improved I have two types -Starts back of my brain ,right temp lobe then spreads all over .
I'm quite disappointed that you only described old style keppra. Keppra ER is taken once a day. The effect is evened out over the 24 hour period. It makes a huge difference in reducing side effects.
What do you think of Bacopa, used in ayurveda for epilepsy. Especially for generalized epilepsy wirh tonico-clonic seizures that resists all treatments, for a Young adult ?
Dr Danoun... I would like to know if you see a crossover between patients with a connective tissue disorder/Dysautonomia/MCAS (The Dysautonomia Trifecta) and seizure activity? I have 2 girls (28 homebound and 30 higher functioning) who have uncommon manifestations of symptoms even for the trifecta. Both are seeing a wonderful neuro (specializing in migraines) locally and he has done wonders with their current meds. He also is starting to run the route of epileptic activity (since their migraines are better controlled with meds). I'm interested in knowing from a doctor, who specializes in epilepsy, if you've dealt with/observed patients who cross both boundaries? I would love love love to see a video on this if you have. I've seen where you have touched on the ANS's contribution to seizure activity but would like to know when (severity of what symptoms) someone with ANS dysfunction should be seeing a seizure specialist to rule out misfiring in the brain as a hidden cause. Thank you!!!
Salam, I'm Mustafa from Niger, my son (6 years)have an general absence epilepsie and take depakine, there is any plant medecine wich can help him more ? Thanks,
My adult son is on oxcarbazapine (max dose) and Vimpat daily for grand mal seizures that began at age 26 years old, unknown etiology. MRI does show a small area of glial cell formation in frontal right lobe. If he occasionally has an alcoholic drink or two, he ends up with focal seizures. Would these break through seizures be considered "failing" the two medications? Hope this makes sense. My son is 28 yrs old. Thank you.
My mom is on Keppra 1000mg 2 times per day and Vimpat 150mg 2 times per day, both taken at 7am and 7pm. Every single day from 2-6pm she gets extremely confused, no short term memory what so ever, sad, anxious, shaky, disoriented, it’s awful. Is it possible from 2-6pm the medication is low so she is having focal seizures? It’s the same time frame every single day… and she’s fine from 7am-2pm. Please help with ideas.
Hie doctor here from South Africa please help i seem to have focal epilepsy, and most of my seizures seem to happen wen i bath or shower regardless of the water temperature and they mostly happen during the time of my period. I have been given Epilim but haven't seen improvement only gained a lot of weight and im of child bearing age ,26 years old would like to have a baby soon. Please advise what can be better for me.
I have begun to realize that stink scents has been affecting me And is a trigger to me having seizures I had seizure In my sleep on last Friday which was black Friday in my sleep, I woke up with My full of dribble and a bit of blood where I bit my bottom lip And lightly nipped The edge of my tongue.the night before I had burn tissue and coconut bark in My room for The mosquitos and The smoke instantly brothered me I felt it in my chest but didn't have a seizure until I slept
I depandant on phenobarbiton ( Gardenal 90) . When Doctors try to withdraw gardenal again seizure attack me. What I will do? 6 Renowned doctors failed. Atlast all they told me just take Gardenal 90 and lead your life. Now I am 62. Is there any remedy?
Doctor, I have seizures & happen once a month during sleep, I just relaize that it has happened by the sign of tongue bitting, but I have taken levetiracetam 500mg that e Doctor prescribed for me,I increased e dose to 1000mg still no change, I went back to the hospital and EEG was normal and I was added carbamazepine 400mg am taking them altogether but I don't see any change, seizures still happen. I was requesting for your advice. Thanx!
I have epilepsy also where I only have seizures in my sleep, I also bite my lip from the seizures, I recently got a mouth gaurd for my upper teeth, the same one you would use for teeth grinding! I take carbamazpine and Topiramate! I hate taking meds! Prayers for you!
Hello doctor, my brother is having seizures for last 15 years..at initial stage it was under control but now he is having seizure once in a week..he is on medication now he is suffering from anxiety doesnt talk much..do we need to consult psychologist or it can be treated by his neurologist? Please reply i would be grateful
I want to get on birth control, i take lamotrigine 250X2 a day . I was on the pill but it started to cause me auras and then i realised that it dosent work with epilepsy . What type of birth control do you recommend ?
@@Robz-z3u Levetiracetam is Generic for Keppra. I don't know what would work for you. I am on Levetiracetam and Aptiom. Usually you only take two meds at a time. Sometimes the Generic Keppra ( Levetiracetam) doesn't work as well and you can request for Keppra.
@Youmightknow111 OK dera, but since I have taken levetiracetam for so long, I will first pozi it& try Aptiom together with tegretol. OK! If I finish this levetiracetam this month, I will replace it with Aptiom.
Does xcropi treat focal and generalized? Is it ok with someone that has mental health issues in the family? My daughter has been on 5 different meds none have helped the eeg. She is currently on onfi for her seizures and zoloft for her depression and anxiety and she is a completely different person we don't even recognize her. Doctor won't change anything until her EMU stay February 6th. I'm so worried for her.
I have cured my son with traditional herbs and he is completely healed how I get this medicine to the world is what making it hard for me. Because I might not be surported because this will be an end to the modern medicine. It's been 8 years of my research.
Sir I am from india I got my 1st seizure in 2017 because of lack of sleep and nd on 2018 again because of lack ok sleep and again 3rd seizure in 2020 and fourth seizure on Nov 2024 so sir I am confused which type of epilepsy it is because my all reports are ok like EEG or MRI
Been sick for over 15 yrs, grandmals r rare, focal r every few days, auras are everyday.. i hope to find the cure soon.. they are still trying to find the spot so i can b eligible for brain surgery 😢
✅Get evaluated by Dr. Omar Danoun directly appointment.dromardanoun.com
you can book your appointment today for age 16 years and older.
Doctor my son h inas epilepsy since five years .doctor said he has dre epilepsy.evry medication failed .we are worry about our son.plz reply me I am from Pakistan.
Could you please do one video on myoclonic epilepsy of childhood ( doose syndrome)
Hello doctor how do I get in touch with you my husband developed epilepsy about 7 years ago he is 60 years old but fit and healthy Alhumdillah apart from epilepsy there is no medical cause for his condition
If you could reduce the price of your appointment, it would be be easy for third world countries to connect with you. Please consider that
#TruFacts
We are SO VERY LUCKY to have you as our Epileptologist! After 27 meds & 37 years you have finally found way to give my daughter almost complete control over her Tonic-Clonic seizures God bless you, Dr. Danoun and thank you for your efforts to educate us, especially through your vudeos.
Hey Judy...I'm so so happy for you ~ what a relief that must be ❤ I'm very excited to know what treatment you found successful? 😊
Wow that's amazing yes I would like to have an consultation with Dr Omar 🙏
Hi Dr. Danoun. I just found your channel. I am 66 years old and have had tonic clonic Seizures since the age of 15. I am on several medications but over the years I have had break through Seizures. I was hoping when I was younger they would go away. But sadly that isn't the case. Its good to know that there are Doctors like you out there educating the public on this disease. Thank You and God Bless You. ☺🙏♥️🕊✝️
Hello. I'm 62 with same. Didn't get it diagnosed until someone witnessed. It does seem to change & meds updated. Goodluck to you.
@kerryD-h7u And good luck to you as well. What helped me cope with having Epilepsy was a girlfriend many years ago when she was studying to be a nurse said that in Ancient Greek times that it was thought people who were having Seizures were conversing with the gods. Nice thought. I said back to her that I wish they didn't want to talk to me. 🤣 But as long as we are on the right meds, stay on them and get our rest, we live normal lives. Although I have never driven and that’s okay. I don't want to be driving, have a seizure and hurt someone. God Bless You 🙏💖🕊✝️
I am on the Keppra and it does cause me anxiety and other issues. A keto diet has helped a lot.
Yes I am on keppra 2500mg a day and keto has helped me greatly
They want everyone on Keppra…. And it causes all that mood stuff to me
Since stopping carbs and sugars my anger issues with keppra have disappeared , I used to have anger spells and get angry but honestly with ceasing sugar and carb consumption I’ve not been moody or angry like I did prior ketosis
@@GeraldSmithjr-j6n Have you tried adding vitamin B with the Keppra?
I'm on keppra 2x a day
Hello from Hamburg, Germany,
I had focal seizures with speech arrest, also status epilepsy. Then the diagnosis: Lamotrigine and Briviact since then. Initially many problems with side effects such as tremor (I am a doctor). Also many problems with aggression from others. 3 MRIs without any changes in findings, long-term EEG for 14 days. Fortunately now off Briviact. Just want to say very happy to have such informative blogs. Thanks for that
I had my first seizure in September of 2012. I was home alone and it was terrifying. I remember coming out of the seizure and I didn't recognize any of the name in my phone.
Two weeks later, I was admitted to the hospital with double pneumonia . I was about to be released when my MRI showed a lesion on my right frontal lobe . Had a craniotomy the next day. However, I did make a remarkable physical recovery.. emotionally, it took a couple of years. 😊
Thank you for sharing this information. You are doing God's work. Many blessings to you 🙏
Dr Danoun, I am viewing your talk from Australia.
I am learning so much from your talks.
Thank you for taking the time to share your detailed extensive knowledge.
I have gained further insights to my own history and now feel confident in discussing ongoing medication adjustments at my next consult with my local neurologist.👏😊
Thank allot, I always learn from you. we have epilepsy since our childhood time but we were never told what type we have.
السلام عليكم دكتور شكرا جزيلا على فيديواتك المفيده الله يجعلها في ميزان حسناتك انا وليد من نيويورك EEG Tech
I wish I was here for this, my daughter (5) has terrible epilepsy and it is almost impossible to control! We’ve tried so many epilepsy meds, she’s got the cleanest diet, and she’s still having hundreds of seizures daily !
Watch Chris Oyakhilome
I'm so sorry to hear that! Have you looked into Charlotte's Web cannabis treatment?
Don't know what you mean by "the cleanest diet," but have you tried the Keto diet? My seizures stopped when I changed to Keto and I don't need seizure medication anymore. You need a (Medical) Nutritionist to design it for your child. Check into the history of why/how it was originally developed to treat epilepsy.
@@suzybearheart530 we’ve tried CBD and epidiolex only made her worse. She’s highly disabled so we have to weigh up impact on tone and personality greatly when we look at side effects. We aren’t keen on keto as the high levels of fat would just cause massive constipation as she can’t stand so has low motility
@@lastcall295 we aren’t keen on keto as due to high fat content she’d become massively compacted by constipation. She can’t walk or stand so already struggles with low motility and constipation is a msssive trigger for her
I recommend ketogenic diet for epilepsy. I have epilepsy and i had grandmal seizures.
Also vitamins and you can recommend spinal tap but doctors usually don't want to take it because epilepsy is business, cured patient is lost customer.
Also test toxoplasmosis, even in latent it can cause seizures.
Demand lumpar punchture.
Hi, may I ask what the lumbar puncture is for and what to do after receiving one ?
Hi Dr. Danoun ~ Thankyou so much for this! Ive learned more in an hour than in 4 decades with Neurologists in multiple centres and hospitals 😮😢 Thanks so very much 😊🙏🏻🎵
❤ perpetua from Goa India
Thank you Dr. This is very informative
Have had epilepsy for 7 years now. I don’t get seizures frequently but what I have is Auras 4-6 times a week and my current doctor is trying to stop them. With keppra, xcorpi, and clobazam.
Watching from Tulsa Oklahoma
My auras are 247 i don't understand why😢
@@cindygurrola10315 I'm on Kepra and clobozam too and 2 other ones, and I just got a VNS implant. I get auras sometimes, not too often thankfully they used to be way more. Like I just overexerted myself at my job way too much and had a small seizure there
I wish I was here for this stream. I have AE and got a VNS implant in december of last year, I've had one small seizure since and they had to turn it up but I'm doing better, my last bad seizure was February of last year after having 7 in about a year and a half. I live in Chicago and go to Northwestern there and they even sent my case to Mayo clinic to choose the Vns for me.
Glad to hear that things are getting better
@@DrOmarDanoun Thanks Doc, they are. Like I said I'm really lucky to have such good doctors, I have 2 pnuero immunologists in the city that take really good care of me. They took a brain sample from my right temple in February of 23 and found CNS vasculitis unfortunately, but I don't notice that. I've had Crohns for years 11 years so I've been sick a long time now.
Arlington Heights, Illinois
My 16 year old granddaughter has epilepsy. She is taking Keppra, but I feel she is experiencing negative side effects. But it is controlling her seizures. She was allergic to lamotrigine.
I appreciate your knowledge.
What are the side effects of keppra? I read warnings about this, but they are never specified.
I have myoclonic jerks and hade 3 seizures attack. 2 attacks happened probably when I did not have enough sleep and the recent one was when I did not have enough sleep and I was kinda drunk from a party. I'm on Keppra for almost 1 year, it kinda works and help to stabilize my jerks so far the only side effects I had was tired and sleepy but after awhile I'm used to it and push through the day. People with suicidal or emotional kinda person shouldn't take keppra
@@afhamnasif249 Thanks for the explanation. I asked my GP what the side effects are, and got a 5 minute BS runaround non-reply.
@Sydopath it's best to see different doctors to see if their opinions are a match or good enough for you. Also to record when your child having the seizures and show it to the doctors. I'm 41 now and the dose is 250mg. Wish you all the best
@ Thanks for the response 🙏🏻
HELLO FROM SOUTH AFRICA
I am Florida My grandaughter has been diagnosed with Epeleptic seiures in Nov 22 2024
Thanks a lot Dr Omar 🙏
Hey from Grenada 🇬🇩
Thanks , watching from Greece
Good day from Masbate Philippines
What about seizures triggered by flashing?
watching from Kuala lumpur malaysia
Lesley from Northern Ireland. Tried 11 medications now. No joy.
Thank you for this valuable page, I’ve learned so much from you. Daughter has an inoperable brain tumor causing refractory epilepsy (she’s on Keppra, Lamictal, and zonisamide). Is epilepsy surgery a possibility for her or will it be pointless considering the brain tumor is the root cause?
I’ve tried multiple medicines and have been diagnosed with bilateral focal epilepsy. I currently have a VNS implant and taking medications, I still have seizures with these also. I’m currently being studied for an RNS implant to see if that could possibly help more.
From Ghana .West Africa
Hello Dr. I have had tonic clonic seizures since 14, i am 54, i had menengitis as an infant, i have been on tegretol since 15, and about 10 years ago my dr added topamax, are these good! They have tried weaning me off tegretol and it didnt work, it seems to work well for me! I worry about being on these meds for so many years! Also my seizures are only in my sleep!
Wigan, UK
Hi Dr Omar, I’ve currently started to ween off Topiramate and starting the new anti-seizure medication Cenobamate, can you tell me side effects of Cenobamate please ?
Thank you 😊
I am from Buffalo NY. I have generalized epilepsy and take Keppra. I have not had seizures since being on Keppra but it does make me feel foggy
I was started on Keppra and it made me very fatigued, so after three months my doctor put me on something else which is much better!! So I encourage you to ask your doctor to have you try something else based on what type of epilepsy you have.
@ thank you. I am only fearful because I had such awful seizures and at least since being on Keppra no seizures.
From Modesto California and I'm going to Stanford California for my treatment and I'm looking into brain surgery is my next step for my left temporal lobe I have epilepsy for 53 years
Arlington Heights, Illinois
My 16 year old granddaughter has epilepsy. She is taking Keppra, but I feel she is experiencing negative side effects. But it is controlling her seizures. She was allergic to lamotrigine.
I appreciate your knowledge.
Can another medication be used to counteract the negative effects, in addition to the Keppra ?
South Africa
Drink water, get good sleep and don't eat or drink anything with unnatural food colorings or caffeine. Around her periods the symptoms intensify, she just has to know it's the symptoms of meds and the meds fighting off seizures. I have to relax alot and even the type of music I listen to helps relax me. It gets easier the longer you're on Keppra. I hope the best for your daughter. Oh and pasta and white bread are a no go.
@marywilczenski5893 •Also remember she is a teenager ,having Epilepsy being a teenager .Nether are easy if it's stopping her daily life ?You need ether seek a second opinion I was in Hospital while they figured my Three lots of gradually building up she has the stress of exams -Don't rock the boat .Talk to her about what makes her happy etc first time I had a seizure I had a rash up my neck I was off the stuff before I was almost started they do not want to risk it -My sons not epileptic and I pray he doesn't get it .He has dealt with other kids at his school because he knows from me ,my Mum etc -I just would not want to rock the boat .Esp if she is mid exams she might not want to talk to about anything .Maybe take her out for a glow up ..Plan something fun I have sone that made me feel dreadfully clobbered my mental health was never great ,but I would never want another seizure in my life ..I also would not want to risk my own mental health I have Clonazepam 9 mg /Max of lamotrigine and Carbamaine Slow Release .I been on just about every flipping one .Remember Epilepsy Treatment has hugely improved I have two types -Starts back of my brain ,right temp lobe then spreads all over .
Another one from 🐐 💜
I'm quite disappointed that you only described old style keppra. Keppra ER is taken once a day. The effect is evened out over the 24 hour period. It makes a huge difference in reducing side effects.
What do you think of Bacopa, used in ayurveda for epilepsy.
Especially for generalized epilepsy wirh tonico-clonic seizures that resists all treatments, for a Young adult ?
I’m from North Carolina
Atlanta, GA
Dr Danoun... I would like to know if you see a crossover between patients with a connective tissue disorder/Dysautonomia/MCAS (The Dysautonomia Trifecta) and seizure activity? I have 2 girls (28 homebound and 30 higher functioning) who have uncommon manifestations of symptoms even for the trifecta. Both are seeing a wonderful neuro (specializing in migraines) locally and he has done wonders with their current meds. He also is starting to run the route of epileptic activity (since their migraines are better controlled with meds). I'm interested in knowing from a doctor, who specializes in epilepsy, if you've dealt with/observed patients who cross both boundaries? I would love love love to see a video on this if you have. I've seen where you have touched on the ANS's contribution to seizure activity but would like to know when (severity of what symptoms) someone with ANS dysfunction should be seeing a seizure specialist to rule out misfiring in the brain as a hidden cause. Thank you!!!
Joining from Birmingham, England
Salam, I'm Mustafa from Niger, my son (6 years)have an general absence epilepsie and take depakine, there is any plant medecine wich can help him more ? Thanks,
@DrOmarDanoun, is it high dose 750-750 per day of valproic acid, for generalized epilepsy, could be any side efects?
🙏🏽thnx
My adult son is on oxcarbazapine (max dose) and Vimpat daily for grand mal seizures that began at age 26 years old, unknown etiology. MRI does show a small area of glial cell formation in frontal right lobe. If he occasionally has an alcoholic drink or two, he ends up with focal seizures. Would these break through seizures be considered "failing" the two medications? Hope this makes sense. My son is 28 yrs old. Thank you.
I am from Ethiopia.
Do any of your videos talk about seizures from cephalocele?
My mom is on Keppra 1000mg 2 times per day and Vimpat 150mg 2 times per day, both taken at 7am and 7pm. Every single day from 2-6pm she gets extremely confused, no short term memory what so ever, sad, anxious, shaky, disoriented, it’s awful. Is it possible from 2-6pm the medication is low so she is having focal seizures? It’s the same time frame every single day… and she’s fine from 7am-2pm. Please help with ideas.
Delhi
what part of Michigan are you at I have family in Jackson and Lansing
My son had focal epilepsy he take phenobarbital but why he always get laughing even no reason..is this normal? From Philippines
New Zealand
Hie doctor here from South Africa please help i seem to have focal epilepsy, and most of my seizures seem to happen wen i bath or shower regardless of the water temperature and they mostly happen during the time of my period. I have been given Epilim but haven't seen improvement only gained a lot of weight and im of child bearing age ,26 years old would like to have a baby soon. Please advise what can be better for me.
Athens, GA
I have begun to realize that stink scents has been affecting me And is a trigger to me having seizures I had seizure In my sleep on last Friday which was black Friday in my sleep, I woke up with My full of dribble and a bit of blood where I bit my bottom lip And lightly nipped The edge of my tongue.the night before I had burn tissue and coconut bark in My room for The mosquitos and The smoke instantly brothered me I felt it in my chest but didn't have a seizure until I slept
I depandant on phenobarbiton ( Gardenal 90) . When Doctors try to withdraw gardenal again seizure attack me. What I will do? 6 Renowned doctors failed. Atlast all they told me just take Gardenal 90 and lead your life. Now I am 62. Is there any remedy?
Please help
From Pakistan
My medicine brivaracetam 50 mg divalproex sodium 500 phenobarbiton 4 tablet xeticam
Iam from India
Doctor, I have seizures & happen once a month during sleep, I just relaize that it has happened by the sign of tongue bitting, but I have taken levetiracetam 500mg that e Doctor prescribed for me,I increased e dose to 1000mg still no change, I went back to the hospital and EEG was normal and I was added carbamazepine 400mg am taking them altogether but I don't see any change, seizures still happen. I was requesting for your advice. Thanx!
I have epilepsy also where I only have seizures in my sleep, I also bite my lip from the seizures, I recently got a mouth gaurd for my upper teeth, the same one you would use for teeth grinding! I take carbamazpine and Topiramate! I hate taking meds! Prayers for you!
Hello doctor, my brother is having seizures for last 15 years..at initial stage it was under control but now he is having seizure once in a week..he is on medication now he is suffering from anxiety doesnt talk much..do we need to consult psychologist or it can be treated by his neurologist? Please reply i would be grateful
I would love to help your brother, I am in Tanzania. I will help him get cured.
I want to get on birth control, i take lamotrigine 250X2 a day . I was on the pill but it started to cause me auras and then i realised that it dosent work with epilepsy . What type of birth control do you recommend ?
I wish to know what's aura
I really want to consult you but my daughter is 14 years old. Pls help
Can levetiracetam interact with carbamazepine tegretol?
Try to add Aptiom. It helps and can be added with Keppra.
@Youmightknow111 I add Aptiom& kepra on the current medication or change from levetiracetam, tegretol to Aptimo& kepra.
@@Robz-z3u Levetiracetam is Generic for Keppra. I don't know what would work for you. I am on Levetiracetam and Aptiom. Usually you only take two meds at a time. Sometimes the Generic Keppra ( Levetiracetam) doesn't work as well and you can request for Keppra.
@Youmightknow111 OK dera, but since I have taken levetiracetam for so long, I will first pozi it& try Aptiom together with tegretol. OK! If I finish this levetiracetam this month, I will replace it with Aptiom.
There's someone wo told me to use tegretol so I added it on levetiracetam, so I will leave levetiracetam & start Aptiom together with tegretol
can we have support too from you,
Sir my 9 years child get febrial sezire is leed to epilepsy
نحن نفتخر بك.🎉
help help my son
Can Catamenial epilepsy be cured
It can be treated and made a whole video on this subject
Does xcropi treat focal and generalized? Is it ok with someone that has mental health issues in the family? My daughter has been on 5 different meds none have helped the eeg. She is currently on onfi for her seizures and zoloft for her depression and anxiety and she is a completely different person we don't even recognize her. Doctor won't change anything until her EMU stay February 6th. I'm so worried for her.
Xcopri is approved for focal epilepsy and new studies showed it can help generalized epilepsy. It does not have major psychiatric side effects.
Try to ask her to reduce any sugar intakes .anything that has sugar not good for her
I have cured my son with traditional herbs and he is completely healed how I get this medicine to the world is what making it hard for me. Because I might not be surported because this will be an end to the modern medicine. It's been 8 years of my research.
Vimpat? Parasites? Lyme? Mycotoxins?
Sir I am from india I got my 1st seizure in 2017 because of lack of sleep and nd on 2018 again because of lack ok sleep and again 3rd seizure in 2020 and fourth seizure on Nov 2024 so sir I am confused which type of epilepsy it is because my all reports are ok like EEG or MRI
From kashmir India
I m Pakistani 16 year old
I love xcopri
From india
NEVER TAKE PREDNISONE WHILE YOUR HEALING
Mehaboob Mudalgi from belgaum karnataka india
This guys in the club. Hes got the 666 hand on his preview. Dont trust anyone who throws up this occult sign.
RHODE ISLAND
Been sick for over 15 yrs, grandmals r rare, focal r every few days, auras are everyday.. i hope to find the cure soon.. they are still trying to find the spot so i can b eligible for brain surgery 😢
I uncontrollable scream very loud from pain from twitching... I even got told to see sheikh for possession 😅
Sheikhs cannot help. This is a biological problem, it has got nothing to do with a religious belief. 😂😀😂
hi i'm grace c m fr.the phillippines 8yrs in medications until now😔