✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment now (for age 16 years and older) appointment.dromardanoun.com/ In USA, please call the clinic
When I heard trigger #2 I dropped what I was doing and took my medication. Thank you Doctor Danoun!! For me, it is easy to become complacent when I haven’t had an episode for a while (months) and I stupidly start treating taking my medication (twice a day) as an annoyance instead of a necessity to live a “normal” life. Then I’m “reminded” when my wife gives me that look of disappointment because my last memory is of me going to bed, but she has a whole list of things that happened I simply don’t recall. Your videos are awesome Doctor! Thank you!
I started having them when I was 17 I'm 43 now n I know less than I did when I started it's hard living by yourself n trying to deal with epilepsy when 1 min. Your fine the next you never it's so hard to do everyday tasks
I hope scientists find a method to permanently cure all types of seizures. Living a life with a possibility of getting seizure anytime is a huge setback.
I use canabis, it not only reduces seizures but also the anxiety and stress, doesn't cure it but makes life alot easier. I do not use anti seizure medicine as a result.
Keto was very helpful for me. I’m seizure free going on 20+ years now. I’m not even on the diet anymore. I did it for 3 years and was able to go without medicine finally. Just the result I needed given the medications really didn’t help with my seizures like they do for some.
@elclassico6388 It was a Keto diet. So, no carbs. I was really picky, so I had the same meal everyday. I had to eat everything so I went with something I would like and eat everyday. It's been a long time, but I'll try to remember the meal. I'll also say there are other meals on Keto. I just didn't want to eat anything else as a child. It was a long time ago (in or around 2004) when there weren't as many Keto options. No one knew about Keto. No one around me anyway. There's way more options nowadays. It's easier to find info about than back then. Breakfast: 1 egg (It might've been half an egg actually.) Peanut butter Banana Milk Butter The egg was filled with peanut butter and made to look kind of like an omelet. I also had a bit of banana. I had heavy whipped cream for milk, and it had some liquid calcium poured in. My family also decided to make butter candy-like treats. Treats made out of butter and colored. They tried their best to make it into something I might like. I had bubblicious bubblegum after each meal. Only 1 piece. I was also allowed to drink caffeine free pop/soda. My family bought caffeine free 0 cal coke normally. Lunch / Dinner: Egg Tomato sauce Shredded Cheese Milk Butter treat Gum It was eggs again, but this time it was a sort of pizza creation. 🍕 The egg would act like a crust. On the flat egg tomato sauce would be poured. Then shredded cheese melted onto the hot egg. I had milk to drink again, a butter treat, and a piece of gum. Everyday was like this.
@elclassico6388 I mostly stuck to the same meal everyday, but there were others my family had me try. There was one chili and cauliflower one, but the chili was too heavy for me, and the cauliflower made me puke. That was an awful time. I do ironically like roasted cauliflower now, but for a long time after I hated/was wary of cauliflower. Love it now roasted and covered in seasonings. Not sure if the way I make it now is Keto or not. There are a lot of different ways to eat Keto now. There's more information about it now. Vs when I was on the diet my family asked the dietitian and doctors about how to feed me a Keto diet. Never wanting to try anything without an okay from the medical and dietitian team. The diet felt like a foreign concept no one understood back then. So, once we had success with it my family started to not want to mess with the success. They started out wanting to explore different meals, but with the success and me being resistant to any changing up or exploring of meals. They started to avoid any change to the diet. Not wanting to mess with the success. I genuinely liked the egg meals even speaking as a former picky child. And kinda currently picky adult. I don't think I'd eat it now, how I did then, but back then, I had no qualms with the diet after the first day or 2.
~Not all seizure medication all the same don’t mix. They can’t affect it in certain places in your brain and stop seizures in certain part of your brain. ~set alarms for meds ~ Lack of sleep. ~ stress ~ sicknesses can trigger seizures ~ hormonal problems I’m women/ that time of the month ~ drinking ~ Drugs ~ Skipping meals/ being dehydrated Triggers: Caffeine, missing medication, flashing lights.
Ok, so I have epilepsy and my husband died from covid a little over a year. I now am both parents to three kids. I work hard. I recently had three grandmal seizures at work. It caused a stroke one week later, which I had another grandmal, or clonic tonic whatever they call it now, seizures that took me into a stroke. My second by the way. How can I survive, raising three children on my own without stress, hormonal changes, ect. that causes this. I am so lost right now as an epileptic single mom.
That sounds awful I'm so sorry for your loss, that's major stress right there. Grief and trying to help your kids, make all the plans. I was wondering why he didn't mention motherhood. New mothers, and any mothers, go through a lot of changes and constant demands. Grandmal can cause a stroke? How do you get to work since you can't drive? Do you have any relatives who live nearby who can check in you? Are your children old enough to call the doctor or ambulance or drive you places? I live alone and money is tight so I've been rationing my meds. Had 4 seizures in the past year and was seizure free for 30 years before that. Nobody here to witness or help me after, tell me what happened. I hate living alone Sometimes it takes a couple of days for my brain to feel almost normal. I keep a cheap composition book that I write in. Date time and record when I take medicine, when and what I eat, anything else so I can read it to try to put the pieces together. I even write as soon as I can after a seizure, a timeline if nothing else. I can never figure out how to charge my phone after one. The plug doesn't fit. So I wrote an After Seizure cheat sheet for myself. Including the code to unlock my phone and other stuff I forget like how to turn on my tablet I forget how to cook or where the food is even. After one I was hungry and I knew how to boil water, like to make ramen, or reheat food already made, but not actually cooking something. My cupboards are pretty bare. I ended up boiling a couple potatoes to make mashed potatoes because I was out of the instant ones. Nothing in the freezer. So I try to keep something I can reheat. Make a big pot of beans, or rice. Just to have easy food
I'm sorry please stay strong for your children. I have 5 including a baby, and I want a divorce because my abusive husband causes me excessive stress..
Dr. Danoun definitely gave us an awesome delivery when dissecting the most negative on how seizures trigger. In memory of how mine would come about just _have_ to stem from those nights of either overnight gaming or allowing my depression to overpower in those moments only for my episodes of binge eating can only worsen. A perfect kickstarter when either seeing another or tapping into them yourself every time. Thanks buddy.
Definitely named my triggers. Not sleeping and missing medication. My husband helps with reminding me to take meds. It can become frustrating but I know it’s because he cares and fears seeing another seizure.
Oh yes, sleep deprivation, infections and missed medication are my top triggers. When I was younger i also got diagnosed with photosensitivity, but this caused just one seizure in the hospital - it never happened again.
@@DrOmarDanounDear doctor, my son has Strug-Weber syndrome. He is now 3.5 years old, he does not have glaucoma, he walks normally, eats and everything else. We also visited a neurosurgeon who said that it is not very serious for him. At the age of 3, he was diagnosed with epilepsy. He had strange introductions to the first attack, mouth movements, pain in the stomach. In the first phase, the doctor prescribed carbizepam, the drug Tegretol, after a few days he started nodding his head, usually in the evening around 7 p.m., like an atonic attack. Can he have this? cause aggravation. He is now drinking Kepra, and we are discarding this first drug. Can these atonic attacks be controlled with drugs, or is there a possibility of controlling epilepsy in this disease. I would be grateful for your answer. Thank you
Thank you for making all these educational videos on epilepsy! It's helped me understand my frontal lobe seizures more and also helped others know what goes on so they are aware. I recently got a PET scan done and awaiting the results. So maybe a video on that if possible or if it can be related at all? Thanks!
Simple and easy to understand,thank you sir ,you are what doctors should be ,give us all the rules and leave it up to us to deside what to do ,i think all doctors should speak as you do,thank you again
If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays Phone: +1-313-916-8443 Email: InternationalPatientServices@hfhs.org In USA call the clinic www.henryford.com/physician-directory/d/danoun-omar
Dear doctor, my son has Strug-Weber syndrome. He is now 3.5 years old, he does not have glaucoma, he walks normally, eats and everything else. We also visited a neurosurgeon who said that it is not very serious for him. At the age of 3, he was diagnosed with epilepsy. He had strange introductions to the first attack, mouth movements, pain in the stomach. In the first phase, the doctor prescribed carbizepam, the drug Tegretol, after a few days he started nodding his head, usually in the evening around 7 p.m., like an atonic attack. Can he have this? cause aggravation. He is now drinking Kepra, and we are discarding this first drug. Can these atonic attacks be controlled with drugs, or is there a possibility of controlling epilepsy in this disease. I would be grateful for your answer. Thank you
Sir a small query what should be my room temperature range always when working at home so that I don't get epilepsy episodes on average what what should be the room temperature be within neither too hot nor too cold like room conditor should I put like
thank you Dr. Danoun ✊ greetings fellow epileptics ✌ also triggers: - electrolyte imbalance - low sodium content many blessings of good health & wellness to all 🙏 and may God be with you brothers & sisters 🕊🕊🕊 - Jay with late adult onset epilepsy 😔
I also have the feeling that certain movements can trigger a seizure or even the wrong shoes (it always starts in my right foot). I didnt know about the hormon trigger. Last time i had my menstruation i had 4 seizures in one day!! Maybe that was the reason, but nobody told me (i had to stay in hospital for 2 days). Thanks for all the informations!!!
My special needs client is 25 and has had epilepsy since he was a kid. He's on the max dose of anti seizure meds but still gets seizures often. With Keppra they were more focal seizures a few times a month, but now with Briviact (not sure how to spell that) he has more grand mal seizures. He had 3 focal seizures last Monday, and this morning in his bed i think he had a grand mal because he had bruise on his forehead, and had a nose bleed when he came wake me up. He always sings a certain song when he's coming out of a tonic clonic seizure , and he was singing it. Epilepsy is scarey. My biggest fear is he will have one and someone wont be there on time to block him hitting his head on something.
3 seizures in 1 day poor fella how horrible for him a good job he’s got you! Have you looked into a ketogenic diet for him it’s a low carb diet which can control seizures he’d have to be weaned into it gradually as a sudden change of diet is not good, I’d look into it for him it’s worth a try but he should always consult his doctor first because it may not suit everybody.
I understand what you’re going through. My 27 year old son with special needs has seizures and he has fallen a few times and hurt his head and cut open his chin one time. I worry about him falling all the time. 😢
Thank you so much.. Been having seizures and seeing 7 different neurologists. Finally the last Doctor said my EEG is normal still. Been taking Oxcarbenzene, after switching from 5 different medications, usually the sodium blocker. Somehow my seizures seem to increase after taking the med.. Your video just validate my thought. I am getting my heart check now.
Just a couple sips of wine for me gives me drop seizures. Those were the first seizures i had. Then they moved to seizures in my sleep then moved to day time grandma seizures. Now im on 3 different seizure meds and i still have really bad focal seizures. Im drug resistant epilepsy. Waiting for brain surgery. 😢
I just adjusted my medications, amazed by how prevalent some side affects were and don’t want to go backwards but started having seizures after 2 years. I think it’s alcohol, it could be a few different things when vacationing. Great video. Traveling has gotten to be such a pain in the butt anyways, no big loss
Doctor thanks a lot for such an educational video. My seizure triggers are lack of sleep, stress, junk food, physical exhausation and finally menstruation. I started taking nonepileptic seizure medicine but it got worst. Then I stopped. I try to maintain a very simple easy life with simple food regular sleep. My seziure does not come to test and thus doctor think I have mental issue and even suggested me all sorts of medicine associates to mental health. My seizures replicate the symtoms of epilepsy however Doctor said it is non epileptic.
I was diagnosed at 17, with Juvenile Myoclonic Epilepsy. I am now going to be 42.There was about 10 years with Keppra and Topamax where I was seizure-free. Everything you listed, except recreational drugs made me have seizures. I am allergic to caffeine, because every time I have anything with caffeine in it, now I have bad jitters. I never used to have photosensitivity, but now I do. I stopped drinking completely, 5 years ago, because along with BariatricPal surgery, my body can’t take alcohol at all. Not even a sip. For me, sleep is the biggest thing I need! 8 hours, or I will have seizures. My seizures have come back and I have severe anxiety. So, an amazing, but old fashioned neurologist put me on Clonazapam, many years ago. Now, my doctors don’t want me on it and they tried taking me off of it cold turkey! Now, I have seizures daily. I have to go to the ER and the don’t help me. I never abused them. But, my boyfriend did steal them without my knowledge. I called the police and he went into treatment. Hence the reason the doctors stopped. But, they don’t believe me. I have generalized seizures. My life has been hell. My father used to make sure I was taken care of and talk to the doctors. He passed away 12 years ago. My mom 6 years ago. I don’t have anyone to advocate for me. I want to try the RNS. But, is that for generalized seizures?
@@DrOmarDanoun I am actually in contact with a company who is running one of those studies. I am hoping this helps! Out of all the mechanisms, the RNS sounds like the best option, for me. After doing my research. ( apologies for all of the above over information).
@@cnh8039 hello! Thanks for the question. I’ve has epilepsy since I was 16. When I started having seizures, lights did not bother me. Police cars driving by, flickering on t.v, strobe lights did not effect me. Until, I got older. I think it was more of a hormone change and not medication related. Now, the things listed do bother me and make me want to have a seizure.
Very good information on this and the video I watched about seizures. My 15 yo g- grand lon had his 2nd seizure. He was given Keppra, a MRI. You described what he does. Lack out, shakes all over with f
I feel like missing meals and sitting in front of my computer for hours on end may cause mine. I have such a hard time with those 2 things. I have had laser ablation as well that was unsuccessful. I am trying everything I can to reduce these damn things. Thank you for your videos.
Two years ago, I had a Covid-19 infection. I suffered from a high fever… everything was terrible. I was not able to concentrate and I had a blurry vision. I fell on the ground and my body started shaking so badly (I don’t know what happened exactly, but my siblings witnessed the seizure and described it) .. when I woke up, I went to the hospital seeking medical help because my nose was bleeding. My nose kept bleeding for too long. I went to a doctor after five days, and we found out that my nose was broken💔 I was hurting, physically and emotionally.
Yes, it’s the reason that caused it. When I fell on the ground, I hit the ground. My face fell strongly on the ground, this is how my nose got broken. 💔☹️ it was really hard because the more I breathed, the more I felt the pain.
I got a seizure every 4 weeks and cannot find a real trigger that I could prevent. After I went to a epilepsy center my medication is better, it went from tonic-clonic down to focal. I tried taking the meds just with water, before or after meal, more or less sleep. Flashing lights. But yes fever triggers.
I've been on a number of tablets to help control my epilepsy and seizures some such as epilim made mine worse. I demanded to be taken off , recently in the last few years mine have been uncontrolled and asked for a phone call with my neurologist to be taken off keppra. Alcohol , flashing/strobe light doesn't affect me.
My first post stroke seizure was triggered by a virus. I remember nothing apart from my bedroom table being on the floor, raging headache headache and bruises. Following types were more classical 🙁
I’ve had that problem with having focal disturbances on Levetiracetam, so eventually I was put on Briviacetam which eventually reduced the focal disturbances. I hardly drink any alcohol, sleep is not an issue for me I sleep a lot now and we use black out blinds and I wear a hat to cover my eyes so I don’t get disturbed by any side lights being turned on in the bedroom when I’m asleep. I must admit I do snore… a lot!
My son 27,is on lamotrigin. Whether he takes it or miss it for days, does not makes any difference to his seizures.He has one seizure a month, usually at night. Does it mean this would be the wrong medicine? He also sleeps very bad,waking up every few hours. ( for years) Could this be the reason for seizures?
the fact that my neurologist told me i had JME and then tried switching me to one of those drugs that could potentially cause a seizure and did confuses the shit out of me.
When a seizure is coming, two weeks before i get a familiar smell and know it should not be there. I have smelled my ex and my grandfather's cigarette smoke along with the morning coffee percolating on the stove. Then i wake up with a bloody swollen lip and a wet bed because i urinated on myself. Just two weeks ago, i had one that i didnt expect, my aunt died the day before and i had to travel back home the next day and so i was stressed to the max. My doctors havent found the area and im afraid i may not wake up.
About two months ago someone played a dumb joke on me and it resulted in me getting a traumatic brain injury and I had a seizure. Anyways I can say that medications are a big trigger… I supposedly had to stop taking 1500 mgs a day after a month and I didn’t think too much of it. After the “half life” of the medication expired in my body I experienced what I think was just the aura of a seizure or if not that it was a focal seizure with no significant change of awareness. Anyways after going to the ER it was brought to my attention that the doctor who first prescribed me my anti seizure meds sucked and needed to tell me how to taper off. So here I am about to finish my 2nd month on keppra finally about to see a neurologist. So yeah staying consistent is key with these meds and for anyone thinking it’s okay to stop it cold turkey… definitely reconsider!
My son has epilepsy about 13 years he takes medicines can I take advice how 2 second epilepsy triggers even taking medicines in 20 days for 10 seconds what I do can tell pl
Thank you very much for this information. I have questions regarding creatine: is creatine good for the brain generally and, if so, does it have any effect on seizure disorders? Thank you.
The most likely time for me to have a seizure is during my HIIT workouts. Clearly, the stress on the heart must be the root cause. It annoys me because I want to continue to exercise to my best and keep a healthy lifestyle. I had to stop running outdoors because of my seizures, and I've got scars on my knees that will probably never heal because of a seizure on a treadmill. On top of all this, I'm drug-resistant, so I can't imagine my workouts will ever go smoothly. But I learned to take it one day at a time.
Thank you very much Dr i was wondering why i still get seizures though im taking my med. My seizure trigger: Stress Lack of sleep sometimes Food Hydration Infection Hormonal Imbalances Flashing Lights 😢
I had a weird day today. I ended up having to lay in bed all day and my seizures were to smell horrible weird smells that were from the past. I can't exactly figure out what the smells were but it kept happening all day from 8 am to about 4pm. Then I threw up and was just exhausted and very emotional.
I will drink a little wine a few days a week. Now I am nervous. I don't think alcohol has ever triggered my seizures. Once I have the money I am going to get my medical cannabis card and stop the drinking all together. I live alone and have so much stress right now.
I encourage anyone who lives alone dealing with seizures please realize your risk of sudep is huge. Tell your family members to check up on you daily, make preperations and protocols for having monitors for your sleep and video monitors... even with your work or neighbors. Make sure you have life insurance and a will. Not to scare you but my brother just never woke up after his 15 year battle with epilepsy. He took his meds on time, had the vns therapy surgery, tried to eat keto and get sleep but wasnt enough in the end. 😢
I also need to know that is this is epilepsy or seizures???as when we use carbamazpin syrup 5 to 10 ml,he has safe,up to several days even months,but when he missed this medicine several dose...then the symptoms starts again,i.e staffing arms or shaking legs for few minutes... please guide me for this...
Hello I live in the UK , I was diagnosed with epilepsy when I was 30 yrs old I'm 57 yrs now they say now part of them could be caused by the heart because I have a Heart Murmur , I don't drink or do drugs. I'm ill with various illnesses I'm on roughly 40 pills per day plus I don't sleep very well sometimes I go days without sleep ( 2 or 3 ) and yes I have multiple seizures 20 per day roughly. Any advice ?
I had eeg reading that said i had an abnormality on left side of brain 2 weeks after my seizure,is it srious? CT scan they day it happened showed no abnormalities.
Is Catamenial Epilepsy often misdiagnosed as FND. My seizures are always triggered by my hormonal cycle and a lack of sleep and infection also adds to the risk. I have been told I have FND though.
I have a question I have seen ur videos an need ur opinion ok I was diagnosed with epilepsy at the age of 9 ok an been having it all my life at the age of 20 I had head surgery an it worked for a short period of time and started back now in 2018 I had the vans placed an it started off on no it just don’t help I’m horsed for 4 weeks from the device is there any other suggestions that u can provide to help I’ve taken countless medications and still nothing can u help me I’m Patrice from okc thank u for ur time
I had a cavernoma that was leaking in my frontal lobe and just had brain surgery 1/27/22. I never had a seizure for 13 months and then randomly started having short seizure that from what I research seem to be focal onset. I’ve also read that scare tissue from the surgery can be causing the seizure as well. Any input would be greatly appreciated. I do have a dr an talk with him 3/22/23 but I would still appreciate any and all information.
My son just got diagnosed he has had 2 tonic clonic seizures. Which medication do you recommend the most ? His doctor said keppra wasn’t working even though he only was on it for 3 weeks and wants to to valproic acid (divalproex sodium er) I don’t know if I want him on that one. Any thoughts ?
I would recommend Encorate chrono 300 tablets. It's the best for acute Tonic clonic seizure episode especially not exceeding 2. It's the best medicine out there with less side effects and also helps in reducing anxiety and mood stabilization. Please only go for it after consulting your doctor. You're welcome
My biggest trigger is music and some high frequency repetitive noises. I don't have seizures outside of hearing music. The problem is music is everywhere. In every store and restaurant. People drive by blasting music in their cars, multiple times in every movie, TV show and Ads. My doctors don't know what to do about it. It's driving me nuts.
I have grand mal,partial aware and focal aware,only had i grand mal but the auras and the dreams im having are so weird,im waking up sometimes having an aura,i get up and im knackered liked j haveng slept,i hate the dejavu, i forget where i am after my aura,sometimes i think im coming from my mums but just been to the toilet,it freaks me out,ive noticed over the 5 years what makes it worse, my short term memory is really bad,when i try to think of something or recall somethjng i have an aura,i know this is the case as when im doing the washing up i alqays aura,im always thinking of things,my brain will not stop for a minute, and once i try to remember something that i cant,my auras start,
I live with epilepsy all my life I have been through two brain surgeries & four surgeries for the VNS & my seizures still have not stopped I get stressed or angry about something that's when the seizures hit me I have been bounced around on meds & I'm at the point in life I just want nothing to do with medicine. Can a person still have the lazer brain surgery if you already have been through two brain surgeries in the past ???
Dr Omar, my daughter is 12 years old, she was diagnosed last July with generalized seizures and is using Keppra. İt is working great with her and she hasn't had breakthrough seizures alhamdulillah. However, Ramadan is approaching and she would like to fast. İs this a good idea? İ am worried.
Hello Dr Danoun. I had my head scanned back in 2018 and they noticed a birth mark on the brain. Since the end of 2022, as I lay in bed, my body will shake uncontrollably for 2-3 seconds. This can happen up to a dozen times a night. What do you recommend?
You said that if you have generalized tonic-clonic seizures, not all medication work. What about if you have focal seizures that sometimes spread/generalize and become tonic-clonic? Does the same apply in that situation? Thank you.
I was diagnosed with sezuires from one doctor then then another doctor said I don't get sezuires. But I do get sezuires mild but the doctor said that my EEG came back negative.i don't know what to do
A.alaykum Dr. I was on carbamazepine for the last 10 years and i was ok. This calender year i collapsed 5 times now am on sodium valproate and i feel sick all day.,dizzy and confused. Should i change the medication?
Any thoughts on overheating being a trigger? Seems like it’s triggered my daughter several times - she’s now scared to go to the beach or pool or exercise with any intensity.
I experience this too , exposing to sun triggers mine, but only when it’s too hot , and if it didn’t I just get a really bad headache almost as if I woke up after a seizure.
My granddaughter gets seizures when she is too hot. Dr mentioned fever but it can happen when you overwork, shop until you drop, overdressed in a store shopping, car too warm, running. Anxiety and stress can can also make you over heat.
Hi doctor, my 7 yrs old girl child is suffering from a seizure like condition since long. EEG was done but no results. Doctor advised to take valparin 200 for long. Can I go through the medicine. The medicine is not working. The condition ( suddenly she becomes uneasy , feels pain showing the mid chest , shouts mummy daddy etc for second s sing some songs unnatural manner and thereafter come to conscious) . What should I do. Please advise
I have learned the things that trigger my seizures and dr just showed me other things that might do, i didn't have seizures for the last past 4 months took my medicine too late once and I ended up having having a terrible seizure!!!!!wow...thc definitely slows down my seizures...it's hard to afford smoking marijuana!!!Msg, any type of liquor, stress, lack of sleep, dehydration all trigger my seizures....
Hi doctor does ed medication such as tadalafil lower levels of epilepsy medication thus causing a seizure ? And what do you think about cannibis and people with epilepsy?
I m an epilipsy patient......whenever i have seizure i feel like al ELECTRIC CURRENT is generated in my left arm which then travels to whole body.....from past 4 years i didnt have any seizure...but now sometimes i feel an intense sensation of having a seizure whenever i put my left hand into some exercise....SIR CAN U PLEASE TELL ME HOW TO CONTROL THAT?
we were told my 10yr old has a tear in his brain snd its leaking, that he has focal onset seizures and we cannot find a good medication that wont cause bad side effects. oxcarbazepine made him super sick everyday and he suffered soo much. Topomax made him hallucinate and feel pain for hours. idk what to do to help him. please we need help, his neurologist tells ne theres no cure just need to try different medications. should i see a new dr? a specialist for brain leaking seizures? 😢😢😢
✅ Get evaluated by Dr. Omar Danoun directly, book your online appointment now (for age 16 years and older) appointment.dromardanoun.com/
In USA, please call the clinic
So glad to watched this video… I declared healing all people who suffer seizure.!
When I heard trigger #2 I dropped what I was doing and took my medication. Thank you Doctor Danoun!! For me, it is easy to become complacent when I haven’t had an episode for a while (months) and I stupidly start treating taking my medication (twice a day) as an annoyance instead of a necessity to live a “normal” life. Then I’m “reminded” when my wife gives me that look of disappointment because my last memory is of me going to bed, but she has a whole list of things that happened I simply don’t recall. Your videos are awesome Doctor! Thank you!
@mike_js2936
Evening. May I ask what happens during the Episodes that you cannot recall. I am experiencing the same .
I started having them when I was 17 I'm 43 now n I know less than I did when I started it's hard living by yourself n trying to deal with epilepsy when 1 min. Your fine the next you never it's so hard to do everyday tasks
I hope scientists find a method to permanently cure all types of seizures. Living a life with a possibility of getting seizure anytime is a huge setback.
I use canabis, it not only reduces seizures but also the anxiety and stress, doesn't cure it but makes life alot easier. I do not use anti seizure medicine as a result.
Keto was very helpful for me. I’m seizure free going on 20+ years now. I’m not even on the diet anymore. I did it for 3 years and was able to go without medicine finally. Just the result I needed given the medications really didn’t help with my seizures like they do for some.
@@FullmoonPhantom-dn2srcould you tell me your diet?
@elclassico6388 It was a Keto diet. So, no carbs. I was really picky, so I had the same meal everyday. I had to eat everything so I went with something I would like and eat everyday. It's been a long time, but I'll try to remember the meal. I'll also say there are other meals on Keto. I just didn't want to eat anything else as a child. It was a long time ago (in or around 2004) when there weren't as many Keto options. No one knew about Keto. No one around me anyway. There's way more options nowadays. It's easier to find info about than back then.
Breakfast:
1 egg (It might've been half an egg actually.)
Peanut butter
Banana
Milk
Butter
The egg was filled with peanut butter and made to look kind of like an omelet. I also had a bit of banana. I had heavy whipped cream for milk, and it had some liquid calcium poured in. My family also decided to make butter candy-like treats. Treats made out of butter and colored. They tried their best to make it into something I might like. I had bubblicious bubblegum after each meal. Only 1 piece. I was also allowed to drink caffeine free pop/soda. My family bought caffeine free 0 cal coke normally.
Lunch / Dinner:
Egg
Tomato sauce
Shredded Cheese
Milk
Butter treat
Gum
It was eggs again, but this time it was a sort of pizza creation. 🍕 The egg would act like a crust. On the flat egg tomato sauce would be poured. Then shredded cheese melted onto the hot egg. I had milk to drink again, a butter treat, and a piece of gum.
Everyday was like this.
@elclassico6388 I mostly stuck to the same meal everyday, but there were others my family had me try. There was one chili and cauliflower one, but the chili was too heavy for me, and the cauliflower made me puke. That was an awful time. I do ironically like roasted cauliflower now, but for a long time after I hated/was wary of cauliflower. Love it now roasted and covered in seasonings. Not sure if the way I make it now is Keto or not.
There are a lot of different ways to eat Keto now. There's more information about it now. Vs when I was on the diet my family asked the dietitian and doctors about how to feed me a Keto diet. Never wanting to try anything without an okay from the medical and dietitian team. The diet felt like a foreign concept no one understood back then. So, once we had success with it my family started to not want to mess with the success. They started out wanting to explore different meals, but with the success and me being resistant to any changing up or exploring of meals. They started to avoid any change to the diet. Not wanting to mess with the success.
I genuinely liked the egg meals even speaking as a former picky child. And kinda currently picky adult. I don't think I'd eat it now, how I did then, but back then, I had no qualms with the diet after the first day or 2.
Stress, forgetting my meds, lack of sleep, and skipping food trigger my seizures.
Same with me.😢
Stress!
~Not all seizure medication all the same don’t mix.
They can’t affect it in certain places in your brain and stop seizures in certain part of your brain.
~set alarms for meds
~ Lack of sleep.
~ stress
~ sicknesses can trigger seizures
~ hormonal problems I’m women/ that time of the month
~ drinking
~ Drugs
~ Skipping meals/ being dehydrated
Triggers: Caffeine, missing medication, flashing lights.
I'm all of the above
You need to add taking antibiotics will make the seizure meds less effective as well
Ok, so I have epilepsy and my husband died from covid a little over a year. I now am both parents to three kids. I work hard. I recently had three grandmal seizures at work. It caused a stroke one week later, which I had another grandmal, or clonic tonic whatever they call it now, seizures that took me into a stroke. My second by the way. How can I survive, raising three children on my own without stress, hormonal changes, ect. that causes this. I am so lost right now as an epileptic single mom.
I feel your pain I live alone and have grand Mal seizures also
That sounds awful
I'm so sorry for your loss, that's major stress right there. Grief and trying to help your kids, make all the plans.
I was wondering why he didn't mention motherhood. New mothers, and any mothers, go through a lot of changes and constant demands.
Grandmal can cause a stroke? How do you get to work since you can't drive?
Do you have any relatives who live nearby who can check in you? Are your children old enough to call the doctor or ambulance or drive you places?
I live alone and money is tight so I've been rationing my meds. Had 4 seizures in the past year and was seizure free for 30 years before that.
Nobody here to witness or help me after, tell me what happened. I hate living alone
Sometimes it takes a couple of days for my brain to feel almost normal. I keep a cheap composition book that I write in. Date time and record when I take medicine, when and what I eat, anything else so I can read it to try to put the pieces together. I even write as soon as I can after a seizure, a timeline if nothing else. I can never figure out how to charge my phone after one. The plug doesn't fit. So I wrote an After Seizure cheat sheet for myself. Including the code to unlock my phone and other stuff I forget like how to turn on my tablet
I forget how to cook or where the food is even. After one I was hungry and I knew how to boil water, like to make ramen, or reheat food already made, but not actually cooking something. My cupboards are pretty bare.
I ended up boiling a couple potatoes to make mashed potatoes because I was out of the instant ones. Nothing in the freezer.
So I try to keep something I can reheat. Make a big pot of beans, or rice. Just to have easy food
How can I chance my medication for Epilepsy seizure
I'm sorry please stay strong for your children. I have 5 including a baby, and I want a divorce because my abusive husband causes me excessive stress..
Please stay strong. I feel you too.. my husband died in 2020 and I am now a mom to a 5 Month old. It's scary and stressful.
I know about epilepsy, but today i knew a lot about it.thank you dear.
Dr. Danoun definitely gave us an awesome delivery when dissecting the most negative on how seizures trigger. In memory of how mine would come about just _have_ to stem from those nights of either overnight gaming or allowing my depression to overpower in those moments only for my episodes of binge eating can only worsen. A perfect kickstarter when either seeing another or tapping into them yourself every time. Thanks buddy.
Definitely named my triggers. Not sleeping and missing medication. My husband helps with reminding me to take meds. It can become frustrating but I know it’s because he cares and fears seeing another seizure.
Oh yes, sleep deprivation, infections and missed medication are my top triggers. When I was younger i also got diagnosed with photosensitivity, but this caused just one seizure in the hospital - it never happened again.
Thank you for sharing your experience
Ma'am what are the symptoms of your photosensitivity ?
@@DrOmarDanounDear doctor, my son has Strug-Weber syndrome. He is now 3.5 years old, he does not have glaucoma, he walks normally, eats and everything else. We also visited a neurosurgeon who said that it is not very serious for him. At the age of 3, he was diagnosed with epilepsy. He had strange introductions to the first attack, mouth movements, pain in the stomach. In the first phase, the doctor prescribed carbizepam, the drug Tegretol, after a few days he started nodding his head, usually in the evening around 7 p.m., like an atonic attack. Can he have this? cause aggravation. He is now drinking Kepra, and we are discarding this first drug. Can these atonic attacks be controlled with drugs, or is there a possibility of controlling epilepsy in this disease. I would be grateful for your answer.
Thank you
Thank you for making all these educational videos on epilepsy! It's helped me understand my frontal lobe seizures more and also helped others know what goes on so they are aware. I recently got a PET scan done and awaiting the results. So maybe a video on that if possible or if it can be related at all? Thanks!
I made a video about refractory epilepsy which is what PET is done for
how did they turn out
Simple and easy to understand,thank you sir ,you are what doctors should be ,give us all the rules and leave it up to us to deside what to do ,i think all doctors should speak as you do,thank you again
You are most welcome
If you would like to make a consult with Dr Omar Danoun, age 16 years and older, please call or email the International Patient Services at Henry Ford Hospital and get your appointment if you are outside the USA: Office Hours: Eastern time 8:00 am -5:30 pm Mon-Friday, excluding holidays
Phone: +1-313-916-8443
Email: InternationalPatientServices@hfhs.org
In USA call the clinic
www.henryford.com/physician-directory/d/danoun-omar
Do You Do Video Visits?
Dear doctor, my son has Strug-Weber syndrome. He is now 3.5 years old, he does not have glaucoma, he walks normally, eats and everything else. We also visited a neurosurgeon who said that it is not very serious for him. At the age of 3, he was diagnosed with epilepsy. He had strange introductions to the first attack, mouth movements, pain in the stomach. In the first phase, the doctor prescribed carbizepam, the drug Tegretol, after a few days he started nodding his head, usually in the evening around 7 p.m., like an atonic attack. Can he have this? cause aggravation. He is now drinking Kepra, and we are discarding this first drug. Can these atonic attacks be controlled with drugs, or is there a possibility of controlling epilepsy in this disease. I would be grateful for your answer. Thank you
Sir a small query what should be my room temperature range always when working at home so that I don't get epilepsy episodes on average what what should be the room temperature be within neither too hot nor too cold like room conditor should I put like
@@sriramvaidyanathan5094
thank you Dr. Danoun ✊
greetings fellow epileptics ✌
also triggers:
- electrolyte imbalance
- low sodium content
many blessings of good health & wellness to all 🙏 and may God be with you brothers & sisters 🕊🕊🕊
- Jay with late adult onset epilepsy 😔
My medication makes me dizzy and blurred vision all the time, I cannot go out to meet friends and quit my job , never felt this much helpless before
You might be taking too much.. Ask your neurologist to check medication levels and go from there
@@DrOmarDanoun actually I am following doctor's prescriptiption.
Is there any home remedy for epilepsy
@@DrOmarDanoun ok sir I'll go today evening. You too Keep on guiding us with precious knowledge. JazakAllah 😊
No home remedies for epilepsy
@@uzmafakhar5660 quit milk for some days and then see the resilts.. if possible quit sugar too..
How many of the people here with epilepsy we’re watching this at 2am 😂
For real and had been in front of the computer for 6 hours prior lol.
They just dont get us.
The amount of likes on this proves it:
3:50 .
No they arent
Way More than you think.
Epilepsy can cause insomnia.
Yeah.😢
So glad I watched this video. Sometimes I forget things.
I also have the feeling that certain movements can trigger a seizure or even the wrong shoes (it always starts in my right foot).
I didnt know about the hormon trigger. Last time i had my menstruation i had 4 seizures in one day!! Maybe that was the reason, but nobody told me (i had to stay in hospital for 2 days).
Thanks for all the informations!!!
Same. I get 3 or 4 each period. I'm getting on the pill soon to help. 🙏
My special needs client is 25 and has had epilepsy since he was a kid. He's on the max dose of anti seizure meds but still gets seizures often. With Keppra they were more focal seizures a few times a month, but now with Briviact (not sure how to spell that) he has more grand mal seizures. He had 3 focal seizures last Monday, and this morning in his bed i think he had a grand mal because he had bruise on his forehead, and had a nose bleed when he came wake me up. He always sings a certain song when he's coming out of a tonic clonic seizure , and he was singing it. Epilepsy is scarey. My biggest fear is he will have one and someone wont be there on time to block him hitting his head on something.
3 seizures in 1 day poor fella how horrible for him a good job he’s got you! Have you looked into a ketogenic diet for him it’s a low carb diet which can control seizures he’d have to be weaned into it gradually as a sudden change of diet is not good, I’d look into it for him it’s worth a try but he should always consult his doctor first because it may not suit everybody.
I understand what you’re going through. My 27 year old son with special needs has seizures and he has fallen a few times and hurt his head and cut open his chin one time. I worry about him falling all the time. 😢
Thanks for all the info!
Dr.,great informative video. I will share it with a friend who suffers from epilepsy.
Thank you so much.. Been having seizures and seeing 7 different neurologists. Finally the last Doctor said my EEG is normal still. Been taking Oxcarbenzene, after switching from 5 different medications, usually the sodium blocker. Somehow my seizures seem to increase after taking the med.. Your video just validate my thought. I am getting my heart check now.
Best to see an Epilepsy center for full evaluation.. Video EEG monitoring will be a great diagnostic
Oxcarbazepine is a terrible drug
Try keppra 750mg
Just a couple sips of wine for me gives me drop seizures. Those were the first seizures i had. Then they moved to seizures in my sleep then moved to day time grandma seizures. Now im on 3 different seizure meds and i still have really bad focal seizures. Im drug resistant epilepsy. Waiting for brain surgery. 😢
❤ drop ones suck. I had am attack yesterday. I hope your surgery goes well. Someone fxxd up with my meds and I collapsed the next day.
I just adjusted my medications, amazed by how prevalent some side affects were and don’t want to go backwards but started having seizures after 2 years. I think it’s alcohol, it could be a few different things when vacationing. Great video. Traveling has gotten to be such a pain in the butt anyways, no big loss
You should NEVER drink alcohol with seizure medication!! 😢
Hello, Im from Philippines. Thank you very much for your information.
Welcome!
Thank you for all the useful information may God bless you 🙏 Always
Doctor thanks a lot for such an educational video. My seizure triggers are lack of sleep, stress, junk food, physical exhausation and finally menstruation. I started taking nonepileptic seizure medicine but it got worst. Then I stopped. I try to maintain a very simple easy life with simple food regular sleep. My seziure does not come to test and thus doctor think I have mental issue and even suggested me all sorts of medicine associates to mental health. My seizures replicate the symtoms of epilepsy however Doctor said it is non epileptic.
Very useful information and we follow meditation timings, better improvement.. thanq soo much sir
Thank you for your videos i am getting more and better information than years with seeing a nuerologist in person paying hundreds per apt.
I was diagnosed at 17, with Juvenile Myoclonic Epilepsy. I am now going to be 42.There was about 10 years with Keppra and Topamax where I was seizure-free. Everything you listed, except recreational drugs made me have seizures. I am allergic to caffeine, because every time I have anything with caffeine in it, now I have bad jitters. I never used to have photosensitivity, but now I do. I stopped drinking completely, 5 years ago, because along with BariatricPal surgery, my body can’t take alcohol at all. Not even a sip. For me, sleep is the biggest thing I need! 8 hours, or I will have seizures. My seizures have come back and I have severe anxiety. So, an amazing, but old fashioned neurologist put me on Clonazapam, many years ago. Now, my doctors don’t want me on it and they tried taking me off of it cold turkey! Now, I have seizures daily. I have to go to the ER and the don’t help me. I never abused them. But, my boyfriend did steal them without my knowledge. I called the police and he went into treatment. Hence the reason the doctors stopped. But, they don’t believe me. I have generalized seizures. My life has been hell. My father used to make sure I was taken care of and talk to the doctors. He passed away 12 years ago. My mom 6 years ago. I don’t have anyone to advocate for me. I want to try the RNS. But, is that for generalized seizures?
RNS is mostly for focal seizures as we explained in the video on drug resistant epilepsy. It is now being studied for generalized epilepsy
@@DrOmarDanoun I am actually in contact with a company who is running one of those studies. I am hoping this helps! Out of all the mechanisms, the RNS sounds like the best option, for me. After doing my research. ( apologies for all of the above over information).
Hi, what do you mean by you started having photosensitivity ? Is it because of seizures medication ?
@@cnh8039 hello! Thanks for the question.
I’ve has epilepsy since I was 16. When I started having seizures, lights did not bother me. Police cars driving by, flickering on t.v, strobe lights did not effect me. Until, I got older. I think it was more of a hormone change and not medication related. Now, the things listed do bother me and make me want to have a seizure.
@@altesse77 Ok do you have any problem while reading books with bold colours and dresses with patterns and bold colours ?
Fantastic video, thank you. This has been very informative. I haven't been officially diagnosed yet but it's looking like I have epilepsy.
Thanks so much Dr..appreciate the video..learnt a lot❤
I have atonic seizures. My medications are Lamotrigin and Levetiracetam but sometimes I have seizures of I too tired or stressed
Thanks the informations!
Very good information on this and the video I watched about seizures. My 15 yo g- grand lon had his 2nd seizure. He was given Keppra, a MRI. You described what he does. Lack out, shakes all over with f
Thanks. I have tonic/clonic seizures and this is good info
Hi what kind of medicine do you use
Thank you!
I feel like missing meals and sitting in front of my computer for hours on end may cause mine. I have such a hard time with those 2 things. I have had laser ablation as well that was unsuccessful. I am trying everything I can to reduce these damn things. Thank you for your videos.
Two years ago, I had a Covid-19 infection. I suffered from a high fever… everything was terrible. I was not able to concentrate and I had a blurry vision. I fell on the ground and my body started shaking so badly (I don’t know what happened exactly, but my siblings witnessed the seizure and described it) .. when I woke up, I went to the hospital seeking medical help because my nose was bleeding. My nose kept bleeding for too long. I went to a doctor after five days, and we found out that my nose was broken💔 I was hurting, physically and emotionally.
Febrile seizures are bad. Your fever caused it. Very scary. 💔
Yes, it’s the reason that caused it. When I fell on the ground, I hit the ground. My face fell strongly on the ground, this is how my nose got broken. 💔☹️ it was really hard because the more I breathed, the more I felt the pain.
I got a seizure every 4 weeks and cannot find a real trigger that I could prevent. After I went to a epilepsy center my medication is better, it went from tonic-clonic down to focal. I tried taking the meds just with water, before or after meal, more or less sleep. Flashing lights. But yes fever triggers.
Thank you for sharing your experience
Thank u doctor
I've been on a number of tablets to help control my epilepsy and seizures some such as epilim made mine worse. I demanded to be taken off , recently in the last few years mine have been uncontrolled and asked for a phone call with my neurologist to be taken off keppra. Alcohol , flashing/strobe light doesn't affect me.
My first post stroke seizure was triggered by a virus. I remember nothing apart from my bedroom table being on the floor, raging headache headache and bruises. Following types were more classical 🙁
I’ve had that problem with having focal disturbances on Levetiracetam, so eventually I was put on Briviacetam which eventually reduced the focal disturbances. I hardly drink any alcohol, sleep is not an issue for me I sleep a lot now and we use black out blinds and I wear a hat to cover my eyes so I don’t get disturbed by any side lights being turned on in the bedroom when I’m asleep.
I must admit I do snore… a lot!
My son 27,is on lamotrigin. Whether he takes it or miss it for days, does not makes any difference to his seizures.He has one seizure a month, usually at night. Does it mean this would be the wrong medicine?
He also sleeps very bad,waking up every few hours. ( for years)
Could this be the reason for seizures?
I have the same problem with sleeping....
Thanks great
Thanks
Thank you for this information! Truly 🙏✌️
the fact that my neurologist told me i had JME and then tried switching me to one of those drugs that could potentially cause a seizure and did confuses the shit out of me.
When a seizure is coming, two weeks before i get a familiar smell and know it should not be there. I have smelled my ex and my grandfather's cigarette smoke along with the morning coffee percolating on the stove. Then i wake up with a bloody swollen lip and a wet bed because i urinated on myself. Just two weeks ago, i had one that i didnt expect, my aunt died the day before and i had to travel back home the next day and so i was stressed to the max. My doctors havent found the area and im afraid i may not wake up.
Good morning sir..very informative videos kindly prepare the video on tuberous serlosis treatment
Thank you for all these helpful videos
Glad you like them!
About two months ago someone played a dumb joke on me and it resulted in me getting a traumatic brain injury and I had a seizure. Anyways I can say that medications are a big trigger… I supposedly had to stop taking 1500 mgs a day after a month and I didn’t think too much of it. After the “half life” of the medication expired in my body I experienced what I think was just the aura of a seizure or if not that it was a focal seizure with no significant change of awareness. Anyways after going to the ER it was brought to my attention that the doctor who first prescribed me my anti seizure meds sucked and needed to tell me how to taper off. So here I am about to finish my 2nd month on keppra finally about to see a neurologist. So yeah staying consistent is key with these meds and for anyone thinking it’s okay to stop it cold turkey… definitely reconsider!
❤thank you so very much for sharing this with us epilepsy patients
My son has epilepsy about 13 years he takes medicines can I take advice how 2 second epilepsy triggers even taking medicines in 20 days for 10 seconds what I do can tell pl
Thank you very much for this information. I have questions regarding creatine: is creatine good for the brain generally and, if so, does it have any effect on seizure disorders? Thank you.
The most likely time for me to have a seizure is during my HIIT workouts. Clearly, the stress on the heart must be the root cause. It annoys me because I want to continue to exercise to my best and keep a healthy lifestyle. I had to stop running outdoors because of my seizures, and I've got scars on my knees that will probably never heal because of a seizure on a treadmill. On top of all this, I'm drug-resistant, so I can't imagine my workouts will ever go smoothly. But I learned to take it one day at a time.
Thank you very much Dr i was wondering why i still get seizures though im taking my med.
My seizure trigger:
Stress
Lack of sleep sometimes
Food
Hydration
Infection
Hormonal Imbalances
Flashing Lights
😢
I had a weird day today. I ended up having to lay in bed all day and my seizures were to smell horrible weird smells that were from the past. I can't exactly figure out what the smells were but it kept happening all day from 8 am to about 4pm. Then I threw up and was just exhausted and very emotional.
I will drink a little wine a few days a week. Now I am nervous. I don't think alcohol has ever triggered my seizures. Once I have the money I am going to get my medical cannabis card and stop the drinking all together. I live alone and have so much stress right now.
Hey Dr. What is the best medication for only nocturnal seizures? And for how long d I take the medication.
Stress it's hard too control that
1. Lack of sleep
2. Period
3 . Infection (which ive flu now had partial to full blown on Friday) hoping not to be repeated)
4. Banging head / injury
Also taking meds right which I find tough
I'm on keppra.. I honestly suck at taking it. I'm a horrible patient. 😅
Thank you!
You are welcome!
Thanks 🙏👍
I encourage anyone who lives alone dealing with seizures please realize your risk of sudep is huge. Tell your family members to check up on you daily, make preperations and protocols for having monitors for your sleep and video monitors... even with your work or neighbors. Make sure you have life insurance and a will. Not to scare you but my brother just never woke up after his 15 year battle with epilepsy. He took his meds on time, had the vns therapy surgery, tried to eat keto and get sleep but wasnt enough in the end. 😢
I also need to know that is this is epilepsy or seizures???as when we use carbamazpin syrup 5 to 10 ml,he has safe,up to several days even months,but when he missed this medicine several dose...then the symptoms starts again,i.e staffing arms or shaking legs for few minutes... please guide me for this...
Hello I live in the UK , I was diagnosed with epilepsy when I was 30 yrs old I'm 57 yrs now they say now part of them could be caused by the heart because I have a Heart Murmur , I don't drink or do drugs. I'm ill with various illnesses I'm on roughly 40 pills per day plus I don't sleep very well sometimes I go days without sleep ( 2 or 3 ) and yes I have multiple seizures 20 per day roughly.
Any advice ?
I had eeg reading that said i had an abnormality on left side of brain 2 weeks after my seizure,is it srious? CT scan they day it happened showed no abnormalities.
Is Catamenial Epilepsy often misdiagnosed as FND. My seizures are always triggered by my hormonal cycle and a lack of sleep and infection also adds to the risk. I have been told I have FND though.
I have a question I have seen ur videos an need ur opinion ok I was diagnosed with epilepsy at the age of 9 ok an been having it all my life at the age of 20 I had head surgery an it worked for a short period of time and started back now in 2018 I had the vans placed an it started off on no it just don’t help I’m horsed for 4 weeks from the device is there any other suggestions that u can provide to help I’ve taken countless medications and still nothing can u help me I’m Patrice from okc thank u for ur time
I had a cavernoma that was leaking in my frontal lobe and just had brain surgery 1/27/22. I never had a seizure for 13 months and then randomly started having short seizure that from what I research seem to be focal onset. I’ve also read that scare tissue from the surgery can be causing the seizure as well. Any input would be greatly appreciated. I do have a dr an talk with him 3/22/23 but I would still appreciate any and all information.
Yes that is possible. Most importantly to continue medications
My son just got diagnosed he has had 2 tonic clonic seizures. Which medication do you recommend the most ? His doctor said keppra wasn’t working even though he only was on it for 3 weeks and wants to to valproic acid (divalproex sodium er)
I don’t know if I want him on that one. Any thoughts ?
I would recommend Encorate chrono 300 tablets. It's the best for acute Tonic clonic seizure episode especially not exceeding 2. It's the best medicine out there with less side effects and also helps in reducing anxiety and mood stabilization. Please only go for it after consulting your doctor.
You're welcome
Turns out I am severely hypoglycemic 😮. Possible that explains my roughly monthly-recurring generalized and focal seizures…. Keto time?
My biggest trigger is music and some high frequency repetitive noises. I don't have seizures outside of hearing music. The problem is music is everywhere. In every store and restaurant. People drive by blasting music in their cars, multiple times in every movie, TV show and Ads. My doctors don't know what to do about it. It's driving me nuts.
Hi!
Is it possible to cure an epilepsy patient with surgery?
I have grand mal,partial aware and focal aware,only had i grand mal but the auras and the dreams im having are so weird,im waking up sometimes having an aura,i get up and im knackered liked j haveng slept,i hate the dejavu, i forget where i am after my aura,sometimes i think im coming from my mums but just been to the toilet,it freaks me out,ive noticed over the 5 years what makes it worse, my short term memory is really bad,when i try to think of something or recall somethjng i have an aura,i know this is the case as when im doing the washing up i alqays aura,im always thinking of things,my brain will not stop for a minute, and once i try to remember something that i cant,my auras start,
I live with epilepsy all my life I have been through two brain surgeries & four surgeries for the VNS & my seizures still have not stopped I get stressed or angry about something that's when the seizures hit me I have been bounced around on meds & I'm at the point in life I just want nothing to do with medicine. Can a person still have the lazer brain surgery if you already have been through two brain surgeries in the past ???
Dr Omar, my daughter is 12 years old, she was diagnosed last July with generalized seizures and is using Keppra. İt is working great with her and she hasn't had breakthrough seizures alhamdulillah. However, Ramadan is approaching and she would like to fast. İs this a good idea? İ am worried.
How can I change my medication for Epilepsy seizure
Hello Dr Danoun. I had my head scanned back in 2018 and they noticed a birth mark on the brain. Since the end of 2022, as I lay in bed, my body will shake uncontrollably for 2-3 seconds. This can happen up to a dozen times a night. What do you recommend?
How can I know that I am over exercising if I am feeling great with tougher workout challenges?Can workout challenges be triggers?
You said that if you have generalized tonic-clonic seizures, not all medication work. What about if you have focal seizures that sometimes spread/generalize and become tonic-clonic? Does the same apply in that situation? Thank you.
I was diagnosed with sezuires from one doctor then then another doctor said I don't get sezuires. But I do get sezuires mild but the doctor said that my EEG came back negative.i don't know what to do
A.alaykum Dr. I was on carbamazepine for the last 10 years and i was ok. This calender year i collapsed 5 times now am on sodium valproate and i feel sick all day.,dizzy and confused. Should i change the medication?
In my case, lack of sleep mix with alcohol is the best way to trigger my epilepsie haha nice video !
Any thoughts on overheating being a trigger? Seems like it’s triggered my daughter several times - she’s now scared to go to the beach or pool or exercise with any intensity.
Possible
My son used to get triggered by heat ,his first and worst full seizure was brought on by an over heated car on a freezing cold night ,
I experience this too , exposing to sun triggers mine, but only when it’s too hot , and if it didn’t I just get a really bad headache almost as if I woke up after a seizure.
@@salsalmo681 thanks for sharing, this is exactly her issue as well
My granddaughter gets seizures when she is too hot. Dr mentioned fever but it can happen when you overwork, shop until you drop, overdressed in a store shopping, car too warm, running. Anxiety and stress can can also make you over heat.
Hi doctor, my 7 yrs old girl child is suffering from a seizure like condition since long. EEG was done but no results. Doctor advised to take valparin 200 for long. Can I go through the medicine. The medicine is not working. The condition ( suddenly she becomes uneasy , feels pain showing the mid chest , shouts mummy daddy etc for second s sing some songs unnatural manner and thereafter come to conscious) . What should I do. Please advise
I am can't provide medical advice online. Please discuss with your neurologist
This was very informative
Thanks
I have learned the things that trigger my seizures and dr just showed me other things that might do, i didn't have seizures for the last past 4 months took my medicine too late once and I ended up having having a terrible seizure!!!!!wow...thc definitely slows down my seizures...it's hard to afford smoking marijuana!!!Msg, any type of liquor, stress, lack of sleep, dehydration all trigger my seizures....
Hi doctor does ed medication such as tadalafil lower levels of epilepsy medication thus causing a seizure ? And what do you think about cannibis and people with epilepsy?
Maybe some medications interact with each other.. Cannabis was explained in a full video you can review
Exercises, cycling sessions, gym, trigger my focal! Unfortunately I gave up training
I have a 6- year old son doc with focal epilepsy. Can it be possibly treated?
Does oxcarbazphene cause mood swings and irritability?
I m an epilipsy patient......whenever i have seizure i feel like al ELECTRIC CURRENT is generated in my left arm which then travels to whole body.....from past 4 years i didnt have any seizure...but now sometimes i feel an intense sensation of having a seizure whenever i put my left hand into some exercise....SIR CAN U PLEASE TELL ME HOW TO CONTROL THAT?
we were told my 10yr old has a tear in his brain snd its leaking, that he has focal onset seizures and we cannot find a good medication that wont cause bad side effects. oxcarbazepine made him super sick everyday and he suffered soo much. Topomax made him hallucinate and feel pain for hours. idk what to do to help him. please we need help, his neurologist tells ne theres no cure just need to try different medications. should i see a new dr? a specialist for brain leaking seizures? 😢😢😢
I take valprol cr 500, lamitor dt 50 and lobazam 10,i hear things n feels like i m dying before having a seizures,what epilepsy is this❤?
Thank for this informative video.