7 Things You Do Will Make Your Seizure WORSE!
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- เผยแพร่เมื่อ 29 มิ.ย. 2024
- There are many seizure triggers in Epilepsy that should be avoided to life a seizure free life.
Catamenial Epilepsy and Hormonal Changes:
• Women's Hormones and S...
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Dear doctor, my son has Strug-Weber syndrome. He is now 3.5 years old, he does not have glaucoma, he walks normally, eats and everything else. We also visited a neurosurgeon who said that it is not very serious for him. At the age of 3, he was diagnosed with epilepsy. He had strange introductions to the first attack, mouth movements, pain in the stomach. In the first phase, the doctor prescribed carbizepam, the drug Tegretol, after a few days he started nodding his head, usually in the evening around 7 p.m., like an atonic attack. Can he have this? cause aggravation. He is now drinking Kepra, and we are discarding this first drug. Can these atonic attacks be controlled with drugs, or is there a possibility of controlling epilepsy in this disease. I would be grateful for your answer. Thank you
Sir a small query what should be my room temperature range always when working at home so that I don't get epilepsy episodes on average what what should be the room temperature be within neither too hot nor too cold like room conditor should I put like
Stress is my #1 trigger for focal seizures (Right TLE). I gave up drinking alcohol entirely, almost 3 years ago, so thankfully that's no concern for me. I HIGHLY recommend getting blackout shades for your bedroom. I used to wake up several times per night before I installed proper blinds, but ever since I've had blackout blinds, I've slept 8-10 hours straight through. Also, no caffeine after 12 noon, no beverages 3 hours before bedtime, go to bed at the SAME TIME EVERY NIGHT, and no computer or smart phone at least 1 hour before bedtime. I pray the Lord's blessings on all who have epilepsy, and for all who care for spouse, child, friends with epilepsy.
Yeah,for me it's everything what's making blinking starting those seizures,especially fast rhythmic blinking ,like disco night lights ,on dark night sky,or even adds on my phone,I forget also about fast moving pictures from animation infants movies they are worst for me ,just messed up my brain..🙄
Thank you for sharing 🙏🏽
Do Seziures Cause You To Have HeartAttacks & Heat Waves Like A Woman Who Gose Through Menopause Has Them ? I'm 55. & In Menopause & Get Horrible Hot Flahes I Think It's Mostly Because of My Epilepsy ? & I Also Have A Gentic Condition Called Neurofibromatosis NF 1
Update: I'm still experiencing seizures (tonic clonic, focal, and I recently experienced a status seizure that lasted almost 30 minutes!). I have no fear, even in my struggle with epilepsy, though it can be very frightening at times, and though I have no medical advice for others, nor would I presume to offer any, I do have compassion for all who live with epilepsy, and if you are not a Christian then I want to share something with you. Jesus Christ, God's own Son, came to redeem the human race from sin. And because all people are born in sin, and thus at enmity with God and deserving of the penalty for that sin, which is death, He sent His only Son to pay the price for all sin, and to reconcile all who would turn from sin and place their faith in Jesus Christ, who suffered the wrath of God on the cross, died to pay the sin debt of all, was buried in a tomb for three days and then rose from the pit of death, thus defeating death's hold, and is now alive and seated at God's right hand to intercede for those who've believed, there is great hope, joy, and freedom in this life, and forever after in the life to come. If you will pray and ask God to reveal the Truth to you, and turn from sin, and believe in Jesus Christ, you will be saved. God bless you all!
What was your main reason to give up alcohol?
When I heard trigger #2 I dropped what I was doing and took my medication. Thank you Doctor Danoun!! For me, it is easy to become complacent when I haven’t had an episode for a while (months) and I stupidly start treating taking my medication (twice a day) as an annoyance instead of a necessity to live a “normal” life. Then I’m “reminded” when my wife gives me that look of disappointment because my last memory is of me going to bed, but she has a whole list of things that happened I simply don’t recall. Your videos are awesome Doctor! Thank you!
I started having them when I was 17 I'm 43 now n I know less than I did when I started it's hard living by yourself n trying to deal with epilepsy when 1 min. Your fine the next you never it's so hard to do everyday tasks
Dr. Danoun definitely gave us an awesome delivery when dissecting the most negative on how seizures trigger. In memory of how mine would come about just _have_ to stem from those nights of either overnight gaming or allowing my depression to overpower in those moments only for my episodes of binge eating can only worsen. A perfect kickstarter when either seeing another or tapping into them yourself every time. Thanks buddy.
Stress, forgetting my meds, lack of sleep, and skipping food trigger my seizures.
Thanks for all the info!
~Not all seizure medication all the same don’t mix.
They can’t affect it in certain places in your brain and stop seizures in certain part of your brain.
~set alarms for meds
~ Lack of sleep.
~ stress
~ sicknesses can trigger seizures
~ hormonal problems I’m women/ that time of the month
~ drinking
~ Drugs
~ Skipping meals/ being dehydrated
Triggers: Caffeine, missing medication, flashing lights.
I'm all of the above
You need to add taking antibiotics will make the seizure meds less effective as well
Thanks so much Dr..appreciate the video..learnt a lot❤
Thank you for this information! Truly 🙏✌️
Thank for this informative video.
Thank you for all the useful information may God bless you 🙏 Always
Dr.,great informative video. I will share it with a friend who suffers from epilepsy.
I know about epilepsy, but today i knew a lot about it.thank you dear.
This was very informative
Thanks
Thanks. I have tonic/clonic seizures and this is good info
Ok, so I have epilepsy and my husband died from covid a little over a year. I now am both parents to three kids. I work hard. I recently had three grandmal seizures at work. It caused a stroke one week later, which I had another grandmal, or clonic tonic whatever they call it now, seizures that took me into a stroke. My second by the way. How can I survive, raising three children on my own without stress, hormonal changes, ect. that causes this. I am so lost right now as an epileptic single mom.
I feel your pain I live alone and have grand Mal seizures also
That sounds awful
I'm so sorry for your loss, that's major stress right there. Grief and trying to help your kids, make all the plans.
I was wondering why he didn't mention motherhood. New mothers, and any mothers, go through a lot of changes and constant demands.
Grandmal can cause a stroke? How do you get to work since you can't drive?
Do you have any relatives who live nearby who can check in you? Are your children old enough to call the doctor or ambulance or drive you places?
I live alone and money is tight so I've been rationing my meds. Had 4 seizures in the past year and was seizure free for 30 years before that.
Nobody here to witness or help me after, tell me what happened. I hate living alone
Sometimes it takes a couple of days for my brain to feel almost normal. I keep a cheap composition book that I write in. Date time and record when I take medicine, when and what I eat, anything else so I can read it to try to put the pieces together. I even write as soon as I can after a seizure, a timeline if nothing else. I can never figure out how to charge my phone after one. The plug doesn't fit. So I wrote an After Seizure cheat sheet for myself. Including the code to unlock my phone and other stuff I forget like how to turn on my tablet
I forget how to cook or where the food is even. After one I was hungry and I knew how to boil water, like to make ramen, or reheat food already made, but not actually cooking something. My cupboards are pretty bare.
I ended up boiling a couple potatoes to make mashed potatoes because I was out of the instant ones. Nothing in the freezer.
So I try to keep something I can reheat. Make a big pot of beans, or rice. Just to have easy food
How can I chance my medication for Epilepsy seizure
I'm sorry please stay strong for your children. I have 5 including a baby, and I want a divorce because my abusive husband causes me excessive stress..
Medical marijuana!
I keep hearing so many seizure free stories !
Thanks 🙏👍
Thank you for all these helpful videos
Glad you like them!
Thanks great
Fantastic video, thank you. This has been very informative. I haven't been officially diagnosed yet but it's looking like I have epilepsy.
So glad I watched this video. Sometimes I forget things.
Very good information on this and the video I watched about seizures. My 15 yo g- grand lon had his 2nd seizure. He was given Keppra, a MRI. You described what he does. Lack out, shakes all over with f
Thank you!
You are welcome!
Thanks
Simple and easy to understand,thank you sir ,you are what doctors should be ,give us all the rules and leave it up to us to deside what to do ,i think all doctors should speak as you do,thank you again
You are most welcome
Thank you for making all these educational videos on epilepsy! It's helped me understand my frontal lobe seizures more and also helped others know what goes on so they are aware. I recently got a PET scan done and awaiting the results. So maybe a video on that if possible or if it can be related at all? Thanks!
I made a video about refractory epilepsy which is what PET is done for
how did they turn out
I just adjusted my medications, amazed by how prevalent some side affects were and don’t want to go backwards but started having seizures after 2 years. I think it’s alcohol, it could be a few different things when vacationing. Great video. Traveling has gotten to be such a pain in the butt anyways, no big loss
You should NEVER drink alcohol with seizure medication!! 😢
Oh yes, sleep deprivation, infections and missed medication are my top triggers. When I was younger i also got diagnosed with photosensitivity, but this caused just one seizure in the hospital - it never happened again.
Thank you for sharing your experience
Ma'am what are the symptoms of your photosensitivity ?
@@DrOmarDanounDear doctor, my son has Strug-Weber syndrome. He is now 3.5 years old, he does not have glaucoma, he walks normally, eats and everything else. We also visited a neurosurgeon who said that it is not very serious for him. At the age of 3, he was diagnosed with epilepsy. He had strange introductions to the first attack, mouth movements, pain in the stomach. In the first phase, the doctor prescribed carbizepam, the drug Tegretol, after a few days he started nodding his head, usually in the evening around 7 p.m., like an atonic attack. Can he have this? cause aggravation. He is now drinking Kepra, and we are discarding this first drug. Can these atonic attacks be controlled with drugs, or is there a possibility of controlling epilepsy in this disease. I would be grateful for your answer.
Thank you
Good morning sir..very informative videos kindly prepare the video on tuberous serlosis treatment
Hello, Im from Philippines. Thank you very much for your information.
Welcome!
In my case, lack of sleep mix with alcohol is the best way to trigger my epilepsie haha nice video !
Doctor thanks a lot for such an educational video. My seizure triggers are lack of sleep, stress, junk food, physical exhausation and finally menstruation. I started taking nonepileptic seizure medicine but it got worst. Then I stopped. I try to maintain a very simple easy life with simple food regular sleep. My seziure does not come to test and thus doctor think I have mental issue and even suggested me all sorts of medicine associates to mental health. My seizures replicate the symtoms of epilepsy however Doctor said it is non epileptic.
My medication makes me dizzy and blurred vision all the time, I cannot go out to meet friends and quit my job , never felt this much helpless before
You might be taking too much.. Ask your neurologist to check medication levels and go from there
@@DrOmarDanoun actually I am following doctor's prescriptiption.
Is there any home remedy for epilepsy
@@DrOmarDanoun ok sir I'll go today evening. You too Keep on guiding us with precious knowledge. JazakAllah 😊
No home remedies for epilepsy
@@uzmafakhar5660 quit milk for some days and then see the resilts.. if possible quit sugar too..
The most likely time for me to have a seizure is during my HIIT workouts. Clearly, the stress on the heart must be the root cause. It annoys me because I want to continue to exercise to my best and keep a healthy lifestyle. I had to stop running outdoors because of my seizures, and I've got scars on my knees that will probably never heal because of a seizure on a treadmill. On top of all this, I'm drug-resistant, so I can't imagine my workouts will ever go smoothly. But I learned to take it one day at a time.
Just a couple sips of wine for me gives me drop seizures. Those were the first seizures i had. Then they moved to seizures in my sleep then moved to day time grandma seizures. Now im on 3 different seizure meds and i still have really bad focal seizures. Im drug resistant epilepsy. Waiting for brain surgery. 😢
❤ drop ones suck. I had am attack yesterday. I hope your surgery goes well. Someone fxxd up with my meds and I collapsed the next day.
Thank you very much for this information. I have questions regarding creatine: is creatine good for the brain generally and, if so, does it have any effect on seizure disorders? Thank you.
I feel like missing meals and sitting in front of my computer for hours on end may cause mine. I have such a hard time with those 2 things. I have had laser ablation as well that was unsuccessful. I am trying everything I can to reduce these damn things. Thank you for your videos.
I also have the feeling that certain movements can trigger a seizure or even the wrong shoes (it always starts in my right foot).
I didnt know about the hormon trigger. Last time i had my menstruation i had 4 seizures in one day!! Maybe that was the reason, but nobody told me (i had to stay in hospital for 2 days).
Thanks for all the informations!!!
Same. I get 3 or 4 each period. I'm getting on the pill soon to help. 🙏
Definitely named my triggers. Not sleeping and missing medication. My husband helps with reminding me to take meds. It can become frustrating but I know it’s because he cares and fears seeing another seizure.
Turns out I am severely hypoglycemic 😮. Possible that explains my roughly monthly-recurring generalized and focal seizures…. Keto time?
I have atonic seizures. My medications are Lamotrigin and Levetiracetam but sometimes I have seizures of I too tired or stressed
Thank you so much.. Been having seizures and seeing 7 different neurologists. Finally the last Doctor said my EEG is normal still. Been taking Oxcarbenzene, after switching from 5 different medications, usually the sodium blocker. Somehow my seizures seem to increase after taking the med.. Your video just validate my thought. I am getting my heart check now.
Best to see an Epilepsy center for full evaluation.. Video EEG monitoring will be a great diagnostic
Oxcarbazepine is a terrible drug
Try keppra 750mg
I've been on a number of tablets to help control my epilepsy and seizures some such as epilim made mine worse. I demanded to be taken off , recently in the last few years mine have been uncontrolled and asked for a phone call with my neurologist to be taken off keppra. Alcohol , flashing/strobe light doesn't affect me.
You said that if you have generalized tonic-clonic seizures, not all medication work. What about if you have focal seizures that sometimes spread/generalize and become tonic-clonic? Does the same apply in that situation? Thank you.
I suffered a stroke 18/12 ago and been recovering well except two months ago suffered which looked like a scizere and a ct scan was normal than two weeks later suffered which looked like a scizere with no bad effect treated with anti scizere medication with no further attack till today my dr thought it was post stroke scizere than epilepsy just wonder if you have any advice for me many thanks I was a retired Gpand orthopaedic surgeon in and I am 68yeats old a type 2 diabetic had Miiwirh recent ECG showed has AtrialFlutter wait to hear your views thanks Khairul Anam
My son has epilepsy about 13 years he takes medicines can I take advice how 2 second epilepsy triggers even taking medicines in 20 days for 10 seconds what I do can tell pl
I have a 6- year old son doc with focal epilepsy. Can it be possibly treated?
How can I know that I am over exercising if I am feeling great with tougher workout challenges?Can workout challenges be triggers?
A.alaykum Dr. I was on carbamazepine for the last 10 years and i was ok. This calender year i collapsed 5 times now am on sodium valproate and i feel sick all day.,dizzy and confused. Should i change the medication?
Is Catamenial Epilepsy often misdiagnosed as FND. My seizures are always triggered by my hormonal cycle and a lack of sleep and infection also adds to the risk. I have been told I have FND though.
I have grand mal,partial aware and focal aware,only had i grand mal but the auras and the dreams im having are so weird,im waking up sometimes having an aura,i get up and im knackered liked j haveng slept,i hate the dejavu, i forget where i am after my aura,sometimes i think im coming from my mums but just been to the toilet,it freaks me out,ive noticed over the 5 years what makes it worse, my short term memory is really bad,when i try to think of something or recall somethjng i have an aura,i know this is the case as when im doing the washing up i alqays aura,im always thinking of things,my brain will not stop for a minute, and once i try to remember something that i cant,my auras start,
I had eeg reading that said i had an abnormality on left side of brain 2 weeks after my seizure,is it srious? CT scan they day it happened showed no abnormalities.
I'm out here watching this at 1:30am while he says lack of sleep can trigger a seizure 😭🥴🙃
I'm a night owl. Do we all need to sleep at night, or is it more of a regular sleep routine?
My ex husband lived to yell at me while I was sleeping, or for 2 hours before he went to bed leaving me traumatized and wide eyed when I had been winding down for the day. Loved to wake me up early in the morning. Constant stress
He yelled at me when I'd get a migraine and accuse me of doing it in purpose to ruin his weekend!! Strange though, when I stopped living with him, the migraines stopped. He was the cause.
My children are mad at me because I won't drink alcohol. It feels like they're all trying to kill me
I had a cavernoma that was leaking in my frontal lobe and just had brain surgery 1/27/22. I never had a seizure for 13 months and then randomly started having short seizure that from what I research seem to be focal onset. I’ve also read that scare tissue from the surgery can be causing the seizure as well. Any input would be greatly appreciated. I do have a dr an talk with him 3/22/23 but I would still appreciate any and all information.
Yes that is possible. Most importantly to continue medications
I live with epilepsy all my life I have been through two brain surgeries & four surgeries for the VNS & my seizures still have not stopped I get stressed or angry about something that's when the seizures hit me I have been bounced around on meds & I'm at the point in life I just want nothing to do with medicine. Can a person still have the lazer brain surgery if you already have been through two brain surgeries in the past ???
Does oxcarbazphene cause mood swings and irritability?
I had a weird day today. I ended up having to lay in bed all day and my seizures were to smell horrible weird smells that were from the past. I can't exactly figure out what the smells were but it kept happening all day from 8 am to about 4pm. Then I threw up and was just exhausted and very emotional.
If you miss a dose or are late with a dose, how long does it for the meds to start working again?
Hello I live in the UK , I was diagnosed with epilepsy when I was 30 yrs old I'm 57 yrs now they say now part of them could be caused by the heart because I have a Heart Murmur , I don't drink or do drugs. I'm ill with various illnesses I'm on roughly 40 pills per day plus I don't sleep very well sometimes I go days without sleep ( 2 or 3 ) and yes I have multiple seizures 20 per day roughly.
Any advice ?
Definitely electrolytes and dehydration for me. This is wonderful as I also have addisons, and that is worsened by a lot of seizure triggers, too.
It's a chicken or egg thing.🙄
I have a question I have seen ur videos an need ur opinion ok I was diagnosed with epilepsy at the age of 9 ok an been having it all my life at the age of 20 I had head surgery an it worked for a short period of time and started back now in 2018 I had the vans placed an it started off on no it just don’t help I’m horsed for 4 weeks from the device is there any other suggestions that u can provide to help I’ve taken countless medications and still nothing can u help me I’m Patrice from okc thank u for ur time
I take valprol cr 500, lamitor dt 50 and lobazam 10,i hear things n feels like i m dying before having a seizures,what epilepsy is this❤?
My special needs client is 25 and has had epilepsy since he was a kid. He's on the max dose of anti seizure meds but still gets seizures often. With Keppra they were more focal seizures a few times a month, but now with Briviact (not sure how to spell that) he has more grand mal seizures. He had 3 focal seizures last Monday, and this morning in his bed i think he had a grand mal because he had bruise on his forehead, and had a nose bleed when he came wake me up. He always sings a certain song when he's coming out of a tonic clonic seizure , and he was singing it. Epilepsy is scarey. My biggest fear is he will have one and someone wont be there on time to block him hitting his head on something.
3 seizures in 1 day poor fella how horrible for him a good job he’s got you! Have you looked into a ketogenic diet for him it’s a low carb diet which can control seizures he’d have to be weaned into it gradually as a sudden change of diet is not good, I’d look into it for him it’s worth a try but he should always consult his doctor first because it may not suit everybody.
I understand what you’re going through. My 27 year old son with special needs has seizures and he has fallen a few times and hurt his head and cut open his chin one time. I worry about him falling all the time. 😢
How can I change my medication for Epilepsy seizure
the fact that my neurologist told me i had JME and then tried switching me to one of those drugs that could potentially cause a seizure and did confuses the shit out of me.
Hello sir,how about mild epilepsy
Hi doctor does ed medication such as tadalafil lower levels of epilepsy medication thus causing a seizure ? And what do you think about cannibis and people with epilepsy?
Maybe some medications interact with each other.. Cannabis was explained in a full video you can review
cpap really helped
Hello sir, Sir my daughter is 18 months old, when she was 8 months old she got seizure and after a month she got another seizure now she is having valparin, but some time she do some cycling moments with her legs, what is that please tell me
Two years ago, I had a Covid-19 infection. I suffered from a high fever… everything was terrible. I was not able to concentrate and I had a blurry vision. I fell on the ground and my body started shaking so badly (I don’t know what happened exactly, but my siblings witnessed the seizure and described it) .. when I woke up, I went to the hospital seeking medical help because my nose was bleeding. My nose kept bleeding for too long. I went to a doctor after five days, and we found out that my nose was broken💔 I was hurting, physically and emotionally.
Febrile seizures are bad. Your fever caused it. Very scary. 💔
Yes, it’s the reason that caused it. When I fell on the ground, I hit the ground. My face fell strongly on the ground, this is how my nose got broken. 💔☹️ it was really hard because the more I breathed, the more I felt the pain.
How about Kombucha drink? Is it considered alcohol?
we were told my 10yr old has a tear in his brain snd its leaking, that he has focal onset seizures and we cannot find a good medication that wont cause bad side effects. oxcarbazepine made him super sick everyday and he suffered soo much. Topomax made him hallucinate and feel pain for hours. idk what to do to help him. please we need help, his neurologist tells ne theres no cure just need to try different medications. should i see a new dr? a specialist for brain leaking seizures? 😢😢😢
I m an epilipsy patient......whenever i have seizure i feel like al ELECTRIC CURRENT is generated in my left arm which then travels to whole body.....from past 4 years i didnt have any seizure...but now sometimes i feel an intense sensation of having a seizure whenever i put my left hand into some exercise....SIR CAN U PLEASE TELL ME HOW TO CONTROL THAT?
How many of the people here with epilepsy we’re watching this at 2am 😂
For real and had been in front of the computer for 6 hours prior lol.
According to neurologist the results of my MRI identify as,mild messial left hypocampal attrophy "_
Or the vein lower left part in my brain is so very tiny, that's why I need to take maintenance medication to enter the oxygen in my brain...
I want to ask,
Is it my illness due mild messial left hypocampal attrophy can be heal"_through brain operation????
Thank you for answer
I'm on keppra.. I honestly suck at taking it. I'm a horrible patient. 😅
Do you go over diet foods rhat trigger seizures?
Sir, the said triggers can happen to many people but only some get seizures why ? like sleep less nights, toxic boss etc
My father had 'grand mal' seizures I suffer from seizures after suffering from encephalitis so is this hereridatry or was i just unfortunate ???
is there a possible way to activate a seizure without having them before? if so how?
My son just got diagnosed he has had 2 tonic clonic seizures. Which medication do you recommend the most ? His doctor said keppra wasn’t working even though he only was on it for 3 weeks and wants to to valproic acid (divalproex sodium er)
I don’t know if I want him on that one. Any thoughts ?
I would recommend Encorate chrono 300 tablets. It's the best for acute Tonic clonic seizure episode especially not exceeding 2. It's the best medicine out there with less side effects and also helps in reducing anxiety and mood stabilization. Please only go for it after consulting your doctor.
You're welcome
I am also "annoyed"(😉/😭) by certain sounds and even certain fabric or other materials such as stripes or patterns from the 70s, especially if with strongly contrasting colours, etc. and if by chance I'm a little more tired, even the lines and squares in the notebooks can already cause small contractions, vision of stars or intense light with the beginning of loss of consciousness even if fortunately, only for a few seconds. Otherwise, the classic lack of sleep, alternating lights are my worst enemies ... I also forgot the ignorance and wickedness of many people around me.
Greetings from Europe.
I had two seizures today but I don't know why I does feel very sick before and then I will pass out and I won't be able to wake up after ten minutes or more so can you please tell me why I do feel like that before if you can help me sir I will appreciate it thanks so much 😢😢😢😢
I have learned the things that trigger my seizures and dr just showed me other things that might do, i didn't have seizures for the last past 4 months took my medicine too late once and I ended up having having a terrible seizure!!!!!wow...thc definitely slows down my seizures...it's hard to afford smoking marijuana!!!Msg, any type of liquor, stress, lack of sleep, dehydration all trigger my seizures....
Generalized epilepsy which medicine use? My sister continuous take selzic 450 two time a day but seizurs not control. She also take levera 500 two times a day. Suggest please how to control her sezurs.
Please review the video on generalized epilepsy for full information and discuss with your neurologist
I have focal epilepsy and find your videos helpful. Most of my seizures look like tourettes syndrome. Is it possible to have both?
It is possible to have both but they should look different. Please consult with your neurologist for evaluation and treatment
@@DrOmarDanoun Why are my seizures when I'm sleeping only. Originally did have one while working, but after put on medication still happens but only when sleeping. My doctor and Neurologist don't have the answer. Maybe you do ?
Absolutely!! In 2012, I had already been afflicted with tourette syndrome but lightly with medication since I was three years old. After I turned about 50 years old I was real upset bad tourette's and ended up in the hospital vegetative
I have been diagnosed with presumptive TEA. Was having episodes about 4x/yr. All tests with the neurologist came back normal. My family doctor put me on lamotrigine after I had another episode. I have been on increasing doses for 6 months and am now at 200 mg/daily and have not had another episode. Due to severe tremors, I am back down to 175mg/daily and the tremors have stopped. I haven't been able to find any info with respect to a standard for Lamotrigine. Should I be worried that I am taking 25 mg less per day?
The goal is to find the least amount of medication that control your symptoms. If 175 does the trick then that's all you need. Obviously your neurologist will decide with you
So basically that's *avoid everything* then? Oh well, at least I can still have my coffee... thanks Dr Danoun
Lmfaoooo ❤
my son from age of 4 month having seizure now 4 years old , having 5 to 10 seizure a day and on medicines dr changes the medicines once a year but do not stop can you advice me please
regards
A rauf
How about too much epilepsy medication? My seizures were getting out of control so my AED (lamictal) levels were tested. It was 18.9 (normal is between 2.5 and 15)! Once they lowered the dose it worked perfectly. I don’t know if that’s a common problem or maybe it was coincidental?
Please discuss this with your neurologist for evaluation
I need to talk to you about my seizures. I am on a seizure medication
my dr recommend me 1.5gm levetiracetam and 5mg folic acid
i am a natural athlete and take supplements
so dr can i take protein powder
and caffeine based preworkout
My son 27,is on lamotrigin. Whether he takes it or miss it for days, does not makes any difference to his seizures.He has one seizure a month, usually at night. Does it mean this would be the wrong medicine?
He also sleeps very bad,waking up every few hours. ( for years)
Could this be the reason for seizures?
I have the same problem with sleeping....
I was diagnosed at 17, with Juvenile Myoclonic Epilepsy. I am now going to be 42.There was about 10 years with Keppra and Topamax where I was seizure-free. Everything you listed, except recreational drugs made me have seizures. I am allergic to caffeine, because every time I have anything with caffeine in it, now I have bad jitters. I never used to have photosensitivity, but now I do. I stopped drinking completely, 5 years ago, because along with BariatricPal surgery, my body can’t take alcohol at all. Not even a sip. For me, sleep is the biggest thing I need! 8 hours, or I will have seizures. My seizures have come back and I have severe anxiety. So, an amazing, but old fashioned neurologist put me on Clonazapam, many years ago. Now, my doctors don’t want me on it and they tried taking me off of it cold turkey! Now, I have seizures daily. I have to go to the ER and the don’t help me. I never abused them. But, my boyfriend did steal them without my knowledge. I called the police and he went into treatment. Hence the reason the doctors stopped. But, they don’t believe me. I have generalized seizures. My life has been hell. My father used to make sure I was taken care of and talk to the doctors. He passed away 12 years ago. My mom 6 years ago. I don’t have anyone to advocate for me. I want to try the RNS. But, is that for generalized seizures?
RNS is mostly for focal seizures as we explained in the video on drug resistant epilepsy. It is now being studied for generalized epilepsy
@@DrOmarDanoun I am actually in contact with a company who is running one of those studies. I am hoping this helps! Out of all the mechanisms, the RNS sounds like the best option, for me. After doing my research. ( apologies for all of the above over information).
Hi, what do you mean by you started having photosensitivity ? Is it because of seizures medication ?
@@cnh8039 hello! Thanks for the question.
I’ve has epilepsy since I was 16. When I started having seizures, lights did not bother me. Police cars driving by, flickering on t.v, strobe lights did not effect me. Until, I got older. I think it was more of a hormone change and not medication related. Now, the things listed do bother me and make me want to have a seizure.
@@altesse77 Ok do you have any problem while reading books with bold colours and dresses with patterns and bold colours ?
I have a seizure for two years now. Is it okay to eat boiled egg, boiled banana and ripe banana? What kind of fruits should I eat that cannot trigger my seizure? HOPING YOU CAN ANSWER MY QUESTIONS DOCTOR😔
I got a seizure every 4 weeks and cannot find a real trigger that I could prevent. After I went to a epilepsy center my medication is better, it went from tonic-clonic down to focal. I tried taking the meds just with water, before or after meal, more or less sleep. Flashing lights. But yes fever triggers.
Thank you for sharing your experience
Medicare messes up my meds for me pretty bad sometimes.
Peace to you Dr,
Thank you for your video. I turned 51 last November and 3 months later had a seizure that fractured two vertebrae, the ones that control breathing. I am now upto 150mg lamotrigine. I had a short deja vu today and it just makes me feel sick. It is like I already experienced what I doing at the moment.
No one can explain why this happened. At the time they said I had covid. Could this have started my seizures?
Please review the video on causes of epilepsy for full information and discuss with your neurologist
@@DrOmarDanoun thank you, shalom
I am taking medication for my first time in my life after 2 epileptic activity which makes me moody,scared sad and all of a sudden never take
Never had one until last year at my 37 year cannot even drive had seen cardiologist neurologists both times happened during my periods which are ridiculously heavy don’t drink alcohol at all, stoped smoking
No doctor or neurologist has found a cause even after eeg,brain MRI and CT scans on brain been hospitalized but no answers they flushed me a brutal amount of anti seizure medicine which nicked me down during Brain MRI
I’m always prone to vitamin D3 and iron deficiency
and feel dizzy sometimes go to so
Only want to
Blessings