What it's like living with dyspraxia | pre diagnosis
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- เผยแพร่เมื่อ 15 ก.ย. 2024
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It’s like a mirror. I’m 49 and just now realizing this is me. I’ve been so frustrated that I’m not like everyone else. Thanks for sharing.
I have mild suspected dyspraxia (it's hard to get diagnosed as an adult in the States so I haven't tried - I'm diagnosed ADHD, though) and about half of this is sooooo relatable. When I'm tired, my voice goes monotone and people think I'm angry at them 💀 I'll shout or whisper and not notice. I also often will say things like, "I need to go move my clothes from the oven into the dryer" - I'll sometimes mix up just, any device for automating cooking or other housework.
The biggest issues I have, though, are with spatial and time processing. I can't remember a map the second I look away from it, so I can navigate with a map in my hand while turning the map as I turn, but otherwise I'm lost. I navigate using memorized paths that are essentially a two-dimensional video playing in my mind. When I see a specific 2D "image" (landmark from a specific angle), I know to turn left or right or continue straight. If it snows heavily or I'm taken just one block off my memorized "path", I can become lost in a familiar place. My roommate is the opposite and makes maps in his mind without trying, so he didn't understand that to me, there's a difference between turning right at my usual place and turning right two blocks earlier. The difference is between me feeling comfortable and me having to hold onto his arm because I'm totally disoriented and distressed. So now we go on my paths as long as they're the same length as other paths! And if there are shorter ways to get somewhere, he shows me and I learn the new path, too.
Pokemon GO has been amazing for my dyspraxia-related spatial issues because it shows me on the map, facing the direction I'm really facing, moving the direction I'm really moving, with landmarks with PICTURES all around me! I don't need to know the street names if I know, for example, oh, that Pokemon GO gym is the church up there with the nautilus pediment clearly visible, so if I walk so my character moves toward that gym, I will be walking toward the church and thus walking toward the subway station entrance.
I really wish there was more awareness in the states. I wish there was a community I could meet up with here besides talking online on a Facebook page. I've never actually met another person with Dyspraxia and it's made me feel alone through the years.
Lol yeah I’m 99% sure I have it and you hear nothing about it in the states. This whole video explained my entire life and I’m 27 now lol
Same here. I have dyspraxia (diagnosed at 6). As far as I know, I’m the only person I know in the USA with it. Besides you now :)
Same with my daughter! She wants to do an awareness campaign to target teachers because it’s just so hard to explain! Seems the awareness has been raised in the UK but no one’s heard of it in the US.
@@PianoDisneygal10 I've seen a handful of kids with dyspraxia on TH-cam from the US. Mostly with autism codiagnosis.
I learned that something like 30% (iirc) of people with ADHD also have dyspraxia. If you start talking about your symptoms with people who have ADHD, I bet you'll find someone who is undiagnosed! It's just not a common diagnosis in the States, which frustrates me, as well. But I've met a couple people who have my symptoms almost 100% with only an ADHD diagnosis.
There's an irony to the 'laziness' label when you think about it... Why is it that the professional doesn't understand why the Neurodivergent person is behaving different? Probably because they haven't bothered to do a little research. So basically, its a case of 'You're lazy because I can't be bothered to ask a few questions and do a bit of research'
Some paraprofessionals may know certain things but this word is under diagnosed especially in women and girls. I was born with it and labeled by others as autistic and mentally retarded which doesn't qualify for my beliefs and experiences with Dyspraxia.
Oh my the copying from the board one was huge for me, I’d end up having to stay in during lunch and after school for most days near end of term times- my teachers could tell there was something up but I would still need to complete the work. My arm gets tired I struggle with self care/grooming it takes me HOURS to do an ok job at makeup. And ya internalizing being called stupid lazy and useless for most of my life. Still getting frustrated with my self and having better and worse days. Appreciate those who take the extra time/ have a natural way of dealing/helping. Thanks for the video!
You are so beautiful and wonderfully made.I'm from Canada and I'm now 74 yrs and all my life I never fitted in even with my six siblings. What helped me the most was at a very early age I trusted in Jesus Christ and He has always helped me when no one else good. I'that everyone m very blessed with a very understanding loving husband and three beautiful children who have some of these issues. Also please remember everyone on this planet has some issue they just cover it up or our not telling the truth.
I have dyslexia, dyspraxia, autism, ADD .... I still now in year 11 have teachers think I’m stupid and lazy. I had a school report come back recently where a teacher blamed the class not listening and me disrupting the class. I am the only student who actually tries and listens it not my fault that everyone else gets it on the first time. I am the only student who listen . But because I am chronic ill and have education needs I’m easy for the school to blame there problems on. And unfortunately this happens to so many people like us.
I felt so stupid and inadequate my whole school education, barely passing some of the exams despite putting in so much effort. I have been the student who was making notes and had to read it back to understand it but there was no time, so had no idea what was being said. I was the student who misunderstood the question and failed even though the answer was correct to the misunderstood question. I was the student who didn't know how to start or what was being asked of me despite knowing how to do that stuff. Life was sad back then ...As an adult, I still get frustrated that I'm not where I would like to be, but at least I don't have anyone proving to me time and time again that I'm wrong. Now, I'm fighting my son's corner, with my poorly structured sentences, feeling inadequate again, but this time I will prove them wrong! Thank you for the video!
I’m 27 and I’ve recently found out that I’m 99% sure I have dyspraxia, but not diagnosed yet. Every 2 minutes this video has me going BRUUUUHHHH THAT WAS ME! Lol. Thanks for sharing!
I just would like to say fair play on the work that you are doing and hard effort you are putting in for Dyspraxia. Before I developed schizophrenia paranoia and psychosis and before I was medicated, I had plans and began to even write about my life and write a book maybe even an article for parents to spread awareness of Dyspraxia and to raise awareness about how to manage their dyspraxia children. However this was many years ago and any way it seems like you are already on this mission so I don't need to worry about it or focus on it! I felt like my Dyspraxia left me when I was on a spiritual journey but maybe it was always there in the background! I am enjoying your content. Good work!
See, for me, being told a hundred times isn't something that puts me off. I think my ego and intellect tell me: 'No, they are wrong: go prove it wrong.'
It has fuelled me, but perhaps because as a male it is different. Anger fuels me and the feeling of injustice. I have often won.
Also, I don't get the motor issue with muscles. I have been an athletic top guy at school.
However, I have suffered at work and school and Uni when learning. I learn in a different way.
What you said about writing notes in class is so true! It's the story of my freaking life, always had that issue. I'm learning now (having only learned at the beginning of 2019 that what I have is indeed Dyspraxia, cause my parents got me help but then didn't tell me till 2019 that Dyspraxia is what I have, in an attempt at me avoiding stigma or something) but anyways, help wise in school I got very lucky with how good of help I got and it's quite honestly the only reason I graduated at all. Starting in elementary school I had a computer that was mine to use and practice typing on (was the 90s so it was on of those big colourful macs), and starting in middle school TA (Teachers Assistant) was assigned to work with me specifically and basically take notes for me in class, they also switched me over to a mac clamshell laptop in middle school so I had that the 2 years of middle school and all 4 of high school. I'm realizing though these days that my experience is not the normal one and I got incredibly lucky, that people around me realized early on that writing by hand wasn't going to ever be fast for me, but if they could get me typing on a computer, then I could do it. And the theory proved to be true, I can actually type quite quickly and with minimal errors, but even if there are errors it doesn't bother me cause I can always go back and fix it, can't do that writing by hand, not neatly at least, lol.
Very relatable! Thank you for making this video. I've also had issues with driving. Learning was hard, and even after, there have been multiple incidents with mailboxes, and that one time I thought I was pressing the brake and pressed the gas instead and rammed the guy in front of me. Try explaining how that happened to people. As a child, I was told I was smart enough to build a tv, but then would not know how to turn it on! As an adult working as a teacher's assistant, the teacher called me a turtle behind my back. Got constantly yelled at by customers and chefs back when I was a waitress. Makeup, folding clothes, cutting vegetables: all disasters, and like you said, there are too many things to list, but that's a sample of how dyspraxia affects/has affected my life.
Thank you so much for this lovely video, my daughter is diagnosed with dyspraxia, age 5 and I’m trying to understand her and help her as much as possible and be able to explain to other people what’s the matter with her. This video of yours is amazing and you are such a talented, bright girl, don’t let the hard times of your school life bother you more in your future! You are inspiring us 🙏🏻 and posts like those are helping so many young kids! ❤️
Thank you for helping me understand.
Thanks for this, it felt very familiar. And I am loving Luna stealing the limelight!
Thank you for this, it helps, my/our understanding a great deal. I'm now looking/relating to these issues better, especially the concept of "neuro diversity". Keep up the good work and thanks again.
The funny thing is I got dyslexia and dyspraxia, I have all the same problems when I was at school as well dyslexia problems! With dyspraxia to me it more to do day to day living eg walk into door, drop thing and most things you say on what you talk on! Dyslexia is more problems written think down and reading which could do with both! Lost place which read and just do not go in! I use my hand to talk as well! Keep doing your good work!
Honestly it goes along with ADHD inattentive I've had both so but I've bettered so so much more I'm 23 now
I’m trying to educate myself about Dyspraxia as my 14yo son has similar issues. I am fighting the school and the gp for help to diagnose him. I don’t mind what the label is whether dyspraxia or something else, I just want him to get the help and recognition he needs. The school work and memory problems you described are very much in line with my sons, but he is ok with physical stuff. It’s hard to describe in a few lines, but he trains in parkour so is very physically fit and is great at what he does, but with people he has no spacial awareness. He also excels while gaming and likes streaming but can’t transfer those fine motor skills to handwriting.
He was fantastic during lockdown as I had to homeschool. Being able to take things at his pace and 1-1 meant he really took in the information and was so proud of his achievements. I wish I could do this all the time but unfortunately it’s not possible. Being back at school is really tough for him and I want to help as much as I can. Any tips would be so appreciated 😊
You are so inspiring. Love your vids. You put my experiencs into words.
The problem with problems are school , can course depression and anxiety in later life and at the time! I know dyspraxia you are more likely to have it! If you know someone or you with depression and anxiety problem talk with doctors and look in uk mind or support group which help! I hope ok to put this out them!
Hey Krystal, have you got a video that talks about housework with dyspraxia? Or could you do one? I find housework really overwhelming!
Housework, I'm so atrocious at it, the amount of time and effort I put in just doesn't translate to the work done compared to the results a neurotypical person would produce for the same amount of time.
Very good explanation about Dyspraxia. My teen has some of the same challenges.
very well explained, good job! sucks that so many people have to deal with this. cheers lovely💛
Your video has hit home for us. My daughter was diagnosed early on and we have a learning plan at school (which teachers barely follow). And none of them ever heard of this. She is really struggling in high school. Kids can be so mean. I have some questions for you as you are about 100% my 14 yo daughter!! Do you drive? When did you learn, any special tips? What do you do for a job? Thank you soo much for this video!!
Great video! Learned a lot and love all the charity work you do.
Not sure if you remember me but I met you at a PVRIS concert a 2 or 3 years ago. Hope you're all good and keep up the good work
I don't know, depends who "me" is, but also my memory is terrible so who knows
@@DyspraxiaMagazine Lewis, Like I said it was a while ago haha you and your mate got in with me in the fast line cause I was with O2 😂
Yes, I definitely remember that, the bouncer was being a butt.
My daughter was diagnosed with dyspraxia about a 2 years ago. Can you point me in the right direction to get help in the London. Thanks for your channel.
Are you actually me? I can relate to almost everything in this vid. Also there is a scary spooky skeleton behind you
how did you go about discovering you were dyspraxia in the UK, i think I may have it undiagnosed and unsure how to go about it
Do you get your nails done or do you paint them yourself? I can't paint my nails :(. I can't do makeup either.
I'm interested to know, does anyone else feel judged for having dyspraxia?
I have question. Is dyspraxia on autism spectrum? I never understood.
No, they are completely separate, but having both is possible
@@DyspraxiaMagazine thanks Krystal your channel helps me a lot! Internet has confusing information. I am not diagnosed. Im 22 but its highly possible I have dyspraxia. Only reason I havent been diagnosed cuz my family thinks it can limit my ability to get a job and will only do harm than benefit me. Autism not so sure if I have. Dyspraxia Im like 99% positive I have.
In Germany some children who have dyspraxia get diagnosed with ADHD instead
Have you ever had an employer not belive you because you can't explain it properly then and there? or there's too much to explain! Like, where do I even start!?? 🤯
And yess! Because they've done it a couple times they just argue that it's normal.
And yess again, teachers and also my mum told me I shouldn't do certain subjects I wanted to do for my option's in year 9+ now i wish I had been more headstrong back then
Do you sometime struggles with eye contact?
Can I ask how I can get tested I am 41 and had problems all my life
I was tested when 30 age! I know that problem!
@@alanjones8169 how and where did you get tested
I have done at college when I done maths and English course!
Your doctor can do it but it may take time and you need to push for it! You can paid for it to get done I not sure how much is it!
@@alanjones8169 great thanks mate
I was in college when I was told I have dyspraxia
I thought this was content was for people who paid?
Paid have early access to some videos. Paid specific are my "secret" vlogs which I post monthly along with other content.