Five Psychological Strategies to Help You Deal with Long Covid | With Dr Sally Riggs
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- เผยแพร่เมื่อ 8 มิ.ย. 2024
- Now we’re approaching two years of Long Covid for many sufferers the problem of how to stay sane and keep your mental health afloat has never been more important. Just when we think we might be getting better a new relapse can hit you harder than ever and keeping things together can be a real challenge.
So in this film I have the pleasure of talking to clinical psychologist Sally Riggs who has leant on her own experience of Long Covid to develop 5 strategies for helping you cope with chronic illness when times are particularly hard.
CONTENTS:
0:00 Introduction
0:58 About Dr Riggs
2:33 Impact of LC on Mental Health
6:22 Strategy 1
10:00 Strategy 2
17:00 Strategy 3
26:20 Strategy 4
28:30 Strategy 5
34:44 Conclusion
About Dr Sally Riggs:
Sally Riggs is a licensed Psychologist, expert CBT for psychosis trainer & supervisor and speaker. She completed her clinical training in the UK, moved to the US is 2008 to work with Aaron T. Beck and has remained in the US ever since working in public and private healthcare settings, practicing and teaching and training mental health professionals in CBTp. In March 2020 she contracted covid and in about late May her weird Long Hauler symptoms started. She is currently in active recovery and sharing her new knowledge through speaking and coaching for other Long Haulers.
Exciting news! Pre-sale for my new online course is here! Get access to polyvagal and mind-body strategies for Long Covid Recovery for just $299 (regular price $349)
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Can u imagine my state of mind after having CFS for 23 years ? I have been in some deep dark holes that I never wanted to come back out of .If I did not have kids ...they r the only thing that has kept me going. I would def have hit that button u talked of, not doubt abt it. . It is the most horrendous syndrome/disease that robs u of any kind of quality of life. YOUR CHANNEL IS AWESOME GEZ. YT gives me hope, but my life is sh*t. I can hardly even see my kids now. I cannot travel. I hardly leave the house. . The medical profession have not helped me one iota. Not one. U do such a great job as being a voice for LC and by default CFS/ ME.
Hang on in there Jacqui. I got ME nearly 30 years ago after a virus (and some vaccinations). I recovered by about 60-70% before getting covid and regressing again I'm working my way back to recovery now. I know the darkness you speak of and could write a book of stories. I'm here because my younger self didn't give up. I don't know how I did it now. Hang on in there and pat yourself on the back. Your older self will thank you for it - and so will your kids.
Going through long covid myself almost 7 months in now. For anyone who’s also going through long covid I’d recommend taking breaks from social media deactivate your accounts mentally this can be a good way to really just focus on recovering rather than feeling like everything is passing you by.
Same here 2 months.
And not to worry and add to anxiety on social media etc
Hi, how do you feel at the moment @HuzarFilms. How is your long covic going? Any better? I hope so, if not, keep going, it will find an end though!
@@germanside7890 being honest I maybe feel slightly better since that comment however in that time I have found out I have pernicious anaemia. (Auto immune condition not being able to absorb b12) which I am now on injections for. I also have done a gut microbiome test which has shown unbalanced stuff so hopefully if I can sort that I’ll be on way to proper recovery. Still not out of it yet! Important to look for anything else “long covid” could be as well. It seems covid can definitely accelerate and amplify pre existing medical conditions. Hope you’re well. Take care ☮️
@@HuzarFilms Thanks for your comment. I wish you the best. Hopfully everything gonna be alright soon. Keep your head up!
"LC has taught me an ability to be OK with just being, as opposed to doing". Absolutely. Especially after ANOTHER bastard relapse. Thank you for this.
Thanks to Sally and Gez for sharing just how tough the bad patches of complex chronic illness (be it LC or ME or other medically marginalized illnesses) can be --- the community needs more health care workers sharing their LC and ME experiences in order to stop the embedded harm / gaslighting endemic in health care.
Thank you greatly for putting my life into words. It was a lonely 24 months until I found you all.
Gez. THANK YOU. You have been there for us all, I hope I speak for everyone in this community that we are there for you too, if only virtually.
Yes, absolutely.
Absolutely! This channel has been the single most valuable resource I've found. I'd be in a much, much worse place without the benefit of all the work Gez has done.
My mental anguish was during the 1st phase of what I later found out was long covid.
For a couple of months I was trying to work out what the hell was wrong with me, all the myriad of symptoms that I couldn't understand how or why they occurred.
I am still perplexed what actually happened as I tested negative in the March, the Dr did tests and they all came back ok and it was me who suggested it might be long covid.
I am now slowly returning to my bike rides and so far touching wood seem ok. My best wishes to you and all who are still suffering from this.
Go easy turbo, glad you’re able to do some exercising though!
"Every old injury I ever had was there again," Wow - she's so, so riight. This is do true, and it's especially an issue for those of us who have been highly athletic in our lives. Exactly. It's so wonderful to hear someone acknowledge this.
Confirms my idea that active people feel Long Covid more than non active ones.
@@mariayo4284 Yes!
I agree with her too. It moves around to make things even more fun.
People see us up and “functioning” so they don’t understand how craptastic we feel. I don’t want to just function.
@@charroberts9821 Well-stated, Char.
People ask me 'How do you know it's covid? Were you tested?" I say i don't need testing I know what I am feeling and it is covid. It is all covid and people don't get colds or the flu it's just covid so if you are not well and chronic long haul symptoms persist after weeks guess what you have covid. Don't bother with testing or seeing a doctor that will make you sicker longer if that is possible. Best bet do nothing, cancel your life until you are certain you will not curl up and slowly almost die again. Each of my different waves of relapse corresponded to similar trends in the long covid community. Thanks Gez for being the only one who has made a difference for me by investigating and interviewing unexpected findings and researchers who are not main stream but fully accredited professionals
Totally agree with Ella.. thank you for everything Gez. Slowly recovering here (March 2020) I think we will get there one day 😊
You're not alone, Jo. 😘
Yes we will all get there one day. I feel that Gez has done so much for all of us, dedicating his time and all this effort making these videos . I wonder what we could do for him as a thankyou ?
When you are desperate enough, you are willing to do everything. "Fight and flight" is definitely NOT the answer for this disease. I've been there for almost 20 yrs, please do not undermine us all!!
I’m sure low histamine and meditation really was my turning point to help me recover . I was in fight flight a lot even before covid and so this has helped immensely over all and still do now .
I feel pretty fine, don't know anymore what a relapse is. My insomnia is totally gone, all I have left is some headaches and the fact that I feel sleepy most of the time but that might be just me, lol. I still don't feel 100% after an year but I am getting really close to it.
How are you doing now another three months on? Still having fatigue?
@@chrisduncan3943 not that bad, feel sick now and then but nothing major
Gez should be up there along with Chris Witty and Van-Tam in new year honour's!
Haha, thank you! Missed it this year, maybe next year :)
@@RUNDMC1 I'd agree with that Sir Gez - fantastic interview and lots of love to you xxxxx
It is BRUTAL you get a bit better then you go downhill again you get no medical help and get left to deal with it yourself 2 years 33 years old every day is a struggle so many people ending there life due to no help its a joke
Well done on another great video!
I'd caveat "listen to your gut" with "but recognise if you're making excuses". Because my quality-of-life turned a corner when I became much more strict with myself (about daily meditation and breath work). It can all feel like a chore, especially when my symptoms flare. But I think my crashes used to be much worse because I would be prematurely defeatist towards the practices that help me whenever they got tough. Obviously, this doesn't apply to everyone, know your own mind and body!
Good advice and I agree Sam - it’s a hard balance to strike!
This could’ve been titled strategies to deal with fibromyalgia or any chronic illness which leaves you unable to do what used to come so naturally. There is a grief to your loss. Then after acceptance (or at the very least acknowledgement) we find out way out of immobilisation - and you are spot on in the video it really isn’t - one size fits all solution, back towards wellness. What I haven’t heard before so powerfully expressed is to listen to your gut. In the beginning we are so helpless and vulnerable we will be grateful for any help. I’ve reached the stage now where I’ve empowered myself and found what helps me. There are lots of free resources but sometimes treatments cost. Luckily the pandemic has meant no holidays so my tip do your research and think about investing in your health. Thanks for this video. It’s very helpful. PS I was diagnosed with fibromyalgia in 2018.
Thank you and Dr. Riggs for this. Had COVID February 2020. Long covid since. Almost 2 yrs of "what's wrong with me?" Thank you for helping my understand.
Yes, Bill. March 2020 for me.
Thank you for this. The hardest part of this has been trying to exercise to reduce stress, and the exercise causing so many other issues.
Note to self: this is the bit; 29:35.
Gez, I think this might be the most helpful film you've made yet. Stay strong, everyone. There's light at the end of this tunnel.
Thank you! And yes - there most definitely is always light at the end of the tunnel, even though sometimes you have to squint a little to see it.
I’m so sorry to hear about relapses over Christmas and New Year. I hope everyone manages to regain “the ground” and recover; going from strength to strength.
Thanks for the video - as ever, giving support and hope to those of us who feel alone dealing with all this.
Here’s to a Happier and Healthier New Year, everyone! 🥂
🙏🙏
Such an important and validating interview - thank you! So important to acknowledge all emotions, and "being ok with just being", hits home. There's a big culture of toxic positivity around which can be really demotivating for those struggling.
Completely agree!
Thank you so much Gez and Dr.Riggs,
This is so been my journey. I thought I’d cracked it over Christmas but crashed straight after.
I will certainly be using your tips to help my recovery 🙏🏼
You give me comfort knowing I'm not the only one. I too relapsed massively all Christmas and spent the day in bed ..I'm still finding this so hard .
All your advice and tips are just fantastic . Thank you for your transparency and honesty. I really get what you both said about not being able to give to others . I am naturally very sociable and love to help others but I know I just can't ATM other than for my two children .
What would us long haulers do without you as our advocate ?
Happy New Year and let's hope some treatments are on the horizon. The BC007 drug sounds promising doesn't it !
So sorry to hear you had a crap Christmas like me!
@@RUNDMC1 bit different to pre covid ones , having wild kitchen discos , getting drunk and having lots of fun ! .
How are you feeling today? Hopefully you are recovered!
Thank you.....silent tears.
Gez, once again I can't possibly express the depth of gratitude I have for you doing these videos. You're the single most valuable resource I've found. I hate to think where I'd be without having your channel to keep me going. I've got some caring people around me, but they just have no idea what it's like.
Thank you for the kind words David - wishing you the best for your recovery in 2022
Hopefully we are going to have a greater population of emotionally aware and strong people ! I think this is one potential positive outcome of the pandemic!
This video came at just the right time for me. After a battle between my will and my body I had to admit that I was too fatigued and dysautonomic today to go for my booked session at the pool. Again. I lay on my bed with all the comments of how much swimming had helped others, the progress people have made by slowly building up their swim sessions running through my head and a longing to 'do something' that will help me progress, rather than lie here doing nothing as life drifts by. I'm an incredibly optimistic and hopeful person the vast majority of the time, but in these moments it's hard for the mind not to wander to memories of what has been lost - The climbing, the cycling, the adventuring, the freedom, and after almost 2 years not to beat yourself with 'what am I doing wrong to still be in this'.
5 minutes in and listening to your body is being encouraged and celebrated. Aknowledging that this is emotionally painful and sometimes feels hopeless, but that's how it is and it's ok - i'm really grateful for hearing that.
So thanks Jez and Sally, and good luck to both of you for the remainder of your recovery. I'm sure we will all get there, and have learnt a lot along the way :)
Thank you Tich!
How are u now?
Did you recover? Did swimming helped?
I've watched many videos about long covid and this was the first one that really hit home on the psychological front of dealing with this. Thank you so much for preserving and providing this valuable information.
I also appreciate that neither of you sugar-coated the dark periods. I know them all too well, this past year has been hell dealing with my health issues, my dog's health issues, and having to come to the decision to put her out of her misery, and losing my father who had dementia so bad he didn't recognize me. I hope to never repeat another year like this again.
So sorry to hear about this Naomi. I do hope you can get through it ok.
@@RUNDMC1Thank you and sorry about the typos (persevering). 😑I wish the same for you, one day at a time...
I had a very similar Christmas. At my sons house with extended family and just became too fatigued and had to go upstairs and laydown. Even after that I still ended up cutting the evening short and went home. It felt awful, but had this long enough to know that pushing yourself only ends up costing you later.
How are u now?
@@shaft657 Unfortunately after two years of this, I am no better. How about you?
Still dealing with fatigue and POTS symptoms 6 months in... what are your most troublesome symptoms?
@@shaft657 It is by far PEM. All of my symptoms result from PEM. It is a fine line between getting it and not. If I overdo it physically or mentally, I will suffer headaches, brain fog, insomnia and an oval hangover feeling for days. I am in a continuous cycle of recover and relapse. Horrific.
Sorry to hear that... that is awful. Hope it will slowly get better for you, just hang on
Thanks for all the stuff that you've put on you're channel, it's really helped. I had covid March 2020 had lots of ups and downs since then. I eventually managed to get up to working 8 hours a day sept 2021, loads of confidence then crashed mid October and had to have another 6 weeks off. Slowly building the hours back up now. But the process is definitely helped with all your research. Just looking forward to the day when I can strap my surfboard to the roof rack and go looking for some waves.👍
Thanks so much for this interview it really helps a lot. I’m a sufferer of long Covid since the first wave and I have recovered quite a bit with time but still got relapses until about 3 months ago.
I was getting done for work and as I was having a cup of coffee on the sofa and chatting to my wife I suddenly got this overwhelming feeling of impending death, shortness of breath and chest pain. I got up and went to my room and mentally prepared myself for death. As my wife came in she held me and I balled my eyes out for a solid 5 mins.
The amazing thing is I felt a lot better afterward. It was a big turning point for me and made me realise that even though I physically felt sick, my vitals were always good (BP, heart rate and blood oxygen sats and ECG) , a big factor causing the long haul Covid symptoms are psychological.
I watch less news, deleted some social media apps and started being more mindful of who I spend my time with. People who are toxic in nature or zap my energy would often trigger Covid long haul relapses.
Sorry to hear about your story. Glad you’re doing better - be aware there’s lots of evidence though showing Long Covid has physiological causes! Microclots and autoimmunity for starters!
@@RUNDMC1 without a doubt Gez I completely agree with you. I didn’t mention the fact that I’ve also been taking a half a disprin every time I’d get a relapse and it’s slowly decreasing the intensity of the relapses. I spoke to someone not too long ago who was super fit and did regular cycle tours. He had long Covid as well and his dr said he should take a half a disprin every morning for a month. He said he recovered completely.
When taking disprin over a period of time it has an effect on blood platelet factor thinning the blood and I’m assuming it might dissolve/fragment any microclots.
Sounds like Christmas was a bit much for the long haul massive 🤕👍 I was exactly the same , being around family 24/7 is cognitive overload , great video gez as always , thank you 😁👍
I think too much Christmas pudding gave me an MCAS overload!
Christmas was too much for me also, except it was that is virus has taken so much, and then my husband tested positive on the Friday before Christmas. He is vaccinated and boostered and was really only sick 3 days. Somehow, I never got it again (we were both sick for Christmas last 2020 and vaccinated in April/May). I tested every 3 days (PCR) until he tested negative on the 14th day. I’m glad I didn’t get it again but I missed the planned time with my family and it was overwhelming heartbreaking. Yet while he was “sick” he was able to rake leaves and do more than I was able to without active virus.
Thank you so much, I needed to hear this. I’m 8 weeks post covid and unable to work, struggling with breathlessness, fatigue and chest pain. No one really understands unless they are going through this themselves physically and mentally. Its a very dark lonely place at times.
Yes it’s tough. Rooting for you Helen!
Very lonely..especially when family do not support you.😢
Helen UK do you feel at least a little bit better now? It's my 33rd day from post covid and I'm counting days..😔
@@anabrdar8798 15 weeks on and finally I’m starting to notice a huge improvement in my lung function and energy, I’m now slowly trying to build up my stamina and strength. You will recover but it takes time, best of luck Ana. 🤗
Exactly, I’ve never felt so not in control ever.
Thank you for posting this and your other videos. My wife has been suffering with long covid for almost 18 months, she went from running everyday to having to us having to use a wheel chair when we go to doctor appointments. This video really helps me understand her better.
I’m so sorry to hear this. I do hope she’s in the process of recovery.
Hiw is she now?
@@shaft657 actually she had a crash a couple months back and is slightly worse from when I posted that comment. We recently ordered a different supplement for her, so hopefully it works.
She is absolutely right! Give yourself permission to do what you need to for yourself. My husband always says, Just take a breath. It's okay to do ;,x or ;,y , or just lie there.
My big outlet as a Christian is talking to Jesus about everything, knowing there is no condemnation, and Hubby is wonderful support.
Thanks Gez, another really helpful video, awful to hear about your relapse over Christmas but kind of reassuring for me as I also had one, it was a very sociable time with friends and family then a relapse after a walk (I have gone same distance previously). I hadn't considered the energy I was using and overdid it, I felt low and negative about ever recovering, somehow hearing other people's similar experiences helps! I can tell when I am not in parasympathetic mode as I wake up suddenly and heart rate increases dramatically, square breathing helps sometimes.
Thanks again, hope you are improving after your relapse.
Thank you Marie - hope you’re improving too!
Thanks for these videos. 3 months in and still can't find an effective way to manage my situation but all the tips and people's stories help me as I feell less alone. I often think Iam going mad with the symptoms I have. Then I watch your videos and people say exactly what I am feeling and convey it better than I ever could.
So sorry you’re going through this. How are you feeling today? I’m hoping you’re feeling better. It’s really horrific the symptoms I have. The stuff I’m going through. 13 weeks post Covid infection and I’m still not back to my baseline. It’s so discouraging, but I keep moving along, thinking the day will come where I will get better!
@@MK-gy1ug I am now 12 months into my Long Covid. I have been back working since May. I manage to do a days work but it is a real struggle. It takes all I have. I am a zombie in the evenings and on weekends. Extra sleep does not help at all. If I could afford to work less days I think I would be able to get some sort of work/life balance. My symptoms have stayed consistently the same over the past 4 months. I do feel that I am starting to burn out now though as my exhaustion is get worse week on week. I hope you are coping well with your symptoms and that your quality of life has improved😎
Many thanks to you both. Helpful, practical, insightful words. And thankful that you have both been serious runners so clearly identify with that loss.
Thank you so much for this. My long covid is from the vaccine but the impact is the same. Great strategies I can use.
Thank you! Desperately needed so many elements of this sharing ❤️
I appreciate the support and helpful posts
In an important way the current outlook for long COVID patients is worse than that for many cancer patients. Most cancers have a typical recovery or death period - in a year or two it will be mostly over one way or another. Long COVID patients don't see more than a glimmer in the darkness. Kudos to Gez and the other warriors who are changing that.
Thanks, Gez and Dr. Riggs. I already have a consultation lined up with a SSP practitioner. That particularly strategy really resonates with me. So THANK YOU!!! I know these strategies are not "cures" but my mantra for 2022 is to optimize both my immune and nervous systems to support my body's ability to heal. It may or may not be possible without a medical intervention that has yet to be proven (e.g. BC 007, HELP aphresis, IVIG, MAB) but until it's clearer what the pathophysiology is in my body .. I'm going to try. Acute COVID March 2020, Long COVID round 1 May-October 2020 -- recovery/remission -- round 2 Long COVID reactivated by V May 1, 2021 - present day.
Best of luck to you Michelle! Keep us posted with how it goes with the SSP practitioner.
The human connection is so important but so most ppl don’t understand this illness. We need support groups, anyone interested?
Excellent, thank you. Look forward to next Discussion.
I'd like to add that many (most?) of us are being exposed to Omicron right now, which is much more subtle than previous variants but can definitely stir the pot back up and re-ignite some of the 'dormant' symptoms we may have progressed through. I became sick right after Christmas and wasn't able to access a test (big problem in the US), but I strongly suspect this is the case as my brainfog returns to levels I've not experienced in over 6 months. I've developed a persistent headache that I didn't have with the first Covid infection (pretty much the ONLY symptom I didn't experience last time, although I didn't develope severe respiratory illness - dysautonomia was and remains my primary challenge). So keep in mind that subsequent exposures may be contributing to backslides. One of my strategies is to compare current state to the worst days, which I've not come close to in a long time. It's hard not to be anxious about returning to full debilitation, but we must keep the faith in order to heal.
I think this is by far and away the best LC video you have done - and much respect to you for your honesty in this one. Would also now like to see you do a vid on the Vagus Tens experience
Thank you - will look to address that in a future film!
I’ve just looked online for a Vagus Tens machine and can’t seem to find one unless it’s the same as a normal tens machine?
I’d really like to hear more about simple techniques to use to get out of immobilisation. This is new learning for me. I’d heard of flight/fight and freeze, but not how to get out of freeze.
True true true.
Mahalo for these videos. It's been trying with doctors and even friends family members. My core group of. believers of long covid are slim to none and listening to you guys talk about this is reassuring. As I leave this comment I'm curled up inflamed Hating life wishing for a heal button to press and prayi g for end of this feeling. I was so active running, work out etc now not much. I lost my gigs performing due to this as well as people seems to me keeping me at a distance because long covid is thought as all in your head so I must be crazy.
Great ideas always on your show. Keep up the great job keeping hope and actual practices to keep moving forward in Positive direction.
Aloha Bolo
This video resonated with me on so many points and issues. Thank you so much. It made me feel seen and understood.
Thank you for this video. Thank you for shining a light on the strategies to tackle the low mindset moments. I needed this because yesterday I had a huge fatigue day. Thanks again!
Where do I start ,where do I stop,who do I believe and who do I trust - Simples - YOU Gez - besides listening to my own body YOU are always SPOT ON and THANK YOU once again for a very informative, validating and comforting clip. Happy New year 🥳 to everyone of us long haulers - We're not alone.
Such a helpful video, thank you so much to everybody who has participated!
What a wonderful video, hope that it reaches as many people as possible and that it helps whoever needs a guide! Thank you for sharing :)
Thank you Gez and Dr Sally. I'll need to listen again when I feel more alert, but simply naming the 3rd state, immobilization, is SO important for accepting it calmly and developing a different strategy for that phase. ❤
Watching this video gave me great comfort. Thank you both for what you do! I am a lucky one. Been dealing with this since Feb. 2020 but after my first vaccine I began to recover. I have had a long difficult journey but I do see a light. Your video gave me validation and hope for my future and all the other people suffering from this horrible virus.
Wow, exactly my experience when long-haul hit me, too. Comforting to hear ...it made me feel confident in what I experienced and experience still wasn't somehow imagined. Freeing -
Thank you.
Thank you Gez & Sally - a fantastic video. Sorry to hear you had a dip at Xmas Gez; I hope you’re improving 🙏
This was such a great great video. You were the first person I found talking about long covid back in July of 2020. Mostly recovered now, but it was a great help to find you then. So many great insights from you and your guest. It can be such a dark time and a dark experience.
Very glad to hear you’ve mostly recovered. Each time we hear a story like this it should give us all a boost!
Thank you so much for this video. I cried most of the way through it. I’m coming up on 2 year myself. This is so hard. I am going to try these ideas.
So sorry to hear of your suffering - if it’s any consolation the emotional release will be moving you forward. Not pleasant to go through though, I’ve had a lot of it!
Gez. Just watched. Really great great interview chat, much more believable for me because both of you are suffering Long covid. Thank you for sharing your experience with us because for many this is very validating.
Thank you John!
Oh wow great video. I feel better after I let my emotions out. This illness is a soul crusher.
Absolutely fantastic video. Thank you so much. This was very helpful.
Thank you Lisa!
Gez! Perfect timing!! Really needed to hear this today after also missing Christmas and in bed til yesterday!!! Really awesome. So encouraging ❤️Thank YOU!!
It’s a pleasure Christine!
Oh my word, spot on, more pieces in the jigsaw. Sorry to hear that you have had another relapse, please take care, be kind to yourself.
I am so sorry you suffered like that on Christmas it's heartbreaking. Frequency and breathing is really helpful.
Tapping therapy helps me too and so do long bubble baths meditation. Feel better ❤ again so sorry you suffered over the holidays.
Gez, another super helpful video which nailed a description of the problems associated with long Covid. The suggestions were expressed well and some were new to me. Dr. Riggs was great. SO sorry to hear you are still having severe relapses. But please, never doubt your purpose. You have helped so many of us more than you can ever know.
Thank you Lynn!
Best yet....Ive run myself ragged following every idea/treatment/supplement....now Im going to follow my gut.....thanks Gez .....for keeping going even when youve been as unwell as we all have....
I suffer from depression and anxiety and covid made it 10× worse i suffered for almost a year of long covid i had to stop vaping i stopped drinking caffeine and i take vitamins and CBD everday and i been doin some workouts and the last week and a half i have felt better then ever for first time in my life im feeling happy again
Thank you so much both of you x
Thank you Sue!
totally agree .. one step at a time .. a journey to recovering ! we all need to trust our gut !
Best interview yet Gez! Wishing Sally and you a better health in 2022. I have had to make some very hard decision in order to getter better from long COVID. I am not the same person as before Covid and never will be. But listening to Sally and Gez, I know we are on the right track with recovery, however slow and grinding it may be. I feel better but still have to accept that relapse can be around the corner any time, any day. My best wishes to the community out there and thanks again for your wonderful interviews.
Best wishes to you too Gabrielle, and happy new year!
Wow, what timing! Thanks Ella and Gez. Christmas stress and a filthy bug has set me right back
Seems to be a common story! Sorry to hear this Ian
Thank you Gez: for being so publicly vulnerable and putting out such a belter post-Xmas. As well you’ve gone through and replied to folks which is really really touching!
I too had the mother of all Christmas crashes, but though it was more painful than usual, it was shorter. I’ve noticed recently that a physical exertion crash is less painful and delayed 24+hrs (going to the hospital for a scan but not talking to anyone), whereas an emotional one (phone call to benefits people, or having relatives round at Xmas) is immediate and vicious and much shorter. Nowadays I can kind of reset to baseline after one of these by the next morning. It could be that I’m working with a Reiki practitioner now and she tells me I’m doing better at being thankful (she’s one of the practitioners from the NHS Medic Care programme looking after staff suffering burnout and doing a clinical trial of Reiki treatment ).
I can’t access sound-based stuff so I don’t think this music therapy is appropriate right now but feel like the Reiki is similarly moving things forward for me. The five principles of Reiki are: Just for today, do not worry. Just for today, do not anger. Just for today, be grateful. Just for today, do your chores gracefully. Just for today, be kind to all living things.
Hey Beren, what a lovely comment. Glad you’ve found your own way to manage the condition and I can certainly see why Reiki would work :)
Excellent interview. Thank you, Gez.
Thank you Tim!
Thank you Thank you Thank you!!!!!!!!!!!!!!!!!!! I so relate to this!!!!!!!!!!!! It’s nice to be able to hear someone else verbalize it- thank you both so much for being vulnerable and sharing!!!
That’s ok! I’m glad it helped :)
Thank you for your videos Gez! I greatly appreciate your time and efforts in bringing people suffering from Long Haul such great, real information and free resources! Some of us aren’t able to work and with everything being so expensive including medications, supplements, tests, doctors and specialists, this is very much appreciated!
Thanks Ioanna!
Very timely Gez. A lot of us (including me) have had a tough time over Christmas. Sending you psychic healing wishes for the new year.
Thank you Brian!
Where do I start and who do I trust is exactly where I am at. It’s frustrating. I’ve had to step back quite a few times. Really can relate to her!
I am so glad I found your page ❤️. I have been following you for6 weeks now and I love the information you share. I was diagnosed with covid in September 2021 I didn’t realize I had long covid until I tried to go back to work in November. It has been a journey every since. Thank you for all you share your videos have help me to accept, to understand and find some type of hope. I pray for your full recovery and many others as we travel this journey together. Keep sharing thank you
Thank you Roszetta - best of luck in your recovery!
You and your videos has been a life savour for me during my long covid. Thank you once again.
Thank you Eva! Hope your new year has got off to a decent start.
This video has been so helpful .I suffer with fibromyalgia which I've struggled with for 20 plus years (I have long covid too) . I've often found relationships under strain and constantly beaten myself up about it, as you can imagine it has had a negative effect on my mental health. I think listening to how you have been dealing with these issues such as not being believed, has helped me put things in perspective and not be as harsh to myself . I'm taking the advice to rest and maybe rethink a few relationships that have been fraught for sometime , thank you 😊
It’s a pleasure - best of luck with your LC recovery.
Thank you Gez another good article no surprise. I had long covid since March 2020 and while the physical aspect has been debilitating and exhausting, I noticed as time went by the mental issues have started to become more and more problematic and harder to deal with, sometimes even more so than the physical. I hope you devote more time in future to talk about this.
Thanks Noel, we will!
So true Sally.
Thank you so much for the work you do Gez. Your vulnerability and honesty in this video was very moving and powerful. We have probably seen you as a long covid superman, getting all the research done, making films etc, and yet you have been struggling too, and this video reminds us of that. Remember that you are doing great things for the LC community, but relax too, and look after yourself. Sharing with groups in NZ. 😊
Thank you Larisa! Appreciate your support - yes this journey has taken me to some incredibly difficult places - as it has for all of us.
Trust your gut !!!! I've just been gaslit yet again by a new gp. I tried to explain that prior to covid I could teach 30 kids and multitask , I was a fully functioning human and lone parent with two kids and now I can't play a simple game with my kids without overload . I was told I was suffering anxiety . I have physical brain throbbing , lack of focus, I can't concentrate or remember things . I explained I couldn't even have Christmas with my family where I feel happy and loved and yet again it's all put down to anxiety because the symptoms are similar . All this new research about blood vessels, oxygen depletion and mini clots doesn't seem to be listened to .
I am at a loss as to how to stay rational and sane when some GPS are dismissing us as having anxiety ! . No I have long covid and haven't been able to work for a year .
Unbelievable! I’m so sorry to hear about this Ella
@@RUNDMC1 it's so disheartening when you're just not believed. Why on earth would I want to lose my job , be on barely any money , lose my independence and ability to lead a fulfilling life full of travel and fun to lie about being very very unwell ?. I shall continue to put my efforts into the holistic methods as I'm getting no other help.
Ella, do what l do, go armed with photocopied research papers from kosher universities and present them to your GP. They font have the time, and probably not the interest to do this research, and so are hanging on to old diagnoses they learned at med school and have slotted you into other more recognised ( but wrong) pathologies and hence a wrong diagnosis. Having studied medical physiology at a renown medical school has been a huge help in doing battle with stubborn GPs who tried to t ell me nothing was with with me! Just proved them wrong AGAIN, and had 2 parathyroid tumours removed. Take away : be prepared with copies of printed research papers to show your GP, make notes beforehand of important things / symptoms or points you want to make. Politely stand your ground if you disagree by siting the words / work of consultants and medical research scientist s. They are, after all, general practitioners, can't keep up to speed with all the research, and some can be arrogantly obstinate! You WILL recover. There just aren't the treatment pathways established yet so we have to rely on the likes of Gez's work which is amazing and CAN be trusted.
@@carolenmarch7445 thanks so much for taking the time to reply and with so much detail. I went in armed with notes and like you , I've read so much recent research that backs up my hypothesis. I will print off all the relevant info from the latest research and send it to my GP. Thanks so much for your kindness, it means a lot right now !!
Always there to support a fellow teacher!
Yet another brilliant contribution to the recovery protocol for Long Covid. How l underestimated exactly how much it has cost you personally to keep going in order to not only get well yourself but to strive towards releasing others from the destructive misery that this illness can foist upon its victims. I take my hat off to you. and. Sally! 🎩☺️
Thank you Carol!
You are such great help to my dearest friend who has LongCovid
Thank you both
Thanks for sharing your story with us. I'm going through a relapse rn after almost 3 months without one. it's also one of the worst I've had. One year after my infection.
I found your channel and it's giving me hope! Thanks! You're also so cute 🤗
Haha, thank you Paola! Hope you recover from your relapse quickly :)
I am really glad to listening to you because I know what are my physical problems that started after covid but also the fight and fly I am not really depressed and in denial but is very difficult to relax and breathe, insomnio and anxiety symptoms that I had before covid I am in therapy it's help but not enough and my physical health has been compromised and even when I am getting a little help from a Dr the symptom that is not letting me get better there is not help so I found myself knowing what I think I need and not getting help and no knowing where else to get it outside and that sometimes depressed me and make worry and feeling alone and being aware that certain things are in your hands but other not and not knowing what else you can do to get the help and if I find something is so expensive that I can't afford. I just bought a book about the vagal nerve and it comes with exercises I am going to start reading to see if that helps thank you so much for sharing and offering different ideas and suggestions how to help yourself in this particular moment of my life
Thank you both for taking the time be so honest and real in this amazing interview. I've seen how my mindset has shifted radically when I've had relapses. I knew that I wasn't able to access the parts of me that are grateful or feel joy but I didn't until now put together that it was because the freeze/immobilize response was preventing me from being able to access these parts of my brain and psyche. Super powerful stuff you guys. Thank you!!!!
It’s a pleasure, best of luck with your recovery Nicole!
@@RUNDMC1 And to you too Gez. Your videos have helped so many of us from the get go!
This conversation was moving and affirming - I was anticipating the 5 tips, but didn't expect to find myself in tears, feeling extremely validated on some of the emotional and social aspects of the disorienting journey of going very quickly from a relatively privileged, healthy person to someone navigating chronic illness and aiming for recovery amidst a global pandemic.
(I got sick in March 2020, right around the same time as you both, Gez and Sally - the long haul began in early July...).
I'm so grateful for your ongoing long-Covid education and sharing, Gez - and Sally, I really appreciated your insights, reflections, and I'm deeply grateful that you'll be advocating from your role in the health care system: the gas lighting moments with a GP / health care professional have been surprisingly painful - like a kick and betrayal when you're already down. (I can tolerate people's not-knowing, but projecting that as blame and minimization back onto me felt so painful, infuriating, disrespectful and could sometimes trigger a feeling of greater isolation and helplessness).
The concrete tips are helpful, I appreciated the polyvagal theory piece - and I resonate with the recommendations. It's kind of fascinating that a 'silver lining' of this illness (and I do NOT mean to put rose-coloured glasses on it, at ALL) seems to be that it's inviting many of us to learn to calm and settle our whole systems and have to reckon with deep, holistic healing and examine fundamental habits and patterns of living, in service of recovery - that turn out to have some transformative gifts that might not otherwise have been catalyzed, had we continued on with our old 'status quo' (which again, is not to minimize the losses and grief for some of the 'pre-Covid' privileges and experiences that may still be out of reach).
Anyway, THANK YOU both and I look forward to Part II -
and wishing all here a healthy New Year, peace and wellbeing.
P.S. I also had a brief but TOUGH holiday relapse, and I see many people below did as well - what the heck exactly is going on with that?!
Hi Nicola - what a great comment - and yes I agree with you on all the above! As for Christmas relapses - maybe it’s stress, or reactions to uncommon foods? (I think excessive Christmas cake may have played some role in mine, detonating a histamine bomb!)
@@RUNDMC1 Plus, a little odd bug went through my household, and I wondered if in addition to some holidays stress (even 'good' stress, but that which still excites the nervous system), my immune system got a little over-riled by a small bug? So much mystery to surrender to, sometimes, on this unpredictable roller coaster of long-Covid!
Something I’ve done is a brain dump book and just write out any bad stuff. I usually feel immediately better about the issue when something comes up. (If I’m angry about something I can usually figure out what by writing and dumping the anger then can just go on without the intense angry feeling anymore.
My daughter is 11. She got diagnosed with LC in September 2021. This is such a helpful interview. Thank you.
Wishing the best of luck to your daughter in her recovery.
Great advice!
I personally still have a hard time pacing myself when I finally can do a few things on a good day. On those moments i cannot even believe i'll ever relaps again. Yet a few hours later I can be this immobilized wreck again, with also a totally reversed mindset. I never before had the mental part change so quickly. And I don't seem to learn/change by trial an error. Is there any advice on this? Should you definitely hold back on good moments or is it ok to do whatever you can on those days because your body (and mind) tells you you can?
Thx in advance. Your video's have been the best out of all I've seen and heard during my 23 month recovery!!
Thanks Anne!
How are you doing today? I hope you’re recovered. Your comment sounds exactly like something I would’ve written. On my good days. I feel like I could do everything and then I crash and it’s all over. It’s really horrible.
Thank you for another brilliant video and also for inviting questions for Dr Riggs. I'd like to ask if she has any advice specifically on dealing with the fear of dying during sleep which I and many others have developed since having long covid. Any help with this debilitating condition would be much appreciated!
To reply to Dr Riggs' follow up question: for me the initial infection was very mild, flu-like and only lasted a couple of days. The fear of not making it to the morning developed about a month later when I started having heart palpitations, dizziness and other long haul symptoms and began to fear falling asleep in case I had a stroke or cardiac arrest during the night and just didn't wake up again
Well done Gez....you're a lifesaver! Going on 21/22 months...feel I will never be the same. I will keep going tho!!! You've helped me more than you will ever know. 🥰....again, thank you!
Thanks Kelly!
How are u now?
This was very informative about the immobilization phase! I have been struggling since Jan 2021 and thought I had quite the opposite of fatigue for many months, dealing with mainly mania and insomnia/neurological issues. These would result in a crash, which I called simply “going numb” or feeling “dead inside.” Being a person who in the past would use journaling, breathwork, meditation, yoga, workouts, reading etc to cope, I was so helpless with not understanding why my brain/emotions/gratitude/compassion/connection were just absent during these relapses. Dr. Riggs explaining the third level being immobilization helps me understand my process so much more now. I have had a hard time explaining to others why I didn’t reach out or respond to them like I normally would or do the things I would normally do to feel better. Even listening to soft music in my early days was too much sensory overload. Now I see that this was my reason. Running manic in sympathetic mode for so long was causing me to crash right into numbness. On a positive note, I am now able to listen to music again and will be looking for a playlist from you two soon😁 Oddly enough, the first style of music I was able to incorporate back into my life was any form of “oldies.” Particularly Vietnam era music! Strange, right??
Haha, that is a little strange! Did you used to listen to it before all this?
Not regularly! I grew up on it though with my dad being a Vietnam Vet. I also could listen to 80’s and 90’s country music in my later long haul months which I definitely did not listen to before getting sick but I grew up with my mom listening to it. Dr Riggs mentioned a feel good frequency occurring in music from the 60’s so I find this incredibly interesting. Maybe I associate these genres with calmer times of being a child and it soothes my nervous system almost like in people with dementia. 😳
Misdiagnosed with epilepsy at onset, I found a new helpful Dr and Cymbalta. I returned to work for 4-1/2 mos and got Covid again. Another 5 day med triggered memory of dreams and nightmares so bad I was hoarse for a week from screaming during one. I have great ideas, then forget them as I try to write them down.
Thank you for this, Gez. After being stable at 90% of healthy baseline for months, I now suffer a relapse after a traumatic emergency surgery right before xmas. The relapse came on very slowly making me think I was free of this illness once and for all even after all that stress... how naive. I am beginning to embrace the "nervous system approach" to this illness, but even if I've not seen terrific improvement as of yet, it certainly has not made it worse. It is what it is and I'll keep going. Thank you for holding on, and a happy, healthier new year to you🖤
Happy and healthy new year to you too!
Coming into the holidays I slipped into a relapse also. I am still grieving and so frustrated with how little I can do at any given time. Your post touched me Wishing you better health and a happy New Year
@@katiehettinger7857 Thank you for your kind words, Katie. I'm sorry you're struggling with a relapse- it's only natural to react like that, been there, done that many times. If there is anything I can say that helps in the early throes of a relapse, it's to try not to fight it, if you can. Don't argue, bargain, second guess, guilt or otherwise, that will only cause further tension. It's not easy, but it works the best for me- maybe for you too? If you can, just let it be what it is. The sooner you can accept the situation and feel safe in it, the better your nervous system will manage. (It's okay and healthy to feel your emotions, just try not to set up camp there😉) Best wishes and a happy new year to you🖤
Sorry to hear about the relapse Jez, they are so demoralising. Thanks to both of you for this piece and I was struck once again by how many of us were runners before Covid. Hanging on to the dream that 2022 may see me putting the running shoes on. Meanwhile it’s yoga and walking for me both of which are lovely but…….
Yes I’m with you there. Lovely, but…
Amazing thank you so much 👍🏾
Thank you Pat!