Headache versus head pressure I appreciate all the doctors out there trying to help. The “headache” that long Covid sufferers experience is not the run-of-the-mill migraine headache. It is described as a long lasting pressure headache which is exacerbated by activity and exertion. Usually the head pressure increases the next day following the particular activity/exercise. Headache medicine such as aspirin or ibuprofen does not reduce this “head pressure“. It is not a headache that you can treat with migraine medication. This is an immunological issue which behaves like all long Covid. The pattern is very predictable. Do some work/exercise and pay the price tomorrow. The only thing that can help these patients is antihistamine, gluten free diet, or anything else you can do to reduce immune response. Simply treating the symptom is fruitless. As someone with long Covid, I take offense to anyone who continuously says the problem might not be Covid. Anyone who started having these symptoms the same week they got Covid, knows what it is.
you need to clear the dead viral debris out of your system,drink the miracle mineral solution in less than 12 hours you will see why they call it the miracle mineral solution the cost of the miracle 10.53 uk pounds ,all the symptoms vanish and the energy levels rise
I agree for all younger patients certainly and i suspect many older, these symptoms all came at the the same time and never leave. One day you are fine, the next few years you are sick as a dog. Lazy and short-sighted to say "maybe its just other things." Of course it isn't, as any one with long covid will tell you. They are not even bothering to check how many people have the condition. The health service has done NOTHING apart from the most basic tests which obviously will show nothing and even those you have to fight like mad to get... in a few months or half a years time.... It really is a disgrace
Thanks for this Gez and Asad. I’ve had all these symptoms, as well as tremor and tinnitus. I never got a scan or LP. However, I’m pleased to report that 18 months post-infection, and 7 months into working with a fatigue / NLP coach, I am now fit and well and I’m no longer on any meds. I’ve mainly used yoga nidra, pacing, mindset exercises, chronic pain meditation, anti-inflammatories and antihistamines. There is hope fellow long-coviders. You can recover. ❤️
@@imsocheeky1220 Hi, I had colchicine for 3 months for pericarditis, and I just used ibuprofen for a few months for flu-like symptoms. My son was on naproxen for 3 months for persistent high temp and flu-like symptoms. Pacing also reduced these symptoms.
Thank you for naming the elephant in the COVID room: gaslighting by doctors who psychologize physical symptoms --- they do untold harm to patients and trust in the medical system.
That has been the System since the 1980's and Chronic Fatigue Syndrome, an Awful, Deceptive description. It is definitely a Post Viral Syndrome as this is. Unconscionable that after all these years some want to continue to deny, blame and refer to it as depression, mental, psychological. It is Multi System Dysfunction. Very Complex.
@@wildhorses6817 post viral conditions are not complex i heal them ona daily basis,a dumb arsed doctor cannot heal post viral conditions,low glutathione pulling down the atp levels ,thats what keeps post viral conditions in place and they are easily healed
@Karma Consciousness i dont recomend glutathione products ,i recomend taking n acetyl cysteine and selenium for raising the glutathione ,if you have long covid all your levels will be slaughtered you need to takea complete protocol i will type it out on request,many americans have leaking gut syndrome that gets healed first with slippery elm bark
First thoughts less than 5 minutes in: * finally someone with expertise in both areas is making the connection clinically between HIV / AIDS and the Covid-19 syndrome 🤔 👍 * so GREAT to hear that large groups of health professionals have been meeting regarding long covid issues * also so great to hear that programs have been able to get funding to help Long Covid sufferers Thank you as always Gez! Love & Support from Larasita 😊
I had long covid for a year and a Chinese doctor did a bloodtest and saw I was severely deficient in copper zinc and manganese, he gave me ionic liquids and Im feeling 100% again.
This doctor hits it out of the park. He is describing my life, and I am sure there are many that are the dame as myself. After this is all said and done, there will be new updated protocols for patients that do not let them fall between the cracks as so many are suffering with today. There will be an understanding of the synthesis between body systems, and greater interconnections will be looked at and UNDERSTOOD.
I’m one of them, and so is my son! It’s a nightmare here! My son also has neurological and psychological problems that began at age 7 with meningoencephalitis, several severe TBIs, and now mold toxicity and Lyme. No one, including his neurologist does anything! It may be because he’s on Medicaid. If things don’t change, and his father and I are working on this after his attempted suicide a year and a half ago, his anxiety, depression, and insomnia will drive him over the edge. Our lives are on hold until something changes, and his doctors start taking this seriously. I’ve already paid out of pocket for lab tests which show high levels of mold exposure and Lyme. We both have COVID right now as well. Everything you’ve said about this doctor is true! I took notes the entire time! I hope you’re doing well now! 🙏💕💫
I too appreciated the doctors comments, but I'm not sure how successful the approach can be. There was a global shortage of neurologists before the pandemic, and migraine treatment whilst it has been advancing amazingly fast in terms of treatments is limited by both lack of money and lack of neurologists pretty much everywhere. We don't know who responds to which migraine drugs, I've already been through all those mentions and am waiting on Botox as a preventative, but it took 20 months between being struck with a weird 3 month episode of vertigo at the start of the pandemic (no Covid-19 obvious for me, fatigue, worsening of migraine, addition of tinnitus and some brain stem associated symptoms coming and going) till first receiving a neurological examination of any sort (indeed any meaningful in person medical examination for these symptoms - bizarrely I did have an operation that was postponed when non-essential surgery was cancelled). Whilst the NHS could choose to throw money and more intelligent approaches (getting out of the patent bind on modern migraine drugs being an obvious approach to reducing costs and bringing more effective treatments forward rather than have them wandering through blood pressure drugs, antidepressants, and beta-blockers for 9 months to a year, the modern migraine drugs are effective with great side effect profiles but also unreasonably expensive ), I simply don't see any meaningful way for say Long COVID-19 patients with migraine to all see a neurologist without crushing the existing system. The only scale-able approach we can do short term is to push the knowledge out to GPs. Locally around Exeter the headache treatment is through a clinic with a GP with a special interest, who in their turn encourages GPs to work through the NICE guidance before referral. The whole approach is designed to minimise the call on those with headache specialism or neurological specialism, because there was already more migraine than the system could cope with. I suspect there is a lot of undiagnosed & untreated migraine, especially menstrual migraines, which again could be found and treated by GPs with the right training/information. But a lot of information and training is thrown towards GPs for precisely these reasons in other bits of the NHS.
It’s such a shame that some GP’s are still not on board with the long Covid. Many discount the ongoing symptoms. Also it’s a Post code lottery for treatment!! U might be lucky if u live in a big city to have access to a long Covid clinic, but if you live elsewhere you’re very limited in most areas, just like most menopause clinics or cancer treatments. My battle with dizziness and migraine and fatigue continues to haunt me. But I’m a positive it is improving slowly. Life changing for so many . A big hug to all still suffering ❤️
your weak immune system cant clear the dead viral debris out of your system,its that whats causing all the problems,if you drink the miracle mineral solution in less than 12 hours you will see why they call it the miracle mineral solution it clears all the dead viral debris debris out of the system the symptoms vanish and the energy levels rise ,it will do this for all post viral conditions the cost of the miracle 10.53 uk pounds
I had a severe allergic reaction in March 2021 and my dr too has chalked it up to just anxiety. I’ve never had allergies before. It’s very very frustrating! Having all the same symptoms of long Covid. In my search I came across mcas so I had a consult with a specialist and since starting h1 and h2 blockers it’s helped substantially. I’m not 100% because I’m not very good with my diet yet but it’s definitely allowed me to function again.
My key takeaways from this wrt the Brain Fog element. 1. We don't yet know the underlying mechanisms 2. A lot of this has been swept under the carpet (presumably in relation to the NICE fiasco with ME treatment protocols). I'm in the queue for his clinic but have already done the tests with a colleague of his in the Neuropsychology Department at Queens.The key findings were poor memory and slow response times.
I have had long covid since April 2020, still suffering fatigue headaches and sickness. It has got better overtime but still and no where near pre covid health.
Wishing you strength and healing. It’s is rough road for sure. One year ago this month my long haul battle began. I hope we see improvement over time with eventual return to health. Day by day. Sending positive energy your way!
Sit in the sun when you wake in the morning for 20 minutes and try to get a good light therapy device and use it for 30 minutes to an hour within the first 2 3 hours of you waking up and avoid blue light and blue light bulbs after dark
Long haul Lyme has attacked my nervous system and seems very similar to Covid Long haul symptoms. I am hopeful that we will benefit too from all the attention on Covid. The suffering is intense and goes on for years with Lyme. I am hopeful this is not the case for Covid sufferers. I believe science will help us. I hope it is soon.
The only reason this popped on my home feed was because i was watching your DeLorean review yesterday, which i enjoyed very much. I recently caught covid, was in quarantine for the past 14 days, and as i recovered thru these last couple days (thankfully wasn’t hospitalized )ive experienced these symptoms like brain fog, headache, light sensitivity, dizziness, drowsiness. This been more informative than anything thats been put out there. Thank you💪🏽
Best of luck with your recovery - top tip - don’t push it too quickly with returns to exercise or work. You don’t want COVID to become Long Covid and that is often the trigger! Glad you enjoyed the delorean film!
Brilliant. Having covid March 2020 and long covid sine June 2020, I'm still struggling. If I was asked to attend for scans, bloods, nerve testing, lumber and genetics, I'd book a taxi now to attend.
drink the miracle mineral solution in less than 12 hours it ends long covid ,all the symptoms vanish the cost of the miracle 10.53 uk pounds,theres no need for anyone to suffer
@@garethcrf do some research jim humbles church in america sells the mms if you live in the uk i can say where to get it the cost 10.53 uk pounds i see the miracle mineral solution healing long covid every day of the week,all the pain all the misery all ended with a simple drink
Thank you for this video. You have been such a source of support and real-time information to help with decision making during this pandemic. I appreciate your efforts and many thx to the good doctor who shared his clinical views and compassion today. Great content. Wishing you all continued strength and safety.
July 2021 was a full month long headache. Like a wedge of wood inside my brain cleaving it raggedly pressing on the back of my right eyeball. Never relenting ebbing and surging. Stopped eating again, drank water, rest... determined that that amount of pain for so long was irrational so I converted the pain into a permanent acid trip. It is way better but now I'm entering my second month of tripping balls and every one around me is tired of it... but I'm fine I like it. I can go back to feeling pain if it makes others more happy. A co worker lured me into banging my head real hard on a garage door they lowered while my back was turned. That hurt and knocked me to the ground. I wasn't hurt badly but enough to be really pissed off. I controled my self and took a break. The trauma to my head reminded me of the pain from the previous month and when compared bangin my head really hard felt good because the pain didn't last forever, but an hour I was back to tripping balls in la la land joking about the slap stick nature of the incident and wonder about doing it again "just to see" head banging might be a treatment option for long covid headaches? It's a weird condition and any thing seems to work for a while then back to normal range of symptoms.
Oh my word, he described all my symptoms apart from i didnt get the headaches thank goodness. Wish i had known all this last year. Thanks really great to find out more.
@@imsocheeky1220 i caught it March 2020, was off work for over 3 months. I am a gardener, had to give up some customers, had to really pace myself lots of rest. I am still not as fit as i was before covid, found this season hard but i dont give up. I am riding again slowly building back up. Its been the hardest thing i have dealt with. How are you?
@@sharongibson7523 ok , glad you’re doing better! It’s rough, had in April 21’ . I’m working diligently at getting better. I’ve gotta much better but still not 100%
Extremely useful for helping Anna, as she was diagnosed yesterday with post-viral migraine, as a result of probable transverse myelitis. Hugely reassuring to know Hadi Manji works with Mike Zandi who's diagnosed Anna. Hopefully, his 'migraine brain routine' protocol will help her and many other LC patients. Great work, once again, Gez!
I had terrible brain fog. Acupuncture. Specifically the points behind the ears on the vagus nerve seem to have cleared it completely after a few sessions.
Hi Gez. Trust you are doing well !! I am in my 11th month since COVID, and of late I am feeling so much better. Your videos gave hope during my worst phase & I cant thank you enough for ur contribution to the LC community. I do have bad days once in a while & some bad moments in a day, but I tend to think about one of your comments on the comment section of one of ur youtube video's - " if you give up it means you have let the frickin virus win ", and then I tend to not dwell over those bad periods :- ) Btw how are you doing of late ? Are you back to exercising ? Still continuing with the stack & supplements ?
Fascinating video. I'll forward this to my GP, who has a deep interest in this subject (unlike like the other GPs in my surgery, who just use Google, it would appear.)
FYI I got rid of headaches migraines with xyzal at night just half tab! Plus cut out gluten and all natural diet! I had them daily! I feel long covid brought on MCAS high histamine🤷🏻♀️ magnesium Malate at night! Thank you so much, everything you mentioned I have the symptoms! 🙏
I've got long covid since april 2020. I started with a keto diet and lost 20 kg. Feel much better, but sporting and working (nursing) are still though. Some days I feel so fatigued . Before covid I used to be very energetic. So Iam functioning ,but afraid my old ME is gone.....
Been sick for 14 months, less nausea and headaches and milder symptoms now but nothing even near what I was before. Was a perfectly healthy 31 year old, fit, good diet, no underlying conditions. Had scans, blood work, examinations nothing found. My vision has a constant static, like a tv set with dodgy reception (or like visual snow syndrome), its been constant for 14 months. Anyone else have something similar? I actually went to UCL neurology department and they said it was a "migraine probably"... I asked if anyone in human history had every recorded visual static constantly for over a year with and without headaches and all they could say is "its possible". They are just not spending enough time & money for this at all. This needs to be the number 1 priority of healthcare departments but instead they just brush things off and try to attach it to other known conditions, despite it clearly being "just covid" for most of us, especially the younger patients, and it most certainly will be a definitive pathology caused by the virus, not the patients that have damaged organs from severe infection, there's no mystery there, they are not long covid patients really, they are patients with severe organ damage from covid. They just don't want to spend the money and time. Easier to bury us alive like the ME/CFS sufferers
I was in a similar situation. I started taking Zinc, K2, B1and D3 as a last ditch effort. It made a huge difference. Prior to that I couldn't excercise as I would get dizzy and my heart rate would race. After two months I can now excercise and now feel much better. I seriously never thought I would ever be able to do what I am doing now. May god bless you on your healing.
@@fjb2986 Thanks for the advice and goodwill, unfortunately I have been taking all of those supplements plus many more for around 10 months and have had only slight improvements
@@funbarsolaris2822 Sorry to hear, I really hoped it would help you as it did me so I thought I would try to help you. All of our bodies are different and I will pray you find what works for you. I was pretty messed up- thought I had Parkinsons due to the tremors etc and found a way around it. Good luck and God bless😊.
The static in eyesight seems like migraine aura. Zigzag lines?? Read up on migraine aura. Many people get migraine aura without the migraine even those who never had covid.
Damage to the organ is connected to synthetic drugs use and antibiotic reactions , with steroids combined. this is called F.Q.A.D look it up on the FDA WEBSITE 🇺🇲 🤯👍
I have dizziness, tinnitus, nauseousness vertigo brain fog etc etc Thank you Thank you Thank you. I struggle with conversations too but one of my most disturbing symptoms is and I do apologise for this- my faeces is green (4 months now) I haven't heard anyone else mention this and I'm not sure if it's due to embarrassment or am I the only one 🤔
my brother was like you ,he was close to death he couldnot breathe his lips where blue i made hima drink of the miracle mineral solution in about 12 hours he was recovered walking up and down the stairs taking deep breaths the cost of the miracle 10.53 uk pounds all the nasty symptoms disappear and the immune system calms down
@@Beekind799 oh wow your poor brother. I have to say my breathing is OK Thankfully and I don't have the heart palpitations. My speech is somewhat laboured but I'm putting that down to the fatigue. It's totally crazy. I've an appointment with a gastroenterologist coming up so fingers crossed they'll be able to shine some light on the situation as for all my other symptoms - God help us all 🙏
@dee Thompson. I suffer from the same issues as you. I did a lot of deep reading on this and my hypothesis is that covid lasts very long in the gut especially small intestines (enterocytes) and causes leaky gut syndrome, which causes viral RNA and spike protein to reach blood circulation and trigger immune responses (inflammation) or cause inflammation of vagus nerve. The result is the neurological symptoms. Greenish/yellowish stool is also an evidence of malabsorption/indigestion and again this is likely due to issues in small intestines and microbiome dysbiosis from covid.
Another great interview. So I'm coming out of a relapse. After such terrible fatigue, I now feel so wired and over-energized. It's like I've overdosed on energy drinks. I don't understand.
It's the nuerochemicals being unbalanced (up to high then down to low ,only feel "normal" when it's in the correct sweet spot) .Then add the crazy adrenaline spikes and vagus nerve issues ,means one week is different then the next (or whatever timeframe ur body is working on)
I have suspected the disease causes manic remissions to include feeling extraordinarily fit and healthy beyond normal health but one where you feel geneticly superior to others like the Master Race and equally put off by others disease prevention precautions. Revenge is sought against others who impede their illegal activities. the result is argument, fights, assault, murder, arson, mass destruction, mobs congregate claiming disease prevention protocols violate their rights... laws are unfair and they deserve better treatment than others they degrade racially.
Hi!! My name is Sean McGowan;I have a background in mathematics and data science, and partly due to your' efforts, I have started to explore Long Covid statistics. I am wondering 2 things: 1. Whether you know of any Long Covid data repositories that I would be able to access, either public or private, that either JH or others have collected. 2. Whether you know of any researchers who are working at the intersection of Data science X Long Covid, analyzing data of any kind: biological, demographic, etc. who you might be able to put me in contact with as I begin this investigation. I am looking to deploy my skills in whatever way is most effective to help with this condition. And hopefully any findings transfer over to other latent diseases, such as Lyme or CFS! Thanks so much, and keep up the inspirational work! Best, Sean
Hi Sean. Thanks for the query! I’m not aware of any LC data repositories unfortunately. Regarding meta analysis - again I’m not sure. But what you could do is look at the long covid research NIHR has funded (the projects ought to be on their website) and contact any that look like they might be in the ballpark. Good luck!
Dr Manji is severely mistaken in his opinion that LC is different in that LC is multisystemic and other post-viral (post-infectious is more accurate) syndromes are not. ME/cfs is definitely multisystemic: endocrine, immunological, cardiovascular, gastro-intestinal, etc. It's sad that he's apparently missed all those patients in all his years of practice. Even though ME/cfs is not rare. Brain scans: regular MRIs don't pick abnormalities in ME/cfs. I imagine that's the same for LC. More sensitive scan apparatus like PET are necessary.
Sorry but I totally disagree with the doctor about a medic getting a sense of how serious a patient is suffering from an in person visit. Chronic Fatigue Syndrome/Fibromyalgia changed my ability to function 30 years ago. Doctors only looked at my excellent physical body and normal blood tests and declared my fine or suffering from depression. I stopped going to doctors, accepted my new disability and lived my life as best as I could knowing they were ignorant and wrong and had no help to offer me.
I am using red light therapy for post rona treatment. I was sick for 6 weeks and have a blood clot in lung. Have had red light device for 3 weeks tomorrow. Sometimes doing twice daily sessions. My symptoms are definitely clearing up. On blood thinners for clot. But brain fog and fatigue are not debilitating as they were in beginning. Shortness of breath comes and goes, but have not needed supplemental oxygen in about 4 days. I am using a joovv device my sister gave me when she learned I was sick. Also sleeping better. Last night first time I slept straight 7 hours without waking several times and not being able to get back to sleep.
I have long covid too. I have insomnia, headache, tremors inside and outside. Easy to get tired. Any suggestions? Sometimes I feel I don’t want to live this anymore.
Hello I have been suffering from insomnia, neck pain, headaches, chostcondritis, horrible body tremors inside and outside and internal vibrations, chest pain, nerve pain, back pain. I know exactly how you feel I've been going through this since March 2020. I started to become very depressed and suicidal because people don't know how hard it is to deal with this every single day, I haven't been able to go back to work yet. I want you to know that you are stronger than you know. You survived this thing for a reason, you are a survivor and you are going to make it and get better. Think positive thoughts, speak positive things like " everyday I am improving" " I shall recover" " I am healed in Jesus name" Pray, sing, talk to God, accept Jesus as your lord and savior, try not to focus on the pains or tremors. Speak to the pain and the tremors tell it to leave your body, it has no place in your body. I've been taking turkey tail mushroom, AHCC and Lactoferrin, Iron (Pure ENCAPSULATIONS OPTIFERIN-C) magnesium and B vitamins (in particular B6, B1, B12, Folate) they seem to help and takes the tremor away for that day. I notice when I don't take these supplements the tremors come back. I believe the tremor is caused by the nervous system, the insomnia is caused by the long haul covid deleting serotonin so drink green tea in the daytime and take Tumeric and Melatonin at night they all increase serotonin levels. You are going to be ok, so many of us going through the same thing. I will say a prayer for you :-). You can always message me if you are feeling down. Take care
Insomnia is one symptom or rather a suffering after Covid hard to get rid of. Though he said Nothing New here it's a reminder how challenging neuro symptoms are & how one needs a lot of mental strength to overcome them. Good Luck to all sufferers.
You need potassium for deep sleep. Other vitamins & minerals that help with sleep includes magnesium, calcium, iron, copper and zinc. If you are deficient on any of these the sleep will suffer. I would think that maybe Covid uses up lots of nutrients in the body? Never had C but I do get sleep issues because of autism + Ehlers Danlos so I have been experimenting on myself for a few years. Like for awhile there dark chocolate would actually help me sleep (which was just crazy) but it was because I was low on copper! Now I am not low anymore so I can't eat it - chocolate - as it gives me insomnia due to the caffeine. Pomegranates and figs also are high in copper. I ate a bunch of those so that is how I fixed my copper deficiency. One also has to realize that some people need a lot more than the regular recommended amounts of some nutrients. Like if one is an athlete you need a lot more magnesium, for example. So your body burns it up for your exercise and then you don't have any left for sleep! You may also need to increase B1 as that is the stress vitamin. But your whole body uses B1 for many processes. If you do not have enough, for example, your gut may not work too good. Hope this might help.
I am having this new cluster of neurological symptoms you describe on an episodic basis- I have found it waxes and wanes with my diet. I have had mild bilateral function loss in arms and legs (esp right side) and new white matter hyperintensities on brain mri. If I eat vegetarian I bring on an episode. If I eat red meat with nearly every meal I can put it in “remission.” This indicates to me that it is an autoimmune issue. I have to wait to see an autoimmune neurology specialist. Episodes are extremely disabling. I live alone and needed to by a cane to steady myself and a life monitoring system in case I fall at home alone. I am only 58, eat organic food, no drugs, no alcohol but had ME/CFS, Multiple Chemical Sensitivity, and POTS before developing Long Covid and MCAS. These neurological episodes (no headaches, by the way, only neck pain) coincidentally started after the second Pfizer shot, but the shots improved the Long Covid mild viral episodes temporarily, until I had exposure to what I believe was the delta variant. Now I have those again also, with severe daytime and night time sleepiness for days after very small exposures.
I am shocked and disappointed that this neurologist did not speak at all about biopsies for autoimmune small fiber neuropathy, which is increasingly being diagnosed in long covid patients by neurologists as the culprit behind our dysautonomia and other common symptoms, and which has indicated treatments such as IVIG. I highly recommend seeking out an interview with Dr. Oaklander or Dr. Systrom, both in Boston, or with anyone else who these two recommend interviewing. Thank you so much Gez and Asad for everything that you do to empower our patient community with information!!!
10 months of being disabled from long Covid I got relief after getting the Pfizer vaccine. It took about a month after my second shot to get where I could start slowly doing cardio. I started feeling better after the first shot and only got better as time went on. I think most of my issues now are due to deconditioning from being inactive for a year.
Thank you for this information. Had Covid in November 2020 and couldn't do anything for like five months. I had this extrem brain fog where I couldn't remember my way home or just calculate. It seemed so difficult. I want to get vaccinated and your comment is really encouraging.
@@nikitakemm4861 be aware also that some Long Covid patients (last I read was about 20%) are worsening after the vaccine. Just over 50% improved but many didn’t maintain the improvement. and the rest had no change. So the risks vs benefits aren’t that great. If you are vaccinating for immunity, that’s a benefit, however if you’ve already had Covid you will have pretty good immunity against new infection already. So It’s a catch 22 situation.
@@brobinson8614 I belong to a long covid support slack channel with thousands of people going through this. I have only seen one person post they got worse after the J&J vaccine. Most that got vaccinated did get better to varying degrees. I have yet to see a single person post they felt better then went back to feeling bad again.
Hi man. I didn’t hear in the video or any other videos this being addressed, but is there any reliable studies on abdomen or diaphragm damage? Abdomen tightness/pain is something I’ve been struggling with for a long time
Thank you so much for valuable info. I am a keen listener. May I ask that you all keep your PC away from the movement of your body, dr Asad Khan's frame or video is moving too much. My eyes are sensitive to the shaking of the screen and since covid I became so light sensitive that I changed my kitchen light bulbs to bronse. Again your work is very helpful and the advice I got out of this is meaningful. I learned about "Pacing", sublements, underlying illness I have and to take that into account and to know that the professional health care sector are teaming up to help us. Physios, thank you too.
This was so interesting and informative, and not just for people with Long Covid. In fact, I’ve sent the link to a couple of friends who suffer with some of the issues discussed here.
I had COVID-19 back on July 4 2020. I was gradually getting better. Breathing issues, head pressure, tiredness, joints pain and fast heart palpitations. Finally June 2021 came by and was feeling way better but I took the 2nd vaccine of moderna and I went back to same issue and somewhat worse in some of areas. Now I have needle type of pain around where the heart is located, joints pain, tiredness, breathing issues, inflammation, blurry vision and forget stuff. I need help, although the doctor is doing her best she can’t explain my reaction after getting 2nd vaccine. Can you please do a survey of people with long haul issues over a year and gotten new or worsen issues? Please I need to know at least I’m not crazy and it’s just not me. By the way I’m from South Texas.
There are lots of people in your situation - I would say it’s the norm! I’ve got a new survey I’ll be talking about soon on the channel about those who are 18 months in.
You are not crazy, this happened to me too after I took the moderma vaccine.i was getting better after 14 months. Yet all my symptoms got worse. It's been 5 months and still not better.
The great American poisoning , this is only the beginning ,, send in the experts please 🙏 😀 millions are dying 😢 now is not the time for deceptive and frivolous treatment, like this DOC . HE IS A REAL ! WHO TAKES THE TIME TO TEACH HIS PEOPLE 😎👍
Glad to have found this. It was very informative. I was waiting to hear about fatigue (which is what I am suffering from at the moment) but it wasn't covered. Is there another video where fatigue in general or Post Exertional Malaise (PEM) in specific? I'm very athletic and used to be able to work out 5 days a week (sometimes twice a day due to courses overlapping) but am finding that I can only do two or three work-outs (at a more moderate intensity) and then I begin feeling weak, tiered and eventually get febrile pains. I'm four weeks post covid-negative test and was both vaccinated and boostered and had high levels of Vitamin D via supplements. I'm already on a course of B-vitamins (MTHFTR gene mutation) and lots of Omega 3 so , at least I've had, no headaches or confusion. Thanks you and Ciao from Italy! L
@@felipejotz7054 I found the info in two other videos on this channel very helpful. They are tthe "live q&a on the role of MCAS on long covid" and "Here's how to treat long covid". I first tried their recommended diet changes (no tea was really hard) and the reccomended supplement protocol as I was already taking lower doses of them and just had to add Quercetin. I immediately started feeling a little more energy but still destroyed after workouts. I then tried over-the counter anti-histsmine and that was the game chsnger -instead of being drowsy it energized me and I could do 80% of what I used to. I went to my dr. as I worried taking it longer than recommended and he gave me another anti-histamine that did not have tachycardia risk. About two weeks later the anti-histamine started to make me drowsy so I skipped a dose and worked out and was back to 90%. Am currently weaning off the supplement protocol and re-introducing foods they recommended avoiding. Other than the heat I feel almost back to normal and am tackling the GI issues that were exacerbated after COVID. Watch those videos, take notes and I hope something they will help you as it did me. Hang in there, it WILL get better! 🤗 Ciao, L
@@LauraPazzaglia thank you very much 🙏🏻🙏🏻. Really happy for your recovery, it also gives everyone lots of hope. Im already heading to a low histamine diet ( usually Im on keto ) and taking 10+ supplements. Started with benadryl before bed and My sleep is really good. Only need to introduce exercise and be able to have some beer and coffee. All the best
Recent decades: Post viral fatigue/CFS/ME is all mental, no one cares Long Covid sufferers: OMG whats happening to me I can't move CFS/ME sufferers: Welcome to the party pal!!
@@Conflicteddd That's why we (ME patients) call ourselves 'the Millions Missing'. We're there, but invisible. In the UK alone there are over 250.000. That's double the people with MS.
I have everyone beat...I've had me/cfs for 35 yrs.(severe)I'm 62 now.what a hellish frickin nightmare.to all the docs out there that shunned me and discredited me, some even laughed at me...I hope these docs get it one day. Then they will suffer the pain, pain so severe you want to end your life.this is a crime and those responsible, that call themselves doctors, should be held accountable!!
Because Long Covid is a different disease from Acute Covid. The antibodies only help you to recover from Acute Covid not clearing out the viral debris from Long Covid. See the interview with Dr Patterson on this channel.
Thanks yet again for this superb video .. You've kept me going these last eight months with all this new information !!. Since having an iron infusion six weeks ago , my chronic fatigue is definitely lifting slowly . I can think better and the muscle aches have reduced . My ferritin stores were so severely depleted after fighting covid and this transfusion should now help to raise them . I didn't realise that iron deficiency / B12 depletion was responsible for so many long covid type symptoms . Poor oxygen levels in the blood can cause all sorts of problems ( brain fog , dizziness , memory issues , myalgia , severe fatigue ) caused by iron deficiency I may still need vitamin b12 injections too as I have pins and needles still. The multi systemic nature of this illness makes it so difficult to explain to GPs in a ten minute phone consultation! . Face to face is vital but almost impossible. I have had the most benefit from meeting an iron specialist/ consultant face to face and had the opportunity to join up the dots as to why I've had up to twenty different symptoms going on at once . Thanks so much again for all your hard work and dedication .
Since the transfusion muscle aches , brainfog and dizziness have all improved . I guess one way of aiding recovery is to readdress the deficit in essential minerals and vitamins . The very low iron was affecting my nervous system as I didn't have enough oxygen in my blood. I couldn't make up the deficit with tablets as I have issues absorbing now.
Two years in, still issues with taste and smell and internal tremors are just not stopping. I had the brain scan and my brain is healthy. Any updates as far as treatment for the tremors?….. and no, I did not take the jab, nor would I ever.
Soursop tea And strangely i had such bad cramps and all it thought how? Felt like hours of dance training. I was one decades ago. 😂😂 I thought i am being poisened by my own system and tried charcoal. And it works! It is ofcourse not the source elimination but a symptom destroyer. Works
I had this head pressure constantly for 3 months: dizzying, throbbing, vertigo, fatigue, pins and needles, bodily pains, panic attacks, you name it!! Just a miserable existence. Host Defense Lions Mane turned everything around!! I can’t say enough about this supplement! Wow! In addition to, a blend of coconut water, turmeric, garlic and ginger. Reiki is also phenomenal. And, quartz crystal directly on the head. Blessings.
Happy for you!! I eventually found a regimen very similar to yours with restorative yoga in lieu of Reiki (didn't work) My yoga teacher had to come to my home, as I was too tired and depressed after living with this for three years. Within weeks, I got feeling back into my fingers and my post-covid ulcerative colitis went into remission. Also a Turkey Tail along with Lion's Mane combo made a major difference. Currently working with a psychiatrist to see if a "smart" drug would alleviate my daytime narcolepsy. Hope you have continued to recover.
I would like to ask him about metabolic syndrome playing a role in this. What about insulin resistance and inflammation? If someone gets covid and has more inflammation couldn’t that be a issue. Can diet and intermittent fasting help with getting rid of inflammation and help with headaches.
While I’m glad that this Neurologist gave his time to talk long covid, I’m so disappointed that the only remedy he has is to address managing symptoms rather than dealing with the underlying causes within the neurological system. No one wants to hear that they have to manage their symptoms for the rest of their lives when they were fully functional before contracting Covid. What about Hyperbaric oxygen to reawaken the neurons causing the neurological symptoms?
@@CynthiaSueLarson How much of these supplements do you take and how often? What form do they come in- pill or through food intake? Who recommended them?
@@RK-tp5np I started my own 90 day minimum exertion/stress/heat protocol, based on the MCAS, NAD+ cycle, and viral debris theories, as mentioned on this Run-DMC channel in numerous interviews--and from reading medical research papers. During the 90 days, I refrained from the (minimal) exertion I had been doing, and made sure to go to bed by 10pm daily or take a nap the next day if I failed that; stay hydrated every day; tend to good nutrition; pace myself with rests any time I did have to do some exertion or felt some kind of stress. The last bit was the supplements, and that's where I realized that many of the MCAS recommended supplements have strong anti-oxidant properties (such as Quercetin and Resveratrol)--so, I "shopped the anti-oxidant/longevity supplement shelves" (imaginary, since I know of no such shelves), and looked to find ant-oxidant supplements known to help treat my groupings of symptoms. So, for the neuropathies, I found the Alpha Lipoic Acid and Hyaluronic Acid, and I obtained the purest versions of these (since I'm taking so many supplements) and take the minimum amount. My theory was that if my body receives the additional building blocks that are depleted, I'll just take a little bit, and see how that goes. What happened next was that after 60 days of the 90 day program, I felt fantastic. After 90 days, I am returning to all full exercise and I've been relapse free for about many months.
I likely have had covid. I felt like it sucks all my dopamine and part of my serotonine out of my body. I had absolutely no motivation and was incapable of feeling joyce. Am I the only one?
Can dizziness ..hangover???..(feeling) come from damage to occulomotor nerve? The immune genetic idea sounds very interesting... im post covid, not quite a long hauler..2 more weeks and I get the undesirable tag...with the neurological hangover feeling that comes and goes at will.
THANK YOU FOR THE EXCELLENT INFORMATION.I HAD COVID 19,THREE YEARS AGO FOR 5 WEEKS AND ALMOST DIED. I’M STILL HAVING LONG COVID DAY AFTER DAY.ALSO I HAD HEART FAILURE 4 MONTHS AGO,AND MY CARDIOLOGIST FEELS THAT IT WAS CAUSED BY THE COVID WEAKENING MY HEART.
My neuropathy , despite that I am diabetic T2, started while suffering from COVID-19 and my last vaccine of AstraZeneca.Already five months suffering numbness and tickling in my legs.
Are any of us sleeping properly? Managing sleep around a long covid migraine is like managing deck furniture on a sinking ship ♥️ With peace and love, the only thing that helps the migraine is Botox Nothing helps the brain fog, it’s too bad it’s such a vague phrase, when it affects us so profoundly Good stuff as always, Khan slaying all day as usual
My allergist/immunologist prescribed me Xolair for uncontrolled hives. I am being treated for MCAS (thank you because I first learned about this on your channel) with oral meds too. After starting Xolair all my symptoms subsided. I was having extreme tachycardia, fatigue and random breathlessness even on the oral meds. Now I’m back to normal….YAY I’m wondering how Xolair which binds to IgE can help with Covid because that would be IgG. So confused 🤔
I think long symptoms are like the body reaction to the virus. It seem like a allergic reaction. I had covid on Jan 3,2022. My symptoms was mild but a week later I started having high anxiety, my blood pressure went up but went back down, I had muscle spasms, I had a big spasm under my chest, my body felt tight, I felt tired & kept waking up in the middle of the night feeling like my leg was numb.
Just found this, i had covid in December 2021, i have had lots of symptoms, such as a strange tingling in face, arms and legs, massive daily headaches, tiredness, brain fog, strange feeling in my spine, dizziness, falling to the side, weaknessin left side arm, leg and pains in feet, my neurologist who i saw 2 months ago, said he has no idea whats going on! Sending me for nerve testing. I really need some help as my symptoms are getting worse each week, where can i go for more help??
I suffer like your symptoms almost a year ago from my injury. I wish you and me recovery. Do you have pain in the leg, thigh and foot or swelling? And do you have capillaries in the thigh?
I just had Covid man it was intense migraine like what the hell. My head felt like it was going to explode and then dizziness. What I found helped me was a little red wine it relaxed me and I slept well. 😊😊
Hi every 1 here. I got COVID IN JULY and i start getting better. In September i gt symptoms for covid again and i tested negative. Until i run some test to find out im having infection on the lungs caused by covid. Coughing and flu plus feeling coldness was the main symptoms. I was serious sick until i get better bt im loosing weights every day, 😫 if im breathing in is lik in having a hole on my 🫁 lungs. If i drink cold staff i will get sick. If i go near cold temperature room i get sick. Refer me any medication that will help me pls. I can feel the covid pain in my backbone every time. Help
Hi Gez , Hope you are well. Its been 11 months I am suffering from long covid. My symptoms are mainly skin rashes, gastrointestinal symptoms and chest pain. Can you please suggest what should I do. I am from India and doctors are less aware of the disease. Will the steroid therapy help?
Steroids will improve your symptoms but you can’t be on them long term. I’d really recommend a low histamine diet (Google it) but it’s going to be a shock to what you’re used to - very difficult with Indian food! Take some antihistamines too. Best of luck.
glutathione helped me with chest pressure (inflammation was the cause of mine) one I used was by Research Nutritionals - Tri-Fortify Orange - worth the $.
I had long covid back in 2020 for a month.... this year a few months ago, i started having covid like symptoms.. had tons of covid tests.. no covid.. I also had H.pylori not long ago.. was treated for it... but i was dealing with ALL the symptoms... now i keep having pressure.. and sharp pains in my head.. and i keep being dizzy.. staying dizzy.. I feel terrible.. and the doctor still doesn't know for sure what it is.. Today he guessed it was a tension headache.... muscle tension.. gave me muscle relaxers.. i hope it helps.. It's driving me insane... The doctors in the US are clueless.. Covid can stick around in the brain and show back up later.. causing issues. I'm going crazy..
In dealing with long haul COVID-19 symptoms (which seem to be managed) it's the neuro issues that are the most stubborn for this long hauler. The soles of my feet sometimes feel separate from the foot. The rashes that come and go seem to be exposed nerves. An effort to repair the mitochondria with a Keto diet and supplements seems to relieve the headaches, migraines, and diminished night vision. And, my endurance is back at it's highest level.
@@nomebear im also taking l-tyrosine 300mg, nacetyl, coq10 for the past two months but i have yet to see improvements..currently im feeling like shit, my legs and arms are very heavy and my whole body is hot like on fire. feel very weak
Thank you for another great video! I'm already looking forward to the next one. Gez, do you know if one can develop long covid more than once? I have read dozens of recovery stories, and I've been wondering how safe we are from developing long covid again. I've been thinking that because vaccines are effective at preventing serious symptoms they might also protect against long covid, but this is only my own reasoning.
Vaccines reduce your chance of catching COVID and thus long covid. I think it’s entirely possible to recover from LC, catch COVID again and develop another case of LC
@@RUNDMC1 I can confirm this has happened to me I caught a chest infection and Covid in March 2020 took Clarythromycin and Prednisolone as I am Asthmatic, felt absolutely dead for about 5 days and then developed long Covid have only really experienced the chronic fatigue and sleeping problems, very rarely had any breathing problems, no confusion or brain fog or headaches. It took 8 months up to October 20 before I slowly got back almost to normal, at the beginning some days I would get up eat breakfast and be so physically exhausted I would just have to go back to bed and sleep. In October 20 I was cutting back some overgrown blackberry in my garden when a piece sprang back slashed me across the thighs and caused a severe blood infection Orchitis for which I was prescribed Levofloxacin it was extremely effective but it upset my stomach and bowel and caused ongoing rampant diarrhoea and colitis which had to be treated with steroids, this did not finally clear until July 21. In January 21 despite taking every possible precaution I caught Covid again, I was fairly weak for about 4 days but recovered fairly quickly, my sister collapsed without warning and I managed to grab her before she hit the floor, she then tested positive, she was so ill for more than 4 weeks she did not have the strength to stand up on her own and I had to give her 24 hr care, but she came through and proudly tells everyone if it were not for the way I cared for her and encouraged her to drink Complan when she didn't want to eat she would not be here. Shortly after coming off the steroids in July my long Covid symptoms returned again and have got a lot worse, I just have constant fatigue and very rarely memory loss. I am 79 years of age have an excellent memory and still very alert. Up until I caught Covid the first time in March 20. I was very fit for my age, now I feel as though my whole life is in limbo. I guess it is possible my Long Covid never went away completely and was just re triggered by catching Covid for the second time. I heve not been vaccinated because I have had Pulmonary blood clots in the past not because I am anti vacc, but even if I do recover from Long Covid I will still not have the jab. If you type Christy Risinger MD in YT and watch her Video Hope for Covid Long-Haulers she has had considerable success treating some of her patients with a drug which is being derrogated in some sections of the media, I hope to try this medication and if I can not get a script from my GP, then I shall resort to the horse paste version in it's purest form, I will keep you updated.
@@RUNDMC1 I did not catch covid but became sick after the vaccine. 3 months and counting. Doctors are now addressing me to LC clinic as symptoms are overlapping. Incredible what's happening. Lot of people out there in my situation.
Hoi, I suffer more from the other symptons : PAIN PAIN PAIN in my butt and feet (toes) and the disability that comes from that. I cannot sit, drive a car, walk 100 metres. It feels like a chainsaw cutting in my butt and feet, as if someone is breaking my toes. Scansnelheid, MRI, bloed.. all okay. I'M NOT OKAY!!!!! (21/10/2020 infected and not werking since) Light to you alk, Tanja
@@patticakes74 How did you come to this conclusion? I looked it up, it codes close, but I can't remember having taken AB? Are you suffering from this? Hope to read from you
I thought I was the only one having this horrible pain in my butt and toes, you are not alone, this thing causes so many bizarre pains and doctors treat you like your crazy after all the test come back normal. Because I look normal people have no idea the pains and suffering this has caused and can't understand why I can't go back to work. I can't imagine working with all these random sharp aching pains. I've been suffering since March 2020. I'm in pain right now as I'm messaging you, shoulder, neck, back, chest pain. Praying things will improve. Everyday just speak to the pain tell it to leave, it has no place in your body, I talk to it and tell it I refuse it and it has to flee and sometimes it actually works. The mind is a powerful thing, also prayer and speaking positive over your situation. When I feel the toe pain and horrible pain in my big toe I take a tablespoon of cherry syrup it really helps, it reduces inflammation/gout which causes the toe pain. I haven't figured out what will help the sharp pains in my butt but I suspect it's nerve pain so maybe take herbs that help that.
I have high inflammation numbers and high cytoklines. I have had both tested. Doctors tend to just ignore the these conditions. I have never had covid but rather late stage lyme and ME/CFS. In my layman's brain, I think these conditions are contributing to me staying sick.
Most conditions are driven by systemic inflammation, systemic inflammation is largely driven by poor diet. Poor diet is almost always overlooked in these discussions.
Long COVID is a whole other ballgame. Yes proper diet will create the right environment for healing but in this case it will not bring about healing. I don’t know anyone in my circle of family & friends that took better care of themselves and it has destroyed my health despite this.
It's like pressure type headace not painfull,heavy head sometimes tightness of scalp muscles , sensitivity to light and sound, parasomia,still get high pressure in my nose and ear also ....it's been 6 months now ,due to this failed in CA exam ,lost my career and life ,I am only 19😭 ....i can able to feel heartbeat in my head also ... really hated this life ...if it won't fade away then I had no any other option than suicide!!thank u
I hate that you are going through this. I'm fighting really hard to stay positive through this. Between the fatigue and parosmia it can make life pretty isolating. I hope doctors can figure this out and give us hope.
I know exactly how you feel I became very depressed suicidal even but you have to hold on, we are going to improve, say everyday even if you are in pain, say I'm improving day by day and believe it when you say it, I started doing this and it is helping, I know the pressure pain you are describing I just had it last night and the weird pain in bone of my nose and pressure in my forehead, ears and ear aches pains and tinnitus that comes and goes. I noticed that taking NAC 500mg, iron 28mg, folate 400mcg and B6/B12 and magnesium(Health by principle) 100mg seems to help make that ear/head pressure feeling go away at least for that day when I take it. Selenium 200mg 1 pill helps take away the neck pain/muscle tightness around the head/neck. The heartbeat you feel in your head I've got that too a few times, it's blood circulation rush because it's not circulating properly and the heart is pumping harder to make up for it so take less than half a teaspoon of cayenne pepper under your tongue with water it will widen the blood vessels and help circulation. I haven't been able to work a job because of all my pain and suffering but I'm not losing hope, I'm going to get better and so will you! I'm on IG as deandraavery if you ever want to chat just dm me or you can call me I'll give you my phone number. Just hold on ok we will get through this, we are going to beat this! Praying for us both!
@@deandraavery thanks for your words but I am getting well day by day .I hope it will fade away ....🙏 I am preparing for my ug and professional exams now !! But sometimes I hate my life ! I am from India (kerala)
On top of fibromyalgia I deal with long covid symptoms but I stay very consistent with diet nutrition herbal supplements and other supplements - its a daily uphill battle 👆🏽👆🏽👆🏽
have tried Alpha GPC - it has helped with my vision focus -brain fog and fatigue -2 1/2 years of hell Was supplementing earlier with natto - nac -biotin - and serapetase - When I added the alpha gpc it was almost hard to believe the results - steroids did not help - antihitamines helped the swollen sinuses and blood shot weepy eyes
I have long Covid since June 1st 1022 I’m so tries an sore everyday and they did take 2 X-rays now for some reason I got copd I pray that does go away soon
Hi, thanks a lot for all your work and input. We miss something like you videos in Germany. Are you interested to give us (Long COVID Germany - Group of Long COVID patients) some advice to set up content like yours? Thanks again and enjoy your evening! Joachim
Hi Joachim - regarding setting up content like this, unfortunately it just requires a lot of work! If you’ve got any specific questions then email me at dm20abn@herts.ac.uk and I’d be very happy to help in any way I can. I believe you already have a support group in Germany? I can’t remember it’s name though.
@@RUNDMC1 Hi, we are the „Long COVID Deutschland - Group“. We are people with LongCovid and we would like to push our „handicap“ with LongCovid And how to handle. I send you later a message. Thanks
@@RUNDMC1 I don't know anyone in the UK with long covid that's been tested they only test if macrocytosis is present. Long covid shares virtually all the same symptoms as B12 D. There are studies going on with pernicious anaemia society UK.
Why do you hear of all these specialists that have a lot to do with long covid in UK but nearly all in London are there any in the North West. As I have been offered no help at all had long covid since 2021
Headache versus head pressure
I appreciate all the doctors out there trying to help. The “headache” that long Covid sufferers experience is not the run-of-the-mill migraine headache. It is described as a long lasting pressure headache which is exacerbated by activity and exertion. Usually the head pressure increases the next day following the particular activity/exercise. Headache medicine such as aspirin or ibuprofen does not reduce this “head pressure“. It is not a headache that you can treat with migraine medication. This is an immunological issue which behaves like all long Covid. The pattern is very predictable. Do some work/exercise and pay the price tomorrow. The only thing that can help these patients is antihistamine, gluten free diet, or anything else you can do to reduce immune response. Simply treating the symptom is fruitless. As someone with long Covid, I take offense to anyone who continuously says the problem might not be Covid. Anyone who started having these symptoms the same week they got Covid, knows what it is.
So true! The only thing that helped my head pressure was anti histamines, low histamine, clean diet. Nothing else helped!
you need to clear the dead viral debris out of your system,drink the miracle mineral solution in less than 12 hours you will see why they call it the miracle mineral solution the cost of the miracle 10.53 uk pounds ,all the symptoms vanish and the energy levels rise
I agree for all younger patients certainly and i suspect many older, these symptoms all came at the the same time and never leave. One day you are fine, the next few years you are sick as a dog. Lazy and short-sighted to say "maybe its just other things." Of course it isn't, as any one with long covid will tell you. They are not even bothering to check how many people have the condition. The health service has done NOTHING apart from the most basic tests which obviously will show nothing and even those you have to fight like mad to get... in a few months or half a years time.... It really is a disgrace
Scott, I can’t believe that you described exactly how my head feels. Thanks. What antihistamine helps and is it temporary relief?
Scott was the relief temporary ? also did you face any sleep issues and if yes how did you resolve them ?
Thanks for this Gez and Asad. I’ve had all these symptoms, as well as tremor and tinnitus. I never got a scan or LP. However, I’m pleased to report that 18 months post-infection, and 7 months into working with a fatigue / NLP coach, I am now fit and well and I’m no longer on any meds. I’ve mainly used yoga nidra, pacing, mindset exercises, chronic pain meditation, anti-inflammatories and antihistamines. There is hope fellow long-coviders. You can recover. ❤️
Hello what anti inflammatories are you using and do you have to use long term?
@@imsocheeky1220 Hi, I had colchicine for 3 months for pericarditis, and I just used ibuprofen for a few months for flu-like symptoms. My son was on naproxen for 3 months for persistent high temp and flu-like symptoms. Pacing also reduced these symptoms.
I’m not on any meds now, except multivitamins and omega 3.
Very glad to hear this!
@@boxerdogmum583 great to here. I’m allergic to ibuprofen unfortunately. Doctors just send you home smh
Thank you for naming the elephant in the COVID room: gaslighting by doctors who psychologize physical symptoms --- they do untold harm to patients and trust in the medical system.
That has been the System since the 1980's and Chronic Fatigue Syndrome, an Awful, Deceptive description. It is definitely a Post Viral Syndrome as this is. Unconscionable that after all these years some want to continue to deny, blame and refer to it as depression, mental, psychological. It is Multi System Dysfunction. Very Complex.
only a very stupid person listens to doctors,they cause ptsd in patients
@@wildhorses6817 post viral conditions are not complex i heal them ona daily basis,a dumb arsed doctor cannot heal post viral conditions,low glutathione pulling down the atp levels ,thats what keeps post viral conditions in place and they are easily healed
@Karma Consciousness i dont recomend glutathione products ,i recomend taking n acetyl cysteine and selenium for raising the glutathione ,if you have long covid all your levels will be slaughtered you need to takea complete protocol i will type it out on request,many americans have leaking gut syndrome that gets healed first with slippery elm bark
YOU ROCK!!!!!!!
First thoughts less than 5 minutes in:
* finally someone with expertise in both areas is making the connection clinically between HIV / AIDS and the Covid-19 syndrome 🤔 👍
* so GREAT to hear that large groups of health professionals have been meeting regarding long covid issues
* also so great to hear that programs have been able to get funding to help Long Covid sufferers
Thank you as always Gez!
Love & Support from Larasita 😊
I agree with the Doctor. Patients need to be SEEN face to face
Thank you so much Gez and Asad for these videos. They are truly a gift to humanity and are a huge help for long haulers.
Thanks Alexandre!
I had long covid for a year and a Chinese doctor did a bloodtest and saw I was severely deficient in copper zinc and manganese, he gave me ionic liquids and Im feeling 100% again.
where do you find that doctor...
Yes who is this doctor?
Another one bullshit Story from noone
All 3 are in Spirulina supplements
This doctor hits it out of the park. He is describing my life, and I am sure there are many that are the dame as myself.
After this is all said and done, there will be new updated protocols for patients that do not let them fall between the cracks as so many are suffering with today. There will be an understanding of the synthesis between body systems, and greater interconnections will be looked at and UNDERSTOOD.
Thank you Patricia. Wishing you the best!
well said!!!!! thank you!!! I am sitting here in tears and grateful to have 'accidentally' found my way here....I was looking for a song lol
I’m one of them, and so is my son! It’s a nightmare here! My son also has neurological and psychological problems that began at age 7 with meningoencephalitis, several severe TBIs, and now mold toxicity and Lyme. No one, including his neurologist does anything! It may be because he’s on Medicaid. If things don’t change, and his father and I are working on this after his attempted suicide a year and a half ago, his anxiety, depression, and insomnia will drive him over the edge. Our lives are on hold until something changes, and his doctors start taking this seriously. I’ve already paid out of pocket for lab tests which show high levels of mold exposure and Lyme. We both have COVID right now as well.
Everything you’ve said about this doctor is true! I took notes the entire time! I hope you’re doing well now! 🙏💕💫
I too appreciated the doctors comments, but I'm not sure how successful the approach can be. There was a global shortage of neurologists before the pandemic, and migraine treatment whilst it has been advancing amazingly fast in terms of treatments is limited by both lack of money and lack of neurologists pretty much everywhere. We don't know who responds to which migraine drugs, I've already been through all those mentions and am waiting on Botox as a preventative, but it took 20 months between being struck with a weird 3 month episode of vertigo at the start of the pandemic (no Covid-19 obvious for me, fatigue, worsening of migraine, addition of tinnitus and some brain stem associated symptoms coming and going) till first receiving a neurological examination of any sort (indeed any meaningful in person medical examination for these symptoms - bizarrely I did have an operation that was postponed when non-essential surgery was cancelled). Whilst the NHS could choose to throw money and more intelligent approaches (getting out of the patent bind on modern migraine drugs being an obvious approach to reducing costs and bringing more effective treatments forward rather than have them wandering through blood pressure drugs, antidepressants, and beta-blockers for 9 months to a year, the modern migraine drugs are effective with great side effect profiles but also unreasonably expensive ), I simply don't see any meaningful way for say Long COVID-19 patients with migraine to all see a neurologist without crushing the existing system. The only scale-able approach we can do short term is to push the knowledge out to GPs.
Locally around Exeter the headache treatment is through a clinic with a GP with a special interest, who in their turn encourages GPs to work through the NICE guidance before referral. The whole approach is designed to minimise the call on those with headache specialism or neurological specialism, because there was already more migraine than the system could cope with. I suspect there is a lot of undiagnosed & untreated migraine, especially menstrual migraines, which again could be found and treated by GPs with the right training/information. But a lot of information and training is thrown towards GPs for precisely these reasons in other bits of the NHS.
Me too and yet I have not seen a GP in at least ten years. so why am I left to suffer. ??
It’s such a shame that some
GP’s are still not on board with the long Covid. Many discount the ongoing symptoms. Also it’s a
Post code lottery for treatment!! U might be lucky if u live in a big city to have access to a long Covid clinic, but if you live elsewhere you’re very limited in most areas, just like most menopause clinics or cancer treatments. My battle with dizziness and migraine and fatigue continues to haunt me. But I’m a positive it is improving slowly. Life changing for so many . A big hug to all still suffering ❤️
Glad to hear you are improving, even if it’s slow
your weak immune system cant clear the dead viral debris out of your system,its that whats causing all the problems,if you drink the miracle mineral solution in less than 12 hours you will see why they call it the miracle mineral solution it clears all the dead viral debris debris out of the system the symptoms vanish and the energy levels rise ,it will do this for all post viral conditions the cost of the miracle 10.53 uk pounds
Finally someone finding answers for long covid, I was hopeless and nearly started to believe what my GPs told me: “it is anxiety”
I had a severe allergic reaction in March 2021 and my dr too has chalked it up to just anxiety. I’ve never had allergies before. It’s very very frustrating! Having all the same symptoms of long Covid. In my search I came across mcas so I had a consult with a specialist and since starting h1 and h2 blockers it’s helped substantially. I’m not 100% because I’m not very good with my diet yet but it’s definitely allowed me to function again.
How are you now?
Thank goodness someone else understands. I too have been fobbed off as anxiety! I totally get how you feel.
@@tammysellars1348what kind of doctor did you see to get diagnoses
My key takeaways from this wrt the Brain Fog element.
1. We don't yet know the underlying mechanisms
2. A lot of this has been swept under the carpet (presumably in relation to the NICE fiasco with ME treatment protocols).
I'm in the queue for his clinic but have already done the tests with a colleague of his in the Neuropsychology Department at Queens.The key findings were poor memory and slow response times.
Did you end up seeing him? I'm considering going private if I don't get my referral soon enough.
My daughter is 11. She was diagnosed with long covid back in September. She went through everything that this presentation provides.
So sorry to hear this Nandini.
@@RUNDMC1 in Canada, doctors don't want to recognize long covid. It's very unfortunate
Oh my goodness that’s just horrible. Poor 11 year old. 😢
That is just not effin right.
I'm so sorry, how is your daughter doing now. We're you able to find help?
@@msmarauder37 she is healing slowly. In her 3 rd yr of LC. Long journey. But healing.
I have had long covid since April 2020, still suffering fatigue headaches and sickness. It has got better overtime but still and no where near pre covid health.
Facts. Thank you!
Have you tried to boost your NAD + etc, using Nicotinic Acid and other supplements?
@@musoseven8218 It was a long build up to tolerance, but I'm taking 2,000 mg Niacin daily. A strict Keto diet free of histamine foods has helped.
Wishing you strength and healing. It’s is rough road for sure. One year ago this month my long haul battle began. I hope we see improvement over time with eventual return to health. Day by day. Sending positive energy your way!
@@nomebear how are you doing now?
Worst is insomnia and poor sleep.
Are you taking anything for your insomnia?
Sit in the sun when you wake in the morning for 20 minutes and try to get a good light therapy device and use it for 30 minutes to an hour within the first 2 3 hours of you waking up and avoid blue light and blue light bulbs after dark
Long haul Lyme has attacked my nervous system and seems very similar to Covid Long haul symptoms. I am hopeful that we will benefit too from all the attention on Covid. The suffering is intense and goes on for years with Lyme. I am hopeful this is not the case for Covid sufferers. I believe science will help us. I hope it is soon.
The only reason this popped on my home feed was because i was watching your DeLorean review yesterday, which i enjoyed very much. I recently caught covid, was in quarantine for the past 14 days, and as i recovered thru these last couple days (thankfully wasn’t hospitalized )ive experienced these symptoms like brain fog, headache, light sensitivity, dizziness, drowsiness. This been more informative than anything thats been put out there. Thank you💪🏽
Best of luck with your recovery - top tip - don’t push it too quickly with returns to exercise or work. You don’t want COVID to become Long Covid and that is often the trigger!
Glad you enjoyed the delorean film!
@@RUNDMC1 Thank you Gez....
Brilliant. Having covid March 2020 and long covid sine June 2020, I'm still struggling. If I was asked to attend for scans, bloods, nerve testing, lumber and genetics, I'd book a taxi now to attend.
drink the miracle mineral solution in less than 12 hours it ends long covid ,all the symptoms vanish the cost of the miracle 10.53 uk pounds,theres no need for anyone to suffer
Me too
@@Beekind799 what is the miracle cure ?
@@garethcrf do some research jim humbles church in america sells the mms if you live in the uk i can say where to get it the cost 10.53 uk pounds i see the miracle mineral solution healing long covid every day of the week,all the pain all the misery all ended with a simple drink
@@Beekind799 where in the UK do we get it and what is it?
Thank you for this video. You have been such a source of support and real-time information to help with decision making during this pandemic. I appreciate your efforts and many thx to the good doctor who shared his clinical views and compassion today. Great content. Wishing you all continued strength and safety.
Thank you Lisa!
July 2021 was a full month long headache. Like a wedge of wood inside my brain cleaving it raggedly pressing on the back of my right eyeball. Never relenting ebbing and surging. Stopped eating again, drank water, rest... determined that that amount of pain for so long was irrational so I converted the pain into a permanent acid trip. It is way better but now I'm entering my second month of tripping balls and every one around me is tired of it... but I'm fine I like it. I can go back to feeling pain if it makes others more happy. A co worker lured me into banging my head real hard on a garage door they lowered while my back was turned. That hurt and knocked me to the ground. I wasn't hurt badly but enough to be really pissed off. I controled my self and took a break. The trauma to my head reminded me of the pain from the previous month and when compared bangin my head really hard felt good because the pain didn't last forever, but an hour I was back to tripping balls in la la land joking about the slap stick nature of the incident and wonder about doing it again "just to see" head banging might be a treatment option for long covid headaches? It's a weird condition and any thing seems to work for a while then back to normal range of symptoms.
LMAO
Oh my word, he described all my symptoms apart from i didnt get the headaches thank goodness. Wish i had known all this last year. Thanks really great to find out more.
Hello did you suffer from long covid as well and are healed ?
@@imsocheeky1220 i caught it March 2020, was off work for over 3 months. I am a gardener, had to give up some customers, had to really pace myself lots of rest. I am still not as fit as i was before covid, found this season hard but i dont give up. I am riding again slowly building back up. Its been the hardest thing i have dealt with. How are you?
@@sharongibson7523 ok , glad you’re doing better! It’s rough, had in April 21’ . I’m working diligently at getting better. I’ve gotta much better but still not 100%
@@imsocheeky1220 the best advice i can give you is don't over do it and be sure to rest after exercise. Good luck.
Extremely useful for helping Anna, as she was diagnosed yesterday with post-viral migraine, as a result of probable transverse myelitis. Hugely reassuring to know Hadi Manji works with Mike Zandi who's diagnosed Anna. Hopefully, his 'migraine brain routine' protocol will help her and many other LC patients. Great work, once again, Gez!
Thank you Carol - and sorry to hear about Anna’s condition. Hope she can get some effective treatment for it!
I tested positive on the 24th of July, recovered from acute covid, but am now struggling with bad fatigue and brain fog... it's terrible 😔
So sorry to hear that Benny
Yes it is. Hang in there Benny! I been doing this for 17/18 months....its terrible, yes. I lost hope til I found Gez....keep going. And rest often!
@@kellyberry4173 I'm glad you are better. Thank you for the positive message 🙏🏻
@@RUNDMC1 thank you! And thank you for the videos, they have been a big support. 🙏🏻
I had terrible brain fog. Acupuncture. Specifically the points behind the ears on the vagus nerve seem to have cleared it completely after a few sessions.
Hi Gez. Trust you are doing well !! I am in my 11th month since COVID, and of late I am feeling so much better. Your videos gave hope during my worst phase & I cant thank you enough for ur contribution to the LC community. I do have bad days once in a while & some bad moments in a day, but I tend to think about one of your comments on the comment section of one of ur youtube video's - " if you give up it means you have let the frickin virus win ", and then I tend to not dwell over those bad periods :- )
Btw how are you doing of late ? Are you back to exercising ? Still continuing with the stack & supplements ?
Hey buddy. Exactly right with the attitude!
Not exercising yet but still on the stack - bad things happen when I try to come off it!
Fascinating video. I'll forward this to my GP, who has a deep interest in this subject (unlike like the other GPs in my surgery, who just use Google, it would appear.)
His plan for investigation is so inspiring and helpful!
I so wish we could go back to face to face gp appointments.
Thank you for these talks! They are greatly appreciated
Thanks Anthony!
How can we find a neurologist that treats long Covid? Mine knows nothing about Long Covid
FYI I got rid of headaches migraines with xyzal at night just half tab! Plus cut out gluten and all natural diet! I had them daily! I feel long covid brought on MCAS high histamine🤷🏻♀️ magnesium Malate at night!
Thank you so much, everything you mentioned I have the symptoms! 🙏
Great podcast - what a knowledgeable doctor and have heard about B2 use for migraines and dysautonomia , so very excited to hear him mention this.
I've got long covid since april 2020. I started with a keto diet and lost 20 kg. Feel much better, but sporting and working (nursing) are still though. Some days I feel so fatigued . Before covid I used to be very energetic. So Iam functioning ,but afraid my old ME is gone.....
Been sick for 14 months, less nausea and headaches and milder symptoms now but nothing even near what I was before. Was a perfectly healthy 31 year old, fit, good diet, no underlying conditions. Had scans, blood work, examinations nothing found. My vision has a constant static, like a tv set with dodgy reception (or like visual snow syndrome), its been constant for 14 months. Anyone else have something similar?
I actually went to UCL neurology department and they said it was a "migraine probably"... I asked if anyone in human history had every recorded visual static constantly for over a year with and without headaches and all they could say is "its possible". They are just not spending enough time & money for this at all. This needs to be the number 1 priority of healthcare departments but instead they just brush things off and try to attach it to other known conditions, despite it clearly being "just covid" for most of us, especially the younger patients, and it most certainly will be a definitive pathology caused by the virus, not the patients that have damaged organs from severe infection, there's no mystery there, they are not long covid patients really, they are patients with severe organ damage from covid. They just don't want to spend the money and time. Easier to bury us alive like the ME/CFS sufferers
I was in a similar situation. I started taking Zinc, K2, B1and D3 as a last ditch effort. It made a huge difference. Prior to that I couldn't excercise as I would get dizzy and my heart rate would race. After two months I can now excercise and now feel much better. I seriously never thought I would ever be able to do what I am doing now. May god bless you on your healing.
@@fjb2986 Thanks for the advice and goodwill, unfortunately I have been taking all of those supplements plus many more for around 10 months and have had only slight improvements
@@funbarsolaris2822
Sorry to hear, I really hoped it would help you as it did me so I thought I would try to help you. All of our bodies are different and I will pray you find what works for you. I was pretty messed up- thought I had Parkinsons due to the tremors etc and found a way around it. Good luck and God bless😊.
The static in eyesight seems like migraine aura. Zigzag lines?? Read up on migraine aura. Many people get migraine aura without the migraine even those who never had covid.
Damage to the organ is connected to synthetic drugs use and antibiotic reactions , with steroids combined. this is called F.Q.A.D look it up on the FDA WEBSITE 🇺🇲 🤯👍
I have dizziness, tinnitus, nauseousness vertigo brain fog etc etc Thank you Thank you Thank you. I struggle with conversations too but one of my most disturbing symptoms is and I do apologise for this- my faeces is green (4 months now) I haven't heard anyone else mention this and I'm not sure if it's due to embarrassment or am I the only one 🤔
my brother was like you ,he was close to death he couldnot breathe his lips where blue i made hima drink of the miracle mineral solution in about 12 hours he was recovered walking up and down the stairs taking deep breaths the cost of the miracle 10.53 uk pounds all the nasty symptoms disappear and the immune system calms down
@@Beekind799 oh wow your poor brother. I have to say my breathing is OK Thankfully and I don't have the heart palpitations. My speech is somewhat laboured but I'm putting that down to the fatigue. It's totally crazy. I've an appointment with a gastroenterologist coming up so fingers crossed they'll be able to shine some light on the situation as for all my other symptoms - God help us all 🙏
Hey Dee - this is due to microbiome dysfunction and you’re not the only one!
@@RUNDMC1 Thank you once again Gez for helping me make sense of all this strangeness.
@dee Thompson. I suffer from the same issues as you. I did a lot of deep reading on this and my hypothesis is that covid lasts very long in the gut especially small intestines (enterocytes) and causes leaky gut syndrome, which causes viral RNA and spike protein to reach blood circulation and trigger immune responses (inflammation) or cause inflammation of vagus nerve. The result is the neurological symptoms. Greenish/yellowish stool is also an evidence of malabsorption/indigestion and again this is likely due to issues in small intestines and microbiome dysbiosis from covid.
Another great interview. So I'm coming out of a relapse. After such terrible fatigue, I now feel so wired and over-energized. It's like I've overdosed on energy drinks. I don't understand.
It's the nuerochemicals being unbalanced (up to high then down to low ,only feel "normal" when it's in the correct sweet spot) .Then add the crazy adrenaline spikes and vagus nerve issues ,means one week is different then the next (or whatever timeframe ur body is working on)
I have suspected the disease causes manic remissions to include feeling extraordinarily fit and healthy beyond normal health but one where you feel geneticly superior to others like the Master Race and equally put off by others disease prevention precautions. Revenge is sought against others who impede their illegal activities. the result is argument, fights, assault, murder, arson, mass destruction, mobs congregate claiming disease prevention protocols violate their rights... laws are unfair and they deserve better treatment than others they degrade racially.
I wonder should you have a thyroid test to rule out hyperthyroidism ?
@@theeggtimertictic1136 I've had it checked. And everything else.
Exactly the same .Then burn out .
Hi!!
My name is Sean McGowan;I have a background in mathematics and data science, and partly due to your' efforts, I have started to explore Long Covid statistics. I am wondering 2 things: 1. Whether you know of any Long Covid data repositories that I would be able to access, either public or private, that either JH or others have collected. 2. Whether you know of any researchers who are working at the intersection of Data science X Long Covid, analyzing data of any kind: biological, demographic, etc. who you might be able to put me in contact with as I begin this investigation. I am looking to deploy my skills in whatever way is most effective to help with this condition. And hopefully any findings transfer over to other latent diseases, such as Lyme or CFS!
Thanks so much, and keep up the inspirational work!
Best,
Sean
Hi Sean. Thanks for the query! I’m not aware of any LC data repositories unfortunately. Regarding meta analysis - again I’m not sure. But what you could do is look at the long covid research NIHR has funded (the projects ought to be on their website) and contact any that look like they might be in the ballpark. Good luck!
Dr Manji is severely mistaken in his opinion that LC is different in that LC is multisystemic and other post-viral (post-infectious is more accurate) syndromes are not. ME/cfs is definitely multisystemic: endocrine, immunological, cardiovascular, gastro-intestinal, etc. It's sad that he's apparently missed all those patients in all his years of practice. Even though ME/cfs is not rare.
Brain scans: regular MRIs don't pick abnormalities in ME/cfs. I imagine that's the same for LC. More sensitive scan apparatus like PET are necessary.
Also a lot of LC patients have been diagnosed with MCAS/mast cell disregulation, which is also multi system.
@@onewheelatatime2905 Indeed. And very common in ME/cfs too.
Sorry but I totally disagree with the doctor about a medic getting a sense of how serious a patient is suffering from an in person visit. Chronic Fatigue Syndrome/Fibromyalgia changed my ability to function 30 years ago. Doctors only looked at my excellent physical body and normal blood tests and declared my fine or suffering from depression. I stopped going to doctors, accepted my new disability and lived my life as best as I could knowing they were ignorant and wrong and had no help to offer me.
I think going to the doctor now could get you killed
Change your dieet.
It is an auto immune thing.
I am using red light therapy for post rona treatment. I was sick for 6 weeks and have a blood clot in lung. Have had red light device for 3 weeks tomorrow. Sometimes doing twice daily sessions. My symptoms are definitely clearing up. On blood thinners for clot. But brain fog and fatigue are not debilitating as they were in beginning. Shortness of breath comes and goes, but have not needed supplemental oxygen in about 4 days. I am using a joovv device my sister gave me when she learned I was sick. Also sleeping better. Last night first time I slept straight 7 hours without waking several times and not being able to get back to sleep.
I have long covid too. I have insomnia, headache, tremors inside and outside. Easy to get tired. Any suggestions? Sometimes I feel I don’t want to live this anymore.
Hello I have been suffering from insomnia, neck pain, headaches, chostcondritis, horrible body tremors inside and outside and internal vibrations, chest pain, nerve pain, back pain. I know exactly how you feel I've been going through this since March 2020. I started to become very depressed and suicidal because people don't know how hard it is to deal with this every single day, I haven't been able to go back to work yet. I want you to know that you are stronger than you know. You survived this thing for a reason, you are a survivor and you are going to make it and get better. Think positive thoughts, speak positive things like " everyday I am improving" " I shall recover" " I am healed in Jesus name" Pray, sing, talk to God, accept Jesus as your lord and savior, try not to focus on the pains or tremors. Speak to the pain and the tremors tell it to leave your body, it has no place in your body. I've been taking turkey tail mushroom, AHCC and Lactoferrin, Iron (Pure ENCAPSULATIONS OPTIFERIN-C) magnesium and B vitamins (in particular B6, B1, B12, Folate) they seem to help and takes the tremor away for that day. I notice when I don't take these supplements the tremors come back. I believe the tremor is caused by the nervous system, the insomnia is caused by the long haul covid deleting serotonin so drink green tea in the daytime and take Tumeric and Melatonin at night they all increase serotonin levels. You are going to be ok, so many of us going through the same thing. I will say a prayer for you :-). You can always message me if you are feeling down. Take care
@@deandraavery did ur internal tremor vibrations got Better
Dr Manji is so correct. Good man!
Why is it so hard to find a good Dr.??
Insomnia is one symptom or rather a suffering after Covid hard to get rid of.
Though he said Nothing New here it's a reminder how challenging neuro symptoms are & how one needs a lot of mental strength to overcome them. Good Luck to all sufferers.
Good luck indeed!
You need potassium for deep sleep. Other vitamins & minerals that help with sleep includes magnesium, calcium, iron, copper and zinc. If you are deficient on any of these the sleep will suffer. I would think that maybe Covid uses up lots of nutrients in the body? Never had C but I do get sleep issues because of autism + Ehlers Danlos so I have been experimenting on myself for a few years. Like for awhile there dark chocolate would actually help me sleep (which was just crazy) but it was because I was low on copper! Now I am not low anymore so I can't eat it - chocolate - as it gives me insomnia due to the caffeine. Pomegranates and figs also are high in copper. I ate a bunch of those so that is how I fixed my copper deficiency. One also has to realize that some people need a lot more than the regular recommended amounts of some nutrients. Like if one is an athlete you need a lot more magnesium, for example. So your body burns it up for your exercise and then you don't have any left for sleep! You may also need to increase B1 as that is the stress vitamin. But your whole body uses B1 for many processes. If you do not have enough, for example, your gut may not work too good. Hope this might help.
Dopo la seconda dose del vaccino io lo chiamo trattamento sanitario dopo20 giorni abbiamo trovato mio fratello steso perterra
I am having this new cluster of neurological symptoms you describe on an episodic basis- I have found it waxes and wanes with my diet. I have had mild bilateral function loss in arms and legs (esp right side) and new white matter hyperintensities on brain mri. If I eat vegetarian I bring on an episode. If I eat red meat with nearly every meal I can put it in “remission.” This indicates to me that it is an autoimmune issue. I have to wait to see an autoimmune neurology specialist. Episodes are extremely disabling. I live alone and needed to by a cane to steady myself and a life monitoring system in case I fall at home alone. I am only 58, eat organic food, no drugs, no alcohol but had ME/CFS, Multiple Chemical Sensitivity, and POTS before developing Long Covid and MCAS. These neurological episodes (no headaches, by the way, only neck pain) coincidentally started after the second Pfizer shot, but the shots improved the Long Covid mild viral episodes temporarily, until I had exposure to what I believe was the delta variant. Now I have those again also, with severe daytime and night time sleepiness for days after very small exposures.
I am shocked and disappointed that this neurologist did not speak at all about biopsies for autoimmune small fiber neuropathy, which is increasingly being diagnosed in long covid patients by neurologists as the culprit behind our dysautonomia and other common symptoms, and which has indicated treatments such as IVIG. I highly recommend seeking out an interview with Dr. Oaklander or Dr. Systrom, both in Boston, or with anyone else who these two recommend interviewing. Thank you so much Gez and Asad for everything that you do to empower our patient community with information!!!
This!
10 months of being disabled from long Covid I got relief after getting the Pfizer vaccine. It took about a month after my second shot to get where I could start slowly doing cardio. I started feeling better after the first shot and only got better as time went on. I think most of my issues now are due to deconditioning from being inactive for a year.
Thank you for this information. Had Covid in November 2020 and couldn't do anything for like five months. I had this extrem brain fog where I couldn't remember my way home or just calculate. It seemed so difficult. I want to get vaccinated and your comment is really encouraging.
@@nikitakemm4861 be aware also that some Long Covid patients (last I read was about 20%) are worsening after the vaccine. Just over 50% improved but many didn’t maintain the improvement. and the rest had no change. So the risks vs benefits aren’t that great. If you are vaccinating for immunity, that’s a benefit, however if you’ve already had Covid you will have pretty good immunity against new infection already. So It’s a catch 22 situation.
@@brobinson8614 I belong to a long covid support slack channel with thousands of people going through this. I have only seen one person post they got worse after the J&J vaccine. Most that got vaccinated did get better to varying degrees. I have yet to see a single person post they felt better then went back to feeling bad again.
LOL, please forgive me! You're not a bot! All the best, and I dearly hope you make a full recovery.
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Hi man. I didn’t hear in the video or any other videos this being addressed, but is there any reliable studies on abdomen or diaphragm damage? Abdomen tightness/pain is something I’ve been struggling with for a long time
I’m not aware of any studies related to this
Covid disrupts your gut micro biome. I deal with digestive issues but have change to anti inflammatory diet and herbs
see my post ok...serotonin in the gut...be well
Thank you very informative 👍.
Wish the doctor would have talked about the treatments for the numbness and tingling. Has anyone from relief from neuropathy?
I believe the spoke in another video about Coq10 use for that? Perhaps look into that! 🙂
@@mariafallerfit I’ve actually have been taking coq10 for years before Covid.
Alpha lipoic acid may help there’s some sound frequencies too
@@DinaParmar1 what do you mean by sound frequencies?
@@splathub look at rife sounds for neuropathy on TH-cam it should help
Thank you so much for valuable info. I am a keen listener. May I ask that you all keep your PC away from the movement of your body, dr Asad Khan's frame or video is moving too much. My eyes are sensitive to the shaking of the screen and since covid I became so light sensitive that I changed my kitchen light bulbs to bronse. Again your work is very helpful and the advice I got out of this is meaningful. I learned about "Pacing", sublements, underlying illness I have and to take that into account and to know that the professional health care sector are teaming up to help us. Physios, thank you too.
Thanks G-man and Dr K. Hope you’re both well.
Thanks Edward!
This was so interesting and informative, and not just for people with Long Covid. In fact, I’ve sent the link to a couple of friends who suffer with some of the issues discussed here.
Thank you Kay!
I had COVID-19 back on July 4 2020. I was gradually getting better. Breathing issues, head pressure, tiredness, joints pain and fast heart palpitations. Finally June 2021 came by and was feeling way better but I took the 2nd vaccine of moderna and I went back to same issue and somewhat worse in some of areas. Now I have needle type of pain around where the heart is located, joints pain, tiredness, breathing issues, inflammation, blurry vision and forget stuff. I need help, although the doctor is doing her best she can’t explain my reaction after getting 2nd vaccine. Can you please do a survey of people with long haul issues over a year and gotten new or worsen issues? Please I need to know at least I’m not crazy and it’s just not me. By the way I’m from South Texas.
There are lots of people in your situation - I would say it’s the norm! I’ve got a new survey I’ll be talking about soon on the channel about those who are 18 months in.
Join the covid long haulers group on fb
You are not crazy, this happened to me too after I took the moderma vaccine.i was getting better after 14 months. Yet all my symptoms got worse. It's been 5 months and still not better.
@@JessicaWares covid and moderna have the exact same dna sequence. It was all planned:/
The great American poisoning , this is only the beginning ,, send in the experts please 🙏 😀 millions are dying 😢 now is not the time for deceptive and frivolous treatment, like this DOC . HE IS A REAL ! WHO TAKES THE TIME TO TEACH HIS PEOPLE 😎👍
This doctor seems like a good egg ... Such a pleasant guy. Patients need to be seen face to face and not just for Long Covid. 👍
Glad to have found this. It was very informative. I was waiting to hear about fatigue (which is what I am suffering from at the moment) but it wasn't covered. Is there another video where fatigue in general or Post Exertional Malaise (PEM) in specific? I'm very athletic and used to be able to work out 5 days a week (sometimes twice a day due to courses overlapping) but am finding that I can only do two or three work-outs (at a more moderate intensity) and then I begin feeling weak, tiered and eventually get febrile pains. I'm four weeks post covid-negative test and was both vaccinated and boostered and had high levels of Vitamin D via supplements. I'm already on a course of B-vitamins (MTHFTR gene mutation) and lots of Omega 3 so , at least I've had, no headaches or confusion. Thanks you and Ciao from Italy! L
Laura Im exactly the same boat as you. How are you feeling now? Are you back to exercising? Any tips would be appreciated. Stay safe
@@felipejotz7054 I found the info in two other videos on this channel very helpful. They are tthe "live q&a on the role of MCAS on long covid" and "Here's how to treat long covid". I first tried their recommended diet changes (no tea was really hard) and the reccomended supplement protocol as I was already taking lower doses of them and just had to add Quercetin. I immediately started feeling a little more energy but still destroyed after workouts. I then tried over-the counter anti-histsmine and that was the game chsnger -instead of being drowsy it energized me and I could do 80% of what I used to. I went to my dr. as I worried taking it longer than recommended and he gave me another anti-histamine that did not have tachycardia risk. About two weeks later the anti-histamine started to make me drowsy so I skipped a dose and worked out and was back to 90%. Am currently weaning off the supplement protocol and re-introducing foods they recommended avoiding. Other than the heat I feel almost back to normal and am tackling the GI issues that were exacerbated after COVID. Watch those videos, take notes and I hope something they will help you as it did me. Hang in there, it WILL get better! 🤗 Ciao, L
@@LauraPazzaglia thank you very much 🙏🏻🙏🏻. Really happy for your recovery, it also gives everyone lots of hope. Im already heading to a low histamine diet ( usually Im on keto ) and taking 10+ supplements. Started with benadryl before bed and My sleep is really good. Only need to introduce exercise and be able to have some beer and coffee. All the best
Recent decades: Post viral fatigue/CFS/ME is all mental, no one cares
Long Covid sufferers: OMG whats happening to me I can't move
CFS/ME sufferers: Welcome to the party pal!!
I just never even knew what ME/CFS was even before getting Long Covid myself.
@@Conflicteddd That's why we (ME patients) call ourselves 'the Millions Missing'. We're there, but invisible. In the UK alone there are over 250.000. That's double the people with MS.
Great message. Me I am a ME/CFS sufferer for 10+ years and also Long Covid for 1,5 and ongoing, so I totally suscribe that. I think both are related
Hopefully there will be a easy fix one day!
I have everyone beat...I've had me/cfs for 35 yrs.(severe)I'm 62 now.what a hellish frickin nightmare.to all the docs out there that shunned me and discredited me, some even laughed at me...I hope these docs get it one day. Then they will suffer the pain, pain so severe you want to end your life.this is a crime and those responsible, that call themselves doctors, should be held accountable!!
I have been wondering why we can not use the monoclonal antibody infusions for long covid sufferers. Anyone???
Will monoclonal antibodies help long haul covid
Because Long Covid is a different disease from Acute Covid.
The antibodies only help you to recover from Acute Covid not clearing out the viral debris from Long Covid.
See the interview with Dr Patterson on this channel.
It will put you in a casket ....😳
Gez, do you know if there's any new stuff coming from the TLC conference committee? Some kind of follow up from Tina Peers maybe?
I don’t know actually Sami, sorry!
That would be fantastic
I had full body paralysis. I'm having to learn to do everything. Eat and walk ect...
Thanks yet again for this superb video .. You've kept me going these last eight months with all this new information !!. Since having an iron infusion six weeks ago , my chronic fatigue is definitely lifting slowly . I can think better and the muscle aches have reduced . My ferritin stores were so severely depleted after fighting covid and this transfusion should now help to raise them . I didn't realise that iron deficiency / B12 depletion was responsible for so many long covid type symptoms . Poor oxygen levels in the blood can cause all sorts of problems ( brain fog , dizziness , memory issues , myalgia , severe fatigue ) caused by iron deficiency I may still need vitamin b12 injections too as I have pins and needles still.
The multi systemic nature of this illness makes it so difficult to explain to GPs in a ten minute phone consultation! . Face to face is vital but almost impossible.
I have had the most benefit from meeting an iron specialist/ consultant face to face and had the opportunity to join up the dots as to why I've had up to twenty different symptoms going on at once .
Thanks so much again for all your hard work and dedication .
Thanks Ella - glad to hear you’re doing a bit better!
Since the transfusion muscle aches , brainfog and dizziness have all improved . I guess one way of aiding recovery is to readdress the deficit in essential minerals and vitamins . The very low iron was affecting my nervous system as I didn't have enough oxygen in my blood. I couldn't make up the deficit with tablets as I have issues absorbing now.
I find eating beef billtong helps reduce symptoms for a period of time.
Love the content love reading the comments that Asher helped me tremendously
Two years in, still issues with taste and smell and internal tremors are just not stopping. I had the brain scan and my brain is healthy. Any updates as far as treatment for the tremors?….. and no, I did not take the jab, nor would I ever.
No, I’m not aware of any specific new treatment for tremors - sorry :(
Soursop tea
And strangely i had such bad cramps and all it thought how?
Felt like hours of dance training. I was one decades ago. 😂😂
I thought i am being poisened by my own system and tried charcoal.
And it works!
It is ofcourse not the source elimination but a symptom destroyer.
Works
Thank you Doctor and Thank you Gez.
Excellent.
Thanks to you too!
This video is so helpful!! So easy to follow for laypeople, thank you!
I had this head pressure constantly for 3 months: dizzying, throbbing, vertigo, fatigue, pins and needles, bodily pains, panic attacks, you name it!! Just a miserable existence. Host Defense Lions Mane turned everything around!! I can’t say enough about this supplement! Wow! In addition to, a blend of coconut water, turmeric, garlic and ginger. Reiki is also phenomenal. And, quartz crystal directly on the head. Blessings.
Happy for you!! I eventually found a regimen very similar to yours with restorative yoga in lieu of Reiki (didn't work) My yoga teacher had to come to my home, as I was too tired and depressed after living with this for three years. Within weeks, I got feeling back into my fingers and my post-covid ulcerative colitis went into remission. Also a Turkey Tail along with Lion's Mane combo made a major difference. Currently working with a psychiatrist to see if a "smart" drug would alleviate my daytime narcolepsy. Hope you have continued to recover.
I would like to ask him about metabolic syndrome playing a role in this. What about insulin resistance and inflammation? If someone gets covid and has more inflammation couldn’t that be a issue. Can diet and intermittent fasting help with getting rid of inflammation and help with headaches.
Gezzzzz me olllll Mucka ! You’re back 😊
Haha, thanks Billy!
@@RUNDMC1 how have you been Gez and how Is your overall health?
Have you tried Acupunture? It’s been a pleasant surprise
While I’m glad that this Neurologist gave his time to talk long covid, I’m so disappointed that the only remedy he has is to address managing symptoms rather than dealing with the underlying causes within the neurological system. No one wants to hear that they have to manage their symptoms for the rest of their lives when they were fully functional before contracting Covid. What about Hyperbaric oxygen to reawaken the neurons causing the neurological symptoms?
There’s a study of HBOT happening in the UK at the moment re LC.
@@RUNDMC1 Thanks for sharing! Have you heard if they’re doing such study in the US?
I found two supplements helpful for addressing my neuropathies: Alpha Lipoic Acid and Hyaluronic Acid, and I'm grateful these worked for me.
@@CynthiaSueLarson How much of these supplements do you take and how often? What form do they come in- pill or through food intake? Who recommended them?
@@RK-tp5np I started my own 90 day minimum exertion/stress/heat protocol, based on the MCAS, NAD+ cycle, and viral debris theories, as mentioned on this Run-DMC channel in numerous interviews--and from reading medical research papers. During the 90 days, I refrained from the (minimal) exertion I had been doing, and made sure to go to bed by 10pm daily or take a nap the next day if I failed that; stay hydrated every day; tend to good nutrition; pace myself with rests any time I did have to do some exertion or felt some kind of stress. The last bit was the supplements, and that's where I realized that many of the MCAS recommended supplements have strong anti-oxidant properties (such as Quercetin and Resveratrol)--so, I "shopped the anti-oxidant/longevity supplement shelves" (imaginary, since I know of no such shelves), and looked to find ant-oxidant supplements known to help treat my groupings of symptoms. So, for the neuropathies, I found the Alpha Lipoic Acid and Hyaluronic Acid, and I obtained the purest versions of these (since I'm taking so many supplements) and take the minimum amount. My theory was that if my body receives the additional building blocks that are depleted, I'll just take a little bit, and see how that goes. What happened next was that after 60 days of the 90 day program, I felt fantastic. After 90 days, I am returning to all full exercise and I've been relapse free for about many months.
I likely have had covid. I felt like it sucks all my dopamine and part of my serotonine out of my body. I had absolutely no motivation and was incapable of feeling joyce. Am I the only one?
No you definitely aren't
Same
I think lots of people are starting to come out with their stories
Can dizziness ..hangover???..(feeling) come from damage to occulomotor nerve? The immune genetic idea sounds very interesting... im post covid, not quite a long hauler..2 more weeks and I get the undesirable tag...with the neurological hangover feeling that comes and goes at will.
How are you feeling now Lionel? I have the same “hangover” feeling upon waking.
@@felipejotz7054 took 10 mos but I am 95%+
@@felipejotz7054 best wishes!
@@vibefrequencyable thanks a lot. Happy for your recovery. Stay healthy
I've had long covid after Sinoharm vaccine. 9 months and still not fully back to normal.
Sorry to hear this :(
Me too I only got one shot and sick 7 months now, how are you now, any improvement
THANK YOU FOR THE EXCELLENT INFORMATION.I HAD COVID 19,THREE YEARS AGO FOR 5 WEEKS AND ALMOST DIED. I’M STILL HAVING LONG COVID DAY AFTER DAY.ALSO I HAD HEART FAILURE 4 MONTHS AGO,AND MY CARDIOLOGIST FEELS THAT IT WAS CAUSED BY THE COVID WEAKENING MY HEART.
My neuropathy , despite that I am diabetic T2, started while suffering from COVID-19 and my last vaccine of AstraZeneca.Already five months suffering numbness and tickling in my legs.
Are any of us sleeping properly? Managing sleep around a long covid migraine is like managing deck furniture on a sinking ship ♥️ With peace and love, the only thing that helps the migraine is Botox
Nothing helps the brain fog, it’s too bad it’s such a vague phrase, when it affects us so profoundly
Good stuff as always, Khan slaying all day as usual
Yes we’ve all got dysfunctional sleep - not enough non-REM or deep sleep
@@RUNDMC1 TRUTH....Every night is WWII FOR ME!!! SO TIRED OF IT....AND JUST SO TIRED!...AT TIMES BEEN AWAKE 2 DAYS AND NIGHTS...EXHAUSTING....
My allergist/immunologist prescribed me Xolair for uncontrolled hives. I am being treated for MCAS (thank you because I first learned about this on your channel) with oral meds too. After starting Xolair all my symptoms subsided. I was having extreme tachycardia, fatigue and random breathlessness even on the oral meds. Now I’m back to normal….YAY I’m wondering how Xolair which binds to IgE can help with Covid because that would be IgG. So confused 🤔
Glad to hear the Xolair helped!
@@RUNDMC1 what is xolair
I think long symptoms are like the body reaction to the virus. It seem like a allergic reaction. I had covid on Jan 3,2022. My symptoms was mild but a week later I started having high anxiety, my blood pressure went up but went back down, I had muscle spasms, I had a big spasm under my chest, my body felt tight, I felt tired & kept waking up in the middle of the night feeling like my leg was numb.
Just found this, i had covid in December 2021, i have had lots of symptoms, such as a strange tingling in face, arms and legs, massive daily headaches, tiredness, brain fog, strange feeling in my spine, dizziness, falling to the side, weaknessin left side arm, leg and pains in feet, my neurologist who i saw 2 months ago, said he has no idea whats going on! Sending me for nerve testing. I really need some help as my symptoms are getting worse each week, where can i go for more help??
I know this post is 3 months old and I hope you're feeling better but if the symptoms still haven't subsided I would suggest looking into B12.
I suffer like your symptoms almost a year ago from my injury. I wish you and me recovery. Do you have pain in the leg, thigh and foot or swelling? And do you have capillaries in the thigh?
I just had Covid man it was intense migraine like what the hell. My head felt like it was going to explode and then dizziness. What I found helped me was a little red wine it relaxed me and I slept well. 😊😊
Hi every 1 here. I got COVID IN JULY and i start getting better. In September i gt symptoms for covid again and i tested negative. Until i run some test to find out im having infection on the lungs caused by covid. Coughing and flu plus feeling coldness was the main symptoms.
I was serious sick until i get better bt im loosing weights every day, 😫 if im breathing in is lik in having a hole on my 🫁 lungs. If i drink cold staff i will get sick. If i go near cold temperature room i get sick.
Refer me any medication that will help me pls. I can feel the covid pain in my backbone every time. Help
Hi Gez , Hope you are well. Its been 11 months I am suffering from long covid. My symptoms are mainly skin rashes, gastrointestinal symptoms and chest pain. Can you please suggest what should I do. I am from India and doctors are less aware of the disease. Will the steroid therapy help?
Steroids will improve your symptoms but you can’t be on them long term. I’d really recommend a low histamine diet (Google it) but it’s going to be a shock to what you’re used to - very difficult with Indian food! Take some antihistamines too. Best of luck.
glutathione helped me with chest pressure (inflammation was the cause of mine) one I used was by Research Nutritionals - Tri-Fortify Orange - worth the $.
Gastro - love Intolerance Complex. helps with ibs type symptoms.
Low dose, short course steroids will help with rashes and chest as well.
Definitely having nervous system disorders ontop of all the other wonderful symptoms.
It's the gift that keeps on giving :D
Seriously though, can't wait for some proper therapeutics.
NAC supplements and black seed oil have helped greatly with nervous system issues
I had long covid back in 2020 for a month.... this year a few months ago, i started having covid like symptoms.. had tons of covid tests.. no covid..
I also had H.pylori not long ago.. was treated for it...
but i was dealing with ALL the symptoms... now i keep having pressure.. and sharp pains in my head.. and i keep being dizzy.. staying dizzy..
I feel terrible.. and the doctor still doesn't know for sure what it is..
Today he guessed it was a tension headache.... muscle tension.. gave me muscle relaxers.. i hope it helps..
It's driving me insane...
The doctors in the US are clueless..
Covid can stick around in the brain and show back up later.. causing issues.
I'm going crazy..
In dealing with long haul COVID-19 symptoms (which seem to be managed) it's the neuro issues that are the most stubborn for this long hauler. The soles of my feet sometimes feel separate from the foot. The rashes that come and go seem to be exposed nerves. An effort to repair the mitochondria with a Keto diet and supplements seems to relieve the headaches, migraines, and diminished night vision. And, my endurance is back at it's highest level.
Do you have numbness on legs and burning feet and toes
Neuro symptoms are definitely the most stubborn
@@sreek3898 it’s clotting blood. Drink 1/8 teaspoon of cayenne pepper twice a day
@@nomebear Thank you so much. Wishing you a full recovery.
@@nomebear im also taking l-tyrosine 300mg, nacetyl, coq10 for the past two months but i have yet to see improvements..currently im feeling like shit, my legs and arms are very heavy and my whole body is hot like on fire. feel very weak
Please suggest me some medications which is successful for brain fog I can't concentrate at all pleaseee.
Black seed oil has helped me tremendously
@@imsocheeky1220 how should we use it?
Has anyone tried low dose Adderall?
@@t-sseries7895 one teaspoon a day, you can do two daily
Thank you for another great video! I'm already looking forward to the next one.
Gez, do you know if one can develop long covid more than once? I have read dozens of recovery stories, and I've been wondering how safe we are from developing long covid again. I've been thinking that because vaccines are effective at preventing serious symptoms they might also protect against long covid, but this is only my own reasoning.
Vaccines reduce your chance of catching COVID and thus long covid. I think it’s entirely possible to recover from LC, catch COVID again and develop another case of LC
@@RUNDMC1 I can confirm this has happened to me I caught a chest infection and Covid in March 2020 took Clarythromycin and Prednisolone as I am Asthmatic, felt absolutely dead for about 5 days and then developed long Covid have only really experienced the chronic fatigue and sleeping problems, very rarely had any breathing problems, no confusion or brain fog or headaches. It took 8 months up to October 20 before I slowly got back almost to normal, at the beginning some days I would get up eat breakfast and be so physically exhausted I would just have to go back to bed and sleep.
In October 20 I was cutting back some overgrown blackberry in my garden when a piece sprang back slashed me across the thighs and caused a severe blood infection Orchitis for which I was prescribed Levofloxacin it was extremely effective but it upset my stomach and bowel and caused ongoing rampant diarrhoea and colitis which had to be treated with steroids, this did not finally clear until July 21.
In January 21 despite taking every possible precaution I caught Covid again, I was fairly weak for about 4 days but recovered fairly quickly, my sister collapsed without warning and I managed to grab her before she hit the floor, she then tested positive, she was so ill for more than 4 weeks she did not have the strength to stand up on her own and I had to give her 24 hr care, but she came through and proudly tells everyone if it were not for the way I cared for her and encouraged her to drink Complan when she didn't want to eat she would not be here.
Shortly after coming off the steroids in July my long Covid symptoms returned again and have got a lot worse, I just have constant fatigue and very rarely memory loss. I am 79 years of age have an excellent memory and still very alert. Up until I caught Covid the first time in March 20. I was very fit for my age, now I feel as though my whole life is in limbo. I guess it is possible my Long Covid never went away completely and was just re triggered by catching Covid for the second time. I heve not been vaccinated because I have had Pulmonary blood clots in the past not because I am anti vacc, but even if I do recover from Long Covid I will still not have the jab.
If you type Christy Risinger MD in YT and watch her Video Hope for Covid Long-Haulers she has had considerable success treating some of her patients with a drug which is being derrogated in some sections of the media, I hope to try this medication and if I can not get a script from my GP, then I shall resort to the horse paste version in it's purest form, I will keep you updated.
@@RUNDMC1 I did not catch covid but became sick after the vaccine. 3 months and counting. Doctors are now addressing me to LC clinic as symptoms are overlapping. Incredible what's happening. Lot of people out there in my situation.
Hoi, I suffer more from the other symptons : PAIN PAIN PAIN in my butt and feet (toes) and the disability that comes from that. I cannot sit, drive a car, walk 100 metres. It feels like a chainsaw cutting in my butt and feet, as if someone is breaking my toes.
Scansnelheid, MRI, bloed.. all okay. I'M NOT OKAY!!!!!
(21/10/2020 infected and not werking since)
Light to you alk, Tanja
F.Q.A.D ,,,,, look 👀 it up Fda website: this isn't anything new , it was cleverly hidden for years ....
@@patticakes74
How did you come to this conclusion? I looked it up, it codes close, but I can't remember having taken AB?
Are you suffering from this?
Hope to read from you
I thought I was the only one having this horrible pain in my butt and toes, you are not alone, this thing causes so many bizarre pains and doctors treat you like your crazy after all the test come back normal. Because I look normal people have no idea the pains and suffering this has caused and can't understand why I can't go back to work. I can't imagine working with all these random sharp aching pains. I've been suffering since March 2020. I'm in pain right now as I'm messaging you, shoulder, neck, back, chest pain. Praying things will improve. Everyday just speak to the pain tell it to leave, it has no place in your body, I talk to it and tell it I refuse it and it has to flee and sometimes it actually works. The mind is a powerful thing, also prayer and speaking positive over your situation. When I feel the toe pain and horrible pain in my big toe I take a tablespoon of cherry syrup it really helps, it reduces inflammation/gout which causes the toe pain. I haven't figured out what will help the sharp pains in my butt but I suspect it's nerve pain so maybe take herbs that help that.
Sir, will NAC n-acetylcysteine help me with shortness of breath as long haul symptom😭😭
Yes
I have high inflammation numbers and high cytoklines. I have had both tested. Doctors tend to just ignore the these conditions. I have never had covid but rather late stage lyme and ME/CFS. In my layman's brain, I think these conditions are contributing to me staying sick.
I wish you could talk about small fiber neuropathy, which exists in LC. I have postvax SFN. Please talk about postvax!
No mention of gastro issues in presenting symptoms? I cant eat anymore. Ive lost 21kg and still losing. Cant find any help
Most conditions are driven by systemic inflammation, systemic inflammation is largely driven by poor diet. Poor diet is almost always overlooked in these discussions.
Long COVID is a whole other ballgame. Yes proper diet will create the right environment for healing but in this case it will not bring about healing. I don’t know anyone in my circle of family & friends that took better care of themselves and it has destroyed my health despite this.
It's like pressure type headace not painfull,heavy head sometimes tightness of scalp muscles , sensitivity to light and sound, parasomia,still get high pressure in my nose and ear also ....it's been 6 months now ,due to this failed in CA exam ,lost my career and life ,I am only 19😭 ....i can able to feel heartbeat in my head also ... really hated this life ...if it won't fade away then I had no any other option than suicide!!thank u
I hate that you are going through this. I'm fighting really hard to stay positive through this. Between the fatigue and parosmia it can make life pretty isolating. I hope doctors can figure this out and give us hope.
I know exactly how you feel I became very depressed suicidal even but you have to hold on, we are going to improve, say everyday even if you are in pain, say I'm improving day by day and believe it when you say it, I started doing this and it is helping, I know the pressure pain you are describing I just had it last night and the weird pain in bone of my nose and pressure in my forehead, ears and ear aches pains and tinnitus that comes and goes. I noticed that taking NAC 500mg, iron 28mg, folate 400mcg and B6/B12 and magnesium(Health by principle) 100mg seems to help make that ear/head pressure feeling go away at least for that day when I take it. Selenium 200mg 1 pill helps take away the neck pain/muscle tightness around the head/neck. The heartbeat you feel in your head I've got that too a few times, it's blood circulation rush because it's not circulating properly and the heart is pumping harder to make up for it so take less than half a teaspoon of cayenne pepper under your tongue with water it will widen the blood vessels and help circulation. I haven't been able to work a job because of all my pain and suffering but I'm not losing hope, I'm going to get better and so will you! I'm on IG as deandraavery if you ever want to chat just dm me or you can call me I'll give you my phone number. Just hold on ok we will get through this, we are going to beat this! Praying for us both!
@@deandraavery thanks for your words but I am getting well day by day .I hope it will fade away ....🙏 I am preparing for my ug and professional exams now !! But sometimes I hate my life ! I am from India (kerala)
@@deandraavery are u felt this problems after vaccination??
On top of fibromyalgia I deal with long covid symptoms but I stay very consistent with diet nutrition herbal supplements and other supplements - its a daily uphill battle 👆🏽👆🏽👆🏽
How are you now?
have tried Alpha GPC - it has helped with my vision focus -brain fog and fatigue -2 1/2 years of hell Was supplementing earlier with natto - nac -biotin - and serapetase - When I added the alpha gpc it was almost hard to believe the results - steroids did not help - antihitamines helped the swollen sinuses and blood shot weepy eyes
Lyme patients been dealing with this for 40 years
What about the term neurocognitive dysfunction?
All videos on this are 8 months to a year old. Any newer information. Suffering since Dec 2020.
The videos may be old but nothing has changed in the interim!
I have long Covid since June 1st 1022 I’m so tries an sore everyday and they did take 2 X-rays now for some reason I got copd I pray that does go away soon
Hi, thanks a lot for all your work and input. We miss something like you videos in Germany. Are you interested to give us (Long COVID Germany - Group of Long COVID patients) some advice to set up content like yours? Thanks again and enjoy your evening! Joachim
Hi Joachim - regarding setting up content like this, unfortunately it just requires a lot of work! If you’ve got any specific questions then email me at dm20abn@herts.ac.uk and I’d be very happy to help in any way I can. I believe you already have a support group in Germany? I can’t remember it’s name though.
@@RUNDMC1 Hi, we are the „Long COVID Deutschland - Group“. We are people with LongCovid and we would like to push our „handicap“ with LongCovid And how to handle. I send you later a message. Thanks
What about absolute heat intolerance? What do I do? 😢
Has anyone found help for neuropathy/ tingling
Am looking for the same . Have you consulted any neurologist ?
@@shilk4301 yes folate and b12 supps help a lot
@@willowdesk thank you so much . I need to take folate . I already take b12 :(
@@shilk4301 you might have high homocysteine levels. I do. B12 high dose folate and b6 needed to lower a bit with exercise everyday
How many of these people with long covid are tested for B12 deficiency??
Lots of them, it’s not an issue - although taking B12 isn’t a bad idea to supplement the right metabolic pathways
@@RUNDMC1 I don't know anyone in the UK with long covid that's been tested they only test if macrocytosis is present. Long covid shares virtually all the same symptoms as B12 D. There are studies going on with pernicious anaemia society UK.
Why do you hear of all these specialists that have a lot to do with long covid in UK but nearly all in London are there any in the North West. As I have been offered no help at all had long covid since 2021