10 Things That Remind Me I’m Disabled

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  • เผยแพร่เมื่อ 1 ก.พ. 2021
  • I've spoken in the past about how I don't really think about the fact that I'm blind in my day-to-day life, but in this video, I talk about the things that I do or that exist in society to remind me that, oh, right, I definitely am.
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    I'm Molly, a typical sushi, makeup, and fashion loving millennial girl who just so happens to be blind! I was diagnosed with Retinitis Pigmentosa at just 4 years old and began public speaking at age 5. I started just doing motivational speaking, but now I make videos and even model! Even though I can’t see, I know that there are bright spots in everything we face. Let’s find them together. 💕

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  • @MollyBurkeOfficial
    @MollyBurkeOfficial  3 ปีที่แล้ว +841

    I don’t spend a lot of my time thinking about the fact that I’m blind. Blindness is just my normal and I’m used to it. That said, there are always certain moments or things that happen the remind me, “oh yeah, I’m not quite like everyone else.” Do any of you have moments like that?
    If you want to learn more about disability, watch this next! th-cam.com/video/aPEuYrtuxEk/w-d-xo.html

    • @itz_just_katie6501
      @itz_just_katie6501 3 ปีที่แล้ว +17

      As a sighted person I don't have the same experiences but I definitely have had some similar things happen. Hearing all these things are incredible! I love you so much ❤️

    • @superraegun2649
      @superraegun2649 3 ปีที่แล้ว +15

      So I'm not disabled but I am neuro-diverse, which means my brain works slightly differently. I think it's when I remember things I've done as a result of being socially awkward, and it makes me feel really bad about who I am. I've done a lot of stupid things, and I imagine how it must've felt from the perspective of other people, and I feel like a horrible person.
      By the way I do #1 on your list all the time and I'm completely sighted. I don't know why I do it, but now every time I do it it will remind me of you.

    • @niabarley4615
      @niabarley4615 3 ปีที่แล้ว +3

      Yeah I sometimes do since I am visually impaired and all my friends aren’t and I sometimes feel that I’m different than them.

    • @scguin1080
      @scguin1080 3 ปีที่แล้ว +6

      I have adhd and sometimes I forget that everyone else doesn't communicate and think like me so I have to slow my thoughts down to form coherent sentences

    • @stickit4me
      @stickit4me 3 ปีที่แล้ว

      omg #3 I feel you big time it's the worst

  • @emmetlover206
    @emmetlover206 3 ปีที่แล้ว +1848

    The color of the shirt looks good on Molly.

    • @iambored678
      @iambored678 3 ปีที่แล้ว +57

      Looks so good with her eyeshadow and lip color and blush. What color is it? Like, a berry-burgundy? In any case, she looks gorgeous 😍

    • @madisonlicalzi6586
      @madisonlicalzi6586 3 ปีที่แล้ว +26

      yeah maroon is def her color

    • @emmetlover206
      @emmetlover206 3 ปีที่แล้ว +3

      @@iambored678 I thought it was a reddish-brown

    • @hillmidget1326
      @hillmidget1326 3 ปีที่แล้ว +8

      The wine is strong with this one

    • @AshleeKnowsNot
      @AshleeKnowsNot 3 ปีที่แล้ว +26

      I think this is one of my favorite things about Molly's videos comments section. There's always someone in the comments section who lets Molly know when she's looking hella good (or politely lets her know when something isnt flattering.) For some reason this always makes me smile.

  • @officialasa
    @officialasa 3 ปีที่แล้ว +870

    “I don’t feel disabled when I’m in my own home”
    I feel this a lot. Wow

    • @mars7612
      @mars7612 3 ปีที่แล้ว +19

      Well that makes sense. Your home is your territory, it's your own turf and environment so of course you're not going to feel out of place in it. I feel like most people feel the least inhibited when they're in their own homes.

    • @officialasa
      @officialasa 3 ปีที่แล้ว +19

      @@mars7612 yeah 100%. It just hit hard to hear another disabled person say what I’ve been feeling for as long as I can remember.

    • @AdaminaCarden
      @AdaminaCarden 3 ปีที่แล้ว +13

      As someone with ADHD I feel this pretty hard... I manage life pretty well at home and then when I go out into the world with the "normies" that when I get reminded that the world is not made for neurodivergent people.

    • @fastestpussycat9518
      @fastestpussycat9518 3 ปีที่แล้ว +4

      Same here. At home, I forget that I'm relying on memory/familiarity rather than visual cues throughout my day. It's only when I have to go to a store or something that I am reminded that I cannot see. I find it taxing to seemingly exist in two separate worlds.

    • @ESipe-ve7or
      @ESipe-ve7or 3 ปีที่แล้ว

      Absolutely!!!

  • @queenlapettymonroe5910
    @queenlapettymonroe5910 3 ปีที่แล้ว +397

    My problem is people ask me if I’m really blind. I guess it’s because I still do my hair and make up and don’t walk out my house looking like a rainbow flag and take the time to match my clothing. I’ve only been blind for two years so I’ll run into people I haven’t seen in a while and they all say… You’re not blind… No way… Yeah I’m just casually carrying around this cane for no reason. Annoying🤔🙄😑

    • @cre-k8-ive
      @cre-k8-ive 3 ปีที่แล้ว +35

      I can't believe people like that. What does someone gain from walking down the street pretending to be blind? Why would anyone fake it?

    • @queenlapettymonroe5910
      @queenlapettymonroe5910 3 ปีที่แล้ว +20

      @@cre-k8-ive exactly. Among a list of other things are grind my gears but… That one gets to me a lot for some odd reason. Losing my vision was a major transition in my life and the last thing I need are people questioning my reasons for not waving and recognizing them and walking around with a cane. Guess it just comes with the territory👩🏾‍🦯🤷‍♀️🤦🏾‍♀️

    • @mariaalicedesouza3546
      @mariaalicedesouza3546 3 ปีที่แล้ว +14

      @@queenlapettymonroe5910 people really don’t get the multitude of ways someone can lose their vision. Most think you are either born blind or lose your eyeballs. Same with deafness, people aren’t aware that there are many conditions that can cause progressive deafness besides old age. So when a young person ends up with a invisible disability it’s really confusing for many. I wish schools all over the world would spend more time talking about accessibility and invisible disabilities because ignorance leads to a lot of bullshit no one deserves to have thrown their way. Rule of thumb for everyone who isn’t disable, just like me: just don’t be an asshole. Believe disabled people because believing them won’t hurt you, but distrusting will hurt them.

    • @queenlapettymonroe5910
      @queenlapettymonroe5910 3 ปีที่แล้ว +5

      @@mariaalicedesouza3546 I feel that 100%. With a lot of people disconnected and desensitized to emotion that’s going to be a very daunting task to get people to understand. It’s up to people like us to make people aware of things like that. But then there still comes the ignorance. But all of us have purpose is in life so getting someone to actually understand can be a very rewarding thing… Even if they’re assholes. The questions that come along with how or why you’re disabled are ridiculous but… Ignore the haters LOL I always say something snarky and exit stage left🙄🤦🏾‍♀️😂😂👩🏾‍🦯👩🏾‍🦯👩🏾‍🦯

    • @khanhhm5762
      @khanhhm5762 3 ปีที่แล้ว +6

      Ugh! That one gets my hackles up, even though I've been blind all my life; I see it happening to other newly blinded people or people who have some usable vision but need to use aids such as a white cane, a magnifier, or a guide dog. It's none of anyone else's damn business whether someone is blind or not.

  • @icecubeonfire2769
    @icecubeonfire2769 3 ปีที่แล้ว +124

    Imagine you have to tell a BLIND person you only take a drovers license as ID...

    • @olivialopez5111
      @olivialopez5111 3 ปีที่แล้ว +31

      i’m just surprised by the ignorance of some people like there are so many forms of legal identification

    • @Agaricus_cuscus
      @Agaricus_cuscus 3 ปีที่แล้ว +21

      I think to accept only drivers licence is just dumb in general

    • @da-lx4gz
      @da-lx4gz 3 ปีที่แล้ว +5

      @@Agaricus_cuscus so so SO dumb

    • @hnichole
      @hnichole 9 หลายเดือนก่อน +1

      I so appreciate Molly also saying that some people don't drive just because they haven't had to or don't WANT to. My best friend has epilepsy, so she's in the same boat as me as far as not driving, but mine is rooted in severe anxiety that stems from a childhood trauma. When I tried learning for like the third time, I actively had a panic attack on the road and my dad had to maneuver the car into a parking lot (something I have no memory of, so I haven't driven since out of safety concerns for others).
      Neither of us can drive, but I love that Molly added how sometimes it isn't a physical reason, there can be psychological reasons too and that doesn't mean that your other perfectly legal forms of ID shouldn't be accepted, like that is so wild that there are places who only accept a drivers license.

  • @Pepa14pig
    @Pepa14pig 3 ปีที่แล้ว +856

    That reaction the girl had “what happend to her” I would say “I’m blind, not deaf”.

    • @goudvisbloem
      @goudvisbloem 3 ปีที่แล้ว +55

      So incredibly rude and ignorant! If I was the friend introducing them then I'd reconsider my friendship with that person.

    • @ashcatchum
      @ashcatchum 3 ปีที่แล้ว +24

      @@goudvisbloem I agree I don’t see how people are so dumb. Sorry that might sound harsh but lol that person isn’t the brightest crayon in the box

    • @humi191
      @humi191 3 ปีที่แล้ว +9

      That’s what I was thinking it literally makes no sense to act like they can’t hear you I find it so strange that people do that?!?

    • @Eloise_Please
      @Eloise_Please 3 ปีที่แล้ว +8

      @@ashcatchum "dumb" might not be the best use of language here but we get your point 😅

    • @MakaylaPaterson
      @MakaylaPaterson 3 ปีที่แล้ว +12

      That was my exact thought! Literally wtf she’s blind not deaf and even someone who is deaf like... the persons right there and would be able to see you. Regardless if someone can’t see or hear* (spelt it as here 🤦‍♀️) you like did the girl who said the what happened to her thing not learn the “golden rule” in kindergarten? Treat others how you want to be treated? Just such a rude thing to say

  • @whitneyhill6717
    @whitneyhill6717 3 ปีที่แล้ว +580

    I honestly really didn’t know the first thing about light stimulation was a thing. That’s actually really interesting.

    • @MollyBurkeOfficial
      @MollyBurkeOfficial  3 ปีที่แล้ว +242

      And that's why I make these videos! :)

    • @rosiesrosez
      @rosiesrosez 3 ปีที่แล้ว +12

      @@MollyBurkeOfficial :)

    • @amberd8493
      @amberd8493 3 ปีที่แล้ว +48

      It was really cool to hear molly talk about that - I am sighted, however I have ADHD, which manifests in a similar way. If I am stressed or tired, I will be physically unable to look away from my lamp or ceiling light. No matter how hard I try, it seems to be “addicting” in a way. I feel privileged to have sight but it was very interesting to hear that others with other disabilities than me experience similar things.

    • @sophiekerr8964
      @sophiekerr8964 3 ปีที่แล้ว +12

      @@amberd8493 ADHD gang!

    • @humi191
      @humi191 3 ปีที่แล้ว +7

      @@amberd8493 one of my best friends has ADHD I wonder if that happens to her! Gonna ask her now 😂😅

  • @Clisare
    @Clisare 3 ปีที่แล้ว +237

    Molly, I have a Huawei smart watch and phone and I can call my phone from it when I can't find it and the phone calls out "I'm here" until I find it. The Huawei watches are about to get voice assistant added too, if that might help! 🙌🏻

    • @daisyaston9987
      @daisyaston9987 3 ปีที่แล้ว +6

      This is the same with Samsung watches too, and fit-bits have a find phone feature (and I’m not sure but apple watches probably do all of it too)

    • @jazstarry
      @jazstarry 3 ปีที่แล้ว +3

      You can do a similar thing with Siri, yelling out hey Siri producing a beep sound. Doesn't work if your phone is microphone down, down the side of the couch, lol.

    • @alexreid1173
      @alexreid1173 3 ปีที่แล้ว +1

      Apple Watches do the same thing! I’m sighted but I still use it when I can’t find my phone. Very useful

    • @ThePokemonLover8
      @ThePokemonLover8 3 ปีที่แล้ว

      My google home calls my phone for me and it plays my ringtone even if it's on silent it's so useful

    • @brittneyrichmond6724
      @brittneyrichmond6724 3 ปีที่แล้ว +2

      I just yell hey Siri where are you and she’ll say “I’m over here” lol my husband cracks up when so do that.

  • @marinasalla3420
    @marinasalla3420 3 ปีที่แล้ว +310

    I have a disability that affects my feet, walking, all this part. When people ask me "but when/how your disability affects your life?" I just answer "when do you need to use your feet?"

    • @dangerouscuteness1953
      @dangerouscuteness1953 3 ปีที่แล้ว +11

      I can relate. I have arthritis and it hurts to walk and do most physical things.

    • @matthewbates9629
      @matthewbates9629 3 ปีที่แล้ว +4

      I’m flat footed so I have no arch it USED to be a disability

    • @gabb387
      @gabb387 3 ปีที่แล้ว

      all the time!

    • @haldouglas4773
      @haldouglas4773 3 ปีที่แล้ว +2

      @@matthewbates9629 disability is relative! the greatest thing about us individuals ☺️

    • @LittlestPetShopPup
      @LittlestPetShopPup 3 ปีที่แล้ว +1

      10/10 response

  • @Linnie-zd1wk
    @Linnie-zd1wk 3 ปีที่แล้ว +464

    As a 30 year old non-driver I feel that so hard. I’ve even been denied buying alcohol and had the police called to the liquor store because they thought it was fake. I was 23 at the time.

    • @EmiliaLecter
      @EmiliaLecter 3 ปีที่แล้ว +81

      I had no idea non driver licenses weren't accepted the same as driver licenses. That's outrageous. I'm so sorry you had to go through that

    • @harveyabel1354
      @harveyabel1354 3 ปีที่แล้ว +5

      @@EmiliaLecter My lalte mum never had a driver's license, but she managed :)

    • @konedog1
      @konedog1 3 ปีที่แล้ว +12

      Huh I am 25 and have only ever had a state ID and have never had any problems with it.

    • @xMADD13
      @xMADD13 3 ปีที่แล้ว +28

      It’s supposed to be accepted, but the people checking sometimes aren’t knowledgeable. Most people drive where I live because we don’t have much of any public transit, and my friends that don’t have a DL have had their ID’s taken away. Like people literally think everyone has a DL.

    • @PrincessofEllabur
      @PrincessofEllabur 3 ปีที่แล้ว +14

      @@EmiliaLecter you guys should read Not Always Right. I first learned about Molly on there (the story in question, was a blind student being asked to do ASL) but there's a lot of stories about places not accepting ID including a bank not allowing a "state-issue" ID.

  • @lf206
    @lf206 3 ปีที่แล้ว +136

    Honestly, even if it’s a pet dog, it’s just rude to interact with someone else’s dog without permission.

    • @1everydayperson
      @1everydayperson 3 ปีที่แล้ว +8

      Luckly some of us know to ask before we touch 😁

    • @fraliak
      @fraliak 3 ปีที่แล้ว +19

      Yes! My dog is a pet but she is scared of men. So many men pet her before I can stop them. Then she barks and they exclaim that she's aggressive and I'm like, well sorry maybe you shouldn't pet random dogs you don't know lol

    • @SmillyDonut
      @SmillyDonut 3 ปีที่แล้ว +11

      @@fraliak And this is why I always ask if I can pet someone's dog. Even if yhe dog comes straight up to me. I never know how the dog will respond and I need to be respectful of that.

    • @moss8074
      @moss8074 3 ปีที่แล้ว +5

      I hate when people just pet a random dog. I
      ALWAYS ask. Even if the dog is begging me for attention. I just never know!

    • @AudreeAdam
      @AudreeAdam 3 ปีที่แล้ว +9

      It made me think about pregnant bellies! It drives me crazy when I see people doing this. My body is mine and please ask me before touching my belly.... especially if I have no idea who you are!

  • @Stevietattoo96
    @Stevietattoo96 3 ปีที่แล้ว +200

    As a type one diabetic there’s two big ones that come up for me. First is as I’m putting food in my mouth people will say “can you eat that??” as if I’d be eating it if I couldn’t. Type one diabetes doesn’t have dietary restrictions like type two diabetes, much like everyone else it’s just “eat healthy”. Two is when I’m doing something athletic like working out at the gym and my blood sugar drops and I feel like passing out. I just get an overwhelming feeling of “I could do this like everyone else if my body could just keep up with my mind”. There’s so many little things but those two happen the most.

    • @LittleRedGhost
      @LittleRedGhost 3 ปีที่แล้ว +7

      One of my friends is T1 and insulin resistant so she needs to be asked the 'can/should you eat that?" question even just to remind her to check her bloods again and make sure her sugars aren't attempting to kill her for the second time that day. Poor girl ends up in hospital often enough that the nurses know her on sight before they even look at her chart.

    • @jcgmaudlin
      @jcgmaudlin 3 ปีที่แล้ว +4

      @@LittleRedGhost My dad was like that prior to getting an insulin pump over a decade ago. He recently upgraded to a closed loop system that will measure his glucose levels and adjust accordingly throughout the day. Beautiful science behind it!

    • @tylerscout7775
      @tylerscout7775 3 ปีที่แล้ว

      !!!!

    • @doflya129
      @doflya129 3 ปีที่แล้ว +4

      Every person is different when it comes to exercising. I know people with diabetes or other health conditions get tired faster but we get tired as well and sometimes feel dizzy so don’t feel awful if you couldn’t work out as much as you want to your health comes first.

    • @Stevietattoo96
      @Stevietattoo96 3 ปีที่แล้ว +4

      @@LittleRedGhost I think it’s also important to remember that’s not the norm for a lot of people with our disability so it’s not cool to just assume and say something. It’s very different if you know someone and they ask, but I’ll have people I barely know who just find out I’m a type one diabetic just say ignorant things like that and it can be very hurtful. It usually comes with a connotation of me not taking care of myself, which is a stigma I fight every day.

  • @herminey618
    @herminey618 3 ปีที่แล้ว +14

    My friend is in a wheelchair (but has a doctorate degree) and I have been asked things “for” her at restaurants or other places too or she’s ordered an alcoholic drink and I get looked at for “permission”.... so I definitely get your frustration there because it’s frustrating and uncomfortable for us friends too 💖

  • @rileybeadles9581
    @rileybeadles9581 3 ปีที่แล้ว +114

    that color is so good on her

    • @MollyBurkeOfficial
      @MollyBurkeOfficial  3 ปีที่แล้ว +29

      Thank you

    • @ecologist_to_be
      @ecologist_to_be 3 ปีที่แล้ว +1

      You can talk directly to Molly you don't have to say "her" lol "that colour is so good on you"

    • @rileybeadles9581
      @rileybeadles9581 3 ปีที่แล้ว +19

      @@ecologist_to_be i was talking to everyone not just molly

    • @shanana6815
      @shanana6815 3 ปีที่แล้ว +2

      @@ecologist_to_be they're probably a tiktok user, most people comment for the other commenters there

  • @harley_kay_
    @harley_kay_ 3 ปีที่แล้ว +383

    Let's all take a moment to collectively agree that Molly is absolutely gorgeous. A goddess, truly.

    • @EmiliaLecter
      @EmiliaLecter 3 ปีที่แล้ว +3

      I had no idea non driver licenses weren't accepted the same as a driver license. That's absolutely insane I'm sorry you had to go through that

    • @katkireyeva3966
      @katkireyeva3966 3 ปีที่แล้ว +1

      And with flawless makeup imo

  • @bricutshall257
    @bricutshall257 3 ปีที่แล้ว +91

    Mine are when someone says, “Do you know that your eyes shake?” Or “Why don’t you just wear glasses?” Those make me the most aware and uncomfortable.

    • @AudreeAdam
      @AudreeAdam 3 ปีที่แล้ว +11

      I have a lazy eye and I went to a different optometrist this last year and during the consultation, he told me not once, not twice but 3 times I should check for an operation that would make my eye look "normal" (but not make me see normally) as "it's not very nice for people who have to look at it". I was furious!

    • @RoLee705
      @RoLee705 3 ปีที่แล้ว +3

      But why do the eyes shake? I think it’s a lovely, interesting quirk of blindness, but I don’t know the cause.

    • @bricutshall257
      @bricutshall257 3 ปีที่แล้ว +5

      Rose Lee it’s called Nystagmus. It is typically associated with people who have low vision or other eye conditions. But not everyone who is blind has it and some people who are not blind can have it too. I have it because I also have cataracts.

    • @jp9707
      @jp9707 3 ปีที่แล้ว +3

      @@AudreeAdam I used to know a blind person who had a lazy eye, but I never noticed it because I have Asperger's so I don't look people in the eye when I talk to them anyway.
      But even if I did make eye contact with people, I wouldn't care that she had a lazy eye. It's really rude to tell someone they ought to "fix" their lazy eye just for the convenice of other people!

    • @legendarybubbles4567
      @legendarybubbles4567 3 ปีที่แล้ว +1

      I always get worried when I’m talking to someone who has a lazy eye that I’m being rude, I just find it fascinating, but I’m worried my eye contact looks off. ;-;
      Learning about different types of disabilities and conditions are just interesting to me. Especially when it comes to character creation! I enjoy drawing characters with different features, so learning about the right ways to represent it is always nice.

  • @lukethomas772
    @lukethomas772 3 ปีที่แล้ว +115

    "what happened to her"? how rude! id start talkin about myself in third person just to make her feel awkward

    • @sofiaescobar4455
      @sofiaescobar4455 3 ปีที่แล้ว +3

      Hahaha I'm now picturing it and it's hilarious, like a News Report lol

  • @lightsthesky
    @lightsthesky 3 ปีที่แล้ว +145

    The distraction by light happens to me when I'm tired but that is part of my ADHD

    • @MollyBurkeOfficial
      @MollyBurkeOfficial  3 ปีที่แล้ว +49

      Interesting!

    • @scguin1080
      @scguin1080 3 ปีที่แล้ว +6

      I have adhd too and this happens all the time

    • @Crazyreviewer123
      @Crazyreviewer123 3 ปีที่แล้ว +2

      Same with me I thought I was alone in this guess not

    • @emmetlover206
      @emmetlover206 3 ปีที่แล้ว +2

      Same

    • @justapuffin7303
      @justapuffin7303 3 ปีที่แล้ว +2

      I recently got diagnosed with ADHD, so is that why that’s happening

  • @akylah3768
    @akylah3768 3 ปีที่แล้ว +288

    They way she was talking to Levender and agreeing.

    • @GummieI
      @GummieI 3 ปีที่แล้ว +6

      And the timing of the of meows were just glorious

    • @RosheenQuynh
      @RosheenQuynh 3 ปีที่แล้ว +3

      Feeling depressed and reading this, remembering it, made me laugh! 😂

  • @AD-ip5xy
    @AD-ip5xy 3 ปีที่แล้ว +97

    I'm not currently disabled, but my son is. I have watched you for years before I had my son. I did grow up around a few different disabled people, and I just want to tell you, before I saw your video on the medical vs social model, whenever I thought of them including my son, I would think only about how sad it is for them. For example, when I found out my son suffered a severe extensive brain injury from birth I was so sad about all the things he said he would never be able to do. He'd never sit, or walk, or talk, and might not even live over a year. The neurologist told us to just enjoy the time we have left with him. Then, when he went to his amazing pediatrician's office they told us to treat him like we would any other child and to start a lot of therapies and early interventions. I thought he was crazy at first. Why would I put him through all of that if he wouldn't live or if he did live, if he couldn't be able to do anything. We followed his advice and my son had done remarkable things over the past year and a half since he was born, but it wasn't really until these two videos that I realized, who am I to say that he can't do something? What kind of parent would I be to hold him back? Why not give him every opportunity to thrive and to do whatever he wants to do in life? I should help him feel empowered and help make things accessible to him because he deserves all that and all the opportunities that any other person has. So, I really thank you for helping facilitate the shift in my mind. You are doing amazing work and really are helping people. You are an admirable person Molly. We love you!

    • @C-SD
      @C-SD 3 ปีที่แล้ว +6

      Very good points. Amazing the difference having a good doctor makes. I'm happy for your son that he is improving, ik it can be hard work for the disabled person and their parents/caretakers. People often overlook what the caretakers deal with, its stressful. Especially when you have to advocate so hard for accommodations.

    • @janecurran8296
      @janecurran8296 3 ปีที่แล้ว

      Nnnnn

    • @AudreeAdam
      @AudreeAdam 3 ปีที่แล้ว +3

      I love what you wrote. Especially this : "I should help him feel empowered and help make things accessible to him because he deserves all that and all the opportunities that any other person has." So true, but it must be so hard at first since parents have to mourn the "perfect" child or the "able" child. That's true of almost every parent of a child who is disabled in any way. I wish you and your son the best and I hope you guys will enjoy every moment together :)
      My cousin was disabled and the parents were told he would maybe live to 5. He passed away at 17 surrounded with love for his whole life. I had never seen parents who loved their child so much before or since. I really think their love and acceptance changed his life for the better (and I'm not talking about the length of his life although it was spectacular, but rather the quality of his life)

    • @khanhhm5762
      @khanhhm5762 3 ปีที่แล้ว +3

      Wonderful comment. I can tell you from another blind woman's perspective that having grown up in a family that did not support and treat me like any other child, there have been things I've had to learn alone and deal with--like self-confidence issues. I'm proud of who I have become now despite the lack of support, but my greatest wish is that every child have parents who embrace them for who they are, disabled or not... and give them the tools that will enable them to live their best life.

    • @AD-ip5xy
      @AD-ip5xy 3 ปีที่แล้ว +1

      @@AudreeAdam Thank you for your very kind words and I'm sorry for the loss of your cousin. The mourning process is hard and sometimes feels never ending, though it gets easier. On one hand, most of the time I don't even think about his disability because we have our routine and therapies and such with mostly happy days where I am proud of everything he does. But, on the other hand, every 3 months he has re-evaluations for his therapies and 6 months has the same with his doctors (We have one today😫). Even though I know it already in my heart, it's hard every single time hearing exactly how far behind your child is and it reminds me of every time he gets frustrated and cries because he can't do something. But I love him for him, and even though I wish he didn't have to suffer, I wouldn't change a thing about him because the things we go through make us who we are, and I love who he is!
      Anyways, thanks for being kind and sharing your story with me. I hope you're staying happy and healthy

  • @rkohnke1
    @rkohnke1 3 ปีที่แล้ว +50

    I am 56 years old and have had Parkinson's since i was 41. Needless to say, my tremors can get extreme even with the gadgets I have. I have had the same experience in job interviews. The interviewer sees me shaking and write me off, like you said, without even looking at my resume. It's discrimination pure and simple. I also hate it when people see me having problems and talk to the person next to me. It happens more than I have ever told anyone. The one thing that gets me, is when people who see my hands shaking and ask me why I am nervous. I have gotten to the point that I abruptly say, "I have Parkinson's. I am not nervous." I have had problems with TSA Agents and other security about this. Thanks for the video. just ran across you.

    • @sofiaescobar4455
      @sofiaescobar4455 3 ปีที่แล้ว +1

      These are awful :(

    • @MissUnicornAngel
      @MissUnicornAngel 3 ปีที่แล้ว +2

      I am one of them who asked the question "why are you nervous?" and I can tell you, it comes from empathy, I was just worried for my newly met friend. And when he told me straight up that he had a nervous system problem, I appreciated him telling me. I also asked right away what were the things he could not do so as to not bother him anymore than that and know exactly what not to propose as activities. So I think telling them directly that you have Parkinson's but not in a reprimanding tone would be best.

  • @SyadeHaan
    @SyadeHaan 3 ปีที่แล้ว +28

    'could do my makeup better' girl I am sighted and your base looks 1000% better than I could ever.

  • @emmabobemma5352
    @emmabobemma5352 3 ปีที่แล้ว +16

    I’m not blind yet, just visually impaired, but I experience a lot of those things you talked about. When I started losing my vision from Stargardt disease at 12, it was really heartbreaking every time i found another thing I could not do because of my low vision. I’m 16 now, and I feel like I’ve gotten better at learning to laugh at the uncomfortable situations, but it still hurts.

  • @samimiller3919
    @samimiller3919 3 ปีที่แล้ว +30

    I like how she’s an influencer who is also a good person

  • @alternativeprincess4783
    @alternativeprincess4783 3 ปีที่แล้ว +170

    My biggest issue is when someone acts like they know my limitations and whatnot better than I do. Especially when they know someone else with the same or a similar disability. If I say I can or can't do something, it's because I know my body, I know what it can handle, I've had 25 years of experience finding out what I'm capable of and what I might not be able to do. I don't care if you think I should or shouldn't do something, I don't care if you know someone who has the same disability and they can do this thing that I can't or vice versa, unless you are me or my doctor, you have no say in the matter. I don't mind if someone asks about something if it's relevant and they aren't mean about it. I'd much rather hear "are you able to..." Than "you should/shouldn't be able to do that" but unfortunately I hear that one so much more....

    • @Wawagirl17
      @Wawagirl17 3 ปีที่แล้ว +8

      YES! THIS TIMES A MILLION! This is why I have 0% interest in any support groups or forums or anything specifically related to my disease, because I don't want to feel pressured or insecure by comparing myself to what others do "better" (contrary to some people assuming that it's because I'll become afraid by people who are doing worse than me, but really, my self-esteem can't handle seeing others who are so much more active).
      The number of times I've heard some flippant employee in the hospital state "why don't you x?" and I just say "well it's because I have x" and they say "I know other patients on this floor with that who do x? Girl in the room down the hall has it and still does this." WELL take it up with my doctor then, who thinks I have an excellent regimen and am doing amazing! Read my chart, then read their charts, learn our different bodies and histories and allergies and past surgeries and weights and home lives and then throw away your rude, nosy questions when the only reason you were supposed to come inside my room is to change an IV. I don't care if you're a registered nurse, you're not a doctor, you're definitely not MY doctor, and you're not an expert on my disease or an expert on ME.
      And people wonder why I have issues with nurses. A family member will visit and say "but they're so sweet." Yeah, they're sweet when you've chatted with them for 5 minutes in the hallway, offered them snacks, made a joke about the sports game. When you're a patient in the hospital for 2 - 3+ weeks they become disrespectful, condescending, nosy, and completely out-of-line. I'm generalizing of course, there are OBVIOUSLY respectful and appropriate, understanding and compassionate nurses, DUH. But what you described in your original comment? I got that from nurses FAR more often than strangers. Teachers and nurses were the worst when it came to judging my routine and pushing me beyond my physical health limits. Not usually peers. Kids at school more focused on mocking me for acne or odors or coughing and stuff out of my control. Fun times.
      (Man, this came out bitter. I swear I'm an adjusted and overall happy adult person now, with friends I love and respectful co-volunteers and medical staff. This topic just brought up bad youth memories, LOL.)

    • @0potato0
      @0potato0 3 ปีที่แล้ว +4

      I hate it when people without limitations give me suggestions too or say things like “you shouldn’t do that,” like I don’t know how to think or act for myself. I once told someone this when they tried to tell me I shouldn’t do something, explaining why saying something like that is wrong, and I was told that I was giving a “lecture” when it shouldn’t be a big deal. Being treated like a child constantly is extremely dehumanizing especially when I’ve put in so much work to do things that people without limitations can do easily.

    • @chloe3355
      @chloe3355 3 ปีที่แล้ว +3

      Hard agree!!!

    • @juliarunn5009
      @juliarunn5009 3 ปีที่แล้ว +5

      I’m deaf and I feel this in conversations and stuff, rather than being told what I physically can’t do. I hate being told by hearing people what should be offensive to deaf ppl cause I’m like “uhhhh so us poor deaf ppl can’t decide for ourselves what’s offensive or not?” 😂😂 Like, helloooooo I’m right here hiiiiii 😂

    • @novemberdag1127
      @novemberdag1127 3 ปีที่แล้ว +3

      I HATE it when someone is deciding for me I can or cannot do so. Friends do stuff with my best interest in mind, but I can decide for myself if I am capable (today) or not

  • @nova7319
    @nova7319 3 ปีที่แล้ว +185

    *10 things that remind me that I’m hard of hearing:*
    1) Talking to people while wearing masks. Masks are my mortal enemy. I mean, obviously wear your masks, we’re in a fucking pandemic people, but I just can’t hear a thing that people are saying with them. They cover the mouth, so the sound is muffled and I also can’t read lips. I wear hearing aids, so I don’t only depend on lip-reading, but I definitely use more visual input than the average hearing person would.
    2) When I automatically move to see peoples’ lips when they turn their head or whatever while talking to me. I don’t even realize I do this most of the time if I’m being honest.
    3) When I mishear something, especially when I don’t realize that I’ve misheard it. This has led to many very awkward moments.
    4) When my hearing aids die (especially when I really don’t want to get up and change the battery at that moment or, with my new pair, it’ll take a while to charge)
    5) When I can’t hear a certain noise, especially higher pitched ones. There will be a high-pitched beeping that’s out of my frequency range (despite the hearing aids) and people will be like “what’s that beeping?” and I’m just there like “??? what beeping???”
    6) When I don’t hear what someone said and ask them to repeat themselves and they just go “nevermind.” This is so annoying, it makes me feel like just because I can’t hear, I’m not worthy enough to hear what they said or whatever.
    7) Group conversations. I hate group conversations, especially with more people and people I don’t know as well. I miss so much of the conversation and I can’t hear everyone at once when they talk over each other. This ends up using a lot of my energy and it sucks :/
    8) Talking to people, especially multiple people, over the phone. I would love Among Us, except for the fact that every time I play it, I can’t hear half the conversation and end up getting super tired while playing because it’s taking so much energy to try and hear what everyone’s saying.
    9) Loud events/big crowds/basically any moment where there’s a bunch of people in one space who will probably all be talking at the same time (when there’s no pandemic obviously). These are the worst, because while you think I’d be fine because I can’t hear, it’s actually worse for me because it just overloads my ears and I can’t hear what anyone’s saying and there’s just too much going on. I tend to have to step out of the room in these moments, or just suffer through.
    10) When people get super awkward when the topic of my hearing loss comes up. I like to joke about my hearing loss, and when people laugh, it shows that they’re comfortable with it and it’s great. They’re allowed to laugh, I /want/ them to laugh. But when they just awkwardly go “heh” or seem super unsure about what they are and aren’t ‘allowed’ to say, it’s just kind of annoying. I mean I understand why they’re like that, but like, I’m very open about my hearing loss, I’ve been HoH since birth so it’s just normal to me, and honestly, it’s better to ask and potentially say something wrong than to assume. When you assume, you have no opportunity to educate yourself. When you ask, even if you potentially say something wrong, then at least you’ve learned, and that’s good. (I mean obviously don’t go up to someone and go like “yo the fuck is up with ur ears????” like, have /some/ common sense lmao. and ask if u can ask questions first!! not everyone is comfortable talking about it, but it doesn’t hurt to ask :))

    • @hopecaitlin2529
      @hopecaitlin2529 3 ปีที่แล้ว +11

      Thank you so much for sharing this, its given me a lot to think about how I can be more empathetic - i suffer with other physical disabilities and I find it so important to learn about the experiences of others. :)

    • @Annatje121
      @Annatje121 3 ปีที่แล้ว +1

      Thank you for sharing!!!

    • @bookwormkiara5468
      @bookwormkiara5468 3 ปีที่แล้ว +5

      Oh my gosh, this is all so relatable! These are definitely all things I deal with as a fellow HoH person too.

    • @bookwormkiara5468
      @bookwormkiara5468 3 ปีที่แล้ว +8

      Also, when you're in a group convo and everyone laughs and you have absolutely no idea what was said, and you're awkwardly just...not laughing?

    • @nova7319
      @nova7319 3 ปีที่แล้ว +3

      @Caramel Cupcake I just looked it up, and they do have that in my state apparently, I had no idea this was a thing! I knew that people who couldn’t wear a mask for other medical reasons didn’t have to, but I didn’t know it applied to people communicating with D/deaf/HoH people! I probably won’t use it very much because the pandemic is very bad here in America and I want to keep everyone safe, but it’s very good to know, thank you so much! I’ll definitely be looking into that more :)

  • @AliceSylph
    @AliceSylph 3 ปีที่แล้ว +8

    First year being 'visually' disabled because of my assistance dog. Had a period where I just didn't want to go outside because of how people reacted to her (and me as proxy). I've had to learn to just 'get used to it'. I'm currently working on publishing a leaflet raising awareness / educating the public on assistance dogs and how to react to them.

  • @racheldennison8839
    @racheldennison8839 3 ปีที่แล้ว +23

    Something that hit me hard was my bff and I were talking about doctors and she mentioned that she has an annual appointment. I was shocked. There are people that only have a checkup once a year. I knew that people didn’t go to the doctor as much as I have to but I didn’t realize it was such a big difference.

    • @limiv5272
      @limiv5272 3 ปีที่แล้ว +1

      A few years ago my boyfriend needed to see a doctor. He had to sign up to a clinic first because he hadn't had a doctor for about 4 years at that point

    • @danicatempleton6745
      @danicatempleton6745 3 ปีที่แล้ว +2

      @@limiv5272 Where I live, there is a massive shortage of family doctors; something like 20% of people in my province just don't have one. We do have walk-in clinics now though, so that's decent.

    • @limiv5272
      @limiv5272 3 ปีที่แล้ว +2

      @@danicatempleton6745 That sounds like a difficult situation. My boyfriend just didn't need to go to the doctor, but he could've whenever he wanted to. Access to doctors is very important. I hope things in your region continue to improve

    • @danicatempleton6745
      @danicatempleton6745 3 ปีที่แล้ว +1

      @@limiv5272 Thank you! Like I said, we have walk-in clinics that fill most needs, but you can't really build a doctor-patient relationship that way

  • @crazydogwoman8070
    @crazydogwoman8070 3 ปีที่แล้ว +146

    Hi Molly, i just wanted to thank you for making such inspirational videos, I feel like the world isnt as educated on the topic of disability as it should be. You are helping to change that and you are giving not only the blind community, but other people with other disabilities too, a voice and to be recognized. I have forwarded so many links of your videos to lots of family and friends so they all know about you and the work you are doing. Thank you for sharing all your stories! Sending love from Scotland! :D ❤️🏴󠁧󠁢󠁳󠁣󠁴󠁿

  • @jamigrace720
    @jamigrace720 3 ปีที่แล้ว +155

    I personally feel disabled when someone says "we can just walk there!" and I have to be like....sooooo you don't know this cause I'm a badass but I actually have lung disease and can't just walk distances.

    • @poisonisley
      @poisonisley 3 ปีที่แล้ว +9

      I love that internal response

    • @shalacarter6658
      @shalacarter6658 3 ปีที่แล้ว +24

      Oh, and nurses who will look at me IN MY WHEELCHAIR and say, "can you walk down the hall? It isn't far."

    • @PensiveOmen
      @PensiveOmen 3 ปีที่แล้ว +8

      oh same but mines more like everyone telling me to walk more or expecting that I can walk places and I'm like yeah sure except that when I stand up my blood all drops to my legs and my heart freaks out that there's no blood to pump but sure i should walk more

    • @gabbycavallaro7095
      @gabbycavallaro7095 3 ปีที่แล้ว +10

      Felt that, I have cystic fibrosis, it's very tough for people to understand cuz im seemingly healthy and do everyday actives. But soooo much goes on behind the scenes

    • @jamigrace720
      @jamigrace720 3 ปีที่แล้ว +2

      @@gabbycavallaro7095 I have heard that CF can be absolutely exhausting with all the breathing therapies etc. sounds like you’re a bit of a badass too tho! A master of disguise I like to think :)

  • @cicelymasden4477
    @cicelymasden4477 3 ปีที่แล้ว +15

    I'm sure dating another blind person has been so wonderful. To be able to relate with another on that level is probably comforting.

  • @susandreyer9019
    @susandreyer9019 3 ปีที่แล้ว +66

    Your editor is hysterical in this one. They added a comic phone when you were searching for a phone and flew it around just out of reach. It was cute.

    • @sofiaescobar4455
      @sofiaescobar4455 3 ปีที่แล้ว +5

      Right? So cute

    • @What.The.Chell_lol
      @What.The.Chell_lol 2 ปีที่แล้ว

      the editor should of told her about her eyliner tho =( "be my eyes app" that she uses might have not been out yet

  • @supersoline2832
    @supersoline2832 3 ปีที่แล้ว +129

    I agree with this when I'm at home I feel normal I was diagnosed with autism and can find it harder to do certain things and it definitely makes me more aware of being different and having a disability when I do something in public that isn't deemed "normal"

    • @gingerslife4856
      @gingerslife4856 3 ปีที่แล้ว +6

      I don't have autism but I have other disabilities/disorders and I agree things that are normal to you or I isn't normal to everyone else sometimes I'll say something that to me is very normal but then my friend will look at me and say what!? Like I'm an alien

    • @terrable9220
      @terrable9220 3 ปีที่แล้ว +10

      I was just recently diagnosed with autism. It made so much sense after I found out. Sometimes I realize that oh nobody else does some of these things that I do.

    • @showcasecity
      @showcasecity 3 ปีที่แล้ว +1

      Super Soline same here!

  • @EmilySuydam
    @EmilySuydam 3 ปีที่แล้ว +126

    I'm trying to be productive today and I'm getting reminded of my disability a lot today!

  • @emilialucyy9387
    @emilialucyy9387 3 ปีที่แล้ว +75

    The drivers licence thing!
    I’m diabetic and I’m not allowed to drive right now
    But the bank won’t let me have a bank account without one
    Even though I have government ID

    • @olivialopez5111
      @olivialopez5111 3 ปีที่แล้ว +20

      that’s so stupid find another bank because the one in question are not educated enough to handle your money. I work in a bank and the first thing they taught me was the many forms of legal identification

    • @emilialucyy9387
      @emilialucyy9387 3 ปีที่แล้ว +5

      @@olivialopez5111 I’ve tried Halifax, Lloyds and hsbc
      They all say the same
      I have other identification but they’re “not on their list”

    • @aurora7690
      @aurora7690 3 ปีที่แล้ว +10

      There might be something on their website or in the paperwork saying it requires "government-issued ID." Maybe you can draw their attention to that and make it clear they're violating their own terms

    • @emilialucyy9387
      @emilialucyy9387 3 ปีที่แล้ว +2

      @@aurora7690 I’ve been trying with since august. They won’t budge

    • @aurora7690
      @aurora7690 3 ปีที่แล้ว +3

      @@emilialucyy9387 That's so wild. I hope you get that all sorted

  • @momomp7015
    @momomp7015 3 ปีที่แล้ว +8

    I am not blind, but I am visually impaired and I have a learning disability. a lot of these points really hit home for me as well. These struggles are very real. Only wishing you well Molly.

  • @MeKenzieMartinArt
    @MeKenzieMartinArt 3 ปีที่แล้ว +6

    I may not be blind, but I'm deaf. I experience the exact situation you've described two sides of a coin, the job opportunities and the projects I did. It's so annoying! Only if people would not remind us that we're disabled, the moment of remembering that we're disabled would be far less and way less frustrating.

  • @Lil_Rhenn
    @Lil_Rhenn 3 ปีที่แล้ว +41

    I’m visually impaired and I struggle with these things as well. I wish when I go out people saw me for me and not to see my cane first.

  • @jadeykg123
    @jadeykg123 3 ปีที่แล้ว +39

    Thank you for bringing up the idea thing. I have really bad anxiety thats prevented me from getting my license even though I'm 19. When I went to vote last November the man checking ids told me that my state provided id wouldn't work. It took me 10 minutes to convince him to get his boss who immediately told me it was fine

    • @citrus7745
      @citrus7745 3 ปีที่แล้ว +8

      that just sounds absolutely ridiculous to me that someone wouldn't know that state provided IDs work even though theyre the ones determining who's gonna vote that day and whos not, but honestly i'm not shocked. i sure hope no one was turned away and stopped just cause they didnt have any other form of ID. i turned 20 this month and I'm in the exact same boat as you when it comes to getting a drivers license, so don't worry youre not alone. (i say that cause i feel pretty isolated about it lol) hopefully one day we can overcome our anxiety just enough to do the things we want to do!

    • @jadeykg123
      @jadeykg123 3 ปีที่แล้ว +1

      @@citrus7745 thank you so much for saying that. Honestly I've been feeling pretty isolated to so thank you for making me feel not so alone.

    • @larbarbesserwisserin3178
      @larbarbesserwisserin3178 3 ปีที่แล้ว +1

      I dont know if its really an official disability but i have ADHS. My Main Problem is Communication and focusing. And i hate the fact that most of the people talk really bad about people with ADHS. Very often they say i am lazy and use ADHS as an excuse, to get attention.
      But who would make their own life harder than it had to be, because they want attention?

  • @ladynightingale17
    @ladynightingale17 3 ปีที่แล้ว +35

    I always cruise through the house yelling “Hey Siri, what time is it?” until I figure out where my phone is hiding lol

  • @megan9009
    @megan9009 3 ปีที่แล้ว +57

    Hey Molly! Today, I found I can set my Amazon Smile account to donate to the Mira Foundation when I order. It took less than thirty seconds and now every time I purchase something Amazon donates a portion. I had no idea they were on the list and this was an option. Totally recommend others do the same thing. We need to help others have a Gallop in their life ❤️

    • @harveyabel1354
      @harveyabel1354 3 ปีที่แล้ว +3

      As I've said before - also, Canadian National Institute for the Blind is currently running TV spots to drum up donations for guide dog puppies to be trained and given to people who need one.

    • @AudreeAdam
      @AudreeAdam 3 ปีที่แล้ว

      We cannot do this in Canada, only in the States, but it's a very nice thing :)

  • @nutkja
    @nutkja 3 ปีที่แล้ว +23

    It’s really interesting just how different the experience of a chronic illness is to disabilities. You mentioned that you aren’t usually reminded that you have a disability when you’re at home while for me lots of things around my house remind me of my chronic illness. All the pill bottles, my emergency meds stashed in the fridge door next to the butter, the bathroom where I go when I’m really ill. My illness affects me most in the evening and night so when I’m out and about during the day (pre covid) I feel much more normal. Disabilities also tend to be more static or progressive whereas my chronic illness is episodic and comes with a large range or symptoms. Vacillating between feeling “normal” at some times and completely disabled when my chronic illness is very bad makes it hard to figure out where you belong. Do I have a disability? Well when my illness is at it’s worst I can’t walk, can hardly move, but then there are times where I forget I even have an illness. Even the hearing loss I get can shift from moderate to severe to within normal range. People often lump disabilities and chronic illnesses together but even though they can overlap some, they are very different experiences.

    • @tkim2320
      @tkim2320 3 ปีที่แล้ว +4

      Same here. Going out definitely makes me feel the most "normal" which is funny since I've been disabled due to chronic pain for more than half my life. I'm usually ok enough to go out about once a week and if I am feeling ok enough to not need my cane and will only be out for an hour or so, it's my time away from my daily reminders. Especially since I'm healthy passing and under 40. Though that can be an issue as people don't understand when I'm having issues while I'm out or when I have my cane with me. Having to explain myself if I have to sit in a disabled seat on a crowded bus and so on. Dating with chronic illness is the worst though. Constantly feeling like I have to prove that I'm worth it while at the same time feeling like they would be better off with a healthy individual.

    • @gabriella8255
      @gabriella8255 3 ปีที่แล้ว +2

      I don’t usually write comments or replies, but as someone with chronic pain, this felt so relatable (and was a reminder to double check that I took my medicine lol)

  • @alejandragarcia1403
    @alejandragarcia1403 3 ปีที่แล้ว +6

    Your videos have inspired me to make packaging, advertising and design accesible for people with disabilities. I am starting an agency and always contemplate color, shapes and textures because you have pointed out how useful it is. Keep it up! Your content changes the world

  • @mr.garlicman3134
    @mr.garlicman3134 3 ปีที่แล้ว +6

    The worse thing I hate being in a wheelchair having spina bifida is when I am in my wheelchair and someone is pushing my wheelchair from behind and we stop to talk to a person in front of me the person in front of me and the person behind me have a conversation above my head. I hate that I know I can't stand up but I wish they would come beside me and talk and not talk over my head.

  • @mandymckk
    @mandymckk 3 ปีที่แล้ว +20

    Your videos on blindness and specifically accessibility and universal design have inspired me so much that I’m pursuing a graduate degree in User Experience and User Interface Design so I can be a part of the movement to make the world 100% accessible. Thank you for educating me on this topic and leading me towards my path in life!

  • @ellad7315
    @ellad7315 3 ปีที่แล้ว +71

    Hey there (btw, this is my first comment on TH-cam, fun times). Just wanted to say, Molly, you are awesome. You are just so relatable and funny and make me feel so good. Thanks for being awesome, and keep killing it. :)

  • @MariaPatenaude
    @MariaPatenaude 3 ปีที่แล้ว +3

    I no longer drive due to a trauma, but I've been meticulous about renewing my driver's license. More as a just in case I ever "get over it" thing, so that I wouldn't have to pass the exams again. This video and some of the comments have made me so glad I never tried to depend on a state-issued ID!

  • @thecompassrose5808
    @thecompassrose5808 3 ปีที่แล้ว +3

    The mental argument I have with myself of "You could do this before, why can't you do it now?" even though physical injury and PTSD prevent me from doing tasks I wouldn't have thought twice about in the past.

  • @WritingbyAnexisMatos
    @WritingbyAnexisMatos 3 ปีที่แล้ว +12

    As a blind person, I’ve had many experiences where I am reminded that I am disabled. I also don’t usually think of myself as a blind person. I tend to think of myself as normal, but, of course, the world has to remind me because why not. Some of the things that tend to remind me include Accessibility and being denied opportunities because of my blindness.

  • @danielbair8722
    @danielbair8722 3 ปีที่แล้ว +12

    It's interesting when you think about how not a day goes by when you don't know that you're disabled. I'm currently working on a math placement exam, or rather finishing up a break from that exam. It's a hard exam, but so far it's been kind of accessible which makes me happy

  • @ashnorwood8976
    @ashnorwood8976 3 ปีที่แล้ว +7

    I'm not physically disabled but I do have mental disorders and I gotta say being reminded of your disability is a really terrible feeling.

  • @musicsorryteller9191
    @musicsorryteller9191 3 ปีที่แล้ว +8

    Something that reminds me I’m legally blind is when people are frustrated that my eyes can’t focus only on them and tell me to stop moving my eyes.

    • @legendarybubbles4567
      @legendarybubbles4567 3 ปีที่แล้ว

      People are so stupid! I don’t understand why people say stuff like that.
      There’s many reasons people can’t look at you “properly”, like leave them alone. -_-
      I’m sorry you have to deal with such ignorant people.

  • @ig7002
    @ig7002 3 ปีที่แล้ว +26

    Have you tried knitting or crocheting? Knitting is more difficult to learn, but would be better for someone who can't see the stitches. It's a kind of craft that you would be able to do and it would make a cool video!

    • @dutchik5107
      @dutchik5107 3 ปีที่แล้ว +1

      But you can also feel the stitches.
      And could try to just make a rectangle first. Shapes more difficult.
      I only know crocheting tho. Not knitting
      There is of course also that round crocheting on those plastic things that is so easy and you really don't need to see to be able to do it because less likely to get tangled

  • @in-self-sabotage-mode
    @in-self-sabotage-mode 3 ปีที่แล้ว +5

    I find that I feel this way when people start bringing up new ideas for treatments or “cures” when the illness I live with is simply chronic and does not have a lot of effective treatments. I know they are trying to help but it’s just this big reminder that there’s really nothing I can do to get better and makes me feel like there is something “wrong” about me that needs to be “fixed”

  • @DivineDianne
    @DivineDianne 3 ปีที่แล้ว +1

    I don't understand why some other blind people in the TH-cam community dislike Molly. She always speaks from her experience and does not claim to represent any other person. She is also helping non disabled people to understand so much more about the disabled community. I think she should be supported in her mission of uniting these 2 communities and educating those who need to be educated.

  • @erikjarandson5458
    @erikjarandson5458 3 ปีที่แล้ว +2

    That's cute, thinking your cat understands your challenges!
    It reminded me of an experiment I saw, once. They sent dogs and cats through a maze in _complete_ darkness, i.e. dark enough that even cats couldn't see. There was an infrared camera, but it was hardly needed to follow the progress of the dogs; they could be tracked by the bumping noises and yelps. The cats, on the other hand, confidently walked through, at their regular pace, no more hesitant of confused than when there was light. They have a redundancy of senses, and could probably get by with nothing but their whiskers.
    One huge benefit to cats, though. They consider all humans impaired, so they don't discriminate. You're in a wheel chair? Clever! All humans should be (just keep clear of my tail). You're deaf? Yeah, what human isn't. You're blind? No need to tell me; I already knew you're human. It's equal opportunity condescension.

  • @skybloom1381
    @skybloom1381 3 ปีที่แล้ว +20

    Molly! Sending you lots of love and happiness. I hope you feel all the love you put out in the world.

  • @marienhornyak1941
    @marienhornyak1941 3 ปีที่แล้ว +7

    Girl, I am QUEEN of the missed handshake! 😊

  • @camilleward9157
    @camilleward9157 3 ปีที่แล้ว +2

    I’m just a random girl who loves watching your videos. Not because you make people aware of what it’s like to be blind, but I am in awe of you as a person. When I click your videos, I feel like I’m listening to a down to earth fun friend who is BOSS and can literally make any subject fun to listen to. You’ve got a real gift of being the kind of person who many people dream of being. I can never tell stories like you do- you’re funny and witty and OMG you’re make up is seriously better than a lot of sighted people. You’re pretty and freaking smart as hell. I am straight and married lol so don’t get the wrong impression but I just think that you seriously have more talent in one pinky than I have in my entire body. people won’t ever understand fully the struggle we all have but I commend you for how you handle the hand you were dealt. it makes me sad these things you’ve got to put up with! How frustrating this is.

  • @dramaticgemini
    @dramaticgemini 3 ปีที่แล้ว +1

    Loved this video so much! Thanks for sharing, it really resonated with me! I work with mentally and physically disabled adults and I've seen these situations happen far too often and the reactions some of my clients have is truly heartbreaking.

  • @scguin1080
    @scguin1080 3 ปีที่แล้ว +9

    Molly you have been so inspiring to me. Before I started watching you I barely knew anything about the blind community and I'm so happy that you've been able to teach me so much.

  • @cutemuffins3567
    @cutemuffins3567 3 ปีที่แล้ว +25

    I just watched the Allure video that you did about accessible make up

  • @ericasotto4595
    @ericasotto4595 3 ปีที่แล้ว +4

    I am mentally disabled. I have a debilitating anxiety disorder, and I have a neurological condition called FND. Both of those issues should be treatable on their own, but because the other one is there, in my situation they aren’t. These 2 conditions cause a lot of emotional and mental issues for me like lack of focus/brain fog, depression, panic attacks, forgetting how to speak sometimes, and worst case scenario, PNEs. These have only been this way for the last year. The thing that just reminds me that I’m disabled is when I do schoolwork. I will get so stressed sometimes that I get thrust into episodes of either disability, and I get put out of commission for a bit and then get super scared to go back to it. I used to be a straight A student, and now doing even a half a day of work is really hard. It just reminds me about all the traumatic and debilitating things that have happened to me this year (and even before that caused this to build up) that I will never be able to fully come back from. I can be positive and not think about my situation most other times, but that always seems to push me right back.

  • @kathleenh3762
    @kathleenh3762 3 ปีที่แล้ว +2

    I’m totally blind in one eye, so I’ve been literally blindsided many times before by people coming from my blind side or trying to show me something just out of view (of my good eye) that would be in view of people with vision in both eyes.

  • @conniepowell1596
    @conniepowell1596 3 ปีที่แล้ว +4

    Every time I see you’ve posted o feel all warm and happy inside ✨☺️ I love your content as it always reminds me to be grateful, kind and always look for the adventure in life. Thank you Molly 💕

  • @0Yazz
    @0Yazz 3 ปีที่แล้ว +10

    the point about people who have no interest in talking to you except about blindness is so infuriating. I know this isn't the same thing but sometimes I deliberately avoid mentioning my home country or religious backgrounds etc. because I don't want the conversation to end up being about that, so I know what you mean but recognize that my situation isn't nearly as bad. I'm sorry you have to experience that. broken heart emoji

  • @denali_gsdservicedog7134
    @denali_gsdservicedog7134 3 ปีที่แล้ว +1

    I never understood texture and fabric and how important it was especially for me until I went out with my seeing impared friend and now that I recognize those things it has helped me alot with textile issues of my skin that I never realized was a reaction to the fabric I was picking. Also seeing the world with the blind in mind has changed alot of how I feel some places have huge short comings in access for not only the physically disabled like my self but also for those who are seeing impared. Something as simple as a sight pad drop curb and beeping cross walk is life changing and I dont understand how only the large city's have it. I should be able to go to the store and not have to be in the street because the sidewalks are so unacceptable that u can't even skate on them let alone wheelchair or cane on them.

  • @heyemilyoh
    @heyemilyoh 3 ปีที่แล้ว +1

    1. Your highlight is on point! 🤩 2. I love this so much! Especially the last one. It reminds me of a quote I heard once that said, "If you limit yourself or a person to only being described by one thing, then you miss the million other things to them!" There's so much dynamic depth to every human being and it's worth seeing ✨

  • @makcantrell5840
    @makcantrell5840 3 ปีที่แล้ว +4

    You’re amazing and so inspirational!!! Thank you for helping me through my mental health journey I love you ❤️

  • @MajaLindArntzberg
    @MajaLindArntzberg 3 ปีที่แล้ว +20

    Finally. Just finished my simplynaillogical video. Now i can watch you😍

  • @M3ghan815
    @M3ghan815 3 ปีที่แล้ว +1

    First off you are so inspirational and such a beautiful person!! I personally can not relate to being blind. But I can relate with having a disability and being reminded again and again. I'm dyslexic and every now and again oh it hits hard. But you have come so far girl just remember that!! And even though we don't have the same disabilities/ abilities you still inspire me to become a stronger and better person!

  • @vanessaelsa5983
    @vanessaelsa5983 3 ปีที่แล้ว

    I am so happy that I found you and your channel! (Been subscribed for almost 2 years). You're such an amazing and wholehearted person. Thank you for being you and for being on TH-cam telling your story! ❤❤❤

  • @Siss0rs
    @Siss0rs 3 ปีที่แล้ว +11

    I’m always smiling at dogs on the street and muttering things like “what a floof!” when I walk by them. I never look at the owners hahaha. Great video Molly :)

    • @prudence8808
      @prudence8808 3 ปีที่แล้ว +3

      Ik :3 I'm fully sighted and only partially deaf, but the reason I will never be allowed drive is that I'm constantly on the look out for floofs

    • @SmillyDonut
      @SmillyDonut 3 ปีที่แล้ว

      I love seeing floofs. And asking if they're a boy or girl and their name. And if I can pet them.

    • @legendarybubbles4567
      @legendarybubbles4567 3 ปีที่แล้ว

      Every time I see a dog at work I tend to say “Doggy!” In a semi-high pitched voice. I tend to unintentionally get their attention lol
      I do love it though when the super friendly ones wanna come up to me though. And sometimes I get to pet them 🥺 (With the owner’s permission of course.)

  • @sailormf
    @sailormf 3 ปีที่แล้ว +5

    I love how vocal Lavender is, she’s a great speaker like her mama 💜

  • @jessicamobley3041
    @jessicamobley3041 3 ปีที่แล้ว +1

    I share so many of those with you Molly. I've managed to work out going to thrift stores and doing some craft projects mainly crocheting and knitting I just I have a friend of mine who I can rely on to know colors go with me to make sure everything lines up and find out what is more aesthetically pleasing in what order. The main thing that reminds me that I'm blind is when I'm sitting at a bar or a group event or something where there's a lot of people and I'm just kind of sitting there. I'm not usually very extroverted and I think wow if I could see I could see who's around me I could make eye contact I could see you know who might be interested in talking otherwise I'm sitting here like a bump on a log. And lavender has a fan in my 6 month old kitten Jude as soon as he heard her he came over to watch the video with me.

  • @beautifulsunset4071
    @beautifulsunset4071 3 ปีที่แล้ว

    I love the variety in your videos, whether they be open/vulnerable, educational, story time, day in the life, Q & A, rating fashion/clothes, etc. I also love the sparkly pillows in your background! 🥰

  • @alookinsideablindlife5143
    @alookinsideablindlife5143 3 ปีที่แล้ว +3

    Yes so agree with these !!! Especially the one about people not acting you and asking other then people . And the one about people only want to talk about your disability that annoyed me like there more to me then my disability

  • @walcodebruyn2135
    @walcodebruyn2135 3 ปีที่แล้ว +5

    This going to be good thanks!

  • @HasabeMizurukara
    @HasabeMizurukara 3 ปีที่แล้ว

    Not being able to drive because of my mental health is the BIGGEST thing that reminds me I'm disabled. I hate it. I loose out on jobs, sometimes that needlessly require driving...and I also am left out of so many things. Thanks for sharing.

  • @wesleythewarrior1179
    @wesleythewarrior1179 3 ปีที่แล้ว

    My son is blind and he stares at lights all the time!! It’s so sweet. I’m glad it feels good to you, it makes me feel good for him 💜

  • @kaitlin6184
    @kaitlin6184 3 ปีที่แล้ว +12

    For the phone one, could you call out to Siri? Be like: “Hey Siri! Where are you?” Is that an option?

  • @punkybrewstar83
    @punkybrewstar83 3 ปีที่แล้ว +30

    I've got perfect eyesight, and almost everyday, there is stuff right in front of me that I cannot find for the life of me. Then someone else will walk in and see it instantly. Just because you have good sight, doesn't mean you use it lol 😉

    • @noelthenightowl7589
      @noelthenightowl7589 3 ปีที่แล้ว +2

      Same! I lose my eraser all the time 😭 Same with my phone and pencils..

    • @humanthatexist8257
      @humanthatexist8257 3 ปีที่แล้ว

      Haha feel that
      This one time I was looking for a pair of earring and was on my hands and knees looking for 20 MINUTES and once I eventually gave up I called my sister into the room and I SWEAR TO GOD SHE FOUND 3 DIFFERENT PAIRS OF EARRINGS IN THE SPAN OF A MINUTE
      I mean I’m notorious for being bad at looking for things and she’s notorious for being good at looking for things but I was fuming nonetheless

    • @sadieann1036
      @sadieann1036 3 ปีที่แล้ว +3

      I see that you were trying to relate, but it kind of comes across as gas lighting. I'm not blind, I'm low vision with permanent vision loss. If I loose something, I almost always have to have help. If I drop my glasses, set them on a dark surface, they're gone until my husband can help me. Without my glasses I can't use a computer or most tech devices, the coffee maker, the microwave, take medication, read, find clothes and get dressed.....
      You do use your perfect eyesight and down playing that is hurtful.

  • @Sanity016
    @Sanity016 3 ปีที่แล้ว +1

    -If I were to ever meet someone who I knew was blind I would describe everything I was doing in as much detail as possible, like I would ask, "can I shake your hand?"
    -In one of the first jobs I ever had the new recruits and I went through a sort of accessibility training where we were taught to always talk to the disabled person like they were a regular person and even if they had a friend or assistant with them not to talk to the other person about them and also not to assume that the disabled person was incapable of doing something. (e.g. wheelchair user being unable to stand)
    -I usually try to keep a conversation going with multiple topics and to hear that some people only want to talk about your disability is disheartening.
    -I don't think you should ever feel bad about not being able to do something, firstly whether you think you could do your makeup better if you could see is irrelevant because the fact that you do it so well to begin with is incredible, I personally struggle immensely with writing tasks and executive function so I know there are certain things that I'm just not going to be able to do whether I want to or not, sure there are times when I wish I could but I've learned that what I can do I do really well and I focus on that.
    -I wish there was more understanding about service animals and accessibility, I understand to a certain extent an uber driver not wanting to get their car full of fur, but it is kind of rude and in some cases illegal to restrict access to places and services to service animals.
    -Finally, it is really frustrating when people diminish your accomplishments, but in a very small way they're right, you would likely not be a wildly successful activist and motivational speaker without your disability. you still had to work insanely hard and I don't for a millisecond doubt that you success was directly impacted by the effort you put in, but in this very specific case you disability made you who you are and that's something to be immensely proud of.

  • @HanaTheRussell
    @HanaTheRussell 3 ปีที่แล้ว +1

    I had a similar experience to you when I lived in Japan. You talked about sighted people looking past you and talking to your mom or your friend instead. Even though I speak fluent Japanese, if I had a Japanese friend with me, whoever else we were talking to, be it wait staff or medical personnel, would totally ignore me and start talking to my friend. Very frustrating.

  • @random_hime
    @random_hime 3 ปีที่แล้ว +4

    as a sighted person i still can relate to 4. to like kinda make a quote out of it sometimes the things right in front of your are the hardest things to find.

  • @heartstopperverse
    @heartstopperverse 3 ปีที่แล้ว +4

    I have an eye condition where I can't willing move my eyes left and right, I often miss facial expressions. It's always awkward when someone things something funny, for example, but they 'silently laugh' next to me but I can't see them but then I move my head they are always awkwardly looking at me. ❤

  • @adied5225
    @adied5225 3 ปีที่แล้ว +1

    Well I'm severely deaf and rely on my hearing aids to have a conversation. My wife on the other hand, has amazing hearing that's better than most hearing peoples. I forget and bang doors, accidently shout, and struggle to follow conversations amongst so many other things. Like a lot of other disabled people, and I know you've had issues with this, I get the occasional stupid remark but most people are really thoughtful and try to accommodate my needs. When I was a support worker for people with learning disabilities, I discovered my co-workers had been gossiping about me saying things like "How can he be a support worker? How will he cope?" The excuse I was given was they were concerned about me. I said "If you were concerned you would've spoken to me. Instead you gossiped among yourselves!" I did prank a mate who hates the sound of Velcro. I rang him up ( yes I can hear people on the phone - sometimes) got his answer phone so slowly pulled the velcro apart, then put the phone down. He rang me back a few hrs later laughing and calling me names I won't repeat lol ! So for me it's a tough disability to have but I do try to be positive and have a laugh. Take care and stay safe

  • @vanessaharvey2389
    @vanessaharvey2389 3 ปีที่แล้ว +1

    Thank you for sharing! Your last point was so on point for me. I have a brain injury that caused vision loss. People don’t understand and therefore diminish all I’ve accomplished. And yet they also f do not feel I am capable of doing a lot of things. I wish people were more open to trusting my knowledge of my own limits and being able to accommodations that would allow me to do more.

  • @jasmineleopard7593
    @jasmineleopard7593 3 ปีที่แล้ว +9

    I can’t even imagine how infuriating it is when people talk to the person with you instead of you. Ugh. That makes me mad for you!

  • @ehanoo.ehanii
    @ehanoo.ehanii 3 ปีที่แล้ว +30

    The example u gave of the girl that said , “ what happened to her” definitely a her thing not yours. Some people just be dumb. Common sense is lacking out in the world.

  • @lithafox
    @lithafox 3 ปีที่แล้ว +1

    i've had that first problem for forever, despite being sighted
    this is literally the first time i've heard someone else talk about it
    pretty sure it has to do with my sensory issues
    thank you again for bringing so much awareness!

  • @NahkayNatural
    @NahkayNatural 3 ปีที่แล้ว

    I completely agree with this! I’ve been legally blind since I was 4 & I love that I found your channel. My family & friends always remind me that I can’t see that good. They always treat us like our vision disabilities is contagious or something.

  • @triptorio1376
    @triptorio1376 3 ปีที่แล้ว +3

    Trying to find my glasses when I'm not wearing them is one of the frustrating things that remind me that I have to pay for my sight. And I cannot see in dim lighting. Yay night blindness

  • @jennabreland5261
    @jennabreland5261 3 ปีที่แล้ว +20

    The drivers license requirement seems to be becoming more and more common, rather than less

    • @alyssia7239
      @alyssia7239 3 ปีที่แล้ว +1

      I don't get this. In Switzerland, we have an ID card and/or a passport that have more value that the driver's license. You can leave your passport at home and keep your ID in your wallet at all times. You also can travel in all the EU (schengen area) with only the ID card. You'll need the passport (with fingerprints infos) only to travel elsewhere.

    • @LordofFullmetal
      @LordofFullmetal 3 ปีที่แล้ว +2

      @@alyssia7239 Here (Aus) we have the driver's license, and another card that's supposed to be the EXACT equivalent but without the driving part. You even get it at the same office, from the same people. It's not really normal here to walk around with your passport; most people don't bother keeping their passports up to date unless they're traveling.
      I have STILL had situations where people have told me I can't use that card, because it's not a driver's license. Usually the government who GAVE me the stupid card. What's the point in having the thing, then?? I have it because it's supposed to be the direct equivalent to the driver's license. It's like they're punishing people who can't drive, on purpose.

    • @erinahern7113
      @erinahern7113 3 ปีที่แล้ว

      @@alyssia7239 it's the same in Ireland that we can get a card version on our passport but we can travel with it with European since molly has Irish citizenship she can prob get the card aswell she might not know of it.

    • @dutchik5107
      @dutchik5107 3 ปีที่แล้ว

      @@erinahern7113 yeah but I doubt those people will accept an ID card from somewhere completely different when they aren't willing to take the legal government ID from where they are from.

    • @limiv5272
      @limiv5272 3 ปีที่แล้ว

      I really don't understand why that's even a thing in the US. In Israel we have an ID and that's the main means of identification

  • @CELERITAS-BONITAS
    @CELERITAS-BONITAS 3 ปีที่แล้ว

    Lots of Love Molly! Thanks for being here for us

  • @cecehughleynoel
    @cecehughleynoel 3 ปีที่แล้ว +1

    I hear you, girl. People cut a wide swath around me and don’t make eye contact when I use my wheelchair...or, they just walk really slowly in front of me in the store aisle so I can’t move around them. We call that being “invisibalized”!

  • @emi287
    @emi287 3 ปีที่แล้ว +3

    I hate the job situation, I got hired working on a farm with children, then after a few weeks they found out I was autistic and fired me. Nothing had happened or changed they just said they couldn't "keep an eye on me". Its put me off of trying to go back into animal care or a job with children as I feel people think I'm "dangerous" for a developmental disability, when I've already proved it wrong :/

    • @sofiaescobar4455
      @sofiaescobar4455 3 ปีที่แล้ว +1

      Seriously? That's awful, their loss

  • @jkell2888
    @jkell2888 3 ปีที่แล้ว +38

    Do you turn on lights when you’re at home? Or do you just know your house so well, it’s pointless? Would turning on lights when you’re walking around at home help you? I’m just curious

    • @paulinexong
      @paulinexong 3 ปีที่แล้ว +6

      This is a good question!! I know she was living with her mom for a while in LA (who is seeing, so yeah they'd use the lights) but now that she's back in Canada I'm not sure if she's living with her mom anymore

    • @angelazaino5831
      @angelazaino5831 3 ปีที่แล้ว +9

      I feel like because she has light and shadow perception and craves the visual stimulation that she might but I can remember if she has stated it before.

    • @LordofFullmetal
      @LordofFullmetal 3 ปีที่แล้ว +5

      Someone correct me if I'm wrong - but she has light perception. She can see lights; she's actually pointed out that this is how she knows where the camera is. It has a giant light above it. So I'm sure she uses them when it's helpful to her.

    • @dutchik5107
      @dutchik5107 3 ปีที่แล้ว +1

      @@LordofFullmetal i guess she can move around her house just fine without lights. I think she said it wasn't super detailed.
      But she does crave visual stimulation she gets from lights so probably does turn them on.
      Don't tell me you can't say walk to the toilet without turning on lights, lol.
      But the ringlight around the camera does help her to orient of course. But probably not as practical to use it for everything.

    • @catherinel2288
      @catherinel2288 3 ปีที่แล้ว +1

      @@LordofFullmetal Here's the link to her video that explains what she can actually see th-cam.com/video/oY-VpSQpK-Q/w-d-xo.html

  • @bethanyallen6657
    @bethanyallen6657 3 ปีที่แล้ว +1

    I have RP and I am partially sighted. I can relate to all you are saying Molly. Thank you for making me feel I'm not the only one. Loving that colour on you!!

  • @mikagrossmann5370
    @mikagrossmann5370 3 ปีที่แล้ว +1

    Please continue doing what you do, putting out these videos and raise awareness to your situation and the situations of so many people out there! I'm not disabled at all and yet I identify with many of the things you say. Thanks to people like you, we can make things better and more accessible for others and fix things like talking about a person who is there as if they aren't... PS, the driver's license thing is so strange, I don't get it. There's driver's license - and then there's an ID. I think it's only a US thing.