I can relate to Ros not making firm plans; I hate feeling like I've betrayed a responsibility. If I don't commit, I'm not dutybound, and I'm not being a disappointment. On the other hand, I also need to know when things are happening and I get upset when things don't happen *at that time.*
When it comes to scheduling I'm the exact, perfect blend of both of you. I need a lot of advance warning and I need to know what to expect, but if there's a set schedule I'll be anxious about it coming up, about being trapped in the plan or about not being able to show up to that plan.
This made me feel better. I'm newly diagnosed & have been feeling different when compared with lots of other people's experiences which I've seen/heard/read about, & therefore have been sort of questioning the validity of said diagnosis.. but I guess you're right, maybe I just don't present similarly to many people & everyone is an individual, & that doesn't make me different in a bad way, or lesser, or invalid. I just need to understand myself & how my autism presents a bit more, which I hope I will in time. Thank you for this, both of you. 😊
This is so relatable! I was actually diagnosed almost three years ago and I accepted the diagnosis pretty quickly at first after I did some research and found out that Emily Dickinson has been historically diagnosed with autism because somehow I just understood that everyone presents their autism differently. Then I went to a mental hospital for the first time since I was a teenager a year ago and after that, I went into obsessive research mode constantly trying to prove to myself that I am autistic. This video helped though so incredibly much, helped remind me of what I knew for that first year and a half-- that my autism mixed with my experiences and all the brain damage from medications I have been put on long term and the lovely things like my passionate pursuit of poetry and axolotls and a world where everyone can be happy and safe makes my autism different than others. I am very expressive and naturally, when I am not masking, I talk alot and am very animated with my voice and my hands and I can ramble on for hours-- like I once rambled about a special interest for two and a half hours straight before an ex boyfriend got me to talk about something else... But then there are other times where I feel like a hollowed out casket for myself, like I can't see myself clearly because I am speaking through a tunnel if I even speak at all... My brain is so jumbled so often that I get tangled quite often... I also have trouble functioning in a conversation at all if it is with more than one other person... I am not sure if it has always been this bad as I did have alot more friends when I was younger-- usually like 3 to 4 friends at a time with my one best friend-- and then starting at 14, this number would go down. Alot of people liked me and thought I was sweet and would talk to me and stuff in classes and maybe they were friends... But as the years went on, it became less and less... Socializing has always been hard... I don't know... i think I am being anxious... I hope you are not too anxious...
@@h.e.riddleton1373 I can deff relate to this...I think my brain shuts out why im not friends with anyone no more because when I think of all the "best friends forever" I can never remember why were not friends any more and the most imbaressing thing is contacting these people and it being a really bad reason why we stoped talking or worse to me it was nothing bad, being autistic can be challenging because its really hard for me to understand sarcasm or understand stressful situations because I ither shut down and count till I get to a thousand so when I'm just standing there not saying anything it seems like I'm being an as$hole and instead im trying to cope with a stressful situation. I wish I would have found out sooner that I have autism I found out this year and im 33. Im not mad at all I have it. When I was younger I used to always be interested in people with autism I didn't think of it as something bad I thought of it as interesting. Now that I know I have it makes so much sense N if I was diagnosed earlier maybe I would have Autsic friend someone who would understand why im haveing a off day or understand that I am late or understand why I forgot
I have my assessment tomorrow. When I was a teenager, I used to feel something I called "a rage attack"...Now I remember this one time at a supermarket where there was a baby screaming and crying. Crying babies have always been some sort of a sensory trigger to me, now that I think about it. So I started getting progressively more distressed, angry and nearly tearful. I could never describe what emotions were there, I always thought about them as a mix between anger, panic, fear and sadness, while at the same time not knowing what wss happening to me. Then at some point I felt myself not being able to greet someone we had just came across at the supermarket, feeling this wall between me and socializing. After these episodes I usually reply with very short sentences or look away. Now I think my "rage attacks" were just meltdowns, especially because they were (and still are) followed by a deep and prolonged state of apathy and exhaustion, which I now believe to be a shutdown that follows the meltdown.
I am an autistic who loves loud music, but hates loud SOUNDS. I can tolerate music because I know what to expect but when it's an unexpected loud sound my entire body leaves itself and I cannot function for a bit.
My very first experience with that was a kid busting a balloon in front of me unexpectedly. Oh my God I had loud sudden sounds!! I hate living in the city; I can’t wait to move to a quieter environment!
me too, i also hate overlapping noise, i can kinda deal with it for a short amount of time but then i begin to shut down or have a meltdown if i don’t have my ear plugs or ear defenders lol
I like to listen to my own music pretty loud. I also use that to make myself a "song cocoon" to drown out others sounds (for example when buying groceries or riding on public transport). I hate unpredictable loud sounds/music though. Like radio, non-music sounds in general. I need to know a song so well that I know how and when the singer breathes for a song to feel comfortable.
I like the neurodivergent energy in this video. It's uplifting because it doesn't fit into a conventional way of thinking. Your right everyone is different. One way of understanding this is to realize the number of millions of stimuli we take in through our senses and how the mind processes that information to create our unique individual mind maps. For me, the sound is a big issue. Even the sound of closing doors and cupboards and vibrations wake me up and cause me a lot of distress. I am usually overstimulated with sensory overload but when I shut my senses down, such as by wearing earphones which I have been for over ten years and which they do not always help me, I tend to behave very actively in a way that doesn't suit my environment or the people within it. My inability to understand emotions and deal with them in a completely different way is what my psychiatrist and therapist noticed in my behavior and the therapist said I personalize things. Me realizing this was quite uplifting as though I could now see through the veil of my perception and the world didn't seem such a bad place after all. However, I feel certain people do take advantage of our differences which they see as our weaknesses because we do not fit into the conventional ways of thinking.
I love you two so much. I have just turned 47 and am ready for a diagnosis of autism and adhd. It’s taken a lot of intense denial and pretending to lead to a massive breakdown (6 years of it, and counting) to come to a place of acceptance. I feel strangely validated listening to you both, as you kind of give me permission to be me, by being you. The diagnosis part at my age is proving to be difficult (“why do you want a diagnosis now, this late in life?!”). One day, I will relax enough to simply be, and maybe this chronic state of breakdown will then lift. Thanks for your videos, I really enjoy you both. Thank you!
Hello I'm in the same boat, hopefully going to be accepted for testing age 51. I'm getting over a massive breakdown too. I want the adhd diagnosis so I can get medication to help me. I hope with medication I will be able to read books to educate myself as now it takes me so long to read because I keep getting distracted. I start seeing rythm in the sentances and patterns and not what I'm trying to read. It's so annoying and frustrating. Good luck with the diagnosis. Don't let them fob you off you're only 47 you could have another 30-40 years alive, you need sorting out, because it's too hard if not x
2020 is the year we all gonna GOT IT! I really enjoyed this video a lot, it was nice to have such a chilled out video on autism that helps me see it in a lighter way:) For sure tho man, we are humans
Hearing Ros talk about scheduling was so comforting to me, I relate so much! Also I’m either 45 min early or 20 min late. I never thought I was someone who relied on routines until my own medical issues (I have EDS too!) interrupted my schooling and demolished my schedule. Turns out I kept myself busy to keep a routine! Now I’m just floating...
Well, from the get go, 1:31, you both defy my image of autism by seeming genuinely happy and having this visible to me. Some autistic people I have met present as being bl very "logical" in a way that their emotions present to me, with respect to their facial expressions as being neutral.
OMG, you two are bloody awesome. The clear admiration and support you have for each other is just shining through and your video has taught me a lot. Thank you and keep being 'different', your kind of different is what the world needs to help NT people to understand and become educated on how amazing and diverse people with ASC are.
Last week I was officially #DiagnosedAt40 While watching this video I felt so much permission to just be me. Your content helps fulfill my need for connection and this connection becomes the rays of light that fight off the darkness of loneliness. Thank you
Nylon, I cannot stand the feel of nylon. Even writing this down is making my brain squirm. Apparently, as a small child I was being dressed and it was a new nylon shirt, I just screamed with my arms held out stiff until my mother took the shirt off me. This makes wet weather a problem, as I cannot stand the touch of a kagoule or the sound that the material makes when it rubs together. Crowds with loud chatter are another problem, I eventually feel like lashing out physically at anyone near me if I can't escape, obviously not a great outcome. I have only ever been to Ikea once, it was mental torture and I got very close to a complete meltdown before reaching the other end of the 'Swedish furniture Hell'.
you guys are so great and helpful to watch !! I have been obsessed in figuring out my mental health ever since I was a kid, and now seeing people with common symptoms and feelings just feels great, whether I also have autism or not. definitely gonna get tested when i get da $ for it tho
This made me feel a lot better about myself i also hate microfiber towels thats the type of fabric you were talking about and I also hate the texture of coconut and I always thought it was werid that I lime coconut flavor things but always hated the actual coconut texture it reminded me of soft toenails ew! I wish you both were closer I could see myself become great friends... thats another thing I wish I was normal and had friends but now I kidof understand why im not like other people and thats ok thats ok thats ok thank you for all of your videos purpleella I want to say you and your friend are beautiful and helped me thru this journey
There’s so much wonderful information here!! I hate even being on time, because I feel like I’m late and get rushed!! I would love to go away and not talk about my upset, so when someone pushes me I cry a lot and it freaks them out! I became a nurse years ago but was never successful with more than just a few patients. I’m a home health nurse now and having just one is a relief!! I definitely need my space even inside my marriage. You two are too funny! What a great relationship you have!! Thank you SO much!! 🥰
Hi Purple Ella, I'm not sure if this is possible, it's a long shot but is there any way to ask the advertisers on your channel to have less startling loud commercials.. sometimes I would be listening to your video and you have such a pleasant and calm voice, and I would be totally focused on your video and then a commercial starts and it's 3 times louder than you were talking at and it's like a jolt of panic to make the volume low.. every time. I know there is TH-cam premium but I was just wondering if something can be done with the volume at which the ads run. It's not only your channel, pretty much all of them, but the start difference between your soothing voice and the ads it's most noticeable for me on your channel.
I'm only half way through so far, and i can relate to so much you have both shared. It's almost like a mix of parts of both of you for me. Sometimes the way you both experience the same situation together. I can really relate to feeling different changing things and plans. Haha you guys are awesome, Loved the dance 😁 thank you!
Funny that you say coconut is like eating skin. I am very shameful of it, but I compulsively pick and eat my skin and have done from when i was a very young child, and the eating texture is the same as desiccated coconut - so your comparison is very accurate 😁
The relationships thing. I don’t know if anyone can relate, but I don’t know how much my attitude of “it doesn’t matter if they don’t like me” comes from an expectation of being abandoned by people because it has happened before so why initiate friendships or relationships or if it’s all down to my undiagnosed autism. I wonder what your thoughts on this are.
Your experience may be different but when i say i dont care its actually not precice language, its just a blanket term for a more complicated emotion and me saying i dont care makes me not process the difficult stuff.. maybe thinking about that may bring out how you truly feel, im still figuring jt out myself
Purple Ella, I'm the same with routine and planning. Need to know exactly what is happening and when and if it changes it freaks me out. However my sister is more like Ros. Makes for interesting plans and days out, lol. As you say, communication is key to understanding this xx
I think I know what they mean about “sticky/slimy soft” - there’s a kind of really soft Jersey Bedsheets that are very thin and soft and kinda stretchy/clingy. My best friend LOVES them. I prefer smooth sheets in the summer or fuzzy sheets and blankets in the winter and think his sheets feel disgusting. Meanwhile he thinks MY bed linens feel like “burlap” or scratchy and not even sort of soft.
I'm in between you two when it comes to making plans. I need enough notice so that it isn't sudden, but not so much that it will be on my mind and when it is impending I start to dread it. I need the clear expectations and punctuality, but I'll be late because I got absorbed in what I was doing then realised I was going to be late.
wow, i used to have my ex girlfriend lie on my back when i was stressed out and it made me so calm for some reason. also, the idea of cotton on my teeth makes me want to vomit instantly. so much is making sense edit: boiled zucchini is the bane of my existence
i know I'm late but congrats on finishing university, Ros!! Thank u both for all the wonderful videos. I like showing these to my new friends who might not know much about neuro diversity
Love this! I don't know how I missed this one when it came out. Just now watching and laughing along with you two. That hopeful line about 2020 around the 13:00 mark tho? Groan. 2020 was not to be the year we got it together, was it? Little did we know.
Hearing the F word always catches my attention and makes me click the like button on impulse. I hate the avoidance of it when it is the most appropriate word in so many instances.
i know what you mean about that. Im like that as well i have to be earlier than the time. Just an example my work time is 10pm i show up at 8-9pm. I feel showing up right on time messes with my anxiety and makes me feel i have to rush.
You two are amazing!!! 😭🙏❤️ I hope I have a friend like this one day. I love this video and how you did it!!! It made me laugh and feel understood and even understand myself and my autism more. Many times I actually would have both of your characterists/ways of being!! 😂🙌 - like I don't like having a routine thats strict otherwise it puts mad pressure and overwhelm, so even making plans w ppl is difficult bc I dont know how I'll feel that day, but also 😂 I will be furious if I do make plans w someone and then theyre late, or have to change plans - I cant handle it! I'm like but, we were supposed to meet at this time! 😂 Oh!! And when she was talking about the texture being soft but pulls your skin I KNOW EXACTLY THE FABRIC SHE'S TALKING ABOUT 🤣👏 As soon as she described it I was like OMG no way!!!! I know exactly which fabric lol I hate it!!! 😂 Thanks for being you beautiful souls 💜
Probably related to emotional parts of my Autism more than my personality but whether photos or fur it's animal abuse I don't allow myself look at the results of or I might cry for hours.
For me I have to do certain things exactly the same way all the time, except when I can do them in a very different way XD. It drives my GF crazy! Is it just me or do many autistic people have to "this" in "that" way except when we don´t?
Yup, really confuses my partner. Haha I don't even know how to explain why, when I don't need to do things a certain way, then if he questions why I don't sometimes and do others I struggle to find the words to say why. Expressing my self is a huge struggle unless I am in the right mind frame . Is that an autistic traits? I am 29 and was only just diagnosed with it less than a year ago. But I love learning about it. It's great. I feel like I finally belong somewhere, in a world where I struggle so much. I feel I belong somewhere now it's great.
@@Drakeblood97 Well I’m not sure, I have a few different things made from microfibre, it seems like microfibre can be many different textured fabrics, all called microfibre? It’s confusing, when you buy fabric they usually have different names for identification purposes. I have microfibre bedding from Amazon, it’s toxic & dangerous & very flammable. In my comment, I was referring to a fabric that they use in China a lot - I bought some hoodies on AliExpress, they would say it’s cotton & when it arrives it’s the most awful shiny polyester, feels horrible & gets bobbly (pilled) within a week. Then there are microfibre cleaning cloths, they feel soft & completely different from scratchy texture but still very plastic. Synthetic fabric are extremely toxic to manufacture, they poison rivers & people drink water from these rivers. Even diapers for babies, made from plastic, are extremely toxic but nobody seems to care...
I HATE nylon, it's awful to touch and it's also too common. My flute case is made out of nylon, I hate it, I can barely touch it with bare hands, and even with protection I can't rub it I can just grab it.
Hey, I'm a 19-year-old trying to figure out if I could be autistic, could you explain what does it mean to not be able to handle loud noises? What I've experiencing is that my head hurts and starts ringing from constant loud noise (ex. Loud music, TV, some concerts) or when the noise is sudden and short (ex. something fell off the table and broke, i didn't see it falling, loud bangs) i get startled and jump in my place when other people don't? Is that what regular people experience too or is it sensory triggers? Also I HATE oatmeal porridge and almost all other porridges, also milk and pasta soup (i think it's a lithuanian dish), hate the consistency. I always have a schedule and i really dislike when things fall apart, it stresses me out to the point of crying if it's more difficult to fix my plan, if i have to shift other things
that all sounds familiar. my roommate used to sneak up on me and scare me because she thought it was funny, and one time it jolted me so bad that i kicked a chair over and broke it. everyone looked at me like "bro wtf" but I CAN'T HELP IT YOU SENT MY NERVOUS SYSTEM INTO PANIC MODE
I know that ADHD and Autism has overlap in traits and symptoms. Especially with sensory problems and triggers. I would recommend going to a specialist or licensed therapist to get diagnosed. Unfortunately, it’s still hard for women to be diagnosed properly as with both ADHD and Autism traits between men and women differ, and of course both of them are on a spectrum so everyone differs in their own ways. Hope this is of help! 😊
Few years ago i was diagnosed with borderline persinality disorder.But ive done a lot of search on the internet and i strongly believe that i have sth else or both.Maybe some autistic people like some loud noises
I'm not quite picky about anything, when to do stuff, clothes, music, food, books, films, asisstantce ideas, chores to help with, decorations in my room, wildlife related stuff and other things. But stuff our eyes might react to seriously it's Fourescent lights that stress me quick especially if they're flashing.
@@PurpleElla That's a great answer I don't want to be famous either for the sake of stuff Ella which a lot of people do these days ! Hope you and your family are all good have a blessed day ! 💯
How are us Disabled and Autistic people meant to look like? Dumb statements below. I spent years in a special development school...therapist aid. Yes, I also interact with adult people with this condition.
Disabled / Autistic same class............ The key thing with Autism is the less help we're offered the harder stuff might get. We all have different intention, we just meet so many regular people who hardly admit their own mistakes. We with Autism are different enough to do stuff for quite a different reason. The majority of regular people hardly have any skills to actually read us who have Autism. That's the main issue regular people thinking they know us while actually they don't they're not being patient enough to learn the truth of each Autistic student, they frequently tease us in rude ways thinking we're all the same. But if you have the courage to meet more than one person with Autism you might start realizing the uniqueness of each one. Socializing continuing properly is the thing we need the most help with, mainly because lots of regular people get bored too quick with the way those with Autism communicate quite differently. Plus how often we need help speaking if someone's confused and angry with us at the same moment.
Yes, I have a damaged Brain. I see many similarities with 'normal' people. 30% of my Brain will never recover. Relearn everything. Better cook these days and good with money. Doctors and team are delighted with me...12 years since Life-support and in a Coma. lol I was born, unplanned. So, I slid into this world and shall go, skidding out, on fire, lol. 'Such is life.' (Ned Kelly R.I.P). Still involved with motorcycles ; )
I think you're talking about microfiber cloth. Looks like it feels soft, but actually feels like tiny velcro prics that snag your skin.
I absolutely hate microfiber I don't know how anyone thought making towels or clothing out of it was a good idea
Microfiber is fine for cleaning if I first put nitrile gloves on.
This is what I thought as well. I can’t stand the feeling of microfiber
I can relate to Ros not making firm plans; I hate feeling like I've betrayed a responsibility. If I don't commit, I'm not dutybound, and I'm not being a disappointment.
On the other hand, I also need to know when things are happening and I get upset when things don't happen *at that time.*
Relationships, too: very much like Ros....
this is me 100%
When it comes to scheduling I'm the exact, perfect blend of both of you. I need a lot of advance warning and I need to know what to expect, but if there's a set schedule I'll be anxious about it coming up, about being trapped in the plan or about not being able to show up to that plan.
OMG THIS IS ME AS WELL
I am like that too
This made me feel better. I'm newly diagnosed & have been feeling different when compared with lots of other people's experiences which I've seen/heard/read about, & therefore have been sort of questioning the validity of said diagnosis.. but I guess you're right, maybe I just don't present similarly to many people & everyone is an individual, & that doesn't make me different in a bad way, or lesser, or invalid. I just need to understand myself & how my autism presents a bit more, which I hope I will in time. Thank you for this, both of you. 😊
This is so relatable! I was actually diagnosed almost three years ago and I accepted the diagnosis pretty quickly at first after I did some research and found out that Emily Dickinson has been historically diagnosed with autism because somehow I just understood that everyone presents their autism differently. Then I went to a mental hospital for the first time since I was a teenager a year ago and after that, I went into obsessive research mode constantly trying to prove to myself that I am autistic. This video helped though so incredibly much, helped remind me of what I knew for that first year and a half-- that my autism mixed with my experiences and all the brain damage from medications I have been put on long term and the lovely things like my passionate pursuit of poetry and axolotls and a world where everyone can be happy and safe makes my autism different than others. I am very expressive and naturally, when I am not masking, I talk alot and am very animated with my voice and my hands and I can ramble on for hours-- like I once rambled about a special interest for two and a half hours straight before an ex boyfriend got me to talk about something else... But then there are other times where I feel like a hollowed out casket for myself, like I can't see myself clearly because I am speaking through a tunnel if I even speak at all... My brain is so jumbled so often that I get tangled quite often... I also have trouble functioning in a conversation at all if it is with more than one other person... I am not sure if it has always been this bad as I did have alot more friends when I was younger-- usually like 3 to 4 friends at a time with my one best friend-- and then starting at 14, this number would go down. Alot of people liked me and thought I was sweet and would talk to me and stuff in classes and maybe they were friends... But as the years went on, it became less and less... Socializing has always been hard... I don't know... i think I am being anxious... I hope you are not too anxious...
I feel this so much. I haven’t been diagnosed but am really thinking I might be because it explains a lot
@@h.e.riddleton1373 I can deff relate to this...I think my brain shuts out why im not friends with anyone no more because when I think of all the "best friends forever" I can never remember why were not friends any more and the most imbaressing thing is contacting these people and it being a really bad reason why we stoped talking or worse to me it was nothing bad, being autistic can be challenging because its really hard for me to understand sarcasm or understand stressful situations because I ither shut down and count till I get to a thousand so when I'm just standing there not saying anything it seems like I'm being an as$hole and instead im trying to cope with a stressful situation. I wish I would have found out sooner that I have autism I found out this year and im 33. Im not mad at all I have it. When I was younger I used to always be interested in people with autism I didn't think of it as something bad I thought of it as interesting. Now that I know I have it makes so much sense N if I was diagnosed earlier maybe I would have Autsic friend someone who would understand why im haveing a off day or understand that I am late or understand why I forgot
I have my assessment tomorrow. When I was a teenager, I used to feel something I called "a rage attack"...Now I remember this one time at a supermarket where there was a baby screaming and crying. Crying babies have always been some sort of a sensory trigger to me, now that I think about it. So I started getting progressively more distressed, angry and nearly tearful. I could never describe what emotions were there, I always thought about them as a mix between anger, panic, fear and sadness, while at the same time not knowing what wss happening to me. Then at some point I felt myself not being able to greet someone we had just came across at the supermarket, feeling this wall between me and socializing. After these episodes I usually reply with very short sentences or look away. Now I think my "rage attacks" were just meltdowns, especially because they were (and still are) followed by a deep and prolonged state of apathy and exhaustion, which I now believe to be a shutdown that follows the meltdown.
I have my last session in 6 days. Then waiting for the written stuff. I can't touch the soft clingy thing fabrics. Eeck
Ros is so sweet. Love the smile.
I am an autistic who loves loud music, but hates loud SOUNDS. I can tolerate music because I know what to expect but when it's an unexpected loud sound my entire body leaves itself and I cannot function for a bit.
Oh...Sounds like me.
My very first experience with that was a kid busting a balloon in front of me unexpectedly. Oh my God I had loud sudden sounds!! I hate living in the city; I can’t wait to move to a quieter environment!
me too, i also hate overlapping noise, i can kinda deal with it for a short amount of time but then i begin to shut down or have a meltdown if i don’t have my ear plugs or ear defenders lol
I like to listen to my own music pretty loud. I also use that to make myself a "song cocoon" to drown out others sounds (for example when buying groceries or riding on public transport).
I hate unpredictable loud sounds/music though. Like radio, non-music sounds in general.
I need to know a song so well that I know how and when the singer breathes for a song to feel comfortable.
4:11 “Who am I? Where am I? What’s going on?” This is SO me, I’ve said those exact words so many times 😂
Please take over the world. Turn everything purple!!💜
Yes, do it!!!!
I like the neurodivergent energy in this video. It's uplifting because it doesn't fit into a conventional way of thinking. Your right everyone is different. One way of understanding this is to realize the number of millions of stimuli we take in through our senses and how the mind processes that information to create our unique individual mind maps. For me, the sound is a big issue. Even the sound of closing doors and cupboards and vibrations wake me up and cause me a lot of distress. I am usually overstimulated with sensory overload but when I shut my senses down, such as by wearing earphones which I have been for over ten years and which they do not always help me, I tend to behave very actively in a way that doesn't suit my environment or the people within it. My inability to understand emotions and deal with them in a completely different way is what my psychiatrist and therapist noticed in my behavior and the therapist said I personalize things. Me realizing this was quite uplifting as though I could now see through the veil of my perception and the world didn't seem such a bad place after all. However, I feel certain people do take advantage of our differences which they see as our weaknesses because we do not fit into the conventional ways of thinking.
I love you two so much. I have just turned 47 and am ready for a diagnosis of autism and adhd. It’s taken a lot of intense denial and pretending to lead to a massive breakdown (6 years of it, and counting) to come to a place of acceptance. I feel strangely validated listening to you both, as you kind of give me permission to be me, by being you. The diagnosis part at my age is proving to be difficult (“why do you want a diagnosis now, this late in life?!”). One day, I will relax enough to simply be, and maybe this chronic state of breakdown will then lift. Thanks for your videos, I really enjoy you both. Thank you!
Hello I'm in the same boat, hopefully going to be accepted for testing age 51. I'm getting over a massive breakdown too. I want the adhd diagnosis so I can get medication to help me. I hope with medication I will be able to read books to educate myself as now it takes me so long to read because I keep getting distracted. I start seeing rythm in the sentances and patterns and not what I'm trying to read. It's so annoying and frustrating. Good luck with the diagnosis. Don't let them fob you off you're only 47 you could have another 30-40 years alive, you need sorting out, because it's too hard if not x
I was diagnosed this week
You are lucky to have each other.
2020 is the year we all gonna GOT IT! I really enjoyed this video a lot, it was nice to have such a chilled out video on autism that helps me see it in a lighter way:) For sure tho man, we are humans
Ros- MICROFIBER! I can’t do microfiber either! Or cotton towels or cotton balls
Hearing Ros talk about scheduling was so comforting to me, I relate so much! Also I’m either 45 min early or 20 min late. I never thought I was someone who relied on routines until my own medical issues (I have EDS too!) interrupted my schooling and demolished my schedule. Turns out I kept myself busy to keep a routine! Now I’m just floating...
at my last job, I would get really irritated when anything that wasn't scheduled came up
I feel like you guys have very honest yet compassionate communication and a real close friendship. It’s so lovely to see
I try to explain that to people all the time. We are all different.
Ltme
Well, from the get go, 1:31, you both defy my image of autism by seeming genuinely happy and having this visible to me. Some autistic people I have met present as being bl very "logical" in a way that their emotions present to me, with respect to their facial expressions as being neutral.
Yes, please take over the world!
OMG, you two are bloody awesome. The clear admiration and support you have for each other is just shining through and your video has taught me a lot. Thank you and keep being 'different', your kind of different is what the world needs to help NT people to understand and become educated on how amazing and diverse people with ASC are.
I was just diagnosed and this video helped me SO much. Thank you for talking about your diffrences!
I think it might be microfiber cloth. I hate these especially when I my skin is dry 😖
I love watching the dynamic between the two of you! You are so funny! 💖
Ugh that stiff heavy velvet is the WORST! And dry sponges and microfibre cloths, especially when you already have dry hands! *shivers
Omg i relate to Ros so much! When she was describing the fabric i was thinking the exact same words lol. I know the fabric and cant stand it either.
Last week I was officially #DiagnosedAt40 While watching this video I felt so much permission to just be me. Your content helps fulfill my need for connection and this connection becomes the rays of light that fight off the darkness of loneliness.
Thank you
I'm so glad to hear this.
Also, please do take over the world. Immediately.
Nylon, I cannot stand the feel of nylon. Even writing this down is making my brain squirm. Apparently, as a small child I was being dressed and it was a new nylon shirt, I just screamed with my arms held out stiff until my mother took the shirt off me. This makes wet weather a problem, as I cannot stand the touch of a kagoule or the sound that the material makes when it rubs together. Crowds with loud chatter are another problem, I eventually feel like lashing out physically at anyone near me if I can't escape, obviously not a great outcome. I have only ever been to Ikea once, it was mental torture and I got very close to a complete meltdown before reaching the other end of the 'Swedish furniture Hell'.
swedish furniture hell is right. i cannot bear big indoor shops!
you guys are so great and helpful to watch !! I have been obsessed in figuring out my mental health ever since I was a kid, and now seeing people with common symptoms and feelings just feels great, whether I also have autism or not. definitely gonna get tested when i get da $ for it tho
This made me feel a lot better about myself i also hate microfiber towels thats the type of fabric you were talking about and I also hate the texture of coconut and I always thought it was werid that I lime coconut flavor things but always hated the actual coconut texture it reminded me of soft toenails ew! I wish you both were closer I could see myself become great friends... thats another thing I wish I was normal and had friends but now I kidof understand why im not like other people and thats ok thats ok thats ok thank you for all of your videos purpleella I want to say you and your friend are beautiful and helped me thru this journey
There’s so much wonderful information here!! I hate even being on time, because I feel like I’m late and get rushed!! I would love to go away and not talk about my upset, so when someone pushes me I cry a lot and it freaks them out! I became a nurse years ago but was never successful with more than just a few patients. I’m a home health nurse now and having just one is a relief!! I definitely need my space even inside my marriage. You two are too funny! What a great relationship you have!! Thank you SO much!! 🥰
The fabric description reminded of peaches! They are delicious but horrible feeling to wash them.
Thank god for nectarines
@@sianharper9955 but flavour wise they are completely different.
Hi Purple Ella, I'm not sure if this is possible, it's a long shot but is there any way to ask the advertisers on your channel to have less startling loud commercials.. sometimes I would be listening to your video and you have such a pleasant and calm voice, and I would be totally focused on your video and then a commercial starts and it's 3 times louder than you were talking at and it's like a jolt of panic to make the volume low.. every time. I know there is TH-cam premium but I was just wondering if something can be done with the volume at which the ads run. It's not only your channel, pretty much all of them, but the start difference between your soothing voice and the ads it's most noticeable for me on your channel.
Why do all the people I would be great friends with live in the UK. Pretty sure I'm moving from america.
You are very much like me and my ex(avoidant/insecure), lol. That was one never ending circel of triggers, shut downs and melt downs.
I'm only half way through so far, and i can relate to so much you have both shared.
It's almost like a mix of parts of both of you for me. Sometimes the way you both experience the same situation together. I can really relate to feeling different changing things and plans.
Haha you guys are awesome, Loved the dance 😁 thank you!
Funny that you say coconut is like eating skin. I am very shameful of it, but I compulsively pick and eat my skin and have done from when i was a very young child, and the eating texture is the same as desiccated coconut - so your comparison is very accurate 😁
Like Goldmember
I really enjoy your videos and your a beautiful woman inside and out Very inspiring xx
The relationships thing. I don’t know if anyone can relate, but I don’t know how much my attitude of “it doesn’t matter if they don’t like me” comes from an expectation of being abandoned by people because it has happened before so why initiate friendships or relationships or if it’s all down to my undiagnosed autism. I wonder what your thoughts on this are.
Your experience may be different but when i say i dont care its actually not precice language, its just a blanket term for a more complicated emotion and me saying i dont care makes me not process the difficult stuff.. maybe thinking about that may bring out how you truly feel, im still figuring jt out myself
Purple Ella, I'm the same with routine and planning. Need to know exactly what is happening and when and if it changes it freaks me out. However my sister is more like Ros. Makes for interesting plans and days out, lol. As you say, communication is key to understanding this xx
I think I know what they mean about “sticky/slimy soft” - there’s a kind of really soft Jersey Bedsheets that are very thin and soft and kinda stretchy/clingy. My best friend LOVES them. I prefer smooth sheets in the summer or fuzzy sheets and blankets in the winter and think his sheets feel disgusting. Meanwhile he thinks MY bed linens feel like “burlap” or scratchy and not even sort of soft.
I'm in between you two when it comes to making plans. I need enough notice so that it isn't sudden, but not so much that it will be on my mind and when it is impending I start to dread it. I need the clear expectations and punctuality, but I'll be late because I got absorbed in what I was doing then realised I was going to be late.
I wouldn't mind you both taking over the world. It would be fun 😊
👍🙂
Omg I relate to your friend so much! Can you do more videos together ?
I vote yes
wow, i used to have my ex girlfriend lie on my back when i was stressed out and it made me so calm for some reason. also, the idea of cotton on my teeth makes me want to vomit instantly. so much is making sense
edit: boiled zucchini is the bane of my existence
U should get a weighted blanket
Weighted blankets are very good for coming autistic children when they are stressed and weighted soft toys.
The cotten thing! Also like the feeling of a towel on my teeth. A thing that would never logically happen, but the thought still squicks me out.
I love that too, having someone laying on my back to relax. However, weighted blankets aren't as relaxing..
omg you guys live in Bristol? I've been thinking about moving to Bristol, is it nice there?
yay its ros
The coconut and banana edit was amazing, haha. :D
Finally, someone else who can't stand the texture of coconut!! And yes velvet is eeuyygghhhh..
Thank you! I was really pleased with that edit
“2020, the year in which we’ve got it” - famous last words 🥲
since I got *it* 2 times already.
I LOVED IT! GREAT VIDEO! THANK YOU SO MUCH! 👍👍❤️❤️‼️
i know I'm late but congrats on finishing university, Ros!! Thank u both for all the wonderful videos. I like showing these to my new friends who might not know much about neuro diversity
I'm like a mixture of you both for sure
Love this! I don't know how I missed this one when it came out. Just now watching and laughing along with you two. That hopeful line about 2020 around the 13:00 mark tho? Groan. 2020 was not to be the year we got it together, was it? Little did we know.
Would you PLEASE take over the world!?! It would make it a better place. 😀
Hearing the F word always catches my attention and makes me click the like button on impulse. I hate the avoidance of it when it is the most appropriate word in so many instances.
Shoes are a big thing for me with autism I don't like the feel of cheap shoes and I'm extremely punctual about being on time or earlier than the time.
i know what you mean about that. Im like that as well i have to be earlier than the time. Just an example my work time is 10pm i show up at 8-9pm. I feel showing up right on time messes with my anxiety and makes me feel i have to rush.
I always arrive too early.
Lol. I'm always too late 🤣
Love watching your videos as your so lovely and kind! Ros seems really nice too :)
Does anyone know if Roz (Ros? saw different spellings) is also a content creator? Or public on socials?
Ros is very attractive 😍
No
You two are amazing!!! 😭🙏❤️ I hope I have a friend like this one day. I love this video and how you did it!!! It made me laugh and feel understood and even understand myself and my autism more. Many times I actually would have both of your characterists/ways of being!! 😂🙌 - like I don't like having a routine thats strict otherwise it puts mad pressure and overwhelm, so even making plans w ppl is difficult bc I dont know how I'll feel that day, but also 😂 I will be furious if I do make plans w someone and then theyre late, or have to change plans - I cant handle it! I'm like but, we were supposed to meet at this time! 😂 Oh!! And when she was talking about the texture being soft but pulls your skin I KNOW EXACTLY THE FABRIC SHE'S TALKING ABOUT 🤣👏 As soon as she described it I was like OMG no way!!!! I know exactly which fabric lol I hate it!!! 😂 Thanks for being you beautiful souls 💜
I go through exact same stuff as Ros
Please take over the world. Actually don't stop there. Take over the galaxy!
Great video 👍🏼
Interesting. I related to both. But ,I have multi other diagnosis, since my fractured Skull, 12 years ago.
Probably related to emotional parts of my Autism more than my personality but whether photos or fur it's animal abuse I don't allow myself look at the results of or I might cry for hours.
The absolute WOEST fabric for me I almost can't even touch it it's MICRO FIBRE CLOTH, HELL NO.......RUNFORRESTRUN.
I literally can’t look at clothing buttons which makes life so difficult, it’s called Koumpounophobia
For me I have to do certain things exactly the same way all the time, except when I can do them in a very different way XD. It drives my GF crazy!
Is it just me or do many autistic people have to "this" in "that" way except when we don´t?
Yup, really confuses my partner. Haha I don't even know how to explain why, when I don't need to do things a certain way, then if he questions why I don't sometimes and do others I struggle to find the words to say why. Expressing my self is a huge struggle unless I am in the right mind frame . Is that an autistic traits? I am 29 and was only just diagnosed with it less than a year ago. But I love learning about it. It's great. I feel like I finally belong somewhere, in a world where I struggle so much. I feel I belong somewhere now it's great.
“What are we going to do tonight Brain?”
“Same thing we do every night Pinky! Try to take over the world!”
the worst fabric is the plasticky fleece material, eeeek
Microfiber
@@Drakeblood97 Well I’m not sure, I have a few different things made from microfibre, it seems like microfibre can be many different textured fabrics, all called microfibre? It’s confusing, when you buy fabric they usually have different names for identification purposes. I have microfibre bedding from Amazon, it’s toxic & dangerous & very flammable. In my comment, I was referring to a fabric that they use in China a lot - I bought some hoodies on AliExpress, they would say it’s cotton & when it arrives it’s the most awful shiny polyester, feels horrible & gets bobbly (pilled) within a week. Then there are microfibre cleaning cloths, they feel soft & completely different from scratchy texture but still very plastic. Synthetic fabric are extremely toxic to manufacture, they poison rivers & people drink water from these rivers. Even diapers for babies, made from plastic, are extremely toxic but nobody seems to care...
Please take over the world. It's kinda been 💩
As regards a texture I dont like , the microfibre towel is disgusting even thinking of it makes me feel yucky
I like those but absolutely not for cleaning! Thinking about using those for cleaning makes me ick
Love this video.
I HATE nylon, it's awful to touch and it's also too common. My flute case is made out of nylon, I hate it, I can barely touch it with bare hands, and even with protection I can't rub it I can just grab it.
Hey, I'm a 19-year-old trying to figure out if I could be autistic, could you explain what does it mean to not be able to handle loud noises? What I've experiencing is that my head hurts and starts ringing from constant loud noise (ex. Loud music, TV, some concerts) or when the noise is sudden and short (ex. something fell off the table and broke, i didn't see it falling, loud bangs) i get startled and jump in my place when other people don't? Is that what regular people experience too or is it sensory triggers?
Also
I HATE oatmeal porridge and almost all other porridges, also milk and pasta soup (i think it's a lithuanian dish), hate the consistency.
I always have a schedule and i really dislike when things fall apart, it stresses me out to the point of crying if it's more difficult to fix my plan, if i have to shift other things
that all sounds familiar. my roommate used to sneak up on me and scare me because she thought it was funny, and one time it jolted me so bad that i kicked a chair over and broke it. everyone looked at me like "bro wtf" but I CAN'T HELP IT YOU SENT MY NERVOUS SYSTEM INTO PANIC MODE
I know that ADHD and Autism has overlap in traits and symptoms. Especially with sensory problems and triggers.
I would recommend going to a specialist or licensed therapist to get diagnosed. Unfortunately, it’s still hard for women to be diagnosed properly as with both ADHD and Autism traits between men and women differ, and of course both of them are on a spectrum so everyone differs in their own ways.
Hope this is of help! 😊
Just noticed Ros is a TaeKwonDo person. Excellent.
This video is fantastic!!! Thank you!!
Few years ago i was diagnosed with borderline persinality disorder.But ive done a lot of search on the internet and i strongly believe that i have sth else or both.Maybe some autistic people like some loud noises
I've adhd too so it's dopamine blast. loud music
This made me laugh. Awesome video
No. Fleece. Ever.
i now have the urge to chew on my fingers, after hearing about the coconuts
Ros, is it like that synthetic furry stuff? (that you can't stand)?
i cant stand jeans and ground meat
Coconut is quite destuging even I don't like it but I'm more interested in apples and grapes
love yall
👾👾👹👹 world domination 👹👹👾👾
I hate loud music, bright lights, any loud sound really 😅 also I don’t like the feeling velvet on my skin or lace
I'm not quite picky about anything, when to do stuff, clothes, music, food, books, films, asisstantce ideas, chores to help with, decorations in my room, wildlife related stuff and other things.
But stuff our eyes might react to seriously it's Fourescent lights that stress me quick especially if they're flashing.
Loud noises are quite scary
I can’t stand the feel of grass under bare feet
I have a question would you like to be a famous youtuber ?
I would like to have a large audience so that I can raise awareness and support for autistic people. I do not want to be famous for the sake of it.
@@PurpleElla That's a great answer I don't want to be famous either for the sake of stuff Ella which a lot of people do these days ! Hope you and your family are all good have a blessed day ! 💯
What if i am both of u girls…
Please take over the world... :/
they look like an awesome person!
Chenille
How are us Disabled and Autistic people meant to look like? Dumb statements below. I spent years in a special development school...therapist aid. Yes, I also interact with adult people with this condition.
Disabled / Autistic same class............ The key thing with Autism is the less help we're offered the harder stuff might get.
We all have different intention, we just meet so many regular people who hardly admit their own mistakes. We with Autism are different enough to do stuff for quite a different reason. The majority of regular people hardly have any skills to actually read us who have Autism. That's the main issue regular people thinking they know us while actually they don't they're not being patient enough to learn the truth of each Autistic student, they frequently tease us in rude ways thinking we're all the same. But if you have the courage to meet more than one person with Autism you might start realizing the uniqueness of each one. Socializing continuing properly is the thing we need the most help with, mainly because lots of regular people get bored too quick with the way those with Autism communicate quite differently. Plus how often we need help speaking if someone's confused and angry with us at the same moment.
Fun video thanks me got autism ddlg abdl age regression little space my channel
I love the color purple! And I’m autistic. 😊 I love your optimism. I hate the smell of gasoline. Yuck! And I hate motorcycles.
How redundant. All People are different.
All people have more commonalities than they have differences.
pretty sure that all of my quarks, while they are going around indeed, are not anyone else's while they reside with me...
For sure.
All of my quarks are not anyone else's while they reside with me, too.
We're so similar! 😉
Yes, I have a damaged Brain. I see many similarities with 'normal' people. 30% of my Brain will never recover. Relearn everything. Better cook these days and good with money. Doctors and team are delighted with me...12 years since Life-support and in a Coma. lol I was born, unplanned. So, I slid into this world and shall go, skidding out, on fire, lol.
'Such is life.' (Ned Kelly R.I.P). Still involved with motorcycles ; )
That's the point, that autistic people are people, which people often forget when thinking about us.