I’ve been paralyzed for 3 years and here is where I am at... life update
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- เผยแพร่เมื่อ 7 ก.ย. 2024
- Heyyy friends, I hope you enjoy the video!
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little bit about me:
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I’m 15 years old and paralyzed from a staph infection a year ago. Just trying to have some fun. I love to make videos and edit. them I also love beauty, fashion, hair and so much more. I hope my channel can show you a little bit about my life. I hope that videos inspire you and just really help you get through your day, one day at a time. I love you guys and hope to see you in the next video!!
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Girl, the algorithm loves you today. Your original story time was recommended to me, then so was this one, and here I am. 🤩
Same here but 2 wks later it showing up in my recommendations. 😊. Awesome!
mee too !!! Glad I watched! Sydney, you have such a lovely spirit and a true heart!
Yes! Same here!
Same here
Me too
When you talk about everything going to be okay….. when I was 20 years old, my mom was in a car accident that left her in a coma for 2 months. When she awoke, her personality was very different. I remember being so upset. I couldn’t accept any explanation I came up with as to why this happened. One day I was complaining to my dad about it. Saying maybe mom should have died. I will never forget his answer. He said he is so glad mom didn’t die. It’s okay. That life is short and his job is to take care of her and someday she will be made perfect in heaven and he can wait. Well! That made everything okay after that. Somehow his words healed me. It actually has made every obstacle in my life okay. Life is to learn how to love. That is the test
Praying for you and your mom and dad 🙏🕊️
Wow Best Wishes to you and your family
YOU describing your Dad's AND your Mom's and your experience
BLESSED me SO very , very much !
I totally understand what you mean about a changed personality post-coma. It happened to my best friend and college roommate. I remember how hard it was and I pray for you and your family.
We
I just watched your story about being paralyzed and I looked at you channel and saw you just posted this video! you are an amazing person, thank you for sharing with us💗 hope you have an amazing 2022
Same. I didn’t even search for it. It just popped up and I found it interesting. So I followed to her channel and saw she had just posted this 32 minutes ago.
Same!!! Literally just watched that same video!
Same here!!!
Same here 😄
I am so happy to see that Sydney is getting new subscribers to her channel. She is such a sweet and intelligent young lady. She’s been through a lot and has handled it with grace. I hope she’ll get a million subs or more. Look out for her clothing line, single soul, she has some really gorgeous clothes.
"A different life, but still an amazing life" WOW. I have a severe mental illness and I constantly wish I was "normal" and didn't have all of the challenges and emotions that I have to deal with. This quote is so inspiring and is making me look at things differently. It makes me think that I need to give up the notion and desire to be normal... and have a Different, but still an Amazing life. Thank you so much for sharing your journey and outlook.
definitely was a hard thing to accept but once you do you realize normal is overrated:)
Normal is over rated!! I am physically handicapped as well, but I still have a amazing, wonderful life! We can take heart that the pain we endure here is temporary, for God is faithful to see us through...I give all the credit to Jesus Christ, who came to save the world. He saved me in a huge way! I will be grateful and blessed for eternity...❤
I share the wish i were "normal "... I too have mental illnesses, from Traumatic events I couldn't accept or handle. Depression., Anhedonia is so inhumane to experience. I'm so unable to do anything, or go anywhere. It's mentally paralyzing, stuck in negative quicksand. I too seek inspiration. T.Y.⛓️🫶⛓️
Don’t worry about how often you say “like”. 😉 You are being YOU and that’s what we LIKE! ❤️
I am paralyzed from the knees down , , and I have Spina Bifida, I love that I can experience way more things in life than able bodied people . I love listening to you speak , you really should go all over and be a modivational speaker. Live life to the fullest, :)
“I still got this but I’ve got this in a different way” WOW girl! You are a gem. I’ve been encouraged by this vid and the “how I” story that popped up on my suggestions.
As a 30yo woman who was disabled at 20, I really appreciate hearing about your journey thus far. I completely understand what you mean about how you wouldn't necessarily choose this situation but don't regret the process of becoming who you are. I still sometimes mourn the opportunities and experiences I didn't have as a function of my illness, but I'm also shamelessly proud of who I've become. I'm a firm believer that bad/traumatic things aren't "meant to be", but I do believe that terrible events can push us to do incredible things. And although my life didn't follow the trajectory I thought it would, I am still growing and improving and achieving in my own way. Seeing you reflect so eloquently on your experience is inspiring to me even 10 years on. It's true that things DO get better. Maybe not in exactly the way we expect, but there are so many ways for life to be good.
I'm sorry you are disabled. :( Bad and traumatic things are only a part of our experience because our world is under the curse of man's sin. But God sent his Son to die to bear the punishment of the sins of all those who would trust in him. Please turn from your sins and ask God to forgive your sins because of Christ's sacrifice.
Hi,.. I wanted to say You're comment, really was inspiring for me. I'm unable to accept what happened to me.
Things can't be the way I want them. The way I've planned everything. Not being able to do the activities and hobbies I loved. There's more of course 😢. Depression hit me. , which made everything worse .. takes the want to live away. ... im struggling so badly. T.Y. 💕for being so strong, and a positive, attitude. 🎉
Everybody...paralyzed or not has bad days... I admire you for looking at life positively and pushing forward
Way to go, girl! The "club" of being a person with a disability is the ONLY club that ANYone can join at any time in their lives. We are all one illness, injury, or accident away from becoming a full-fledged member. Love your story.
I am slowly going paralyzed and have been in an electic wheelchair. You're story is amazing and how you handle it is awesome. God bless you. You are an inspiration to me and I am so impressed with your attitude and self confidence. We will walk again this life is short. I'm sure you are an inspiration to many. I hope you do everything in life you plan and I pray you stay as strong as you are. God bless your heart.
My 8yr old daughter has cerebral palsy and also had a right hemispherectomy when she was a baby... so her left side has been paralyzed since she was born. She started walking recently with a walker and then a cane... now she can take a few steps alone. She loves to watch videos about other younger people like her. So thank you for sharing ❤
Your " how I became paralyzed overnight" popped up on my feed. You are an amazing young woman. Great things will happen for you, thank you for sharing your story.
I’m absolutely amazed at your intelligence, maturity, wisdom, strength and positivity. Much love.
You're tough as hell and from your story it looks like you've been tough even before the spinal indury. I don't know where do people like you come from but truth is you'd shine regardless of any shit life would or would not throw at you and this is a one in a billion chance of being that kind of person
This is actually the nicest comment! Thank you!
One of my friends from high school experienced a spinal cord stroke when she was young and had to navigate her youth so differently than the rest of our class. She just graduated college and from the outside looking in, it looks like she absolutely crushed it. Her college experience seemed to be so full of life and the same as her other peers. You’ve got this, your path may be different but you can do anything you want!
My husband lost the use of his legs and in a wheelchair. After all the medical, we started physical therapy but I felt he needed more. I got him to a gym and a personal trainer. It took several months and baby steps. His muscles were gaining strength. He is now walking, not great, but he is walking with a brace on left leg. His left foot doesn’t work but race helps. This is just an idea for you.
I'm one of those who just watched your vid from 1.5 years ago. It was recommended and I'm glad it was. I bet your parents are so, so proud of you.
Thanks for sharing your experiences. My daughter is quadriplegic, and this helps (in a way) to understand how she feels. God bless you!!
Honestly,,you have insight beyond your years. You are truly an inspiration!!
I never knew people who were paralyzed could possibly walk again...that is so cool and inspiring to know! I was hit by a car last year and had to relearn how to walk properly while using a walker for a couple months, and it was so hard to deal with everything taking longer and being more complicated to do. I'm glad you are healing and feeling happy, Sydney; your story is so inspiring!!!
I, also, just came across your video that explained how you became paralyzed. Unbelievable, but it happened to you. You're an incredibly strong, positive and vibrant person. How wonderful that you're sharing story and working so hard to give your life purpose as well as inspire others. The best of all things to you! You are definitely a winner!
Thank you for sharing your story. We are sharing similar issues with being incomplete paraplegics. Mine was caused by a blood clot during or right after a spinal surgery and left me paralyzed from the hips down. I am at 2 1/2 years and I have heat, cold, touch and movement. Some strength, good strength in my left leg and some strength in my right leg. I am working on getting a new wheelchair that fits me. I’ve been using a transport chair from Walmart since the day I got out of the hospital so and I’m also trying to get more physical therapy I got new insurance as of this new year, my old insurance was just too difficult to get physical therapy so hopefully I’ll be up walking right behind you. stay strong
As a 26 year old female, I can certainly say you are wise beyond your years. It's truly amazing to hear your story and see how positive you have been from day one. Mindset, outlook and perspective truly is key. Thank you for being an inspiration and sharing your bright light. The world truly needs more beautiful people like yourself. God Bless you Sydney
Girl I think you might be the most positive person I’ve ever heard speak in my 34 years on this planet. I’m so glad your old video from a year ago popped up in my recommended bcuz I needed these positive vibes! At such a young age you are so emotionally mature it is truly amazing. And not to mention you are SO strong! Happy new year, I know you will make 2022 your best year yet! 💕
You are such an upbeat positive young lady. I am glad your recovery has gone so well.
You explain yourself so we'll, this has made you so aware of everything you have to do to live your life, you are showing people to see how life can throw you a curve ball and to see how you deal with it, you are growing spiritually knowing you have such awareness and keeping the positive coming, your a earth angel without your wings
thank you!!
You're looking so good Sydney! I am very happy to hear that you're making progress and moving forward with your life. I am so proud of you :)
What an extraordinary young woman. Obviously very bright, but My God! The upbeat attitude, the perseverance, the sunny disposition is almost beyond belief! What an inspiration. I will tell anyone having a bout of self pity to check her out.
Its true. It took 3-years before I felt I’m going to be okay - I am going to move on with my life and be happy regardless of my disability. I wish it was different but as you say we can’t change it so we have to deal as best we can. I am proud of you and what you’ve accomplished! ❤
OMG......you are AMAZING!!! Right toes and a couple left toes from your 1st video. WOW WOW WOW You are truly an inspiration to everyone. I am a nurse and listening to you is fascinating because most of my patients under the circumstances, do not speak like you. Positive and pushing forward with the good and challenging! Love you Gurlllllll 🥰
thank you!!!
I just watched that video this morning!! So good to see you truly being happy, and making progress. It genuinely is inspirational to me to see you so full of joy. You’re amazing ❤️
Going straight from the video of how you got paralyzed to this one is a big shock because you’ve grown up so much. I love your videos. I love your style. You really are such a positive person.!
You are such a beautiful girl in and out. Keep that beauty in your soul ❤ may God help you every moment of your life
wow your story almost brings me to tears hearing how you have overcome this and you are a inspiration to so many people. My friend just died of cancer last wednesday and watching you being so positive and strong about such a hard situation is really encouraging. God has a plan for all of is and thank you so much for being a inspiration❤️.
I send you much courage to get through it 💞
I’m so glad you posted an update on your condition. Seeing you now being just as positive as you were in your last video doesn’t surprise me. You’ve grown so much and still just as beautiful. So happy you’re living your best life and still fighting to walk. I do believe everything happens for a reason. You have so much to look forward to. You’re life is just starting so keep pushing through. Wether you walk again or not you’ll still have everything you want and need living your best life. Keep up the great work. You’re amazing and a true inspiration to others.
I'm so impressed at how positive you are - you are intelligent and you are finding joy in your milestones - keep up pushing forward and grabbing life! I know what you mean by nerve pain - I have had 6 back surgeries and I have nerve pain so I know how much that hurts and numb areas on my legs but I can walk - I use a cane and the more I walk my legs get weaker but I deal with it - I also have fibromyalgia which when it flares up laying down on my bed hurts, the feel of my pajamas on my skin hurts, I walk around trying not to touch any where on my body until it eases up which I'm sure looks pretty funny 😄 - I'm a grandmother so I'm much older but I love your true joy 😁 😄😄😄❤️❤️❤️🙏🙏🙏🙏🙏🙏🙏
I was amazed by your attitude when I watched your story video. I only watched it yesterday. I did not comment because I thought, oh she probably does not even look at those comments any more..😊
But to be recommended a new episode so quickly I just wanted to take the time to say this.
There is a middle aged woman on the other side of the world, throughly impressed. Go you.
thank you!
your story is affecting so many people so i understand what you mean when you say you would not change being paralyzed - much love to you
Just watched your video of three years ago, I had to listen. Being retired from orthotics, making braces, etc. It’s great to hear that you’ve got some return, I hope that continues. Are you taking vitamin D for keeping strong bones. And there’s other vitamins for spinal injury. Bracing can be good for circulation, and better for your internal system. You have a beautiful personality, I’ll be following your progress. Thanks for getting your story out there, I think you will help others.
Your soul is beautiful and you are beautiful. I love how your brand represents your journey pls so man others even if its not being paralyzed. Each and everyone of us are single soul and you make me see how beautiful it is when we all come together. You inspire me so much, you are amazing. 🌻✨🦋
You’re such an beautiful soul! I think you and Makayla Noble need to talk and have an inspirational program. You’re both the same age and are such similar bright lights. Your experience and amazing recovery would be so good for her. So amazing.
yess! i need to reach out she is so amazing!
TH-cam algorithm led me to your video about how you got paralyzed, which I just watched last night. You are wise beyond your years. Wishing you much love and strength with regards to your recovery. Will keep on watching your channel for updates.
I am amazed at how well you explained everything in your first video about how you became paralyzed and how calm you stayed. Every movement and new action is a milestone and thankfully modern medicine/therapy/orthosis makes it so much better for SCIs. As a physical therapist assistant, I just wish you the best in life in general, keep doing what you’re doing and continue to share your story!
Your future will be bright missy! And YES you will find love.
Oh yes Sydney there are boys that will love you because of you, they won’t care about the wheelchair. In the meantime, ignore the jerks that want to hurt you or treat you different. You’re a strong and intelligent young lady and you’re also extremely beautiful, you have so much going for you. I pity anyone that can’t see past their noses at the beauty and light you bring.
you are so upbeat and uplifting. it's amazing listening to your story and your attitude. incredible
Your video from 1.5 years ago was recommended to me and then I saw this one and was like oh my gosh, she's grown up now! hahah. I had to watch the update video. Love your positivity. Wishing you all the best and sounds like you're making progress everyday. Good on you.
you GO GIRL Absolutely love the positivity flowing in this video. Keep up the great work.
Just think where you will be in another 3 years!! You are definitely an inspiration to more than one❤️
Amazing story! You’ve been through more than many adults can handle and have a more mature and positive attitude than most. I hope you fully recover and achieve all your life’s goals 🙏👌
Your story is SO inspiring! Thank you for sharing your story and showing real happiness in spite of the circumstances! You are loved by many!!
You’re so right!!!
Her original story was recommended to me as well as I had watched another story about the cheerleader who became paralyzed so now I'm pretty sure I'm going to get all kinds of these haha. I'm just so intrigued by how people cope in these situations, it's really encouraging to me. Side note, what a difference 3 years makes, I was like woah is that the same person???
i’m applying to med school this year and came across your other video which left me in tears, but i’m glad you made some progress!
TH-cam recommended your original video to me and I was so happy when I saw that you recently posted this update! I can tell that you've grown and matured so much since then and there's no doubt that you have a bright future ahead of you
Same here
I've been watching your channel a few weeks now, you're actually only one of the ten I'm subscribed to. You are such an inspirational and positive person. I like how you started a business, I am an entrepreneur myself and actually cannot verbally communicate because of anxiety but hope to continue to do better.
thank you for your support and your kind words! wish you nothing but the best!
I found your channel a couple of days ago and I have already seen a lot of your videos. I admire your strenght and your braveness, you're so mature for your young age. Thank you for sharing your story, you're truly amazing
Your an amazing person. I wish I had your positivity, you have made me realise you can overcome anything with the right positive attitude. Thank you for sharing. Many blessings for 2022 and your journey forward 💖
The story of your paralysis popped up in my recommended today, and admittedly I don't know why, but excellent story ma'am. Glad you are seeing some improvements and are exceedingly happy. Maybe not wholly satisfied, but few are wholly satisfied no matter their condition. Your comments about your acceptance and relative satisfaction with your circumstances, and your story about the other paralyzed gentleman you met, reminded me of the story of a blind lady: Fanny Crosby. She went blind when she was extremely young, might have been born blind, I don't remember right off, but was quite satisfied with her circumstances and, like you, found the best in it. Once she was told it was a great pity she was blind. She responded that she was happy blind and that she wouldn't want it any other way. The other person, rather taken aback, asked why. Her response was that the first thing she wanted to see with her eyes was the face of her, our, Savior. She continues on that topic in her song "My Savior First of All."
You’re such an inspiration and an awesome and amazing human being. People should take notes on your outlook on life because it’s stellar ✨ Of course bad days happen, but that energy of acceptance, along with hope and never giving up is so important. Just wanted to let you know that you’ve inspired me and say thank you for being you! 🥰
Thank you so much!!
You are making progress and I know you will never give up. I know a wonderful person that's been on crutches her whole life practically and just recently had to go to a wheel chair. She had polio, but went on to become a teacher and a very productive life. She's now retired and very pretty like you. I admire your courage and you are helping a lot of people. God bless you.
My father worked at a hospital transporting patients for the nuclear medicine department and one of the two doctors that worked there had polio as a kid and had to use the forearm crutches to get around, he was top level genius and was well respected.
Maturity levels is awesome for such a young person. Thinking positive is what makes you special.
You are wise beyond your years and are such an inspiration to us all!!
Just like you stated, I am here from the video you did telling how you got paralyzed. It was in my recommended for several weeks. I am a grandma. With a special needs grandson that I am helping raise. His mother was left in a vegetative state from a car accident. I saw your sweet young face in the thumbnail, and just could not bring myself to watch. But, today, I did. I am so happy that I did. Your attitude is so perfect! I am blessed to have watched!
I want to share something. With the knowledge, that, I do not have any medical training. I am just someone with lots of exposure to medical things, because of my life. Including spinal issues and chronic pain of my own. But this really comes from a book I read, about Christopher Reeves. He had a therapist, who had a theory, and was trying it out with him. Now he had a spinal injury. So different than you. But the nerves work the same way for everyone. This is what they did. They started with his little finger. He wlooked at his little finger, and thee therapist moved it. Like bent it, then straightened it. In his mind, he would think, to move his finger in that movement. He did this several times a day. With the idea, that the body, would repair the connection. The body is an amazing thing with amazing healing ability. The amazing thing was, he was beginning to be able to move that little finger a little bit. But, unfortunately, he passed away. I think there may be something to this. Just from my own experience with spinal issues, and other injuries. Specific one, a severed. Nerve in my forearm, from a dog bite. I felt it snap! My thumb on my left hand, was completely numb. I could move it though! Well, after reading that book, I began to do basically the same thing with my thumb. Today, I only have a spot, about the size of a quarter, on the top of my hand, that is numb. But I have full use of my thumb again. And feeling back in it. Granted, you have legs to recover! But, you are young. You mention in the video, that it’s hard for you to “remember” how to move. Maybe, do this with your mom. Several times a day if possible. You can even do it on your own. Every time you move your leg, touch your leg, anything, in your brain, THINK about making your leg move, the way you are moving it with your hand. The leg/foot, still has the nerves in it. The nerve, down the spine, to the spot, of infection, is still there. It just needs to find a way to connect, and replug, into each other. It can’t hurt! It has validity, when you think scientifically. The brain, will actually repair itself, and put old functions, in a different part of the brain, if it is injured! My daughter in law has begun to speak, after eight years! She is coming back! From a traumatic brain injury that left her in a vegetative state. That is a severe example. After three years, I regained full use of my thumb, and regained most the feeling in my thumb/hand. Which is a minor example. You fall somewhere in between the two. I think the key is, repetitions! I believe the body tries to repair broken nerve connections. But if the mind, and the body part, don’t send out the signals together, at the same time, then the two ends just miss each other. Not being able to meet up in the middle, and reconnect. I hope this is making sense. Watch some videos about how signals are sent, from the brain to a muscle, and from a muscle, or skin, to the brain. Having an understanding will help with this. I think Christopher Reeves therapist was onto something. I believe he was actually correct. And on top of this, you have muscle atrophy. So, you can make a connection with the nerves, but if the muscle is not strong enough to accomplish the move, it may seem like, there is no connection. But, if the nerves reconnect, and you continue to try, and work those muscles, eventually the muscle comes back. I have a few different problems in my spine. I have two vertebrae in my neck, that grew together, on their own. It caused me many issues with my right arm. It has been ten years since the worse point. And the muscles have rebuilt. The pain has lessened. And the strength is slowly returning. I believe it can be done. It might take you ten years to return the use of your left leg. But the ten years are going to go by anyway. You will be moving your leg and foot anyway. It doesn’t take anymore time to just THINK THE THOUGHT. Like if you are putting on a sock, imagine in your mind, the sock is on my toes, up on my arch, over my heel, on my ankle. THINK what your brain would have received, if you were not paralyzed. Look down at your foot. It is spitting on the foot rest. Lift your leg up. THINK, my heel is off thee foot rest. Think “put my foot back down” THINK THE MOVEMENT, as you lower your heel back to the foot rest. When you pick you leg up, to move it, like in bed, THINK THE MOVEMEENT, as you manually move your leg. Touch your thigh, and THINK about the feeling of your hand touching your thigh. The signal, of all these things, are coming from your leg, traveling up the nerve, and when it reaches your spine, the path is broken. So the signal never makes it to your brain. And from what you stated in the video, there has already been some confusion, in your brain, to certain nerves. You stated you can’t remember how to make certain movements. That is alright! When you do this exercise, just always think it, the same way. Your body will know what to do. It will become easier over time! It starts out, very confusing. Just focus, and eventually, it becomes second nature. And the improvements are so slow, that one day, you realize, there has been a lot of improvement, you just didn’t realize it, because it was so small. That is what happened with my thumb. I realized one day, that the full range motion of my thumb, was back! And I realize, it had slowly been returning. Just such a small improvement, that it could not be registered or noticed, until the improvement was significant enough, to be noticed. Hope that makes sense. And I am not saying you will get completely full use back. Im not saying you will be able to be a ballerina or something. But I believe you could get back enough, to walk again! I fully and truly and completely believe this. Cause you already have the main, most important. Part!!!!! A GREAT ATTITUDE!!!!
Well, that’s just this old KY grandmas thoughts on the matter. You are such a precious soul! I wish you many happy years! Wherever it is, that your journey takes you. Much love
I wish I was like you. Mindset wise. After being diagnosed with leukemia 5 months ago I struggle with panic attacks and anxiety. I know our stories are different but I use to think the way you think until I got older. I'm 29 and I feel like when I got older I lost that inner child and optimistic thinking. You're doing great and will continue to do great things and inspire people.
"I just watched your other video about becoming paralyzed. Left a comment, then decided to check your YT channel out. Clicked on this video to see how your doing. You really encouraged me. And wanted to thank you for sharing your struggles and accomplishments. It made me appreciate all the things that I have. My thoughts and prayers for you, family, school, etc." - Tom
I’m a 23 year old Canadian girl and randomly came across your video from last year. Everyone always thinks I’m older than I am and an old soul, mature, etc. but wow! You are so wise for your years and so strong it’s really inspiring to everyone. I think in a way it did happen to you for a reason because you will help so many people as well as educate so many others. You have glowed up big time since the other video too. You are a gorgeous, strong, independent woman and I hope your life continues to be everything you want. I don’t know why that other video is being recommended to everyone but I’m glad I came across your channel 😊❤️
Saw your OG story today as well and now watching this!!! Thank you youtube for pushing Miss Sydney on the algorithm today!
You are a beautiful soul and person. I admire you to the fullest. God is using you to touch many lives. I am a Grandma and I am so proud of who you are. Your testimony is just awesome. I might ad I think your shirt says Maui I am just saying you could learn the ukulele on you tube. There are many teachers on the you tube. Cynthia Lin. You are beautiful and God is using you. You can do so much more than I can do you are awesome
Hi there! You mentioned that you had no idea why your original video that you made 1.5 yrs ago is blowing up. There is a gal in TX that suffered a spinal cord injury very recently. She has a huge following and I think from subscribing to her your channel is being recommended. You two should connect. You guys are the same age and have a very similar attitude towards your condition and potential for recovery. Her name is Mikayla Noble. You are awesome and I wish you the best of luck.
I’m so happy your channel is blowing up - you deserve it girlie 😚🥰
Thank you!
I love how positive you are! it's very difficult to have a positive mindset in a situation like this. I tore my acl and had to have it surgically repaired, and while that went well, the nerve block completely shut down my quad muscles for about 3 weeks which pretty much didn't let me move that leg at all. so I get what you mean by how it feels to try to move your leg but nothing happens. it is the most surreal and frustrating feeling, like you know what to do but your body forgot how. I was nowhere near as positive as you are about it, and mine was only temporary. I've definitely been humbled. I wish the best for you and I'm glad I found your channel, you're a very entertaining person with a fun personality!
Hi Sydney, 4 years ago I had exactly the same Staph aureus infection but a little higher up in my neck. Like you it was undiagnosed for a week and by the time the neurosurgeon drained it the spinal cord was damaged forever.
I have always wondered why it happened as it did ??
A few questions for you, sorry !
HOW DID STAPH GET INTO YOUR BLOODSTREAM? Do you have any idea ? Spider bite, or cut that took a while to heal and looked weird going a different colour (my case it was a white tailed spider).
WHY DID STAPH SETTLE WHERE IT DID IN YOUR BACK ?
My disease specialist told me that the stars and planet's have to align perfectly for this to happen as it's very very rare! He said my immune system was compromised and the bacteria settled at the weakest point on my spine where I had bad arthritis
Did you injure or have any problems in your back where the infection was ?
Recovery is a very long and slow process I have found. I can't believe I have had to learn to stand and walk again, simple tasks that you took for granted before. Neuropathy now in arms and legs is bad and unfortunately my neurosurgeon says it doesn't get better, although in a weird way I am getting used to it.
Looking forward to see how you go with the leg bracing as getting out of wheelchairs is a really big thing.
I'd love to hear Sydney's answers to these questions!
Check out her video " How i got Paralysed". She explains it.
@Chelle MNB she said they don't know how it happened
So sorry that happened to you Glenn. Will say prayers you continue to improve.
This staph is nasty bacteria which apparently is very difficult to wipe out with antibiotics. Lucky for me my disease doctor was also a professor who lectured on infectious diseases. It still took him 6 weeks and 3 different antibiotics on a drip and pick line to finally clear mine up. This was after the initial operation by the neurosurgeon. When an abscess forms in the cervical spine (neck) they cut your throat and go in and drain as much pus as they can from your vertebrae. They woke me up after this but my right leg was completely paralyzed so unfortunately I was rolled onto my stomach and he made a big incision down the back of my neck, stripped away all the spiny bone bits to expose my spinal cord as it wasn't pulsing. He then drained the rest of the abscess. I woke up in ICU intubated and I could just wiggle toes. I was so lucky late on a Sunday night a neurosurgeon was on call. Just a few more hours I most likely would have been wheelchair bound.
Interesting to know that 1 in 4 people have staph naturally occurring on their skin, so Sydney and I have it. It enters the bloodstream if you get a cut or bite. I am not sure how Sydney's immune system was so low, and I don't know for me either as I was fit and active as an agronomist.
Another thing I learned about staph bacteria is left unchecked it kills. I was told 1 in 3 people die as our local doctors don't pick it up on it until they finally order an MRI when paralysis sets in. Just 6 days after I had pain symptoms I had trouble weeing and in emergency they had to catheter and drained 1.5 litres !
Everyone these days are concerned about covid virus but the real danger is antibiotic resistant bacteria.
So I was one of those that came here from your video in how you became paralyzed. Please, please dont ever lose your positive attitude. You sound like your doing great and know pretty much what you want to do. I could see you getting your therapist licence and opening your own office and specializing in kids or adults with disabilities. Your so uplifting and inspiring. Keep being you.
Your communication skills are amazing! And............. you are wise beyond your young years! You are an awesome , kind, caring person!
thank you!
I know the strange feeling of not having a clear answer to "do you wish it hadn't happened". I've been through mentally difficult things in life, and in a way you could say yeah obviously you don't volunteeringly want such struggles and you'd be better off without them, however because of it I am now the person I am. I matured and changed my perspective and views on things because of what happened, so for that reason I wouldn't change it.
I'd also like to point out that there are a lot of people who are perfectly healthy (physically at least) and still are not enjoying life. The fact that you can say your life is amazing and you're excited for your future is an incredible thing to have, and just because you're paralyzed doesn't take anything away from that. Treasure it. I'm so happy for you.
I love how positive and logical you are at such a young age everyday is a different battle and you are crushing it keep it up sweetheart your doing AMAZING 💓
Hi sweetie,
I’m a great grandmother and your story and you
Are so sweet. And so encouraging to all ages.
Your talk reminded me of a “Revive Our Hearts”
(A radio program) message -
“You can trust God to write your story”.
😊❤️👍
my mom is paralyzed on the left side from the neck down and has been my whole life. thank you for sharing your story
You're so eloquent and thoughtful, it's so uplifting. You'd be a great candidate to be on a StyleLikeU video!
I’m a clinical nurse and I know you will walk again love. Wiggling toes is a good step forward
I feel so sad that you were paralyzed in the first place, but I am so inspired by your thoughts about it happening for a reason. So happy for all those people that you have helped and will help. It is amazing how excited you are about going to college etc. I wish you much happiness.
Wow! You are so beautiful and so well spoken and have the most wonderful outlook on life. I live in pain everyday and have MS. Sometimes one of my legs or one of my arms don't work. They just flop like they are rubber. I am told that the only thing that will fix my back pain is surgery with fusions and metal rods in my back. I am 56 and too scared to have the surgery. Sometimes I feel really down but after seeing your videos I will try not to let my mind go to a dark place. I used to be an RN but am now on disability. The only thing I focus on now is hoping to be able to save enough money over the next few years to be able to go on a week long cruise to the Carribean. I live near the port of Ft. Lauderdale so I won't need to save up for plane fair. As long as I keep focusing on this goal it keeps me from being depressed. Thankyou for sharing your story. You are a brilliant young lady. Also want to say that nerves can grow back after time. Obviously not over night but who knows...you may be surprised at how much further you will come.❤
I'm sorry to hear that but I completely believe in you! Don't beat yourself up for feeling the way you do because it’s valid but I wish you the very best of luck!
Your 1,5 years update vid just popped up in my flow and it was so interesting and horrifying at the same time. Thank you for sharing your story, your personality and positivity I’m sure will help someone else in a similar situation.
Sydney - you are growing into one AMAZING young woman!!! As a 50 yr old disabled woman, I wish I had my 'schtuff' together earlier and been at a better place when I got injured!! Keep that beautiful smile on your face and keep going going forward!!! Have a wonderful year!!!!
thank you!!!
@@_sydney.fowler_ 💚💚💚💚
I adore you, you darling of a young woman! My best friend of 22 years now, has been paralyzed and in several wheelchairs for over 30 years now and she is one of the most amazing people I've ever met! You'd love her! Well, everyone who meets her does. She's not a normal type of gal either and I'm so glad! I wouldn't have a life without her. She's so much a part of my life that I'd be lost without her. I've lived off grid in Trapper Creek Alaska for 22 years now and she has helped me in being able to live this way. I truly don't believe that I would even be alive without her guidance into this way of life. She had lived this way herself after she became paralyzed. No indoor plumbing and things like that. You both are amazing and uplifting women I've ever seen! Thank you so much sweetheart!✌🏻❤😊💋💋💋
I am paralyzed in my right leg and just had my left leg (below the knee) amputated. I have osteomyelitis in my spine hips and pelvis. I understand nerve pain and regular pain . I love your positive attitude about all this. For me I ended up in a coma my body going septic. And woke up with the osteomyelitis in my spine hips and pelvis and paralyzed in my right leg from it. It's been now a year and a half that I've been in a wheelchair and only a few months since my leg amputation . I'm still trying to wrap my head around everything . It's a whirlwind. And frustrating .
Your original story popped up to me and I was so happy to see you just posted an update! You are so inspiring to me! You are so genuine and really are full of lessons for the rest of us thank you for sharing your story!
Thank you for sharing your wisdom, some points you made hit home for me, although I have a different chronic illness, but it still helped me with my hard time. ❤
I'm 60, have done about every thing I've wanted to do physically please don't take this wrong but your inspiration make my petty ailments go away. Thank you for the update ☺️ You're a very beautiful young lady inside and out!!!!!
Your soul is beautiful and you are beautiful. I love how your brand represents your journey plus so many others even if its not being paralyzed. Each and everyone of us are a single soul and you make me see how beautiful it is when we all come together. You inspire me so much, you are amazing. 🌻✨🦋
Sydney, you have the BEST ATTITUDE of anyone I've ever seen! For you to be so young, and the fact that you have handled this situation like such a pro, you should be really proud of yourself! I'm sure you've turned to God, and not away from him, and that's probably why you've done so well! His Word says he never allows any circumstances in our lives that are beyond what we can handle! He had a lot of confidence in you that you would let his light shine through you! No one is promised tomorrow! This life is just boot camp anyway, we've got an eternity of joy ahead and we'll all have new, perfect bodies and no more sickness, death, tears or sorrow! Keep your gorgeous smile going and just think, if this hadn't happened, none of us would of had the privilege to meet you! 🙂
Sydney! It is such a pleasure to see you smiling and doing so well! Keep going darling, you are such an inspiration for many of us! ❤
I'm amazed by you. You're more of an adult, than most grownups I know.
Very good attitude, towards life. You are very amazing.
I just started seeing your TH-cam videos, and I'm not in your situation. You will be in my prayers. GOD BLESS
Its so nice to see your update on the progress you are making, I only watched your video on how you became paralyzed a short time ago. I can relate too the thoughts you have been having regarding having to grow up and meeting people you may never of meet if it was not for the unfortunate event that led to your paralysation. So pleased you have gained strength in one leg. keep up the good work and at times I know it can be frustrating. I know with my experience the five years it took me had made me a far better person. Its fifty five years since i learnt to walk again but do not be surprised if you have the occasional fall or have to give your self longer in the mornings too gain balance. can I say if you use a leg brace you should still try to walk with out it on at times, Keeping the other leg moving will help to keep up some muscle and increase the chance of some feeling returning. One thing that often happens to me even now is I often bash my legs some times just ending in a bruising my leg but also cutting my leg and not even knowing about it until I fill stickiness on my foot, even now i have great difficulty moving backwards and it is impossible for me to go backwards down stairs. I do hope you will read my comment on the original post, good luck in passing your test, you have won my admiration on the way you have been able to cope (although i know you have no choice) but you video can help to inspire others so thank you,
I truly admire how you speak about the mental health aspect of your journey and even say that you do have bad days. I hope and pray that you continue the best version of yourself and your journey whatever that may be!!
I saw your story time video about how you got paralyzed. Seeing you so optimistic and positive makes me happy. I'm from India 🇮🇳
My dream is to be a doctor and your story has motivated me a lot. I will become a doctor and do whatever I can to make sure people can live a healthy and happy life 😊
I'll pray that you become able to walk really soon. Stay positive!❤
Your attitude is simply AMAZING! I realize that every situation and body is different, so this might be like an apples and oranges comparison, but I'm hopeful that my story of recovery might encourage others who have been recently paralyzed.
About 40 years ago (I was 25 then) I had badly ruptured my L4-L5 & L5-S1 discs from a combination of too many awkward and hard falls during gymnastics and figure skating. I had surgery to repair these ruptured discs. When I woke up I discovered that I had total paralysis from my waist down, apparently from the trauma of the surgery. I could move nothing - not even my toes.
Again, every body is different, and I realize I'm extremely fortunate in my progress, and I understand that you've also had some restoration of function with your right leg, which is great! For me, it was about 24-hours after the surgery when I found that I could move one of my toes on my right foot. In another day I could move all of the toes on my right foot, as well as my right leg, but it wasn't full-strength yet. I also saw a bit of progress in moving the toes on my left foot.
I was in the hospital using a walker for the following two weeks as I regained some function of my left leg, and my right leg strengthened. When I finally went home, I still had about 75% paralysis of my left calf, but I was able to walk - albeit, with a substantial limp.
Despite this calf paralysis, I returned to gymnastics in about 2-months, and was able to get my back-handsprings back...with a significant modification since I had virtually zero push from my left foot. 9-years later I had another disc surgery which restored a notable amount of function into my left calf - I'd say maybe 25% more function.
And this is where I am today - with about 50% paralysis of my left calf, but I can get by with that pretty well.
You've seen improvement of function of your own right leg, so I just wanted to mention my experience to illustrate that SOMETIMES after a paralysis some amount of function can eventually be restored.
I wish you great success in your own personal journey!
You have an amazing support. It's so evident in your recovery. No one knows the future but God has you. You are really so level headed. 💓
I watched your first how i got paralyzed yesterday... been binging since!! you're so motivating and positive it makes me want to change my life around. I'm not paralyzed but I have invisible disabilities main one being a heart condition so I can still relate to some of it in a different way. You're so mature for your age, I guess half of it is down to what you've been through but half of it is your shining personality. You're absolutely right you have got this but in a different way... keep doing you!! you're amazing. edit; just wanted to add you seem so much more happier than in your first video!
Omg I saw your first video you were young explaining your story so I thought it just happened recently. Then I clicked on this one and was shocked. I feel sad because you are so young but your positivity changes my perception. Yeah it was a sad thing that happened and it frustrated me hearing how doctors just sent you home after your Er visits. Im a nurse and It just pushes me to take what patients say more seriously. There’s a saying in the medical field…”if you hear a growl behind you, it’s most likely a dog…but there is a chance it could be a wolf.” You got the wolf…which you are conquering and I bet ur parents are so proud of you! Please always keep that strong personality!
Such an inspiration , you have a great life ahead of you 😀. God bless you 🙏