Hi there! My son, who is 12, got his motorized wheelchair almost a year ago and the jump in his independence is amazing and so awesome to see! He used to have to wait for his aid at school or another kid to push him which was upsetting for him after a while. He also has Autism so having more independence was a double edged sword. He loves the chair but he also needs to focus when using it and not get distracted by sensory overload etc. I am glad you also have this opportunity now. You will definately see an increase in quality of life. Best wishes!
Jaquie, you hit upon one of the most frustrating things about chronic illness, that just because you rest, it doesn't mean you'll feel any better! It's so frustrating to spend the day in bed because I'm in too much pain to do anything else, & then to be in just as much pain at the end.of the day, & to know that just because I spent the day resting doesn't mean I'll feel any better the next day!
Hi Jaquie, I hope you feel better and rest sweetie. I am glad your friend came over that's always good. I am super excited and happy for your new ♿. It so awesome.
I'm going to the doctors office early this September to see if I have EDS and POTS, and at first I was really scared, but I've been watching your videos for a while and it's making me less afraid! I know what to expect for the most part, and I know everyone's experience is different, but since you stay so positive I feel like I can live a great life even with those illnesses 😊 thank you Jaquie!
Tug is an excellent thing for Harlow to know. Katie has only known me in my wheelchair. I've never played tug of war with Katie during playtime. She only uses tug to open drawers and cabinets for me. I love seeing how different handlers work their dogs in different ways that works for you and your disabilities. Keep up the great work with Harlow. I am def rooting for you to do well together when you get your chair. One small recommendation is to work with her with the leash not attached to the chair in some way. That's why I state 4ft leash. You can roll it shorter as you need it for in close and unroll it always in your left hand. With it in your hand you can still easily roll your self and it's much safer for you and Harlow than attaching the leash to you or the chair. Again hope this little tidbit helps you both. It's done wonder for Katiegirl and I.
Thank you Jaquie for being so strong even through the worst of the worst. I'm only 14 and I deal with anxiety pretty badly when I'm in public. You help me so much because your always positive and you look on the good side. And it's hard for me to do that but watching your vlogs and seeing you stay positive is just so inspirational. Keep moving forward! Thinking and praying for you!❤️😉😂😊
Thank you for sharing your story with the world! I suffered with chronic pain (migraines, vomiting, malnourishment, severe joint pain, and fainting spells) for over 5 years but because I was 15 years old and still managed to play basketball, and TAEKWONDO (3rd degree black belt) people assumed nothing was actually wrong with me. I was "faking it for attention". Eventually my weight dropped to 95lbs (I am 5ft 9in) and I quit basketball and taekwondo (losing my college scholarship). After years of searching I finally found a doctor who listened to me and at the age of 19 I got the simple diagnosis of Celiac Disease. It took over a year of a gluten free diet until I finally started feeling better and my migraines and vomiting disappeared. I still suffer from severe joint pain due to years of malnourishment but I have since put on 30lbs and had over 5 surgeries to fix my damaged joints. Now I am finally feeling like a 21 year old college student again and am considering going back to taekwondo. I hope that eventually the same shall happen to you.
The best thing to do is to OFFER to open the door for a disabled person. It's really jarring for a stranger to suddenly start trying to help, especially because sometimes what people think is helping is actually detrimental or harmful. I've had people yank doors out of my hand or randomly push me, and it's usually not helpful and makes me feel bad about stuff. When you see a disabled person struggling to do something, ask before you just jump in. Sometimes things just take us a little longer, or we need to do them differently, but we don't always need help.
I know you didn't ask for advice but I find bathrooms the trickiest places to use a wheelchair so I'd definitely practice doing that asap! (washing hands took the most practice for me!)
Chronically Jaquie yeah tight turns are hard but being able to do pivot turns in your own chair helps with that a lot! I've actually found that I prefer the ambulatory stalls (the ones with bars on both sides) when I'm using my wheelchair) because I just roll in, do my business and then back out and I don't have to do any weird turns 😅 but that might be too tight of a fit for you and Harlow haha
Chronically Jaquie my husband was in a chair before he passed. We found them tricky too. Whenever possiable if we were out we would find a family restroom, so much more room. It made it so much easier. One thing I learned real quick, and I am sure you have noticed too, even after the ADA laws, public spaces were just not made for those of us with special needs.
Jaquie I love how positive you try to stay. I recently found your vlog. I have a chronic illness myself, although nothing as serious as you. However one of my closest friends has GP and has really been struggling. I saw your vlog pop up on my recommended videos and was taken in by how honest and true you are about what you go through. You try to stay positive, but aren't gonna sugar coat it either. I subed and sent her a link. She loves your vlogs too. I know from experience it helps to know others are going through the same types of things and see that they fot trough and maybe an answer you never thought of comes too. That wheelchair is gonna be amazing for you. My husband was in a chair and oh goodness yes the darn doors. Even with help it gets tricky sometimes. I love your little rig up, and Harlow seems to take to it. She is so awesome btw. A good service dog is an amazing help and companion as well. Sorry that got really long, lol.
Opening doors in a wheelchair is definitely a pain but luckily I have to open many at school so sooner or later you'll become a pro. It's just a lot of swinging and angles and just sometimes it works, sometimes it takes a few tries. Just keep trying and you'll get it
Hippo is sooooo adorable blocking the view. She wants your attention, not to pay attention to the camera. Great news with Julian coming over and getting tips from him. Does he have a service dog? Julian seems really nice and understanding. He's a great friend to have. Have a great rest!!
Congrats on your new chair! I know Harlow will be able to pick up up being and closing doors quickly! Stay strong!! You're amazing and such a huge inspiration to everyone!! ❤️❤️
i found this really interesting as im in a wheelchair full time I dont have a service dog but it was still really interesting thank you to you and your friend for posting this Jacquie x
Boy that sure is true, just because you rest, doesn't mean you will feel good. I'm so excited for you and that you are getting a great chair. You and Harlow will do great with it I'm sure ❤️🐘❤️
Dogs are the best !! I love my dogs.. they are emotional support.. snuggles when I am sick.. they don't like when I am sick. They are just what a person needs when they have struggling days. xoxo
Please remember if someone asks to help let them as it makes them feel good that they've helped. My sister use to have wet ones by her back door and when her dog would come in she would give him a quick wipe down it helped Taz stay cleaner and keeps as much dirt out as possible. Hugs to you all.!
Thanks for another great video! I open doors exactly like your friend does withough a dog, I found it really hard at first, especially when the door opens towards me and they're heavy, but this is the easiest way to do it for me, because resting the door against the wheelchair makes this way easier.
Oh,dear very tired Girl! I'm glad you have your dear Hippo! Rest up sweetheart. Excited for you with your chair- so exciting. Very best wishes from Australia.
Its great that you have someone who can help you too learn the ways around and what helps you better. Would defiantly want to check out his channel. Harlow wanted to be up close and personal. Lol. What sweet dog Harlow is. Love your vlogs Jaquie.
Depending on the time that the music/party/get together was going on next door, you could possibly call the cops, my town has quiet hours from 10P-8A, for example. Just a thought, if it ever bothers you too much with your sensory processing.
Haha true. For what it's worth most places have automatic doors... but sometimes I feel like I'm gonna be dead before it opens! Sooo slow! I miss the double doors that automatically open when it senses movement.
Thanks for the information on using a wheelchair and having your dog open the door. I use a wheelchair and I have a service dog. I need to teach her that task because I have a hard time getting through doors too!😊
Check out "extendable snake hook" on ebay for your next gadget. They're awesome grabby sticks for reaching things when out and about in a wheelchair. They don't have the strength to be useful in the door situation, but they will work for most lift buttons and for groceries or anything else that's too high or too far back on a shelf. I couldn't handle life without mine now I'm used to having it with me! (folds to about 10-15cms to hang on the back of your chair & extends to about half a metre when you want to use it) & love your positivity! :))
I went out to get groceries by myself for my first time after knee reconstruction surgery. I wish more doors had the buttons as it was very hard with crutches and not weight bearing on my leg. Some doors are really heavy. I used the electric cart at Shaws for my first time and I didn't hit anything. It exhausted me as I crutches thru Walmart.
For me "rest days" usually coincides with crap days. Usually for much of the day my Ehlers beats me down and I will sleep the day away and not feel better until towards the evening. You do what you gotta do! 😳😉
😊I love your positive vibes. Hope you doing well today and in future. I'm your new subscriber and just found your channel when I searching for bone marrow biopsy. Thank you for sharing your experience to us. 🤗❤💞💙💛💫👸
Important thing to remember is to figure out how to navigate pushing a heavy door when you're in a wheelchair, or worse, one that requires you to turn a handle to go inside. This has been by far my most challenging problem from my wheelchair, because many of these doors are too heavy even if I wanted my SD to push them open, which I wouldn't risk as it can lead to very bad injury if it goes even slightly wrong. I've been doing my research, but let me know if you find any alternatives!
Har can pull open, but not push. For pushing it seems like you need momentum, but wayyyy easier said than done I bet. It will be a learning process once I get my chair. for sure!
i'm not in a chair but my stepfather was and i think he would back into the heavy doors... depending on the way the door opens.... i was usually the one pushing... those extremely heavy security type doors may require some help
How does the G tube get to your stomach? Does the feeding tube hurt regularly? Does it restrict your movement at all when you're hooked up or when you're not hooked up? What are the chances of the extension and the rest of the tubing come apart does it stick together tightly? Is there a lot of drainage from your stoma or does it depend on the day? How do you deal with home health and is it easy to get more supplies? How often do you have to have the tube changed? Have you experienced any granulation tissue yet? If you were unhooked from your nutrition would you be able to lay on your stomach? Is it uncomfortable sleeping and being connected to your nutrition? Do you have to wake up in the middle of the night to flush your tubing like you do during the day? Have you had any problems with the pump itself? Have you gained weight since having your tube? (Trying to think of all my in depth questions because I am probably going to be getting a G/J or J tube in the near future because I have Gastroparesis too)
From what I remember from her vlogs, it doesn't restrict her movement, it doesn't hurt necessarily, There is some drainage which she uses a pad to absorb. She has experienced some granulation tissue. I think she made a video somewhere called all about my feeding tube. You could look at her play lists.
Would Harlow be off leash while opening doors? It's seems like it'd be a lot of extra work trying to maneuver the leash while she's doing this task. I can't wait to see you practice these things in preparation and how you and hippo do and progress as time goes on!!
Hi I was wondering in your feeding tube video could you show a bit more on venting the acid and stuff from your button we are talking about getting this for my daughter who has gastro porisis she had gastric bypass surgery that went horribly wrong and after a year and her almost dieing they reversed it and hooked up her old stomach but it's not functioning and she is living off IV gravol every 3 hours to control the nauseousness but she throws up a lot of acid thanks
Great hacks. I take Katiegirl my Golden Retriever Service Dog on a short 4 ft leash held in my left hand as I roll myself with her in the heel position. It def works excellent. When we go through doors I open the door myself and Katie walks in close and behind my chair as I go through she's comes through directly behind me. I also have joint issues. But it works perfectly the way I'm describing. Hope this helps
Hi! May I ask you: How often does Harlow go for a walk? You obviously cannot go for hikes, but does Judd or someone go outside with her to give her some exercise, and if so, how often? :)
Karoliina Pajari we don't do walks but take her to run at the dog park in our neighborhood when we can (: Har is not really a high energy dog and that's part of the reason I chose her.
How often do you bathe Harlow? My husband and I have been considering getting and training a service dog, and I'm incredibly thankful for all of your videos. They are educational and funny and have really helped me come to terms with living with chronic illness and accepting the idea of having tools to help maintain independence, even if I don't need them all the time currently.
To get into doors, I normally wheel myself beside a door, open the door with my one arm, and then put my free hand on the door frame and use my hips and arms to pull myself through the door. Perhaps this is too much strain and energy for your use, but that is how I open doors while in a wheelchair.
I love your strength and courage. I know this is not on topic but I was wondering where you get your face bask from. I use plain for the winters to lessen germ chances during the winter and allergies but really do love yours.
Hey jaqui, about your feeding tube and food: can you describe how it physically feels like to get food thru a tube and not thru your mouth? In passed vlogs you've said you like the banana bags room temperature so it doesn't feel cold in your body, is that the same with the other bags? I'm used to eating with my mouth and am curious if there's a difference. Like, do you feel full or hungry? Looking forward to you video 😁👍
Just a warning about doors in public, (I don't know if doors in public in the US are as heavy as ones in the U.K.) but they can be super heavy and resting them on the chair can work, but they can be difficult to push off the chair to then wheel through, especially with a super lightweight chair. (I don't know if this makes sense...!) Even with service dogs I know people that struggle with those doors so it truly is worth practicing as you may have to adapt your plans. I know I did when I first went in my chair and I only have to think of myself! (No negativity here, just speaking from years of experience!)
Hey Jaquie, I was wondering if you could include why the G/J button is called a button in your feeding tube video. 😀 I mean it seams kind of simple but I'd like to know.
I cannot really tug with her, I have to let go because she is too strong and it is bad for my joints. Every once in a while I will just to let her have fun with me because I want to despite risk, but Judd mostly plays tug with her
This might sound silly but I have a question for the feeding tube video, is it possible to accidentally pull it out? I just imagine it snagging on something and it pulling the whole thing out of your stomach..
hey! I was wondering where you got your germ/face mask that you wear out in public? I want to look into getting one for my cousin. if you want to just link me to a video where you talk about it, that's fine, but I tried to find the information before asking and couldn't find it anywhere.
Hi Jaquie! You've probably already answered this question m, so I apologize if you have to repeat yourself. Where did you find your elephant blanket? Thanks!
brandy bunker-cummings Thank you Brandy! I appreciate your answer and your help. I hope you're keeping dry. I live close to Houston and we are water-logged from Hurricane Harvey to say the least. It's flooding, but so far we're doing okay. Have a great week ahead!
Does the feeding tube hurt? What does it feel like when you are "feeding"? When do you know your full? I have Major Gatroparesis, I am actually curious, sorry so many questions
ThatAppleInTheWingsPhotoShootThatJiminPosedWith Yes I am. My TH-cam just looks like that because I haven't posted any videos yet. You can go to my Instagram (same name) and I make lots of posts! Thanks.
Yes, as I have shared my life with two goldens. :) I also know the history of why people have used that fact. My goldens had no desire to retrieve killed ducks. :*( They would, however, have given the ducks a big kiss. :D
Hi jaquie! So today I have kind of a difficult question. I've recently been diagnosed with many chronic illness's (sorry if I make any spelling mistakes english is not my native) and my worry is not actually me but my boyfriend. He's been with me through all this process and he's been amazing but, here it goes... I don't think this is going to be fair for him I mean to watch me slowly become into someone very different of who he fell in love with. I don't want him to suffer. I know i might get judged because of this but, as you have judd, i would really love to know your opinion. Thanks ahead jaquie!
If he loves you it should not matter. I am sorry I do not have a long reply to this, but in all honesty that is it! Judd and I love each other and will be with each other through everything. We promised each other that in our vows.
quandila I used to worry about this with my partner but eventually she eventually got me to understand that, though my body and therefore my activity changes, she loves the essence of me that does not change. Things change in any relationship with life circumstances like kids, jobs, etc, and also people change just as they get older. In any relationship this can either cause tension or be a catalyst for the people to find new ways and levels to connect together. I have made sure I always find ways to show love and support her within whatever level of ability I have. Creativity and flexibility is key when things change in a relationship regardless of the cause and type of change. The most important thing I think is to communicate and not shut each other out of how changes effect you both and make you both feel. I had to learn to trust my partner to make her own choices about wanting to be with me and stop trying to 'protect' her from the hard aspects of being with me. Trying to decide for her what was or was not good for her in being with me was more hurtful to her than just letting her decide for herself. Interestingly, I said things can change for anyone, well my partner has since developed a chronic illness of her own and, although I hate that I can't physically see to her care needs as much as an able bodied person, she has found being with someone who understands disability and chronic illness is more help to her than anything and we both lay bed bound next to each other day after day giving each other total support.
quandila I feel like being Chronically ill is the ultimate test Within yourself first, then when you are ready a significant other! In the past I was thinking like that. MY current situation, I have fallen for someone and we know we want to be together but also know that we both have hurdles to cross and quite a distance. For me, i have to still learn "adulting " the best i can. Also learn tobe an individual. Maybe taking a step back so you can get a handle on new diagnosis and if he's still there for you... There you have it!
If your boyfriend loves you then like Jaquie said, it shouldn't matter, I don't have experience with a relationship but even with medical issues he should still love you because of your personality, not how you look.
quandila my husband ended up with many health issues before he passed. I loved him because of him for better or worse, sickness and health. It didn't matter to me he couldn't do what he used to, we found new things we enjoyed together. I stood by him until his very last breath, as did he by me when I got sick (I too have chronic illnesses). True love sees past our issues to who we really are. If they love you, truly love you, it won't and shouldn't matter.
jennifersykes5 its ok. Not many go back, TH-cams not giving notifications so going back and i saw it. I dont know but the wheels will be smaller not big.
some dogs are sort of strong enough to pull a chair, but it's not good for them physically, or for a service dog to be learning to do things like that. She needs to get a "smart drive" once she's used to her wheelchair & using it lots (that's a little motor wheel that clips onto the back and keeps you rolling at the speed you pushed up to until you tap the off function)
Diyana Altae since I'm getting power assist I don't think I'll need to, but it also is not good for her joints for long distance. Only for up a short ramp. But I'm not sure I'd want to risk it.
I am in a wheelchair. I am always in pain. I haven't got a tubefeed. Anyway I have put on heaps of weight. I am asking anyone here, what do you do to lose weight??
Hi there! My son, who is 12, got his motorized wheelchair almost a year ago and the jump in his independence is amazing and so awesome to see! He used to have to wait for his aid at school or another kid to push him which was upsetting for him after a while. He also has Autism so having more independence was a double edged sword. He loves the chair but he also needs to focus when using it and not get distracted by sensory overload etc. I am glad you also have this opportunity now. You will definately see an increase in quality of life.
Best wishes!
Jaquie, you hit upon one of the most frustrating things about chronic illness, that just because you rest, it doesn't mean you'll feel any better! It's so frustrating to spend the day in bed because I'm in too much pain to do anything else, & then to be in just as much pain at the end.of the day, & to know that just because I spent the day resting doesn't mean I'll feel any better the next day!
Omg at the end Harlow was trying to steal your goodbye like Judd does! So funny
Miss Adventure I was thinking the same thing! 😂😂
Hi Jaquie, I hope you feel better and rest sweetie. I am glad your friend came over that's always good. I am super excited and happy for your new ♿. It so awesome.
i'm super glad you have a friend that has similar experiences as you! i can imagine it helps a lot ♥️ stay strong jaquie
I'm going to the doctors office early this September to see if I have EDS and POTS, and at first I was really scared, but I've been watching your videos for a while and it's making me less afraid! I know what to expect for the most part, and I know everyone's experience is different, but since you stay so positive I feel like I can live a great life even with those illnesses 😊 thank you Jaquie!
Tug is an excellent thing for Harlow to know. Katie has only known me in my wheelchair. I've never played tug of war with Katie during playtime. She only uses tug to open drawers and cabinets for me. I love seeing how different handlers work their dogs in different ways that works for you and your disabilities. Keep up the great work with Harlow. I am def rooting for you to do well together when you get your chair. One small recommendation is to work with her with the leash not attached to the chair in some way. That's why I state 4ft leash. You can roll it shorter as you need it for in close and unroll it always in your left hand. With it in your hand you can still easily roll your self and it's much safer for you and Harlow than attaching the leash to you or the chair. Again hope this little tidbit helps you both. It's done wonder for Katiegirl and I.
Thank you Jaquie for being so strong even through the worst of the worst. I'm only 14 and I deal with anxiety pretty badly when I'm in public. You help me so much because your always positive and you look on the good side. And it's hard for me to do that but watching your vlogs and seeing you stay positive is just so inspirational. Keep moving forward! Thinking and praying for you!❤️😉😂😊
Thank you for sharing your story with the world! I suffered with chronic pain (migraines, vomiting, malnourishment, severe joint pain, and fainting spells) for over 5 years but because I was 15 years old and still managed to play basketball, and TAEKWONDO (3rd degree black belt) people assumed nothing was actually wrong with me. I was "faking it for attention". Eventually my weight dropped to 95lbs (I am 5ft 9in) and I quit basketball and taekwondo (losing my college scholarship).
After years of searching I finally found a doctor who listened to me and at the age of 19 I got the simple diagnosis of Celiac Disease. It took over a year of a gluten free diet until I finally started feeling better and my migraines and vomiting disappeared. I still suffer from severe joint pain due to years of malnourishment but I have since put on 30lbs and had over 5 surgeries to fix my damaged joints. Now I am finally feeling like a 21 year old college student again and am considering going back to taekwondo. I hope that eventually the same shall happen to you.
Harlow is such a cute pooch and you are very fortunate to have her. God bless you and your family.
I don't use a wheelchair but if I saw someone in one I would definitely open the door for them.
Denise Roman it's nice to be offered help! But also we need to know how to do it ourselves since people are not always available lol
True...Good luck on the training with Harlow on this. She will pick it up fast because she is an awesome and cute dog.
The best thing to do is to OFFER to open the door for a disabled person. It's really jarring for a stranger to suddenly start trying to help, especially because sometimes what people think is helping is actually detrimental or harmful. I've had people yank doors out of my hand or randomly push me, and it's usually not helpful and makes me feel bad about stuff. When you see a disabled person struggling to do something, ask before you just jump in. Sometimes things just take us a little longer, or we need to do them differently, but we don't always need help.
I know you didn't ask for advice but I find bathrooms the trickiest places to use a wheelchair so I'd definitely practice doing that asap! (washing hands took the most practice for me!)
Such a good point! We already struggle with bathrooms in my transport chair, especially ones with sharp turns once you get in the door
Chronically Jaquie yeah tight turns are hard but being able to do pivot turns in your own chair helps with that a lot! I've actually found that I prefer the ambulatory stalls (the ones with bars on both sides) when I'm using my wheelchair) because I just roll in, do my business and then back out and I don't have to do any weird turns 😅 but that might be too tight of a fit for you and Harlow haha
Chronically Jaquie my husband was in a chair before he passed. We found them tricky too. Whenever possiable if we were out we would find a family restroom, so much more room. It made it so much easier. One thing I learned real quick, and I am sure you have noticed too, even after the ADA laws, public spaces were just not made for those of us with special needs.
Laura Worthington sorry for your loss :(
So sorry for your loss Laura Worthington.
Jaquie I love how positive you try to stay. I recently found your vlog. I have a chronic illness myself, although nothing as serious as you. However one of my closest friends has GP and has really been struggling. I saw your vlog pop up on my recommended videos and was taken in by how honest and true you are about what you go through. You try to stay positive, but aren't gonna sugar coat it either. I subed and sent her a link. She loves your vlogs too. I know from experience it helps to know others are going through the same types of things and see that they fot trough and maybe an answer you never thought of comes too. That wheelchair is gonna be amazing for you. My husband was in a chair and oh goodness yes the darn doors. Even with help it gets tricky sometimes. I love your little rig up, and Harlow seems to take to it. She is so awesome btw. A good service dog is an amazing help and companion as well. Sorry that got really long, lol.
Congrats on your new wheelchair jaquie!! Hopefully Harlow "Hippo" can learn how to pull the doors in malls easily! Love you stay strong!!
She has not gotten hers but in a few months time, she would.
You are very blessed to have friends and family that are supportive in you life. Sending prayers and hugs for you Harlow and Judy.
No Jud not Judy lol
Opening doors in a wheelchair is definitely a pain but luckily I have to open many at school so sooner or later you'll become a pro. It's just a lot of swinging and angles and just sometimes it works, sometimes it takes a few tries. Just keep trying and you'll get it
Love you Harlow,we are getting our golden retriever pup in about less than 2 weeks,your vlogs really have helped us prepare thanks xx
Hippo is sooooo adorable blocking the view. She wants your attention, not to pay attention to the camera. Great news with Julian coming over and getting tips from him. Does he have a service dog? Julian seems really nice and understanding. He's a great friend to have. Have a great rest!!
Wakako Tsujita He's currently working on getting one, he's on a waiting list right now.
The Adventures Of Caitlyn And Kali thanks. ☺
Congrats on your new chair! I know Harlow will be able to pick up up being and closing doors quickly! Stay strong!! You're amazing and such a huge inspiration to everyone!! ❤️❤️
I'm so happy for your wheelchair and am really happy to see the purple and the pink on it
i found this really interesting as im in a wheelchair full time I dont have a service dog but it was still really interesting thank you to you and your friend for posting this Jacquie x
Boy that sure is true, just because you rest, doesn't mean you will feel good. I'm so excited for you and that you are getting a great chair. You and Harlow will do great with it I'm sure ❤️🐘❤️
I find myself having my morning coffee and waiting for Jaquie.
Dogs are the best !! I love my dogs.. they are emotional support.. snuggles when I am sick.. they don't like when I am sick. They are just what a person needs when they have struggling days. xoxo
Hi Jaquie, I am so glad you will be getting your custom wheelchair. Harlow sure likes your friend Julien.
You, Judd and Harlow! The best of the best. Love watching your daily 'vlogs' 😊 Take care all.
Please remember if someone asks to help let them as it makes them feel good that they've helped. My sister use to have wet ones by her back door and when her dog would come in she would give him a quick wipe down it helped Taz stay cleaner and keeps as much dirt out as possible. Hugs to you all.!
rae1957tn yes but there are not always people avaible, so if I don't know how to do it myself I'd be stuck 😅
Harlow is smart she will get in no time.
Harlow wanted to say the outro 😂😂 she's so cute I love her
Thanks for another great video! I open doors exactly like your friend does withough a dog, I found it really hard at first, especially when the door opens towards me and they're heavy, but this is the easiest way to do it for me, because resting the door against the wheelchair makes this way easier.
Love all your friends &family . Really like the info too and glad things are coming together for you. xx
Literally Jaquie you are an absolute inspiration! 💖
Oh,dear very tired Girl! I'm glad you have your dear Hippo!
Rest up sweetheart. Excited for you with your chair- so exciting. Very best wishes from Australia.
Thank God for the wheelchair coming soon and for good friends! P.S. your sneeze was adorable
My mom is getting hip replacement surgery tuesday and i am very worried but watching you is helping me be less worried
Its great that you have someone who can help you too learn the ways around and what helps you better. Would defiantly want to check out his channel. Harlow wanted to be up close and personal. Lol. What sweet dog Harlow is. Love your vlogs Jaquie.
I think I saw your friend at the Polynesian hotel at Disney two weeks ago
Woodworker4405 I was! That's crazy. You should of said hi!
positivelych.ill_julian Do you have a service dog?
LifeOfBuddy I am currently on a waiting list with New Horizons Service Dogs to be placed very soon. Thanks! 😃
positivelych.ill_julian I should have! I wanted to but was about to be seated at Ohana
Depending on the time that the music/party/get together was going on next door, you could possibly call the cops, my town has quiet hours from 10P-8A, for example. Just a thought, if it ever bothers you too much with your sensory processing.
Im in the middle of a hurricane and im still watching your videos😂
Your videos make my day thank you
Paralyzed Living here on TH-cam has one of the best videos on opening doors. It's saved me so many times!
I have seen it, it has been the best! I just wish he added in a dog, lol :P
Haha true. For what it's worth most places have automatic doors... but sometimes I feel like I'm gonna be dead before it opens! Sooo slow! I miss the double doors that automatically open when it senses movement.
When you watch for almost 2 months and know the intro 😂💗 I love you guys
Thanks for the information on using a wheelchair and having your dog open the door. I use a wheelchair and I have a service dog. I need to teach her that task because I have a hard time getting through doors too!😊
Check out "extendable snake hook" on ebay for your next gadget. They're awesome grabby sticks for reaching things when out and about in a wheelchair. They don't have the strength to be useful in the door situation, but they will work for most lift buttons and for groceries or anything else that's too high or too far back on a shelf. I couldn't handle life without mine now I'm used to having it with me! (folds to about 10-15cms to hang on the back of your chair & extends to about half a metre when you want to use it)
& love your positivity! :))
I went out to get groceries by myself for my first time after knee reconstruction surgery. I wish more doors had the buttons as it was very hard with crutches and not weight bearing on my leg. Some doors are really heavy. I used the electric cart at Shaws for my first time and I didn't hit anything. It exhausted me as I crutches thru Walmart.
I hope you feel much better!!❤️😊
For me "rest days" usually coincides with crap days. Usually for much of the day my Ehlers beats me down and I will sleep the day away and not feel better until towards the evening. You do what you gotta do! 😳😉
Jaquie i saw that you were watching unbreakable kimmy shmit i love it and cant wait for your new video
Yay Julian is back!!!!
Keep trying hard and don't give up you are a beautiful young lady♥️
😊I love your positive vibes. Hope you doing well today and in future. I'm your new subscriber and just found your channel when I searching for bone marrow biopsy. Thank you for sharing your experience to us. 🤗❤💞💙💛💫👸
Important thing to remember is to figure out how to navigate pushing a heavy door when you're in a wheelchair, or worse, one that requires you to turn a handle to go inside. This has been by far my most challenging problem from my wheelchair, because many of these doors are too heavy even if I wanted my SD to push them open, which I wouldn't risk as it can lead to very bad injury if it goes even slightly wrong. I've been doing my research, but let me know if you find any alternatives!
Har can pull open, but not push. For pushing it seems like you need momentum, but wayyyy easier said than done I bet. It will be a learning process once I get my chair. for sure!
i'm not in a chair but my stepfather was and i think he would back into the heavy doors... depending on the way the door opens.... i was usually the one pushing... those extremely heavy security type doors may require some help
You're right, even with momentum it can be very hard. They need to start making doors lighter!
omg your sneeze is so adorable!!!!!! 😁
How does the G tube get to your stomach?
Does the feeding tube hurt regularly?
Does it restrict your movement at all when you're hooked up or when you're not hooked up?
What are the chances of the extension and the rest of the tubing come apart does it stick together tightly?
Is there a lot of drainage from your stoma or does it depend on the day?
How do you deal with home health and is it easy to get more supplies?
How often do you have to have the tube changed?
Have you experienced any granulation tissue yet?
If you were unhooked from your nutrition would you be able to lay on your stomach?
Is it uncomfortable sleeping and being connected to your nutrition?
Do you have to wake up in the middle of the night to flush your tubing like you do during the day?
Have you had any problems with the pump itself?
Have you gained weight since having your tube?
(Trying to think of all my in depth questions because I am probably going to be getting a G/J or J tube in the near future because I have Gastroparesis too)
From what I remember from her vlogs, it doesn't restrict her movement, it doesn't hurt necessarily, There is some drainage which she uses a pad to absorb. She has experienced some granulation tissue. I think she made a video somewhere called all about my feeding tube. You could look at her play lists.
In your feeding tube video, can you explain how it feels when the fiid goes in, and how the feeding tube feels on your stomach
MakayaGames she says she can't feel it.
awww your sneeze was so cute😂
6:00 Bless you!
8:54 I can hear some voices.
10:16 Might Harlow have sensed trouble ahead?
Would Harlow be off leash while opening doors? It's seems like it'd be a lot of extra work trying to maneuver the leash while she's doing this task. I can't wait to see you practice these things in preparation and how you and hippo do and progress as time goes on!!
natalie ramsey good question
Watch the video I provided to get a better idea of how it works
I have a build- a-bear golden🐕,I named it Harlow after I found your channel hope you have a nice day .
Hi I was wondering in your feeding tube video could you show a bit more on venting the acid and stuff from your button we are talking about getting this for my daughter who has gastro porisis she had gastric bypass surgery that went horribly wrong and after a year and her almost dieing they reversed it and hooked up her old stomach but it's not functioning and she is living off IV gravol every 3 hours to control the nauseousness but she throws up a lot of acid thanks
Yes I am planning to give a demonstration on that! (: Prayers for your daughter
Chronically Jaquie thank you so much.
Honestly I love Harlow he is SO adorably cute!!!!
Z0NYX *she ❤️
Great hacks. I take Katiegirl my Golden Retriever Service Dog on a short 4 ft leash held in my left hand as I roll myself with her in the heel position. It def works excellent. When we go through doors I open the door myself and Katie walks in close and behind my chair as I go through she's comes through directly behind me. I also have joint issues. But it works perfectly the way I'm describing. Hope this helps
H
Hi! May I ask you: How often does Harlow go for a walk? You obviously cannot go for hikes, but does Judd or someone go outside with her to give her some exercise, and if so, how often? :)
Karoliina Pajari we don't do walks but take her to run at the dog park in our neighborhood when we can (: Har is not really a high energy dog and that's part of the reason I chose her.
How often do you bathe Harlow? My husband and I have been considering getting and training a service dog, and I'm incredibly thankful for all of your videos. They are educational and funny and have really helped me come to terms with living with chronic illness and accepting the idea of having tools to help maintain independence, even if I don't need them all the time currently.
To get into doors, I normally wheel myself beside a door, open the door with my one arm, and then put my free hand on the door frame and use my hips and arms to pull myself through the door. Perhaps this is too much strain and energy for your use, but that is how I open doors while in a wheelchair.
I'm chronically ill and I find I can't push a wheelchair with my arms I have to have an electric one it is just too tiring
I love your strength and courage. I know this is not on topic but I was wondering where you get your face bask from. I use plain for the winters to lessen germ chances during the winter and allergies but really do love yours.
Hey jaqui, about your feeding tube and food: can you describe how it physically feels like to get food thru a tube and not thru your mouth? In passed vlogs you've said you like the banana bags room temperature so it doesn't feel cold in your body, is that the same with the other bags? I'm used to eating with my mouth and am curious if there's a difference. Like, do you feel full or hungry? Looking forward to you video 😁👍
6:01 How do people sneeze so cutely? When I sneeze, it's like *ACHOOODGTDUBHBS*
Just a warning about doors in public, (I don't know if doors in public in the US are as heavy as ones in the U.K.) but they can be super heavy and resting them on the chair can work, but they can be difficult to push off the chair to then wheel through, especially with a super lightweight chair. (I don't know if this makes sense...!) Even with service dogs I know people that struggle with those doors so it truly is worth practicing as you may have to adapt your plans. I know I did when I first went in my chair and I only have to think of myself!
(No negativity here, just speaking from years of experience!)
Harlow knew Judd wasn't there to steal your line at the end of the vlog, so she stole the ending picture!
Hey Jaquie,
I was wondering if you could include why the G/J button is called a button in your feeding tube video. 😀 I mean it seams kind of simple but I'd like to know.
Why does opening a door considered a potential harm to joints, but tugging with Harlow is not considered a risk?
I cannot really tug with her, I have to let go because she is too strong and it is bad for my joints. Every once in a while I will just to let her have fun with me because I want to despite risk, but Judd mostly plays tug with her
This might sound silly but I have a question for the feeding tube video, is it possible to accidentally pull it out? I just imagine it snagging on something and it pulling the whole thing out of your stomach..
In your feeding tube video, can you possibly explain how they connect the tube to the jejuno and your stomach (if possible)?
One question how often do you clean Harlow?
Where do you vent/drain your gastric contents into? A bag? The toilet?
hey! I was wondering where you got your germ/face mask that you wear out in public? I want to look into getting one for my cousin. if you want to just link me to a video where you talk about it, that's fine, but I tried to find the information before asking and couldn't find it anywhere.
ah never mind. just found it. love the videos!
Hi Jaquie! You've probably already answered this question m, so I apologize if you have to repeat yourself. Where did you find your elephant blanket? Thanks!
I think she got her blanket at Home Goods. Hope this helps!!
brandy bunker-cummings Thank you Brandy! I appreciate your answer and your help. I hope you're keeping dry. I live close to Houston and we are water-logged from Hurricane Harvey to say the least. It's flooding, but so far we're doing okay. Have a great week ahead!
You're welcome, Debbie!! Glad to hear things are okay for you in the Hurricane Harvey aftermath. Wishing you an awesome week!! 😊
I'd like to know what considerations go into selecting a formula to try, even more so with the formula by-passing your stomach.
Are service dogs allowed in a lot of restaurants and public places in USA
service dogs are allowed everywhere
simple life homesteader from downunder Australia. I
simple life homesteader from downunder Australia. I
literal trash only guide dogs for the blind can go plubic places in australia.
How long did it take you to get used to the feeding tube for the first time or just really feel comfortable with it?
Love the leggings! Where did you get them?
Also can you show us your tubie pad collection in your feeding tube video?
Walmart if I'm not wrong.
Does anyon know WHERE Jaquie got her custom wheelchair... where her seating eval was done??
Does the feeding tube hurt? What does it feel like when you are "feeding"? When do you know your full? I have Major Gatroparesis, I am actually curious, sorry so many questions
does julian have a youtube channel?
Jem Dubrovsky I do but not any videos yet. I blog on my Instagram right now it's the same as my TH-cam name.
With a feeding tube do you still poo as normal? or more as your feeding all day?
What is the difference between your old feeding tube and your new one?
Does Julian have a service dog?
Chronicles of Percy & Abby He's in the process of getting one from a program I'm pretty sure
Krislynn Rios Yes I am 😊
positivelych.ill_julian your not the real one 😡
ThatAppleInTheWingsPhotoShootThatJiminPosedWith Yes I am. My TH-cam just looks like that because I haven't posted any videos yet. You can go to my Instagram (same name) and I make lots of posts!
Thanks.
do you have immediate relief from venting?
What was the main reason to get the tube on the side you did
Hey. I'm about to discuss with my cardiologist about starting IV infusions for my POTS. Could anyone please pray for me. Please xx.
Adele Grace praying for you!
thanks for repling to my comment im a very big fan
whats the name of the clip she bought and tied pink thread on it so Harlow can open doors
Looks like a carabiner
Did you know that a golden retrievers mouth is soft enough to hold an egg? Have fun with that information.
Yes, as I have shared my life with two goldens. :) I also know the history of why people have used that fact. My goldens had no desire to retrieve killed ducks. :*( They would, however, have given the ducks a big kiss. :D
Hi jaquie! So today I have kind of a difficult question. I've recently been diagnosed with many chronic illness's (sorry if I make any spelling mistakes english is not my native) and my worry is not actually me but my boyfriend. He's been with me through all this process and he's been amazing but, here it goes... I don't think this is going to be fair for him I mean to watch me slowly become into someone very different of who he fell in love with. I don't want him to suffer. I know i might get judged because of this but, as you have judd, i would really love to know your opinion. Thanks ahead jaquie!
If he loves you it should not matter. I am sorry I do not have a long reply to this, but in all honesty that is it! Judd and I love each other and will be with each other through everything. We promised each other that in our vows.
quandila I used to worry about this with my partner but eventually she eventually got me to understand that, though my body and therefore my activity changes, she loves the essence of me that does not change. Things change in any relationship with life circumstances like kids, jobs, etc, and also people change just as they get older. In any relationship this can either cause tension or be a catalyst for the people to find new ways and levels to connect together. I have made sure I always find ways to show love and support her within whatever level of ability I have. Creativity and flexibility is key when things change in a relationship regardless of the cause and type of change. The most important thing I think is to communicate and not shut each other out of how changes effect you both and make you both feel. I had to learn to trust my partner to make her own choices about wanting to be with me and stop trying to 'protect' her from the hard aspects of being with me. Trying to decide for her what was or was not good for her in being with me was more hurtful to her than just letting her decide for herself.
Interestingly, I said things can change for anyone, well my partner has since developed a chronic illness of her own and, although I hate that I can't physically see to her care needs as much as an able bodied person, she has found being with someone who understands disability and chronic illness is more help to her than anything and we both lay bed bound next to each other day after day giving each other total support.
quandila I feel like being Chronically ill is the ultimate test Within yourself first, then when you are ready a significant other! In the past I was thinking like that. MY current situation, I have fallen for someone and we know we want to be together but also know that we both have hurdles to cross and quite a distance. For me, i have to still learn "adulting " the best i can. Also learn tobe an individual. Maybe taking a step back so you can get a handle on new diagnosis and if he's still there for you... There you have it!
If your boyfriend loves you then like Jaquie said, it shouldn't matter, I don't have experience with a relationship but even with medical issues he should still love you because of your personality, not how you look.
quandila my husband ended up with many health issues before he passed. I loved him because of him for better or worse, sickness and health. It didn't matter to me he couldn't do what he used to, we found new things we enjoyed together. I stood by him until his very last breath, as did he by me when I got sick (I too have chronic illnesses). True love sees past our issues to who we really are. If they love you, truly love you, it won't and shouldn't matter.
Big question!if your chair will be a power assist how is it going to be fitting in your car??
jennifersykes5 She said yesterday in the comments its in the wheels.
Disney Gamer so she can just take off the wheels?
Easily? It will look like Juilains
Disney Gamer i didnt read the comments
jennifersykes5 its ok. Not many go back, TH-cams not giving notifications so going back and i saw it. I dont know but the wheels will be smaller not big.
Does Julian have a youtube/instagram??
J Ballinger I haven't made videos yet and my Instagram is positivelych.ill_julian
I just went and followed you!!!!
Hi Jacquie I'm New and I have autism
Will you teach Harlow to pull your wheelchair?
She can teach Harlow how to open doors but how is a dog able to pull a wheelchair?????
Yeah, make it a little chariot.
some dogs are sort of strong enough to pull a chair, but it's not good for them physically, or for a service dog to be learning to do things like that. She needs to get a "smart drive" once she's used to her wheelchair & using it lots (that's a little motor wheel that clips onto the back and keeps you rolling at the speed you pushed up to until you tap the off function)
+Marie Fara Ooh okay... Sorry, didn't know that... Thanks for telling me.
Diyana Altae since I'm getting power assist I don't think I'll need to, but it also is not good for her joints for long distance. Only for up a short ramp. But I'm not sure I'd want to risk it.
I am in a wheelchair. I am always in pain. I haven't got a tubefeed. Anyway I have put on heaps of weight. I am asking anyone here, what do you do to lose weight??
is it unconforable to sleep wile ronning feeds
YES I want to be able to only run during the day but I am not there yet. I move alot and tangle the tubing, set off the alarm, EVERY night.