I did not mention this in today’s vlog, but the photo hanging above our couch is one that I took in high school (back when I practiced amateur photography). A few of you really liked it (thank you!) and asked me to consider selling prints. Seeing as I have a few other photos from “back in the day,” I might do this in the future! But I really wanted to say thank you, because y’all have inspired me to pick up the camera again! When my mobility improves (whether though IVIG or my custom wheelchair) and the weather cools down in FL, I am going to attempt getting back into photography. 😊 It may not turn out great, but it sure will be fun!
Chronically Jaquie that will be so fun and beautiful to watch you do omg! I am so excited for you to be getting your custom wheelchair it sounds like it will really bring back fond moments and create new ones! Take SO many pictures! No moment in time is ugly or dull, everything in life is beautiful! 💖
Love you Jaquie!! I named my new Betta fish after you, because "keep moving forward" has become part of my daily mantra. She's blue, but still very pretty and always happy. :). I'm so happy your eval went so well!! I look forward to updates on it!
Hi Jaquie, I don't remember how your channel ended up in my feed, but I watched an episode a few weeks ago and now I look forward to seeing you every day. I am not chronically ill, but in the short time I've followed, I have a greater understanding of what you and others with chronic illnesses go through every day, and have since committed to complaining less about the things that should absolutely come easily for me, that you may struggle with. I hope that doesn't sound patronizing. You are an inspiration, and a breath of fresh air. Keep moving forward!
Just in the thumbnail picture, I can see the joy. God has a plan for everything and he is surely giving you his time right now. You seem to be doing better with your GI symptoms since getting the new feeding tube. The custom wheelchair is such an amazing tool and i know it will benefit you in the long run
I have mild Autism, (well, Asperger's, but it's not really on the spectrum anymore, I don't think.) I'm 16, and I got diagnosed at around 10. Having my label is so helpful. And I have IBS, while my mom has IBD, Crohn's, and gastro-issues. I'm really inspired by you!
It's so cool that 'wheelchair professionals' understand that wheelchair aren't just for people who physically can't walk. My mum could walk . . . she just couldn't breathe enough to get the oxygen she needed to do so (due to her respiratory issues). She tried hard, and we had a walker for her . . . but to enjoy the outings she and I loved together, we needed a chair . . . but we had to buy one ourselves (I'm in NZ . . . socialised health system and generally no insurance, but they wouldn't cover a wheelchair). It was awesome because suddenly we could enjoy shopping trips and trips to craft shows again. She was very particular in who she would let see her in what she saw as a vulnerable state (e.g. she would only let me or my sister push her, and we had to give lots of physical and verbal affection) but in a way it bought me closer to her near the end of her life. It makes me mad when people think equipment to assist with mobility is limited to people who can't walk . . . it's also for people who can't breathe enough to walk . . . or who are in too much pain to walk . . . and sometimes, who have some anxiety/mental health issues meaning they need to use things like mobility parking so they have less distance to go to the get to the big scary store. Jaquie, I've recently started watching all your vlogs and love them - love seeing you in your role as a warrior, love seeing the support you get from your amazing husband (OMG I wish I had a Judd) and the help you get for your Hippo. I have minor physical illnesses, but my major illness are psychiatric . . . and omg the discrimination and stigma I face from that. But it gives me some joy that I very much need to see you fighting and succeeding and enjoying your life. (Still wish I had a Judd of my own. And I have far too many emotional support cats . . . hehehe crazy cat lady . . . but I can't take them out with me). Keep fighting, keep loving, keep enjoying your best life. And I totally hope that at every turn, you get the help and support you need.
Ah I'm so happy the process is getting started!!! My docor is refusing to help me get evaluated for one even though I walk with a cane every day and use a wheelchair my grandpa had to be able to use because I collapse so frequently ;3; I'm getting a new pcp, I'm using your videos to help take charge of my health 💓 keep moving forward
You could do photography as a job if the occupational therapist wont work out or you can do editing as a job too. You have a back up plan. My ex always told me that you should make your hobby a career!! You do take great pictures.
Chronically Jaquie you're very good at details. I believe editing would be perfect! My husband was a pro photographer for over 38 years. It's very hard work. Being on the editing side would be perfect for you!
Wow... Congrats on the wheelchair evaluation and I can't wait until you unveil it. Pink and purple are my favorite colors too and exactly what I would have choosen too. I'm amazed that you'll be able to operate it by using your phone. The freedom it will give you and your family and friends will be fantastic. Lucky lady!
I ran across your channel a few months ago. I was watching you take a breathing treatment. My husband has copd and does breathing treatments as well. I just wanted to say I've learned so much from watching your videos about dealing with chronic illnesses. Plus hippo is an added bonus. You have a good support network and great husband. Keep up all the good work your doing. I have started watching The raw life and the Frey life by watching your videos. Cheers to you for being a great example to those with chronic illnesses.
That picture is amazing! Me and my husband recently got a camera and I can't wait till we can get some really great pictures and decorate our home as well. I am so glad ivig has helped and I love that you just keep moving forward. Watching your channel has helped me a lot with keeping moving forward even on my bad days.
Hi! Greetings from Sweden! I found your channel by "misstake" for about two months ago. I think you are such a sweet couple and you are a true trooper coping with your chronic illness. I follow your updates every day now and I'm so happy with your progress after the change of feeding tube. And now I'm so excited for your new custom wheelchair! Hippo is so cute and such a good service dog and your husband is the sweetest husband ever. I wish you all the best with your health and life.
I'm so excited that you got accepted on the wheelchair evaluation and omg that rug and the picture the room looks so cosy! I think you are right some cushions will just finish it off xx
I'm thrilled for you! I can't wait till you get it. I have a long range on my mobility scooter too. I take my service dog scooter walkies everyday. It has helped me so much to get out of the house and my dog service Beau and I meeting peeps and dogs at the dog park. It really is for his doggie time to socialize. Blessings to you ❤️
Congrats Jacquie! I love your channel because Chronic Illness is not talked about the much! You have a great message and you are so positive about everything! I'm a new subscriber I'm in love with your videos! Does anyone talk about how great her editing skills are?!
Alex And Cara same here...a lot of people choose to ignore chronic illnesses which is a big problem and stop talking about it, which I hope this improves in the future
This channel is so great because she shows all of the high & lows of chronically severely ill! We could look good literally for a few mins & feel ok & just like a snap of the finger, things go sideways (not well) and when we have a little more energy one day & or push thru to do something fun/adventurous;) we definitely pay for it 10 fold and ppl who know chronically ill ppl or whom lives with one, needs to see these vlogs bc sometimes they just don’t get it even if they are living with someone with these battles (multiple illnesses) so thank you J! And please forgive that I’ve nicknamed you & hubby J&J as it helps me with my compromised memory etc. God Bless & I will be looking into this chair!
i'm so glad to hear that the appt went so well!! i got my first custom chair a year ago and it's been a huge help, it's just so freeing to be able to get around easier and faster. and i also have EDS and a lightweight tilite frame + smart drive and it surprisingly doesn't bother my shoulders at all, so i hope you're able to get the wheels and frame you want!! the only thing i'd recommend to go along with it is a pair of gloves because pushing the handrims can irritate your hands. my personal favs are fingerless faux leather ones but any kind will work! :) super happy for you ❤️✨
I've actually had my Quickie for just under a year now, and it's my life. Previously I never left the house, between spinal osteoporosis and nerve damage it caused, Addison's, muscle atrophy and chronic anemia. I missed so much time with my family and my 5-year-old daughter. Now I can get out a lot more, my kid is super happy I can do stuff with her, and it's not as depressing considering I'm not confined to the house. Hopefully having a wheelchair is as wonderful for you, too!
Congrats on ordering your chair. I hope your insurance covers everything!!! My insurance denied my chair but I was able to get a used one. It is so freeing!! I can walk but I get tired so fast, having a chair has been life changing for me. I can't wait to get a custom fit one someday. I'm so excited for you!!
Jaquie, I love watching your videos. You are a true inspiration to me. I'm so happy you have such an amazing and supportive husband whose always by your side. Also, I am so glad you had such a successful wheelchair evaluation. Keep inspiring us all. You're amazing & have such a beautiful soul
I'm so glad you had such an uplifting day! It's so great to see you so excited and happy... I couldn't stop smiling. So pleased your new chair will be everything you need it to be too!
I am so thrilled!!! I am so happy that u r going to get ur wheelchair and have more independence! And yes, u r a lot more energetic and happy. So glad u r doing well!
Get Fit at 40 happens to me too with my chronic illnesses. I call it "paying for" the previous day. If you use over your days allowance of spoons 🥄 you're going to pay for it the day after or even longer.
I'm an EDS'er with a manual, light weight wheelchair, and I can say from experience that pushing the chair wears on my shoulders which used to be one of my more stable joints. I hope you get the self propelled!
Haha i had to laugh when Judd said your power wheels were James Bond stuff!! I'm in the same process right now with the wheelchair, I really hope the appointment goes well. I live in the Netherlands and the process is a bit different here because the state has to decide whether you get the wheelchair because they have to pay for it. And as I think you know these tools are expensive! So i really hope they give me that permission. It's funny to hear most of the wheelchair features you mentioned are the same as my physical therapist did. Loved the vlog!!
I am Happy for the people was nice to you. That's a super Great you are getting a new wheelchair. Awesome colors and power wheelchair. I am very happy and excited for you. You made my day cause I been praying for you. Love that rug it's beautiful goes with the room. Have a blessed day.
So excited for you! You are one step closer to that custom wheelchair and more mobility for yourself! Fingers crossed that insurance will cover a good percentage of the cost.
Hi Jacquie, always nice to see you smiling:) also was happy to hear about your plans with your photography. I saw the picture over your sofa and immediately wished I could have a copy but I'm a new friend and was hesitant to ask. the picture is beautiful and coming from you guys makes it super special. would love a copy. PS, say hi to Harlow for me.
So happy for you! It was funny when Judd asked how many people walk over 12 miles in a day. I do! But I have a job that requires me to move around a lot and I also walk my dogs a lot and live in a city where walking/public transit is easier than finding parking. I'm excited for you to take on Disney in your new chair!
lol I was waiting for Judd to scream at the camera "ON OUR ADVENTURE" 😂I'm so sad he didn't lol but loved the vlog! I'm so excited for your wheelchair and so glad your new tools are helping you so much already!❤️
Congratulations on things going well for your evaluation. Your new chair sounds awesome. You will be more independent. Judd there is nothing wrong with a rug on carpet. I've dine that plenty of times. Men don't understand. Jaquie knows exactly how to furnish the house. Judd your a great husband to Jaquie. Love your vlogs.
I had to walk 20 miles over 2 days (12 the first 8 the second) for my D of E with a massive back pack and it was exhausting but I pushed through and when I finally finished with my team I felt so amazing! I was so proud of myself for doing a seemingly impossible task. I proved to myself that I could do anything of I put my mind to it!
I have the beige rug in my house and I love it. The rug looks really good in your house. It pulls everything together. Glad that the mobility evaluation went well. Thumbs up! Sending prayers. ❤️
Oh Judd! He clearly doesn't understand interior decorating lol. The rug looks great with the painting. Congrats with your evaluation!! Can't wait to see your chair.
Omg, I am sooo happy everything worked out with the evaluation!!! 🌞🌞 and I'm also glad you are seeing improvements in your medical changes already!! I pray for more success and happiness and energy!! ❤❤
I'm so so happy for you! Things are on an upward climb (not gonna say getting better cause we all understand how the universe is to us...😒😄) I used to take photography as well, was going to be my job but BIG FAT NOPE! Sadly lost my passion but It would be great to see you doing that again!❤️
I just wanted to thank you for introducing the vogmask into my knowledge. I talked to my doctor and she said to try it for my allergies. They aren't terrible but it triggers my asthma and then i get very sick very quickly so I'm quite excited to try it. So thank you for doing what youre doing being so informational yet so human (if that makes sense).
So great about the wheelchair! My experience with the evaluation was really nice too and I have a TiLite ZRA! :) I love it. It's so easy to self-propel and I figured out how to assemble and disassemble it from the driver's seat so I don't have to stand or stand in the heat to do that. I could really use power assist sometimes but it wasn't covered. It would really help me and allow me more independence. :( I hope you're able to get everything you need and that insurance doesn't give you a hard time at all.
I really hope I can get the power assist too, but we will see. Can you reapply eventually? My friend did not get it covered either but can reapply in a year for it.
Chronically Jaquie I'm not sure... I'm in better shape now than I was then so I doubt it. I'm not sure if it's covered for anyone here or if it's strictly an out of pocket add-on.
So happy you have all these wonderful things to help you. You are such an inspiration because although your illnesses make your life tough you always power through and smile 😁well tell Hippo I said hi
I got my new wheelchair yesterday. It was so scary to be out of control. My husband is having to raise the handle for he has to bend his back to push me. We shopped and got some walnut dowel and are going to cut the tube of the handle and extend it a few inches higher. Make sure your hubby can push the chair if the battery is dead.
I hope your ivig runs smooth. I have mine on Monday I infuse 40gr over a eight hours. Every three weeks. Have you considered trying Alkaline water? With your port accessed constantly how is your skin fairing? Skin Prep really helped me stop getting such awful welts. Jaquie your encouraging words are gold to the ear girl. '
Carlen if your asking me, mine is manual. We just purchased a Drive III from Amazon Prime. It was only $150ish. It is just for when pain is too much or I get too tired.
Yeah that one is not meant to be self propelled, although it was fine for me indoors on solid flooring. It's way too heavy... I couldn't get over a single curb. It's not bad for very part time use though.
Harlow is so adorable! It's ok.. I can't eat Chipotle either. I recently discovered your channel, and you have given me a new outlook on life. I'm much happier, all thanks to you! I love the rug! Really hope you follow the photography path, you're so talented! Have a great rest of your day. (:
I got evaluated for a custom wheelchair about 2 months ago and mine has the power assist wheels that can be controlled on your phone too! it's so awesome and just got approved by insurance! I tried the wheels out and they are super awesome! hope everything goes well!
Sammi Zelitt are they too heavy for you? Mine are 13 lbs each wheel. They told me the extra weight won't matter when propelling due to the power assist, but I'm worried about assembling it myself. I'm calling them to talk about this but would love your input if you don't mind (:
Chronically Jaquie I don't have my chair yet, (i just tried one out) but they said that they are 13 lbs each too. they told me that putting the wheels on and off is very easy, and I saw. you just press a button on them and it pops on. I'm worried about it too, but i'm sure i will figure out a way to do it! hopefully if you get a light base for the chair the wheels will be most of the weight
Perfect timing! as i was watching the vlog of you before your feeding tube (where you were malnourised) and i got the notification that this one was uploaded! Not excactly the best moment in your journey but i found it coencidental that i was watching you and then you uploaded! Aha Love you Jaquie ❤️
Love your vlogs so much. You look so happy and I'm so glad you're doing well. So excited to see your wheelchair in the future! I thought you bought that picture. You are incredible at taking pictures!! You should consider doing it more in the future
your training videos has really helped me train my dog to be a service dog they r really easy to fallow and she got look at me really easy thank u for them I really love your videos
Jaquie I noticed when you were showing your mom's bowl on your coffee table at 8:06 there seems to be something moving behind the bowl. I don't know if this is a trick of the light or if there is actually something there. Freaked me a little lol. Check it out. I'm so glad your evaluation went so well. I hope your insurance pays for it and you get it soon. Love your rug.
It was funny to hear you say "Thank you, Tia" because my aunt is Cuban and that's what I call her. I know it's just another language but you don't hear it often in Midwest America.
I'm so excited for you. My daughter got measured for her second wheelchair last week. She's grown out of her current one. Haha a James Bond wheelchair might have to name your wheelchair Martin.
The progress you have made through finding treatment plans that work well for you is astounding, and something that amazes me even more is that throughout the entire process, you have always radiated positivity. I am so glad to see that you are making such leaps and bounds towards your independence, and I only hope that this upward trend continues!! I do have one question though, if you don't mind me asking - At one point you'd mentioned in one of your videos that you had a (curable) compressed artery that might actually be the cause of your Gastroparesis. Is that something that now things are improving with your health, that you will be pursuing in the future?
sweet!!! i'm sooo happy for you!!! it was a big deal when my stepdad finally got his rascal since it wasn't covered by insurance and it was a game changer for our family. and that one wasn't even custom either, so this is really bad ass!! plus purple and pink, hell yeah! i'm really happy for you. btw... I have treatment resistant ibs but I've got really good results with taking b.infantis probiotics and acupuncture, especially acupuncture! I didn't know if your doctors had an opinion about that but my digestive system is working sooo much better now and I've been able to eat every day for almost a month when I would have at least 3 days a week of struggling to eat. I have an old low back injury that ties into the slow movement in my colon, so I go in for acupuncture now just once a week (before it was 3-4 days for the course of the first month) and i'm able to eat with only functioning type symptoms =) (think burping etc). of course, you do what is best for you and i'm super stoked for you to get an awesome wheelchair! have you been thinking about any stickers you want to have on it or ways you'd like to pimp your ride (maybe a Bluetooth speaker or LEDs? ;) I got that idea from the night riders bicycle club in my city)? if you could have any type of back pack for your chair, what would you get/make? anyway, congrats! stay awesome on living life as full as possible
Sorry, not Jacquie, but I've been using Tilite's bag that hooks under the wheelchair for a bit and... I don't care for it. It does hold a lot of stuff, so that's good. My ROHO cushion pump fits perfectly inside. It's good if you just wanna bring a few small things. It keeps your stuff out of the way and inaccessible to pick pocketing. But it's difficult to reach and I dislike bending over every time I need something. If you keep your wallet in a front pocket of a backpack it could get stolen... but the main pocket is too deep to access easily. I dunno! Depends on the weather too... If I need to carry a sweater and/or umbrella then backpack it is.
I love the picture, amazing professional job. It looks just like a painting. You really could do this professionally in the future if you so choose. Great to hear about your wheelchair. I hope it is all you desire. If the insurance falls in line now all will be well and you can have the independance you so richly deserve. Have a great day.
I got my first IV treatment of Tysabri for MS. Hopeing that I get better. Like you I will never be like a healthy person but any little bit of time that we are feeling a little better is great.
I have muscular dystrophy and just got my wheelchair follow up for a new one I love getting a new chair.. I be getting a AMY SYSTEM AND I SHOULD BE GETTING IT BY DECEMBER
im so excited for you i pray for you every day and love seeing your vlogs to keep up with you. its probably creepy lol but i talk to about you to my friend and family all the time and they get excited for you too
The new rug is nice but when you get you custom wheelchair and when you are using it in the living room if you go over the rug then it will make a lump because it will get rolled up on the corners and it could be a hazard for you and with the walker to be care full.
Chronically Jaquie my brother has very bad allergies too and we switched out our carpet to hardwood and our whole family has benefited from it. Just some thing your can add to your list from when or if you move
I'm glad that you are hopefully getting what you need and I hope that the insurance will cover it. As it is going to take a few months will it be Christmas before you get it because that would be such a great Christmas gift having your independence in a way that you haven't had in a long time.
I did not mention this in today’s vlog, but the photo hanging above our couch is one that I took in high school (back when I practiced amateur photography). A few of you really liked it (thank you!) and asked me to consider selling prints. Seeing as I have a few other photos from “back in the day,” I might do this in the future! But I really wanted to say thank you, because y’all have inspired me to pick up the camera again! When my mobility improves (whether though IVIG or my custom wheelchair) and the weather cools down in FL, I am going to attempt getting back into photography. 😊 It may not turn out great, but it sure will be fun!
Chronically Jaquie today is my b day
Chronically Jaquie I'm so happy for you!!I can tell the wheel chair will help!!!
Chronically Jaquie well actually my bday was yesterday but I have no idea what your editing schedule is and when you post
Chronically Jaquie that will be so fun and beautiful to watch you do omg! I am so excited for you to be getting your custom wheelchair it sounds like it will really bring back fond moments and create new ones! Take SO many pictures! No moment in time is ugly or dull, everything in life is beautiful! 💖
I would love to see your photos!
Love you Jaquie!! I named my new Betta fish after you, because "keep moving forward" has become part of my daily mantra. She's blue, but still very pretty and always happy. :). I'm so happy your eval went so well!! I look forward to updates on it!
How neat :D
Amber Schmidt that is so sweet!
When Judd pointed out that you're eating all the time, it made me smile and laugh. He's so supportive. You two make such a wonderful couple.
Hi Jaquie, I don't remember how your channel ended up in my feed, but I watched an episode a few weeks ago and now I look forward to seeing you every day. I am not chronically ill, but in the short time I've followed, I have a greater understanding of what you and others with chronic illnesses go through every day, and have since committed to complaining less about the things that should absolutely come easily for me, that you may struggle with. I hope that doesn't sound patronizing. You are an inspiration, and a breath of fresh air. Keep moving forward!
Just in the thumbnail picture, I can see the joy. God has a plan for everything and he is surely giving you his time right now. You seem to be doing better with your GI symptoms since getting the new feeding tube. The custom wheelchair is such an amazing tool and i know it will benefit you in the long run
Definitely getting relief from the new tube! God is so good, delivering what I need to live a wonderful life
Chronically Jaquie yep
I have mild Autism, (well, Asperger's, but it's not really on the spectrum anymore, I don't think.) I'm 16, and I got diagnosed at around 10. Having my label is so helpful. And I have IBS, while my mom has IBD, Crohn's, and gastro-issues. I'm really inspired by you!
It's so cool that 'wheelchair professionals' understand that wheelchair aren't just for people who physically can't walk. My mum could walk . . . she just couldn't breathe enough to get the oxygen she needed to do so (due to her respiratory issues). She tried hard, and we had a walker for her . . . but to enjoy the outings she and I loved together, we needed a chair . . . but we had to buy one ourselves (I'm in NZ . . . socialised health system and generally no insurance, but they wouldn't cover a wheelchair). It was awesome because suddenly we could enjoy shopping trips and trips to craft shows again. She was very particular in who she would let see her in what she saw as a vulnerable state (e.g. she would only let me or my sister push her, and we had to give lots of physical and verbal affection) but in a way it bought me closer to her near the end of her life. It makes me mad when people think equipment to assist with mobility is limited to people who can't walk . . . it's also for people who can't breathe enough to walk . . . or who are in too much pain to walk . . . and sometimes, who have some anxiety/mental health issues meaning they need to use things like mobility parking so they have less distance to go to the get to the big scary store. Jaquie, I've recently started watching all your vlogs and love them - love seeing you in your role as a warrior, love seeing the support you get from your amazing husband (OMG I wish I had a Judd) and the help you get for your Hippo. I have minor physical illnesses, but my major illness are psychiatric . . . and omg the discrimination and stigma I face from that. But it gives me some joy that I very much need to see you fighting and succeeding and enjoying your life. (Still wish I had a Judd of my own. And I have far too many emotional support cats . . . hehehe crazy cat lady . . . but I can't take them out with me). Keep fighting, keep loving, keep enjoying your best life. And I totally hope that at every turn, you get the help and support you need.
Ah I'm so happy the process is getting started!!! My docor is refusing to help me get evaluated for one even though I walk with a cane every day and use a wheelchair my grandpa had to be able to use because I collapse so frequently ;3; I'm getting a new pcp, I'm using your videos to help take charge of my health 💓 keep moving forward
Goodness I hope it works out for you!
You could do photography as a job if the occupational therapist wont work out or you can do editing as a job too. You have a back up plan. My ex always told me that you should make your hobby a career!! You do take great pictures.
I really love editing, I am thinking of switching my major to communications (:
Chronically Jaquie that's really great. Your really great at explaining things too and the words are very clear!!
Chronically Jaquie you're very good at details. I believe editing would be perfect! My husband was a pro photographer for over 38 years. It's very hard work. Being on the editing side would be perfect for you!
Wow... Congrats on the wheelchair evaluation and I can't wait until you unveil it. Pink and purple are my favorite colors too and exactly what I would have choosen too. I'm amazed that you'll be able to operate it by using your phone. The freedom it will give you and your family and friends will be fantastic. Lucky lady!
I was shocked at the phone use as well! :O
I ran across your channel a few months ago. I was watching you take a breathing treatment. My husband has copd and does breathing treatments as well. I just wanted to say I've learned so much from watching your videos about dealing with chronic illnesses. Plus hippo is an added bonus. You have a good support network and great husband. Keep up all the good work your doing. I have started watching The raw life and the Frey life by watching your videos. Cheers to you for being a great example to those with chronic illnesses.
That picture is amazing! Me and my husband recently got a camera and I can't wait till we can get some really great pictures and decorate our home as well. I am so glad ivig has helped and I love that you just keep moving forward. Watching your channel has helped me a lot with keeping moving forward even on my bad days.
*gasp* Judd didn't beat you to "on our adventure." That always make me giggle. You 2 are so cute together.
I just found your channel yesterday and I can't stop watching. You are such an inspiration to so many people. Thank you so much! xx
Hi! Greetings from Sweden! I found your channel by "misstake" for about two months ago. I think you are such a sweet couple and you are a true trooper coping with your chronic illness. I follow your updates every day now and I'm so happy with your progress after the change of feeding tube. And now I'm
so excited for your new custom wheelchair! Hippo is so cute and such a good service dog and your husband is the sweetest husband ever. I wish you all the best with your health and life.
I'm so excited that you got accepted on the wheelchair evaluation and omg that rug and the picture the room looks so cosy! I think you are right some cushions will just finish it off xx
I'm thrilled for you! I can't wait till you get it. I have a long range on my mobility scooter too. I take my service dog scooter walkies everyday. It has helped me so much to get out of the house and my dog service Beau and I meeting peeps and dogs at the dog park. It really is for his doggie time to socialize. Blessings to you ❤️
Congrats Jacquie! I love your channel because Chronic Illness is not talked about the much! You have a great message and you are so positive about everything! I'm a new subscriber I'm in love with your videos! Does anyone talk about how great her editing skills are?!
Awe thank you! You should watch my first vlog, I have definitely learned a lot about editing haha
Alex And Cara same here...a lot of people choose to ignore chronic illnesses which is a big problem and stop talking about it, which I hope this improves in the future
Emily Anne I love finding others who speak out about chronic illness. Like you said, it is not talked about enough!
Chronically Hopeful this is very true, sadly
This channel is so great because she shows all of the high & lows of chronically severely ill! We could look good literally for a few mins & feel ok & just like a snap of the finger, things go sideways (not well) and when we have a little more energy one day & or push thru to do something fun/adventurous;) we definitely pay for it 10 fold and ppl who know chronically ill ppl or whom lives with one, needs to see these vlogs bc sometimes they just don’t get it even if they are living with someone with these battles (multiple illnesses) so thank you J! And please forgive that I’ve nicknamed you & hubby J&J as it helps me with my compromised memory etc. God Bless & I will be looking into this chair!
i'm so glad to hear that the appt went so well!! i got my first custom chair a year ago and it's been a huge help, it's just so freeing to be able to get around easier and faster. and i also have EDS and a lightweight tilite frame + smart drive and it surprisingly doesn't bother my shoulders at all, so i hope you're able to get the wheels and frame you want!! the only thing i'd recommend to go along with it is a pair of gloves because pushing the handrims can irritate your hands. my personal favs are fingerless faux leather ones but any kind will work! :) super happy for you ❤️✨
I will look into gloves, thank you!
I've actually had my Quickie for just under a year now, and it's my life. Previously I never left the house, between spinal osteoporosis and nerve damage it caused, Addison's, muscle atrophy and chronic anemia. I missed so much time with my family and my 5-year-old daughter. Now I can get out a lot more, my kid is super happy I can do stuff with her, and it's not as depressing considering I'm not confined to the house. Hopefully having a wheelchair is as wonderful for you, too!
That is wonderful! I am looking forward to the same independance :D
Congrats on ordering your chair. I hope your insurance covers everything!!! My insurance denied my chair but I was able to get a used one. It is so freeing!! I can walk but I get tired so fast, having a chair has been life changing for me. I can't wait to get a custom fit one someday. I'm so excited for you!!
Jaquie, I love watching your videos. You are a true inspiration to me.
I'm so happy you have such an amazing and supportive husband whose always by your side. Also, I am so glad you had such a successful wheelchair evaluation.
Keep inspiring us all. You're amazing & have such a beautiful soul
I'm so glad you had such an uplifting day! It's so great to see you so excited and happy... I couldn't stop smiling. So pleased your new chair will be everything you need it to be too!
I am so thrilled!!! I am so happy that u r going to get ur wheelchair and have more independence! And yes, u r a lot more energetic and happy. So glad u r doing well!
We have the same thing that happens with my 9-year old that has autism. We call it "day after syndrome"!
That is a clever term!
Get Fit at 40 happens to me too with my chronic illnesses. I call it "paying for" the previous day. If you use over your days allowance of spoons 🥄 you're going to pay for it the day after or even longer.
Get Fit at 40 I say, 'Paying for it,' as well.
Get Fit at 40 same happens for me with my fibromyalgia and especially after massages from my chiropractor
I'm an EDS'er with a manual, light weight wheelchair, and I can say from experience that pushing the chair wears on my shoulders which used to be one of my more stable joints. I hope you get the self propelled!
Haha i had to laugh when Judd said your power wheels were James Bond stuff!! I'm in the same process right now with the wheelchair, I really hope the appointment goes well. I live in the Netherlands and the process is a bit different here because the state has to decide whether you get the wheelchair because they have to pay for it. And as I think you know these tools are expensive! So i really hope they give me that permission. It's funny to hear most of the wheelchair features you mentioned are the same as my physical therapist did. Loved the vlog!!
I am really hoping it works out for you!
I'm so glad that the evaluation went so well for you guys
YAY for a great evaluation! Can't wait to see all the adventures this new tool will bring you on! You're a rock star Jaq! ☺️
I am Happy for the people was nice to you. That's a super Great you are getting a new wheelchair. Awesome colors and power wheelchair. I am very happy and excited for you. You made my day cause I been praying for you. Love that rug it's beautiful goes with the room. Have a blessed day.
So excited for you! You are one step closer to that custom wheelchair and more mobility for yourself! Fingers crossed that insurance will cover a good percentage of the cost.
Hi Jacquie, always nice to see you smiling:) also was happy to hear about your plans with your photography. I saw the picture over your sofa and immediately wished I could have a copy but I'm a new friend and was hesitant to ask. the picture is beautiful and coming from you guys makes it super special. would love a copy. PS, say hi to Harlow for me.
Maybe one day I can sell prints :D I would need a third party to handle production/distribution though, I could not do all that lol
I'm so happy your getting your wheelchair! Also harlow is the cutest dog in the entire world.
So happy for you! It was funny when Judd asked how many people walk over 12 miles in a day. I do! But I have a job that requires me to move around a lot and I also walk my dogs a lot and live in a city where walking/public transit is easier than finding parking. I'm excited for you to take on Disney in your new chair!
lol I was waiting for Judd to scream at the camera "ON OUR ADVENTURE" 😂I'm so sad he didn't lol but loved the vlog! I'm so excited for your wheelchair and so glad your new tools are helping you so much already!❤️
Congratulations on things going well for your evaluation. Your new chair sounds awesome. You will be more independent. Judd there is nothing wrong with a rug on carpet. I've dine that plenty of times. Men don't understand. Jaquie knows exactly how to furnish the house. Judd your a great husband to Jaquie. Love your vlogs.
I had to walk 20 miles over 2 days (12 the first 8 the second) for my D of E with a massive back pack and it was exhausting but I pushed through and when I finally finished with my team I felt so amazing! I was so proud of myself for doing a seemingly impossible task. I proved to myself that I could do anything of I put my mind to it!
I have the beige rug in my house and I love it. The rug looks really good in your house. It pulls everything together. Glad that the mobility evaluation went well. Thumbs up! Sending prayers. ❤️
Oh Judd! He clearly doesn't understand interior decorating lol. The rug looks great with the painting. Congrats with your evaluation!! Can't wait to see your chair.
Awwww I love you guys! I'm glad everything went so well with your evaluation! So happy!!!!
wow the wheelchair you are getting sounds AMAZING Jaquie so glad that it all went well for you x
Yes I am so excited!
Omg, I am sooo happy everything worked out with the evaluation!!! 🌞🌞 and I'm also glad you are seeing improvements in your medical changes already!! I pray for more success and happiness and energy!! ❤❤
I'm so so happy for you! Things are on an upward climb (not gonna say getting better cause we all understand how the universe is to us...😒😄) I used to take photography as well, was going to be my job but BIG FAT NOPE! Sadly lost my passion but It would be great to see you doing that again!❤️
I just wanted to thank you for introducing the vogmask into my knowledge. I talked to my doctor and she said to try it for my allergies. They aren't terrible but it triggers my asthma and then i get very sick very quickly so I'm quite excited to try it. So thank you for doing what youre doing being so informational yet so human (if that makes sense).
Just yesterday I was looking back at some of your first videos. You have done so well and I can tell you have gotten better 😊
lovepaw aj I binge, yes she really has!
So great about the wheelchair! My experience with the evaluation was really nice too and I have a TiLite ZRA! :) I love it. It's so easy to self-propel and I figured out how to assemble and disassemble it from the driver's seat so I don't have to stand or stand in the heat to do that. I could really use power assist sometimes but it wasn't covered. It would really help me and allow me more independence. :( I hope you're able to get everything you need and that insurance doesn't give you a hard time at all.
I really hope I can get the power assist too, but we will see. Can you reapply eventually? My friend did not get it covered either but can reapply in a year for it.
Chronically Jaquie I'm not sure... I'm in better shape now than I was then so I doubt it. I'm not sure if it's covered for anyone here or if it's strictly an out of pocket add-on.
So happy you have all these wonderful things to help you. You are such an inspiration because although your illnesses make your life tough you always power through and smile 😁well tell Hippo I said hi
I got my new wheelchair yesterday. It was so scary to be out of control. My husband is having to raise the handle for he has to bend his back to push me. We shopped and got some walnut dowel and are going to cut the tube of the handle and extend it a few inches higher. Make sure your hubby can push the chair if the battery is dead.
Good point, thank you!
I hope your ivig runs smooth. I have mine on Monday I infuse 40gr over a eight hours. Every three weeks. Have you considered trying Alkaline water? With your port accessed constantly how is your skin fairing? Skin Prep really helped me stop getting such awful welts. Jaquie your encouraging words are gold to the ear girl.
'
Did you get a power wheelchair? I've heard they take a little more getting used to than a manual.
Carlen if your asking me, mine is manual. We just purchased a Drive III from Amazon Prime. It was only
$150ish. It is just for when pain is too much or I get too tired.
Yeah that one is not meant to be self propelled, although it was fine for me indoors on solid flooring. It's way too heavy... I couldn't get over a single curb. It's not bad for very part time use though.
Harlow is so adorable! It's ok.. I can't eat Chipotle either. I recently discovered your channel, and you have given me a new outlook on life. I'm much happier, all thanks to you! I love the rug! Really hope you follow the photography path, you're so talented! Have a great rest of your day. (:
I'm so glad you had such good news today! I got my own good news today too, so it's been a nice day for both of us :)
So happy for you getting your chair! I hope you love it and insurance approves it all!!!
I am SO hapoy that your evaluation went so well!!! I'm so excited for you!
also I love that rug, your house looks so nice (especially your picture)
I got evaluated for a custom wheelchair about 2 months ago and mine has the power assist wheels that can be controlled on your phone too! it's so awesome and just got approved by insurance! I tried the wheels out and they are super awesome! hope everything goes well!
Sammi Zelitt are they too heavy for you? Mine are 13 lbs each wheel. They told me the extra weight won't matter when propelling due to the power assist, but I'm worried about assembling it myself. I'm calling them to talk about this but would love your input if you don't mind (:
Chronically Jaquie I don't have my chair yet, (i just tried one out) but they said that they are 13 lbs each too. they told me that putting the wheels on and off is very easy, and I saw. you just press a button on them and it pops on. I'm worried about it too, but i'm sure i will figure out a way to do it! hopefully if you get a light base for the chair the wheels will be most of the weight
wowwwweee O_O I didn't know they were that heavy! That's more than my entire chair.
I love the way the picture looks hung up in the living room with the new rug! It definitely looks more homey~
Perfect timing! as i was watching the vlog of you before your feeding tube (where you were malnourised) and i got the notification that this one was uploaded! Not excactly the best moment in your journey but i found it coencidental that i was watching you and then you uploaded! Aha Love you Jaquie ❤️
Love your vlogs so much. You look so happy and I'm so glad you're doing well. So excited to see your wheelchair in the future! I thought you bought that picture. You are incredible at taking pictures!! You should consider doing it more in the future
your training videos has really helped me train my dog to be a service dog they r really easy to fallow and she got look at me really easy thank u for them I really love your videos
So glad the evaluation went well and you're going to get a great wheelchair for you
Wow! That is so awesome! You're going to have the best wheelchair ever!
I'm so happy for you. 😄😄
You are my most watched youtuber, along with Infinite Waters and Teal Swan. Very motivated to KEEP MOVING FORWARD!!
I'm so happy you got a wheelchair that you can move yourself !! And I love the painting!!❤️
congratulations on your new wheelchair. love the rug and picture.
Miss you always jaquie 💙
I'm so happy for you! I've also noticed you've had more energy btw. 😊
Miss these people 😢
Jaquie I noticed when you were showing your mom's bowl on your coffee table at 8:06 there seems to be something moving behind the bowl. I don't know if this is a trick of the light or if there is actually something there. Freaked me a little lol. Check it out. I'm so glad your evaluation went so well. I hope your insurance pays for it and you get it soon. Love your rug.
Im excited for you! I hope you get everything you need.
The blue shirt you're wearing in this vlog looks so good on you. Idk why but it just popped so much in the thumbnail and looked so bright !!
It was funny to hear you say "Thank you, Tia" because my aunt is Cuban and that's what I call her. I know it's just another language but you don't hear it often in Midwest America.
Your vlogs are something i look forward to every single day. I just adore you and your lovely family Jackie. Have a good day :D
Jaque you are very positive and inspirational person...God bless you always!!!
So happy for you!!! Fingers crossed insurance is good to you.
I'm so excited for you. My daughter got measured for her second wheelchair last week. She's grown out of her current one. Haha a James Bond wheelchair might have to name your wheelchair Martin.
The progress you have made through finding treatment plans that work well for you is astounding, and something that amazes me even more is that throughout the entire process, you have always radiated positivity. I am so glad to see that you are making such leaps and bounds towards your independence, and I only hope that this upward trend continues!! I do have one question though, if you don't mind me asking - At one point you'd mentioned in one of your videos that you had a (curable) compressed artery that might actually be the cause of your Gastroparesis. Is that something that now things are improving with your health, that you will be pursuing in the future?
Sacha Bontrager It isn't something we are focusing on right now because my body would not be able to handle that type of surgery
sweet!!! i'm sooo happy for you!!! it was a big deal when my stepdad finally got his rascal since it wasn't covered by insurance and it was a game changer for our family. and that one wasn't even custom either, so this is really bad ass!! plus purple and pink, hell yeah! i'm really happy for you.
btw... I have treatment resistant ibs but I've got really good results with taking b.infantis probiotics and acupuncture, especially acupuncture! I didn't know if your doctors had an opinion about that but my digestive system is working sooo much better now and I've been able to eat every day for almost a month when I would have at least 3 days a week of struggling to eat. I have an old low back injury that ties into the slow movement in my colon, so I go in for acupuncture now just once a week (before it was 3-4 days for the course of the first month) and i'm able to eat with only functioning type symptoms =) (think burping etc). of course, you do what is best for you and i'm super stoked for you to get an awesome wheelchair! have you been thinking about any stickers you want to have on it or ways you'd like to pimp your ride (maybe a Bluetooth speaker or LEDs? ;) I got that idea from the night riders bicycle club in my city)? if you could have any type of back pack for your chair, what would you get/make? anyway, congrats! stay awesome on living life as full as possible
Sorry, not Jacquie, but I've been using Tilite's bag that hooks under the wheelchair for a bit and... I don't care for it. It does hold a lot of stuff, so that's good. My ROHO cushion pump fits perfectly inside. It's good if you just wanna bring a few small things. It keeps your stuff out of the way and inaccessible to pick pocketing. But it's difficult to reach and I dislike bending over every time I need something. If you keep your wallet in a front pocket of a backpack it could get stolen... but the main pocket is too deep to access easily. I dunno! Depends on the weather too... If I need to carry a sweater and/or umbrella then backpack it is.
I love that rug and the colors too. Makes it look more cozy.
We have matching Rugs! I love this one. I did find on one corner that the edging came off. I used a bit of super glue and all better!
Omgg I'm so happy for you ! Now let's get that wheelchair !!
I love that Judd is constantly eating in your vlogs! He has as much enthusiasm with food as my boyfriend does xD
I've had the same rug for about 4 years. And I also have the bungee chair, it's really fun.
So excited for you - cannot wait to see the chair when you get it.
I love the picture, amazing professional job. It looks just like a painting. You really could do this professionally in the future if you so choose. Great to hear about your wheelchair. I hope it is all you desire. If the insurance falls in line now all will be well and you can have the independance you so richly deserve. Have a great day.
I got my first IV treatment of Tysabri for MS. Hopeing that I get better. Like you I will never be like a healthy person but any little bit of time that we are feeling a little better is great.
lol Judd, i'm the same way, i always walk by the Star Wars toys, especially when I know something new is coming out.
My Target just released the replacement brand for Mossimo. I checked it out and their still super soft!
I have muscular dystrophy and just got my wheelchair follow up for a new one I love getting a new chair.. I be getting a AMY SYSTEM AND I SHOULD BE GETTING IT BY DECEMBER
Yay for a great evaluation :) .....love the rug and I think turquoise would brighten up the room alot!....love that color! :)
i love your new rug so much! your home is looking beautiful :)
im so excited for you i pray for you every day and love seeing your vlogs to keep up with you. its probably creepy lol but i talk to about you to my friend and family all the time and they get excited for you too
The new rug is nice but when you get you custom wheelchair and when you are using it in the living room if you go over the rug then it will make a lump because it will get rolled up on the corners and it could be a hazard for you and with the walker to be care full.
Omg, keep Jud fed! I bet he is like most young men, always ready to eat!!
I'm so happy for you! And it's going to be pink!😍😍💖
I LOVE y'all and the jokes you have together (you eat all the time 😂) and I'm so happy for you that your evaluation went well!! 🎉🎉
Yay! I'm so happy your eval went well!
this vlog makes me so happy after having a difficult and tough week:) thanks to Jaquie, Judd, and Hippo
Glad to hear your evaluation went so well! Fingers and toes crossed that your insurance covers it all :)
Chronically Jaquie my brother has very bad allergies too and we switched out our carpet to hardwood and our whole family has benefited from it. Just some thing your can add to your list from when or if you move
Yes we want hardwood floors when we own our own home (:
Yay I'm so happy for you!
Judd's aversion to the rug on carpet is hilarious😂
I'm glad that you are hopefully getting what you need and I hope that the insurance will cover it. As it is going to take a few months will it be Christmas before you get it because that would be such a great Christmas gift having your independence in a way that you haven't had in a long time.
It could be as soon as two months, but maybe longer. Hopefully before Christmas!