Get Ready with Me | My Cystic Fibrosis Morning Routine
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- เผยแพร่เมื่อ 10 พ.ค. 2021
- [Vlog 5.10.21] - Here's what my current mornings look like!
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Welcome to The Frey Life daily vlogs! We are Peter & Mary, a married couple in our early 30's, showing the ups and downs of everyday life with #CysticFibrosis, a life-threatening lung disease that Mary was born with. We have an adorable standard poodle, Oliver, and a hairless sphynx cat, Harry. It's our hope that these videos can be an encouragement to to celebrate the little things in life and find joy amidst a world full of hard realities!
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![ลักพาตัว เอาลูกเอิร์นกลับมา...!! [เอิร์นไดเม่]](http://i.ytimg.com/vi/f4NVKlZ5qkk/mqdefault.jpg)
I decided to bring you along during part of my morning routine today!
Sorry you puked, my dear friend. All my hugs & love to you.
Randomly painting flowers and vines lol mixed with bible verses
Drat to the puking! Eh ce la vie?
I absolutely love mornings with my coffee. I get up extra early and enjoy a small breakfast with my elixir of caffeine and my iPad. It is how I enjoy my coffee watching your videos totally relaxed and content in the quiet. Beautiful sketches. Sorry you get nauseous.
Mary, where did you get that spray bottle you used on your paint?
I have been on Trikafta for about 1.5 years, and love my life on Trikafta! I always had to get up for school between 5:30-6:00 to be able to leave my house around 7:30. Within that time frame, I had to allow myself time for coughing, being nauseous, and trying to control my blood sugar. I haven't had that schedule for over a year during the pandemic, but if I am able to go back in person next school year, I am very hopeful for a better morning routine.
Ohhh I am so happy for you!! God is AMAZING!!!
Hi, Mary and Peter! :)) I rediscovered you guys once again today, after following your journey in my early to mid teens for nearly three years. Every day after school I'd hop on and check up, you both had made so many of my dark days bright again and gave me something to look forward to.
Of course life took over and years passed, however now I am now an adult and today you came to my mind out of the clear blue.
I clicked this video and that intro moved me to tears. Silence and peace speaks volumes!! ❤️ ✨ thank you for all of the effort you have always made to create amazing videos. Stay safe in this crazy time, much love to you both and your pets ❤️ :))
Nothing sweeter than that first swallow of fresh coffee in the morning. So happy for you Mary.
A fresh mountain dew for me first thing in the morning.
I cried today. I have another symptom from my back and problems that come with age. My husband said, remember what Mary says, it's just another season in life.
It's kinda nice seeing the change in your mornings now! What a difference from the last one of these vids you made
I just love this couple. They seem so down to earth. Much peace and love to you guys.
Love your paintings - they are brilliant!
I enjoy seeing the morning routines. Love y’all.
Mary your paintings are beautiful I love seeing them! I also love the nebulizer top amidst the painting!!! Real-life right there :P
I just watched your morning routine video from 8 years ago (or so) and I can’t believe how much better you’re doing. God is so good! Love you both 💕
My husband has cf I'm trying my best to take care of him bc I'm his caregiver we found out he has copd so I'm trying to be strong but I worry alot about him but watching u makes me smile even when he going through a hard time
@TheFreyLife thanks for the nebulizer vial tip! I do it all the time for my 4x daily Cromolyn neb treatments that I'm currently doing my evening dose while watching you do your mists! Keep on keeping on and Do What You Think You Can't Do!
You need to write and illustrate a children’s book about CF.
I have severe IBS so I take Zofran pretty often due to being nauseous. I have pretty severe asthma so I am on Xopenex via my nebulizer. I watch the old Frey life videos while I sit and do my morning Xopenex. Thank you for keeping me entertained while doing my morning breathing treatments!
Thought you might like to know that my pet toad, Porky Pig is enjoying watching your video today😊🐸
I like your way of thinking Mary. When I had to do sitting up practice as part of my post Lumbar fusion physio (PT), I used to scrapbook for the time period rather than sit there in the high chair watching the clock. I made some lovely pages with my Zermatt memorabilia! xxxxxxxxxxxxxx
Thank you for videos like this. I can't find many and when I do they're from years ago. The tip about the Pulmozyme is helpful. I have a 17 month old who was diagnosed at just 6 days old and is on Pulmozyme. It would be great if you could make more videos on the CF part....cleaning your supplies and how you store stuff ect.... it would be so helpful.
How is Amanda going? She is such an awesome human being Mary, I'm so glad she's on your team 😀.
Praise God I'm so happy for you. I love you and Peter.
Thanks Mary for sharing you're CF moring. I suffer from Asthma and my moring start with a steriod inhaler then a nebulizer treatment. I have a chest infection now so I'm on a oral steroid. I usual get the steriod inhalers three times a day. I take iron, vitamin c and vitamin d in the moring for anemia. It's nice to see able to sip your coffee in peace Mary god bless and I love those creative paintings.
Have a good week.
I would love to see a video of how you get cactus cuttings to grow roots to plant!
Me too! I am trying to revive my poor succulent.
Ooh! Yes, please!
Mary the Amazing!
Love and blessings to you!
You are a talented, brave SUPER HERO!🙏🌿🦋🌼
The jars and landscape looking good Mary...Maybe your stomach is irritated from years of meds. Your lil pots would make great kitchen towel designs. Tonight I made the 5 min microwave cake again from Emma's goodies. A week or two ago I made her two ingredient donut holes. Her stuff is fast to make.
Harry is your Mindfulness Kitty!
Your hair looks so healthy...
Uh oh, better start keeping some Zofran near your vest and nebs. Side note...I just tried peppers with cream cheese because of you and I loved them. Thank you.
I can't even remember the last time you coughed till you puked. Dang. My Dad was stunned when I told him you can now run up and down stairs on trikafta 🙌🙌🙌
As Chronically Jacquie often said: the only thing predictable about chronic illness is that it's unpredictable💙. Sorry you got sick. Zofran has been my best friend lately too because my POTS related nausea has been out of control. For no reason. Even if all my other symptoms are fine. So frustrating😫. Beautiful paintings by the way. You should do palm trees on a beach sometime😊🌴🥥.
POTS as in Postural Orthostatic Tachycardia Syndrome? I have that and it's been so rough esp to find others with it to connect with 😔
I'm watching this video after the baby announcement was the stork and baby picture by the trees your talking about intentional?
Amanda! Haven’t seen her in a long time!
I love your videos
I don’t do the best anymore because I have a Volara if you’ve ever heard of that. But basically it forces air into your lung continuously and then like quick paced forces of air. You should look into it. But where I’m getting at is when you started the vest I got this weird feeling kinda like anxiety and nostalgia because I hate the vest 🤣
Your tree paintings are amazing!
Good morning guys. Those jars are amazing like all your artwork xxx
Do certain medications make you is a lot of medications of they make me and I haven't worked a distraction for making me not fall through half the day you give me any tips on how I could get through this obviously I suffer with a different disability but didn't know if all medication was the same can make you drowsy
Did you ever have problems with your hair? It looks in great shape what can I do to help it
do you still clear mucus daily? Mines not so frequent anymore post Kaftrio !
Maybe it’s pollen that’s bothering you, hope you feel better, Mary. There’s nothing like a cute cat in your shirt to kiss on, or a fluffy Poodle to love on, and of course, a helpful caring husband to hug and kiss to make you feel better! ♥️💙🌺🌹🐾🐾🐩💙🐾🐾🐈⬛💙
Great video. Sorry you got sick. You must lose some of your meds you took if they’re still in your stomach. 😢🤗🤗🤗
Can we have a video that is just some peaceful music and is just Mary painting?
Have you found a correlation between getting nauseous and then a headache coming on. Maybe the nausea could be an aura for your migraines.
I love your paintings! 😍
Hi Mary and peter
You are strong when u do your treatment put on fun music Cindy loper girls just want to have fun . When my twin sister was in the hospital there where young girls who had cf but they danced in good mood
My sister is on the research team for cystic fibrosis foundation my niece and nephew have it.
Can u take an anti nausea medication before u take your other medications?
If you are vomiting doesn't your medicine come up also?
A bee themed painting would be cool to see. Im surprised I have not seen any toad paintings lol. You are such a talented artist and its fun to see everything you are working on.
Did you say that you need to use two of those vials per nebulizer treatment? My daughter only uses one, but she's only 9, so maybe that's part of the difference.
I know. That is what I was thinking. I only use one and I'm on the older side...lol
I Have the same issuse with ny asthmatic meds why dont you try takeing the med for feeling sick at the start of ur neb treaents that way it doesnt happen just an idea
Mary, do you think the half and half in your coffee could have something to do with feeling nauseated. Sometimes dairy can be hard on an empty stomach. Maybe just cutting back a bit on your creamer could make all the difference. It's just a thought, honey......oh and I sure enjoyed your painting, beautiful work!
Would you like a photo of our cherry x plum tree as a reference? It has beautiful copper coloured foliage now the blossoms are finished xxxxxxx
Coffee is an irritant. Between when I had COVID in January, then my shot in March, I got so sick every couple of weeks & coffee irritated my stomach when I drank it on an empty stomach. It may be better for you to wait until after you've eaten your breakfast to drink you coffee & then also take your Zofran (sorry, I'm from the UK, we call it by another name) with your breakfast & coffee.
Have you tried phenergan? Nothing else helps as good as phenergan for me. I don't like feeling nauseated. Hope you feel better. Sending you well wishes ❤
Hi Mary how are you xx
In the mighty name of Jesus, be healed in all things young lady!
If you like to watch cooking videos check out a channel called, She's in her apron, she does a lot of crock pot and freezer meals. And the ones I've tried are good.
Can't you just take the Zofran when you take your medicine? I feel so bad to see this happening for you 😥
Zofran is a PRN and it’s faster acting in response to nausea so taking it that way probably wouldn’t work if the nausea hits a while after taking the meds.
If there is a medication like my antibiotics that I take for dental appointments due to my heart condition and the risk of infection from dental work I have to take my Zofran 20 minutes ahead of it to stop the nausea.
2:27 2:34
4:00 4:23
Peter You're great Mary You're amazing all You do forr Your body love Your painting of the shirts they're cute Ollie and Harry are cute
Are you supposed to eat before you take your medicine? Is that why you get nauseous?
You should see if you can't paint on those medication pamphlet papers.
hi
Hi
I would love for you to paint me a dachshund!! We have 6.
I am having my first doses of Trikafta sent to me...
I have cf. You have to stay away from coffee! No dairy! No matcha, No noodles, no eggs and most importantly stay away anything with potatoes!! Be well and safe 🙏🌞🌚🍀🌲
Is that your friend who trained Ollie?
Yes, that was Amanda!❤🤗😁
I can't take Pulmozyme...I take albuterol...
12:57 I remember seeing Harry want to get out of your shirt in a hurry. You soundd like he hurt you.
😘😘😘😘😘
I hate throwing up because your stomach hurts so much after.
B
Wow ur good at painting you should be a artis
Keep zofran by sink
You should paint the guitars hanging on the walls. That would be fun.
Paint musical instruments!!!
Yes!!!
Why do you talk when you are having a treatment. You are doing so good with trifecta but you dont seem to be serious with your breathing treatment . It just upsets me. Please just do your treatments in privacy and just concentrate on them. We all love you and pray for healing but God has provided you with all you need and he expects you to be serious. Paintings are beautiful but we can see them after you come down from treatments. God bless you all
Sorry Mary but when you are doing your vest, talking with your inhaler in your mouth makes it impossible for deaf people like myself to hear you!
Whats different is the covid vaccine....