Living with Rheumatoid Arthritis: My Husband's Point of View

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  • เผยแพร่เมื่อ 20 ต.ค. 2024

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  • @livingwithrheumatoidarthritis
    @livingwithrheumatoidarthritis  5 หลายเดือนก่อน +1

    Hello friends🤗 In this video you can hear my husband's point of view of my recent RA Diagnosis ❤My Favorite Tools for RA: www.caseyslate.com/favoritetools ☑Here's The Everyday Health Article: www.everydayhealth.com/rheumatoid-arthritis/rheumatoid-arthritis-confusing/ ✅ SUBSCRIBE so you don’t miss any NEW videos🎉www.youtube.com/@livingwithrheumatoidarthritis

    • @koffeegypsy
      @koffeegypsy 5 หลายเดือนก่อน +1

      Thanks for suggesting the articles! You're so lucky to have a spouse who is on board and supportive 💜

    • @livingwithrheumatoidarthritis
      @livingwithrheumatoidarthritis  5 หลายเดือนก่อน

      @@koffeegypsy You’re very welcome! Thank you! Yes, you are right, it’s in the difficult moments when someone’s true colors come out and I’m so thankful for Aaron ❤

  • @umbdmgv
    @umbdmgv 3 หลายเดือนก่อน +2

    Thank you both for doing this video. I am 37 and was also diagnosed in January of 2024 and this video helped my partner as he is trying to figure out what support looks like on this new journey of RA. Being able to hear the two of you talk honestly about the dynamics of RA in your relationship has benefited us both. I look forward to continuing to watch your videos as we both try to figure out this new version of life!

    • @livingwithrheumatoidarthritis
      @livingwithrheumatoidarthritis  3 หลายเดือนก่อน

      You’re very welcome! Wow! We were both diagnosed in the same month. Thank you so much for watching, it’s a journey!❤️

  • @JeannieSoutherland-ol9lq
    @JeannieSoutherland-ol9lq 4 หลายเดือนก่อน +2

    Hi Guys. My issues started July of 2023 and I got diagnosed this past Feb. It happened suddenly and progressed from there. I just saw your video and I want you to know that you don't have to give in to RA. The burning painful joints and even in my chest and neck. The depression. Not being able to plan outings or see my friends. My energy level was zero now it's a 10. I was still eating the wrong foods and just laying in bed being depressed. There is no cure but you can manage it and you can get your life back. I love how supportive your husband is. My family is very supportive as well but they don't feel what I feel. My doctor just wanted me to take the medicine and did not even consider trying alternatives. I can explain but unless someone is going through it people won't understand.
    I found this program right after the new year and I am in a much better place. I switched to a plant based diet and I exercise everyday. I walk 3 miles every other day. It is hard and it's a slow process but you can heal with food. You have to keep moving your joints and with time you will feel the results. Food and life style create inflammation and can control it as well. Something triggers the flare up. Some event and that is when your body starts to attack itself. Yes I have rough days but with meditation and determination I am doing better. This past holiday I could not get out of bed. Everything hurt. I lost 40 lbs. I am not taking any medication and most folks that do are trying to get off of it. Please Please Please check out The Paddison Program. Clint Paddison is the creator. He has helped thousands of people reverse RA and a lot of them like me do not take medication. Watch his videos. He is the real deal. He has lived through the nightmare. I've gained back 17 lbs and am working to gain another 15 within the next couple of months. Also, there is a community of people from all over the world and we meet on zoom and we all get support from each other and talk about our wins and our issues. I hope you give it a try. I know you can get better. I know you can change the direction. It will not be easy. When I first started walking I could barley walk 50 feet. In 3 months I'm walking 3 miles! Don't put this off. Don't settle. You can get your life back.

  • @etudda7547
    @etudda7547 2 หลายเดือนก่อน +1

    Just found your channel last week. I can relate to your videos. The different things used to aleve the pain or stiffness. It makes me feel validated. So many things that come up are people who have remission on the disease or seem like they came down what they have done before thank again

    • @livingwithrheumatoidarthritis
      @livingwithrheumatoidarthritis  2 หลายเดือนก่อน +1

      Thank you so much for watching!❤️ I’m so glad you feel validated, it is a difficult journey, but we can do it! Comparing ourselves to those in remission is hard, makes us feel like we’re doing something “wrong”. It has nothing to do with being wrong or right, sometimes it just is what it is, and we’re doing the best we can. Thanks for watching 🤩

  • @angelalaing6551
    @angelalaing6551 4 หลายเดือนก่อน +1

    I bought a stand up walker and it had greatly helped my getting around. I rest my forearms on the cushions. Helps so much.

    • @livingwithrheumatoidarthritis
      @livingwithrheumatoidarthritis  4 หลายเดือนก่อน

      Thank you for sharing! I just recently found out about the rollator, I’ll definitely keep it in mind😃❤️ I’m glad it helps you, we’ll use what we can 😃

  • @carolynsnyder2381
    @carolynsnyder2381 5 หลายเดือนก่อน +2

    You are such a great team. God Bless. Please more hubby.

  • @glendahope2190
    @glendahope2190 4 หลายเดือนก่อน

    Thank you so much for doing this video. I am 61 and diagnosed in 2020. I am struggling with work. I am a Realtor and contrary to popular belief it is a stressful job. I changed careers about 14 years ago because I wanted something that I could do in my retirement years. There are days that I just want to sit on the sofa and be quiet. I am trying to figure out what I can do to contribute.

    • @livingwithrheumatoidarthritis
      @livingwithrheumatoidarthritis  4 หลายเดือนก่อน +1

      Thank you so much for watching! I’m so sorry to hear you’re struggling. Yes, real estate is a LOT of work.

  • @richiehimes7990
    @richiehimes7990 5 หลายเดือนก่อน +1

    Another great video! You two are so blessed to have each other.
    Recently I’ve had to start using the electric scooter at the supermarket. My wife actually made me because I insisted on struggling with my cane. April and May have not been good to me but things are improving.
    I also had to master crutches for a while. Again, borrowing a set was arranged by my wife.
    I had gotten an aluminum cane from Walgreens but have put it aside for my Grandfather's old school, hook handle wood cane. I feel better using that.
    Things change and yeah, we must change with them. I’m just not used to being vulnerable. I’ve always just had to power through it because i felt I had to.
    I’m getting there but sometimes putting my pride aside it difficult.

    • @livingwithrheumatoidarthritis
      @livingwithrheumatoidarthritis  5 หลายเดือนก่อน +1

      Thank you so much for your kind comment!❤️ For me, it’s hard to not push through, not necessarily for pride, but because I’ve been the primary care giver in the household. I take care of everything, including our dog too. I like it that way😆 I’m not used to being the recipient of care, or allowing someone else to care the for the house, etc. But being a family is like being a team, so it’s okay. Personally I’ve also had to accept that I need these things like the wheelchair and cane, so I just picture all the other RA Warriors out there doing the same, because we all are on the same team too 🎉😃 Thanks again! I’m so happy to hear you have a supportive spouse too👍

    • @richiehimes7990
      @richiehimes7990 5 หลายเดือนก่อน +1

      @@livingwithrheumatoidarthritis
      She's the best!
      She went through her own health issues over the years so it's like we’re taking turns.
      Hubby hit the nail on the head, “in sickness and in health”. 😎👍

  • @kyleparish382
    @kyleparish382 5 หลายเดือนก่อน

    Great video you 2! I hope it helps people with their own struggles. You are both very blessed to have one another. The Love you share is real!! And it shows. Love you all 😘

  • @lindaguy1808
    @lindaguy1808 4 หลายเดือนก่อน +1

    Hi Casey and Aaron! Im so glad you two did a video together. Youre both so blessed with loving supportive partners. Very good job!
    Casey...I know you use a cane, which I did for many years. Would you consider a rollator? I love mine and they have ones made for shorter people as Aaron mentioned of your height. Me too..Im only 5 foot. I bought mine on Amazon. Its a Nova brand. After trying to get around with my cane and wobbly, i switched to my rollator. What a huge difference!! If you want to keep walking for exercise and such, you might consider a rollator. ❤

    • @livingwithrheumatoidarthritis
      @livingwithrheumatoidarthritis  4 หลายเดือนก่อน +1

      Thank you so much Linda! I will look into a rollator, I’ve never heard of it! I was just telling Aaron yesterday how I wish I could walk for exercise, this would be great😃 Thank you again for your kind comments and for watching 🥰

    • @lindaguy1808
      @lindaguy1808 4 หลายเดือนก่อน +1

      @caseyslate Hi Casey! Oh please look into a rollator! I just love mine. There's many brands and prices on Amazon. I bought a Nova petite for shorter people. I've had it for almost 4 years now and I've never had any problems with it. It's super easy to put in my car as it only weighs 13 pounds. I take it everywhere!
      Also, you can buy wheelchairs and a rollator combined. When you need to rest, it turns into a wheelchair. When you want to walk, it can be a rollator. Take care! ❤️

    • @livingwithrheumatoidarthritis
      @livingwithrheumatoidarthritis  4 หลายเดือนก่อน +1

      @@lindaguy1808 This is amazing! Thank you! I will totally look into it😃😃

  • @kimberlyguardipee4070
    @kimberlyguardipee4070 5 หลายเดือนก่อน +1

    I have RA diagnosed 2 years ago. I've not taking any medication for it other than ibuprofen Tylenol.
    Or cream.. I'm 62 when I was diagnosed. I'll be 63 this June. My joints hurt every day but nothing that I can't tolerate so far. I'm just not sure about the medicasian. That so many people say it does not work. That's something I strongly think about. Why put something in my body to get addicted to? That's not going to help me. So my faith is strong in God and I believe it in his hands. But I do in my mind still think about what's going to happen.
    I believe I'm one of those that gradually it may get worse. I don't know R. A. Everyday's different like you said you feel good 1 day and bad. The next you just never know so so I tuned in to your channel channel. So far, you're the only one. I like to watch your positive and you make me feel part.
    I've understanding more about R. Thank you. So much. I do not have a husband I still work part-time. I had to adjust my time also. Hopefully like your family. My family will take care of me and help me although they really don't understand R. AI can't walk as fast as they do. My joints hurt every day.
    Thank you for sharing. God bless.

    • @livingwithrheumatoidarthritis
      @livingwithrheumatoidarthritis  5 หลายเดือนก่อน +1

      Thank you so much for your comment! ❤️ I understand the difficultly of making the decision to take medication, I actually limit how much pain medicine I take as much as I possibly can, I don’t like taking it either. In regards to taking Enbrel or Humira, my knees are soooo bad that I literally have to have a treatment. Today the baker’s cyst on the back of my left knee is so bad, I can hardly walk today 😢 There is a difference between addiction and dependence, there are great articles you can find on Google to explain it, but for example - when I was pregnant I had gestational diabetes, it was “insulin dependent” and I had no choice but to take insulin 4 times per day, or I’d be in bad shape, and also it was to protect my baby. But I was not “addicted” to insulin, because I needed it. Hope that makes sense❤️ I’m so glad you found my videos! Thank you so much for watching my friend 💕 You’re not alone!

  • @terrynhemken5635
    @terrynhemken5635 4 หลายเดือนก่อน

    After years of fighting for a correct diagnosis I was finally diagnosed with severe ankylosing spondylitis. My primary doctor also thinks that I might also have MS even though my MRI is clear. With my disease it affects my lungs, heart, hearing, eyesight, brain fog 😶‍🌫️, joints and bones. I wish that I could just take something for my constant headaches but nothing works. I’m on methotrexate and my doctor is currently trying to get my insurance to pay for Humira. I changed my diet to plant based because some of the videos I’ve watched have said that people have been able to put RA into remission. I’m not really sure if it’s true or not. Stopping eating foods that inflame me helps a little. I have a little bit more energy and a little bit less pain. I know for me I physically struggle with standing, sitting up, climbing stairs, and walking due to the severe muscle weakness and fusing of my joints. Starting to think that it may be getting time to sell our house for something with less stairs and wheelchair accessible. I know that I’m at a point where I need a wheelchair but I guess I always feel like people and family will look down upon me. I won’t even take my walker anywhere outside of the home except to try to be stubborn and walk around the circle. I guess I need to love myself and be accepting of my autoimmune disease and know that no one that knows me is going to judge me.

    • @livingwithrheumatoidarthritis
      @livingwithrheumatoidarthritis  4 หลายเดือนก่อน +1

      You’ve been through a LOT my friend! ❤️ Loving yourself and accepting where you are is huge!! Please watch my video where I give tips for newly diagnosed because I talk about the first time I needed a wheelchair and how humbling it is, but I truly needed it. The videos thumbnail says: My Tips. When I use a cane or wheelchair in public, I just picture all the other people out there (young and old) who wish we didn’t need these mobility devices, but I envision how we are ALL in the same boat! We are all taking it day by day, step by step, doing the best we can as the world looks at us in confusion. It’s kind of funny if you think about it. One day I needed my wheelchair in the mall and my 12 year old daughter was anxious about it…. what if she sees someone she knows?!😂 I saw two people walking and pointed them out, one was dressed with a belly shirt and it looked silly, I said “do I really care what they think of me in a wheelchair? I don’t care about how they look”…. “You do you” is my motto… so I’m going to do ME🥰 and use the things I need to continue living because that’s what it’s all about ❤️😎

  • @aprilcantrell4187
    @aprilcantrell4187 5 หลายเดือนก่อน +1

    Mine gradually progressed over the years and not knowing what was really going on until this year.

    • @livingwithrheumatoidarthritis
      @livingwithrheumatoidarthritis  5 หลายเดือนก่อน +1

      Oh wow! That must have been so difficult not knowing❤️, this is a very strange disease.

    • @aprilcantrell4187
      @aprilcantrell4187 5 หลายเดือนก่อน +1

      It really has been very difficult and yes it is 😞

  • @weavenut
    @weavenut 4 หลายเดือนก่อน

    I use a powerchair, it gives me independence, and allows me to live independently, and work

  • @sandeepsran9005
    @sandeepsran9005 5 หลายเดือนก่อน

    Plz suggest stop inflammation

  • @Marty_RA
    @Marty_RA 5 หลายเดือนก่อน +1

    Your RA hit hard and fast, similar to me 37 years ago. It was 11 years before biologics surfaced. We both have supportive husbands, which helps immensely. Your videos are so very informative. Thank you!

    • @livingwithrheumatoidarthritis
      @livingwithrheumatoidarthritis  5 หลายเดือนก่อน

      Yes, it really has come on fast! My baker’s cyst is really hurting today and I can hardly walk 😢 I also have a varicose vein on that leg! Wow! 37 years ago!? You’ve been through a lot I’m sure ❤️ Thank you so much for your comment and for watching 🥰😍

  • @diane.1217
    @diane.1217 5 หลายเดือนก่อน +3

    Yes, the name needs to be changed. Rheumatoid disease maybe…