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Research steroids. They are so dangerous in so many ways the docs don't tell you.

Thank you so much for this video! I just turned 45, likely approaching a seronegative RA diagnosis (I find out next week). I've been struggling over the last couple of months, barely able to use my hands or walk. These tips are so helpful, especially the tools and gadgets! I have a feeling my journey is just beginning, so having people like you to help us newbies out is wonderful. Bless you and I will be following your channel from here on out!

I am going to have a conversation with my doctor about rituximab today. I am terrified, but I have so much pain and swelling in my elbows. Having this disease for 28 years of this is too much.

Fellow spoonie here. I’ve had symptoms since age 7 and it took about 15 years to finally be diagnosed in my 20’s. I’ve been on biologics for years and have had a slew of complications arise from RA in the last 4 years. I’m currently being evaluated for interstitial lung disease as I’ve begun to develop nodules and lung opacities in the last year. I say this to urge everyone going through the autoimmune diseases to not give up on finding care and to pay close attention to your bodies. You know you best. Thank you for sharing your story. Wishing you the best in life with your new normals.

I got the flu back in April and Oh my! every symptom was amplified 10x. It put me to bed and was running really high fevers. After that is went I went on the humira biosimilar and I've been lucky so far, let's see how it goes in the colder season. Maybe you shared this already but where did you get you wheelchair?

I'm glad you're feeling better! In 2023, I wound up in the ER because yeah, my mind was running WILD! Turns out I had a HORRIBLE case of Pharyngitis. I was having difficulty breathing and was really scared. Stayed in the hospital for two days. Thankfully I was able to apply for financial aid and the 90K just went bye-bye. It was the first time I was sick along with RA. All new territory for me too. I also have a varicose on the left. Doc told me long ago he could strip it but it really wouldn't improve my quality of life, so I left it be. I haven't been able to go on walks of any consequence since April but I plan on giving it a go with my Wife and doggo tomorrow. Hopefully our pittie will go easy on me! Stay well and my best to your husband. We all liked his cameo in n earlier video. Seems like a great guy.

I’m so scared because my husband has all of the symptoms of Rheumatoid arthritis and he said he is going to make Dr appointment. next week.

Hi Casey! So glad you're feeling better! Yes...I've had many sicknesses with my R.A. One of the worst illness' I had was just this past April. I got extremely sick with either Covid or RSV which adults can get as well. It was awful. The best thing you can do always is call your rheumy first which I did. They told me just to take it easy and not take my methotrexate that week to help my immune system. I still ended going to a Dr. Because I was still running a fever after 7 days. He gave a z pack of antibiotics and I started feeling better. However, I had one of the worst coughs I've ever had for a few months. Luckily it went away and I'm OK now! I can't stress enough to get your vaccines!!! I just got my flu shot yesterday and will get a covid booster and vaccine for RSV later on. Always ask your rheumy about which vaccines to get. It's incredibly important for your health. So good to see you and take good care! ❤

I got sick for the first time while living with Rheumatoid Arthritis. I share my symptoms and thoughts before and after the sickness. Please share your comments below if you've had a sickness or illness while living with RA. Thank you for being here!❤

The unpredictability definitely sucks. My knees turned traitor a few months ago. There's no rhyme nor reason for how I'll feel on any given day. Yesterday I was walking like a newborn giraffe and the pain was relentless. Today, the pain is minimal and I'm a lot more stable. Tomorrow?... who knows! I've definitely developed trust issues with my knees. I want us to get along but they keep on betraying me. I've also been lured into a false sense of hope a couple of times already, when they decided to randomly feel pretty good on random days, only to drag me back to painful reality the second I dared crack a smile.

❤

I have RA and had all those symptoms . My primary doctor referred me to a rheumatologist . I'm taking enbrel and doing much better now .

The Diagnosis You'll NEVER Receive 💜Winona’s Referral: app.bywinona.com/referral?refcode=2tz16h ☑Huberman Lab Podcast with Dr. Mary Claire Haver: www.hubermanlab.com/episode/dr-mary-claire-haver-how-to-navigate-menopause-perimenopause-for-maximum-health-vitality 👩‍⚕Madame Ovary’s Website: madameovary.com 💜Winona’s Article📋files.bywinona.com/How+Changing+Hormones+Cause+Menopause+Symptoms+eBook.pdf?Iterable&Homepage%20Quiz%20Ebook%20Symptom%20Guide%20Email%2006.21.2024%20(Prospects)%20%5B1%5D&campaignId=6992256&htrafficsource=iterable&sl=Homepage%20Quiz%20Ebook%20Symptom%20Guide%20Email%2006.21.2024%20(Prospects)%20%5B1%5D&hcategory=EbookQuiz&hgoal=Resources

Thank you!

Just found your channel last week. I can relate to your videos. The different things used to aleve the pain or stiffness. It makes me feel validated. So many things that come up are people who have remission on the disease or seem like they came down what they have done before thank again

I wanted to thank you for all your videos. I really enjoy everything you have done along with a lot of learning. I'm only a little over a year diagnosed and am still learning. I have had lots of ups and downs along with lots of flare-ups. I felt so alone and overwhelmed. I also have been dealing with another autoimmune disease for the last 22 years that has changed my life upside down. I look forward to seeing your next video. Thank you so very much I don't feel so crazy and isolated as much. I just wish this wasn't my life. Stay strong and positive because you have helped so many people, including me. We all need each other and support each other. Stay positive, Thank you.

Hi.Thank you for your informative program. You are so good at getting important information to folks with RA. Here’s a crazy-girl story about a shot mishap I had. I took Actemra self-injectors for a few years and was very relaxed about the injection process. Room temp, alcohol pad, shot, a little ice pack. Both the shot end of the injector and the push button end were the same color. I got lax and wasn’t paying attention and, oh my goodness, I put the push end against my leg and pressed the needle end. Holy moly!! The shot started into my thumb and I immediately slung my hand and sent the injector flying, so only a small drop or two went (deep) into my thumb. The injection had started and didn’t stop until the vial was emptied, squirting expensive medication all over the room. It was very painful (like slamming a finger in the car door), but at night on Sunday, the Actemra support line was closed. I iced my finger and it felt better the next day. Really, I think the needle punched right into my thumb bone. I decided to go ahead with a new injection, this time carefully in the right direction. The next day, a phone call to Genentech confirmed I did all the right things after my mishap. So y’all, be careful! Be present and cautious.

Good to see you back! I use the Actemra self injectors and was so nervous the first time! There was nothing to worry about, I didn’t feel anything. No pain, no pinch, nothing! I just prep with alcohol and slap a band aid on it for a few and I’m good to go. I have to press a button but there is a second click when it’s done. Stay well!

I forgot to mention that I take my injection medication at night before bed because it makes me sleepy, by morning the sleepiness has worn off. Good luck friends!🍀🍀

Self-Injection Tips for Beginners. Don't worry... NO Needles! This is NOT a demo video. I share my tips and steps for self injections. I compare Enbrel and Humira as well as Hyrimoz. ❤My Favorite Tools for RA: www.caseyslate.com/favoritetools ✅ SUBSCRIBE to stay connected in my journey with Rheumatoid Arthritis: / @livingwithrheumatoidarthritis ⏰Timestamps 00:00 Introduction 00:41 My Steps & Tips 08:39 Learn From MY Mistake! 10:35 My Fave Instructional Video 11:05 Why I'm Not Afraid of Injections 12:33 Addiction vs Dependence 15:39 Encouragement

Thanks for sharing your update. I’m glad you’ve had some good periods without having to use your cane. The unpredictability is very hard. Sometimes my pain and fatigue can vary so much just in a few hours. I totally agree about the misleading impression of the name.

Be our voice! Great idea.

I have had it since I was 13 years old. I have seronegative, so many doctors wouldn’t recognize it. When my podiatrist and rehab doctors saw swelling and destruction in joints, I received the diagnosis.

Ohhhhh my goodness!!!! I can relate to this so so much. I had a few days of severe pain in my joints.. then two days of bliss.. followed by unbelievable pain in my joints. It’s like an on off switch.

When I found, all of a sudden, that I couldn't stand up straight (Or stand up at all some days) or walk without excrutiating pain in both my knees, it hit me like a ton of bricks. I've tried to find something positive in my prognosis (Which is PsA, but very similar to RA in terms of symptoms) but can't quite manage it. I also couldnt find the words to describe how I felt, largely due to brain-fog and fatigue. However, I think the following quote comes closest to summing up how I feel: "The most painful state of being is remembering the future, particularly the one you'll never have." (Soren Kierkegaard: 1813-1855) Read in context, Kierkegaard was talking about the need to be bold and adventurous in life but for me now, that quote has taken on an entirely new purpose; as a way of describing how I feel whenever I think about my PsA and the limitations it has, and will, force upon me for the rest of my life (The constant pain means I have little choice but to spend plenty of time thinking about the disease). I turned to the philosophy books (Not something I paid much attention to before) in search of some meaning for what had been forced upon me. It appears misery really does love company because I find that I take some comfort in knowing that my pain and emotions have been a struggle for countless others over the centuries (Most of whom had no access to our medications, mobility aids, counselling, internet etc. so I'm already 'better off'). The existentialists and their 'matter of fact' views of the world are helping me, I hope, to accept things for what they are. I would encourage anyone else who is feeling alone or misunderstood, who doesn't have ready access to a supportive group of family or friends, to look into the great thinkers of the past and how they made sense of similar situations. You might find something that helps.

I'm not sure about a preferred name for RA or PsA yet but I feel the group of auto-immune arthritis' could be better understood if they were recatagorised as 'Chronic Systemic Arthritis'. I have a similar problem with Psoriatic Arthritis (PsA). Before I was diagnosed with it 3 weeks ago (After several misdiagnosis' spanning 4 or 5 years), I had never heard of it. It's bloody horrible and I would give anything for it to have been 'just' osteoarthritis. Love your videos on RA by the way. It's so hard to find honest information about my symptoms and social struggles, many of which line up with RA, online. Keep up the good work and all the best to you and your family.

Currently going through a terrible flare, but I'm learning to be a better advocate for myself with doctors and friends and family.

I have an chronic autoimmune disease that attacks the synovial fluid in my joints and attacks my organs. That stops them from saying “oh I had an Aunt that had that and she took turmeric and it cured her”

Hi Casey! I was recently diagnosed and am on hydroxychloroquine. What DMARD are you taking? I’m really overwhelmed! Thanks for your videos. Hoping to make sense of this soon.

Hi Casey! I'm so glad to see you! The other day I was wondering about you and how you were feeling. Glad to hear you're improving and doing better! That's a huge step going grocery shopping without your cane too! I agree with you about R.A. name change. People don't realize that R.A. affects your whole body and major organs. I remember hearing R.A. called Rheumatoid Disease. It doesn't sound that great! However, it does take the "arthritis" aspect out of the medical condition. Anyway, I'm glad to see you back and hope you've been having a wonderful summer with your family and friends! ❤

Hi.. I'm on Methotraxate from last two months and mobility and pain level is better.. And i'm happy to hear that you are experiencing the same..

Rheumatoid Arthritis Needs a NEW Name! What other medical name best describes RA? 💖My Favorite Tools for RA: www.caseyslate.com/favoritetools ✅Please SUBSCRIBE so you don’t miss any NEW videos

God bless you for doing this video. I really needed to hear this .Thank you ❤❤❤❤❤❤❤❤

Hi casey... I have a question.. Does your mensuration cycle affected by methatraxate while you were on with it..

Wow! I'm so glad that God lead me to your channel. I was diagnosed last year with RA and listening to you is like having coffee with a friend who actually UNDERSTANDS exactly what I am going through ❣️ I'm currently on my 4th medication trial because the last 3 gave me adverse reactions 😢 Still, I try to have a positive mindset and make the best of my situation.

Thank you both for doing this video. I am 37 and was also diagnosed in January of 2024 and this video helped my partner as he is trying to figure out what support looks like on this new journey of RA. Being able to hear the two of you talk honestly about the dynamics of RA in your relationship has benefited us both. I look forward to continuing to watch your videos as we both try to figure out this new version of life!

I was diagnosed in 2022. I was misdiagnosed at first with connective tissue in 2020, so I am on my 3rd & 4th meds. I now take leflunomide daily and humira every 2 weeks. I still have pain daily but have gone from about a ten(if graded from 1-10) to about a 4 depending on the day. My fatigue is a big factor with me. It’s hard because my mind thinks I still can but my body says no no no. I also have fibromyalgia so….😢 the struggle is real

Im 45 and been having RA since i was 23 all over my joints. Everything you said here is accurate, I try everyday to be positive no matter what even though is very hard. I smile through the pain 😢 im trying to push myself to the extreme to eat healthy and loose weight. Im having soon bypass gastric surgery im 5'2 weight 230lb I gain weight on Covid time and sleeping. This is the biggest i ever been 😔 i was always 130lb..now with the big weight my body hurts so much, im done living like this im going to have to say goodbye to my ibuprofen 800 due to the surgery and im deeply scared 😱 i also been using Embrel shots once a week since I was 23 to slow down the process. They work 👍 I hope things get better 🙏 cause this RA pain is no joke 💔 my knees are grinding and hurt so much i can't even squad 😢 I seriously hate this autoimmune disease. I be getting really sick for any little thing 😒 im just praying for things to get better. I see my therapist every Wednesday and Doctors all the time. I sometimes wish i can go back in time just to feel what it is to live without pain again 💔 I have 3 boys and a fiance that keeps me going 🙏 To anyone dealing with this chronic disease please stay positive and keep fighting ❤ Thank you so much for sharing your story prayers towards you and anyone suffering from this 🙏 *God is always with you* 🙏

I use a powerchair, it gives me independence, and allows me to live independently, and work

Thank you so much for doing this video. I am 61 and diagnosed in 2020. I am struggling with work. I am a Realtor and contrary to popular belief it is a stressful job. I changed careers about 14 years ago because I wanted something that I could do in my retirement years. There are days that I just want to sit on the sofa and be quiet. I am trying to figure out what I can do to contribute.

I am about 4 years from diagnosis. I tried the vegan diet but felt very weak. Now I eat a normal diet. My best advice is get a good rheumatologist. Take the medication and guidance they provide. This disease is not curable at this time, but a good rheumatologist will help you control it so it will not cause damage to your joints and organs.

RA has so many moving parts. Your number 5 is so important and definitely not focused on enough-virtual mental health can be so helpful. Ps such an adorable puppy! ❤

I've been following you for about a month and am so grateful for you sharing your journey with RA. It's such a relief to hear you voice what I'm frequently thinking. I was finally diagnosed in April, 2024 and while I'm not thrilled , it's a relief to know what's going on and why. I too get very frustrated with the non understanding attitude of some family and friends as I try to explain what I'm feeling and going through. I'm an older woman and live alone so most of them don't see my day to day struggles and when we are together I put on my best face so they don't really get it. I'm not incline to complain but occasionally want to scream at them to really look just hoping they can get a clue. In the meantime, I'll follow along with you and appreciate knowing that there are others who do understand. Thanks for all your thoughts and suggestions. It really does help.

Hi what medication are you taking

Mine started in childhood. I was told it was growing pains. At 18 years old it ramped up. I called it phantom pains. During adulthood, it caused severe asthma, allergies, skin rashes and finally cornea ulcers. I hurt from my jaw to my toes. Seven years ago, I began seeing a rheumatologist who prescribed methotrexate, sulfasalazine, and Humira injections twice a month. Before the drugs could take effect, I was on prednisone to take away the pain. My asthma and allergies cleared up and I’m no longer in pain.

I bought a stand up walker and it had greatly helped my getting around. I rest my forearms on the cushions. Helps so much.

Hi Casey! Wonderful video and so true! Its so easy to compare ourselves with other people. For instance, I see my neighbors out walking with their dogs and for exercise. It used to make me feel depressed to see them because I cant walk too far anymore. But with my walker, I can still walk! Its really a matter of mindset and attitude. You can sit and have a pity party about R.A. or you can focus on what you can still do..whether its traveling, cooking, exercising or whatever. Its all what works for you and learning new ways of living with R.A. Take care ❤

It’s precisely because I don’t complain that people even my family do not think that my RA is a big deal. Mornings are worse, I can barely move and I have to keep sitting or lay down again. I appear to be lazy, then I get upset when my husband doesn’t sympathize because we too have family members going through other serious diseases.

Don’t Feel Guilty If You Are Living with Rheumatoid Arthritis ❤My Favorite Tools for RA: www.caseyslate.com/favoritetools ✅ SUBSCRIBE so you don’t miss any NEW videos🎉 www.youtube.com/@livingwithrheumatoidarthritis