Thank you for this information. I was able to understand this other wise complex information. It encouraged me in that this is a reason for my symptoms of this disorder, even in adult stage. My symptoms were not treated, as at that time , 1961.I should mention I am adult survivor of childhood trauma, and quite apparently a vivivcom of pandas . Are the two related?, my general understanding is that they are. Let's shed the light on this! May I reference David Evans , author of book that referrances childhood physical trauma to ongoing physical symptoms of Anniversary of trauma evrnt, or in my case the Anniversary of the traumatic event, or visiting the abusers of traumatic event. Would also l comment that, in other data, including my own experience of trauma , that childhood trauma experiences also bring on the onset of Pandas/ pans, ongoing into adult life, as thus I am experiencing.Please respond. Thank you.
Look into the studies of ketogenic diets to help brain inflammation, it might be worth trying for a year. Lions Maine, Ashwagandha and B1 could also be worth while
I have started to see some results with my pandas, using medical medium’s (Anthony William ) information. it’s taking a long time because I was sick for so long, but I’ve seen shifts in self harming behavior and the physical movements that used to happen to me during episodes. Rages are also less frequent.
Question. Im assuming this is ongoing damage, but will the BBB repair itself eventually if we are taking care of ourselves with no medicine but a healthy diet and gut microbiome? Also, does the BBB constantly degrade throughout age in people with PANDAS or is this only prominent during PANDAS onset? Also, is there any research about how the crossing of these cytokines through the BBB are affecting mitral valves in people with PANDAS?
It explains why Stopping the illness is imperative. Yes damage can continue especially if symptoms are severe. And these actions are similar if not nearly identical for Rheumatic Fever and Sydenham chorea. Some people remit on their own in Sydenham chorea but not always. Why do some remit on their own? We don't know. No one has researched it. Bottomline if symptoms continue it can be lifelong damage to the BBB and symptoms can continue and create other bad affects. No one has followed the cases long enough but in Sydenham chorea there are casses that are lifelong
If damage to cholinergic interneurons causes tics/ocd and they don't grow back, how do more than 50% of tourettes cases grow out if it in adulthood? Tics also improve/disappear for people after treating pandas early, but isn't it the damage that results in the tics/ocd? Therefore meaning symptoms shouldn't improve after they've appeared. I've also read reports of improvement/remission removing foods and other infections. I'm not denying this isn't a part of the illness, but how can tics/ocd improve after symptoms appear if it's these no n repairable neurons that cause it? It seems illogical to me, if tics/ocd appear due to permanent damage then they shouldn't improve after treatments
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There NEEDS to be a campaign to.start an education on PANDAS /PAN for all parents!! Like through elementary schools
Thank you for this information. I was able to understand this other wise complex information. It encouraged me in that this is a reason for my symptoms of this disorder, even in adult stage. My symptoms were not treated, as at that time , 1961.I should mention I am adult survivor of childhood trauma, and quite apparently a vivivcom of pandas . Are the two related?, my general understanding is that they are. Let's shed the light on this! May I reference David Evans , author of book that referrances childhood physical trauma to ongoing physical symptoms of Anniversary of trauma evrnt, or in my case the Anniversary of the traumatic event, or visiting the abusers of traumatic event.
Would also l comment that, in other data, including my own experience of trauma , that childhood trauma experiences also bring on the onset of Pandas/ pans, ongoing into adult life, as thus I am experiencing.Please respond. Thank you.
Look into the studies of ketogenic diets to help brain inflammation, it might be worth trying for a year. Lions Maine, Ashwagandha and B1 could also be worth while
I have started to see some results with my pandas, using medical medium’s (Anthony William ) information. it’s taking a long time because I was sick for so long, but I’ve seen shifts in self harming behavior and the physical movements that used to happen to me during episodes. Rages are also less frequent.
Great video, thank you! Looked up IL-17a blocker prices snd they are in tens of thousands of dollars…
Question. Im assuming this is ongoing damage, but will the BBB repair itself eventually if we are taking care of ourselves with no medicine but a healthy diet and gut microbiome? Also, does the BBB constantly degrade throughout age in people with PANDAS or is this only prominent during PANDAS onset? Also, is there any research about how the crossing of these cytokines through the BBB are affecting mitral valves in people with PANDAS?
It explains why Stopping the illness is imperative. Yes damage can continue especially if symptoms are severe. And these actions are similar if not nearly identical for Rheumatic Fever and Sydenham chorea. Some people remit on their own in Sydenham chorea but not always. Why do some remit on their own? We don't know. No one has researched it. Bottomline if symptoms continue it can be lifelong damage to the BBB and symptoms can continue and create other bad affects. No one has followed the cases long enough but in Sydenham chorea there are casses that are lifelong
Very helpfull! Great lecture! 👍
If damage to cholinergic interneurons causes tics/ocd and they don't grow back, how do more than 50% of tourettes cases grow out if it in adulthood? Tics also improve/disappear for people after treating pandas early, but isn't it the damage that results in the tics/ocd? Therefore meaning symptoms shouldn't improve after they've appeared. I've also read reports of improvement/remission removing foods and other infections. I'm not denying this isn't a part of the illness, but how can tics/ocd improve after symptoms appear if it's these no n repairable neurons that cause it? It seems illogical to me, if tics/ocd appear due to permanent damage then they shouldn't improve after treatments
Can you prevent TH17 production with Digoxin without harming your immune system's capability of fighting strep?
We don't have research on this. But many drugs on the market that deplete th17 MAY be helpful to some patients. There are no studies in this.
Makes me curious if its like a mast cell disorder w cascade of effects.
Mast cells are a category of cells that are identical in this reaction - inflammatory and histamine reactions. It all overlaps