Two Decades of PANDAS PANS Treatment (591 Children Studied) With Dr Miroslav Kovacevic | OCT 2019
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- For over two decades, the pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANDAS) and its more recently discovered cousin, Pediatric Acute-onset Neuropsychiatric Syndrome (PANS), have been perplexing doctors and researchers. In this video, Dr. Miroslav Kovacevic, one of the world's leading experts on PANDAS and PANS, provides an update on what's he's learned from working with over 591 PANDAS/PANS affected children.
PANDAS is short for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections. A child may be diagnosed with PANDAS when: Obsessive-compulsive disorder (OCD), tic disorder, or both suddenly appear following a streptococcal (strep) infection, such as strep throat or scarlet fever.
PANDAS Network is the leading national nonprofit organization for PANDAS/PANS/AE, and we’re dedicated to providing resources and support to families like yours who are living with this disorder
October 6th, 2019
Washington, DC
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I was a patient of Dr. Kovacevic's in 2014 at his clinic in Hinsdale, Illinois. He's a kind, brilliant person!
I had PANDAS.at age 10 and I stopped eating and odd food rituals and could not stop running...I kept talking doctors I feel like my brain has hiccups... But they kept treating me like I had just anorexia nervosa !! Until my parents found a doc treating Pandas!!! It disappeared forever!
What treatments did you do to help?
Can you elaborate?
What treatment helped you?
Do you think covid could trigger pandas/pans?
My son had severe ocd, bed wetting and urinating self during the day. Abnormally stubborn. Sleep disturbance. We started oregano oil for fungal treatment, marijuana for anxiety/ocd.
Although Pans/Pandas is suppose to be covered in Illinois by insurance by our previous Governor this physician charges five hundred and fifty dollars to initial visit I explained this disorder was covered in Illinois I was informed that the fee stand if Dr K is to be seen. I just think it is horrible what about family who needs their child to be seen but doesn’t have finically means, there isn’t any funding’s for this disorder. What happens person are placed on psychiatric meds and Pans/ Pandas not diagnosed. Physician who are aware of this disorder are charging extra funds to be seen from Illinois, Maryland, Georgia and other states. Just an opinion.
It’s the same everywhere dear. It’s because these physicians who work with these “rare” illnesses tend to use new methods that are quietly shunned by the medical establishment. That means they end up no longer taking insurance due to harassment from the insurance industry. Their malpractice insurance is much higher because they generally work with supplements and “new” methods. I have been in this a long time, and seen quite a few doctors. Any that took insurance at one time eventually stopped. One doctor told me that they were afraid to treat our lyme (positive igenix test) due to backlash from local physicians. It is a much more complex issue than you realize, and doctors that work with these kids successfully actually fight a battle behind the scenes just to keep the doors open.
The eating disorder works needs to pay attention to this!!!
They absolutely do! Instead they treat them as defiant and blame the parents and child for not trying hard enough, and then possibly call cps on them.
May I ask, why does the child get their tonsils removed? Can the treatment be antibiotics only or does it have to be IVIG then Antibiotics? Has there been a case study that only used antibiotics to treat then had lasting positive results?
It varies depending on several factors. Infections, toxins, genetics, the biome, nervous system. So many variables.
@@AnneGoggansQHHT okay. Antibiotics didn’t work so we’re getting g his tonsils removed Aug 2. If that doesn’t work who’s the best physician to help with IVIG?
Dr Kovacevic
PANDAS survivor here! I personally did not get IVIG, and only used antibiotics and supplements. For me personally, antibiotics did not do much since I am very sensitive to some medication. About three years later and I’m doing much better, some symptoms persist daily (sensory issues, anxiety etc) but I am wayy better and have not had to do another round of antibiotics in years
@@Bumblexo so you got better as you got older? Or did any kind of treatment work?
Are all siblings checked for PANS/PANDAS as well?
Depending on how well versed the physician is
1:30
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