I know:( I am on the NDIS and am a carer for my husband who recently almost died from status epilepticus (a nightmare! carted off in the ambulance to the nearest city and I remain at home as I am too sick with ME to go with him...) and they want to say he is an informal support! I have to do everything as he can't with his catastrophic memory issues. I can't use STA they are saying because it is to support the carer when I AM a carer and have no family or informal support. Bonkers!! It is all and only box ticking. Love to you both. ps I am his acting enduring guardian and they took no notice...again.
Oh my word Willow ❤️❤️❤️ my heart breaks. This is exactly what I fight for. I'm working with a disability advocate & lawyer. I'm a qualified Community Services worker and it's my industry that has just been ruined. Some are getting too much and others not enough at all. I'm truly sorry. This is so wrong. Adults with disability I personally think it's harder. We don't get out of life and it's expectations. It's hardship being strong all the time. I just want to hug you and love to your hubby. That's just awful. Thinking of him. I'm working hard communicating with politicians to get this system working for ALL. Carers are so undervalued ESPECIALLY for adults. You deserve respite so much. This I will bring up along my path. It's just essential. I hear you Willow. I really really do. You are such a beautiful person that deserves the help you need. I'm sorry you just had that trauma. Thinking of you ❤️. Lots & lots of love Dy xxx ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
Prayers for me my food stamp welfare going after me and being rude and I have 22q life being struggle lately here in us hopefully not with ssi. Bless to you guys! #22q #DiGerogeSyndrome
@@OkAussieLife Thanks you much support needed specially for food.Im waking up to not having real family starting feel sad. Anyways glad u guys doing better.
I know:( I am on the NDIS and am a carer for my husband who recently almost died from status epilepticus (a nightmare! carted off in the ambulance to the nearest city and I remain at home as I am too sick with ME to go with him...) and they want to say he is an informal support! I have to do everything as he can't with his catastrophic memory issues.
I can't use STA they are saying because it is to support the carer when I AM a carer and have no family or informal support. Bonkers!! It is all and only box ticking. Love to you both.
ps I am his acting enduring guardian and they took no notice...again.
Oh my word Willow ❤️❤️❤️ my heart breaks. This is exactly what I fight for. I'm working with a disability advocate & lawyer. I'm a qualified Community Services worker and it's my industry that has just been ruined. Some are getting too much and others not enough at all. I'm truly sorry. This is so wrong. Adults with disability I personally think it's harder. We don't get out of life and it's expectations. It's hardship being strong all the time. I just want to hug you and love to your hubby. That's just awful. Thinking of him. I'm working hard communicating with politicians to get this system working for ALL. Carers are so undervalued ESPECIALLY for adults. You deserve respite so much. This I will bring up along my path. It's just essential. I hear you Willow. I really really do. You are such a beautiful person that deserves the help you need. I'm sorry you just had that trauma. Thinking of you ❤️. Lots & lots of love Dy xxx ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
Prayers for me my food stamp welfare going after me and being rude and I have 22q life being struggle lately here in us hopefully not with ssi. Bless to you guys! #22q #DiGerogeSyndrome
I’m so so sorry 🫶🫶🫶 Sending prayers, love & support. 22q is no joke. ❤️❤️❤️❤️❤️❤️😢 #22q #digeorgesyndrome Dy xxx
@@OkAussieLife Thanks you much support needed specially for food.Im waking up to not having real family starting feel sad. Anyways glad u guys doing better.