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Seriously, you two and your 'kitchen tulips'... Obviously I missed the memo 😋😆

Thanks 👍

Hey Shannon 👋 I remember the movie 'Little Shop of Horrors'

@@OkAussieLife yup, Seymour, and the plant’s name is Audrey

A great musical production, with some memorable numbers.

The labels really help! 👍

Hey Mona 👋 Hope you're enjoying your wintery weekend in Perth 🥶 Would you expect anything different from Dyan, I ask you 🤣 It does look dreamy 💕 Tinkerbell is very content, and Willow particularly excited. Matt

Hey Jessie 👋💕 Welcome to the channel. Thanks for connecting & dropping a comment 👍 Matt

@@OkAussieLife I love you guy's soooo much

Thanks Eboni 💕

You're such a clever bunny Mona as well 👋 Op Shops are such an under appreciated and utilised resource. There are many great finds. I get books, DVDs, CDs and occasional clothing. We are able to save so much $ money, then recycle by putting our items back into circulation. 💕

Lol xx

Decorate with Kmart & Shein. Shein has beautiful things that are 1/10 of the price. It's so affordable. I love interior design ❤️

Thank you ❤️

Thank you 👍

That is soooo annoying Jessica, I'm so sorry for your own experience 💕

Thank you Susan 💕 welcome to the channel 👋

Hi Maria, TH-cam's CC subtitles can translate to another language. Click the 'CC' button to turn on the closed captions, and TH-cam will automatically generate English captions. Step 2: Now, select the 'Settings' option - which is typically located next to 'CC' and then choose 'Auto-translate. ' Step 3: Here, you'll see over 100 translation languages.

Amen to that Shannon! It is a worldwide issue.

Oh my word, every decision I make is about that. We talk often about it. I’d just get a second husband LOL 😂. I’d be ok because in my life I’ve had to survive alone before. I’m strong and know myself. Yes I’d miss human connection but the world doesn’t offer this to disability. As you know. I feel for you a lot to on this 💞💕🩷🩷🩷🩷🩷❤️❤️❤️❤️🫶😘 I’m resourceful & self sufficient. My only concern is safety. Trust in others. I have pepper spray 😂😂😂 I do believe in gods word about women being protected by a trusted male. We are vulnerable in our gender & disability. Age is a win for me with my syndrome. I want to be here for my kids & grandkids even alone. They may need me. I need to be here for them. I pray for the day to hear the words Nanna. I have so much love to give. I hear these concerns and yes many discussions. I’m strong thank goodness due to hardship in my early 20s. I know I can do it all alone. Of course it would be so much easier with a partner. I hope you have some solace with these thoughts for you. I feel you. I really get it. Huge hugs. Lots of love Dy xxx ❤️❤️❤️❤️❤️❤️❤️❤️🫶🫶🫶🫶🫶🫶😘😘😘😘😘😘😘💛💛💛💛💛💛💛💛👋

You know exactly what I’m talking about. Work it out. Sorry can’t help.

Thank you Nikki 🙏

Oh no Shannon That would have been awkward 😕 Noise cancelling headphones are the best.

@@OkAussieLife it was very awkward, I was laughing my ass off and my dad came in and I was laughing 😂 and I told him that our neighbors were getting frisky and that it was a weird supper conversation.

It's funny, you need them, but hate them, can't live without them.

@@OkAussieLife m yup,!! We’re damn if we do and damned if we don’t! .

Very true Shannon! Unfortunately parental narcissism can create generational trauma. Senseless.

Oh dear, the maths was totally off on that one! 😃

@@OkAussieLife sounds like it! Maybe they should carry a calculator with them everywhere so they can add and subtract better.

I'm surprised if they don't have to take their shoes off to use their fingers and toes to count 😀

Amazing hey Jessica ❤️❤️❤️❤️❤️ love Dy xxx

❤️❤️❤️❤️❤️

I so agree. I'm not a drinker but I make more sense as far as others say when I'm drunk. Lol. Definitely irony lol oh my word Jessica. You & I should be living in the same country ❤️❤️❤️❤️❤️❤️❤️ we are so alike lol. Matt says it often. Lol

Hey Jessica 👋 I think these phrases are probably quite 'regional' and may have only occured in Australia and the UK, which is why you probably have to Google them! Lol Matt.

Thank you ❤️❤️❤️❤️❤️

Thank you ❤️❤️❤️❤️ so many souls on this earth I love dearly. Some don't even know it. Life is beautiful ❤️. Thank you so much. I really appreciate you allowing me to be open and you accepting it. So many people just expect some of us to always be positive & strong. That's not reality. So I really appreciate it. Lots of love Dy xxx ❤️❤️❤️❤️❤️❤️❤️❤️

Those bracelets look amazing and dy just wanted the rest of the video u are the strongest person I have ever Met I never say this but swim like a fish dive like a dolphin surface like a seel

Thank you! Really appreciate that 😃

Lol hehehehehe ❤️❤️❤️❤️❤️❤️ Dy xxx lol

Lol I love all what you just said. It's getting really cold here day by day now. Yes seizures make a lot of things not fun anymore. I love the sound of my doorbell lol Westminster chimes lol good morning Shannon ❤️❤️❤️❤️❤️❤️❤️ lots of love Dy xxx ❤️😘😘😘

Oh wow intense. It's full on hey. Wow a twister. Dy xxx ❤️❤️❤️

@@OkAussieLife yup, a twister 🌪️. And they had one hit in another area in Kentucky also. This year has been rough with twister 🌪️ outbreaks. Rainy weather and flooding is going on here now, the river has overflowed along Riverside Drive which is where some of the shops are located and how many people get home.

I'm certainly glad we don't get twisters here! Very lucky.

Hey Shannon 👋 I remember you previously explaining your own dysfunctional family connections which are very relatable. It's such a shame, and I also feel for you. You are right, some conditions and their treatments are not in the control of the patient, nor the side effects they suffer, just to try to survive or function. The health system should better educate and Advocate in this. It's very sad when genetics are not in your control. 🤷‍♂️

@@OkAussieLife definitely 💯 agree with you on that!

Thanks Stacey 💕

Hi Iam felling very very sad my boy friend just dumped me I could do with a freind

Oh I'm so sorry Stacey 💕 that is no good. We are always here on the channel.

It is so good that local councils are now providing more of these park exercise equipment the community, such a great idea. Seashells are such fun to collect. Living near the beach is so peaceful. Thank you for sharing 22q awareness.

@@OkAussieLifeyou’re welcome, Anytime! And my dad was a mountain lion but I guess I am a fish 🐟 in my latter life!

They are a beautiful aesthetic in images, wallpaper, but not pinning the real butterflies 🦋

@@OkAussieLifeoof , no, no way I would not want them to do that to a actual butterfly, that’s just inhumane and gross.

Dodgy people everywhere unfortunately as you say Shannon. So hard to live in peace and harmony with these behaviours. And the impact having seizures is not fair!

Yes he is lol ❤️ hi J ❤️

I know. I was devastated. Life is stressful lately. It's really testing me lol ❤️

Our biggest wish Jessica for Dyan 💕 Matt

That's an adorable name Shannon for your new cat 🐈

@@OkAussieLife Thank you, my niece came up with the name.

A very clever girl 😉

@@OkAussieLife yes, she is. And she is also a hEDS zebra 🦓, too. I am the only person who has cEDS.

Thank you for your support Shannon 💕

@@OkAussieLife your much welcome, together we Dazzle!

Hey Shannon & Goose 🐈 👋 Thanks for the support my fellow Zebra 🦓. I've heard that about honey + lemon tea.

@@OkAussieLife always, together we Dazzle! And Goose would have a great time with Willow and Riley because he’d have a playmate to play with.

Goose sounds like a lot of fun 😋

Thank you so much ☺️ Laura. I hate them. I’m fighting for better medical care to get on top of them. Sadly in Australia for adults with genetic syndromes it’s hard. 🩷🩷🩷🩷🩷🩷 Dy xxx

Omg me too. Looooooooove them. Yay! Twinning lol 😂🫶🫶🫶🫶🫶🩷🩷🩷🩷🩷🩷🩷 Dy 😘😘😘

We find the white noise generator through our Google Home so useful as part of the sleep hygiene routine. Thunderstorms, Rain, Summer Night Noise,... are some of our most popular we rotate through.

Thank you Crystal Collins!

Hey LegitJoshh614 👋 So glad you're doing good!! 👍 Sorry to hear of your difficulty in obtaining food stamps. You are right, there are definitely a lot of challenges and stress for those with 22q, and other complex chronic conditions. Yeah, we are trying to remain positive through all the ups and downs. One step at a time.

@@OkAussieLife Same one step at time hope their be award at the end!