How a scientific breakthrough sped up Casey’s recovery - LONG COVID RECOVERY STORY
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- เผยแพร่เมื่อ 25 พ.ค. 2024
- Casey’s Long Covid recovery success story - how increasing serotonin was an effective treatment for Long Covid
Casey’s life was turned upside down after he caught Covid in January 2022. From running and cycling regularly he now struggled to walk 500m. His Long Covid symptoms included heart palpitations, brain fog and hard to control emotions. He found himself becoming angry easily and couldn’t understand why.
Learning about pacing and having therapy to deal with the trauma of chronic illness helped him feel much better within himself. After reading a scientific study that discovered many people with Long Covid have low serotonin levels Casey thought this could apply to him. Within 48 hours of beginning treatment he went from feeling 20% to 70%. Within a week he was able to walk 4-5km and hasn’t had brainfog since taking the supplements!
0:00 Casey’s symptoms
3:44 Depression
4:16 Loss & Acceptance
5:20 Learning how to pace
7:53 Serotonin study
CONNECT WITH CASEY
Facebook group - Long Covid Recovery Stories groups/93818...
RESOURCES MENTIONED IN THE VIDEO
Serotonin study www.pennmedicine.org/news/new...
The serotonin test Casey used gettested.co.uk/product/serot...
Working to Wellbeing www.working2wellbeing.com
This is part of a series of videos discussing long haul Covid symptoms and treatment. People share their experience of Long Covid functional medicine, long Covid recovery using neuroplasticity and reveal new Long Covid treatments. It is an evolving area so we try to keep up with the latest Long Covid news in the hope scientists will not only discover a treatment for Covid long haulers but a treatment for chronic fatigue syndrome too.
LIVING WITH ME WEBSITE
livingwithmecfs.co.uk/
CFS RECOVERY PROGRAMS
Free downloadable guide to 6 of the most popular recovery programs
livingwithmecfs.co.uk/me-cfs-...
SHARE YOUR STORY
If you would like to make a video sharing what has helped you recover, or significantly improve, from ME/CFS or Long Covid email charlotte@livingwithmecfs.co.uk
Living With ME CFS
We share practical tips, helpful resources and recovery stories for people living with myalgic encephalomyelitis chronic fatigue syndrome and Long Covid.
Whether you identify as a spoonie, chronically ill, disabled or as having an invisible illness you are welcome in our community. Think of us as on online chronic fatigue support group.
We share alternative treatments for chronic fatigue syndrome. This includes chronic fatigue syndrome therapies which are holistic and scientific.
People talk about the CFS symptoms they experienced and the chronic fatigue treatment they tried. They share how to cure chronic fatigue syndrome naturally. Their ME CFS recovery story will inspire you with your chronic fatigue recovery journey.
We understand healing chronic fatigue is your priority. We do our best to provide tips for everyone from those living with mild chronic fatigue to those with severe ME CFS.
And let's not forget about chronic fatigue in children. Losing your childhood to this debilitating illness is one of the cruelest things that can happen. Hopefully some of the advice we share will help facilitate their recovery from chronic fatigue syndrome.
#cfs #chronicfatigue #chronicfatiguesyndrome #mecfs #myalgicencephalomyelitis #cfsrecovery #mecfsrecovery #longcovid #postcovidsyndrome #covidlonghaulers #covidlonghauler #postviralfatigue #pacing #postexertionalmalise #pem
Thank you so much, Casey. I'm 83 and developed Covid...a mild case the first of March, '24. Around the first of May I developed extreme fatigue (I'd been walking 2 miles per day since a heart attack a year ago) and have been sleeping 10 hours/night plus a couple of two hour naps daily. And definitely brain fog..difficulty making decisions and no motivation. I've been watching medical discussions, but they were so technical and honestly offered little hope. Deep down I KNEW that alternative treatment was available somewhere and you have experienced this. I will talk to my cardiologist before starting 5-HTP etc., but just know that you have given me HOPE and I am so very grateful 💖
So glad Casey’s story gave you hope 😊
Thanks for your story...would you mind telling us the dosage of 5-HTP, L-Tyrosine and Choline you took daily and what time of day? Thanks
My son's wellness doctor also prescribed NAC 600 [pure encapsulations],Methyl-balance [Klaire labs], antihistamines [zyrtec], and florassist balance[Life Extension]. LDN .5 and raised every two weeks until 2.5. My son got covid several times but not the shot. This doctor said to ALWAYS treat covid with an antibiotic, do not think you will build an immunity to it. This was created in a lab, and you will not beat it.This creates inflammation, so a low histamine diet was also suggested.
We went off red meat,pork,wheat, and dairy,and went to plant based. Also, dairy and gluten free.He is doing great now. Once in a while, he gets a little dizzy. We also found out he had hasimotos during this. The virus, long covid attacks the thyroid first because of the ACE2. Symptoms are the same. It has been a year and a long battle. He got myocardits in April 2023 from so many covid infections that went untreated,they think. The hospital ran a bunch of viruses test and found nothing.
At 78 I have experienced all these following COVID . Your experience has been so helpful on understanding what the majority denied in the medical world and in government . Only now has it been accepted and fortunately some experts have both revealed and advised what you and I have experienced . Thank you so much and may your recovery continue .
I’m glad you found the video helpful 😊
Thank you, this described my experience almost exactly. I'm sorry you had to go through that. Glad you're feeling better.
Choline is also a methyl doner. Undermethylated people will have a wide variety of issues including fatigue , depression and low serotonin. Anyone with the mthfr gene is at risk of low methylation. Choline and Tmg are excellent additional methyl doners. Eggs are a great source of choline.
Gut problemas,extreme fatig,depression,brain fog,palpitations,bad sleep,,many more....
It sounds like you are having a classic reaction to the deadly poison in the liquid reagent of the Binax Now Covid-19 take home test. The CDC website tells us that the reagent, Sodium Azide, kills us in the same manner as does cyanide. You have the exact symptoms of exposure to the fumes from this test, which also include severe weakness, breathing problems, no energy, severe headaches, anger, brain fog, depression, poor sleep, and just feeling horrible. Hundreds of millions of these test kits have been sent out to homes in the U.S. Welcome to the club.
You are being exposed to the deadly poison in the Binax Now rapid test.
Thanks for your message. I took your advice and my fatigue en brainfog has been changed. We are feeling must better than before.😊
That is great news!
Your story is just too similar to my own. Your success is inspiring. Thanks for sharing!
I had exactly same issues with long covid. I also had a bad headache for a year. MRI showed white matter damage. I did many many things to get back to health. Eventually a course of ivermectin and hydroxichloroquine helped get me over the hump. Focus on gut biome was useful. Curcumin, B3, etc. Fortunate to b a stay at home mom with good prior health, physically active my whole life, & with financial resources. Homeschooling & gardening became difficult where before they were my passions. The scary thing is I got covid again in dec and weeks after , I started noticing mild long covid symptoms again. This spike is going to kill so many.
glad it helped you ☺️
thanks for sharing some of the things which helped you 😊
@@tinalyon4606 do you exercise now with no PEM?
Totally have the same things. I'm dealing with this for exactly 2 years now. Can't work, have to sell my house now. Not sure what I'll be doing. People say, just push through it, not realizing when you do this, you double your time in bed and brain fog.
oh no, I’m sorry you have having such a hard time. This illness can be so tough to deal with and people don’t always realise how it impacts every part of your life
You can’t push through Long Covid. Doing that makes it worse.
Congratulations on doing much better. Could you share supplement brands and dosages?
I can relate to your story. I've had it for 3 years. A new life.
How did you recover from it?
Are you recovered?
over 2 years for me plus lyme disease for 14 years spplements helped a bit mostly for lyme but now still exhausted. whoever created these dis--eases should rot in hell
Thanks Casey valuable information, wishing you continued good health ❤
Thank you so much for sharing your journey to recovery!!
Thank you for sharing your story.
What a Victory after two years! Very inspiring and great info! 🙏🏽❤️
Glad you found it helpful 😊
@@livingwithmecfs
Did you mean 5htp ?! May I ask which brand did you use for your supplements?! Greatly appreciated 🙏
Thank you for this amazing sharing!!!!
You are welcome! Hope you found it helpful
This is exactly what I have gone through the past couple of years. It was horrific and no one could help me. I have gotten better over time but I am only 90%. I still have post exertional malaise and a bit of anxiety. I am going to try your protocol to see if I can get to my old self. I miss running and cycling. I got to where I couldn’t even pick up my small children and carry them. I couldn’t even cut my grass.
Sorry to hear how much you struggled but it is encouraging that you have found some improvement ☺️
Thank goodness you're on the mend 🙂
Great story!
Would be very helpful to know the amounts of each supplement you took. It could serve as a baseline for me in getting started on the program. Any info greatly appreciated.
Thank you for sharing, wishing you all the best 🍀
Myself, wife who was born with a heart condition and 2 daughters in their early 20s never had any of the jabs or wore masks etc, covid was never an issue, several of my friends and family that did take the jabs now have heart and other health issues requiring ongoing treatment and 3 of them hospitalised with blood clots, they also complain of constantly getting colds and other viruses, also 2 people in my village had heart attacks within a few weeks of first jab, both under 50 years old. My reason for not getting the jabs is something just didn't sit right with me after a few weeks into the so called pandemic, could see most of it was propaganda to create the fear for compliance....
I don't doubt your personal observations about the jab however want to note that the dangers of covid are far worse than the dangers of vaccination. We each have to weigh our risks in life though. Also for people who have long covid, getting vaccinated helps 60% BUT worsens the symptoms for 20% of those who have long covid. I don't know if Dr. Daniel Griffin talks about getting vaccinated for prevention in this video although he regularly references evidence about covid vaccinations helping reduce risk of illness from covid - but he has quite a bit of info on dealing with long Covid at the end. th-cam.com/video/MPJsAUknHaI/w-d-xo.html
Stop, just please stop with your politicised opinion ... try some compassion instead ...
i didnt get the jab either... yet here i am.
What your saying is anecdotal. I didn‘t get a single jab yet have had long covid since Christmas last year. Had it early 2022 as well with no problems. Most of the people I know who have it are UNVACCINATED. I also don’t know many people with problems from the jabs despite living in Austria where it was mandatory. Ofcourse there are some but I believe more who developed long covid than post vaccination syndrome
Yes its long j@b
I’ve asked some questions on the Facebook channel about use of 5-HTP, thanks really useful info
Glad it was helpful!
I too experienced some symptoms but not to your extent sorry to hear you guys going through these symptoms and complications. I’m currently gonna try NAC and a 5 day fast.
Thank You!!
Glad you enjoyed the video 😄
Wow, I’m so sorry to hear you went through that 😢 your story sounds very familiar to mine.
Congratulations 🎉
Well darn. I wish I'd known all this earlier. Thanks so much
Glad you found it helpful 😊
This seems to be a very useful lead, thank you. I already was taking choline and it surely helped, I will get the other two (L-tyrosine and 5-HTP).
Glad it was helpful! 😊
Please tell us the dosage of 5-HTP, L-Tyrosine and Choline. THank you!
Thanks for sharing, I would consider my symptoms to be very mild, the fatigue brain fog etc. but the heart palpitations are an ongoing concern, just wondering how you are doing in that regard?
this is great, thanks for sharing. I've been taking 5-htp for a while, and I think it corresponded with an improvement in my mood and sleep, but not really a change in physical energy. I agree that acceptance is a crucial step in the recovery process.
Would you say that it was important to get your pacing sorted before you found the serotonin supplement changes? I have a suspicion that the supplements' benefits might not have stuck if you weren't so good at pacing when you started them. I suspect that I haven't been pacing well enough, going over 50% too frequently, but I also just started ADHD medication so I'm trying to adjust to that too. It might make it a little too easy to over do it.
I'm hoping to take a neurotransmitter test soon, and will definitely ask my doctor about adding l-tyrosine, since people with ADHD often have low dopamine.
Pacing helps and I still rely on it (although not as much as before). I still get wiped out and need to recover, but the cycle is much shorter now. My biggest contributor is sleep, and I've completely cut alcohol out of my life. I found that even one drink gives me a two day hangover.
@@CaseyGoodhew Yes, I'm finding sleep to be really important too. I had to cut out alcohol too, about 10 years ago because I think my fatigue issues were already starting then. (I suspect The fatigue was Possibly related to neurotransmitter issues) Alcohol has a very negative effect on your gut microbiome, which then affects your physical and mental health.
How much 5-htp were you taking? I'm currently taking 100mg 2x per day, but I'm wondering if I've more or less corrected the serotonin levels and can cut back on it. (Will ask my doctor when they get back from vacation)
NAC really helps with emotions, and helps stabilize ups and downs. LDN really works to heal brain fog. My issue yet to resolve is muscle weakness, and neuropathy. I believe that the issue is a blood flow problem since I have POTS. I believe the theory in microclots and damage to the endothelium. I'm going to try Nattokinase and vit K2. One thing...plz keep trying to find solutions. Healing IS possible and we don't have to accept this low quality of life. I like the idea of managing expectations, and not being to hard on ourselves, but I really believe we can find solutions if we help each other. LDN, black seed oil, and NAC made a huge difference. There has to be other solutions
Thanks for sharing your experience and what has helped you, it’s always interesting to learn about what is working for others. I have heard lots of people find improvement with LDN, particularly for brain fog, pain and energy
If you are thinking of trying Nattokinase you maybe interested in this video. Steve shares how it had a dramatic effect on his recovery th-cam.com/video/cC4mg7YF6Y8/w-d-xo.html
What did you take that helped? Choline, L-Tyrosine and 5 HTP? Sound like HTC?
Pacing is budgeting your energy for doing very important things only. 5 htp works because it helps with serotonin production. Also used as anti-depressant. I recovered after taking 5-htp and acetyl-L-Carnitine.
So great you recovered! And thanks for sharing what helped you. If you ever fancy making a video or writing a blog article about your experience and recovery journey then let me know - we are always on the look out for people willing to share their story 😊
Oh yeah I soooo can relate a 100 percent to this video As it’s been about 3 or maybe it’s been 4 years 👀 that has gone by and I’m still battling through it’s the craziest thing to go through as weeks and even a month gos by then boom 💥 relapse 😮” I do try to pace it helps but sometimes I get so excited and then boom I guess over did it!!! 😒😔
pacing can be tricky, I think it’s normally to sometimes accidentally overdo it and have a set back but that does also help you know where your baseline is 😊
I'm in the same boat, only relief I've found is OTC Claritin and saline nasal spray, not a cure but gives me a few good days here and there,don't know how it helps but it did for me
I get a horrible adrenaline/ panic attack type feeling ,extreme gut issues , horrible hormone issues ,chest pain , histamine issues ....
I got that awful anxiety too.... Still have it 1.5 years later. I hate it.
Provavo sensazione adrenalina euforia confusione ma se parli con i medici ti guardano come un alieno questo è il long COVID
Same.❤
Eat healthy & take vitamins
Yes My progesterone went low and it gave me a low positive ana
How many mg of 5htp did you start with?? And the tyrosine
Just be careful with the serotonin. I was placed back on Cymbalta for nerve pains, I also live with chronic pain, while I was still on Busbar. After 12 or more days, I felt like I was on cloud 9. I couldn't remember ever feeling so good, but a few days later, everything came crashing down. I went a month on 3 to 4 hours of sleep a night. I then began getting very manic!! By now, I'm off the Busbar and just taking 60 mgs of Cymbalta. My doctor lowered my Cymbalta and will gradually increase it to 60 mgs.
Just be careful of too much serotonin!!!
Could you share your stack and amount? I don't think it was mentioned fully.
Samething here, got it oct 2020, feel like im almost better though. Started with breathlessness and went from there. Lots 3 years of work, trying to go back now.
Glad to hear you are feeling better, I hope your return to work goes well 😊
@@livingwithmecfs i still get the sweats and fatigue pain if i push too hard, any advice on that one? My sob improved alot over the year. Thank you.
@@michaelb1621 fatigue is a sign from your body you are pushing to hard. Try increasing your activity level at a slower rate. eg. Try 10 mins walk instead of 20 minutes, and increase by 1 minute at a time instead of 5. Recovery is a slow and steady process…think of yourself as a tortoise rather than a hare! You will get there but slowly does it!
WE CAN & WILL HEAL!!!!!❣️🌻
~Nick 26♌/Long Hauler for 3½ years.
I’m totally with you on this ❤️😄
Try periodic 36 hr. Fasting. It flushes your body of the spike proteins. It works.
5htp or 5htc ? My son has long covid and I would like to try these 3 supplements and interested in brands and dosages? God bless.
5 HTP
I have had exactly what your discribing for a year now😢
What “Food” supplements could someone take? I’ve never heard of them!
I'm having long covid for 3 years know.Im having problems with my memory.I can't remember words to talk.
I am sorry to hear you are struggling. I think brainfog and cognitive issues can be a problem for many people
How do I find you on the FB group?
if you search “Casey” previous posts he has written about his experience will come up so you could comment on one of those
I was laid off last Feb just when I got long covid how do I pay my bills if I can't train for new job which according to my son's girl friend who told my son that I should be getting a job😢🤯
I couldn't hear what the one you took for dopamine was
I believe he said L-Tyrosine although I find DL-Phenylalanine a bit more effective (they're both dopamine precursors).
Glad you didn't get that sick
What supplements did you take ? I'm taking 5htp ATM
He's taking choline and L-tyrosine
@@wzupppp thanks 🙏👍
@@EllaSloman helpt the 5htp and and what doses?
we have similiar causes i had it bad in 2020 fevers of 104 for 2 weeks and have been dealing with extreme anxiety i think i was never depressed until i realized how bad my anxiety was and how it is changing my life daily my job my relationships, it gave me Fear for no reason and claustrophobia maybe what they call the fight or flight syndrome but i have a theory about the brain like you, i am a multitasker
i write code, and engineer/tool and die , bought a bar then covid hit dealt with my dad getting sick and dying, friends passing away and i think even tho we only use a small % of the brain i think its like a harddrive and gets full and when it needs a scandisk or defrag it runs like shit, also covid effected the Vagus Nerve and definately some gut issues... so i am taking meds hopefully this will help
what meds did you take?
Sorry to hear everything you have been through, it sounds tough. Hopefully the meds you are trying will help
Are there natural serotonin regulators ?
I have pain in right side from brain to hand and 1st finger nerve pain test my heart is ok . How i manage it please help me .
Thanks lots .
maybe try finding a Long Covid support group in your country. They may have contacts with health professionals who are able to asses you and advise you further
I have long hual covid and a collapsed vein caused from covid and micro bloodclots from covid I would recommend people looking into this
why
Your "blood levels in your urine"? What does that mean?
What suppliment for "5htc"?
Levels of serotonin in the blood were low
He may mean 5-HTP, sounds like he said 5_HTC though
Low iron deficiency brainfog fatigue muscle weakness sneezing like allergies chest lung ..i take supplements vit c
Vitamin C has been helpful for me too
So you used food or supplements to get better
supplements were what he used to increase his serotonin levels
@@livingwithmecfs what kind
@@douggrant3431 5HTP, l-tyrosine and choline
Would you consider yourself fully recovered? Do you feel like you did before the virus?
my wife has this .....She's going nuts
Sorry to hear your wife is struggling
Long Jab
At Least Someone Gets It Here Theres Is No Long Spoof19 Its Aids 2.0 There Immune Systems Are Done From The Shot But They All Want To Live In Fantasy Land Believing In Something That Does Not Exist You Cannot Make It Up Mate Crazy.
Not necessarily, I didn't get the jab & got covid REALLY BAD, suffering from long covid for over 3yrs now,not fun!!
The Towers That They Build From Day 1 From All This Nonsense . Our Diet Lots Of Our Food Is Poison So Body Detoxing. Also Seasonal Change. + Stay Away From Testing. There So Much Out There That We Have Been Lied To With Lots Of Different Things Its Beyond Crazy.@@christinerussell1132
Chest tightness and short breath are the most annoying ones
Me too
I’d have to say critical insomnia is one of the worst.
@@kathydoell5571I would say Sfn from covid
Neltrexone treats long covid.Look it up.
LDN. Low dose naltrexone, right?
@lynetteprice8519 Yes, a wellness doctor Keith Berkowitz from New York prescribed .5 and then raised it every 2 weeks.He is now at 2.5. There have been a lot of studies on this, and it's helped. Also, take an antihistamine like claritin or zertyc., go on a low histamine diet.
Has anyone lost muscle mass and get really slow breathing and anxious you keep going to hospitals and their basic blood tests tell you your fine and nothing to worry about and also really dry skin and feels like brain is dehydrated
I have lost muscle mass because I use a wheelchair most of the time. I have also experienced periods of anxiety, I think it is a common symptom with Long Covid and ME/CFS. Anna Marsh’s website and podcast has lots of helpful information explaining symptoms and how to manage them
Casey, I don’t do facebook. Can you list here in comments the 3 supplements you took, and in what amounts?
And how to spell them? I might be turning into a long hauler, too soon to tell 10 weeks in. Have palpitations, muscle weakness, severe fatigue. I’ve seen several doctors and am doing physical therapy, acupuncture and meditation, breath work, vagus nerve stimulation etc. just crashed after feeling better and trying to exercise. I am housebound. Thanks!
I got it. Read what the supplements are from another commenter.
Congrats !!! You earned a youtube CDC disclaimer. You're over the target.
Can you not just summarise in the description for tired people not to have to watch all this...
There is quite a bit of info on his story in the description and there are time stamps on the video so you can skip to the bits that interest you. Hope these help
Your electrolytes went low. Im betting magnesium.
DID YOU ALSO HAVE POST NASAL DRIP FOR A LONG LONG TIME WITH YELLOW MUCOS ..
Me CFS , could be caused by undiagnosed crypto infection TH-cam jack Lambert Lyme disease and pots
thanks for suggestion
@@livingwithmecfs if your in America contact Dr Richard Horowitz's or any ilads Dr who works with Lyme disease
It isn't done yet. The sun is still sending radiation down through us.
😂 well if you took the clot shot expect long long long long
man made covd
Why dose anybody want to tell world about their unhealthy body."Get a life"
I wanted to hear his story. Long covid sufferers r being gas lit.
@adrianwilson2635 You’re telling the world about your unhealthy narcissistic mental health issues without even knowing it. Difference between you and him is that he’s actually helping people. Seems like he “got a life”.
perhaps you are the one that needs to get a life! I bet you are spending time trolling on others pain on a lot of sites
3 things that help , turn the TV off , dont have an more experimental drugs injected into you , take some Ivermectin