41 years with this disease and I've just about tried it all. The *most effective* treatment by far is a clean organic whole food keto diet - sugars, very low carbs, no seed or vegetable oils, no starchy veg or tropical fruits even. Carnivore is also an option, though I hate eating meat - plus intermittent fasting and 3-5 day water fasts. Your mood can improve significantly with this diet. Regular weight training and long brisk walks, contact with nature, and stress reduction also helps, as well as berberine, NMN, krill or fish oil, resveritol, D3, K2, iodine, taurine, GlyNac, turmeric, B1, no flush niacin, zinc, and other B complex vitamins.
@@GingerPeacenik Thank you for the swift response. 25 month Long Covid Hauler here. The unlimited options of halway effective treatments give me more dizziness than the one from Covid/Vacc injury. Do you think a Carnivore diet is good for such post Viral Syndromes? Thx. Completed my first 3 day water fast and am on most of the supplements youve mentioned.
@@Blackpool999 helps me but I have way more than longcovid since march 2020 - it helps for the mold toxicity which is actually what my "longcovid' is. MCAS is what drives all of it. I was on LDN for years for PMS actually. Mainstream medicine told me to cut that out, as well as vitamins, when I had severe covid in march 2020 (nurse who was treating covid SO easily before it had a name and the mandates. Once it did, people were "dying" (murered). I live to tell from both perspective. It felt like rayDeeA shun poisoning actually. Long Covid is NOT diagnosed unless you see Dr Bruce Patterson because HE only can see the spike protein. I did HBOT for 180 hours, in the steal chamber, then soft. I needed EBOO (blood cleansing, UV light and filtering). Long covid is VERY complex and it very individual because it's usually not long civd Mold and hidden lyme, MCAS. HBOT is great until/unless you are going back home to a moldy home which is everywhere because of what's coming down from the sky. I had critical care level severity, with stroke and seizures, blindness.....so no easy case, BUT finally having more goods than bad, but need a lot of antihistamines, periodic ivermectin. It's multi--approach and takes a LONG time
yeh it is a shame it is so expensive but I am always hopeful that if some of these expensive treatments prove successful they will eventually be offered on state healthcare 🤞
I had all this, I cured myself with clean diet avoiding high carbs, sugar and grains, a whole range of supplements, long walks twice per day and slow pace weight lifting (resistance training). Ive been symptom free all this year but having sort of relapse atm, it seems stress makes my immune system break down that the allows these different oppertunity infections to spread in my body.
@@livingwithmecfs hahahahahhahah, no they won't! Health is not the priority. Never was, never will be. Research lies. Love, longtime nurse now disabled patient. I did a loan and had a fundraiser from a friend at church that was a HUGE blessing. It took way more than HBOT which helped but didn't last, thats how I knew I had to recalculate.
I had all this, I cured myself with clean diet avoiding high carbs, sugar and grains, a whole range of supplements, long walks twice per day and slow pace weight lifting (resistance training). Ive been symptom free all this year but having sort of relapse atm, it seems stress makes my immune system break down that then allows these different oppertunity infections to spread in my body combined with my own immune system attacking my body (autoimmune disorder of some sort).
Yep. 41 years with this disease and I've just about tried it all. The *most effective* treatment by far is a clean organic whole food keto diet - sugars, very low carbs, no seed or vegetable oils, no starchy veg or tropical fruits even. Carnivore is also an option, though I hate eating meat - plus intermittent fasting and 3-5 day water fasts. Your mood can improve significantly with this diet. Regular weight training and long brisk walks, contact with nature, and stress reduction also helps, as well as berberine, NMN, krill or fish oil, resveritol, D3, K2, iodine, taurine, GlyNac, turmeric, B1, no flush niacin, zinc, and other B complex vitamins.
Thanks for sharing what has helped you. Fantastic you have been symptom free this year!!! I’m always looking for people to share their story so if you fancy making a short video about what helped you improve then drop me an email at charlotte@livingwithmecfs.co.uk
Thanks for sharing your experience, sorry it didn’t work for you. After hearing a few Long Covid success stories with HBOT I was thinking of trying it for my ME/CFS but hadn’t found anyone else with ME/CFS who had tried it so it is helpful to hear your experience. Do you know what pressure the chamber was? Apparently that can make a difference
@@livingwithmecfs I don't know the specific pressure but it was a state of the art HBOT unit I was in. I don't believe there are any good theoretical reasons why HBOT should work for CFS/FIBRO/LONG COVID.
I did 180 hours steal chamber. Nothing worse if you're living in mold, have lyme underlying, reactivated EBV what helped me after 4 years of near suiidal hell and I am thick skinned woman, brain to toe, complete with stroke, seizures, with no medical help as it was march 2020........I can tell you that it's NOT just HBOT. Nope I did EBOO, IV methylene blue, ozone, killed the seed oils, ,found which supplements I needed, which I didn't, etc. But 20 hours is nothing......at least 40, break, and 40 more. Check for parasites, mold (not always obvious), EBV titers, etc.
Most, if not all of us Long Covid sufferers were very athletic prior to infection. Makes sense to me now.. When you are exercising 5-6 days a week, you are putting a lot of stress on the nervous system. And when something like Covid hits, it just completely obliterates you because the immune and nervous system is already severely taxed due to the constant hormetic stress from exercise. Totally changed my idea of what fitness truly is.
I'm better after 3.5 years by taking (among MANY) things various Amino acids to support my Mitochondria and I'm 82 years old. I particularly like L-Carnosine.
Great job beating long COVID. Iam 73 & made it through 7 months & still having symptoms. Iam doing in-depth research on mitochondria & will look into your suggestions. Thank you for your info.
The transcript is not coming up, fyi. I will have to listen again to gather those treatments to get spellings, but glad you are better. Maybe list things for easy access? I have LC and not interested in buying another book from anyone, but appreciate those who share what worked for them. I would like to know the place and treatment that worked for you. SLC is only one state away from me. We are all desperate and not all of us have funds for the treatments. Thanks and again, glad you are better.
It would be part of the whole story if you would disclose whether you received the covid vaccine and any boosters after you hade early onset covid. Please be transparent.
I had a long covid and the best thing that ever helped me was my sauna. I got a Morh tent sauna and it's awesome. I also worked out in my above-ground saltwater pool every single day that I could. Even in a wetsuit. I already ate organic I'm rarely ate sugar. I've had long covid since January 2021 but I am doing great enough to be able to wear heels now. I get tired but I'm finding the more I go back into walking around in my pool the stronger I get. I have an iodine deficiency for some reason but I take Mary's for that. And I eat more seafood. Because of some of the issues with long covid I was eating and taking certain supplements and not being able to move around much and my cholesterol got high. They put me on 10mg Statin. Every time I would start to hurt again right after I finally start to feel better from the long covid. This last time it was so awful that my knees killed me and I couldn't get up from the couch and I was a zombie. I thought for sure my long covid was getting hit again.but within one month of being off of statin after only being on it for 6 weeks I am like a new person again. My energy is picking back up my body is not hurting hardly at all and I'm definitely not angry anymore. Statins will make you freaking angry and I don't care what anyone says. Probably because it makes your body feel like it's going through long covid. All my symptoms are better now and that is because I really got back into using my sauna four times a week and working out in my pool five times a week. I was sore at first but I'm telling you my energy level is going through the roof every day. And I only eat once a day. I'm working on changing that but so far I've lost at least 20 lb oh I only have 20 to go. And by the why I did not have that experimental jab and I had long covid before it came out but I still wouldn't have had it. I am 65 years old and I am on no medications and I am not addicted to anything and I have never been drunk in my life and I have been eating organic years before I got long covid. I believe a lot of it was caused by stress because I had not paid attention to how stupid the world and the people had gotten because I was too busy living my life. I miss those times but I'm doing so much better so I am slowly getting away from all this negative stuff on TH-cam and I do not do any other social media haven't for years.
It’s so great you are able to move around more and wear heels! Sounds like the statins really didn’t agree with you. Hopefully now you have stopped them things will keep on improving 🤞
A girl my son runs with used cryo. It helped her tremendously but still had small issues. I offered her the use of my red/infrared sauna and she seems to be doing awesome now. I think the combination of extreme cold mixed with extreme deep healing heat is a shock to the body to kind of reset itself.
Red light therapy is not extreme heat. I have a Morzh tent sauna. I go out there in 200 + heat and of course I wear a wool hat and a heavy terry cloth robe. I spend 23 minutes in there and I use eucalyptus in the diffuser because I also like to run the water with hot stones. Now that's intense heat then I jump into my saltwater pool and I swim. It has healed my body tremendously. Red light therapy is the same as going in the sun and I do have one and I like it. Do that while you're doing the shake machine and you're really getting yourself some movement.
Mathew, I have one question. After you got Covid, will you ever vaccinated and if so, how many times are you vaccinated? Very encouraging hearing you got better.. I am almost 4 years and do it myself. Exact same symptoms except a little worse. I did 40 sessions of hyperbaric oxygen in a row at 15 feet for an hour and 20 minutes each. Had no help from it. I’m glad it helped you. I’ve done everybody’s program out there . Dr. Patterson’s did not help either.
I've also done hyperbaric oxygen, with no improvement. I'll see an initial improvement when starting LDN and initial decline when coming off, but don't know if it has moved the needle overall or not. Some other things have been that way as well...such as Corlanor and intermittent fasting so I may rotate them to have that positive affect more often and hopefully it can snowball into overall improvement 🤷🏼♀️
I find it can be a bit trial and error to find what works for you. Rotating through different things sounds like a good idea. Fingers crossed you see some improvement
@@livingwithmecfs Would be interested to know if you think Covid-19 was the cause of your illness ? And if you were treated with any medications before or when you became ill ( that is , doctor prescribed medications , ) . ( As many believe the doctor prescribed medications caused their long - COVID illnesses. )
@@sneakypress I can’t speak for Matthew (he created this video as a guest for my channel) but I have had ME/CFS for 17 years. The trigger was a kidney infection and I was given lots of antibiotics to treat it. They didn’t seem to do much to help the infection but did cause me lots of digestive issues which I believe are an underlying cause of my ME/CFS. I do wonder if I hadn’t been give all those antibiotics would I have developed ME/CFS especially as there are several studies showing people with ME/CFS (and I think Long Covid) have an altered gut microbiome
Sorry to hear you are still struggling. Matthew is fully recovered and off all his medications. Others have recovered using other methods too so don’t give up hope 😊
I forwarded your question to Matthew and this was his reply “ Yes my gut was impacted. I often got nauseated and was unable to eat much at one sitting. No idea what caused my POTS.”
I did hbot. It worked for me. I have put around 150 hr on my machine. I was able to buy a soft chamber for 17k. I was expensive but it was worth every penny.
So glad it worked for you. How long did it take for you to start feeling the effects? If you stop doing it do your symptoms come back? After hearing a few HBOT success stories I was looking into getting one but wasn’t sure the at home soft chamber ones would be as effective. The home ones I have found only go up to 1.5ATA but clinical trials with HBOT all used 2.0 ATA or higher. Helpful to know that soft shell worked for you.
@livingwithmecfs Mine goes up to 1.4 ata. My brain fog started lifting after 5 sessions. I could stay awake after most of the day after 10 sessions. That is when I decided to buy a soft hbot chamber. Before this, I had gone for 2 months with me/cfs long covid and not being able to move around or stay awake for over 3 hrs a day. It still took at least 4 months until I could function at work, and that was still limited. I am back at full swing now, but it has taken around 18 months. To get here. When I started with hbot, I would do it 5 days a week. I have made it up to 4 weeks without a secession. It all depends on how long I work or if I get a cold. Every Dr I have talked to since i got sick said it saved my life. I did take other supplements that I believed helped with this process.
it also doesn't help if once you are done, you go back to a moldy work or home and it was never long covid to begin with .See Dr Bruce Patterson for details.
I had Covid 5 weeks ago and I can't seem to get over it. I'll occasionally have a good day but then I feel like total crap the next day. It's so depressing. I can barely walk a mile. My doctor has no advice.
I’m sorry you are struggling. The Turnto app has lots of free info that could be helpful. Also if you are in the US then check out RTHM clinic, they specialise in supporting people with Long Covid and ME/CFS
Probably LDN/LDA in advance of HBOT was key. Do you still take LDN/LDA? 2-3 months symptom free is great. However, relapses might still happen due to further infections/overexertion. Thanks for sharing.
Undoubtedly some people had problems after the vaccine but it is a tiny cohort compared to the hundreds of thousands of people with LC. Billions of people have had Covid vaccines at this point. I don’t see any studies that support a large percentage or even a small percentage with these kind of symptoms.
a) it's not a vaccine. please stop using their lying term..it's NOT. b) no shots when we got it in march 2020 (I don't even make fu shot, and I'm .....was...a nurse)
@@livingwithmecfs Did use MB and it gave me more energie. More focused and not tired so fast. Wrinkles arround my mouth are less. Two pounds more with more exercise.
I have heard good things about red light therapy for supporting the mitochondria. I think some spas or gyms offer it so maybe you could try it and see how you respond before buying a light of your own
Some people have had long covid since before the shots were even available. Sure there is such a thing as vaccine injuries but you are very lucky to just be spouting your mouth without being impacted. Ignorance is bliss. Karma is all I have to say.
STOP......there is enough gaslighting. I am a nurse over 25 years. I never took the flu shot, didn't take the coviads shot. I got sick with very severe covid in march 2020 when the damn mask went on (had to at work), and it turned out that covid triggered the mold toxicity, hiding lyme, arsenic and other chemtrail related things along with 10g towers. Dr Bruce Patterson does labs to show you whether it's truly longhaul or lyme, mold, etc. Not every one is long covid, but they want to be. The shots ('job' is a too gentle a word) are spikes and poisonous. The infection itself, also it. Please don't minimize the true suffering of those of us who didn't get the SHOT. Okay. Be humble and empathetic. Thanks. Be careful because.......sometimes arrogant attitude are corrected by our good God.
ME stands for myalgic encephalomyelitis CFS stands for Chronic Fatigue Syndrome This link explains more www.actionforme.org.uk/get-information/what-is-me/what-does-me-feel-like/ POTS stands for postural orthostatic tachycardia syndrome. You can find more info here www.potsuk.org/
41 years with this disease and I've just about tried it all. The *most effective* treatment by far is a clean organic whole food keto diet - sugars, very low carbs, no seed or vegetable oils, no starchy veg or tropical fruits even. Carnivore is also an option, though I hate eating meat - plus intermittent fasting and 3-5 day water fasts. Your mood can improve significantly with this diet. Regular weight training and long brisk walks, contact with nature, and stress reduction also helps, as well as berberine, NMN, krill or fish oil, resveritol, D3, K2, iodine, taurine, GlyNac, turmeric, B1, no flush niacin, zinc, and other B complex vitamins.
Sounds like you have lots of really good strategies. Thank you for sharing what has helped you
Just curious if LDN worked for you? Thx
@@Blackpool999 no, it did not. Spent more than a year on it and noticed little difference. Only what I listed above helped.
@@GingerPeacenik Thank you for the swift response. 25 month Long Covid Hauler here. The unlimited options of halway effective treatments give me more dizziness than the one from Covid/Vacc injury.
Do you think a Carnivore diet is good for such post Viral Syndromes? Thx. Completed my first 3 day water fast and am on most of the supplements youve mentioned.
@@Blackpool999 helps me but I have way more than longcovid since march 2020 - it helps for the mold toxicity which is actually what my "longcovid' is. MCAS is what drives all of it. I was on LDN for years for PMS actually. Mainstream medicine told me to cut that out, as well as vitamins, when I had severe covid in march 2020 (nurse who was treating covid SO easily before it had a name and the mandates. Once it did, people were "dying" (murered). I live to tell from both perspective. It felt like rayDeeA shun poisoning actually. Long Covid is NOT diagnosed unless you see Dr Bruce Patterson because HE only can see the spike protein. I did HBOT for 180 hours, in the steal chamber, then soft. I needed EBOO (blood cleansing, UV light and filtering). Long covid is VERY complex and it very individual because it's usually not long civd Mold and hidden lyme, MCAS. HBOT is great until/unless you are going back home to a moldy home which is everywhere because of what's coming down from the sky. I had critical care level severity, with stroke and seizures, blindness.....so no easy case, BUT finally having more goods than bad, but need a lot of antihistamines, periodic ivermectin. It's multi--approach and takes a LONG time
🎉 good for you! Hyperbaric oxygen therapy didn't work for me, but I'm so glad it helped you!
Tell me more…I am working on a therapy…
Most people can’t afford this
yeh it is a shame it is so expensive but I am always hopeful that if some of these expensive treatments prove successful they will eventually be offered on state healthcare 🤞
Agreed . 😢
@@livingwithmecfs. Yeah Healthcare & Insurances only do things that profit big Pharma unfortunately . 😢
I had all this, I cured myself with clean diet avoiding high carbs, sugar and grains, a whole range of supplements, long walks twice per day and slow pace weight lifting (resistance training).
Ive been symptom free all this year but having sort of relapse atm, it seems stress makes my immune system break down that the allows these different oppertunity infections to spread in my body.
@@livingwithmecfs hahahahahhahah, no they won't! Health is not the priority. Never was, never will be. Research lies. Love, longtime nurse now disabled patient. I did a loan and had a fundraiser from a friend at church that was a HUGE blessing. It took way more than HBOT which helped but didn't last, thats how I knew I had to recalculate.
I had all this, I cured myself with clean diet avoiding high carbs, sugar and grains, a whole range of supplements, long walks twice per day and slow pace weight lifting (resistance training).
Ive been symptom free all this year but having sort of relapse atm, it seems stress makes my immune system break down that then allows these different oppertunity infections to spread in my body combined with my own immune system attacking my body (autoimmune disorder of some sort).
Yep. 41 years with this disease and I've just about tried it all. The *most effective* treatment by far is a clean organic whole food keto diet - sugars, very low carbs, no seed or vegetable oils, no starchy veg or tropical fruits even. Carnivore is also an option, though I hate eating meat - plus intermittent fasting and 3-5 day water fasts. Your mood can improve significantly with this diet. Regular weight training and long brisk walks, contact with nature, and stress reduction also helps, as well as berberine, NMN, krill or fish oil, resveritol, D3, K2, iodine, taurine, GlyNac, turmeric, B1, no flush niacin, zinc, and other B complex vitamins.
Thanks for sharing what has helped you. Fantastic you have been symptom free this year!!!
I’m always looking for people to share their story so if you fancy making a short video about what helped you improve then drop me an email at charlotte@livingwithmecfs.co.uk
Stress makes everything worse for me
Amazing, about 20 HBOT sessions didn't do a darn thing to help me in my journey with severe CFS/fibromyalgia.
Thanks for sharing your experience, sorry it didn’t work for you. After hearing a few Long Covid success stories with HBOT I was thinking of trying it for my ME/CFS but hadn’t found anyone else with ME/CFS who had tried it so it is helpful to hear your experience. Do you know what pressure the chamber was? Apparently that can make a difference
@@livingwithmecfs I don't know the specific pressure but it was a state of the art HBOT unit I was in. I don't believe there are any good theoretical reasons why HBOT should work for CFS/FIBRO/LONG COVID.
@@bevillenz ah ok, thanks for the info
@@bevillenz yep, I did 19 and nothing 🤷🏼♀️ I was so hopeful about it, as I'm sure you were as well.
I did 180 hours steal chamber. Nothing worse if you're living in mold, have lyme underlying, reactivated EBV what helped me after 4 years of near suiidal hell and I am thick skinned woman, brain to toe, complete with stroke, seizures, with no medical help as it was march 2020........I can tell you that it's NOT just HBOT. Nope I did EBOO, IV methylene blue, ozone, killed the seed oils, ,found which supplements I needed, which I didn't, etc. But 20 hours is nothing......at least 40, break, and 40 more. Check for parasites, mold (not always obvious), EBV titers, etc.
Thank you for the hope! I have been beyond discouraged this summer, and I needed to hear this.
I'm so glad it helped 😊
I was an ultra endurance athlete and i too have developed PEM. I have had covid multiple times and this is very interesting.
Most, if not all of us Long Covid sufferers were very athletic prior to infection. Makes sense to me now.. When you are exercising 5-6 days a week, you are putting a lot of stress on the nervous system. And when something like Covid hits, it just completely obliterates you because the immune and nervous system is already severely taxed due to the constant hormetic stress from exercise. Totally changed my idea of what fitness truly is.
I'm better after 3.5 years by taking (among MANY) things various Amino acids to support my Mitochondria and I'm 82 years old. I particularly like L-Carnosine.
Am. Lc 3 years, take nac, reservatrol, trying to get ldn,, what else helped. U 🙏♥️
@@brendabrenner2891 alpha lipoic acid Astragalus, lots of D3 plus K2
oh wow it must be quite a challenge to deal with long Covid at 82! Sounds like you have found some good strategies.
Great job beating long COVID. Iam 73 & made it through 7 months & still having symptoms. Iam doing in-depth research on mitochondria & will look into your suggestions. Thank you for your info.
@@pamponsart tu im 83❤️❤️❤️
The transcript is not coming up, fyi. I will have to listen again to gather those treatments to get spellings, but glad you are better. Maybe list things for easy access? I have LC and not interested in buying another book from anyone, but appreciate those who share what worked for them. I would like to know the place and treatment that worked for you. SLC is only one state away from me. We are all desperate and not all of us have funds for the treatments. Thanks and again, glad you are better.
It would be part of the whole story if you would disclose whether you received the covid vaccine and any boosters after you hade early onset covid. Please be transparent.
Ofcourse he did, that's the real data. They hide this from the public and squawk "safe n effective" lol
😮
I had a long covid and the best thing that ever helped me was my sauna. I got a Morh tent sauna and it's awesome. I also worked out in my above-ground saltwater pool every single day that I could. Even in a wetsuit. I already ate organic I'm rarely ate sugar. I've had long covid since January 2021 but I am doing great enough to be able to wear heels now. I get tired but I'm finding the more I go back into walking around in my pool the stronger I get. I have an iodine deficiency for some reason but I take Mary's for that. And I eat more seafood. Because of some of the issues with long covid I was eating and taking certain supplements and not being able to move around much and my cholesterol got high. They put me on 10mg Statin. Every time I would start to hurt again right after I finally start to feel better from the long covid. This last time it was so awful that my knees killed me and I couldn't get up from the couch and I was a zombie. I thought for sure my long covid was getting hit again.but within one month of being off of statin after only being on it for 6 weeks I am like a new person again. My energy is picking back up my body is not hurting hardly at all and I'm definitely not angry anymore. Statins will make you freaking angry and I don't care what anyone says. Probably because it makes your body feel like it's going through long covid. All my symptoms are better now and that is because I really got back into using my sauna four times a week and working out in my pool five times a week. I was sore at first but I'm telling you my energy level is going through the roof every day. And I only eat once a day. I'm working on changing that but so far I've lost at least 20 lb oh I only have 20 to go. And by the why I did not have that experimental jab and I had long covid before it came out but I still wouldn't have had it. I am 65 years old and I am on no medications and I am not addicted to anything and I have never been drunk in my life and I have been eating organic years before I got long covid. I believe a lot of it was caused by stress because I had not paid attention to how stupid the world and the people had gotten because I was too busy living my life. I miss those times but I'm doing so much better so I am slowly getting away from all this negative stuff on TH-cam and I do not do any other social media haven't for years.
It’s so great you are able to move around more and wear heels! Sounds like the statins really didn’t agree with you. Hopefully now you have stopped them things will keep on improving 🤞
A girl my son runs with used cryo. It helped her tremendously but still had small issues. I offered her the use of my red/infrared sauna and she seems to be doing awesome now. I think the combination of extreme cold mixed with extreme deep healing heat is a shock to the body to kind of reset itself.
that is interesting! Thanks for sharing 😊
Red light therapy is not extreme heat. I have a Morzh tent sauna. I go out there in 200 + heat and of course I wear a wool hat and a heavy terry cloth robe. I spend 23 minutes in there and I use eucalyptus in the diffuser because I also like to run the water with hot stones. Now that's intense heat then I jump into my saltwater pool and I swim. It has healed my body tremendously. Red light therapy is the same as going in the sun and I do have one and I like it. Do that while you're doing the shake machine and you're really getting yourself some movement.
Mathew, I have one question. After you got Covid, will you ever vaccinated and if so, how many times are you vaccinated? Very encouraging hearing you got better.. I am almost 4 years and do it myself. Exact same symptoms except a little worse.
I did 40 sessions of hyperbaric oxygen in a row at 15 feet for an hour and 20 minutes each. Had no help from it. I’m glad it helped you.
I’ve done everybody’s program out there . Dr. Patterson’s did not help either.
I have LC ME/CFS for almost 3 years. Unfortunately 40x Hyperbaric O2 sessions didn't make a difference for me. LDN seems to be helping somewhat.
I've also done hyperbaric oxygen, with no improvement. I'll see an initial improvement when starting LDN and initial decline when coming off, but don't know if it has moved the needle overall or not. Some other things have been that way as well...such as Corlanor and intermittent fasting so I may rotate them to have that positive affect more often and hopefully it can snowball into overall improvement 🤷🏼♀️
Sorry to hear HBOT didn’t help you but glad LDN seems to be helping. Sometimes it can be a bit trial and error to find what works for you
I find it can be a bit trial and error to find what works for you. Rotating through different things sounds like a good idea. Fingers crossed you see some improvement
@@livingwithmecfs
Would be interested to know if you think Covid-19 was the cause of your illness ?
And if you were treated with any medications before or when you became ill ( that is , doctor prescribed medications , ) .
( As many believe the doctor prescribed medications caused their long - COVID illnesses. )
@@sneakypress I can’t speak for Matthew (he created this video as a guest for my channel) but I have had ME/CFS for 17 years. The trigger was a kidney infection and I was given lots of antibiotics to treat it. They didn’t seem to do much to help the infection but did cause me lots of digestive issues which I believe are an underlying cause of my ME/CFS. I do wonder if I hadn’t been give all those antibiotics would I have developed ME/CFS especially as there are several studies showing people with ME/CFS (and I think Long Covid) have an altered gut microbiome
Omg so you’re ok now? Wow! I’m still struggling. Annie🇦🇺
Sorry to hear you are still struggling. Matthew is fully recovered and off all his medications. Others have recovered using other methods too so don’t give up hope 😊
That’s awesome! Was your gut impacted? Do you feel POTS was due to MCAS?
I forwarded your question to Matthew and this was his reply
“ Yes my gut was impacted. I often got nauseated and was unable to eat much at one sitting. No idea what caused my POTS.”
I did hbot. It worked for me. I have put around 150 hr on my machine. I was able to buy a soft chamber for 17k. I was expensive but it was worth every penny.
So glad it worked for you. How long did it take for you to start feeling the effects? If you stop doing it do your symptoms come back?
After hearing a few HBOT success stories I was looking into getting one but wasn’t sure the at home soft chamber ones would be as effective. The home ones I have found only go up to 1.5ATA but clinical trials with HBOT all used 2.0 ATA or higher. Helpful to know that soft shell worked for you.
@livingwithmecfs Mine goes up to 1.4 ata. My brain fog started lifting after 5 sessions. I could stay awake after most of the day after 10 sessions. That is when I decided to buy a soft hbot chamber. Before this, I had gone for 2 months with me/cfs long covid and not being able to move around or stay awake for over 3 hrs a day. It still took at least 4 months until I could function at work, and that was still limited. I am back at full swing now, but it has taken around 18 months. To get here. When I started with hbot, I would do it 5 days a week. I have made it up to 4 weeks without a secession. It all depends on how long I work or if I get a cold. Every Dr I have talked to since i got sick said it saved my life. I did take other supplements that I believed helped with this process.
@@nextgen1939 that is awesome! Thanks for sharing how it helped you at different stages, it’s really helpful to know 😊
I got the summit to sea for 6k....thank God!...because I needed 10k for EBOO, methylene blue, sauna etc. Long 5 year haul.
@@jac1161 did all these things help? Have you had improvements?
What about gram-negative bacteria that develop from oxygen? It may backfire on you. Keep us updated.
it also doesn't help if once you are done, you go back to a moldy work or home and it was never long covid to begin with .See Dr Bruce Patterson for details.
I had Covid 5 weeks ago and I can't seem to get over it. I'll occasionally have a good day but then I feel like total crap the next day. It's so depressing. I can barely walk a mile. My doctor has no advice.
I’m sorry you are struggling. The Turnto app has lots of free info that could be helpful. Also if you are in the US then check out RTHM clinic, they specialise in supporting people with Long Covid and ME/CFS
Probably LDN/LDA in advance of HBOT was key. Do you still take LDN/LDA?
2-3 months symptom free is great. However, relapses might still happen due to further infections/overexertion.
Thanks for sharing.
Can you find out if he is still having to take LDN and LDA? Thanks for posting this!
I asked Matthew and he said after the HBOT he phased out all his medications and now isn’t taking anything at all.
HBOT didn't help me one bit. I did ~ 30 sessions. If anything, I crashed for a few months. No improvements.
Sorry to hear HBOT didn’t help you 😔
What's the name of the clinic?
He went to two clinics, Bateman Horne and Aviv
P.S. I'm also doing Brain training/rewiring.
curious if you got the covid vaccine or not? if so, could it just be symptoms of the vaccine?
Undoubtedly some people had problems after the vaccine but it is a tiny cohort compared to the hundreds of thousands of people with LC.
Billions of people have had Covid vaccines at this point. I don’t see any studies that support a large percentage or even a small percentage with these kind of symptoms.
Plenty of unvaccinated people with long covid.
He got this before the vaccine I’m even came out
a) it's not a vaccine. please stop using their lying term..it's NOT. b) no shots when we got it in march 2020 (I don't even make fu shot, and I'm .....was...a nurse)
Try Methylene blue.
Thanks for the tip. Have you tried it? Did it help?
@@livingwithmecfs Did use MB and it gave me more energie. More focused and not tired so fast. Wrinkles arround my mouth are less. Two pounds more with more exercise.
@@monicali2608 that is great!
@livingwithmecfs it helps me a lot, I can keep my oxygen from around 90 to avarege 95 % !
@@alantrost6704 that is great! Keeping up your oxygen levels has got to be a good thing!
Am lc 3years, wcormobidities, celiac, mold, lyme..am claustrophobic, so o2 chamber is out..winder if anyone has used redoght theraoy🙏♥️
I have heard good things about red light therapy for supporting the mitochondria. I think some spas or gyms offer it so maybe you could try it and see how you respond before buying a light of your own
..tu ❤️@@livingwithmecfs
It’s not ‘long Covid’ it’s the reaction of the jabs! 😂🤡
Some of us have LC and never had a jab!
Some people have had long covid since before the shots were even available. Sure there is such a thing as vaccine injuries but you are very lucky to just be spouting your mouth without being impacted. Ignorance is bliss. Karma is all I have to say.
@@ebbabuddy lol 🤡
@@jimshu245 shedding is a issue
@@ebbabuddyvaxx injuries has been around longer than Covid soooooooooo….. 😂 who is talking smack now?
Bruh, you got the EUA shot did u not?
Long covid give over ! It’s the jabs
Plenty of unvaccinated people with long covid. Stop with the idiotic misinformation.
STOP......there is enough gaslighting. I am a nurse over 25 years. I never took the flu shot, didn't take the coviads shot. I got sick with very severe covid in march 2020 when the damn mask went on (had to at work), and it turned out that covid triggered the mold toxicity, hiding lyme, arsenic and other chemtrail related things along with 10g towers. Dr Bruce Patterson does labs to show you whether it's truly longhaul or lyme, mold, etc. Not every one is long covid, but they want to be. The shots ('job' is a too gentle a word) are spikes and poisonous. The infection itself, also it. Please don't minimize the true suffering of those of us who didn't get the SHOT. Okay. Be humble and empathetic. Thanks. Be careful because.......sometimes arrogant attitude are corrected by our good God.
ps....what is "long covid give over !".. are you okay?
What is ME/CFS and what is POTS?
Look it up. It's common especially after covid.
ME stands for myalgic encephalomyelitis
CFS stands for Chronic Fatigue Syndrome
This link explains more www.actionforme.org.uk/get-information/what-is-me/what-does-me-feel-like/
POTS stands for postural orthostatic tachycardia syndrome.
You can find more info here www.potsuk.org/