My Stage 4 Cancer Symptoms Were DISMISSED! - Leah | Stage 4 Lung Cancer | The Patient Story

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  • เผยแพร่เมื่อ 5 ส.ค. 2024
  • Leah Phillips was just 43 years old when she was diagnosed with stage IV non-small-cell lung cancer (NSCLC) with an EGFR Exon-19 mutation. Despite her initial shock and a frustrating series of misdiagnoses, Leah’s determination and advocacy led to proper treatment.
    In this cancer vlog, Leah shares her story from the onset of her symptoms, through the relentless pursuit of answers, to her current treatment with Tagrisso. Discover how Leah balances life as a mother of three, the impact of her diagnosis, and her advice on the importance of second opinions and being your own advocate.
    Thank you, Leah, for sharing your story to help others.
    #lungcancer #lungcancersymptoms #lungcancersurvivor #cancerpatient #cancersurvivor #patientstories #thepatientstory #cancertreatment #cancerprevention #cancersymptoms
    The Patient Story:
    The Patient Story is led by a dedicated team of medical, editorial, and video experts, committed to authentically portraying the cancer patient experience. Sharing your story holds transformative power, culturally and personally. We handle each narrative with utmost care, compassion, and scientific rigor.
    Our editorial process adheres to the highest journalistic standards, ensuring medically researched, vetted, and fact-checked content. Backed by experienced medical professionals, we offer insights into the latest medical advancements.
    Beyond patient narratives, we provide comprehensive coverage of cancer news and medical resources. From symptoms to clinical trials, insurance, finances, and support groups, we offer guidance in a humanized manner.
    Chapters:
    0:00 Meet Leah
    0:40 First symptoms of lung cancer
    6:25 Lung cancer diagnosis
    10:11 Chemotherapy treatment options
    13:39 I had to self-advocate for myself
    18:11 I'm battling a cancer that can't be cured
    21:58 Statistics are NOT always right
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    I Had NO ENERGY Before My Cancer Diagnosis! - Leah | Stage 4 Lung Cancer | The Patient Story
    • My Stage 4 Cancer Symp...

ความคิดเห็น • 527

  • @libjane6710
    @libjane6710 24 วันที่ผ่านมา +145

    Just sad how many others were dismissed trusting their Dr & passed away lack of treatment, so pleased your Nurse Practitioner took action, a hug to her as well ❤❤

  • @pam164
    @pam164 24 วันที่ผ่านมา +285

    Jenny Apple died of that she was only 35, 2 small children, she had never smoked either. They have to stop thinking if you are a non-smoker, then you can't have lung cancer.

    • @taffycat93
      @taffycat93 24 วันที่ผ่านมา +26

      I followed Jenny's experience. So sad. But you're right, so many people who never smoked get stage 4 lung cancer. They neat earlier signs bc stage 4 is (almost) too late!

    • @suegamlin
      @suegamlin 24 วันที่ผ่านมา +38

      My son died in January at 32, of stage 4 lung cancer , he too was a non smoker

    • @taffycat93
      @taffycat93 24 วันที่ผ่านมา +19

      @@suegamlin Gosh, I'm so sorry. He was very young. Sending prayers. 🙏

    • @pam164
      @pam164 24 วันที่ผ่านมา +11

      @@suegamlin So sorry.

    • @pallavisreetambraparni6995
      @pallavisreetambraparni6995 24 วันที่ผ่านมา +9

      @@taffycat93 Wow. So so sad

  • @barbhelle5481
    @barbhelle5481 24 วันที่ผ่านมา +103

    I have a friend that was diagnosed with a rare bone cancer only children get and they never live long. She had surgery but was told she had 6 months to live. She did live and is still alive 40 years later. She also had lung cancer later and she never smoked.
    Praying for you to keep having a wonderful outcome.

    • @christinefiedor3518
      @christinefiedor3518 19 วันที่ผ่านมา +1

      Possibly misdiagnosed?

    • @monicawmonica
      @monicawmonica 3 วันที่ผ่านมา +2

      Stop giving false hope to people. Those are miracles and the definition of miracles is that they are extremely rare.

    • @CocoAvalon
      @CocoAvalon 2 วันที่ผ่านมา +1

      @@monicawmonica She's allowed to tell her/her friend's own personal story. Don't try to silence others.

    • @christinefiedor3518
      @christinefiedor3518 2 วันที่ผ่านมา +1

      @@monicawmonica I m a retired paediatric RN. It is known that very occasionally the boys own immune system kicks in and heals itself. This was happening even before the days of chemo. It is quite rare however.
      People need to remember that medicine is not and never will be an exact science.

    • @PoeLemic
      @PoeLemic วันที่ผ่านมา

      @@monicawmonica So true that those instance of "miracles" (if you can call them that) are so very few, rare, and almost statically non-existent. Possibly cancer type was misdiagnosed.

  • @Noodles.FreeUkraine
    @Noodles.FreeUkraine 24 วันที่ผ่านมา +140

    What a strong, enlightened woman. Just imagine her ending up being diagnosed at stage IV even though she advocated for herself. Now think about how many folks won't do that and just nod at whatever their doc throws at them. It's the most important thing when it comes to your health to listen to your body and keep knocking sense into skulls that won't listen until they do.

    • @elizabethw.454
      @elizabethw.454 24 วันที่ผ่านมา +9

      It's so sad 😭

    • @user-fb8uw1ui5x
      @user-fb8uw1ui5x 24 วันที่ผ่านมา +7

      It's why we need more research and funding 🙏🙏🙏...

    • @roch145
      @roch145 24 วันที่ผ่านมา +10

      You need to keep in mind that the process of diagnosis is driven by probability and ruling out a higher probability diagnosis before investigating the next lower probability diagnosis. No doubt it’s helpful if one has enough knowledge and self-advocacy to push doctors if one feels like their diagnostic process isn’t delivering the results one wants to see.

    • @Noodles.FreeUkraine
      @Noodles.FreeUkraine 24 วันที่ผ่านมา +7

      @@roch145 Yes, think horses, not zebras, I get it. But I've seen so many diagnoses driven by error and oversight that I will make sure things run the way they're supposed to when it comes to my health.
      I may be a layman, but I stay on top of things and keep myself in the loop. Whenever I talk to medical professionals, they notice, and that alone makes them a bit more considerate when it comes to medical decisions.
      Mind you, I don't try to be pain and come off snooty just because I can google stuff. That's not how it works. But being informed and second-guessing things can sometimes tip the scales in your favor, especially when it comes to malignancies.

    • @roch145
      @roch145 24 วันที่ผ่านมา +8

      @@Noodles.FreeUkraine Being an informed consumer of any service is always beneficial. Car repairs, home repairs, healthcare are best consumed by knowledgeable customers. However, diagnosing cancer is a bit more complicated than diagnosing a misfiring spark plug. So there’s more of a tendency, if not necessity, to rely on medical professionals and their knowledge and experience to drive you in the right direction. Sometimes those care providers fall short and unless you can advocate effectively for yourself, you will suffer. I’ve been through advanced cancer treatments and I know firsthand the challenges of being a cancer patient.

  • @dianesaienni5466
    @dianesaienni5466 24 วันที่ผ่านมา +61

    in my first months of cancer I cried every night when the sun went down and my husband asked why I was crying I said because the day is over and I'll never get it back again. he pointed out that none of us will ever get it back either and that helped me alot. I totally know what she is saying about the small things and the big things suddenly everything in your life becomes precious so in a way I'm blessed to live in that knowledge. God bless this woman and her family with many years of grace ahead

    • @iluvGodnUSA
      @iluvGodnUSA 18 วันที่ผ่านมา +3

      💝

    • @FrannyNan
      @FrannyNan 5 วันที่ผ่านมา

      💖

  • @With-one-wing
    @With-one-wing 24 วันที่ผ่านมา +97

    My husband was just diagnosed with brain cancer. Thanks foe sharing your journey. It gives me hope.

    • @amandag7777
      @amandag7777 24 วันที่ผ่านมา +5

      🙏🏼🙏🏼🙏🏼 my mama had glioblastoma. Prayers y’all’s
      Way

    • @libjane6710
      @libjane6710 24 วันที่ผ่านมา +5

      So sorry😢

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      So sorry about your husband. Sending love and strength.

    • @shannonparker1
      @shannonparker1 16 วันที่ผ่านมา

      Please lookup Dr Thomas Seyfried! He is curing or giving people with brain cancer. People who were given weeks to live are now living cancer free for many years! Just by ketosis! He is an amazing human being and thetop cancer researcher in the world. You can find him on TH-cam to start. He is out of Boston and has clinics going there! It's worth looking into!

    • @triawillow7682
      @triawillow7682 9 วันที่ผ่านมา +2

      🙏🏼🙏🏼🙏🏼Prayers📿

  • @CopingwithGrattitude
    @CopingwithGrattitude 24 วันที่ผ่านมา +36

    You are only still here because of your own advocacy. I am impressed and you rock! I hope you continue to encourage others who are meek to follow through and question everything! Doctors do not know everything-a rare presentation really throws them. A lot of cancers mimic so many other illnesses and at a young age-lung cancer, colon cancer, etc…it isn’t even on their radar.
    You go girl. Hugs from another cancer survivor.

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      YES!! and now leah advocates for others. She is one of our co-founders, the young lung cancer initiative. we are trying to spread the word and support young people with lung cancer!!

  • @barbaravyse660
    @barbaravyse660 24 วันที่ผ่านมา +67

    Everyone says not to Google your symptoms but I do it anyway. I go into my doctor’s office with my own diagnosis and the diagnostics I think I need and then ask for them. I once diagnosed myself after two separate doctors told me nothing was wrong! I ended up needing surgery.

    • @KS-yp1jl
      @KS-yp1jl 23 วันที่ผ่านมา +15

      I know of a bunch of people whose lives were saved by dr. Google. The "don't Google" advice is utter BS.

    • @td4611
      @td4611 23 วันที่ผ่านมา +6

      I do the same

    • @barbara6962
      @barbara6962 7 วันที่ผ่านมา

      ​@@KS-yp1jl YES, YOU ARE CORRECT 💯

    • @barbara6962
      @barbara6962 7 วันที่ผ่านมา

      OOPS, I FORGOT, I DO THE SAME THING!!

    • @LindaRobertson-io3zt
      @LindaRobertson-io3zt 6 วันที่ผ่านมา

      Yes I had an episode of TGA, which is a 24 hour memory loss and I went to the emergency room and they had no idea what was wrong after many tests but then the next morning I just googled my symptoms and figured out what it was! Doctors are so clueless it’s scary !

  • @SherryRoberts-xo5qu
    @SherryRoberts-xo5qu 19 วันที่ผ่านมา +23

    My mom was diagnosed when she was 65 with non small cell lung cancer stage 3A. It was in the lower lobe of her left lung. She had multiple doctor appointments and was diagnosed with pneumonia. She was prescribed antibiotics and steroids. Was finally sent to the ER and the doctor realized it was cancer. Her cancer had not spread and she had the lobe removed. She is an active 82 year old. Good luck.

  • @SaturninaEstano
    @SaturninaEstano 19 วันที่ผ่านมา +15

    My friend took tagresso for 3 years lung cancer stage 2, She’s now 7 years cancer free.

  • @mamacon5
    @mamacon5 24 วันที่ผ่านมา +101

    Keep pushing it! Sometimes I think nurse practitioners know more than the doctors!

    • @WayneLeng
      @WayneLeng 24 วันที่ผ่านมา +1

      I've a friend who would beg to differ!

    • @helentaylor7132
      @helentaylor7132 24 วันที่ผ่านมา +5

      I can all CRNPs are great, but I can vouch for mine. Since I have an HMO, all care starts with my primary. A few years ago, I was apprehensive when I found out my new primary was a nurse practitioner. Well, I had never before had care like she provided. She recently moved away and her patients are devastated. I'll be seeing a new one at next checkup. I'm not too concerned because I am able to advocate for myself. I feel bad for people who can't do that for themselves and have no one to do it for them. And my heart bleeds for those who don't have health insurance.

    • @erica_0612
      @erica_0612 24 วันที่ผ่านมา +11

      I don’t necessarily think they know more than doctors, but in my experience they tend to actually listen to you, which in turn results in better care.

    • @christinefiedor3518
      @christinefiedor3518 19 วันที่ผ่านมา +5

      I’m a tetied RN and I tend to agree with you. I’m often left wondering what the hell they are teaching at medical school nowadays!

    • @shermac246
      @shermac246 17 วันที่ผ่านมา +2

      I’m not a fan of MDs or NPs because I’m a long time chronic illness sufferer and have been gas lit, mistreated and misdiagnosed by both, most recently as of yesterday, I was treated horrifically by a nurse practitioner. I have a graduate degree in public policy and am an activist by trade which comes in handy because I am constantly advocating for myself in the medical community. Like Leah, I worry so much for those who don’t have an advocate or support because it’s necessary for survival these days.
      20:51

  • @sallyhere7849
    @sallyhere7849 23 วันที่ผ่านมา +26

    I hope that she beats this and has a long, long life. I can tell she's a good person and this world needs more people like her!

    • @YoungLungCancer
      @YoungLungCancer 21 วันที่ผ่านมา

      This world would be a much better place if more people were like Leah! She is one of our co-founders- young lung cancer initiative 🤍

    • @Rachel_Ryder
      @Rachel_Ryder 21 วันที่ผ่านมา +1

      I believe she has since passed.

    • @pamelannely
      @pamelannely 17 วันที่ผ่านมา +2

      I’m pretty sure she’s still alive and kicking! Google her, Laura Phillips -stage 4 lung cancer, as of 2024 she was still alive.

    • @Rachel_Ryder
      @Rachel_Ryder 15 วันที่ผ่านมา

      @@pamelannely oh thank God. I must’ve read someone’s comment wrong!

    • @organisedatoms
      @organisedatoms 12 วันที่ผ่านมา

      @@Rachel_RyderShe commented 11 days ago on this video.

  • @susanlumley5547
    @susanlumley5547 7 วันที่ผ่านมา +9

    Why oh why don't doctors listen to us!!!! We know our own bodies!!! Dors my head in! All the best to you and anyone suffering through cancer.

  • @catwanderer1509
    @catwanderer1509 22 วันที่ผ่านมา +16

    So much of what you have to say regarding being dismissed and having multiple diagnoses before the actual diagnosis of cancer was found is exactly what my 38-year-old daughter-in-law is going through right now. She just found out she has stage three lung cancer non-small cell and she’s been in and out of the hospital. Currently, she’s back in the hospital because of a collapsed lung. Sadly, she’s only had one chemo treatment. We are hoping that her lung will reinflate and she can get some treatment. She’s very strong like you.

  • @angelabordack
    @angelabordack 23 วันที่ผ่านมา +28

    I’m stage 2 oropharyngeal carcinoma. I’m half way through chemotherapy and radiation. The only reason they found my cancer was I demanded a scope down my throat. Then I demanded a CT scan with dye. Two days later I was in same day surgery getting a biopsy. Advocate for yourself!

    • @kathleenmcbride1471
      @kathleenmcbride1471 20 วันที่ผ่านมา +3

      Exactly. I was treated for bronchitis repeatedly until I got the CT scan. Xrays were useless until it was huge - 5cm lump and 7cm lymph node (largest one). Surgery not possible. Prognosis pathetic.

    • @angelabordack
      @angelabordack 15 วันที่ผ่านมา +1

      @@kathleenmcbride1471 I had a never ending sinus infection and what I thought was an inflamed tonsil. They wanted to put me on another antibiotic (I had already been on 4). I wasn’t playing that game. I wish you the best of luck! Fight like a Pitbull and MAKE them do what’s necessary. Most people die from these cancers because doctors brush them off and when it is found, it’s too late. We need change!

    • @kathleenmcbride1471
      @kathleenmcbride1471 10 วันที่ผ่านมา +2

      @@angelabordack I have done all the treatments that are applicable to my case so far. I read everything and got an excellent 2nd opinion at Moffitt. No mutations or markers so no targeted or immunotherapy is appropriate which is very unfortunate. That left the old chemo and radiation - exact same treatment as they have had for many years with historically dismal results. However, I did it all - fought through all that and now just having periodic scans. There is nothing left to do. A terrible waiting game. Trying to keep my mind on other things and enjoy the little things I can still do - limited by shortness of breath. I am OK. I get a lot of encouragement from others fighting cancer (example Dr. Dan and Shannen Dougherty among many) so it has been very hard recently as both are passed in the last week. Stay strong!

    • @FrannyNan
      @FrannyNan 5 วันที่ผ่านมา

      💗

  • @michelebulmann4569
    @michelebulmann4569 24 วันที่ผ่านมา +20

    I’m 65 and was diagnosed with NSCLC in January. I had a what I assumed was an upper respiratory infection in Dec. only symptom was a really hard dry cough. My husband insisted I see my PCP and she was fantastic. She immediately sent me for an X-ray and CT scan. Upon getting the results she made me an appointment with the Pulmonologist the next day. He sent me to get a PET scan and after those results sent me to get the nodule biopsied. It came back as NSCLC stage 1. I had never smoked and like you was physically active and diet conscious. Living what I felt was a healthy lifestyle. I had my upper lobe surgically removed along with 28 lymph nodes. After surgery it was discovered that cancer had spread to one of the nodes outside the lung which made the cancer stage 3. I had 4 rounds of chemo therapy. My oncologist has been fantastic and I can’t say enough wonderful things about every doctor and the cancer center I went to. I also have the EFGR mutation so will be on tragrisso for the next 3 years. My story seems to be the exception when it comes to non smoker lung cancer diagnosis. I was the one who went to the doctor asking for an inhaler because I was convinced I had developed exercise induced asthma. My PCP was the one who insisted on the testing before giving me one. I remember leaving her office mad because I didn’t want those annoying tests that was just going to prove me right. Boy was I wrong. I wish there were more stories like mine and less like yours. Unfortunately this type of cancer is on the rise for women who never smoked of all ages and doctors need to be aware of this. I wish you the best of luck on your journey.

    • @ScottsdaleSushi
      @ScottsdaleSushi 7 วันที่ผ่านมา +1

      Michele - please tell your NP that she is a rock star. Thank God she cared enough about you & caught your cancer early. Tell her that a lady in Arizona commends her for being so intuitive.

  • @melissapoole8580
    @melissapoole8580 24 วันที่ผ่านมา +26

    This is heartbreaking. To be put off so much - you are soooo strong and inspirational!

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      Leah is the best. We are trying to raise awareness about lung cancer in younger people with no traditional risk factors. She is one of our co founders- Young Lung Cancer Initiative.

    • @YoungLungCancer
      @YoungLungCancer 21 วันที่ผ่านมา

      Leah is truly a force!!

  • @valeriegood8427
    @valeriegood8427 24 วันที่ผ่านมา +34

    This is all too common being fobbed off as 'not a candidate for lung cancer '.
    Not only Jenny Appleford, look at all the other, mostly women in their prime, stories on here. There's no shortage. I am nearly 65 & it would be devastating for me to learn I had terminal cancer but if I was young like so many of the women who's stories are on here & had young children I'd fall apart. It would be the most traumatic thing ever to think my kids would be without their Mother. I remember thinking about my mortality as a Mom to young children actually & I knew I had to try my best to be healthy bcos my kids need me. My heart truly goes out to all people who may be terminal, especially young Mom's.

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      Yes!1 Leah is one of our co founders - young lung cancer initiative. We hear stories every day of young people that were BRUSHED OFF FOR MONTHS!!! Lung cancer is on the rise in young people with no smoking history/tobacco exposure. YLC is trying to change the narrative!!

    • @gildawhitner6962
      @gildawhitner6962 13 วันที่ผ่านมา

      Please inspire people, especially when they're bravely fighting life's struggles. Words to grasp to help them hold on.
      Thank you so very much 🌺

  • @seanr2157
    @seanr2157 24 วันที่ผ่านมา +25

    These freaking doctors and their cavalier attitudes! 😡 They should be sued for malpractice.

  • @astock5794
    @astock5794 24 วันที่ผ่านมา +29

    My dad was diagnosed with mycoplasma pneumonia. It wouldn't go away. He even ASKED about lung cancer because he was 80 and had been a smoker. BUT since he hadn't been a smoker for more than 40 years, they dismissed him. Yup. Stage 4 lung cancer.😢

    • @Veronica-tn2xc
      @Veronica-tn2xc 24 วันที่ผ่านมา +1

      😢 I'm so sorry. I hope your dad heals.

    • @shermac246
      @shermac246 17 วันที่ผ่านมา +1

      I’m so sorry about your dad, I hope they find a treatment that gives him more time with you and other loved ones.

    • @FrannyNan
      @FrannyNan 5 วันที่ผ่านมา +2

      💗

  • @Katwinser1958
    @Katwinser1958 24 วันที่ผ่านมา +26

    I look at the thought of death like this. I have heart problems and the doc told me I am going to die. I look at it like this. If today is the day for me to die. It is a good day. I will embrace death and go.

    • @Gingergirl098
      @Gingergirl098 14 วันที่ผ่านมา +2

      With the Lord by our side its doable.

  • @Zeesboy
    @Zeesboy 24 วันที่ผ่านมา +14

    Thanks for your post. Glad you're maintaining well.Tagrisso's been working for me for 2 years. And yes, being/having a strong, informed advocate is essential.

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      I hope you get many more years out of tagrisso! Leah is one of our co founders and we have been spreading the word about lung cancer in those without traditional risk factors.

  • @carrierobinson4206
    @carrierobinson4206 24 วันที่ผ่านมา +9

    Prayers for you. Keep fighting I have a friend also a non smoker got the same cancer over 8 years ago and she is still doing well at 68 .

  • @lesleagordon
    @lesleagordon 24 วันที่ผ่านมา +15

    You are inspiring and a good example of how people are dismissed. Gods bless you and you will be in my thoughts and prayers. Live your best day girl and continue making memories your family will cherish. You are a hero for telling your story. Well done and hugs girl. You are a hero to all that hear your story. Sending you positive and healing vibes.

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      Leah is so inspiring. She is one of our co founders- we are trying to spread awareness that lung cancer can happen to anyone!!

  • @laurakilmer8652
    @laurakilmer8652 วันที่ผ่านมา

    My older brother got lung cancer and then went to the brain. He passed. He never smoked either. Dear Im so glad youre still here. God Bless. You are the one who saved yourself to spite bad doctors. !

  • @nancycurtis488
    @nancycurtis488 7 วันที่ผ่านมา +4

    You are truly an inspiration….tell your mom and dad that this mother of 7, Nona of 21, great-grandmother of 1 said they did a great job of rearing you. Hang in there!

  • @violetg7315
    @violetg7315 24 วันที่ผ่านมา +12

    Your strengths and positive attitude are going to be the best things you have for your children!

  • @Ceerads
    @Ceerads 23 วันที่ผ่านมา +6

    Thank you for making this video. I especially appreciate your mentioning those people who might not have the educational and financial resources that you had who are faced with a situation similar to yours: doctors misdiagnosing you or discouraging you, etc. I wish you all the best and many, many more years in which to love your family and life itself.

  • @MyFavoriteColorIsBLUE
    @MyFavoriteColorIsBLUE 23 วันที่ผ่านมา +5

    Leah, im glad that you are still with us. Keep advocating for yourself ❤

    • @Rachel_Ryder
      @Rachel_Ryder 21 วันที่ผ่านมา

      Is she? I thought she had sadly passed?

  • @Kayleesmom
    @Kayleesmom 24 วันที่ผ่านมา +12

    What a beautiful soul you are! God bless you and your family.

  • @mairamichel2499
    @mairamichel2499 24 วันที่ผ่านมา +16

    My mom went through this, her doctors didn’t believe her or take her seriously. By the time they diagnosed her it was to late. Her body was already shutting down she passed 2 weeks after being diagnosed. 59 years old. Non small cell lung cancer, never smoked.

    • @mairamichel2499
      @mairamichel2499 24 วันที่ผ่านมา +2

      My mom‘s lung cancer spread to her brain had a stroke, the doctors blamed it on an AFib heart. She had migraines daily. Every time she went to the doctor or ER they would just give her a migraine cocktail and send her away. Turned out to be lung cancer when someone finally listened she was no longer eating and her body was shutting down. Cancer had spread to spine and brain. 😢 I wish I would have asked more questions, I believed the doctors every time they told me she was fine.

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      I am so so sorry for the loss of your mom. It is so unfair. We are trying to create awareness and change the narrative about lung cancer. Leah is one of our co founders.

    • @FrannyNan
      @FrannyNan 5 วันที่ผ่านมา

      💗

    • @FrannyNan
      @FrannyNan 5 วันที่ผ่านมา

      @@mairamichel2499 💗

  • @lanebashford3982
    @lanebashford3982 24 วันที่ผ่านมา +8

    Praying for you, Leah. I'm stage 4 meta breast cancer and 3 years out from diagnosis. You can live a long time with the Big C so keep on doing what you're doing and take care of yourself. Praying for you and your family.

    • @FrannyNan
      @FrannyNan 5 วันที่ผ่านมา

      💗

  • @ja398
    @ja398 20 วันที่ผ่านมา +3

    I'm so inspired. I admire you like you can't imagine. I see a strong, beautiful, intelligent human being with an amazing will to beat this. Your children must be so proud to have you as their mom. Much love, prayers and health to you and your family. You've really touched my heart.

  • @janisdeitsch2985
    @janisdeitsch2985 24 วันที่ผ่านมา +19

    Thanks for sharing your story, Leah.
    You are quite correct. Someone is in that 5%. I hope and pray it can be you.

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      Leah is a force. She is bringing so much hope and awareness to young lung cancer patients. She is one of our co founders. We are trying to change the narrative of lung cancer.

    • @Sgracer857
      @Sgracer857 23 วันที่ผ่านมา

      @@janisdeitsch2985 leah gives our community so much hope. You should check out young lung cancer initiatives socials.. she is co founder .. her story is making such a difference in our community and raising so much awarensss

    • @ScottsdaleSushi
      @ScottsdaleSushi 7 วันที่ผ่านมา +1

      Leah - you have to be in the 5% so those future grandchildren get to me loved by you! Being a grandparent is wonderful - one of the best things that has ever happened to me.

    • @YoungLungCancer
      @YoungLungCancer 5 วันที่ผ่านมา

      @@ScottsdaleSushi 🤍🤍🤍

  • @mattf5207
    @mattf5207 24 วันที่ผ่านมา +14

    Sending you blessings. I was going through similar issues. Not related to lungs, but my pancreas. I literally had my CT Scan cancelled the evening before I was going, because some insurance administrator said, “as a non smoker, it’s unlikely this test is needed.” I went into a rage. If I were a smoker, I’d have been welcome with no questions asked. Insanity.

    • @helentaylor7132
      @helentaylor7132 24 วันที่ผ่านมา +3

      Hopefully the doctor appealed and figured out "what to say" on the request so it was later approved! A doctor may need a brain CT scan or MRI for some reason (to check for metastasis from a separate cancer site). They think it will likely be rejected for approval, they may ask if you have headaches. If so, say yes! I didn't have brain metastasis, but did have a rather large unruptured brain aneurysm. After breast cancer treatment, an endoscopic neurosurgeon placed a stent in the brain aneurysm to prevent future rupture. Also, the breast cancer that was initially thought to be stage IV (because lung CT scan looked much worse than it actually was) turned out to be stage I. God works in mysterious ways.

    • @leahphillips2933
      @leahphillips2933 23 วันที่ผ่านมา

      So frustrating!!!

    • @cynthiameszaros2156
      @cynthiameszaros2156 22 วันที่ผ่านมา

      ​@@helentaylor7132oo

  • @larie71
    @larie71 24 วันที่ผ่านมา +4

    Amen! You are a testimony, and you have a story to share. I thank you for your bravery, honesty and just being normal and relatable. I will share your journey- keep going and spread your message. Many prayers for you and your family.

  • @rebeccahylant7695
    @rebeccahylant7695 22 ชั่วโมงที่ผ่านมา

    Wow. Not only articulate but so inspirational. Glad that she took the initiative to care for herself.

  • @breathofhopekyinc4530
    @breathofhopekyinc4530 18 วันที่ผ่านมา

    Thank you for your advocacy, Leah! We have loved watching your journey and appreciate all the awareness you are bringing to lung cancer in young adults both in Kentucky and now nation wide with your work with Young Lung Cancer Initiative! You are changing lives!

  • @JR-kz2xn
    @JR-kz2xn 24 วันที่ผ่านมา +8

    Thank you for sharing your story to help others. I wish you all the very, very best.

  • @WalkingontheEdge
    @WalkingontheEdge 5 วันที่ผ่านมา +1

    I'm so happy to see you doing well! I was diagnosed at 48 years old with stage 4 ALK+ lung cancer in 2018. Best of luck to you!

  • @ntandosekay
    @ntandosekay 24 วันที่ผ่านมา +8

    GREAT VIDEO
    Thank you for sharing your story with us. Sending you ❤& light 🌹

  • @marjilaplante9579
    @marjilaplante9579 18 วันที่ผ่านมา

    You are a true warrior and this brought out the fierceness in you! Because of your children♥️

  • @sandradalessandro2935
    @sandradalessandro2935 24 วันที่ผ่านมา +8

    You. Are. Amazing. So. Strong. Totally inspirational!! Fighting NH lymphoma two years it keeps coming back !! I. Do. Online reiki. I do meditation. Prayers. I. Do keto diet. Supplements. Vitamins. I. Absolutely agree. Get second third opinion. And definitely go to a major cancer center. I am at fox chase in Philly with access to clinical trials. Immune therapy. Etc. But. Hearing your story. Just made me feel empowered!! Thank you. And. God. Bless you. 🎀💖⭐️🌸🎀💖🌸🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

  • @ukelilly
    @ukelilly 23 วันที่ผ่านมา +4

    Thank you. I know someone who should watch this :) Best of everything for you

  • @milliesantiago5563
    @milliesantiago5563 24 วันที่ผ่านมา +3

    Thank you for sharing your story and experience. You got this.🙏❤️

  • @ruthsebastian4760
    @ruthsebastian4760 22 วันที่ผ่านมา +1

    Praying for you. It's good that you stood your ground till you got the right treatment. Kudos to you😘🤗🙏

  • @lesleynyborg7643
    @lesleynyborg7643 22 วันที่ผ่านมา +4

    Leah, thank you for your story. I was diagnosed stage 2B breast cancer last year and then during scans found kidney cancer. I'm Ok for now but worry I'm going to miss signs telling me that my cancer has returned. However, at 65 I'm going to keep on and see what this life has in store for me. I wish you the best and with each year there are advances in treatment!

    • @FrannyNan
      @FrannyNan 5 วันที่ผ่านมา

      💗

  • @lindaknight1025
    @lindaknight1025 7 วันที่ผ่านมา +4

    Thank you.i have stage 4 lung cancer it took ages to get a Dr to find I had it. I've been on immunotherapy for 2 years I am having a good result, I feel blessed.i am in Australia 🇦🇺 God bless

    • @FrannyNan
      @FrannyNan 5 วันที่ผ่านมา

      💖

    • @annelbeab8124
      @annelbeab8124 วันที่ผ่านมา

      All the best & enjoy life ❤

  • @OfficeSpaceRedStapler
    @OfficeSpaceRedStapler 24 วันที่ผ่านมา +31

    Amazing story. FWIW, my wife had advanced stage 4 met breast cancer (bones/lymph/liver/lungs/brain). Super long story short, after trying everything (conventional and alternative) we combined an immune checkpoint inhibitor (low single digit success rate used standalone) with fasting, very high dose melatonin, whole plant based diet and attention to gut/microbiota health and in 5 months she was completely cancer free per CT/PET/MRI and 2 Signaterra genetic tests for the first time in 10 years. All the above mentioned adjuncts have lots of science behind them and are very synergistic. If your Dr's are not able to offer additional options you may want to investigate what we did. Best of luck.

    • @OfficeSpaceRedStapler
      @OfficeSpaceRedStapler 24 วันที่ผ่านมา +8

      To add a little detail. Again, long, long story short. After 10 years of research (pubmed/NIH) my wife and I came to the realization that cancer is not about the cancer cell but about the immune system and gut microbiota. Everyone has cancer cells present in them. The immune system and microbiota are the systems that keep cancer in check. When they fail cancer can grow uncontrolled. AIDS (broken immune system) patients who die as a consequence of AIDS most often die of cancer. Someone with cancer is not much different than someone with AIDS. It's just not called AIDS. There is now ample evidence (both mainstream and alternative) of how completely effective the immune system can be as compared to chemo in eradicating cancer if it can be sensitized to the cancer and the cancer defense mechanisms can be degraded enough to facilitate immune involvement which is what happend with my wife. Chemo unfortunately impairs immune function and degrades the microbiome making a full resolution more difficult to achieve.

    • @crystalgarry5873
      @crystalgarry5873 24 วันที่ผ่านมา

      Thank you for spreading this info. Many will tell me off of certain sites for sharing serious science backed natural alternatives to killer disease including cancer. But the science is there. My daughter knows I’m not doing chemo. Unfortunately the $$$ involved in doing serious protocol with nutrition, supplements, therapies etc, is not for broke, bedridden, unemployed people w no medical insurance- so, don’t get cancer in America, without family, spouse or inheritance to chip in💰😢

    • @shantishanti1949
      @shantishanti1949 24 วันที่ผ่านมา +1

      Thank you for posting this. I will certainly look into it further for my own health. Was the Hugh dose melatonin to ensure good sleep ? How long was the fasting - intermittent (16 hrs plus ) or long term 4 days + etc
      So very sad this lady did not make it - deserved to do so. 🙏🙏

    • @pm2886
      @pm2886 24 วันที่ผ่านมา

      ​@@OfficeSpaceRedStapler That's what immunotherapy is for.

    • @OfficeSpaceRedStapler
      @OfficeSpaceRedStapler 24 วันที่ผ่านมา

      @@pm2886 Yes, but it unfortunately does not have a high success rate when used standalone. The body has to be in the proper biochemical state to give it the best chance of working. The scientific lit bares this out but few oncologists are aware of this. Ultimately it is the immune system that is the best answer to a full and long lasting recovery.

  • @alexanderconsole5796
    @alexanderconsole5796 17 วันที่ผ่านมา

    You're amazing, your story was inspirational and you are a warrior! You are in my prayers. God Bless you and your family.

  • @debchase3330
    @debchase3330 วันที่ผ่านมา

    So proud of you for advocating for yourself and others! ❤

  • @renataloren2384
    @renataloren2384 24 วันที่ผ่านมา +4

    You are very strong lady and that something to be proud of. I am wishing you good health and a long life and I hope one day they find a cure for this cancer. It seems to be all too common lately, especially in the younger generation. May God bless and God you and your family always.❤❤❤❤❤

  • @Denise-yj3se
    @Denise-yj3se 14 วันที่ผ่านมา +2

    This unfortunately happens too often. I lost a friend at 47 years old from metastatic cervical cancer. Routine Pap smear kept coming normal but her doctor did believe that something was “off”. Several months later, she was diagnosed with metastatic cervical cancer. Advocate for yourself and your loved one’s health

  • @danabishop5506
    @danabishop5506 5 วันที่ผ่านมา

    You really did the right thing, never let them dismiss you . Thank God it was not SCLC, it took my friend in 2 mos.. .as an RN, in critical care, I have had to stand up to physicians for my patients well being, family members also, and friends..you really can be in uncharted waters w/o some knowledgeable at your side! Hope you live a long life and a happy one! ❤

  • @TrishErwin-hu4jo
    @TrishErwin-hu4jo 24 วันที่ผ่านมา +6

    Welcome to the world of modern medicine. So sorry to hear this has happened to you & your family. Gaslighting, being dismissive, not believing their patients & lack of coordination of care.

    • @Ceerads
      @Ceerads 23 วันที่ผ่านมา

      Yet modern medicine is helping people who’d never have survived had they had the same cancers many decades ago. Yes, doctors are harried and some dismiss their patients’ fears when the doctors shouldn’t dismiss them. And this happens to women more than men. But there’re a lot of great doctors, too. And nurses and techs. And medical researchers!

  • @NatureEllaJ
    @NatureEllaJ 18 วันที่ผ่านมา +1

    🙏🌸 Praying for complete healing ✨ Thank You for sharing your story ✨

  • @kendallansell4884
    @kendallansell4884 19 วันที่ผ่านมา +1

    You are amazing Leah. Such a role model.

  • @blankblank5524
    @blankblank5524 19 วันที่ผ่านมา +1

    Nurse Practitioners are fabulous!☺️We send huge hugs to you and your family,from Australia!🐨🤠🌻

  • @rachscallywag7610
    @rachscallywag7610 24 วันที่ผ่านมา +17

    Yesterday I was diagnosed with stage 4 non-smoking lung cancer. I thought I had asthma, thankfully my GP sent me for a routine x-ray. My advice is - if you haven't had an x-ray - always insist on getting one. It is inspiring to hear Leah's wisdom, and thank you for sharing your thoughts on statistics. Statistics are hideous and just frighten you. Thank you for illuminating a realistic and positive path ahead. Wishing you and everyone going through this strength, positivity, and love. xxx

    • @anglophils645
      @anglophils645 6 วันที่ผ่านมา +1

      There is no such thing as "non-smoking lung cancer". Non-small cell lung cancer affects both smokers and non-smokers. There are no types of lung cancer that affect only non-smokers. Lung cancer is the number one cancer killer of both men and women, and kills both smokers and non-smokers.

    • @FrannyNan
      @FrannyNan 5 วันที่ผ่านมา +1

      💗

    • @annelbeab8124
      @annelbeab8124 วันที่ผ่านมา +1

      Much energy & joy in life to you to deal with this issue ! All the luck in the world!

  • @sueeagan9037
    @sueeagan9037 16 วันที่ผ่านมา +1

    Appreciate for sharing your medical condition.
    I noticed you did not cough during this vide
    so impressed with your recovery.. Thank you for the inspirational testimony.

  • @lindalivingston2081
    @lindalivingston2081 9 วันที่ผ่านมา

    You are very brave! Thank you for sharing your story. I will pray to God for you!❤

  • @AmyThomas74
    @AmyThomas74 24 วันที่ผ่านมา +1

    Thank you for sharing your story. You will be that5%. Sending you love and light

  • @cortinapeters553
    @cortinapeters553 8 วันที่ผ่านมา

    Thank you for this... I appreciate you and this was the message I never knew I needed. Many blessings to you :)

  • @jerryd9122
    @jerryd9122 15 ชั่วโมงที่ผ่านมา

    Thank You for your story. Many of us would like to be as strong as you are

  • @patiwatson6362
    @patiwatson6362 24 วันที่ผ่านมา +5

    Congratulations to you. Cancer Warrior. I am a stage 2B NSCLC survivor/ ALK+ gene. Diagnosed in 2020 at the age of 61 Not a smoker..Had my lower right lung removed, and then 4 rounds of chemo (alimta and cisplatin) Like you, I'm a runner. I had NO symptoms. Mine was found on a CT scan of my colon. I have a wooden white ribbon, too! Yes, you must be an advocate for yourself. Stay strong, and F*CK Cancer.

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      I hope you are doing ok! Leah is one of our co founders. We are trying to spread the word about lung cancer in those without traditional risk factors.

  • @verep1653
    @verep1653 2 วันที่ผ่านมา

    May God bless you with the time that you want and the life you deserve. My heart goes out to you and your family.

  • @jessiedoggiegirl
    @jessiedoggiegirl 10 วันที่ผ่านมา

    What an intelligent woman. One has to be their own advocate and get the help they need to ensure that they are being properly treated. Btw, one of the best therapies was hinted at in several of the pictures - their dog.

  • @luzsandoval3937
    @luzsandoval3937 24 วันที่ผ่านมา +5

    I am proud of you. Thanks for representing women well. God bless you and heal you.

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      LEAH IS A FORCE WE LOVE HER

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      @@Ceerads why are all of our comments being deleted? We are trying to support Leah and let people know where they can learn more about her story. We share updates about her regularly as she is our co founder.

    • @Sgracer857
      @Sgracer857 23 วันที่ผ่านมา

      @@Ceeradswow seems like patient story only cares about sharing the story for their own views .. saw Leah’s organization suggesting people follow for more updates on Leah.. and they deleted all the comments. Ha pathetic . Will be unsubscribing. Are you trying to bring awareness and empower patients or you just trying to gatekeep for your own views ?!! This is what is wrong with the world of advocacy. Shameful

    • @Ceerads
      @Ceerads 23 วันที่ผ่านมา

      @@Sgracer857 I saw that replies had been deleted, but I thought the replies had been in response to those who mentioned God healing someone (I thought the replies had been on the atheistic side, and I agreed with what I imagined had been written and deleted). I didn’t know that the deleted replies were inquiring about finding updates on Leah! I’m deleting my comment.

    • @Sgracer857
      @Sgracer857 23 วันที่ผ่านมา

      @@Ceerads yes Leah is a co founder of young lung cancer initiative and she shares updates about her lung cancer on their social medial platforms .. YT, IG, TikTok.. it’s great and really making a difference.

  • @OPC14
    @OPC14 24 วันที่ผ่านมา +2

    God bless. Thank you for sharing your story.

  • @7passionstar
    @7passionstar 4 วันที่ผ่านมา

    Thank you for sharing. Wishing you the best of health. ❤

  • @TerryWhetsel-mw2kb
    @TerryWhetsel-mw2kb 14 วันที่ผ่านมา

    I can’t imagine what you’re going through and what you’ve been through. I’m going to start praying for you and your husband and your children and your family that God will heal you and restore you.

  • @peggyschram917
    @peggyschram917 24 วันที่ผ่านมา +2

    Blessings to you and your family.🙏

  • @jcool4358
    @jcool4358 9 วันที่ผ่านมา

    Wishing you and your family the very best.

  • @tiffanylindfield9157
    @tiffanylindfield9157 18 วันที่ผ่านมา +6

    This is a true girl boss. 🎉❤

  • @barbarafrancis533
    @barbarafrancis533 10 วันที่ผ่านมา +1

    Completely understand. I had to fight to get my heart diagnosis. Now I am on two meds and feel much better.
    I had breast cancer in 2010. I have been in remission for 14 years. You are in my praydrs

  • @user-cz3gg7iq8p
    @user-cz3gg7iq8p 8 วันที่ผ่านมา

    I realy hope that you both get well and thank you so, so much for telling your story! Wish you you a long life! Hope that you are the one to get to 80 years old!!!! Lot's of love!

  • @Carma7227
    @Carma7227 21 วันที่ผ่านมา +1

    I hope to be half the woman that Leah is one day. What an inspiration. Keep advocating

  • @melissacicio4688
    @melissacicio4688 24 วันที่ผ่านมา +3

    I am sooo damn proud of you. I kno EXACTLY how u feel about being dismissed. Blessings baby girl. ❤

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      We are so proud of Leah too.. She is an amazing advocate. She is one of our co-founders. Young Lung cancer Initiative.

  • @mtristan4724
    @mtristan4724 24 วันที่ผ่านมา +3

    You are amazing and I admire you. ❤️

  • @KS-yp1jl
    @KS-yp1jl 23 วันที่ผ่านมา +3

    You are awesome! Rooting for you 🤞🏼🍀💪🏼

    • @YoungLungCancer
      @YoungLungCancer 21 วันที่ผ่านมา

      Leah is simply the best 💗 she is one of our co founders

  • @donnacurry166
    @donnacurry166 9 วันที่ผ่านมา

    God bless you Leah. May you live long and well ❤

  • @yyequipment6187
    @yyequipment6187 8 วันที่ผ่านมา +3

    Sounds like you had Kaiser insurance. I hope you recover fully and live a long life.

  • @everythingjen1
    @everythingjen1 24 วันที่ผ่านมา +1

    Praying healing for you!!!

  • @paulakreinberg1448
    @paulakreinberg1448 24 วันที่ผ่านมา +7

    My mother died of this, also a non smoker, given 12 months, lived three years.

    • @YoungLungCancer
      @YoungLungCancer 23 วันที่ผ่านมา

      So sorry for your loss

  • @C2C.
    @C2C. 19 วันที่ผ่านมา

    Sending you can your family positive energy and wishes for a breakthrough in treatment towards a cure.🌟

  • @patricktitters
    @patricktitters 24 วันที่ผ่านมา +1

    Well said, all the best ❤️

  • @nataliemadrigal899
    @nataliemadrigal899 24 วันที่ผ่านมา +2

    God bless you. People need to hear you. Im getting a chest MRI.

  • @norlavine
    @norlavine 13 วันที่ผ่านมา +1

    This lady has a great mind and will master her treatment and be a granny one day.♥

  • @sch728
    @sch728 24 วันที่ผ่านมา +22

    I’m always curious when seeing these stories-did you tell the doctors who dismissed you it was cancer and that they are probably responsible for the spread for wasting time.

    • @leahphillips2933
      @leahphillips2933 23 วันที่ผ่านมา +6

      Yes, I made sure that the correct people were made aware of the doctors that dismissed me, especially the pulmonologist who did the bronchoscopy and said it was just pneumonia…3 weeks later there were none mets present so clearly the cancer was there when he was looking around.

  • @cyclonemama3907
    @cyclonemama3907 24 วันที่ผ่านมา +12

    Great video with important advice for all of us. ❤

  • @Katwinser1958
    @Katwinser1958 24 วันที่ผ่านมา +4

    You are in my prayers.

  • @verasamburova6000
    @verasamburova6000 24 วันที่ผ่านมา +30

    Have you talk to the doctor who sent you home with antibiotics 5 times? It is so unthinkable that he did it to you! :(

    • @libjane6710
      @libjane6710 24 วันที่ผ่านมา +5

      I'd DEFINITELY WALK IN & SHOW HIM....He needs to learn such an IMPORTANT LESSON HERE.

    • @leahphillips2933
      @leahphillips2933 23 วันที่ผ่านมา +10

      Yes, and I left that practice and warm everyone against him when I share my story.

    • @debbyscheller2574
      @debbyscheller2574 5 วันที่ผ่านมา

      ​@@leahphillips2933Leah, I have Leukemia & in researching on line I saw Joe Tippens' story. He had lung cancer & now has "no evidence of disease"! Amazing! There is a you tube video with him being interviewed by a tv reporter. I'll pray for you today. Keep fighting🥰

  • @Ponkelina
    @Ponkelina 22 วันที่ผ่านมา +4

    Women are fobbed off far too much. Well done for never giving up and pushing. Thank you for sharing your story. I hope you make the 5%

  • @pallavisreetambraparni6995
    @pallavisreetambraparni6995 24 วันที่ผ่านมา +2

    You are so inspiring. You kept fighting to get diagnosed

  • @erbigimbi9903
    @erbigimbi9903 18 วันที่ผ่านมา +3

    I was diagnosed with stage 4 metastatic liver biliary cancer, spread to lungs and lining of abdomen. I had symptoms for at least 5 years, and thought I had been proactive, but turns out I was nowhere near the advocate for myself I thought I was. If you feel pain regularly, and develop chronic conditions make sure you at least get an MRI, or in my case a proper pelvic upper GUI ultrasound. I thought I was having panic attacks, weak at the knees, not able to draw in a full breath. Now I am on chemo treatment given possibly less than 2 years to live. Yes, I was angry with my primary physician for missing it completely for so long without proper diagnostic checks. I have had to try to move on from that and focus on wanting to live and survive.

    • @FrannyNan
      @FrannyNan 5 วันที่ผ่านมา

      💖

  • @amyspeers8012
    @amyspeers8012 7 วันที่ผ่านมา

    I have justes finished immunotherapy for stage 2c melanoma. I’m an American living in France and we have French healthcare. I cannot imagine what you have to pay for your treatments. Your family is lovely and I wish you all the best.

  • @andreasfetzer7559
    @andreasfetzer7559 3 วันที่ผ่านมา

    God bless you !!! Stay strong! I get the feeling, that the us health systhem is going down !

  • @GammyCollazo
    @GammyCollazo 9 วันที่ผ่านมา

    Wonderful story of strength and courage. Thank you so much. Stay strong and continue to help others with your message.

  • @gian19791
    @gian19791 24 วันที่ผ่านมา +11

    Being a woman patient is frustrating so sad 😞 why dr always make excuses and reason for something else 😮

  • @mbhike
    @mbhike 5 วันที่ผ่านมา

    Thankful you advocated for yourself, as did your husband. Shameful to be dismissed when a human life is on the line. Yes, everyday can be your best day. ❤