Zach's mother is inspiring to me. She was so realistic about everything and so loving, it warmed my heart! I have a type of epilepsy where I am able to live on my own as long as I take my meds. I just graduated from college and it's my dream to advocate for people with epilepsy! Zach seems like such a sweetie : )
@@ileztoerist6305No, the only strong person here was Zach, who died in 2023 without anyone ever hearing his words. Fuck his family, the boy was perfectly capable of reasoning and was treated like an infant.
This is a beautiful and carefully produced video to spread awareness of epilepsy. My son is 21 yrs. old and has Angelman Syndrome and has suffered debilating seizures since he was 1 yr. old. He'll finish his last year of high school this Fall. It's apparent the teachers who are with Zach each day are amazing, compassionate people who enjoy their job. I commend the parents and especially the siblings for being such a loving, caring family. I know all too well, it's not easy. Many blessings.
I also have epilepsy but after watching this video I just forgot my problem..... I feel so bad about this cute Zach and I pray from the depth of my heart for his health and happiness. I salute his family and acquaintances whole heartedly who are so supportive and courageous and they will surely get their rewards in afterlife if not in this world....... Love and Respect Ali From Pakistan
I'm 32 & I live home with mom, dad's passed away. I have epilepsy. Mom suffered from kidney failure 5 times in 14 months. I had my first seizure after caring for her, thank God! I mean thank God because I am glad I was in good enough shape to care for her when she really needed me. This is astounding. Thank you for creating this. Zachary, you're in my prayers.
I am 37 and was recently diagnosed with epilepsy and cluster seisures. It has dramatically effected my life. And I don't even have it bad. My heart goes out to everyone suffering. I'm sorry about your dad. My mom is on dialysis for liver and kidney failure. :(
I am truly truly sad for your loss it's very unfortunate about what you have to face alone and with your family we can just all hope and be optimistic about the future and be thankful for the littlest things hope this helped 😉😉😉😉😉
God Bless You Zach...I just was watching you and all these wonderful strong people....thank you God for allowing me to find this video today. Helps me understand some things from my own life and family.
May blessing be given by your hands and always be at your feet. Lee Anne... What a beautiful loving family you have. Blessings to your sister Jen the nurse. What an angel you are to your family. Thanks for sharing you story with us. My cousin has epilepsy. Very sever... he suffered allot until he was 18. He is a savant. Mathematics and the ability to repeat anything he reads. If he reads it, he knows the info forever. He actually help heal himself when he was 18. He still had a few a month after about a year figuring out his fats in his new ketogenic diet. But he finally took just 3 pills a day instead of 30-40 so many. His doctor was amazed and thankful he had the initiative to find some answers to help himself. He is 50 this year and down to maybe 1 or 2 a year. He was my best friend growing up! Every times I go to visit him... my grandmother would get all upset, because we wouldn’t part and talk all day and evening! Hehehehe! Epilepsy is such a tough disease. I wish Zach could eat more. I wonder if you could mixing things and be able to auto feed him. Or now that he is eating a little look into the diet. Have you heard of the Ketogenic Diet? You may have. Especially with living with Epilepsy. I send you lots of love and prayers to you and your family.
Seems like an intelligent young man trapped inside 😢. Kudos to his aunt the nurse and his therapists they really seem to know his moods and what he likes or doesn’t. God Bless.
I just said a prayer for Zack. Very handsom young man. I know God can do anything..God heals and some day Zack will have a glorified body in God's time he will go straight to heaven😀I pray for the parents. Well done you are wonderful parents.
I watched this to help understand epilepsy better and yes it did help in some ways but i think there are different cases of epilepsy. One of my best friends passed away from a seizure earlier this year but she only had mild epilepsy, you couldn't even notice it. I used to say little jokes like "oh you look like your having a seizure" or "having a coughing seizure" I never would have guessed that a year later hearing that would make me cry. I just want to say that anyone who is struggling with epilepsy to stay strong and don't give up, and even though I'm a complete stranger if you ever feel the need to talk about it with someone I'm here.
This is such an emotional story. As someone I feel very lucky that I don't have any rare sickness or anything like that . Good luck Zach! I hope one day that there will be a cure for you.
Never Give up Zach. I was diagnosed with Epilepsy 8 months old... Keep fighting Zach. There is a cure out there.. Love you Zach.. Be Strong. Sincerely Sarah Adams. A Savior of epilepsy & complex Partial Temporal lobe seizures if I can do it. Zach you can do it keep believin keep fight and don't ever give up! Your you're own warrior. Be Strong... Don't let anyone judge you, Zach you are amazing & incredible human being.. Find your voice let the world hear it. No matter what it has to say. And yes I still have seizures & wear diapers... I think people with any disabilities are amazingly smart intelligent. And wise. So I wanted to respond to this video. And say be your own superhero.. Lot's of love for you. From other warrior fighting epilepsy. Stay Strong, Stay Brave, Keep Going, Always Be You, And Above All Never Give up. 💯💯🌟🌟😀😀😀🎵🎵💜💜💞
I love the way the family feels about him and makes him feel good about who he is. I know that they're schools out there that doesn't want to do what they were doing for him and helping him he is amazing and that goes for the special education team and teachers who are willing to do anything for kids like that. They very special in my book.
I am am epileptic and watching this film makes me feel lucky to be on medication which keeps my seizures under control. I am looking to do all sorts of things to raise money for epilepsy charities to help people like zach and their families have an easier life, as well as trying to raise money for cure epilepsy. I am studying film at university in the UK and would like to make a documentary, to make more people aware and I want to interview people who may be connected to epilepsy in anyway!
i love how his brother said how everyone was telling him that zach dont understand and he like i know he does. thank u for being a great little brother. i have a li sis who was born with a brain disorder and zach reminds me of her. i love her to death and my mom goes over and beyond for her and never complains. she wasnt suppose to live 5 minutes she is 14...
I am a 10 year old, and, shockingly, I aspire to be a neurosurgeon. I actually decided about 2 and a half years ago that I would focus on epilepsy and how to cure it. I have donated over $100 (I know its not much, but every little bit counts.) to the epilepsy foundation. I hope that one day I will actually be known and overcome all of my "depressing thoughts". That's the curse of being a genius. You think WAY too much, then you get overwhelmed and then eventually die inside. At least for me. All you young people with epilepsy hold on I'l be there soon :)
Story Time I really would like to help donate can you tell me where I can donate to as well as maybe send some supplies and activities? And thank you for sharing your post. 🌷🌷
Keep on going in that route! I had brain surgery for my Tourette's. I was given a year to live 6 years ago, and with DBS (Deep Brain Simulation) I've been given my life back again!! Movement disorders in general need attention. Thank you for what you're doing, and keep doing it!!
Very moving documentary and I wish CURE all the very best in their research into Epilepsy. This is a disorder which requires much funding and research. Zach is around a lot of loving family and caring people and I wish them all the best.
his family is really supportive of him i love the fact that they do evrything to give him a normal life,this should be an example to people everywhere that give up on their loves ones,remember these are our family members and we should stick with them and never give up no matter ,brain cancer can really change a person and make them something else but truth is our loved ones are still their in soul and they still have moments where they relate to us we should always hold on
The Story about Zach with Epilepsy was very moving as a child & much older i feel for Zaac in the film about Epilepsy. I feld his pain day by day. Thank you for puting this Story on Face. I got my Epjilepsy in night.
+Eileen Delany Yeah my attacks come at night to but I wake up quick when I cant breath and then I pass out whilst having an attack. do you wake up then have you're attack? - Check out my videos about personal experiences and maybe you can share yours to see if they are similar.
Thank you for posting this. I did hear of a number of cases in which epilepsy could not be managed through medication, and those suffering in such serious cases opted for neurosurgery essentially removing the part of the brain in which the seizures originated. It is an extreme measure, but apparently it has helped in greatly reducing the occurrence of seizures.
Even brain surgery isn't always effective. I have had a occipital lobe surgery, but my seizures returned after a few months. I had gone through many medications, before trying the surgery, I had 3 areas where the seizures originated from, I'm still on medications and the seizures still happen, but at least less often or agressive if I don't miss a dose (still pretty often, like one or 2 a day)
I have seen a young boy with severe epilepsy who began seizing more and more each day with no relief until he ended up on hospice, needing to be sedated just to stop the seizures. Every time they lightened up the sedation, he would just have seizure after seizure. He passed away when he was around 10 years of age, all due to epilepsy. I know some children have been "cured" by having either half their brain removed or having the two halves of their brain separated, but that usually causes deficits in other ways. This is a disorder that has plagued humans since the time of Christ, it's about time that a real cure, or better medication, is found.
I don’t know if it’s the same one your talking but they did a dormitory but it’s an old one like in the 1980’s where the boy was dying from his epilepsy and they put him into hospice care to get him to be commutable they were trying to get his mom to see him before he past and he did past away. He has a older sister who was scared to go to school she thought he will die while she was at school
Me Becky I agree 190% and I have had Epilepsy since I was 4 years old. I have multiple disabilities and I was born at 24 weeks early. The only thing is the seizures only happen when I hear the sounds of shot guns or smell 👃 crack and cocaine. 😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭 But I did find out when I was ten years old I was severely allergic to the smells of crack and cocaine. I can’t be anywhere near the smells. I have Cerebral Palsy as well as other life threatening disabilities.
I have quite severe epilepsy, and this intrigued me. I can have anything up to 20-30 seizures a day (despite medication), as well as having mild autism. I'm a couple of years younger than Zach, and have had epilepsy since I was a toddler, yet I function as normally as possible. I have some mild cognitive impairments and my speech is slightly affected, but I can't fathom how Zach's seizures have affected him so. I pray for him and hope he is doing well, much love and all the best for you x
I have had epilepsy for almost 10 years but now since the nueropacemaker was put in my brain I have been slowly recovering. But Zachary has it hard. I used to have horribly hard seizures but I can empathize with him and I'm glad there is someone out there who knows what its like but I wish he was well.
MY gf has epilepsy and luckily aren't too bad. First time I saw one happen in front of me I thought she was in pain and like cried my eyes out... It is not anything to wish on another person. Last night some kid on a ride back from after prom on bus was flashing lights and going stop stop i epileptic i seizure, making fun of it. I got up and punched them in the face, they said it in front of my girlfriend as ignorantly as possible. Hope epilepsy awareness gets out more.
I am a 17 year old, and, shockingly, I aspire to be a neurosurgeon. I actually decided about 2 and a half years ago that I would focus on epilepsy and how to cure it. I have donated over $ 100 ( I know it’s not much, but every little bit counts.) to the epilepsy foundation. I hope that one day I will actually be known and overcome all of my deppressing thoughts. “ that’s the curse of being a genius. you think way too much, then you get overwhelmed and then eventually die inside. at least for me. all you younger people with epilepsy hold on I”I be there soon:)
Thank you so much for sharing your video. I did not know all of this about epilepsy and I am thankful for your education in this horrible condition. Wishing you and your family all the best in the future. Isaiah 35:5&6: At that time the eyes of the blind ones will be opened, and the very ears of the deaf ones will be unstopped. At that time the lame one will climb up just as a stag does, and the tongue of the speechless one will cry out in gladness.
That school is amazing!! My high school didn't have anything close to this for our special kid's. They just sat in a room with a teacher and they had therapy classes but not even close to everything this school had. I wish every school had tools like that and his teacher's love him. Even the one's who aren't his aunt. You can just tell... I know this was years ago but I would love to know how he is doing today in 2021 and if he's still trucking on... God bless him...
Thanks for sharing. this is a really touching story. I have Epilepsy and its the worst feeling ever when I have attacks . Iv'e only recently Opened up about my own personal experiences and everyone is welcome to watch them. Its not like zach's but has made me see the world in a different way from when I first had my first epileptic attack when I was 19 im now 36.
Prayers. Please do me a fav and stop treating him like a child, he's 19, stop talking about him in front of him but address him directly as an adult. Let him swim 7 days a week if possible & see a chiropractor. Talk to him not around him, I remember the things people have said or things they have done most while in seizure or coming out of one. He needs positive hope that he can do it himself, it may be a struggle but he'll fight like hell for it. I hated being talked to like I didn't get it.
alright i kind of cried at the end not because i felt absolutely heart broken for him, he's a trooper, but its like, i was split between "i hope you get better, you are awesome" and "this is so sad"
For somebody that has epilepsy this touches me i have had seizures since the age of 6 and i am 37 now with 2 beautiful kids both boys now i haven't had a seizure for 4 years now but this beautiful young man Zach is a warrior i feel for the mom and dad i know what they go through my youngest son also has had seizures we both have the absence seizures and grand-mal and there really does need to be more research on all seizures even the none epileptic ones cause until you see your child go through it or go through it yourself no one can understand what its like seizures is no laughing matter they hurt i can't describe how painful it is coming out of one the pain is that bad but to the family of Zach and to zach himself never give up never let the seizures control you know that you are so strong and so special you are God's special angel and to the family know there is hope know that you may not get the answer to why but know its not y'alls fault mom this is to you as a mother myself i know you blame yourself and wonder if you did anything to cause this but hear me you did nothing wrong you ain't to blame i see in this video that you do everything to care for your family i can tell you are a great mom so know that this isn't your fault I blamed myself for my son's epilepsy and sometimes i do still but i did everything right while pregnant with him unfortunately this happens now my son is fine now but i still have that fear know that God is seeing how much you and your husband take care of your family and i am sure he is proud and i also can tell that Zach loves you keep your head held high and stay strong hope you have a beautiful blessed day and your family is beautiful ❤❤❤
That being said don't take it personal just take it from experience. I get frustrated when I can't communicate & have no control but am extremely great ful for what I do have. Let him make his own decisions regarding whether or not he wants meds, how much swim etc. he is lucky to have a caring & dedicated family such as you. Stay strong & embrace each other we all have a journey. I have had over 25 grand mals in my life, I've managed in my own way, I am 1 of 7 in my family with epilepsy.Advocate
My mama has this....and she’s had it since she was five fell off a bunk bed and the meds she was on back then....She was on 13 pills a day she was always foggy in her head and school was hard for her kids called my mama a freak all kinds of horrible things she’s now 62 and my mom has been seizure free for a long time I hope research becomes a thing it is much needed I was 11 when I seen my first one and I thought my mama was dying she just got out of the hospital she almost died from kidney failure....it scared me to death that’s when I found out she had epilepsy she had to tell me what it was.....I hurt for this boy I’m greatful my mom didn’t have it this bad
She clearly needs therapy and support herself. This isn't easy for anybody, but to brazenly complain about having to change his diapers right in front of him angered me tremendously. Everyone else is giving information on his case and she's on here trolling for pity party attention. You can feel her hurting, but her snide remarks engendered antipathy rather than empathy for her. Without comment near the end that she'd do what she could to take care of him herself so he wouldn't need a group home, I'd have guessed her divorce papers were already in and she'd made her plans to escape within the next couple years.
@@ameliagraymark3613he has the mental capacity of a kid and probably doesn’t understand certain things it’s not abuse I’m autistic and sometimes people have to talk to me in a different way for me to understand
The one thing you don't do from seizures is heal...it is a condition that will be with you all your life and the best thing to do is find the best anti-convulsant that will hopefully control most of them. There's so many reasons, issues, physical diseases, medications etc that can cause seizures, so treatment is what a person lives with.
I felt bad his Mom talked so down right in front of him about kids his age going off to college and university and going to bath and beyond and in her words and in such a crappy tone about having to buy diapers and formula. I can understand how she would like to be like the other Moms but she isn't so she's had his life time to accept that. He does have feelings and emotions like anyone else. Don't talk him down in front of him. What a mean and selfish thing to do. The poor kid has feelings!!
Chris Thornton I know right u never know he wants to talk but cant hes normal in his head i wanna be hes friend cuz i also felt like a baby they treat me like a kid.. and tell him that he is his age. But again im far away.
Shannon Engeland how about you or she live a day in his life? Did Mom listen to her pediatrician, did she make sure he had all his vaccines, none of these videos bother to disclose that information.Every day more children and elderly have Epilepsy, the two highest recipients of vaccines
plus she just threw all of us with epilepsy under the bus by saying it was our fault there was no research because we are too afraid to admit we have it. that stigma is real. very real. but the research component is on doctors,not patients.
He looks so depressed and annoyed. When she said “are you snarling Zack?” He side eyed her. He seems like he’s normal in his head. Feel so bad for him.
sorry, the way she says "19 and still wearing diapers" at 2:08 is a little rude, like it is his fault he is in diapers... i'm sure if he had a choice and control he would not be
I have epilepsy in the Temporal Lobe, watching this video makes me feel fortunate my condition is as bad as poor Zach here. I came to this video mainly because I am about to have a son, and I was planning on naming him Zach as well.
only half way through the video, and it has me so sad because i miss the students from key center sooo much. the switches and symbols makes me remember my students so clearly.
Please learn to talk to him like a normal person. He is 19 now probably 20 or soon to be. Don't talk to him like a baby, talk.fo him as a person, he looks very upset through half of the video and it makes.me.upset
xxlovelaughlivexx20 I agree so much it made me furious when they called him a ragdoll ! My son is very similar but not near as bad and we talk to him like he is a normal 5 yr old because he IS!!
Wow, I really relate to Zach in this video--being a "special case" epileptic, and all. I TOTALLY agree with Connor when he mentions that Zach is more than just a boy in a man's body. What I personally experience after a seizure is more complex than that, despite the temporary memory loss, etc. Keep on keeping on, epileptics ;)
My brother had seizure that lasted about 30 minutes and everytime I saw my brother have a seizure it broke me. But to see the worse causes of what could happen made me realize that he's not the only one who really needs help but he got his surgery and he's been seizure free for at least a month now and I pray for zack and his family. I hope he fights on. Cause he's the real soldier.
Epilepsy is strange. I had my first grand-mal seizure when I was 15 yrs, in 1979. It was never explained. I had them off and on through my adult life. I crissed crossed neurologists back and fourth as to whoever my health insurance could afford. Never finding a completion. I tried dialantin, beroka, keppra. Niether seemed to work well. Frustration came to be fighting legalities with my drivers license, and the State of Texas. None ever seemed to work. I actually asked a current neurologist face to face, and he said that I didn't have epilepsy. Word for word, he looked at me and claimed that I had a "condition". BS! I will continue these words here. I am honored to be able to speak here. I am 54 now. I may have one seizure per month now, as an adult. When I was 52, I told my doctor to take a hike. I discontinued taking my keppra, I lossed my job, insurance, ect. I may have a seizure per 2 months now, without taking medication at all. Continue your care for your daughter, and your love. I will continue in the future. Jerry Scott.
Besides brain injury, tumor, allergic reaction and neurological disorder caused by injury or accident. If you have none of that, then it is psychological, getting overstressed or overly anxious. More than likely you didn't take good care of yourself mentally and emotionally, you should perhaps see a therapist or psychologist.
Thank you to the brother who accepts and talks to his older brother. the more words in normal conversaion he hears the more he will come to understand. This is how children learn languages. Music will also help this as the lyrics to the beat may help him learn language.
May I say a big Thank You for sharing this link on facebook on the story on Epilepsy. We need more films to show People Who have Epilepsy all over the World. Their are lots of People All over THE REP OF IRELAND WITH EPILEPSY PLEASE BRING ON MORE STORY FROM PEOPLE WHO HAVE EPILEPSY. I have Epilepsy as child. I got a lot of them When I was 13 my Dr told me I have Epilepsy I get them in my Sleep When I get one Can.t come out of it on my own. My Dad got me out of them all. I don.t get any Wringing to when I am going to get Epilepsy in my Sleep.
I was dignos with Epsispy since age of 15. As of right now I have been Siezure free for more than 30 years and been off the Medications more than 15 years.
this is so sad but he is very cute, and im glad his brother and family is supportive i hope god gives him a chance gives him the cure to be normallly functioning,
What about all the other people with epilepsy that nobody can tell has it? She says he is the more severe case, but nobody knows what the less severe are. We need more information out there.
I have a "less severe" case of epilepsie. You can't really even tell when I'm having a seizure. There a all different types of seizures ! Its different for everybody. Some are visible some aren't. ALOT of children who have lots of difficulties in school and who are often considered as bad students or even stupid probably have epilepsie. I can tell you from experience that school life SUCKS when you have epilepsy. The problem id that in cases where you can't see the seizures they aren't taken as seriously by teachers who arent well informed and the children can suffer greatly from this because they feel stupid and don't believe they can make it in school. That is why I think that people need to know more about epilepsy and different cases than they actually do.
I have a low degree of epilepsy myself. Admittedly though, I don't tell many people due to the lack of knowledge and conclusions that people who knew I have it and didn't know anything about it have jumped to such as "he is not all there mentally" or "he cannot be like anyone else out there." The unfortunate part of it all, though, is it doesn't increase awareness of it which keeps many people jumping to these conclusions so it's kind of a no win situation.
It's the same here. I'm currently working on a school project right now and no one really lets me join in because I'll repeat things they've already talked about because I "wasn't there" while they were talking about it. They believe that I wasn't actually listening to them. It's really difficult to follow class sometimes and people usually don't understand why I'm so lost. You can explain it to them but no one really think much of it. They also tend to not remember. Even though I know I'm "sick", I can't help feeling stupid sometimes.
Sounds like you have Absence Seizures a lot. I get them at periods throughout the day and they make me miss out on things teachers say. You're not stupid, you're still capable of being even better than those ignorant classmates and as long as you know that, nothing else matters.
Touched to pray for Zach and the family. So good to see y'all workin together. I am sure it has been thought of or done but, with his love of music, would he enjoy a keyboard?
i just cried when i saw this as i no what my parents do for me nobody should go through this even though i dont understand the whole thing why i went through it and had it my self it scares my parents and myself its all new to me sometimes i blurt out stuff and my either my mum dad say u said this and i say i didnt as i dont rember anything of it but what i must say i send my prayers and love to Zach and i want him to no what others went through .we are normal humen beings and its not our fault
Exactly, I believe that with severely disabled people, you may need to simplify how you talk. As in asking yes no questions or multiple choice questions, that helps alot of people process what is being said and then to answer. You might need to use basic and simple words, but you don't have to talk to them in that baby voice.
This child has an amazing network of support. Raising special needs kids is hard, getting services is hard, I am jealous of this families setup and i know it all comes down to how hard they fight. This is a hard life this mom leads, and she clearly does a ton for her child. Could the way they talk annoy him? Maybe... But I raise a nonverbal child, and let me tell you, while they can't speak they sure can make their feeling known if they don't like something. You can see it in this very video. We learn to look for cues other than words, just like you do before your baby can talk. I read 3 comments on this subject, two of them made points and opinions in a kind compassionate manner. Yours was just a baseless attack on someone you have never met.
My uncle is severely mentally handicapped. My family talk to him the same way. I don’t, I’m not perfect. Until i was 9 i was terrified of him,sadly. Anyway, my mom got custody and paid for a place for him to go. He’s there 9-5, it’s a school/job thing. Every morning we’d have breakfast, he got so happy. We’d just sit and I’d play music, which he loved. He would smile and make a noise. I found out he loved apple juice, and id sneak him a couple a day. He also LOVES car rides/ music. I’d take him on drives and his rocking annoyed me, but whatever. He’s a total sweetheart. I’m in college now, but my mom took over. I really wish people would treat them normally. They’re way smarter than we think.
As a person with an developmental Delay and epilepsy I would hate for my mom to say all my friends parents kids are off to collage be proud of what he has accomplished in school thank god it's nothing more serous yeah he made need help but everybody needs it sometime in there life and if you want to know something the way group homes are today are a lot better and the care is extremely well.
same here and I am only fifteen and the only thing that I am scared of is that I might have to use a wheel chair like him if I do have another seizure after all these years both that and also a whole lot of help from my friends that I have to go to class with because of my brain tumor both that and my dizziness
Hi ya good afternoon from the UK I'm 25 and I was diagnosed with epilepsy when I was 16 as I say I'm 25 now my aunty passed away from epilepsy when she was 16 my mum and dad told me this I have so many near misses with this illness I hate having this but I can't complain I'm so grateful that I am 25 but my ma and pa are concerned about me a lot I'm so proud of the family and their sons best of wishes from the UK
Only a loved one would say that and not mean anything by it! Humour, however, odd is a coping mechanism. The stress and obvious devotion is a sign of their love for their son.
Terrell Ryans do you still take medicine for it? I’ve been seizure free for 4 years but I still have to take medicine. My neurologist said it’d be best to stay on it. Just in case
This can't possibly be all epilepsy. and if it is, they treat him like a child even though he can probably hear and understand on a high level, right? He's probably depressed and annoyed.
I would highly suspect that this could be a complex seizure disorder with a possible chromosome abnormality. It is unusual for someone with just epilepsy to get this bad and most people can gain a certain amount of control with their seizures using medication. People with serious epilepsy syndromes have so much abnormal brain activity, they are not able to learn anything. Realistically how could they if every minute or so they are having seizure activity? I totally agree about the talking to him like a baby, I had a housemate with Idic 15 dup syndrome. We spoke to her like she totally understood us and I am sure she did most of the time.
At 71 years old, I have seizures that started 25 years ago...meds are phenytoin sodium and lorazepam. It does seem that Zach does have an underlying condition, but if he is not being treated in any way with a med, he will always be as he is. An anti-convulsant will not cure him, but don't assume that not taking one is the best way to go just because YOU don't think it's doing any good. I agree with Tman450...he's very depressed and annoyed so other avenues should be looked into for his treatment. And often it's simply not stopping a med until his head adjusts to it. Constantly changing meds are one of the worst things you can do for anyone...there is much more in a tablet than the med. If it's necessary to give intravenously, stay on the same one and adjust ithe dosage...if you just see a spark, that'd better than nothing at all.
I have epilepsy I am in a wheelchair and have ongoing seizures and after watching this makes me feel not so alone
Zach's mother is inspiring to me. She was so realistic about everything and so loving, it warmed my heart! I have a type of epilepsy where I am able to live on my own as long as I take my meds. I just graduated from college and it's my dream to advocate for people with epilepsy!
Zach seems like such a sweetie : )
ummm no she was not not even close.
@@Nightmastercool97that is what I was thinking
My sister has severe autism and epilepsy. You really care for Zach! carry on the good work.
Look like he just wants to be a normal 19 year old. Bless him.
Verry strong famylies 🎅
@Therka Marka Oh my god...I feel so so so bad :(
@Therka Marka they baby him too much.
@@ileztoerist6305No, the only strong person here was Zach, who died in 2023 without anyone ever hearing his words. Fuck his family, the boy was perfectly capable of reasoning and was treated like an infant.
He is a normal person!!!!!???
This is a beautiful and carefully produced video to spread awareness of epilepsy. My son is 21 yrs. old and has Angelman Syndrome and has suffered debilating seizures since he was 1 yr. old. He'll finish his last year of high school this Fall. It's apparent the teachers who are with Zach each day are amazing, compassionate people who enjoy their job. I commend the parents and especially the siblings for being such a loving, caring family. I know all too well, it's not easy. Many blessings.
I was in tears by the end of this video. This family is in my prayers!
I also have epilepsy but after watching this video I just forgot my problem..... I feel so bad about this cute Zach and I pray from the depth of my heart for his health and happiness. I salute his family and acquaintances whole heartedly who are so supportive and courageous and they will surely get their rewards in afterlife if not in this world....... Love and Respect
Ali
From Pakistan
I'm 32 & I live home with mom, dad's passed away. I have epilepsy. Mom suffered from kidney failure 5 times in 14 months. I had my first seizure after caring for her, thank God! I mean thank God because I am glad I was in good enough shape to care for her when she really needed me. This is astounding. Thank you for creating this. Zachary, you're in my prayers.
I am 37 and was recently diagnosed with epilepsy and cluster seisures. It has dramatically effected my life. And I don't even have it bad. My heart goes out to everyone suffering. I'm sorry about your dad. My mom is on dialysis for liver and kidney failure. :(
I am truly truly sad for your loss it's very unfortunate about what you have to face alone and with your family we can just all hope and be optimistic about the future and be thankful for the littlest things hope this helped 😉😉😉😉😉
God Bless You Zach...I just was watching you and all these wonderful strong people....thank you God for allowing me to find this video today. Helps me understand some things from my own life and family.
Such a beautiful soul...God bless you, Zachery.
May blessing be given by your hands and always be at your feet.
Lee Anne... What a beautiful loving family you have. Blessings to your sister Jen the nurse. What an angel you are to your family. Thanks for sharing you story with us.
My cousin has epilepsy. Very sever... he suffered allot until he was 18. He is a savant. Mathematics and the ability to repeat anything he reads. If he reads it, he knows the info forever.
He actually help heal himself when he was 18. He still had a few a month after about a year figuring out his fats in his new ketogenic diet. But he finally took just 3 pills a day instead of 30-40 so many. His doctor was amazed and thankful he had the initiative to find some answers to help himself. He is 50 this year and down to maybe 1 or 2 a year. He was my best friend growing up! Every times I go to visit him... my grandmother would get all upset, because we wouldn’t part and talk all day and evening! Hehehehe!
Epilepsy is such a tough disease. I wish Zach could eat more. I wonder if you could mixing things and be able to auto feed him. Or now that he is eating a little look into the diet. Have you heard of the Ketogenic Diet? You may have. Especially with living with Epilepsy.
I send you lots of love and prayers to you and your family.
Seems like an intelligent young man trapped inside 😢. Kudos to his aunt the nurse and his therapists they really seem to know his moods and what he likes or doesn’t. God Bless.
I just said a prayer for Zack. Very handsom young man. I know God can do anything..God heals and some day Zack will have a glorified body in God's time he will go straight to heaven😀I pray for the parents. Well done you are wonderful parents.
Zach is absolutely ADORABLE! He just warms my heart.
Yes he is one of the sweetest boys I have ever seen
No one should have to live like this. It really breaks my heart to see someone have to go through such a horrible quality of life
I watched this to help understand epilepsy better and yes it did help in some ways but i think there are different cases of epilepsy. One of my best friends passed away from a seizure earlier this year but she only had mild epilepsy, you couldn't even notice it. I used to say little jokes like "oh you look like your having a seizure" or "having a coughing seizure" I never would have guessed that a year later hearing that would make me cry. I just want to say that anyone who is struggling with epilepsy to stay strong and don't give up, and even though I'm a complete stranger if you ever feel the need to talk about it with someone I'm here.
+Sarah I'm sorry for your loss may your friend rest in peace
Kenny Bates thank you.
+Sarah 卌 no problem I bet your friend try to fight as hard as they could
+Kenny Bates tried I always do that XD
Thank you very much sometimes other people at my school beat me up so yeah
This is such an emotional story. As someone I feel very lucky that I don't have any rare sickness or anything like that . Good luck Zach! I hope one day that there will be a cure for you.
Never Give up Zach. I was diagnosed with Epilepsy 8 months old... Keep fighting Zach. There is a cure out there.. Love you Zach.. Be Strong. Sincerely Sarah Adams. A Savior of epilepsy & complex Partial Temporal lobe seizures if I can do it. Zach you can do it keep believin keep fight and don't ever give up! Your you're own warrior. Be Strong... Don't let anyone judge you, Zach you are amazing & incredible human being.. Find your voice let the world hear it. No matter what it has to say. And yes I still have seizures & wear diapers... I think people with any disabilities are amazingly smart intelligent. And wise. So I wanted to respond to this video. And say be your own superhero.. Lot's of love for you. From other warrior fighting epilepsy. Stay Strong, Stay Brave, Keep Going, Always Be You, And Above All Never Give up. 💯💯🌟🌟😀😀😀🎵🎵💜💜💞
Stay ✊✊✊✊✊💪💪💪💪💪 and 🤲🤝🙏
I love the way the family feels about him and makes him feel good about who he is. I know that they're schools out there that doesn't want to do what they were doing for him and helping him he is amazing and that goes for the special education team and teachers who are willing to do anything for kids like that. They very special in my book.
I am am epileptic and watching this film makes me feel lucky to be on medication which keeps my seizures under control. I am looking to do all sorts of things to raise money for epilepsy charities to help people like zach and their families have an easier life, as well as trying to raise money for cure epilepsy. I am studying film at university in the UK and would like to make a documentary, to make more people aware and I want to interview people who may be connected to epilepsy in anyway!
nazza meg.
i love how his brother said how everyone was telling him that zach dont understand and he like i know he does. thank u for being a great little brother. i have a li sis who was born with a brain disorder and zach reminds me of her. i love her to death and my mom goes over and beyond for her and never complains. she wasnt suppose to live 5 minutes she is 14...
Awesome Mother and Auntie!!👏🏽👏🏽 God Bless You All!🙏🏽❤️
This is what the world should be about. Helping. Pray for you, hope the best.
I am a 10 year old, and, shockingly, I aspire to be a neurosurgeon. I actually decided about 2 and a half years ago that I would focus on epilepsy and how to cure it. I have donated over $100 (I know its not much, but every little bit counts.) to the epilepsy foundation. I hope that one day I will actually be known and overcome all of my "depressing thoughts". That's the curse of being a genius. You think WAY too much, then you get overwhelmed and then eventually die inside. At least for me. All you young people with epilepsy hold on I'l be there soon :)
Story Time I really would like to help donate can you tell me where I can donate to as well as maybe send some supplies and activities? And thank you for sharing your post. 🌷🌷
I support you
You go do the dang thing
I belive in you buddy! You do it!
Keep on going in that route! I had brain surgery for my Tourette's. I was given a year to live 6 years ago, and with DBS (Deep Brain Simulation) I've been given my life back again!! Movement disorders in general need attention. Thank you for what you're doing, and keep doing it!!
Wow for a little kid (sorry if this sounds rude) but your hopes and dreams sound fantastic!
Very moving documentary and I wish CURE all the very best in their research into Epilepsy. This is a disorder which requires much funding and research. Zach is around a lot of loving family and caring people and I wish them all the best.
16.01 i almost cryed i mean seeing people with disabilitys but doing stuff like that he deserves a medal good on ya zach
his family is really supportive of him i love the fact that they do evrything to give him a normal life,this should be an example to people everywhere that give up on their loves ones,remember these are our family members and we should stick with them and never give up no matter ,brain cancer can really change a person and make them something else but truth is our loved ones are still their in soul and they still have moments where they relate to us we should always hold on
The Story about Zach with Epilepsy was very moving as a child & much older i feel for Zaac in the film about Epilepsy. I feld his pain day by day. Thank you for puting this Story on Face. I got my Epjilepsy in night.
+Eileen Delany Yeah my attacks come at night to but I wake up quick when I cant breath and then I pass out whilst having an attack. do you wake up then have you're attack? - Check out my videos about personal experiences and maybe you can share yours to see if they are similar.
Thank you for posting this. I did hear of a number of cases in which epilepsy could not be managed through medication, and those suffering in such serious cases opted for neurosurgery essentially removing the part of the brain in which the seizures originated. It is an extreme measure, but apparently it has helped in greatly reducing the occurrence of seizures.
This is mostly for those who have seizures starting in a specific part of the brain. Also a lot of people aren't candidates for brain surgery:/
Even brain surgery isn't always effective. I have had a occipital lobe surgery, but my seizures returned after a few months. I had gone through many medications, before trying the surgery, I had 3 areas where the seizures originated from, I'm still on medications and the seizures still happen, but at least less often or agressive if I don't miss a dose (still pretty often, like one or 2 a day)
I have seen a young boy with severe epilepsy who began seizing more and more each day with no relief until he ended up on hospice, needing to be sedated just to stop the seizures. Every time they lightened up the sedation, he would just have seizure after seizure. He passed away when he was around 10 years of age, all due to epilepsy. I know some children have been "cured" by having either half their brain removed or having the two halves of their brain separated, but that usually causes deficits in other ways. This is a disorder that has plagued humans since the time of Christ, it's about time that a real cure, or better medication, is found.
I don’t know if it’s the same one your talking but they did a dormitory but it’s an old one like in the 1980’s where the boy was dying from his epilepsy and they put him into hospice care to get him to be commutable they were trying to get his mom to see him before he past and he did past away. He has a older sister who was scared to go to school she thought he will die while she was at school
That's really a severe case of epilepsy damn
Me Becky
I agree 190% and I have had Epilepsy since I was 4 years old. I have multiple disabilities and I was born at 24 weeks early. The only thing is the seizures only happen when I hear the sounds of shot guns or smell 👃 crack and cocaine.
😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭😭
But I did find out when I was ten years old I was severely allergic to the smells of crack and cocaine. I can’t be anywhere near the smells. I have Cerebral Palsy as well as other life threatening disabilities.
The parents are so careing an loving 💔
I have quite severe epilepsy, and this intrigued me. I can have anything up to 20-30 seizures a day (despite medication), as well as having mild autism. I'm a couple of years younger than Zach, and have had epilepsy since I was a toddler, yet I function as normally as possible. I have some mild cognitive impairments and my speech is slightly affected, but I can't fathom how Zach's seizures have affected him so. I pray for him and hope he is doing well, much love and all the best for you x
I have had epilepsy for almost 10 years but now since the nueropacemaker was put in my brain I have been slowly recovering. But Zachary has it hard. I used to have horribly hard seizures but I can empathize with him and I'm glad there is someone out there who knows what its like but I wish he was well.
True
I know how epilepsy is causes people treat me differently cause of my disability and it just isn’t right
MY gf has epilepsy and luckily aren't too bad. First time I saw one happen in front of me I thought she was in pain and like cried my eyes out... It is not anything to wish on another person. Last night some kid on a ride back from after prom on bus was flashing lights and going stop stop i epileptic i seizure, making fun of it. I got up and punched them in the face, they said it in front of my girlfriend as ignorantly as possible. Hope epilepsy awareness gets out more.
I am a 17 year old, and, shockingly, I aspire to be a neurosurgeon. I actually decided about 2 and a half years ago that I would focus on epilepsy and how to cure it. I have donated over $ 100 ( I know it’s not much, but every little bit counts.) to the epilepsy foundation. I hope that one day I will actually be known and overcome all of my deppressing thoughts. “ that’s the curse of being a genius. you think way too much, then you get overwhelmed and then eventually die inside. at least for me. all you younger people with epilepsy hold on I”I be there soon:)
Thank you so much for sharing your video. I did not know all of this about epilepsy and I am thankful for your education in this horrible condition. Wishing you and your family all the best in the future.
Isaiah 35:5&6: At that time the eyes of the blind ones will be opened, and the very ears of the deaf ones will be unstopped. At that time the lame one will climb up just as a stag does, and the tongue of the speechless one will cry out in gladness.
It's so sweet that you care about him so much
Thank you for sharing this film. such brilliant carers at the school, and a truly loving family you should be proud.
That school is amazing!! My high school didn't have anything close to this for our special kid's. They just sat in a room with a teacher and they had therapy classes but not even close to everything this school had. I wish every school had tools like that and his teacher's love him. Even the one's who aren't his aunt. You can just tell... I know this was years ago but I would love to know how he is doing today in 2021 and if he's still trucking on... God bless him...
He clearly understands a lot more than they think.
Can anyone do justice to this situation? The boy died in 2023 while his human rights were violated throughout his life.
It Just Brakes my heart to see someone like this
Thanks for sharing. this is a really touching story. I have Epilepsy and its the worst feeling ever when I have attacks . Iv'e only recently Opened up about my own personal experiences and everyone is welcome to watch them. Its not like zach's but has made me see the world in a different way from when I first had my first epileptic attack when I was 19 im now 36.
mike titmuss ever try cbd?
Does this boy have a life?
Come on I've seen kids like this
im a mother with a 19 year old who has epilepsy..thank you for this
Prayers. Please do me a fav and stop treating him like a child, he's 19, stop talking about him in front of him but address him directly as an adult. Let him swim 7 days a week if possible & see a chiropractor. Talk to him not around him, I remember the things people have said or things they have done most while in seizure or coming out of one. He needs positive hope that he can do it himself, it may be a struggle but he'll fight like hell for it. I hated being talked to like I didn't get it.
Megan Padilla he seems to be getting very annoyed.
This isn't just epilepsy. I believe he also has cerebral palsy as well.
@@FancysMom28 Yup, because epilepsy can't be THAT bad for some people
Heart breaking ! Thanks for sharing
alright i kind of cried at the end not because i felt absolutely heart broken for him, he's a trooper, but its like, i was split between "i hope you get better, you are awesome" and "this is so sad"
Poor soul. My blessings go out to him
For somebody that has epilepsy this touches me i have had seizures since the age of 6 and i am 37 now with 2 beautiful kids both boys now i haven't had a seizure for 4 years now but this beautiful young man Zach is a warrior i feel for the mom and dad i know what they go through my youngest son also has had seizures we both have the absence seizures and grand-mal and there really does need to be more research on all seizures even the none epileptic ones cause until you see your child go through it or go through it yourself no one can understand what its like seizures is no laughing matter they hurt i can't describe how painful it is coming out of one the pain is that bad but to the family of Zach and to zach himself never give up never let the seizures control you know that you are so strong and so special you are God's special angel and to the family know there is hope know that you may not get the answer to why but know its not y'alls fault mom this is to you as a mother myself i know you blame yourself and wonder if you did anything to cause this but hear me you did nothing wrong you ain't to blame i see in this video that you do everything to care for your family i can tell you are a great mom so know that this isn't your fault I blamed myself for my son's epilepsy and sometimes i do still but i did everything right while pregnant with him unfortunately this happens now my son is fine now but i still have that fear know that God is seeing how much you and your husband take care of your family and i am sure he is proud and i also can tell that Zach loves you keep your head held high and stay strong hope you have a beautiful blessed day and your family is beautiful ❤❤❤
That being said don't take it personal just take it from experience. I get frustrated when I can't communicate & have no control but am extremely great ful for what I do have. Let him make his own decisions regarding whether or not he wants meds, how much swim etc. he is lucky to have a caring & dedicated family such as you. Stay strong & embrace each other we all have a journey. I have had over 25 grand mals in my life, I've managed in my own way, I am 1 of 7 in my family with epilepsy.Advocate
My mama has this....and she’s had it since she was five fell off a bunk bed and the meds she was on back then....She was on 13 pills a day she was always foggy in her head and school was hard for her kids called my mama a freak all kinds of horrible things she’s now 62 and my mom has been seizure free for a long time I hope research becomes a thing it is much needed I was 11 when I seen my first one and I thought my mama was dying she just got out of the hospital she almost died from kidney failure....it scared me to death that’s when I found out she had epilepsy she had to tell me what it was.....I hurt for this boy I’m greatful my mom didn’t have it this bad
I feel so bad for Zach. No family has to go through this.
May god lead the righteous path of freedom for zach and his family ameen
I pray that God rewards Zach and those around him greatly for this test
At least the brother understands that Zach can hear AND understand him! The mother could learn from the brother. I'm embarrassed for her.
She clearly needs therapy and support herself. This isn't easy for anybody, but to brazenly complain about having to change his diapers right in front of him angered me tremendously. Everyone else is giving information on his case and she's on here trolling for pity party attention. You can feel her hurting, but her snide remarks engendered antipathy rather than empathy for her. Without comment near the end that she'd do what she could to take care of him herself so he wouldn't need a group home, I'd have guessed her divorce papers were already in and she'd made her plans to escape within the next couple years.
@@calciumchloride710 Can anyone do justice to this situation? The boy died in 2023 while his human rights were violated throughout his life.
Rip Zachery 1990-2023 he was 33 years old love to the family
Can anyone do justice to him? The boy died while his human rights were violated throughout his life.
@@ameliagraymark3613in what way?
my thoughts to his family and to his friends
@@lucawren3338Treating a 19 year old like a baby seems like a lot of abuse to me.
@@ameliagraymark3613he has the mental capacity of a kid and probably doesn’t understand certain things it’s not abuse I’m autistic and sometimes people have to talk to me in a different way for me to understand
poor poor kid. he looks beautiful. god bless him
m. j. He isn't a baby they treat him like a 2 year old kid. He's 19.
@@FancysMom28 he's still a kid, not a 2-year old but still a big kid
Some kids have it so they ride in the wheelchair
Very touchy :( I hope he heals fast. It must be very hard on the mom. God bless him!
The one thing you don't do from seizures is heal...it is a condition that will be with you all your life and the best thing to do is find the best anti-convulsant that will hopefully control most of them. There's so many reasons, issues, physical diseases, medications etc that can cause seizures, so treatment is what a person lives with.
I felt bad his Mom talked so down right in front of him about kids his age going off to college and university and going to bath and beyond and in her words and in such a crappy tone about having to buy diapers and formula. I can understand how she would like to be like the other Moms but she isn't so she's had his life time to accept that. He does have feelings and emotions like anyone else. Don't talk him down in front of him. What a mean and selfish thing to do. The poor kid has feelings!!
Chris Thornton I know right u never know he wants to talk but cant hes normal in his head i wanna be hes friend cuz i also felt like a baby they treat me like a kid.. and tell him that he is his age. But again im far away.
@@princesslulu4933 ?? Speak English Man!
Chris Thornton live a day in this woman’s life and the then u can criticize her, GEEZ!
Shannon Engeland how about you or she live a day in his life? Did Mom listen to her pediatrician, did she make sure he had all his vaccines, none of these videos bother to disclose that information.Every day more children and elderly have Epilepsy, the two highest recipients of vaccines
plus she just threw all of us with epilepsy under the bus by saying it was our fault there was no research because we are too afraid to admit we have it. that stigma is real. very real. but the research component is on doctors,not patients.
Great film such a supportive family. My eyes hurt from crying though. :'(
He looks so depressed and annoyed. When she said “are you snarling Zack?” He side eyed her. He seems like he’s normal in his head. Feel so bad for him.
Can anyone do justice to this situation? The boy died in 2023 while his human rights were violated throughout his life.
@@ameliagraymark3613 when did Zach pass away?
sorry, the way she says "19 and still wearing diapers" at 2:08 is a little rude, like it is his fault he is in diapers... i'm sure if he had a choice and control he would not be
Yes 😍 this nice coommt I seen all day
When you have a seizure which his mom should know you lose control of bodily functions. His mom however is doing great.
That his mother his mom can whatever she can stay about her child
Are you kidding me that her son
Dude Zach is the man I'm so proud of the little brother and the mom is gorgeous I want in on this family!
I have epilepsy in the Temporal Lobe, watching this video makes me feel fortunate my condition is as bad as poor Zach here. I came to this video mainly because I am about to have a son, and I was planning on naming him Zach as well.
👍👍👍👍👍
only half way through the video, and it has me so sad because i miss the students from key center sooo much. the switches and symbols makes me remember my students so clearly.
Please learn to talk to him like a normal person. He is 19 now probably 20 or soon to be. Don't talk to him like a baby, talk.fo him as a person, he looks very upset through half of the video and it makes.me.upset
He look like if he could talk he tell them fuck off.
Fhdghrkfhnfuhufgyydhhfhdnkfhkrvjfkdbtjvhfjfhjdbjfjfjufnkgyhj
Fhchdg
xxlovelaughlivexx20 I agree so much it made me furious when they called him a ragdoll ! My son is very similar but not near as bad and we talk to him like he is a normal 5 yr old because he IS!!
xxlovelaughlivexx20 I feel sorry for that boy to be honest I am even a carer myself and I help lots of epileptic people where I work
He is probably 28 or 29 now this was made like 9 or 10 years ago
What an amazing yet emotional story. What a mom. What a family! Good luck to you all in your travels.
My cousin has epilepsy however she has not had a seizure in 20 years. I hope something can be done to help this young man with his seizures.
he ex TV to b cc
🤲🤝🙏
Wow, I really relate to Zach in this video--being a "special case" epileptic, and all.
I TOTALLY agree with Connor when he mentions that Zach is more than just a boy in a man's body. What I personally experience after a seizure is more complex than that, despite the temporary memory loss, etc.
Keep on keeping on, epileptics ;)
Good luck Zach! I wish you all the best! And hope there will be a cure some day for you!
Aleksandra Prochera
Thank you for your kind comments, Isabel. How did you learn of this film?
You should do an update it would be cool to see how he's doing
My brother had seizure that lasted about 30 minutes and everytime I saw my brother have a seizure it broke me. But to see the worse causes of what could happen made me realize that he's not the only one who really needs help but he got his surgery and he's been seizure free for at least a month now and I pray for zack and his family. I hope he fights on. Cause he's the real soldier.
Yes 🙏🙏🙏🙏🙏
I’d love to see where he is today!
Epilepsy is strange. I had my first grand-mal seizure when I was 15 yrs, in 1979. It was never explained. I had them off and on through my adult life. I crissed crossed neurologists back and fourth as to whoever my health insurance could afford. Never finding a completion. I tried dialantin, beroka, keppra. Niether seemed to work well. Frustration came to be fighting legalities with my drivers license, and the State of Texas. None ever seemed to work. I actually asked a current neurologist face to face, and he said that I didn't have epilepsy. Word for word, he looked at me and claimed that I had a "condition". BS! I will continue these words here. I am honored to be able to speak here. I am 54 now. I may have one seizure per month now, as an adult. When I was 52, I told my doctor to take a hike. I discontinued taking my keppra, I lossed my job, insurance, ect. I may have a seizure per 2 months now, without taking medication at all. Continue your care for your daughter, and your love. I will continue in the future. Jerry Scott.
Besides brain injury, tumor, allergic reaction and neurological disorder caused by injury or accident. If you have none of that, then it is psychological, getting overstressed or overly anxious. More than likely you didn't take good care of yourself mentally and emotionally, you should perhaps see a therapist or psychologist.
God Bless him, and all those around him.
Saddened to learn that Zachery passed away on December 7, 2023, at the age of 33…rest easy, sweet angel. 🙏🏻♥️
Thank you to the brother who accepts and talks to his older brother. the more words in normal conversaion he hears the more he will come to understand. This is how children learn languages. Music will also help this as the lyrics to the beat may help him learn language.
May I say a big Thank You for sharing this link on facebook on the story on Epilepsy. We need more films to show People Who have Epilepsy all over the World. Their are lots of People All over THE REP OF IRELAND WITH EPILEPSY PLEASE BRING ON MORE STORY FROM PEOPLE WHO HAVE EPILEPSY. I have Epilepsy as child. I got a lot of them When I was 13 my Dr told me I have Epilepsy I get them in my Sleep When I get one Can.t come out of it on my own. My Dad got me out of them all. I don.t get any Wringing to when I am going to get Epilepsy in my Sleep.
I was dignos with Epsispy since age of 15. As of right now I have been Siezure free for more than 30 years and been off the Medications more than 15 years.
this is so sad but he is very cute, and im glad his brother and family is supportive i hope god gives him a chance gives him the cure to be normallly functioning,
Oh my gosh I'm 58 years old and you are the only Lee Ann I have seen spelled the same way.😊
this is is a sad but touching story.I was diagnosed with epilepsy at age 3.It has been hard to handle at school and home.
And also forgot to say what a handsome guy you are...it's 1/2/18 ... Happy New Year
What about all the other people with epilepsy that nobody can tell has it? She says he is the more severe case, but nobody knows what the less severe are. We need more information out there.
I have a "less severe" case of epilepsie. You can't really even tell when I'm having a seizure. There a all different types of seizures ! Its different for everybody. Some are visible some aren't. ALOT of children who have lots of difficulties in school and who are often considered as bad students or even stupid probably have epilepsie. I can tell you from experience that school life SUCKS when you have epilepsy. The problem id that in cases where you can't see the seizures they aren't taken as seriously by teachers who arent well informed and the children can suffer greatly from this because they feel stupid and don't believe they can make it in school. That is why I think that people need to know more about epilepsy and different cases than they actually do.
I have a low degree of epilepsy myself. Admittedly though, I don't tell many people due to the lack of knowledge and conclusions that people who knew I have it and didn't know anything about it have jumped to such as "he is not all there mentally" or "he cannot be like anyone else out there." The unfortunate part of it all, though, is it doesn't increase awareness of it which keeps many people jumping to these conclusions so it's kind of a no win situation.
It's the same here. I'm currently working on a school project right now and no one really lets me join in because I'll repeat things they've already talked about because I "wasn't there" while they were talking about it. They believe that I wasn't actually listening to them. It's really difficult to follow class sometimes and people usually don't understand why I'm so lost. You can explain it to them but no one really think much of it. They also tend to not remember. Even though I know I'm "sick", I can't help feeling stupid sometimes.
Sounds like you have Absence Seizures a lot. I get them at periods throughout the day and they make me miss out on things teachers say. You're not stupid, you're still capable of being even better than those ignorant classmates and as long as you know that, nothing else matters.
That guy Chris at the school is a angel straight up props bro !!
Touched to pray for Zach and the family. So good to see y'all workin together. I am sure it has been thought of or done but, with his love of music, would he enjoy a keyboard?
i just cried when i saw this as i no what my parents do for me nobody should go through this even though i dont understand the whole thing why i went through it and had it my self it scares my parents and myself its all new to me sometimes i blurt out stuff and my either my mum dad say u said this and i say i didnt as i dont rember anything of it but what i must say i send my prayers and love to Zach and i want him to no what others went through .we are normal humen beings and its not our fault
he's not a baby but they talk to him like he is one which might annoy him... you never know he might be completely normal in his head
Jake St Ange exactly
Yeah she's kind of a bitch
Exactly, I believe that with severely disabled people, you may need to simplify how you talk. As in asking yes no questions or multiple choice questions, that helps alot of people process what is being said and then to answer. You might need to use basic and simple words, but you don't have to talk to them in that baby voice.
This child has an amazing network of support. Raising special needs kids is hard, getting services is hard, I am jealous of this families setup and i know it all comes down to how hard they fight. This is a hard life this mom leads, and she clearly does a ton for her child. Could the way they talk annoy him? Maybe... But I raise a nonverbal child, and let me tell you, while they can't speak they sure can make their feeling known if they don't like something. You can see it in this very video. We learn to look for cues other than words, just like you do before your baby can talk. I read 3 comments on this subject, two of them made points and opinions in a kind compassionate manner. Yours was just a baseless attack on someone you have never met.
My uncle is severely mentally handicapped. My family talk to him the same way. I don’t, I’m not perfect. Until i was 9 i was terrified of him,sadly. Anyway, my mom got custody and paid for a place for him to go. He’s there 9-5, it’s a school/job thing. Every morning we’d have breakfast, he got so happy. We’d just sit and I’d play music, which he loved. He would smile and make a noise. I found out he loved apple juice, and id sneak him a couple a day. He also LOVES car rides/ music. I’d take him on drives and his rocking annoyed me, but whatever. He’s a total sweetheart. I’m in college now, but my mom took over. I really wish people would treat them normally. They’re way smarter than we think.
This is heartbreaking 💔 the parents are so dedicated it’s good to see
The parents are practically violating his right to be treated with dignity and not like a newborn.
I pray God helps you, You are such wonderful parents to Zach. Bless you, and stay strong.
Do you have an up-to-date 2018 see how he's doing?
he is doing great he is actually next to me
@@Selui.. i would like to see that.
@@TheLCEML ok
@@TheLCEML but how
@@Selui..how???? The real question is how come your lying he passed away a couple months or years ago RIP Zach
As a person with an developmental Delay and epilepsy I would hate for my mom to say all my friends parents kids are off to collage be proud of what he has accomplished in school thank god it's nothing more serous yeah he made need help but everybody needs it sometime in there life and if you want to know something the way group homes are today are a lot better and the care is extremely well.
what a touching story i feel this needs to be more well known
Thank you. Please share this link with friends =)
Christian de Rezendes this is really sad but to see a kid like him to succeed in life is heart warming
kq24985 I think Eplepisy is not for me
kq24985 7
i wish i could take his pain away. God bless him.
im 11 and I have epilepsy I'm two years seizure free
same here and I am only fifteen and the only thing that I am scared of is that I might have to use a wheel chair like him if I do have another seizure after all these years both that and also a whole lot of help from my friends that I have to go to class with because of my brain tumor both that and my dizziness
is why
keepcalmfightepilepsy 85 do you use cbd?
aw this comment made me smile i hope youre still seizure free!❤
keepcalmfightepilepsy 85 Congrats
Hi ya good afternoon from the UK I'm 25 and I was diagnosed with epilepsy when I was 16 as I say I'm 25 now my aunty passed away from epilepsy when she was 16 my mum and dad told me this I have so many near misses with this illness I hate having this but I can't complain I'm so grateful that I am 25 but my ma and pa are concerned about me a lot I'm so proud of the family and their sons best of wishes from the UK
Only a loved one would say that and not mean anything by it! Humour, however, odd is a coping mechanism. The stress and obvious devotion is a sign of their love for their son.
I'm 33 and have epilepsy. I had my last seizure when I was 18. I've been seizure free for 15 years.
Terrell Ryans do you still take medicine for it? I’ve been seizure free for 4 years but I still have to take medicine. My neurologist said it’d be best to stay on it. Just in case
My heart goes out to Zach and his parents from the depth of my soul my prayers be with you may God strengthen you
This can't possibly be all epilepsy. and if it is, they treat him like a child even though he can probably hear and understand on a high level, right? He's probably depressed and annoyed.
I would highly suspect that this could be a complex seizure disorder with a possible chromosome abnormality. It is unusual for someone with just epilepsy to get this bad and most people can gain a certain amount of control with their seizures using medication. People with serious epilepsy syndromes have so much abnormal brain activity, they are not able to learn anything. Realistically how could they if every minute or so they are having seizure activity? I totally agree about the talking to him like a baby, I had a housemate with Idic 15 dup syndrome. We spoke to her like she totally understood us and I am sure she did most of the time.
At 71 years old, I have seizures that started 25 years ago...meds are phenytoin sodium and lorazepam. It does seem that Zach does have an underlying condition, but if he is not being treated in any way with a med, he will always be as he is. An anti-convulsant will not cure him, but don't assume that not taking one is the best way to go just because YOU don't think it's doing any good. I agree with Tman450...he's very depressed and annoyed so other avenues should be looked into for his treatment. And often it's simply not stopping a med until his head adjusts to it. Constantly changing meds are one of the worst things you can do for anyone...there is much more in a tablet than the med. If it's necessary to give intravenously, stay on the same one and adjust ithe dosage...if you just see a spark, that'd better than nothing at all.
Tman450 exactly!! Heck I have epilepsy but I don't act like that.
This is a severe case of epilepsy and due to the seizures and how constantly he gets them have caused him brain damage
I doubt it you could punch that guy in the face and he's just slump over he's one notch above vegetable status.
I wish he gets well soon. 🙏🏻
Zach did really good in the water and on his bike 🙏🏾 I have Epilepsy also
My favorite video on this channel.
My favorite videos on this channel.