This was very informative. I missed the live and was happy to see the link on your most recent newsletter. It prompted me to watch. I was diagnosed in 1998 with celiac disease and I have pernicious anemia for life. I give myself a B12 injection once a month. Although there was no mention of this in your live, I feel I should probably address this with my GP as a follow up.
I took iron supplements and though my iron level was too high, my ferritin only raised from 19 to 25. How can I raise my ferritin without raising my iron levels further. Am I missing something?
Thx for this. Had bloodwork last week and told I have iron deficient anemia. Ferritin level 33. Sadly, I have been able to go back to historical laboratory data dating back to December 2016 and see that my Ferritin has been low as long as 8 years ago. In 2021 my Ferritin was 11!!! 9 separate blood tests over the past 8 years showing iron deficient anemia. This angers me because I’ve always been tired. I was told it was chronic fatigue, depression, etc. As a teen I was diagnosed anemic. I was diagnosed with Celiac Disease in 2020 and have adhered to a strict gluten-free diet since then. (I am 47 years old.) Sad I’ve had to suffer this long thinking I was a hypochondriac going to the doctors all the time with no answers received. I have tried iron supplements over the years and they always rip my guts apart. I started Feramax yesterday and I’m already paying the price. I just ordered a Heme Iron Supplement so will see if that is more gentle. And I know Vitamin C/Absorbic Acid helps with absorbing the iron. I will call my GP tomorrow and request a follow-up appt to discuss iron infusions to get my numbers back up. Maybe my hair will grow back too.
For the Dunk… brand of GF mixes - many if not most of them have added dairy already in the mixes - so unfortunately with the high level of people with Celiac that also have issues with lactose or dairy - it’s not even a choice to choose those mixes, unfortunately!
I've been diagnosed celiac since 2013 and eating a strict gluten free diet. Unfortunately my iron has been horribly unstable and I'm taking iron suppliments. It's been over a year now and my iron is very slowly going up. I'm beyond frustrated.
i was diagnosed with low b12 after having exacerbation in panic attacks and MS like symptoms, was bought on by a long-term vegan diet. b12 is essential for brain health and a deficiency can lead to mental and neurological impairment
Before my Celiac diagnosis I saw a neurologist in 2016 because of balance issues and tremors. A couple falls-I was 40 years old at the time. She did an MRI and ordered a lumbar puncture to see if I had MS. It was negative and the neurologist didn’t investigate further. In hindsight, it was gluten-ataxia. Ferritin at that time was 23. I’ve always had a lot of neurological symptoms, in addition to GI issues in relation to my Celiac Disease (diagnosed in 2020).
@@CCACeliac Yes. I have been tested lately. I have normal iron levels, subclinical hypothyroidism with hypercholesterolemia, hyperhomocysteinemia, low folate with b2 and vitamin d and fatty liver. A real mess ( I was diagnosed with metabolic syndrome last year). Is this a thyroid dysfunction ( ldl) or insuline resistance?
@@angelfreedom911 Unfortunately we cannot provide personalized medical advice. We recommend approaching your main healthcare provider for personalized advice
Yes, you can treat anemia while on a gluten free diet. Here are some more resources so you can gather some more information th-cam.com/video/RJoQ1zEy80o/w-d-xo.html
Hi April, you should start by seeing your family doctor to help with low iron. They can prescribe supplements to try and other methods to help! Thanks for watching!
@@CCACeliac I can't absorb iron digestively because of my celiac. We tried diet and supplements until I got into the triple digits of iron supplements and my iron never went up after years of trying I ended up getting an iron infusion
@@apriljohnson9614 You may want to consider the iron shots. It's best to consult with your family doctor or your gastroenterologist for advice moving forward. We hope you can get those levels up again! It can feel so exhausting when they are low. Best health to you!
I answered my own question. Iron injections can be administered by intramuscular injection. Being able to self-inject may be a possibility provided no allergic response from supervised injections.
Hi Carol, unfortunately we are not permitted to provide personal contact details. If you want to look up Dr. Scully in Newfoundland & Labrador you are more than welcome.
Johan from south africa
This was very informative. I missed the live and was happy to see the link on your most recent newsletter. It prompted me to watch. I was diagnosed in 1998 with celiac disease and I have pernicious anemia for life. I give myself a B12 injection once a month. Although there was no mention of this in your live, I feel I should probably address this with my GP as a follow up.
Hi Lynn, thanks for sharing! We are happy this information could help guide you.
Hi there - are you still hosting new sessions. Thank you - Veronica from Nova Scotia
Thank you for this information- very helpful!
I took iron supplements and though my iron level was too high, my ferritin only raised from 19 to 25. How can I raise my ferritin without raising my iron levels further. Am I missing something?
Thx for this. Had bloodwork last week and told I have iron deficient anemia. Ferritin level 33.
Sadly, I have been able to go back to historical laboratory data dating back to December 2016 and see that my Ferritin has been low as long as 8 years ago. In 2021 my Ferritin was 11!!! 9 separate blood tests over the past 8 years showing iron deficient anemia.
This angers me because I’ve always been tired. I was told it was chronic fatigue, depression, etc. As a teen I was diagnosed anemic. I was diagnosed with Celiac Disease in 2020 and have adhered to a strict gluten-free diet since then. (I am 47 years old.) Sad I’ve had to suffer this long thinking I was a hypochondriac going to the doctors all the time with no answers received.
I have tried iron supplements over the years and they always rip my guts apart. I started Feramax yesterday and I’m already paying the price.
I just ordered a Heme Iron Supplement so will see if that is more gentle. And I know Vitamin C/Absorbic Acid helps with absorbing the iron.
I will call my GP tomorrow and request a follow-up appt to discuss iron infusions to get my numbers back up. Maybe my hair will grow back too.
Very inciteful!
Glad it was helpful!
Claire from Ottawa
For the Dunk… brand of GF mixes - many if not most of them have added dairy already in the mixes - so unfortunately with the high level of people with Celiac that also have issues with lactose or dairy - it’s not even a choice to choose those mixes, unfortunately!
Make your own mix : )
Thanks for your feedback!
I've been diagnosed celiac since 2013 and eating a strict gluten free diet. Unfortunately my iron has been horribly unstable and I'm taking iron suppliments. It's been over a year now and my iron is very slowly going up. I'm beyond frustrated.
i was diagnosed with low b12 after having exacerbation in panic attacks and MS like symptoms, was bought on by a long-term vegan diet. b12 is essential for brain health and a deficiency can lead to mental and neurological impairment
Thank you for sharing Juliet! It's so true that B12 deficiency can impact so many elements of our health. We're glad you found this webinar valuable!
Before my Celiac diagnosis I saw a neurologist in 2016 because of balance issues and tremors. A couple falls-I was 40 years old at the time. She did an MRI and ordered a lumbar puncture to see if I had MS. It was negative and the neurologist didn’t investigate further. In hindsight, it was gluten-ataxia. Ferritin at that time was 23. I’ve always had a lot of neurological symptoms, in addition to GI issues in relation to my Celiac Disease (diagnosed in 2020).
Low folate, with normal iron and really high ferritin ?
Hi there, is this a concern of yours?
@@CCACeliac Yes.
I have been tested lately.
I have normal iron levels, subclinical hypothyroidism with hypercholesterolemia, hyperhomocysteinemia, low folate with b2 and vitamin d and fatty liver.
A real mess ( I was diagnosed with metabolic syndrome last year).
Is this a thyroid dysfunction ( ldl) or insuline resistance?
@@angelfreedom911 Unfortunately we cannot provide personalized medical advice. We recommend approaching your main healthcare provider for personalized advice
@@angelfreedom911high ferritin may be related to your fatty liver.
can we also treat the anemia with gluten free diet?
Yes, you can treat anemia while on a gluten free diet. Here are some more resources so you can gather some more information th-cam.com/video/RJoQ1zEy80o/w-d-xo.html
Biopsy diagnose celiac 10 yrs ago.
What kind of doctor do I see to see the cause of my enema?
Hi April, you should start by seeing your family doctor to help with low iron. They can prescribe supplements to try and other methods to help! Thanks for watching!
@@CCACeliac I can't absorb iron digestively because of my celiac. We tried diet and supplements until I got into the triple digits of iron supplements and my iron never went up after years of trying I ended up getting an iron infusion
@@apriljohnson9614 You may want to consider the iron shots. It's best to consult with your family doctor or your gastroenterologist for advice moving forward. We hope you can get those levels up again! It can feel so exhausting when they are low. Best health to you!
@@CCACeliacwhat are iron shots and can I administer them myself with a prescription?
I answered my own question. Iron injections can be administered by intramuscular injection. Being able to self-inject may be a possibility provided no allergic response from supervised injections.
What to eat after a session of celiac?
Hi Claire, after getting sick from being glutened, we recommend immediately following a strict gluten free diet again. Drink lots of fluids as well!
My hemoglobin is 14
I tried iron supplements up to 700 mg my iron level never went up
I was sick for 4 hrs straight on Saturday night after dining out.
Really sorry to hear that!
Why doesn't the Celiac Association promote the idea of hosting hookworms? They put my celiac disease into full remission. I'm on a regular diet now.
Thanks for the feedback Peter, we will bring this to our Professional Advisory Council for review. We promote only scientifically backed treatments.
Hookworms? Can you please explain? 🙏
Pls give me drScully’s address?
Hi Carol, unfortunately we are not permitted to provide personal contact details. If you want to look up Dr. Scully in Newfoundland & Labrador you are more than welcome.
The word is "nurtured " 😁
Thank you for this information!
@@ElTallerdeClaudia We're glad you found this information helpful! :)