It's NOT Obesity, it's Lipedema [with Siobhan Huggins]
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- เผยแพร่เมื่อ 14 ม.ค. 2024
- 18 million women in the U.S. have Lipedema most of which has been missed by their doctors. Millions of women think they are obese but they really have Lipedema!
Siobhan Huggins has been part of the keto/low carb community for over seven years, having used a ketogenic diet to reverse her obesity, and hypertension, along with other physical health issues, and to manage chronic depression. She currently volunteers as the Research Specialist for The Lipedema Project, a non-profit organization focused on advocacy, and awareness of lipedema, and furthering research efforts. Siobhan is dedicated to raising awareness of lipedema and highlighting the important role of nutrition in lipedema management.
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Disclaimer: Nothing in this video is Medical Advice. Dr. Berry does not diagnose, treat, or prevent any medical conditions online; instead, he helps people better understand their health and ways to avoid health problems and promote wellbeing. Make sure you are working with YOUR provider to monitor your health and medications. These posts and videos are not designed to, and do not provide medical advice, professional diagnosis, opinion, treatment, or services to you or to any other individual. As an Amazon Affiliate, I earn from purchases.
Lipodema needs to be brought to public awareness.
As well as the fascia and other connective tissues that can get inflamed and disoriented.
Yes!
As a dietitian I can't help but ask the question, what is the lean muscle mass ratio in people with this? In my experience of physically assessing patients, this fat distribution is accompanied with low muscle mass. Losing wt with diets like keto is a great strategy but without incorporating muscle building, circulation, lymphatic, & bone health health will all be impacted. Inability to build muscle could have other causes, but often its inadequate protein intake.
Duh? Lol. Geezus, ur insufferable
@@msabo31why are you asking that tart?
I've been an RN x 37 years. I had never heard of this until a couple of years ago. I've taken care of patients with this, but they were just called "obese." Thank you for bringing awareness.
Me too, RN for 40+ years.
As well as the fascia and other connective tissues that can get inflamed and disoriented.
Same here; RN for 28 years and Siobhan is the first person I learned about this from. Crazy
I think both conditions normally come together I haven’t seen an active person with it as a medic just sedentary people. I just think it’s both the majority of the time . Not always but probably 90 percent of the bariatric patients we get have it . I’m sure there is a lot to learn about it but that’s just what I’ve seen in my 25 years as a flight medic
@@godloveskaren nice to meet you!
Omg me too the blood pressure cuff hurts me sooooo bad tears
Me too
Me too
Yep!! 😢
AMEN!!!
This is 100% me. My doctor said lose weight and the pains in your head. I have felt hopeless for years. My brain is going so fast right now. Thank-you Thank-you Thank-you 😢
I have Lipedema. If your legs hurt, please think of buying a vibration platform. It really helps me.
I’m so happy for you to find this information.I pray this information can help you 🙏💪
I have found that Diosimin and Heperidin supplements help with the pain. There is also something called L1000 for Lymphedema. I take both. I agree with Paper Mario that a vibration platform helps with pain
Shame on your doctor
Keto will reduce the lipedema fat and pain. I have done this.
I had lipodema but I’ve had surgery in Cologne Germany on my legs. It was like liposuction but they used a special technique to not harm the lymphatic systems. It required two surgeries, the first on the inner legs and the second on the outer legs. I had to wear surgical tights for months and have lymphatic drainage massages. Today I wear normal trousers and I can even wear boots. My legs no longer hurt. They no longer swell and throb at night. I look normal. My legs aren’t slim but normal. I am so grateful.
Yes we didn't have time to get into it, but surgery is definitely a useful option for some -- it's an individual choice, of course, as not everyone feels it's appropriate for their situation, but I do know plenty of people where it really did improve their life. I'm glad to hear it was helpful for you!
Your discussions were very helpful and informative. I didn’t know that I had lipedema till a masseuse asked me what I was doing about it. I just thought it was my bad luck, in a way it was, but I didn’t know it was an actual diagnosis. I was 60 years old and stage 2. So I started researching. It got worse as you said, with puberty, pregnancy and menopause. I’ve also learned that it is more prevalent among women with Irish or German ancestry but I haven’t seen a study about that.
It upsets me so much that I can't afford this. I continue to hide my legs in shame.
If I had insurance, I would gladly have this surgery. Congrats! 🎉🎉🎉
😮
Arrogance in doctors destroys so many lives.
So true! I had a doctor fat SHAME me at 137 lbs at 5'2". Here's the thing. I was 3 weeks post partum from delivering my 2nd son. I was having thyroid issues that almost killed me. To no surprise the doctor was a prior military doctor who would have killed me should I have given into his arrogance of him just telling me I'm sick because im overweight. I gave him my symptoms and all he wanted to talk about as an ENT, was my weight. He considered me overweighr 3 weeks postpartum, just unbelievable!!! Well I didn't give up and saw another doctor. Luckily, I found out through another doctor, that i had a Spot on my thyroid that u could feel and see on catscan or MRI (can't remember which test) but had to undergo radiation treatments. I had massive headaches and was vomiting blood. My kidneys were shutting down. But arrogant doctors can kill others. So if u ever know something isn't right with your body, keep seeking someone until u find the help. There are reasons for 2nd opinions!
Thank you doctor for sharing this video! So informative and may help save some womens lives. ❤
They never think we're overweight because we have an illness or illnesses!
Really they don’t know everything. People should not be that obese that this would be something they would see on a regular basis and shouldn’t.
My daughter was recently diagnosed with lipedema. My aunt had a severe case of it and now I know that my mother and her other sisters had different levels of it. Now I look at my sisters granddaughter and 🎉myself, and know that it is present in all of us.
I'm sorry for you. I'll pray for your family 🙏🫂❤️
I am a massage therapist and always see so many sick people on my table. I took Lymphatic Drainage massage training and it is extreeemely light touch!! People with this condition should be getting proper lymph massage and hopefully do infrared saunas and infared light therapy to help with the swelling and inflammation. Im grateful you did this interview 🙏 massage therapy is gaining in modality for healing. Lymphatic is so light and there are medical grade Lymphatic therapists who are better skilled to work on patients with actual lipedema.
I've definitely found it helpful! Manual lymph drainage is often recommended for those with lipedema due to the swelling component, but yes we usually recommend people verify the lymphatic therapist is used to lipedema because if they have pain then an even more gentle touch and a lot of communication can be helpful.
THIS. My Mom says lymph massage is so light, it's like butterfly wings fluttering on the skin. However, she has had a massage from a massage therapist who claimed he could do lymph massage but he was way too rough, pressed too firmly and caused pain and swelling. Thank you for saying this so people know. I think there are too many mt's who claim they can do lymph massage but have no clinical training to do so, and can actually do a lot of damage.
@@meganharper6566 a good natural way to also flush the lymphatic system is to bounce on a rebounder mini trampoline. You have to keep your feet on the mat and gently bounce is really good for circulation and stimulating the lymph.. also I'm recently reading up on how Vitamin B6 or the better form is P5P which is activated form of B6 that can help with edema amd swelling. Just took this during Pms and I was constantly going to the bathroom which was good and quickly reduced my pain from bloat so that's also worth looking into.
Dr. Berry, your dedication to confessing your past medical sins is enormous and that kind of critical self-analysis is so needed in the medical arts. Thank you. Siobhan, I was already so grateful to you for your hard work on the cholesterol issue. And now I see that you're working hard on educating regarding lipedema, too. You're an international treasure. Thank you.
I was impressed with his honesty
I have always had that problem that it pains terribly when my blood pressure gets taken. Then they tell me: "Calm down!" Nobody believes that it actually pains like hell. After watching this video I examined that area and found lots of moving nodules under my skin. I resonate so much with what Siobhan said, that I sometimes will eat only meat at night and after a whole week still didn't lose any weight. Everybody thinks that I must be cheating! For me it is normal to weigh up to 2 kg more in the evening than in the morning.
Needs to be research into angiomyolipomas, lipomas and angiolipomas and their connection with lipoedema or lipolymphoedema. I started off with one angiomyolipoma in 2008 and now in 2024 have 4 of them; I have lipomas on my body externally too. Got wrongly diagnosed with lymphoedema by my doctor in May 2023. Due to lack of awareness, information or advice, I self-referred to lymphoedema clinic at local hospice where nurse correctly diagnosed me with lipoedema since puberty and mild secondary lymphoedema. I'm 75 now and in the uk.
I CRIED when I saw you were discussing this topic! I lost an enormous amount of weight eating a ketogenic diet and walking 30+ miles a week, and my legs barely changed. I was lucky enough to discover that I had lipedema on my own (because I also have another connective tissue disorder, which is VERY commonly associated with lipedema). But I am SO THRILLED you are discussing this and shedding light on this extraordinarily under diagnosed problem!
May I ask what the other connective tissue disorder is that is associated with lipedema? Is it EDS?
What other problem if you don’t mind sharing, women suffer so much and think they just have to put up with it.
What is your other connective tissue disorder? I have lipedema in thighs and upper arms. Also have autoimmune hepatitis.
@smooth_pursuit Yes, it is! EDS, for me, the hypermobility type. If you suspect you have it, look up The Beighton Scale and ask your doctor to go through it with you. It is a diagnostic tool. Additionally, this type of EDS is also closely associated with a form of dysautonomia called POTS which causes low blood volume and pooling of blood in lower extremities, and a very high heart rate when standing (that can result in syncope, aka fainting). There are dozens more symptoms related to POTS as well. If you suspect you have POTS, please ask your doc to perform a "poor man's tilt table test" which can be a very accurate assessment to see if you need an actual tilt table test at a hospital. Best of luck to you!
@@megbeller7981Please see below for my response. Best of luck to you!!!
There is a huge tie to Lipedema and Ehlers Danlos Syndrome. Can you please look into Ehlers Danlos Syndrome, specifically the hypermobile type. It is overwhelming painful and overwhelming. We desperately need doctors to talk about it.
I have mentioned having Lipedema to a couple of Dr's and they just looked at me like I was nuts for diagnosing myself and ignored it. This conversation has made my day. 2024 will be my year to get a Dr to help me...I hope
I had a Dr. tell me it was all in my mind.
Good luck.
@bcar1962,
Tell the Docs "you want testing to rule out Lipedema".
😉😉😉
Three decades in healthcare.
It also wouldn't hurt to bring a Pub Med article on Lipedema, with your symptoms highlighted.
😊
I love the fact that she's speaking to inform us. She's not speaking high-pitched, laughing excitedly but speaking. I could listen to this young lady speak all day. Thank you Dr. Berry for having her come on as a guest. Lots of good information
Haha, I do tend to have fun talking about issues I find interesting (and lipedema is definitely interesting) but I am aware this is an important topic so I'm glad that came across.
What are you talking about what does " high-pitched speaking " have to do with anything? Just say the name whom you're referring to clown.
I agree. I found the conversation ended far too soon for me😁
@@ShipCreek Me too
@siobhanhuggins5522 You are the first one that I didn't fast forward through. Thank you for all the information. I am sound or pitch sensitive, so you were an absolute joy. Continued success ❤️
I cried watching this. It’s about me!! Been told I’m chronically obese, had lap band 22 years ago, didn’t work. Had it removed. As diagnosed with lymphoedema after hysterectomy at 28, from endometriosis complications, grew huge arms and legs. Told to get compression stockings to ease pain I would need a doplar test yearly, but , I cried during the pressure during the test and they said as my legs were so thick , the blood vessels couldn’t give a proper reading. I had bruises on legs, and pain for weeks. So, no pressure garments for me. I buy tube dressing in smaller size and use them to ease my pain. No other treatment is offered. I’m going to tell my doctor that I think I have this condition, and hope I get some help. I’m 72 and fed up of nasty comments that I’m fat , my arms are so embarrassing, but I also can’t stand the heat, I can’t cover up, even in winter. So my arms hang down and are ugly. I am keto, lost 30 kilos and then no more. But have cured non alcoholic chirrosis of the liver and insulin resistance, which is good. Thankyou to both of you for this enlightening video. Bless you both from Perth Western Australia.
Oh Darling! I hear you on the testing. Doppler, ultrasound, nerve testing, so many things and all incredibly painful. From me having a high pain tolerance yet everything hurting it is such a rollercoaster.
I am so glad you have found some solutions and made some gains. It is terrible it is later in life. I use tubigrip with the continuous rubber elastic.
Severe endometriosis and adenomyosis among several other auto immune disorders and thyroid problems. We are all such a mess to sort out and the system, in general, is sadly little help 💗
❤
I am so glad you finally have some answers! It's such an awful disease and it's just shocking (but not really) that this predominantly female condition has been left to run rampant :(
You said you buy tube dressings? I'm not sure what that refers to. Just from my experience I have found that taking anti-inflammatories (different things, can elaborate if you want) has helped as well as doing keto. I just thought I would mention that inflammation might be what stopping your progress
You need to find a lymphodema specialist. There are other things you can do besides compression. Compression just happens to be the fastest and best way to get the lymph fluid moving. You can do lymph manage and pump, exercise and diet all help.
It was airport security that led me to learning about Lipedema. I’ve had it since puberty but was diagnosed in 2017. I spent most of my life dieting and feeling embarrassed by my arms and legs, and having trouble finding clothes that fit my disproportionate body. The reason I started researching my legs is because I kept being pulled aside at TSA while traveling. It didn’t matter what I wore or how I prepared for TSA, they would still pull me aside. A few times I was asked if I had any metal rods. Another time I taken to a back from and searched under my clothes. I was in tears. When I got home, I googled, “fat legs TSA” and found a woman’s blog about Lipedema and she described my entire life. No matter how much weight I lost, my legs and arms would stay several sizes bigger. Sadly, I started getting pain around this time as well. My advice to any woman who is experiencing pain in their legs is to buy a vibration plate. It really does help the pain for me.
Amen to the vibration plate!
@@phoebeintheforest what’s a vibration plate please
I find that when I wear fitted capris under my pants or dress I don’t get pulled over.
@@ChristRIsenAMENlook up life Pro
I am 62. After complaining to my doctor the last couple of years about the pain that I have in my lower calves when anything presses against them, about six months ago, I brought it up again and I was told “it’s lipdema, which means you are holding too much water in your legs and that is where the pain comes from”. I have had this pain in my legs for at least 20 years, but the older I get the more it has bothered me. I’ve not finished listening to the recording, but I already appreciate this video. I’ve already sent it to my sister and told her to watch it, because she has it too. 😊
Lipodema is not WATER in the legs, it's expanded and inflamed fat cells. Water retention is lymphodema. Most doctors have no idea what
lipodema is or that it exists.
Yeah if you are holding water thats lymphedema and its NOT lipedema which is what the doctor is talking about.
I have lipodema, my dr didn’t have a clue what I was talking about when I told him I had “ painful fat syndrome”, it sucks, but carnivore is so helpful!
Dr Berry you mentioned this condition in passing a year ago and it caught my attention because I thought that sounded like me. It turns out I have stage 3. Going carnivore 10 months ago has dramatically changed my life. I've been able to lose 70 pounds and the bruising and pain is so much better. I've gone from a tight size 16 to a size 2 jeans. My upper arms, thighs and calves are still noticeably larger than the rest of me, but in clothes I now look like a normal person! Carnivore is the key. I had done dirty Adkins and dirty keto religiously in the past. In my opinion that's not enough for those of us with Lipedema. Not only did I gain the weight back, but I wasn't able to lose the amount of weight I now have. I'm now down to my high school weight. A year ago, the lipedema was so bad that the nodule pockets in my upper arms and upper thighs were starting to twist. I still have the nodules all over, and the pockets, but the fact that I was able to lose weight on carnivore and make all my symptoms better is nothing short of a miracle. Thank you for talking about this condition and bringing us such a well-respected expert on the subject. So many women have this condition and don't know it! I now see it everywhere I go.
And I forgot to mention in my post above that I didn't learn about this until I was 63 years old! I can go back through old photos and trace the development to when I was 13 in puberty. I attributed my abnormally large legs to being an equestrian. Then I developed abnormally large upper arms in my late 30s early 40s. I started getting the cuffing in my ankles around age 50. This can be tracked through photos. The ankle cuffing started in my late 50s. And in the photo they showed today with the twisting I see I was clearly late stage 2 early stage 3 a year ago before I started carnivore.
@@SharrellKline Fascinating!
@@SharrellKline Thanks for sharing.
Thank you for sharing, couple questions. Did you have any issues with dairy or eggs? I suspect I do and have taken myself down to beef only. I find chicken actually brings back pain also and pork makes me tired.
@@gathercreatelivewithleslie8340 Smart! LIsten to your body!
Stage 4 lipedema in my arms. keto made me sick to the point of being hospitalized I am also a PCOS girlie My dr has no clue what lipedema is probably and has never said anything
That sounds like a horrible experience. How did keto make you so sick?
I was diagnosed with both Lipedema & Lymphedema in 2019. I too always thought that I was just fat. After having RNY and losing 150lbs and still having large thighs, calves, upper arms & a belly it really made a lot of sense
I live in a midwestern state in a town with a LARGE healthcare system-- around 700 providers. I have tried, but am unable to find one single provider within the system who has the slightest clue what lipidema is. Videos like this are so necessary to educate and bring to light so many of us who have suffered in silence. Thank you.
Dr. Thomas Wright near St. Louis doagnoses and treats lipedema. I travelled too see him, he does video appointments sometimes...
This is a very well spoken woman. I believe she is helping women everywhere.
I’m 48 never been diagnosed by a doctor, 5 years a friend of mine that has lipedema as well told me about it!
It was a relief knowing that wasn’t my fault! Thanks for spreading the word!!
Started getting a belly during puberty, then gained a lot of weight during my first pregnancy. All of my adult life, I have been obese. Tried many, many, many diets. In 2020 (at the age of 51) I started fasting and added keto. I lost 90 lbs in a year, sadly, my momentum slowed when I developed my very first (and hopefully only,) kidney stone. I paniced and stopped full keto. During that year, I went to a physical therapist for some piriformis pain, she mentioned lipedema to me, first time I had ever heard of it. The PT thought I had it due to the many fat nodules in my upper thigh regions. When I saw the pictures of lipedema, I thought of my mom, who has definite lepedema looking legs. She was diagnosed by a lipedema specialist. (In her 80's.) Now, I understand, why, my body responded so well to keto. Today, I have gained some weight back, not nearly all. I am a low carb eater, bicyclylist, daily exerciser. I do have pain in one of my legs, regularly. I use a vibration plate three days a week, dry brush two days a week, deep breathing, and leggings pretty regularly. Not sure that there is anything else I can do. Sure would like to lose fifty lbs. still, though.
I know I have this, I bruise easily, have pain in specific areas of my arms and legs and gain unreasonably large amounts of weight there compared to the rest of my body, insane pain from blood pressure, been told my whole life I have “tree trunk legs.” I can’t lose weight no matter what I do. I’ve been diagnosed with fibromyalgia. But I know it’s THIS. And I’ve never found a doctor who would listen.
You legit just made me want to hug you. I’ve gotten to the point where I will walk straight out of an appointment if I’m not being taken seriously by any medical “professional”
Go carnivore ?
I also suffer from this. Carnivore and sea salt water flushing is helping more than I could ever tell you.
@@johannaj2009 I’m interested in trying it for sure, but reluctant about it because the only treatment I’ve heard of that works is liposuction. Also, I gained weight on keto every time. I followed his guidelines exactly. Like copious amounts, 5-6lbs in a month. It does not work for me. I had some labs done and learned that genetically I am a rare type who does best on high protein low fat.
I also had that, but since on carnivore it seems to have gone smaller
Siobhan Huggins - YOU are a blessing! Thank you Dr. Berry, from the bottom of my heart, for having this discussion on lipodema.
Yes! Siobhan 🙏.
I have been suffering with lymph and lipodeama since puberty, I have recently had a lipodeama diagnosis in my 60s. Congratulations for recognising these conditions. I was an athlete, always the heaviest in the squad. So much prejudice surrounding weight, not to mention a lifetime of dieting. Thankyou for bringing this to the public and professional awareness.
Thank you and Siobhan for bringing so much light to this condition. I've been talking about this since 2018 to help Black people across the world become aware of the condition. I was diagnosed when I was 38 years old. I have used storytelling to help people understand the myriad of symptoms and physical attributes of Lipedema. There are so many. I don't have the "typical" Lipedema body proportions and that prevented me from being diagnosed when I sought it out. Dr. Amron eventually diagnosed me and I will never forget the feeling of being validated by a doctor. So many of us need MDs to catch up. Thank you!
Would love to see a follow up video about treatment options for lipedema.
Agree, more about treatment is sorely needed. I don't have easy access to massage therapy but I could make an exception and take the 2 hour round trip weekly if it would make a significant difference.
Me too
Yes. Absolutely.
I am stunned. The description, the pictures, all of it pointed directly to lipodema. Never has a physician ever mentioned this as a possibility for me. I’m going to advocate for myself with my doctor.
I've learned all this a few years ago, had to get over 50 until I knew I had an actual condition. Told my doctor and he said such a thing doesn't exist. He went on the computer to prove me wrong and went...Oh... But he never treated me, didn't know what to do.
So am I. Luckily, my PCP listens to me.
A nurse practitioner diagnosed me with what she said was lymphoedema about 10 years ago. I was always stick thin when younger, and suddenly found I had thick ankles around 17 to 18 yrs old, which became worse over the years. So, this diagnosis brought tears to my eyes. However, a phone call from her a few days later reported back that the nhs in my local area would not cover any treatment. I just crashed. Gave up hope. I just reside myself to the fact that I will have continued swelling and pain in both lower legs for the rest of my life. Listening to this, I feel I have lipodema. I would love to wear a skirt one day. Have worn trousers since age of 20 because of cruel, cankle comments.
Will be trying keto.
so sorry to hear of your situation, I will pray for you, and hope you can get some good walks in to help with the circulation in your legs, and also get some compression hosiery. Yes I have lumpy legs too and never dare to wear shorts or dresses, have to keep covered. But I don't think I have lipedema, or it's not too bad, since my ankles are normal? Maybe I am not far advanced yet.
This is me! I discovered my condition while watching a previous video of yours. Thank you for the awareness you are bringing to this terrible condition, I’m eternally grateful ❤
I’m 51 years old and most definitely have it! I’ve never been diagnosed but the description fits me. One of the things I noticed after being keto for about a year (I’m 6 years keto now), was that my fat cells shrunk and no longer hurt as much. My legs and arms were extremely sensitive to touch and my husband teases me and calls me fragile still, but it is a lot less. I have never been obese , but I was about 30 pounds overweight. I’ll never have beautiful legs but I accept I know now that working out is not going to completely fix it. Diet is so important.
Get a rebounder and/or vibra plate
@@modelsuppliesA rebounder may not work for someone with lipedema. I have pain in my thighs with any kind of bouncing/jumping.
I wonder if Darko Velcek's Self-Healers Protocol would be helpful? I started to get swelling in my calves down to my ankles, and I can normalize them within a few days, to a week, Drinking lots of water with salt (sea salt), using a Chi machine that wags my legs left to right and back again, eating carnivore, taking whole body enzymes that digest scar tissue, and using far infrared (mat, dome or traditional). The SHP uses salt water in a concentration similar to blood plasma, and Darko says that it helps the body detoxify via osmosis. I can get results with just that, but when I add the components that help dissolve fibrinogen/old scar tissue, Keep out the sugars that form those problems, utilize my skin to sweat things out, as I flush all of my circulatory systems (blood, lymph, electrical/energetic), The effect is faster and my joints behave better and I have less discomfort. Maybe you can Progress to the point where a rebounder or vibrating plate is doable as well.
This old iPad is unpredictable. It looks like my answer was posted five times or something like that. But I wanted to add for others here that my favorite brands, After doing lots of research and using them for years, Cellerciser for the rebounder, and Becky Chambers products for the whole body vibration. Check weight limits of your product, whatever you buy. if you need some thing that is safe across the lifespan, look at that as well because you might have a wide range of ages in your family that you want to accommodate. Maintenance free is a big deal and that’s why I didn’t go for the bungee products. and of course, the footprint of the product is important when you have to navigate the square footage… And the whole body vibration products need an electrical outlet, while the rebounder does not. Oh, and if you have Any kind of implanted device, like an artificial lens after cataract surgery, plates etc., you'll want to check in with an expert before choosing a vibration product, and whether it’s even appropriate for you in the first place.
@@bitrudder3792 Actually, it posted 10 times!
I looked up the Cellerciser, having no idea what it was. I’m shocked at the price they are charging for these, from $550-$750. Then, another $150 if you want to track your progress. They look just like the old mini trampoline we used to have. What’s the difference, except for the price?
I am a CLT and I teach patients to chronically manage this disease! Thank you for addressing this very difficult disease.
Thank you!! A good CLT is so important :)
I have learned a lot from mine
Where do you live??
@@zamis21 LA
How do I find a doctor that takes my insurance to help me. To listen to me. My new doctor does not even believe in vitamins. So I am looking for a different one. I am in Northern Idaho.
@@zamis21 this is a not well understood disease and many providers are not well informed on the diagnosis. Find a local CLT - they will probably be able to help you find a knowledgeable physician in your area.
Some physical therapists are now learning about this. I have a friend who teaches this professionally
Thank you so much for this discussion and bringing awareness to Lipedema. More doctors/nurses need to be aware of this condition. I’ve developed lipedema at puberty. Diagnosed in 2019 by a vascular doctor but all other physicians I’ve seen aren’t familiar with it.
Thank you so much for bringing this further into the light. I'm a lifelong Lipedema and now lymphedema (legs & Upper arms). started gaining at 9 years old. Extremely painful in BP cuffs etc. Gastric sleeve surgery could only lose so much never touched lipedema areas. Keto has helped improve my limbs but doesn't take it down far enough. Doctors have never used the term "lipedema" for my condition. I literally studied online to find it several years ago and example pics and knew I must have it. I even asked my bariatric surgeon if I had it and he was clueless. Had never heard of the condition and that was in 2018. I had to tell him there were Stanford studies being done on it. I asked if he thought the surgery would allow me to lose on my legs he assured me I would lose. Since then my GP didn't know about it and I have asked that they look into it further for different treatments. Appreciate all your work Dr. Berry and Ms. Huggins!
Hi Kelley, you might want to try looking into the carnivore diet for a while and see if you have any benefit. I’ve felt those nodules in my legs and they would be very painful to the touch. And I started gaining weight and I was worried that this was going to be a bigger issue as I got through menopause. But, since being on the carnivore diet this summer, I’ve seen a huge improvement. I don’t have those painful spots in my legs anymore. I still have some little nodules, that I’m working out hopefully. The little nodules are much tinier than before and they’re not painful anymore. I can just sort of feel them still. But they have dramatically reduced. Give it a try. At least try it for a week or two. You’ll be surprised at how much inflammation is reduced. It’s amazing. The inflammation is what really hurts the most. And I think it really Makes the fat hurt.
@@nancyj5490 Thank you for sharing your story. I'll have to give that a try . Happy it has helped and relieved your pain.
Seems lipedema is a new discussion by doctors, lymphatic drainage massage therapy helps drain xtra lymphatic fluid that may be place pressure on nerves of the body. This isn’t just one or two massages, regular light massage initially 2-3 times a month, training how to do self massage at home to reduce pain, there maybe foods that reduce the incidence of this from occurring, there’s not just one thing but many things that may help with the pain.
O!M!G! 😱 I've needed this info for 60 years! I thought I was wimpy like Dr. Berry thought his patients were. I was astonished that others were astonished at how easily I was hurt by contact that others could endure. I may have to go cry for a while. 😢
Women suffer so much and think it’s just “life”.
🫂. Have your cry, but come back and find any links to research and links you might want to have handy for planned and unplanned conversations. Especially the conversations with doctors, or see if you can get a few of Ms. Huggins' cards she mentioned.
❤️
Omg me tooo😭😭😭
I got on Palative care ,was told I have lung cancer but dr couldn’t get no biopsy,pet scan didn’t light up,,,NO more drs they have hurt me so bad all my life😭 tired round n round with stupid drs who didn’t care about me
I have lipedema. And it sucks. So glad you’re bringing light to this.
I’ve suffered with this most of my life. The pain and heaviness in my legs can be unbearable at times. At 56 I am still fighting to keep walking. Cold climates help tremendously since I can’t afford the treatment needed. Very few options available in the USA and zero for those of us living with no insurance. Thank you Dr Berry for educating people on this.
I'm so excited to hear Siobhan's story. I'm a psychiatric nurse practitioner for the past 4 years. I just started my keto/carnivore journey a couple of months ago and have noted significant lifting of my mood and energy. Also lost a bit of weight but like Siobhan the improvement in my mood is enough to keep going. Looking to get a certification in nutritional psychiatry at some time in the near future. So many patients just don't get better with the psych meds we have today. I want to be able to offer a better solution without all the horrible side effects. Thanks Dr Berry. Finished reading Lies My Doctor Told Me not long ago and keep learning every free minute I have.
Good for you!!! Have you come across Julia Ross who wrote "The Mood Cure" years ago. Many drug and alcohol rehab centers are using amino acids to recover deficiencies common in addictions. Best wishes to you!
Georgia Ede's new book Change Your Diet Change Your Mind may be of interest!!! It releases this month and Georgia is amazing so I have no doubt it will be too.
@@curiouscat3384 I will definitely check this out. Our facility also treats a large number of patient with both mental health and addiction issues
@@siobhanhuggins5522 I looked this up and was able to pre-order on Amazon. Will be looking forward to diving in when I get it. Thanks again for all your information. I will try to be mindful and aware of the possibility of lipedema in the patients I take care of.
And Brain Energy by Dr Chris Palmer 😊
I have known I have lipedema for about 6 years now. I had/have pain since childhood. I thought pain with having my blood pressure taken was normal. Women need to know this is not our fault. We are born with it. As I understand it, it “blossoms” either in puberty, pregnancy or menopause. Mine occurred in pregnancy. It’s a sad condition to have. Mine is mild, been on carnivore for 2 1/2 years, and feel pretty good at around 165 pounds but I’ll never have pretty legs. Carnivore has not solved this issue for me.
Really , that’s awful .. terrible condition I wish carnivore helped for you
Start lifting weights.
There are surgical options specifically developed for stubborn areas of Lipedema. It’s a gentler form of liposuction.
Did you lose any weight on carnivore?
@@MEF7 Yes, I did! And so thankful for that! I had lost about 45 pounds doing keto, but would always gain it back. I had just lost down to about that 45-pound weight (again 🤦♀️) for my daughter’s wedding, but still not where I wanted to be. Found out about carnivore just after the wedding (no chance to put much back on - yay!). I then proceeded to lose about another 50 pounds…so down about 94 pounds. MY 3-year carniversary will be in August 2024 and I’ve been able to keep it all off! I just have lumps around that I know are lipedema and they don’t seem to be going anywhere. It’s just the surrounding “visceral?” fat that I lose. I’m still much better off. Liposuction is, I think, the only solution but it’s not safe, high rate of infection, I guess. I won’t go off carnivore. It’s still the best way of eating for me. Good luck to you!
So glad to hear you talk about this . Thank you so much.❤
OMG! Using your own body to experiment is my idea of a real and dare I say amazing scientist! You are helping so many people and are not affiliated with big pharma and not just doing it for money…you are my hero!!!
Painful BP cuffs and blood draws are a real thing. Thank you for shedding light on this so that those of us that are dealing with this can seek a solution!
And I thought I was over sensitive and crazy all these years.
This is a real eye opener. I'm familiar with lymphedema, but in all my 69+ years I don't think I've heard of lipedema. Thinking back I'm certain I've seen numerous women with this condition. Thanks for educatiing me!
The last doctor that I went to 30 years ago because of my body being shaped like this was incredibly rude to me. I went in to get help and left very ashamed of myself. He told me that my hands and feet were not fat and that was proof I was not supposed to be fought and asked me had I considered exercising. I was crushed because I had waited a long time to see him any clearly let me know it was my fault and I just needed to cut calories and move my body. I'm 65 now and I've always been ashamed of how I look. And yes it is very painful. Getting my blood pressure taken sometimes can make me want to cry.
You have to advocate for yourself! Dont give up
Love this interview and it is so good to see this addressed.
As an RN, I have seen so many patients that I suspected had something more than obesity.
I wish I could speak to people and ask them.if they realize this may be what they are suffering from...
Loved the "you're body looks strange!"
Thank you!
I was diagnosed with Lipedema in November of 2020 after I saw a youtube video of a woman explaining her Lipedema! Thank you so much for your video! It will help so many sufferers! God Bless You!🙏🏻❤️
I have been diagnosed with Lipedema. I find Keto very helpful.
I’ve had lipodema for almost 40 years…it started before I ever had visible symptoms (the pain) but really exploded with my first pregnancy at 23. I’ve learned to live with the pain, with keeping my legs covered, and dealing with doctors and others always saying "oh that can’t be hurting you!" While I’m sitting there crying from the excruciating pain. I did lose over 100 pounds about 10 years ago, and I do feel better in so many ways, but my lower body and upper arms still look the same. And the fat still hurts…bad. I started carnivore recently and am hoping for some more improvements. I love that this condition is finally being talked about.
I was diagnosed a few years ago, it was overwhelming to learn that I had this condition but a relief to know that I could control it and loose weight. In my experience intermittent fasting was the key to reduce the inflammation. I have regained all my weight by not sticking to keto/carnivore and I have had a huge amount of stress over the last 2 years. I'm devastated and the pain is unbearable. I have begun with self lymphatic massage and making small changes to my diet. I hope to return to the weight I was 2 years ago. This is motivational thank you ❤
I can easily recognize this. It's common and i can only imagine the personal shame and trauma this disease has created. There was a really heavy girl at my school 30 years ago and she had this, and it was brutal for her in high school.
So glad that you did this interview! I was diagnosed in the late spring of 2011 by a vascular surgeon I went to see for an unrelated issue. I had never heard of it, he took one look at my legs and told me immediately I had lipedema. I was a size 4 at the time of my diagnosis. My upper half was an extra small and my ribs showed because I had a tendency to starve myself due to about 16 years of trying to lose excess weight in my legs, but never being successful. But like I said, I was a size 4 and still small at 5’ 6.5” and 130lbs. I could hide it from everyone until I was bare legged. I haven’t worn shorts since I was 17, maybe 18. I’m 46 now. Mine came in around puberty and got worse after pregnancy, but keto is helping me keep it under control. I only have my legs and arms affected by it. I will mention that even as a child the blood pressure cuff hurt like a mofo! It wasn’t until I was speaking with a well versed doctor in lipedema that I was told the blood pressure cuff should never cause pain 🤯 You are so awesome for spreading awareness Dr. Berry!!! God bless you and your beautiful family❤ Hugs from Texas!
Oh MY! You hit on one that sounds EXACTLY what I have been dealing with! I am in my mid 60's. I've suspected for a long time that I had something wrong even as a teen with the lumps on the inside of my knees that hurt and even some near the elbows even when I was a size 9 and thin as would be. Then the progression... even down to being hypermobile, it got WAY worse after I fell and had a hip replacement is when the legs started getting really big! I did have some swelling in my ankles because I also have failing kidneys so there is that. AND hyperthyroid!! But when anyone tries to put a needle in my arm, I get very swollen in that arm to the point I could not stand them to take my BP as I was in the hospital for over a week last Thanksgiving. You are a Godsend the both of you!! I have been trying to tell all the Drs that after I did Keto and intermittent fasting that is when all of this showed up for certain. Thin but have these painful areas that I've had since a teen! My body looks horrible! And getting worse. I can barely get in and out of my car my legs are so heavy. Thank you for all you do!
Fascinating discussion - thank you both for sharing this topic.
Just wanted to share dot I met Siobhan Huggins and Leslyn at Low Carb Denver, 2023… I watched their presentation at Low Carb Denver It was not until I met both of them, did I ever hear of Lipedema. We had a hallway conversation after their presentation (by that point, I had been on Keto for a year and a half and lost 130 pounds )..
I had an extensive conversation with Leslyn and Siobhan after their presentation at Low Carb Denver, only to find out (via old pictures of myself before I lost the weight that I showed them), that I had/have most of the traditional signs of lipedema. It was good for me to find out that Keto/Keto-vore/Carnivore is the best nutritional way to lose excess weight, as well as other methods to work on the lipedema situation… A BIG THANK YOU TO SIOBHAN AND LESLYN FOR THEIR BEAUTIFUL INFORMATION & SUPPORT OF PEOPLE WITH THIS DISEASE THAT I HAD NEVER HEARD OF UNTIL LOW CARB DENVER. I feel that I have had this situation since I was a teenager…
When white go-go boots were in style (very big fashion statement in the early 70s…Lol), I never could wear them because my calves (as well as other parts of my body from the waist down) were too big, at least now I know why.
I could never buy clothes that were the same size on top and bottom… I always had to buy 2 to 4 sizes bigger for my bottom half… Again, at least now I know why… We need to support this amazing work in anyway we can.
One of my closest friends struggled with this her whole life. Even when she was finally diagnosed in her 50's they still didn't know how to help her. I'm so glad the word is finally getting out about this difficult disease. I pass people on the street who have obvious symptoms and have to wonder if they know what is happening to them and that it's not their fault.
Yeah I defiantly have seen this a lot in the past 20 years
I appreciate this interview. Life changing!
Finally I have a term for what’s happening to my body. I’ve been feeling weak and ashamed my entire life and I’m now 70 years old. So many tears just watching this video. Extremely painful to the touch. Blood pressure cuffs are unbearable.
Please keep spreading the world and follow up with videos about what we can do to improve this condition.
I am 52 and have not been diagnosed but I am confident I do have this. I am very puffy and the pain thing is so real. I heard all the time "you're too sensitive". Thank you for sharing this.
I had breast cancer surgery and removed some lymph nodes, started getting swollen arm. Got a rebounder - mini trampoline and it’s been magical! Honestly changed my body composition in a few days! It’s fun, effortless and takes about 10 minutes a day to gently bounce like a baby in the crib. Strongly recommend trying this with or without these issues.
I’ve lost 133 lbs so far doing keto low carb and fasting. It’s crazy how easy this has been. I’ve lost over 100 lbs before the hard way - counting calories and massive exercise. This is absolutely sustainable.
Awesome job !
Excellent. It can help with constipation really nice
are you saying that it reduced the appearance of lumpiness?
What diet do you eat?
youtube channel; AVANTI WELLNESS is about rebounding...inspiring for anyone who wants to learn more about the amazing benefits of rebounding
I am so glad I ran across this video. I always knew something wasn’t right because of the pain. I was diagnosed with chronic fatigue at one point because they couldn’t figure it out but so much of what you have said is spot on. Thank you.
Thank you. Thank you for raising awareness! Thank you for sharing your successes and struggles and for all the tips!
I started watching your videos March '23 because I follow another TH-camr who mentioned your name and the carnivore diet. I am very happy to say I'm losing weight, BP has gone down, my cholesterol is also down. My doctor is happy and wants me to continue. My next visit with my cardiologist, I have arrhythmia and high blood pressure, is this May and I'm hoping I can finally get off the medications.
I'm 65 and feel like I'm in better health than when I was younger.
I thank God for you every day for spreading the word. I've watched other videos of people with other health issues and especially the young man that was on last week about his colon being removed. It just breaks my heart. If their doctors had them at least try the carnivore diet they would have added to the quality of their lives a lot earlier.
I remember when Dr Atkins first started talking about the low carb diet; which I did go on. How the medical community treated him.
Thank you again. Blessings.😊
Do more research into bp, Dr john Bergman might offer a different perspective.
I have been strict carnivore since April of 2023. Lost 50 lbs. I feel great but my legs look like stage 1 on the thigh, not the lower leg. The arms have always been troubling.I will definitely look into this. Unfortunately I am pretty sure my Dr. will not acknowledge it.
Time to up grade doctors, you pay him, he isn't doing you a favor showing up uniformed. I was a hair stylist before retirement. If I didn't know how to cut hair clients would go elsewhere. That is the reason for continuing education. You certainly do not need a too lazy to stay current in education, arrogant doctor.
@@latterrain09 very good point!
Find another doctor !!
This is me! I will admit I could stand to lose 20-30lbs. BUT all my life even when I was super thin - like ribs and sternum showing - I still always had thick thighs, like all the way to my knees, and then normal calves. And I've always had thick arms. Like I couldn't wear buttoned cap sleeves, because my arms were so thick. Like even at my elbows, I had thick fleshy elbows. I've always hated my arms and legs.
I live in Arkansas. We have no doctors here who know what lipedema is. I went to see Dr. Berry at his clinic in Tenn. in August of 2018. I took him information on lipedema. He was just beginning to promote keto at that time. He was very kind and helpful. I am glad to see this collab with Lipedema Project. I hope he will continue to do more to help the lipedema community!
Terrific information, and presented so well Siobhan Huggins. Thank you!!
I have lipedema, recently diagnosed. Looking back, Ive probably had this since puberty, but it became much, much worse after menopause and I am now 59. My bruising is absolutely horrific and people stare. BP on my upper arms is painful, like a 9/10 and bruises me. My 6 lb cat stepping on my leg is painful.
I am doing rebounding, aqua physical therapy/PT, lymphatic massage, and wearing compression stockings and sleeves. Goal is to keep it from progressing and even turning into lymphedema.
THANK YOU THANK YOU THANK YOU, Dr. Berry for having and airing this interview. Awareness is crucial and so many doctors have no idea what it even is. In all of Kansas City, there is only one vascular cardiology doctor who knows anything about lipedema, and I was fortunate enough to find her.
If you haven’t tried incorporating the carnivore diet, I would highly recommend you do so. Just read the comments on some of the other carnivore videos about how many people are benefiting. It reduces your inflammation dramatically. Which helps reduce the pain in the fat. That’s what it’s done for me. All the weight loss is a huge bonus, of course.
I love your screen name! I was born in KC! I love that town!
@@littleone31917 Thanks! I wasn't born here, but landed here over a decade ago and decided to stay. I like it here overall.
I have been carnivore for 2+ years & this is 100% me! I have lost 80Lbs- but any little spice or chicken makes the tops of my feet hurt like crazy- like unable to walk.
Is there anything that helps/eliminates all the little lumps bumps all over under my skin- arms/thighs/buttocks?
@@kdiverdownum I’m carnivore and use a few herbs from my garden. You have me wondering.
Thank you Thank you Thank you for BELIEVING this exists!!! The shame and confusion over not being able to control this body of mine all these years has been devastating to my heart and soul. I felt so alone and like a weirdo all my life. Keto is a game changer for sure!!! I'm 69 and just coming out of my depressed"fat shell" now! I hope the future will be brighter for my daughters as medical research and patient support catch up.
I have been diagnosed since 2018. Had a doctor treat me so bad because he just thought of me as obese. I left him and the new doctor sent me to vascular doctor which sent me to get massages and that’s who diagnosed me! Doctors don’t know and the nurses don’t either. I can’t stand getting my blood pressure taken I also pass out and they don’t understand. I am so glad you mentioned the blood pressure cuff hurting. I do keto and have lost 65 lbs but still have pain. Thank you for sharing your knowledge.
Thank you both you are ANGELS for. Delivering this message. Always knew this wasn’t normal condition because of you help is on the way for millions
When my cat walks on my lap it hurts so much! Also when someone gives me a side hug and their fingers squeeze my upper arm 😩 I thought BP checks hurt everybody. If I have Lipodema, it’s mild, stage 1 or 2. Thank you so very much for shedding light on this condition! I’m heading down the carnivore road and so grateful for Dr Berry’s videos.
Hello, follow Up Right Health.. off you tube.. All my chronic pain is gone.. 🇨🇦
Same here. It's more common than we knew. We are not alone.❤🙏
Bless you both! I have an answer for many of my questions as to why I can't lose weight in certain areas and why I've had swelling and cuffing for most of my adult life. You guys are awesome.
I'm so glad we could help you on your journey! One thing to take away for anyone with lipedema or who suspects they have is that you are NOT alone.
Thank you for bringing more awareness to this cause. It’s an awful condition that’s affected me for over 30 years and I used to beat myself up about it daily. I really hope we can start getting lipedema surgery covered in countries like Canada and Australia in the next 10 years.
Thank you both!
What a brilliant, well-spoken woman. Thank you for this topic.
I definitely have Lipedema, not diagnosed, but suspected this about 6months ago. Had my arms reduced(brachioplasty)2 Years ago and then the plastic surgeon said it almost felt like little worms(like little filled pockets) in my arms. I had 5kg total removed. I struggle with excessive pain in my arms and legs, calves and swelling. Been strickt carnivore since October and only lost 10kg. Now suddenly gaining. Wish I can find a dr Berry in South Africa. Love your guest😢❤
I have been following you Dr. Berry for 5 years and I’ve been on the ketogenic and carnivore lifestyle off and on…consistent for 3 years and that’s when I felt my best! I’m a massage therapist specializing in lymphatic manual drainage. About 4 yrs ago I had a client come in who was diagnosed with lipedema. I knew that’s what I was experiencing as she started to explain and educate me. I had never heard this term before. Even as a LMT certified in lymphatic massage. After she left, I started researching and found myself with so many emotions because I just found THE missing piece to my “health journey”puzzle. So much made sense!!! I am perimenopausal now and I am back on to research lipedema as my symptoms are getting worse and I am looking for diagnoses and options for surgery. Especially after adding carbohydrates back in for the holiday season. I know I need to reset and be more proactive again. I was so excited when I saw this come through TH-cam feed. It’s inspiring me to go deeper with my own healing and also offer support and education to my clients. I am seeing more clients with lipedema and I send links to them, but I feel it’s time to expand and bring more awareness into my practice. Thank you for the amazing interview and bringing this to your platform!!! More awareness is definitely needed!!!
Grateful to both of you!
I definitely have the blood pressure cuff issue, since early years. But I don't see a lot of the leg symptoms. I think I get overlooked for diagnosis because it's mainly in my arms and that isn't the norm. I would like to see more pictures of examples of lipedema in arms.
As I am getting older I am noticing some odd sensations in my lower leg area above my ankles, but I am 50 now and it's just now noticeable.
This is the wake up call I needed, but I still think more info on lipedema starting mostly in arms would be helpful.
After being misdiagnosed with fibromyalgia and cellulite for decades, I was recently diagnosed with lipedema. I always wondered why every time I would eat a healthy well formulated keto diet, I could not lose what I called "ugly legs." I would be "fit" everywhere else but never in my hips and legs. I am so grateful not only to learn that I was not as obese as everyone thought but I now have a way to understand the ailment, the pain, and overcome the depression! BTW thanks to Dr. E. Westman for just taking a quick look at my body and saying, "I think you have lipedema."
I had suspected that I have lipedema and have been researching all about it this past week. I recently went through menopause and noticed my lower half simply exploded in size, with even more hard lumps, not just cellulite, despite wearing a small size top. To click on Dr. Berry's video and see this....wow! Thank you, Dr Berry for always researching and bringing attention to things like this!
Hello and TY for covering this important topic.
Thank you so much for shedding light on this. I have lipedema(diagnosed 2022).
I was 12 and a competitive swimmer. I felt my legs/hips/butt getting larger but I was trying to just swim harder, edit my diet. I saw a photo of myself at a competition on the blocks ready to dive for a race. I couldn’t believe what I saw. I looked like an exaggerated pear. I finished that season and stopped swimming out of self body shame. Found out in my late 30’s I have lipedema. I’ve been following Dr. Berry for about 5 years now and am eating a proper human diet. Thank you for covering this, Doc B.
Did the diet help?
@@darlatobin2240 Immensely. I still have fibrotic scar tissue but I’m significantly smaller. Game changer for inflammation, mental health, even my skin.
WOW!
Finally a diagnosis!
I have such pain with dynamap b/p machines. My arms have lipedema. The fat cells are the size of a peanut m&m's, fused together nodules...Easly palpable.
I also carry weight like the stage 2 photo. I have pain and bruising when my blood pressure is taken, or with excessive weight or pressure on my thighs. The lipedema began when I was 9 and started my period. It continued to worsen wth each pregnancy. However, I started strict carnivore 6 weeks ago. I am amazed at the changes in my body. I have lost 10 inches off my arms to date! I am totally amazed, Dr Berry!
Thank you soooo much!
That is phenomenal 🌸🌸🌸
Thank you for sharing this, I had never heard of lipedema, but recognise this now in family members and myself. I started watching this late last night and just had to complete it this morning, then also went and did the online test. I've got the cuffing on my wrists and was starting to get really worried about it. My body significantly changed as I hit menopause, was diagnoses with hypothyroidism and soon after had to have my gallbladder removed. I've done keto in the past the last time in June when I noticed a significant reduction in the cuffing. Clearly I need to return to keto. I will also follow the links given. Thank you so much for this, I feel like I can now stop worrying a little and do something positive.
Oh my goodness ❤ this makes So much sense! Thank you so incredibly much for sharing this ❤️
This was a VERY valuable segment! I daresay that nearly EVERYONE (at least in urban areas) knows one person with this condition, and most people, most doctors, and even the sufferers themselves, just think of it as some weird kind of obesity, and are clueless regarding a solution. Dr Berry, thank you fir having Siobhan on; I learned so much from this episode!
I’m glad you were talking about this, because so many women are unaware of this diagnosis. I actually had to go to an endocrinologist out of town in order to get my diagnosis. While getting a diagnosis, I was told that there is not enough research and there’s really nothing that can be done for me. Well, that’s not true because I’ve been able to help myself by changing my diet. But then, of course medical doctors don’t understand nutrition. Thank you for talking about this important topic.
One of my friends has Lipedema. It took forever to find a doctor who knew about it or who would diagnose the condition. The slightest contact is painful. I tank you for doing a video about this condition.
Diagnosed in 2019.
Hearing Dr. Berry discuss this feels like a really nice open door, and I can only hope that it continues to get the word out more about it. Living with shame my entire life, doing everything I could possibly do, and having no good results, is a devastating way to live every day.
I have had this for a very long time . I had severe liver cancer, which I was not told about until 8 years after the MRI that showed it. A specialist said it was stage 4, Luckily it wasn’t treated, so I am still here. I got the lesions on my liver from birth control pills. I believe most cases are caused by the same thing. That is why they won’t diagnose it, because they would lose their most profitable drug. I’ve used Atkins diet and have lost 160 pounds so far. It is similar to keto. The reason these diets work so well is because we are cutting out the carbs that are full of chemicals, mostly from glyphosate (roundup)spray. I’ve found the best is to mostly eat meat that is locally sourced, especially bison and your own garden vegetables. Do not eat anything with soy or canola oil. Butter and coconut oil are best, but again you need to watch the source. They say to cut out dairy. This is because of the pasteurization and processing. If you have your own cow or a neighbor’s cow, or some organic stores. I believe the Lipoedema is caused by the lymph system dumping water and toxins into the arms, legs, belly and butt. The reason is usually because of the state of the liver. Healing your liver is a big key to healing and losing the water and toxins in the body. Jan. 16, 2024.
Thank you for your explanation. It clarifies things about dairy and chemicals …
After reading this it has occurred to me that perhaps infant formula ( full of seed oils) gets this horrific condition started! Breastfeeding is best!
Yes! I think this is why there are so many puffy people in the US as compared to other countries. I have been thinking on this issue for literally decades and have just recently come to the same conclusion - it's our food and the damage caused in the body - mainly the liver and later kidney and also the digestive system. But what can one do when all our food is like this? Buying organic is very expensive if you are on a tight budget. Myself, I try to buy organic for butter and meat, but can't always get it as I have to depend solely on delivery shopping service. I am allergic to the herbs that really help the liver and also estrogen issues. My mother was very alcoholic during pg and am convinced I have weak liver and my sister has bad kidneys. Both of us cannot tolerate black cohosh. Unable to go carnivore due to intestinal reactions. It seems whatever problem I have, the solution is also harmful. But I definitely relate to the EXTREME pain caused by blood pressure cuffs. I don't go to dr because they have no comprehension of how nutrition affects the body, ditto chemicals (since they promote chemical drugs as a "cure").
Thanks for the explanation! How do you suggest healing the liver?
Milk thistle@@MEF7
When I was in labor with my 8th natural birth, the little Doogie Houser MD student doctor came in to take my BP and I about came off that bed when he started pumping that damn thing up. He was like, “ well, if you thinks this hurts, you probably arent even in true labor- you have way more pain in store for you”. I birthed a 9 lb 6 oz baby 5 minutes later. I never saw his smug cocky self again.
Finally! Thank you for discussing lipedema 👏🏻 I was diagnosed in 2019 and it finally gave me the answers I was looking for my whole life
I was diagnosed with lipodema more than 30 years ago, I am 73 yrs now, rendering the pain, had a blood pressure check, pain in arm. Good too get checked. Thank you for this information ☺️
Siobhan, you have the loveliest face. You are a pleasure to listen to.. I bet your Mum is so proud of you. Very intelligent girl Xx Another Mum
Thank you! As long as I'm happy my mom is happy, so currently we're both happy :)
Agree! Your a beauty and smart articulate doing great work! Bless you for sharing - it’s caring
I self-diagnosed my lipodema in my late 40’s after stumbling upon a Facebook group about it. I sent my doctor TH-cam videos about it and she diagnosed me with it after watching them. Prior to that, she never heard about lipodema. I gained 30 pounds after the onset of puberty. I gained weight after my pregnancy and then I went into early menopause at age 40. It was only after menopause that I developed a lot of fat in my stomach. I was in the military for 24 years and always struggled with meeting the weight requirements. I also gain muscle weight very quickly. Even when I was in shape, my bottom half was always bigger than my top half.
I'm literally in tears seeing you have a video in regards to lipedema, Dr. B. It took 4 years of torture to finally be diagnosed correctly and it wasn't any doctor that I went to. It was a beautiful soul, a nurse who saw me in a waiting room. My daughter was at an appt and I was just sitting there and she approached me. She was so kind and went through exactly what I was experiencing. At this point I could hardly walk and no help. Everyone gave up on me. She told me exactly what I had and how to go about getting help. She was my miracle. I bruise like crazy and my legs feel like cement at times. The pain is insane at times. I have it in my arms too. I've gone to the extreme of having VSG done and I have a horrible eating disorder that I'm being treated for. All of this is because of my lipedema. Please please let people know if you see them. The worst thing that can happen is they swear at you :). The best... you save them
I was around 127 to 140 lbs, 5’9” throughout my adult life. When I hit 50 years old I saw my thighs starting to swell and could see it creeping upwards while not knowing what to do to stop it. My thighs and upper arms swelled up and certain friends kept telling me diet but I wasn’t eating anything extra. The arms actually hurt. I put on weight and am currently 240 lbs but now don’t care what I eat. For some reason my arms went down a lot and they are hanging, the thighs not so much. I kept thinking it was a toxic lymph buildup and don’t know what to do about it. I am in extreme pain every time they do the blood pressure test, I almost scream. Thank you for sharing this information.
I thought I would add that I danced ballet professionally from the age of 7 until 48 and maintained a healthy diet throughout and under 140 lbs. I had several auto accidents which limited my continuation of dance although I continued eating the same. I read through the comments and added this as some were talking about athletics and you mentioned hyper mobility?