I have fibro flare ups quite often. To add to the other symptoms I have vertigo. I had it so bad last month that I was hospitalized. My feet and legs hurt and I am just a mess. I sleep two hours a night and the next day I am useless. I try not to complain it has become a way of life. May God continue to bless each and everyone who suffers from Fibromyalgia.
The past 3 weeks have had an "onslaught" of symptoms and pain. My body has felt heavy all over. Sleep is not diminishing the exhaustion. Eating has not eased the total discomfort of my body. My heart goes out to you and others who get debilitated.may the Lord help us all.
I have the same thing. My throat, fatigue, feeling off, forgetting what I'm going to get on my way to get what it is I forgot and body aches. Mine I figured out are mostly caused by over doing it. Fatigue so bad it's hard to talk or listen. Can't even listen to the tv. Hope you're feeling better. You are not alone.
I didn’t know what I was dealing with for the past 2-3 yrs. I started feeling extremely exhausted and aches and pains all over constantly feeling like I was going to catch a cold or flu. I went from being very active to feeling weak and hurting all over. I didn’t have health insurance at the time so I just dealt with it and it was soooo hard on my body. This past summer I was diagnosed with fibromyalgia and though my rheumatologist says I don’t have Lupus, my ANA levels were elevated but she said she wasn’t worried about lupus at the time. This New Years Day I was having a bad flare that lasted the entire day. We celebrated with family and had a great time but gosh I paid for it dearly(I don’t drink alcohol)and in bed all day long. My knees hurt constantly, the pain in my hands is getting worse, my elbows constantly hurt, I get a pain on the right side of my throat, and my feet are in terrible pain especially my arches! My podiatrist says the pain in my arches is due to the fibro. It doesn’t help that I also have neuropathy. My life went from living a decent life to a life of hell. This is a horrible disease.
@@Truerealism747 My neuropathy is in my feet and legs. I have a better grip on it now with meds, of course. I still get fibro flare ups, but not everyday. It is so hard on my body when I have a flare and have to work. I do have my good days and like to get out of the house sometimes on those days and do some of my hobbies I have missed doing. How are you doing?
@@jennym.9099 struggling I have heds I've found I've had CFS before fybromyalgia which to me is same thing ime awaiting to try ADHD meds apparently help fybromyalgia check out Dr lenz now diagnosed asperger's got upper body pain everyday my father had CFS and both his sister's have fybromyalgia now he's starting again with CFS since losing my mum seams highly genetic do you have autism or ADHD or combined.glad your doing better which medication helped you
This made me cry as I'm going through this myself I can relate to everything your saying it's awful, I get flares much more a month I'm finding it difficult to deal with it affects your whole body and my voice is so different, I get the throat tickle and the muscles around my neck feel different!! Hope you get through stay positive ❤️
Anything can trigger flares uug. One person could be super rude then I get stressed, I eat something wrong, over do it just a little, not really getting enough sleep even if I sleep for 12 hours I guess it’s not restful, it’s just frustrating. Hang in there we all understand and ur not alone on this fibro journey. Soft hugs 🤗
Oh hey friend from the UK ! Agreed. That is why I choose to make videos on it because there werent many out there. Mine has gotten better and I havent had a flare in months.. YAAAAAY! hang in there and sending gentle hugs.
@@Truerealism747 best Guest 5-6 years. I dont have pain at all now that I eat protein forward and workout and do cardio 5x a week. I lift heavy as I can and that seems to keep the pain and tightness away. But it took a lot to get me here, baby steps, walking, then using machines without weights, to adding weights little by little, consistency is everything. Now I have a personal trainer (online) and im pain free.
Gentle hugs, lovely. Im in a really bad flare up right now. First bad one in months. Theres no apparent reason for mine either. I had a little cry listening to you talk about it, just out of similarities that you talked about. We'll get through this.
Foodie. Very true of your symptoms, for I suffer with CFS. Yes, please, for the link for the things you take, hoping they make a difference for me and others too. Love
Hi sister I’ve been living with fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel youtube.com/@dromocure
Just saw your post. I am so glad there is a posting about this. When it hits it is no energy, just have to sleep. Total brain fog. I hurt all over, my muscles burn and it feels like ants running under my skin. My muscles are very tender to the touch. I am going to try some of your stretches. What does the ginger lemon do?
Yes. We have to keep talking about it to bring awareness. I feel like nobody talks about fibro and it just breaks my heart!! Know that you arent alone❤️💪 yes I highly recommend them, remember not to push yourself too hard just go as far as your breathing/body will allow. Ginger and lemon has TONS of benefits go ahead and Google it..but in a nutshell lots of digestion aid and improvements and pain reduction and prevention. It is a godsend!!
Same I can’t even get a hug or a massage.. the brain fog is bad ..I’m been having flare ups everyday for a year now I have to sleep with a warming blanket under me cause I feel like it’s too cold even tho I live in a very warm place I have to use sweater and the pins n needles never go away
@@mcollier3101 yeah I started while COVID was still happening so I didn’t work..now I really can’t work it’s hard to even comb my own hair cause I can’t keep my arms up .. as soon as night fall hits i get worse even in a small rain storm as the pressure drops im out for the day….im thinking of doing Disability cause I really can’t even clean my house at times
I’ve been in a Fibro flare. I was recently diagnosed with Rheumatoid arthritis also. Had a Fibromyalgia dx since 2004. I’m a single mom of a 12 yr old and a 9 year old….both boys. I was curious what kind of job you have. Mine is flexible right now, medical. Thank god. Thank u for sharing. Btw, I do ginger lemon shots too, from Amazon
Ugh...I'm so sorry to hear. I did physical labor before in the shiypyard but not im in the Office THANK GOD! My current boss is awesome but that changes when I change projects. So for now its a lot less stressful = less flakes.
From Lisa...Yes I do get a sore throat , some time the lymph nodes under jaw are tender.... extreme fatigue....The spells like that since I was a Teenager... diagnosed with IBS....then I was in my late 30 or early 40 .. I was told I had chronic Fatigue/ Fibromyalgia... muscle soreness and joint pain in elbows , knees, knuckles in hands.... now I m Have back pain..... Recently diagnosed with Rheumatoid arthritis...Im 60 yrs now.Is there any probotics that are dairy free ...I'm Lactose intolerant ???
YES!! I take the seed brand its a pre and probiotic and it changed my life. They are vegan. Free of gluten, dairy, soy & corn. Its 2 per day before you eat. Btw i have all the same diagnoses except the arthritis. Sending love and light and gentle hugs!
@@PieperNakiFam seed Brand I have never heard of it... Where can I get it? Would they have it at a locally pharmacy such as CVS, or Walgreens or Walmart or Meijer store ...?
@@PieperNakiFam damn😢on top of me having this crap I also have two bulging discs in my neck 🤦🏻♂️double dizzy. I barely have normal days anymore. It used to flare up like 1 to 3 times a week but now it’s every day ugh it’s very depressing. Thanks for sharing
@@johnthe_don I'm the same but in my back. And osteo arthritis on the facet joint of those discs. I reckon it makes the fibro play up more than it should. It's funny I didn't know I had a bad back. Everytime I see my doc he asks if the fibro has moved around or anything and one day I just told him about the nerve pain in my leg (I was getting bad nerve pain all around at the time) I just thought it was fibro. He looked at me weird and he said "what your describing is sciatica not fibro haha". What do you do for pain relief? I have a feeling there is more going on in my neck too though. It gets so stiff and sore sometimes causing headaches and tingling through my shoulders.
I suffer with fibro myself..what brand probiotics do you take? I'm trying to find the right brand as I suffer from gerd looking for a gd prebiotic for the acids in my gut.
Having a flare today....can't function....no reason for my flares and when they happen or how often they last. I get a cough and sore throat but hadn't linked to being apart of the flare up. Interesting. I how you recover.....wish people understood hiw it feels to live with this illness. X
Sending gentle hugs... i found journaling daily really helps making sense of things but it took years to come together and make sense. Yeah I understand completely especially because our illness is invisible. Keep your head up💕
When I go to bed I feel the back of my hands itchy, and my legs especially have like a pulsating vapor of pain over my body, especially my legs. I feel like I’m hit by a bus in the morning. I can say that being on my phone for too long, hurts my brain and worsens my fibromyalgia
If I have a flare that prevents me from going to work I certainly wouldn’t have the energy for the skin care routine you advertised. I sacrifice other energy sucks so that I can continue to work. If I don’t have the energy for mascara then I don’t apply mascara. If I’m too nauseous because of pain I go to work and take my meds as I can. I live for days that I can nap because I don’t have the option to call off work, I don’t have the option to not be an active mom. It often makes me wonder, are my fibromyalgia symptoms not as bad as others or am I stronger and more determined than others? I have the intense pain…it takes my breath away! I have the intense fatigue…I cry facing simple tasks. I definitely don’t put energy into skincare to the extent she does if I’m flaring enough to call off work!
Im so sorry to hear this. I can say that everyone experiences flares and symptoms differently so to each its own. You do you and whatever your body allows dont ever think myself or anybody is telling you that you should be doing more or less. Bottom line is listen to your body❤️ I havent had a flare in months, ive changed my diet once again and successfully added weights lifting and cardio 5 days a week. It took baby steps but im here now. I hope you find relief, sending gentle hugs always!
slept 13 hrs..this sounds like a dream on its own.... I'm in so much pain daily i barely sleep 4hrs a night, rolling constantly because of pain in hips, shoulders or muscle spasming and general pain... .. i wish i could sleep more normally, even if its not as restful...during my pain flares not only do i continue to work my 45+ hour a week physically demanding retail job but i workout and eat healthy..nothing much seems to really help the EXHUASTION .. we need more help with how to function daily and meds that really work.---triggers for some of mine are weather changes, foods, caffeine, over doing it (which i do nearly daily because of my job), added stresses...just to give u a few
The meds dont work thats the problem. Im so sorry to hear youre going through that, sending you gentle hugs. I really do hope you find relief or get answers. After I seen a naturopath doctor my pain completely went away today (11/25/23) i completely changed my diet, i workout lifting weights (as heavy as i can) 5x a week plus cardio everyday. I eat a very protein forward diet 120-150g a day, cut out ALL the bad stuff, take vitamins and pre/probiotics. It was the baby steps for me and consistency. I havent had pain and or a flare in months.
I don't have a trigger...I wish I did...I don't have any signs the day before either. It seems like I've had Fibromyalgia for years but only got diagnosed this year in May. My flare up in May lasted for about 3 months... I was good for about 1.5 months... Then another flare up that lasted lasted for about 2 months. I just started to feel better about 2 weeks ago. I lost my job because of my flare up. I mean they said other reasons but i know and they know the real reason is because i called out. :/ I work in Kitchens... Or rather i used to work in kitchens. My stamina on a good day right now is about 2-5 hours... Then i have to rest for about 6 hours before i can do anything else. The exhaustion after doing nothing and the pain in my joints and my muscles and the burning sensation all over on top of my other illnesses... Too many to list... Are debilitating. :/ I hope and wish that everyone has a better 2024 then 2023. Please take care of yourselves!! Edit: Thanks for sharing the stretches... I'm going to try them tomorrow.
I hope you find relief and better days. I know for me not being active just made it worse. As we age our muscles atrophy i want to say i ready about 3% each year. For us with fibro its more detrimental because of all the symptoms that come with not using our muscles like we should. Its hard i know, and the though of moving when we are exhausted does not feel good. For me, i started going to the gym not using any weights just doing movements and also changing my diet once again. Now we are talking baby steps and very very gradually. I havent had a flare in months and no pain as well. I honestly believe our fibro has a lot to do with our gut, some studies ive read would agree. Every single one of us is different and our bodies reaction different too so give yourself grace. Sending gentle hugs🩷
I think there are a lot of things that can make it worse...Stress, too much not enough sleep, the weather, mental illness, not enough too much exercise, etc...Thank you...
I do a energy used log. I think it's from over doing it sometime that week. I use a massage gun on heavy days even if I don't need it. when I do have a bad day I have been doing wim hof breathing technique and that seems to be helping I also take k2 d3 .
I know this is very bad that you’re going through yes absolutely mine just kind of rushed in all in at once and has just kind of reminding me to rest rest rest
My symptoms are daily but flares coincide with my cycle. I feel like I've been thrown from a moving vehicle. You want to run from your body but can't. Hell.
Stress is hard to avoid lets be honest, life can be tough. I had to teach myself to pick my battles and just care less about the things I can't control. That takes practice and time but I also made diet changes and I started moving. Walking at first then adding very light rowing for 10 min max. Then using cable machines at the gym with no weights and slowly increased. Now I'm lifting heavy and doing cardio 5x a week with zero issues or flare ups. I eat a high protein diet and never looked back.
I definitely can do all of those thank goodness. Of course I do all the clean versions (organic, 100% grass fed, pasture raised etc). What ive learned is to each its own, everyone and their bodies are unique and the key is listening to your nody and making changes based on that.
I have all the symptoms specially low blood pressure which makes me so dizzy that i start getting balancing issues.. plus i feel very uneasy around my chest area, nauseous, my bowels get disturbed, bloating, gases, pins n needles in hands n feet, i just dnt feel myself n sometimes its just hard to discribe what i am going through.. do u get dizzy all the time ??
@@PieperNakiFamyes that's hypomobility or heds do you have stretchy skin to IE neck elbows and do you heal with keyloids like raised.are you double joints all over IE thumb to wrist
I have fibro flare ups quite often. To add to the other symptoms I have vertigo. I had it so bad last month that I was hospitalized. My feet and legs hurt and I am just a mess. I sleep two hours a night and the next day I am useless. I try not to complain it has become a way of life. May God continue to bless each and everyone who suffers from Fibromyalgia.
Im so sorry, sending you gentle hugs always. Hope you find relief❤️
The past 3 weeks have had an "onslaught" of symptoms and pain. My body has felt heavy all over. Sleep is not diminishing the exhaustion. Eating has not eased the total discomfort of my body. My heart goes out to you and others who get debilitated.may the Lord help us all.
Sending you gentle hugs my friend, hang in there the world always needs you🤎
I have the same thing. My throat, fatigue, feeling off, forgetting what I'm going to get on my way to get what it is I forgot and body aches. Mine I figured out are mostly caused by over doing it. Fatigue so bad it's hard to talk or listen. Can't even listen to the tv. Hope you're feeling better. You are not alone.
Oh no... sending gentle hugs and love and light your way. Yes we arent alone🤎
@@PieperNakiFam foods
I'm crying watching this. I can so relate. Love and hugs to you. I know even hugs can hurt.
Thank you, sending gentle hugs right back atcha!!
I can relate to how your feeling. I have Fibromyalgia as well, it's not easy to live with 😞😞Hang in there Hun ❤
You too sis! Keep that head up❤️
I didn’t know what I was dealing with for the past 2-3 yrs. I started feeling extremely exhausted and aches and pains all over constantly feeling like I was going to catch a cold or flu. I went from being very active to feeling weak and hurting all over. I didn’t have health insurance at the time so I just dealt with it and it was soooo hard on my body. This past summer I was diagnosed with fibromyalgia and though my rheumatologist says I don’t have Lupus, my ANA levels were elevated but she said she wasn’t worried about lupus at the time. This New Years Day I was having a bad flare that lasted the entire day. We celebrated with family and had a great time but gosh I paid for it dearly(I don’t drink alcohol)and in bed all day long. My knees hurt constantly, the pain in my hands is getting worse, my elbows constantly hurt, I get a pain on the right side of my throat, and my feet are in terrible pain especially my arches! My podiatrist says the pain in my arches is due to the fibro. It doesn’t help that I also have neuropathy. My life went from living a decent life to a life of hell. This is a horrible disease.
Where is your neuropathy how are you now
@@Truerealism747 My neuropathy is in my feet and legs. I have a better grip on it now with meds, of course. I still get fibro flare ups, but not everyday. It is so hard on my body when I have a flare and have to work. I do have my good days and like to get out of the house sometimes on those days and do some of my hobbies I have missed doing. How are you doing?
@@jennym.9099 struggling I have heds I've found I've had CFS before fybromyalgia which to me is same thing ime awaiting to try ADHD meds apparently help fybromyalgia check out Dr lenz now diagnosed asperger's got upper body pain everyday my father had CFS and both his sister's have fybromyalgia now he's starting again with CFS since losing my mum seams highly genetic do you have autism or ADHD or combined.glad your doing better which medication helped you
Going through a flare up for a month now. Taking your suggestions to heart. I’ve had it for years.
This made me cry as I'm going through this myself I can relate to everything your saying it's awful, I get flares much more a month I'm finding it difficult to deal with it affects your whole body and my voice is so different, I get the throat tickle and the muscles around my neck feel different!! Hope you get through stay positive ❤️
@charlie So sorry to hear. Thank you so much and sending you gentle hugs and blessings always❤️🩹
Anything can trigger flares uug. One person could be super rude then I get stressed, I eat something wrong, over do it just a little, not really getting enough sleep even if I sleep for 12 hours I guess it’s not restful, it’s just frustrating. Hang in there we all understand and ur not alone on this fibro journey. Soft hugs 🤗
Yep! TRIGGERS are annoying as heck. Sending gentle hugs right back to you friend!!
Love this! It's so nice to find fellow fibromyalgia creators! Hang in there, we're all in this together hun x much love from the UK
Oh hey friend from the UK ! Agreed. That is why I choose to make videos on it because there werent many out there. Mine has gotten better and I havent had a flare in months.. YAAAAAY! hang in there and sending gentle hugs.
@@PieperNakiFamhow many years did you have it before pain free days that's wonderful
@@Truerealism747 best Guest 5-6 years. I dont have pain at all now that I eat protein forward and workout and do cardio 5x a week. I lift heavy as I can and that seems to keep the pain and tightness away. But it took a lot to get me here, baby steps, walking, then using machines without weights, to adding weights little by little, consistency is everything. Now I have a personal trainer (online) and im pain free.
@@Truerealism747 Also havent had a flare up for about 8 months now
@@PieperNakiFam that's great are you hypermobile?
Gentle hugs, lovely.
Im in a really bad flare up right now. First bad one in months. Theres no apparent reason for mine either. I had a little cry listening to you talk about it, just out of similarities that you talked about.
We'll get through this.
Sending gentle hugs right back sis & WE WILL !!
Thanks for sharing your story and keep the routine going, my dear. Strength, we pray, to continue fighting. 🙏 thanks ❤️
Thank you... Sending love and light your way ALWAYS♥️
Foodie. Very true of your symptoms, for I suffer with CFS. Yes, please, for the link for the things you take, hoping they make a difference for me and others too. Love
Yes maam! I take seed pre and probiotics and daily vitamins for woman from the company Melaleuca🤎🙏 sending gentle hugs!
Please can you do a chronic illness milkshake video recipes??
Hi sister I’ve been living with fibromyalgia 😰…for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine his channel youtube.com/@dromocure
Your are not alone. I diagnose with Fibromyglia too. It is so tiring.
I’m also learning that gut health is directly linked to autoimmune diseases. It’s called leaky gut
YES! 💯💯💯
Just found your channel and so glad i did❤
Well im glad you found us sis💜🦋 Sending you gentle hugs and love always!!
Just saw your post. I am so glad there is a posting about this. When it hits it is no energy, just have to sleep. Total brain fog. I hurt all over, my muscles burn and it feels like ants running under my skin. My muscles are very tender to the touch. I am going to try some of your stretches. What does the ginger lemon do?
Yes. We have to keep talking about it to bring awareness. I feel like nobody talks about fibro and it just breaks my heart!! Know that you arent alone❤️💪 yes I highly recommend them, remember not to push yourself too hard just go as far as your breathing/body will allow. Ginger and lemon has TONS of benefits go ahead and Google it..but in a nutshell lots of digestion aid and improvements and pain reduction and prevention. It is a godsend!!
Same I can’t even get a hug or a massage.. the brain fog is bad ..I’m been having flare ups everyday for a year now I have to sleep with a warming blanket under me cause I feel like it’s too cold even tho I live in a very warm place I have to use sweater and the pins n needles never go away
@@lydiac.2102 i hear you. Sending love and light your way. I hope you find relief🤎
@@lydiac.2102 I am going to have to quit working because of my flares and not spacing out
@@mcollier3101 yeah I started while COVID was still happening so I didn’t work..now I really can’t work it’s hard to even comb my own hair cause I can’t keep my arms up .. as soon as night fall hits i get worse even in a small rain storm as the pressure drops im out for the day….im thinking of doing Disability cause I really can’t even clean my house at times
I’ve been in a Fibro flare. I was recently diagnosed with Rheumatoid arthritis also. Had a Fibromyalgia dx since 2004. I’m a single mom of a 12 yr old and a 9 year old….both boys. I was curious what kind of job you have. Mine is flexible right now, medical. Thank god. Thank u for sharing. Btw, I do ginger lemon shots too, from Amazon
Ugh...I'm so sorry to hear. I did physical labor before in the shiypyard but not im in the Office THANK GOD! My current boss is awesome but that changes when I change projects. So for now its a lot less stressful = less flakes.
I just got diagnosed with osteoarthritis. On top of fibro. Not happy.
@@pamkagamida5495 oh no! Im so sorry, sending gentle hugs your way.
Thank you 😢 you’re not alone
From Lisa...Yes I do get a sore throat , some time the lymph nodes under jaw are tender.... extreme fatigue....The spells like that since I was a Teenager... diagnosed with IBS....then I was in my late 30 or early 40 .. I was told I had chronic Fatigue/ Fibromyalgia... muscle soreness and joint pain in elbows , knees, knuckles in hands.... now I m Have back pain..... Recently diagnosed with Rheumatoid arthritis...Im 60 yrs now.Is there any probotics that are dairy free ...I'm Lactose intolerant ???
YES!! I take the seed brand its a pre and probiotic and it changed my life. They are vegan. Free of gluten, dairy, soy & corn. Its 2 per day before you eat. Btw i have all the same diagnoses except the arthritis. Sending love and light and gentle hugs!
Im lactose sensitive but not intolerant.
@@PieperNakiFam seed Brand I have never heard of it... Where can I get it? Would they have it at a locally pharmacy such as CVS, or Walgreens or Walmart or Meijer store ...?
@@eddiedw1961 Google seed probiotic. I left the link in the description too. You order online and they ship it right to your door😁
How do you get diagnosed properly? I feel I have chronic fatigue but can't get a proper diagnosis
Anyone else experience dizziness with fibromyalgia??😢😢 like daily dizziness is what I get on and off
Yep!! Me
@@PieperNakiFam damn😢on top of me having this crap I also have two bulging discs in my neck 🤦🏻♂️double dizzy. I barely have normal days anymore. It used to flare up like 1 to 3 times a week but now it’s every day ugh it’s very depressing. Thanks for sharing
@@johnthe_don im so sorry, keep your head up bro! Sending gentle hugs your way💜
Yes
@@johnthe_don I'm the same but in my back. And osteo arthritis on the facet joint of those discs. I reckon it makes the fibro play up more than it should. It's funny I didn't know I had a bad back. Everytime I see my doc he asks if the fibro has moved around or anything and one day I just told him about the nerve pain in my leg (I was getting bad nerve pain all around at the time) I just thought it was fibro. He looked at me weird and he said "what your describing is sciatica not fibro haha". What do you do for pain relief? I have a feeling there is more going on in my neck too though. It gets so stiff and sore sometimes causing headaches and tingling through my shoulders.
I suffer with fibro myself..what brand probiotics do you take? I'm trying to find the right brand as I suffer from gerd looking for a gd prebiotic for the acids in my gut.
Having a flare today....can't function....no reason for my flares and when they happen or how often they last. I get a cough and sore throat but hadn't linked to being apart of the flare up. Interesting. I how you recover.....wish people understood hiw it feels to live with this illness. X
Sending gentle hugs... i found journaling daily really helps making sense of things but it took years to come together and make sense. Yeah I understand completely especially because our illness is invisible. Keep your head up💕
When I go to bed I feel the back of my hands itchy, and my legs especially have like a pulsating vapor of pain over my body, especially my legs. I feel like I’m hit by a bus in the morning.
I can say that being on my phone for too long, hurts my brain and worsens my fibromyalgia
Im so sorry❤️🩹
If I have a flare that prevents me from going to work I certainly wouldn’t have the energy for the skin care routine you advertised. I sacrifice other energy sucks so that I can continue to work. If I don’t have the energy for mascara then I don’t apply mascara. If I’m too nauseous because of pain I go to work and take my meds as I can. I live for days that I can nap because I don’t have the option to call off work, I don’t have the option to not be an active mom. It often makes me wonder, are my fibromyalgia symptoms not as bad as others or am I stronger and more determined than others? I have the intense pain…it takes my breath away! I have the intense fatigue…I cry facing simple tasks. I definitely don’t put energy into skincare to the extent she does if I’m flaring enough to call off work!
Im so sorry to hear this. I can say that everyone experiences flares and symptoms differently so to each its own. You do you and whatever your body allows dont ever think myself or anybody is telling you that you should be doing more or less. Bottom line is listen to your body❤️
I havent had a flare in months, ive changed my diet once again and successfully added weights lifting and cardio 5 days a week. It took baby steps but im here now. I hope you find relief, sending gentle hugs always!
slept 13 hrs..this sounds like a dream on its own.... I'm in so much pain daily i barely sleep 4hrs a night, rolling constantly because of pain in hips, shoulders or muscle spasming and general pain...
.. i wish i could sleep more normally, even if its not as restful...during my pain flares not only do i continue to work my 45+ hour a week physically demanding retail job but i workout and eat healthy..nothing much seems to really help the EXHUASTION .. we need more help with how to function daily and meds that really work.---triggers for some of mine are weather changes, foods, caffeine, over doing it (which i do nearly daily because of my job), added stresses...just to give u a few
The meds dont work thats the problem. Im so sorry to hear youre going through that, sending you gentle hugs. I really do hope you find relief or get answers.
After I seen a naturopath doctor my pain completely went away today (11/25/23) i completely changed my diet, i workout lifting weights (as heavy as i can) 5x a week plus cardio everyday. I eat a very protein forward diet 120-150g a day, cut out ALL the bad stuff, take vitamins and pre/probiotics. It was the baby steps for me and consistency. I havent had pain and or a flare in months.
Hi understand you're pain I'm in the same boat and no one understands
I do. Sending gentle hugs your way, you are not alone.
I don't have a trigger...I wish I did...I don't have any signs the day before either.
It seems like I've had Fibromyalgia for years but only got diagnosed this year in May.
My flare up in May lasted for about 3 months... I was good for about 1.5 months... Then another flare up that lasted lasted for about 2 months. I just started to feel better about 2 weeks ago.
I lost my job because of my flare up. I mean they said other reasons but i know and they know the real reason is because i called out. :/
I work in Kitchens... Or rather i used to work in kitchens. My stamina on a good day right now is about 2-5 hours... Then i have to rest for about 6 hours before i can do anything else.
The exhaustion after doing nothing and the pain in my joints and my muscles and the burning sensation all over on top of my other illnesses... Too many to list... Are debilitating. :/
I hope and wish that everyone has a better 2024 then 2023.
Please take care of yourselves!!
Edit: Thanks for sharing the stretches... I'm going to try them tomorrow.
I hope you find relief and better days. I know for me not being active just made it worse. As we age our muscles atrophy i want to say i ready about 3% each year. For us with fibro its more detrimental because of all the symptoms that come with not using our muscles like we should.
Its hard i know, and the though of moving when we are exhausted does not feel good. For me, i started going to the gym not using any weights just doing movements and also changing my diet once again. Now we are talking baby steps and very very gradually. I havent had a flare in months and no pain as well. I honestly believe our fibro has a lot to do with our gut, some studies ive read would agree.
Every single one of us is different and our bodies reaction different too so give yourself grace.
Sending gentle hugs🩷
I think there are a lot of things that can make it worse...Stress, too much not enough sleep, the weather, mental illness, not enough too much exercise, etc...Thank you...
Agreed!!
getting upset,or too much drama is triggering myF/M flare up right now
Yep ! That will do it. Sending you gentle hugs friend.
I do a energy used log. I think it's from over doing it sometime that week. I use a massage gun on heavy days even if I don't need it. when I do have a bad day I have been doing wim hof breathing technique and that seems to be helping I also take k2 d3 .
THANK YOU! i did get a massage gun and my whole family loves that thing!!
I know this is very bad that you’re going through yes absolutely mine just kind of rushed in all in at once and has just kind of reminding me to rest rest rest
Take care and I’m glad that you’re videoing and I think that I might to just log my days
Thanks for this information but the music is so loud...not in a bad way as i also having Fibromyalgia everything is amplified 😢
I didn't realize it and I'm sorry you don't feel great friend. I'm going to fix it now🩷🫶
Yup I feel that throat thing crazy huh ?
Yep. For sure!
My symptoms are daily but flares coincide with my cycle. I feel like I've been thrown from a moving vehicle. You want to run from your body but can't. Hell.
Ugh! Im so sorry & i know how you feel. Sending gentle hugs your way, hope you have a great holiday!
Almost anything can trigger a flare, certain foods and or drinks, even certain fragrances , stress, anxiety. I know mine is caused by stress.
Yep I hear you! I made changes slowly so it's gotten better and now I don't have flare ups at all🙏🙏🙏😭
Stress is hard to avoid lets be honest, life can be tough. I had to teach myself to pick my battles and just care less about the things I can't control. That takes practice and time but I also made diet changes and I started moving. Walking at first then adding very light rowing for 10 min max. Then using cable machines at the gym with no weights and slowly increased. Now I'm lifting heavy and doing cardio 5x a week with zero issues or flare ups. I eat a high protein diet and never looked back.
What type of doctor did you see for nutrition? I have serious guy issues
Gut
Interested in the vitamines…
Aloha Vanessa! You can email me @kuuipotodd@gmail.com I'd be happy to give you the brand and name of the vitamins.
Hopefully this wont get me in trouble...its melaleuca vitamins for woman.
Food makes a difference, absolutely no tomatoes or tomato products. Meat is bad for me. And of course No grains, no dairy
I definitely can do all of those thank goodness. Of course I do all the clean versions (organic, 100% grass fed, pasture raised etc). What ive learned is to each its own, everyone and their bodies are unique and the key is listening to your nody and making changes based on that.
Please tell me about your supliment please reply
Its vitamins from Melalueca
@@PieperNakiFam what is this
@@usmantahir2659 I have Fibromyalgia and sometimes I have these flares that I talk about in the video.
I have all the symptoms specially low blood pressure which makes me so dizzy that i start getting balancing issues.. plus i feel very uneasy around my chest area, nauseous, my bowels get disturbed, bloating, gases, pins n needles in hands n feet, i just dnt feel myself n sometimes its just hard to discribe what i am going through.. do u get dizzy all the time ??
@@11silky Yes i do! Im so sorry youre going through this, its definitely tough!
Are you hypermobile?
No im not. Im double jointed, not sure if that qualifies.
@@PieperNakiFamyes that's hypomobility or heds do you have stretchy skin to IE neck elbows and do you heal with keyloids like raised.are you double joints all over IE thumb to wrist
@@Truerealism747 im double jointed elbow only and sometimes I heal with keyloids, depends on the damage.
@@PieperNakiFam seams most with fybromyalgia have at least some hypomobility ime hypermobile all over it's also related to mcas issues
@@Truerealism747 ive heard this before from a few people, interesting!
culprit: microwaves. it can last 2 years before musclepain goes away
Wow! Never heard that one.