I have had fibromyalgia for 25 years. Weather is a huge trigger for a flair up. Humidity is my enemy. Pain pills help, but can’t get them from a Dr. one pain Dr told me to smoke pot, I think he was high. Told my primary and he almost fainted. You can’t get help from a Dr. so I eat pot cookies. This does help some what. I want to start a support group. No one understands how miserable and painful fibromyalgia is.
I've also had fibromyalgia since I was a kid, but it has only been diagnosed three years ago , because all the doctors that I would complain, and when I was a child it was my aunt explaining to them my symptoms and how weird they were, and one of the things that I take is tea from the pot leaves.
@@Nan-59 One solution I’ve found effective for fibromyalgia and a ton of other conditions is Bemer vascular therapy. I’ve been distributing medical devices for 15 years and this is the first I’ve seen that helps at the root level, the blood flow and toxin elimination. Eating right can help eliminate toxic buildup, however. If you don’t want to stop eating the foods you love, increasing blood flow and lymphatic draining by 30% will do the same. PEMF technology is incredible, it’s Star Trek healing L😆L Albert Einstein said "Future Medicine will be the Medicine of Frequencies" This quote is ringing through loudly now with Radiation therapy, X-ray machines, Magnetic Resonance Imaging (MRI) PET and CT scans, and ultrasound have all become commonplace and all fundamentally harness the power of different types of waves and their specific frequencies that occur in nature. Bemer has been studied extensively and found to increase the ATP of the cells by 20%, creating energy at the source of the cells mitochondria itself, no need for coffee, drugs, or anything else. No need to suffer any longer, if anyone wants help getting a hold of a bemer to try, I’m happy to help. 513-828-2277
One solution I’ve found effective for fibromyalgia and a ton of other conditions is Bemer vascular therapy. I’ve been distributing medical devices for 15 years and this is the first I’ve seen that helps at the root level, the blood flow and toxin elimination. Eating right can help eliminate toxic buildup, however. If you don’t want to stop eating the foods you love, increasing blood flow and lymphatic draining by 30% will do the same. PEMF technology is incredible, it’s Star Trek healing L😆L Albert Einstein said "Future Medicine will be the Medicine of Frequencies" This quote is ringing through loudly now with Radiation therapy, X-ray machines, Magnetic Resonance Imaging (MRI) PET and CT scans, and ultrasound have all become commonplace and all fundamentally harness the power of different types of waves and their specific frequencies that occur in nature. Bemer has been studied extensively and found to increase the ATP of the cells by 20%, creating energy at the source of the cells mitochondria itself, no need for coffee, drugs, or anything else. No need to suffer any longer, if anyone wants help getting a hold of a bemer to try, I’m happy to help. 513-828-2277
I’ve read that approximately 78% of people with fibromyalgia have suffered a severe neck injury. It makes sense, considering the nerve damage caused by a severe neck injury.
🤔 I too have had my neck injured . Add another to the list of possible causes. I want to say eating anti - inflammation food's do help. I like sweet potatoes yum.
I was diagnosed with fibromyalgia 7 years ago and the Dr prescribed deloxitine 30 mg this has helped me through the pain and being able to focus. Without I don’t know how horrible I would feel
And with the paranoia about pain meds going on, I know this is not a popular statement. But I took Vicodin for 4 years, very low dose, for my fibro pain. It worked great. I never had to take more, or have anything stronger, in 4 years. Then some doctor somewhere came out with "Oh, narcotics don't work on Fibro pain." My doctor abruptly stopped giving them to me. It didn't matter that it HAD worked for 4 years for me, or that I was finally pain free for the first time in decades. She suddenly didn't believe it was working for me, because some doctor she doesn't know said it didn't work. If the doctor said so, it must be so. After all, what did I know? I was just the person feeling the pain relief.
@@mariamiller1435 There are a lot of meds that do NOTHING for me. Tramadol and fentanyl are the pain meds that don't work on me. I was in a car accident, and at the hospital, the dr. gave me a full dose of Fentanyl. An hour later he came back and asked how I was doing. I told him that the med didn't lessen the pain in the least, and he offered another dose. I told him, :"Look, I know my body. A 5/325 Vicodin would take more pain away than the stronger ones." Now, Demerol works, but Percocet leaves the pain and adds hallucinations - so I'm in immense pain And I'm seeing giant bunnies in our (non-existent) gazebo.
I’ve had fibromyalgia since I was a child, I’m in my 60’s now and only got a diagnosis six years ago by chance as I reached the tip of the iceberg. I had such chronic pain which was exacerbated by working in a highly stressful job and working environment that was toxic. My doctor finally sent me to a rheumatologist because of the pain, a psychologist for work stress and eventually told me to give up my job it’s to much stress. None of my blood tests showed any abnormalities, my scans showed degenerative osteoarthritis and a nerve impingement in my back. No blood tests showed raised cortisol or inflammatory markers. The rheumatologist did an examination and asked me questions she then said your pain isn’t from osteoarthritis it’s fibromyalgia. So that was that, the only comfort I had was a label to the symptoms. Over the next year I had one follow up with the rheumatologist and saw my doctor several times in chronic pain she prescribed anti nausea and pregabelin, I was also offered and prescribed opioids! I was also referred to a specialist pain clinic. I then decided to take responsibility for my health as clearly conventional western medicine wasn’t helping me, I became more focused on my mind and body management. The pain clinic helped as there was an umbrella of different specialists helping manage chronic pain. Interestingly the all recommended a wellbeing holistic approach and none of them thought that taking pain killers were the answer. Within a week of my pain clinic attendance I had stopped taking pregabelin. I continued to attend the pain clinic once a week for nearly a year. I have to say if only one doctor in my many years of suffering and complaining about fibromyalgia had been educated and understanding of this chronic condition which we are not allowed to call a disease, if just one doctor had thought about the classic tell tale symptoms and been able to diagnose it then my label and education would have prevented years of suffering. If only one doctor thought to prescribe wellness medication instead of drugs that would also be crucial. If only one doctor had a leaflet to explain fibromyalgia to patients to educate them it would be a step forward. My education, my daily practices with healthy nutritional foods, becoming a vegan, very little gluten, sugar or processed foods, intermittent fasting, beneficial exercises, qigong tai chi, tapping and self massage, yoga, Pilates, moderate weights, walking, hydrotherapy, swimming warm baths,aromatherapy, all cost me very little, even 10 minutes of qigong or meditation can slow down your breathing, my health has improved as I now understand what makes it worse a daily practice becomes a habit, new habits can be positive outcome and bad habits or addictions can be unlearned in as little as 30 days. Within 6 months I lost 10 kilos and my cholesterol LDL lowered. I want to loose another five - eight kilos but slowly wins the race. I still battle with elevated leptin, irregular Hashimoto thyroiditis and fibromyalgia flares are similar to hashimoto flares. I also battle peripheral neuropathy symptoms, flushing and irregular body temperature along with wide spread pain, and chronic fatigue from insomnia . Oh and I gave up the toxic day job :)
Seven years of hell in a toxic work place was the worst experience ever. Added to which a lot of personal stress. Stress has to be the most important factor that exacerbated pain stressors. How we respond to stress is so hard to manage but so crucial.
“Within a week of my pain clinic attendance I had stopped taking pregabelin. I continued to attend the pain clinic once a week for nearly a year.” What is done/taught in the pain clinic? Thanks
@Osmond Dsilva The pain clinic I attended is a run in a public health hospital for people suffering with chronic pain, ie. people that have pain for longer than three months associated to disease or conditions that cause ongoing pain such as auto immune disease, arthritis, fibromyalgia etc. There’s a medical team that run’s group classes within their specific specialty, physiotherapy, psychology, occupational therapy, feldenkrais therapy, exercises and Tai chi They didn’t offer nutritional advice which was a shame but I have changed my diet with my own research. The object is to educate people to manage their pain with acceptance, using mindfulness, meditation, looking after your physical and mental health with CBT or understanding the triggers for your stress and pain, these are beneficial tools as alternatives rather than drugs, or if drugs are essential adopting these habits they still offers many benefits Understanding that medication is often a band aid and doesn’t cure the underlying symptoms. Medication can also have a knock on effect which can add to the pain and issues rather than help. Putting yourself first to care for yourself with kindness and time, to ramp down stress helps create beneficial neural pathways. Many people with fibromyalgia have central nervous system hyper sensitivity, so pain becomes heightened when stress factors come into play. Many people with fibromyalgia try to do to much and please to many other people or over exercise to the point of exhaustion. Learning to set small goals or tasks rather than overloading was also part of pain management. My routine everyday have become habits, it’s not a cure but it’s my preference with dealing with my pain management. I hope you find this information I'm not sure if these options are available to you where you live but most of these resources can be done with your own research. If you want any links or further I'm happy to let you have my TH-cam links for qigong, restorative yoga, Pilates and meditation.
It's so nice to hear this. The rheumatologist I saw said I had fibromyalgia. She said she was sending me back to my primary care provider cause all u can do for fibromyalgia is an antidepressant. She said she would not have to see me again
I went to a rheumatologist who didn’t believe in Fibro. He did all these test, special test and they all came back negative. Nothing wrong. He says, “well maybe you do have fibro.”
@@rochellecorlett8263 my provider did a bunch of tests on me as well. I had a negative ANA no inflammatory markers, etc. She put me on a low dose of amitriptyline and it helped the migraines and upper shoulder and neck pain. I still have pain everywhere else though.
I was diagnosed at the age of 72, there were some symptoms on the low side, but they were confined to my upper back. Slowly my whole body was effected. Burning pain in the upper buttocks and down my thighs outer legs and to the feet. I found out that lower the anxiety less the pain.The burning can move from back to front, some days more on the back and some days more on the inner of arms and legs. Above all you loose words to describe it and that’s the reason it’s misunderstood condition.
You have oden very well explaining it. I have other problem too and have had lots of surgery and still have another hip and knee to go. But I have to use a warm pad and sometimes sit on it, and moved it al over my body, before I get bathed or dressed. I am in such pain it kills me. I do take pain meds but the side effects worry me but need to have something that is for sure. I am exhausted and have leucopenia too and many things like 'severe arthritis'(according to my orthopedic, and se an Oncologist too now) and cannot sleep right and yet exhausted. Seems like more and more is added to it? My physician will not even want me to see the Rheumatologist and I may have to just go and he sends me to the Orthopedic and I keep needing spine surgery, knee and hip surgery. I had MERSA Infection nonce way back in 2000 and almost died. Re opened and that is why. It is very hard to get through it and i am 72 yrs old too! I take Pregabalin an Ultram and Tylenol and other things like Zoloft and other things anyway. . I do think the medicine helps some though and without it I would be in trouble , much worse trouble. I try hard to get up and dressed and do housework and it is horrible and will say, my husband will help me through and I am lucky. But then some days I cannot get much done at all. Weather certainly doe play a huge part. My husband has to hear it all and I do not mean to do it. I could be a meteorologist and not even need anything to go by, just my body! You are perfectly right, we cannot have stress in life! Most people cannot understand, because you may "look alright" to them, anyway! Thank you for placing so much into words as you have done a fine job!
In addition to all of the symptoms talked about I found being in sunshine too long is a killer for me. Pain across shoulders, feeling faint and total exhaustion. Within minutes of getting indoors and cooling off, I'm better.
I've always avoided the sun but I was diagnosed with Lupus just out of high school. Fibro came later but the heat makes me feel like you do. Exhaustion, burning pain, etc. Not fun. What gets me is high humidity or big swings in the barometric pressure. I'm in a flare now because of the big storm that came through a couple days ago. Lots of pain all over. Heating pads, ice packs, and my therapy cane are my best friends right now. Kind of out of left field but I try not to spend to long in stores under florescent lights because they really bother me. Just wondering if anyone else has that problem?
I will tell you what put my fibromyalgia to rest for a while. I had a cardiac arrest and was put into a coma for 5 days while they lowered my body temperature. I woke up and felt better than ever. Consuming sugar brought it back with a vengeance.
I'm pretty new to my fibromyalgia diagnosis,. I'm 33 years old. I do believe I have high levels of inflammation due to the fact that I have a few inflammatory health issues aside from fibro. One is interstitial cystitis, hand eczema, Holmes aide syndrome ( pupil inflammation, light sensitivity), & gluten intolerance. All started in my late teen years , 1st the pupil problem, then in my late 20s my interstitial cystitis problem ( painful bladder syndrome) and then my hand eczema and gluten intolerance in my early 30s. I've had also to deal with anxiety & depression, low energy, coming and going pain in my neck and shoulders as well as my arms. And now that pain is in my legs , my hip muscles, and in my face mostly cheeks. Joint pain in my knees, elbows, lower back, hip area etc. All these I had to mention to my doctor and sure enough I had fibromyalgia. What I notice is that symptoms are not consistent, sometimes I only have muscle pain, other times is my emotional state and fog , others fatigue or exhaustion and soreness like if I got beat up. Hope this helps someone
I had no idea about all the different symptoms!!! I have most of those and pain as well... Time to talk with my Dr and see what she thinks... Thanks for posting these videos❤
My inflammatory markers have been seen in my blood work before . It’s actually how they first noticed there was a legitimate issue occurring because I had gone to the er over the course of three days experiencing my first major flare and they didn’t know what to make of it and dismissed me until the third time I went in crippled with pain and swollen. It was in that blood work that high inflammation markers showed up. They still didn’t know what it was but were more inclined to believe I wasn’t faking and so my dr at the time then ordered rheumatoid testing on me . My positive Ana got me sent to a rheumatologist and they diagnosed me with fibromyalgia. I’ve been on gabapentin for a few years now
My experience was very similar. I woke up one morning in extreme pain and I panicked because I’ve never felt pain like that before. I called my Doctor, and he ordered some blood tests and they found out that I had a high level of ANA. I got some more bloodwork done and a couple of x-rays but they couldn’t find the cause of the pain. I then got sent to a neurologist who was trying to see if I had sciatica but they didn’t find anything. I was then blood tested again, high ANA and high sed rate. After that they put me on hydroxychloroquine, then prednisone. I ended up going to another rheumatologist because the first one saw a high level of anti phospholipid antibodies in my blood work but didn’t mention it to me. They took more X-rays and did an AVISE test, and while I had a decent amount of autoantibodies, it wasn’t a high enough level for a positive diagnosis for lupus. So they put me on meloxicam and Lyrica. They don’t help much and the pain in my hands is getting worse, so my rheumy basically said we are waiting for joint damage to show up on an X-ray or ultrasound and they will add RA to my diagnoses.
Mine is definitely inflammatory. They can’t measure it but my body tells me when my joints go stiff, I’m more sensitive to touch, allergies flare up, skin itches and so on. If it comes after an infection it is worse. I don’t have depression, those meds make me numb and miserable. My sleep is mostly fine. For me it is stress and inflammation only. CBT just drove me crazy, I tried it for 9 years.
I have tried both lyrica and gabapentin and they both caused me to gain weight very quickly! I now have 50 pounds that I cannot lose no matter what i do.
While sleep deprivation seems to be a commonly discussed symptom, I'm wondering if it's a subsequent symptom. I have not yet been diagnosed with fibromyalgia, but I have severe pain in my arms, shoulders, across my back and and shoulder blades. One problem for me with this is that it is very difficult for me to sleep because lying in bed is painful. If I sleep on either side, it's painful. If I sleep on my back, it's painful As a result, I rarely ever get more than 3 hours of sleep at a time and I'm often awake for hours during the night. This in turn causes me to not be able to function mentally, and I do get fog as a result of the poor sleep.
Sadly all your symptoms point to fibromyalgia. I am fibro warrior of 32yrs o get by on 10hrs sleep a week I'm half the personi was. The only way I get sleep now is if I rake my neds that make me a zombie which at least once a week o do just to obtain false sleep and test my brain and body. Gentle hugs. Bless you x
I have leukaemia fibromyalgia and 2 types of arthritis sinusitis damage to my back and neck nerve damaged due to bone fragments cutting nerve now dead leg white matter disease of the brain and due to chemo had my c pupuls stuck to my irises have had surgery to fix that life socks at the moment the absolute worst thing for me is the sweating and then the cramp torture I take iron and magnesium and drink tonic water , dose anyone know of anything else I can take to stop the sweating as it's killing me?
@@pauleenwhite6132 I sweat alot too and it is horrid. at certain times of day or in night, Perfuse sweating. Am not sure what to do to stop it, but would be interested too I know they have meds I guess for it and was thinking of asking a Dr as my Dr has to prescribe me alot now. I have the Leukemia/ Neutropenia and Fibro, severe arthritis ( also needed surgery on left knee, right hip and three spine surgeries so far, and ready for another spine and right knee and now left hip surgery. Have so much it is ridiculous. Used to dance, and worked hard and was active. now just had to put in stair climber, it is sickening, Am now 72 yrs old and the Hematologist. Oncologist does not care much about the surgeries as of the low White count and can understand and they try to keep me safe, but yet these things need to be done, I want to walk and move, if possible, in later days. I think certain meds may help it, but not sure about what else? It is embarrassing and very upsetting to deal with, I can understand.
I have had fibro for many years but got diagnosed 6yrs ago. The main thing for me and managing pain and inflammation is diet. Since cutting sugars and oils I have had a massive turn around in pain and fatigue. Nothing processed, all natural clean food, cuts of meat or chicken or fish and everything that has been grown naturally. I've stopped all meds and use tens machine when needed. I got sent to rheumatologist as my RFS bloods came back at over 17 and the standard I believe was much much lower so that got flagged by GP, which I am very lucky to have a fantastic one.
I came here because my mother has fibromyalgia.Its really difficult to watch her be in pain all the time. She has gone to countless doctors, and none of them can help her. They will not give her pain medication. I wish I could tell them how difficult it is to watch her be in constant pain. I feel like no one really understands how tough it is on me! She always is in a horrible mood. She rarely leaves the house, because she has constant migranes, joint pain, fatigue, and the list goes on. I really need an option to help her. Ever since I was little she extremely rarely does anything with me. She can't sleep, so this makes her tired all the time. I have prayed my whole life that she would be healed to no avail. if you have fibromyalgia and you have a way to cope with it , please tell me! 🙏
Have flax and hemp. A lot of omega 3's with curcumin and MCT. Vit B + Vit D. You said she has difficulty in sleeping. I get that. From what i have learnt from personal exp; it's not only enough we get adequate sleep but it's imp we sleep at the right time. Check her blood sugar levels and thyroid (anti tpo). Stress is a inflammatory. Peace n Love is essential. takes time for what years of stress or crappy lifestyle n toxic relationships has done to our done to our bodies. Pls do have lots of omega3's and see. I believe there will be a difference. Do check for food sensitivities. That is a also a big factor. Some feel a lot better wen they drop lactose or gluten from their diet.
I have been suffering with fibromyalgia for over 35 years. I am in constant pain also. Does your mother cook or do any household chores or does someone do them for her? My husband wasn’t much a help to me in my first years of fibromyalgia so I kept up with household chores for a long time. It was probably good for me in a way, as it gave me a purpose and forced me to move. It has become more difficult for me now. My husband passed a few years ago so I take care of myself. Does she like to swim. Swimming has saved my life. I go to the YMCA. I can’t do Aquafit exercises anymore, so I just put a water noodle between my legs to take the pressure of my painful hip and back. I swim gentle lengths for about 25 - 35 minutes. It feels so good. The water is so soothing. Even if she can’t swim, she can just do gentle stretching in the pool and even go into the children’s pool which is really warm. I always put my swimsuit on under my clothes before I go to make it easier on myself. I still. Try to do some things with my grown children and grandson. I really do feel bad that I can’t do much with my grandson, but we play cards and play games together. Maybe you two could just go out for a nice lunch or dinner somewhere nice. Or maybe go and see, or watch funny movies together. I just booked a hotel room about 45 minutes from where I live to get me out of the house for three nights. It has a lovely pool and restaurant and is close to things in the town. I know it is going to be really difficult for me to get ready to go and to get there, but I have to try and keep living the best as I can. Like your Mom, I a struggle every single day with exhaustion, pain everywhere. Most of us just want to give up sometimes. I feel so sad for you that you cannot make some good memories with your Mom. Where do you live? She has to get some kind of pain medication to give her some pain relief. The pain can be excruciating all over our bodies. You should search on Google for a fibromyalgia doctor or pain specialist in your area, and get a referral from her doctor for them. Her doctor can’t just leave her suffering like that. I am on a low dose opioid which is very controversial right now. My doctor is trying to get me off them. I can’t tolerate any other medication. I have tried them all. When my pain is at its worst, my blood pressure goes up, my blood sugar goes up, and so does my anxiety. I cannot function or take care of myself. When I take my low dose medication, I can go swimming, shopping and cook for myself. My medication doesn’t take all the pain away, but gives me enough relief that I can do things. Your poor Mom. She needs help. Has she gone to a pain clinic? You should go to her doctors appointments with her and explain that she has no quality of life. How old is she and how long has she been suffering? Hope you can get her some help. I am lucky that. Have never suffered with the headaches and I don’t suffer from depression. She is lucky to have you. Give her a very gentle hug from me. ❤️🇨🇦❤️🇨🇦. Just noticed that this posting is from nine months ago. Hope she has found someone to help her by now!
I agree with you. I was married to a Balinese man so we would go to Bali often I’m from Australia. I always loved water & swimming. I found that it helps with my fibro tremendously. After 25yrs of marriage & 2 kids we seperated & I had a nervous breakdown also cause my childhood wasn’t easy. During my breakdown I experienced the most horrible chronic pain physically & mentally that I thought I would die. I was rushed to hosp cause I couldn’t walk, or move at all it crippled me. The hosp gave me morphine & not even that worked. After 5days of not barely eating or sleeping cause they wouldn’t give me much meds until they knew the problem. At first they thought I had a heart issue, but that wasn’t it. I would scream day & night to the point that I wanted to commit suicide, & I had nurse assistants next to me always to watch over me. Then I was moved to the neurological dept & on the 5th day I was diagnosed with rheumatoid arithritis due to stress. For 5yrs I went through hell cause meds & injections wouldn’t work due to high levels of inflammation. Prednisone swelled me up like a balloon when I use to be a petite 8 stones & people couldn’t recognise me. I ended up finding a great rheumatologist who organised infusions of ritaxamab every time my levels went up which after a few yrs they became normal. These infusions cost $20,000 each time but here in Australia cause I was a candid for it I didn’t have to pay a cent. Moving on abt 3yrs later while checking my wrists he found I had fibromaglia. I thought oh great it can’t be worse than rheumatoid but omg little did I know but now in 2024 & at 64yrs old I suffer pain every day & spend many days in bed. I can’t work hardly do anything. I even isolated myself & hardly see my friends or go out. The fatique is also unbearable. So many nights I cry myself to sleep thinking how I use to be with my own business & a great life. I don’t get support from my ex, my kids are fantastic & my mum but I feel so lonely yet I want to be alone. I’m on 90mgs daily of cymbalta & try to take 75mgs twice daily but I hate the side effects of sweating, dry mouth, my vision playing up & weight gain yet I have no appetite. I must admit lyrica helps but it’s a constant battle & unless you have it no one knows how bad it is. This all occurred cause of trauma & stress in my life, so plz everyone try to relax & be careful. The only hope I have now is that they find a cure. I’m really bad at the moment & due to go into hosp to have a brain & pet scan, but honestly if it fibro what can they do. Let’s all pray & hope that a discovery will be made on this cruel syndrome to live a normal life. I’m at my lowest point & sick of people saying but you look good, but most of all people not knowing abt fibro & esp doctors who don’t have a clue & won’t prescribe certain drugs. You become a dr to have compassion & help patients with pain, yet they worry abt losing their license & becoming addicted to meds. I instead believe that people are more likely to die from suicide due to chronic pain than taking a tablet that will save you from suffering. Think of alcoholics & smokers who can purchase them freely & die from it. The system is flawed & the fda should change its view on prescribing medication. We are not drug addicts just purely people suffering & hoping for some relief to put a smile back on our face.
My sister and I both developed fibromyalgia after having Lyme disease. When my children were young, I worked nights and lived totally sleep deprived. So that really sings with me. Things that have worked for me are Tai chi and walking. And I do have to take meds too to keep the pain at bay.
I've been living with fibro since 1981. Back then they called it fibrositis. I'm surprised at how little progress that has been made on treatment therapies. I also have osteoarthritis which will lead to joint replacement soon. I've sought help from many kinds of doctors. Who do you think should treat osteoarthritis? And fibromyalgia? My Rheumatologist told me that he can't treat OA--"no need to come back ." Of course, the Orthopedic doctors will do the joint replacements. 😢
This is a honest informative and excellently given overview and it decribes the treatments that should be given to any patient who has fibro very few doctors understand it
I got fibro in 93. It came from severe depression, from me not moving enough and not eating correctly or enough! I find hot weather helps, and by not over-exerting myself. I work for about 15 minutes then rest, work then rest! I find doing this stops me from having flare-ups, or a visit to the ER for a Demerol shot! I have developed TMJ, and had fibromyalgia in my eye before, and in my mouth! ( Per the dentist, and eye doctor!)
Seems you give me an inspiration listening to your topic regarding Fibromyalgia. I am diagnosed with it for 13 years.until now, I am still having pain. I was given gabapentin for a long years from2008 to 2019 but nothing had happened.I had not taken my Duloxitine cap.for I had in mind it is for depression.what can you say so that I will be free from severe pain ,? Thanks if I can receive a reply from you.
Hello, I am so thankful for the comprehensive explanation! I finally got answers to some of my questions. Do you think fybro can be seen in scintigraphy?
It's an autoimmune disorder at it's cause - for sure, don't let anybody tell you otherwise; my specialist thinks I became vulnerable to it was when I had pneumonia at 17 - & unfortunately my mother only allowed me 5 working days & 2 weekends before she sent me back to College; but I was still v ill - & was completely exhausted (struggling to get up at all) but my mother was that way - you weren't allowed to be ill🙈🙈 - & she wouldn't listen to anybody; though even the College balked bc I was still so ill - & I'd had double Pneumonia & Pleurisy yet only had 9 days off when she sent me back - but she insisted I was back at College - & then it took me months until I was actually well again; still don't know how I got through it, & it was cold, damp weather then + a tough schedule, so the exhaustion got worse & worse - the Fibromyalgia symptoms began soon after & within a few years, the Fibromyalgia symptoms began to get worse & worse (+ getting it diagnosed was a struggle, eventually I went to a specialist, Privately, not NHS) I cannot take Duloxetine though or any of those (I struggle with a lot of meds & am often allergic to things) - currently Trazadone takes the place of Duloxetine (& causes horrible weight gain just horrendously, I was always so slender & this upsets me🙈🙈) - but it means I can actually sleep at least 6-8 hours. Am not depressed & never was - outside of one period in 2007-8 but Fibromyalgia is just horrible - & often miserable.🙏🇬🇧 (myself; I will NOT take Pregablin. I just t same painkillers they began giving me years ago, bc it's the lesser of two evils, I think. In this Country, certain "alternative lifestyle types" (i.e chavs) go mad for Pregablin, bc it makes them feel "drunk" - so I don't want that, sorry) - but flare-ups are just a nightmare, the weather - extreme heat, cold, humidity makes things worse, that much is clear - & importantly, you rlly need 8-9 (9 preferably) hours sleep - sleep is VERY important; it helps a lot (ofc without the Trazadone I literally cannot sleep at all, so they prescribe that) NB - without that sleep the Fibromyalgia gets worse & worse. Early on, I tried yoga, t'ai chi etc - but certainly cannot do those now - & while am not sure any of it helped - T'ai Chi is good for exercise/keeping your body moving, & is far better than any kind of running, or other impactful exercises etc. Am sure this may well be partly🤔🤔 a problem with the nervous system - but this is caused by autoimmune problems am sure - it cannot be otherwise, I think - & I think its a mistake to say it's entirely "oh the nervous system is out of whack" - bc that just cannot be all of it. Mental haalth is part of it - bc if you're depressed & sleepless it makes it worse - & if I stop the Trazadone, the pain is far worse, nevermind the insomina returns immediately - but I am v sure that this is mainly an autoimmune disorder; hv had it for years & know that much🙏🇬🇧
Gabapentin definitely works!! One minute you can be screaming from pain. You take Gabapentin, and 10 to 15 minutes later the thribb8ng, stabbing pain is gone. And you're back to normal.
@@mustbeheard9834 epilepsy drugs for fibromyalgia pain. Narcotics and Tylenol don’t work for fibromyalgia. If you’re pain goes away with narcotics or Tylenol you don’t have fibromyalgia pain.
Fibromyalgia is almost always misdiagnosed myofascial pain syndrome. Dry needling is the most effective treatment for chronic pain. Not every clinician is the same in their skill of dry needling. Takes many years to reverse years of chronic or persistent pain
Thank you so much Dr Orti you have given so much help and ideas of changing lifestyle a bit especially diet. I have a husband who bakes and sweets will make me much worse. I have many things wrong and have to have surgery alot too, for hips, knees and spine and have' severe arthritis 'too, and everything is a big deal for me to do. I try hard to do my housework and things i can, and really itis not easy and scares me for my future. I have Leukemia with White cells they are low, so can get an infections easily now. Very hard as things just keep coming to me. But you have helped with your tips and it sounds like you have much more you can explain to us all. You sound alike a very wonderful physician.
@@Truerealism747 Actually now that you mention this, my Iron was shown to be down on last blood test! Found it unusual. Potassium up. Red and White count down, and others messed up, but these are the ones I remember well.
I know this is an older video but I was wondering what is your opinion on past illnesses which could linger dormant in the body till years later. I ask this because I constantly have widespread muscle pain. I work as an occupational therapy assistant so muscle pain is not ideal for that line of work. I have trouble climbing steps and I have also noticed that my balance is much worse than it used to be due to not wanting to move properly to right myself when needed. The only other times in my life where I had this kind of muscle pain is three times. One- when I overwork my muscles and pay for it for a few days. Two - when I have had muscle pain from the flu. and Three- When I was a child and I got Rocky Mountain spotted tick fever, I just remember hurting all over and wanting my daddy to carry me everywhere for what seemed like a few weeks. Could these be related is there ever a study of any kind that recognizes this possiblility?
I was first diagnosed with west Niles which came from a mosquito bite and then came fibromyalgia. My doctor just came out and said that fibro was my secondary illness from having west niles and a low amount system.
(1) central sensitization (2) Auto immunity (3) Hyper active pain area (4). Life style aberration are the causative factors. Ayurveda is the choice of treatment
R u sure ? Ayurveda have medicines for Fibro and related brain fog, depression , chronic fatigue like related syndrome - which Ayurveda medicines and where it will get ?
I am planing to put produce for depression and anxiety and many , I develop many products after my 6 year full time college and 42 years of Ayurveda practice I developed Ayurveda management and medicine-on modern diagnosis
I'm pretty sure I have it. I feel tired alot of times. Then other days I have a burst of energy. I do repetitive physical work and after about 4 hours into the job , my productivity tanks. It's almost feels like I have tired blood. Lose steam.Somedays im too tired to go to work. My bdisorder. And muscles and joint ppain all the time. It feels like my legs are tight. I know it's cause I stand for long periods. I used to do it 10-12 hours a day 2 -3 days a week. Everything is micromanage. I push myself to the limit. I was forced to get get used to the pain. I read that your environment plays a role inti the dosorder. It could be serious
I get a burst of energy but it’s not very often anymore. Usually I can’t hardly move. I was just looking at the Mayo Clinic website about fibromyalgia and I came up with this all put it right here for you to look at: Fibromyalgia Fibromyalgia is a free 45-minute class. After completing this class, you should be able to: Identify common characteristics of fibromyalgia Describe lifestyle changes that may help manage fibromyalgia Set goals for managing fibromyalgia This class is open to people who have had a diagnosis of fibromyalgia or who've been referred by a health care provider. It includes instruction, a video presentation, discussion and an opportunity to ask questions. You'll receive a packet containing a summary of class content and related materials for future reference. Classes are free and available to Mayo Clinic patients. To participate in a video education visit, you'll need to set up a Patient Online Services account. To register for a class, call 507-284-8140. Sept. 28, 2022
I have fibro and have had it for about 15 or maybe longer it started with leg pain then moved to full random body pain with fatigue. And now I have like 10 symptoms 😢. Life some days suck
Good Day Dr .Elizabeth … thank You for this massage…… I am learning lots , from your Video ….I have Fibromyalgia on my Body , and for the last year , I being getting headaches and pain on my Temples…Everyday….being spending so much money on tests ..,.I need to know, if Fibromyalgia….., can be cause of cause of my problem?? Much appreciated, Kind regards
Overactive immune system. Don’t give anymore vaccines or stick with needle until you have anti histamine blockade up. Anaphylaxis is awful and you don’t cause it in anyone. The immune system runs the brain, apparently you don’t have one.
@@yellowtulips0427 from a holistic nurse we live in Vegas and she was here at the time now I believe she is in California. Is that something you’re interested in?
Unfortunately anything painful that doctors don't understand gets called Fibro. It's very frustrating. I have Psoriatic Arthritis and over the years many consultants have tried to tell me that I also have Fibro, or that Fibro should be my primary diagnosis. (I have visible bone spurs on my cervical spine!) Now my Sleep Apnea doc keeps telling me I have Fibro. I have LOTS of symptoms of Narcolepsy but at this point in time it really damn hard to get a diagnosis. My last sleep study, unfortunately fell upon my period. I'm 50 years old, my periods are irregular and I get INSOMNIA when I have my period. But I might as well save my breath to cool my porridge, because NOBODY LISTENS. I am at the point when I am protesting one hour a day outside my hospital because they just discharge me whenever I get a referral. A pituitary tumour showed up on an MRI, 5 years ago, nobody wants to investigate that, or the unruptured brain aneurysm on the same MRI. Pretty much done with doctors. 😥
Hi I'm going through a diagnosis period between a neurologist and now will be seeing a rheumatologist. Ana and dsdna both over expectation. The first thing I lost was sleep (although I have never been a very good sleeper). But I've had to succumb to daridoxerant which is a relatively new sleeping pill so I can get some respite and begin to focus on my other symptoms. I found trying to tackle all together very tough and stressful.
Appreciate ur efforts making this vids. ive been Diagnosed with fibro and taking 1200 mg/d thou still feel not totally recovered from pain and other symptoms. Should i consider changing to another option?
Hi there unfortunately Fibromyalgia is incurable. I've had it for 41 years. It takes a long time to find the right set of medications that help you the best. Take care 🤗
@@lookup2094 Hi David it hasn't been easy that's for sure! There are a lot of elements for getting to a point where it's manageable I have started my own YT channel all about Fibromyalgia & CFS. You're more than welcome to come and join us
@@JOY-ye2us I wonder if she’s talking about magnesium. I take two capsules of magnesium at bedtime. It relaxes your muscles and I think it helps me a little bit.
I've had trigger point shots. Everything.. When I get the knots, my boyfriend takes His thumb, and presses and wiggles it a little and you hear a pop. The blood, the little clot pops,, and the pain goes away.. immediately. It's wonderful. But the fatigue is crippling..
I remember going to a doctor recommended by my family doctor, because of pain all over my body,more on the left side of my body, also insomnia, depression ...5he doctor asked me questions, but never pressed on the areas more affected. Give me gabapentin,but after using it for a month I quit,because of its inefficient results! I guess I want to say that doctors think the pain is neurotic?! So it is a chronic disease with no treatment..
Dihydra codeine prozac and gabapentin are great and help also difene spray and magnesium spray. These all work on this disease that runs in families. The other advised meds are useless. For times of bad sleep or anxiety, diazapam or I prefer zanax. Really hot showers, hot water bottles heat pads or electric blanket great for fms pain. I am 70 and born with this
Hi @@emeraldc.8796 You can take up to 1000 mg at night. It can help you get a good nights sleep. I watched a video some years ago about how much magnesium to take and I honestly can’t remember. I think they said more than 1000 mg at night, but I just googled and it said 1000 mg. Start out slow and then go up to that much. What I’m taking currently is “Buffered Magnesium Glycinate 665 mg”. This bottle says to take three capsules a day. Good luck to you! I hope it helps!❤️❤️❤️✌🏻
Thank you I get it! I have been through so many doctors who cannot or refuse to help me! Who could care less! Lyrica was worse than the disease itself some drugs don't work! Some good doctors out there r outside my Medicare network! Gaba pentin put blood in my stool. I'm confused crying no solutions disappointed ☹️😤
My heart goes out to you. I feel your pain. Where I live the Doctors won’t treat me because of all my health problems. They don’t care anymore. My Primary is a FNP, PA. I’m finding that the PA’s are more compassionate towards me than the Physicians.
I only take my Trazodone after I have been up for 3 days of no sleep. I sit in my recliner with my iPad and do a lot of searching. That’s how I found this sight. I’m about ready to rent a RV and take off toward one of the University’s. I have looked at the Mayo Clinic. And there is one in Portland, OR. And Arizona. It just gets so tired and frustrating. I live by myself and don’t drive. But I hang in there and I know where I will be after life here. That gives me Hope. Just sick of hurting. But yea you hang in there. And keep your Spirits up. Life is still good. I have my son and daughter in law. I’m getting more and more stuff from Amazon. 🤓🤪😜. Been buying Christmas gifts. 🤫
I have fibromyalgia and have had it for 30 years. I will not take anti depressants as I feel these mds have to many undesirable side effects, especially weight gain. I however use gabapentin 400 mg twice a day during flares and CBD edible chews when needed. Iam a chronic pain patient also with degenerative disk disease and arthritis and chronic migraines and spinal headaches due too head injury from car accident and prescribed hydrocodone 3 a day 5 mg 325 tynelol for my arthritis and disk issues.
I have fibromyalgia and finally can’t stand the pain anymore. I finally whet to a rheumatologist and she did blood work. My Ana was positive and it was speckled. I don’t see her until late march. What do you think. My urine wbc esterase was plus one. My createrine was 1.07 and egfr 55. I’m 63. I’ve had a lot of stress in my life. I also have had lesions on my face and shoulder and chest different times yrs ago.
Hey. You probably already got your diagnosis but I had the same thing...Diagnosed with Fibromyalgia (yes I still do have it) but I also got tested and my ANA was positive and speckled; My CRP and ESR elevated and positive for RNP and RF antibodies. Do some research on UCTD or Undifferentiated Connective Tissue Disease.
Ive been on cpap therapy 3 years and stil have it but not as bad, however ive had several surgerys,(spinal fusion. low back. lamanectomy, my neck hip replacemen 2 ankle surgery s and others, but weather seems to be the worse for me! thanks for this!😊
It helps me to keep moving. I have hyper joint mobility along with fibromyalgia so my back is always going out. I’m now in my 60s and have had fibromyalgia for 36 years. I feel very locked up without chiropractic. Been going regularly for 33 years.
I have fibromyalgia and the pain builds up to excrutiating i use a heatlamp to get rid of the pain i hold it at a bareable distance i have only had this for about perhaps s year now but in saying this i have heart and lung disease, ostoe arthritis ive had cardiac arrest and then pulmonary embolism within a space of 2 years i also have broken ribs twice on resuscitation ive had broken all 4 limbs separately i have insomnia also i also have anxitey depression multiple traumas i have 4 grownups all in their 40's they were all in the 8lb area my daughter being the youngest
I do self management I would say a heat pad would be beneficial, it was weird I got off the bed but before I did about 4 of my fibromyalgia lumps all triggered at the same time while I was oñ my front but not lying down in this position it was a light feeling of pain not painful but if I'm sitting down 2 of the lumps may contract very painfully so I just try to breathe away a little then let go and even if it goes down I grab my heatlamp quickly to help alleviate the pain😅
Ps Covid twice, no taste or smell (but weird smellsno taste ,72 years old! On anziety meds, and antidepressants @ Could not take gabapentant! No headaches!
Anxiety,depression, sleep are not the cause I believe, It’s the other way round that you have all this because of the condition. I still believe that some kind of low lying auto- immune is the cause of Fibromyalgia, before the Covid vaccine I was in a managing position, but after the Covid booster suddenly it flared up, it’s obvious that the immune system is working overtime, and suddenly in my case it went from bad to worse. I am not a doctor but I can see the difference, 20, 21 , 22, years were manageable, but by September after the booster, it came like a volcano I hope when the booster wears out I’ll have a relief, I am just hoping.
Hi dr., i am a fibromyalgia patient since long time. I tried madication : symbalta, prozac, amitriptiline lots of but no any medications work for me, my stomach is too sencetive. What shoud i do?
@@barbarabradley3765 NOT holding my breath for that, they put me on a long COVID referral well over 2 years ago, after several chase ups I'm still waiting 🤷 The truth of the fact is 50 years ago we had doctors checking our pulse, our tongues and our nails and were able to pin down what was going on in this day n age of technology no one is using their God given faculties of curiousity, reflection and wanting to truly find the cause NOT just plaster the symptoms and send you on your way...The duty of care doesn't exist anymore... Most doctors want to cram in as many patients as they can and look forwards the weekly check...It's extremely rare to find a practitioner who is working from the heart...💔
Hi Yasmin. I get it. I’ve got a little over 20 and I’ve had recommendations but nothing has worked. One of the 🎈suggestions was to go zip lining and you will forget about your pain.
I’ve been researching causation of nerve pain and headaches with fibromyalgia symptoms and strains of herpes viruses are linked to these conditions including MS. Something to look into
The doctor that diagnosed me with fibro some 30 yrs ago was Dr Gluck. He was helping set the parameters in diagnosing fibro at Baylor in Tx. Little was known then at all. He was so wise and determined...and passed away too early...have you heard of him? He lectured all over the world and was so full of energy.
@@ConnectedRheumatology One solution I’ve found effective for fibromyalgia and a ton of other conditions is Bemer vascular therapy. I’ve been distributing medical devices for 15 years and this is the first I’ve seen that helps at the root level, the blood flow and toxin elimination. Eating right can help eliminate toxic buildup, however. If you don’t want to stop eating the foods you love, increasing blood flow and lymphatic draining by 30% will do the same. PEMF technology is incredible, it’s Star Trek healing L😆L Albert Einstein said "Future Medicine will be the Medicine of Frequencies" This quote is ringing through loudly now with Radiation therapy, X-ray machines, Magnetic Resonance Imaging (MRI) PET and CT scans, and ultrasound have all become commonplace and all fundamentally harness the power of different types of waves and their specific frequencies that occur in nature. Bemer has been studied extensively and found to increase the ATP of the cells by 20%, creating energy at the source of the cells mitochondria itself, no need for coffee, drugs, or anything else. No need to suffer any longer, if anyone wants help getting a hold of a bemer to try, I’m happy to help. 513-828-2277
So sorry to hear about all your struggles. It can definitely be frustrating to find, not only the right provider, but the right combination of things (medications and lifestyle changes) that are going to work for you! Hang in there!
Well, im glad all that was available to you. But where I live, its a different story. When youre expected to get up without complaint, get out and start clearing land, you want a pain pill the size of a football, and take big bites out of it. But no, thats not an option either because some goody-goody two shoes decided it was bad! Bad! Or, some person who was tired of fighting pain with no help, ate all of his pain meds at once. So here we are.
I take 4000mg of turmeric every 3-4 hrs to help with inflammation & the water retention in the legs i use compression boots for 30 minutes 2-3xs a week. That greatly reduces the pain in my leg. I'm still working on trying to figure out how to manage the pain in the rest of my body. I do all of this because I have had very bad reactions to all of the other meds for Fibromyalgia. I've delt with this disorder for about 30yrs now. I've tried all of the meds & the side effects are just as bad as the pain. From weight gain ( over 100lbs in 4-6wks) to memory loss, to my joints swelling so bad I wanted to die. There needs to be better options for people like me who seem to be allergic to these meds!
I want to be able to move but the pain doesn’t let me 😔. I used to go the gym 7 days a week to lift weights. After an injury I developed fibromyalgia and now it’s so hard to work out . I am taking amitriptiline 20mg at night and it helps with sleep. Can I add duloxetine in the morning for more pain relief? I want be able to back yo the gym again.
I’m not a Dr but the Dr that I see says you can’t take 2 different medications in fear of getting serotonin syndrome but if it were me I’d pick the duloxetine because I’ve been on that and I had a major life change and I felt as if I was going to spiral down into depression hell again that and an anti anxiety medicine like clonepin or if you don’t want depression/anxiety.
I don't know if you read this but most ppl are depressed because they are fatigued and in so much pain I don't think depression is a cause with fibromyalgia I've had it 20 yrs along with sjogrens now have EDS MCTD because of pain any type of movement is horrendous pregabin n all those meds put weight on then harder on joints ect never found med that works for fibromyalgia nerothopy I have to 😊
I get relief from norspan patches, mercyndol if really bad. I have been diagnosed with FM but now 26 years later have been told I have Lupus which I disagree with. Then was told no you do have FM but maybe a little bit of lupus, then you have lupus but might have a bit of FM. When I am on my Prednisolone for my Crohns (and originally given it for FM) I became pain free within 3 days. The gp who said I have lupus said it cant be fibro because it doesnt respond to Pred. The rheumatologist who said a little bit of lupus said sometime people with FM do respond to Pred. You can see why we all get confused. But I stack on the weight with Pred its a catch 22. I was looking at another mecical site and that doctor - rheumatologist said opiod patches make FM worse but without it I wouldnt be able to get out of my chair...what are your thoughts on Norspan patches for fibro Dr E. Cheers from me in Western Australia
I had been taking Tylenol # 3 with codeine the last few years for the pain , I knew i was in trouble when my Dr. retired . A pain clinic took me on and dropped the amount i could have per month , makes me see somebody twice a month instead of once a month , and made me take a urine test to see if I'm taking the drug - or selling it ! I can barely walk , still working part time , responsibilities , etc. It's appalling to be treated like a drug addict and /or criminal . And now I'm getting worse , spending more time in bed , no extra pill to help me sleep , they don't care what I want or need . The war on drugs has taken away the option for older people who have terrible pain to be .treated respectfully .
With your symptoms responding so well to Prednisone, that sounds more like Polymyalgia Rheumatica (PMR). That was my first diagnosis but because the prednisone treatments did not help at all, the consensus was unanimous with 2 of my doctors that it wasn’t PMR. I joined a few PMR FB pages and with the majority of those people, prednisone significantly helps with the pain and stiffness. My rheumatologist said I was too young at 52, that I needed to be closer to 60 for PMR, however, there were hundreds of people my age and a tad over that were diagnosed with PMR and the prednisone did work for them. It’s all so confusing and it becomes so frustrating. I’ll be 54 in Sept and have had the worst almost 2 years of my life. I was diagnosed with Fibromyalgia 32 years ago, and though it was bad and disabling at times…it paled in comparison to whatever attacked my body 2 years ago…I can only surmise there’s various levels of this demon disease. I’m losing hope.
@@sandym8787 😢. I understand. It sucks Most people in pain have to suffer because others are addicted. It just is not right. They are changing the what drugs are allowed & how much, but I don’t know when it will come through.
Hi, thats not true that theres no test. I had a test done in Neurology at Henry Ford Hospital in Detroit, MI some years ago. The Dr. used needles. It was very painful and I could only get through about half of the test, but I was definately diagnosed with Fibromyalgia then.
You are smiling all the time , but the theme about fibromyalgia is so haevy, I am doctor to, neuropsychiatrist, and we col that syndrome of chronical pain...treatment is difficult, I have good results with pregabalin and duloxetin
This is a giant topic! Everyone is different and foods that may trigger some people may not others. Many people find that added sugar or meals high in sugar can irritate their pain, but even this is nuanced, as fruit shouldn’t necessarily be avoided. Another aspect that needs to be considered is what is the patient’s relationship with food and dieting? If a person has a history of cutting out foods or food groups (either for health or weight loss), then it may be more beneficial to heal their relationship with food, as opposed to focusing on yet, another food to avoid. The mechanics of fibromyalgia is very individual and although food may play a role in any particular individual’s experience, being overly focused on food tends to distract from other beneficial habit changes, such as stress management and sleep/rest. This is a topic I plan to cover in more detail, so stay tuned! (Sorry couldn’t just provide you with a simple food list!)
@@ConnectedRheumatology I converted to veganism 2 years ago and try to limit sugar. I have found that it helps with pain but not so much with lethargy and/or motivation.
Paracetamol is for the headache that you have after the fibromyalgia pain subsides. I take pregablin and paracetamol, Tylenol here in us. Found headache underneath. Bloody hell!!!
![[MV] A leap of faith...ความเชื่อใจครั้งสุดท้าย (From "Petrichor the series")](http://i.ytimg.com/vi/U1piZH2CNXA/mqdefault.jpg)
I have had fibromyalgia for 25 years. Weather is a huge trigger for a flair up. Humidity is my enemy. Pain pills help, but can’t get them from a Dr. one pain Dr told me to smoke pot, I think he was high. Told my primary and he almost fainted. You can’t get help from a Dr. so I eat pot cookies. This does help some what. I want to start a support group. No one understands how miserable and painful fibromyalgia is.
I have had fibromyalgia for 18 years now and the suffering from the pain is terrible
I've also had fibromyalgia since I was a kid, but it has only been diagnosed three years ago , because all the doctors that I would complain, and when I was a child it was my aunt explaining to them my symptoms and how weird they were, and one of the things that I take is tea from the pot leaves.
Hi Nancy i find the hot weather good 👍
I’ve been taking Nucynta for years. It’s an opioid but that really really helps!
@@ShanonT12 where do you get it from .
THANK YOU! I've been trying for years to explain that I don't have depression, just pain. Frustration? YES. Depression? No.
Yes, for me I never had inflammation and my joints never hurt. It was all my muscles! And I wouldn’t say fatigue, I would say exhaustion.
I’m exhausted too. It SUCKS 😢
@@Nan-59 One solution I’ve found effective for fibromyalgia and a ton of other conditions is Bemer vascular therapy. I’ve been distributing medical devices for 15 years and this is the first I’ve seen that helps at the root level, the blood flow and toxin elimination.
Eating right can help eliminate toxic buildup, however. If you don’t want to stop eating the foods you love, increasing blood flow and lymphatic draining by 30% will do the same.
PEMF technology is incredible, it’s Star Trek healing L😆L
Albert Einstein said
"Future Medicine will be the Medicine of Frequencies"
This quote is ringing through loudly now with Radiation therapy, X-ray machines, Magnetic Resonance Imaging (MRI) PET and CT scans, and ultrasound have all become commonplace and all fundamentally harness the power of different types of waves and their specific frequencies that occur in nature.
Bemer has been studied extensively and found to increase the ATP of the cells by 20%, creating energy at the source of the cells mitochondria itself, no need for coffee, drugs, or anything else.
No need to suffer any longer, if anyone wants help getting a hold of a bemer to try, I’m happy to help. 513-828-2277
One solution I’ve found effective for fibromyalgia and a ton of other conditions is Bemer vascular therapy. I’ve been distributing medical devices for 15 years and this is the first I’ve seen that helps at the root level, the blood flow and toxin elimination.
Eating right can help eliminate toxic buildup, however. If you don’t want to stop eating the foods you love, increasing blood flow and lymphatic draining by 30% will do the same.
PEMF technology is incredible, it’s Star Trek healing L😆L
Albert Einstein said
"Future Medicine will be the Medicine of Frequencies"
This quote is ringing through loudly now with Radiation therapy, X-ray machines, Magnetic Resonance Imaging (MRI) PET and CT scans, and ultrasound have all become commonplace and all fundamentally harness the power of different types of waves and their specific frequencies that occur in nature.
Bemer has been studied extensively and found to increase the ATP of the cells by 20%, creating energy at the source of the cells mitochondria itself, no need for coffee, drugs, or anything else.
No need to suffer any longer, if anyone wants help getting a hold of a bemer to try, I’m happy to help. 513-828-2277
Are you and better now any hypomobility
I’ve read that approximately 78% of people with fibromyalgia have suffered a severe neck injury.
It makes sense, considering the nerve damage caused by a severe neck injury.
Wow that is interesting. I suffered a bad neck injury in my mid teens and have had fibromyalgia ever since!
True I was in a bad car accident and have had pain in my neck every day since
I also suffered a neck injury from a car accident in my twenties. I then fell off a horse and re-injured it a couple months later.
🤔 I too have had my neck injured . Add another to the list of possible causes. I want to say eating anti - inflammation food's do help. I like sweet potatoes yum.
Coccyx too.
I was diagnosed with fibromyalgia 7 years ago and the Dr prescribed deloxitine 30 mg this has helped me through the pain and being able to focus. Without I don’t know how horrible I would feel
I'm on 60mg of duloxtine and it really helps
And with the paranoia about pain meds going on, I know this is not a popular statement.
But I took Vicodin for 4 years, very low dose, for my fibro pain.
It worked great. I never had to take more, or have anything stronger, in 4 years.
Then some doctor somewhere came out with "Oh, narcotics don't work on Fibro pain."
My doctor abruptly stopped giving them to me. It didn't matter that it HAD worked for 4 years for me, or that I was finally pain free for the first time in decades.
She suddenly didn't believe it was working for me, because some doctor she doesn't know said it didn't work. If the doctor said so, it must be so.
After all, what did I know? I was just the person feeling the pain relief.
@@mariamiller1435 There are a lot of meds that do NOTHING for me.
Tramadol and fentanyl are the pain meds that don't work on me. I was in a car accident, and at the hospital, the dr. gave me a full dose of Fentanyl. An hour later he came back and asked how I was doing. I told him that the med didn't lessen the pain in the least, and he offered another dose.
I told him, :"Look, I know my body. A 5/325 Vicodin would take more pain away than the stronger ones."
Now, Demerol works, but Percocet leaves the pain and adds hallucinations - so I'm in immense pain And I'm seeing giant bunnies in our (non-existent) gazebo.
That’s extremely dangerous should be tapered
@@helensadeik400 What is dangerous? Tramadol?
@@mariamiller1435 I meant pain tablets should be weaned not just stopped ⭐️
@@helensadeik400 thanks for clarifying.
I’ve had fibromyalgia since I was a child, I’m in my 60’s now and only got a diagnosis six years ago by chance as I reached the tip of the iceberg. I had such chronic pain which was exacerbated by working in a highly stressful job and working environment that was toxic. My doctor finally sent me to a rheumatologist because of the pain, a psychologist for work stress and eventually told me to give up my job it’s to much stress. None of my blood tests showed any abnormalities, my scans showed degenerative osteoarthritis and a nerve impingement in my back. No blood tests showed raised cortisol or inflammatory markers.
The rheumatologist did an examination and asked me questions she then said your pain isn’t from osteoarthritis it’s fibromyalgia. So that was that, the only comfort I had was a label to the symptoms.
Over the next year I had one follow up with the rheumatologist and saw my doctor several times in chronic pain she prescribed anti nausea and pregabelin, I was also offered and prescribed opioids!
I was also referred to a specialist pain clinic.
I then decided to take responsibility for my health as clearly conventional western medicine wasn’t helping me, I became more focused on my mind and body management.
The pain clinic helped as there was an umbrella of different specialists helping manage chronic pain. Interestingly the all recommended a wellbeing holistic approach and none of them thought that taking pain killers were the answer.
Within a week of my pain clinic attendance I had stopped taking pregabelin. I continued to attend the pain clinic once a week for nearly a year.
I have to say if only one doctor in my many years of suffering and complaining about fibromyalgia had been educated and understanding of this chronic condition which we are not allowed to call a disease, if just one doctor had thought about the classic tell tale symptoms and been able to diagnose it then my label and education would have prevented years of suffering.
If only one doctor thought to prescribe wellness medication instead of drugs that would also be crucial.
If only one doctor had a leaflet to explain fibromyalgia to patients to educate them it would be a step forward.
My education, my daily practices with healthy nutritional foods, becoming a vegan, very little gluten, sugar or processed foods, intermittent fasting, beneficial exercises, qigong tai chi, tapping and self massage, yoga, Pilates, moderate weights, walking, hydrotherapy, swimming warm baths,aromatherapy, all cost me very little, even 10 minutes of qigong or meditation can slow down your breathing, my health has improved as I now understand what makes it worse a daily practice becomes a habit, new habits can be positive outcome and bad habits or addictions can be unlearned in as little as 30 days.
Within 6 months I lost 10 kilos and my cholesterol LDL lowered. I want to loose another five - eight kilos but slowly wins the race.
I still battle with elevated leptin, irregular Hashimoto thyroiditis and fibromyalgia flares are similar to hashimoto flares. I also battle peripheral neuropathy symptoms, flushing and irregular body temperature along with wide spread pain, and chronic fatigue from insomnia .
Oh and I gave up the toxic day job :)
Good job!! I’m glad you got rid of that nasty job! I’m sure they didn’t deserve you!!❤
Seven years of hell in a toxic work place was the worst experience ever. Added to which a lot of personal stress.
Stress has to be the most important factor that exacerbated pain stressors. How we respond to stress is so hard to manage but so crucial.
“Within a week of my pain clinic attendance I had stopped taking pregabelin. I continued to attend the pain clinic once a week for nearly a year.”
What is done/taught in the pain clinic?
Thanks
@Osmond Dsilva
The pain clinic I attended is a run in a public health hospital for people suffering with chronic pain, ie. people that have pain for longer than three months associated to disease or conditions that cause ongoing pain such as auto immune disease, arthritis, fibromyalgia etc.
There’s a medical team that run’s group classes within their specific specialty, physiotherapy, psychology, occupational therapy, feldenkrais therapy, exercises and Tai chi
They didn’t offer nutritional advice which was a shame but I have changed my diet with my own research.
The object is to educate people to manage their pain with acceptance, using mindfulness, meditation, looking after your physical and mental health with CBT or understanding the triggers for your stress and pain, these are beneficial tools as alternatives rather than drugs, or if drugs are essential adopting these habits they still offers many benefits Understanding that medication is often a band aid and doesn’t cure the underlying symptoms. Medication can also have a knock on effect which can add to the pain and issues rather than help.
Putting yourself first to care for yourself with kindness and time, to ramp down stress helps create beneficial neural pathways. Many people with fibromyalgia have central nervous system hyper sensitivity, so pain becomes heightened when stress factors come into play. Many people with fibromyalgia try to do to much and please to many other people or over exercise to the point of exhaustion. Learning to set small goals or tasks rather than overloading was also part of pain management.
My routine everyday have become habits, it’s not a cure but it’s my preference with dealing with my pain management.
I hope you find this information I'm not sure if these options are available to you where you live but most of these resources can be done with your own research.
If you want any links or further I'm happy to let you have my TH-cam links for qigong, restorative yoga, Pilates and meditation.
@@magentamagenta1274 God Bless!
Medical Medium explains exactly why we suffer from fibromyalgia, I got EBV Epstone Bar Virus as a teenager & now as an adult have CFS & Fibromyalgia
How have u managed your CFS and Fibro with Medical Medium? Have u healed ur EBV?
It's so nice to hear this. The rheumatologist I saw said I had fibromyalgia. She said she was sending me back to my primary care provider cause all u can do for fibromyalgia is an antidepressant. She said she would not have to see me again
I went to a rheumatologist who didn’t believe in Fibro. He did all these test, special test and they all came back negative. Nothing wrong. He says, “well maybe you do have fibro.”
@@rochellecorlett8263 my provider did a bunch of tests on me as well. I had a negative ANA no inflammatory markers, etc. She put me on a low dose of amitriptyline and it helped the migraines and upper shoulder and neck pain. I still have pain everywhere else though.
I was diagnosed at the age of 72, there were some symptoms on the low side, but they were confined to my upper back. Slowly my whole body was effected. Burning pain in the upper buttocks and down my thighs outer legs and to the feet.
I found out that lower the anxiety less the pain.The burning can move from back to front, some days more on the back and some days more on the inner of arms and legs. Above all you loose words to describe it and that’s the reason it’s misunderstood condition.
I’ve lost my words, too. I feel like a dumb bell!
You have oden very well explaining it. I have other problem too and have had lots of surgery and still have another hip and knee to go. But I have to use a warm pad and sometimes sit on it, and moved it al over my body, before I get bathed or dressed. I am in such pain it kills me. I do take pain meds but the side effects worry me but need to have something that is for sure. I am exhausted and have leucopenia too and many things like 'severe arthritis'(according to my orthopedic, and se an Oncologist too now) and cannot sleep right and yet exhausted. Seems like more and more is added to it?
My physician will not even want me to see the Rheumatologist and I may have to just go and he sends me to the Orthopedic and I keep needing spine surgery, knee and hip surgery. I had MERSA Infection nonce way back in 2000 and almost died. Re opened and that is why. It is very hard to get through it and i am 72 yrs old too! I take Pregabalin an Ultram and Tylenol and other things like Zoloft and other things anyway. . I do think the medicine helps some though and without it I would be in trouble , much worse trouble. I try hard to get up and dressed and do housework and it is horrible and will say, my husband will help me through and I am lucky. But then some days I cannot get much done at all. Weather certainly doe play a huge part. My husband has to hear it all and I do not mean to do it. I could be a meteorologist and not even need anything to go by, just my body! You are perfectly right, we cannot have stress in life! Most people cannot understand, because you may "look alright" to them, anyway!
Thank you for placing so much into words as you have done a fine job!
Madam
Can I use cannabidiol oil for fibromyalgia. It took 4 months to conclude as fibromyalgia.
In addition to all of the symptoms talked about I found being in sunshine too long is a killer for me. Pain across shoulders, feeling faint and total exhaustion. Within minutes of getting indoors and cooling off, I'm better.
I've always avoided the sun but I was diagnosed with Lupus just out of high school. Fibro came later but the heat makes me feel like you do. Exhaustion, burning pain, etc. Not fun. What gets me is high humidity or big swings in the barometric pressure. I'm in a flare now because of the big storm that came through a couple days ago. Lots of pain all over. Heating pads, ice packs, and my therapy cane are my best friends right now. Kind of out of left field but I try not to spend to long in stores under florescent lights because they really bother me. Just wondering if anyone else has that problem?
I will tell you what put my fibromyalgia to rest for a while. I had a cardiac arrest and was put into a coma for 5 days while they lowered my body temperature. I woke up and felt better than ever. Consuming sugar brought it back with a vengeance.
I'm pretty new to my fibromyalgia diagnosis,. I'm 33 years old. I do believe I have high levels of inflammation due to the fact that I have a few inflammatory health issues aside from fibro. One is interstitial cystitis, hand eczema, Holmes aide syndrome ( pupil inflammation, light sensitivity), & gluten intolerance.
All started in my late teen years , 1st the pupil problem, then in my late 20s my interstitial cystitis problem ( painful bladder syndrome) and then my hand eczema and gluten intolerance in my early 30s. I've had also to deal with anxiety & depression, low energy, coming and going pain in my neck and shoulders as well as my arms. And now that pain is in my legs , my hip muscles, and in my face mostly cheeks. Joint pain in my knees, elbows, lower back, hip area etc. All these I had to mention to my doctor and sure enough I had fibromyalgia. What I notice is that symptoms are not consistent, sometimes I only have muscle pain, other times is my emotional state and fog , others fatigue or exhaustion and soreness like if I got beat up. Hope this helps someone
Interstitial Cystitis is caused by mcas. Fibromyalgia is a symptom of mcas
I had no idea about all the different symptoms!!! I have most of those and pain as well... Time to talk with my Dr and see what she thinks... Thanks for posting these videos❤
My inflammatory markers have been seen in my blood work before . It’s actually how they first noticed there was a legitimate issue occurring because I had gone to the er over the course of three days experiencing my first major flare and they didn’t know what to make of it and dismissed me until the third time I went in crippled with pain and swollen. It was in that blood work that high inflammation markers showed up. They still didn’t know what it was but were more inclined to believe I wasn’t faking and so my dr at the time then ordered rheumatoid testing on me . My positive Ana got me sent to a rheumatologist and they diagnosed me with fibromyalgia. I’ve been on gabapentin for a few years now
Ironic...I was told my ANA titre was through the roof but that this indicated I had lupus (SLE)...Everyone has a different opinion...
My experience was very similar. I woke up one morning in extreme pain and I panicked because I’ve never felt pain like that before. I called my Doctor, and he ordered some blood tests and they found out that I had a high level of ANA. I got some more bloodwork done and a couple of x-rays but they couldn’t find the cause of the pain. I then got sent to a neurologist who was trying to see if I had sciatica but they didn’t find anything. I was then blood tested again, high ANA and high sed rate. After that they put me on hydroxychloroquine, then prednisone. I ended up going to another rheumatologist because the first one saw a high level of anti phospholipid antibodies in my blood work but didn’t mention it to me. They took more X-rays and did an AVISE test, and while I had a decent amount of autoantibodies, it wasn’t a high enough level for a positive diagnosis for lupus. So they put me on meloxicam and Lyrica. They don’t help much and the pain in my hands is getting worse, so my rheumy basically said we are waiting for joint damage to show up on an X-ray or ultrasound and they will add RA to my diagnoses.
I’m now positive for rheumatoid factor, so we will see how this goes. I wish everyone well.
Mine is definitely inflammatory. They can’t measure it but my body tells me when my joints go stiff, I’m more sensitive to touch, allergies flare up, skin itches and so on. If it comes after an infection it is worse. I don’t have depression, those meds make me numb and miserable. My sleep is mostly fine. For me it is stress and inflammation only. CBT just drove me crazy, I tried it for 9 years.
I have tried both lyrica and gabapentin and they both caused me to gain weight very quickly! I now have 50 pounds that I cannot lose no matter what i do.
I have had fibromyalgia for over 25 years and presently use gabapentin with some success
While sleep deprivation seems to be a commonly discussed symptom, I'm wondering if it's a subsequent symptom. I have not yet been diagnosed with fibromyalgia, but I have severe pain in my arms, shoulders, across my back and and shoulder blades.
One problem for me with this is that it is very difficult for me to sleep because lying in bed is painful. If I sleep on either side, it's painful. If I sleep on my back, it's painful As a result, I rarely ever get more than 3 hours of sleep at a time and I'm often awake for hours during the night. This in turn causes me to not be able to function mentally, and I do get fog as a result of the poor sleep.
Sleep disturbance is usually one of the early symptoms - & sleeping at least 8/9 hours is a huge must - helps a lot🙏🇬🇧
Sadly all your symptoms point to fibromyalgia. I am fibro warrior of 32yrs o get by on 10hrs sleep a week I'm half the personi was. The only way I get sleep now is if I rake my neds that make me a zombie which at least once a week o do just to obtain false sleep and test my brain and body. Gentle hugs. Bless you x
I have leukaemia fibromyalgia and 2 types of arthritis sinusitis damage to my back and neck nerve damaged due to bone fragments cutting nerve now dead leg white matter disease of the brain and due to chemo had my c pupuls stuck to my irises have had surgery to fix that life socks at the moment the absolute worst thing for me is the sweating and then the cramp torture I take iron and magnesium and drink tonic water , dose anyone know of anything else I can take to stop the sweating as it's killing me?
@@pauleenwhite6132 I sweat alot too and it is horrid. at certain times of day or in night, Perfuse sweating. Am not sure what to do to stop it, but would be interested too I know they have meds I guess for it and was thinking of asking a Dr as my Dr has to prescribe me alot now. I have the Leukemia/ Neutropenia and Fibro, severe arthritis ( also needed surgery on left knee, right hip and three spine surgeries so far, and ready for another spine and right knee and now left hip surgery. Have so much it is ridiculous. Used to dance, and worked hard and was active. now just had to put in stair climber, it is sickening, Am now 72 yrs old and the Hematologist. Oncologist does not care much about the surgeries as of the low White count and can understand and they try to keep me safe, but yet these things need to be done, I want to walk and move, if possible, in later days.
I think certain meds may help it, but not sure about what else? It is embarrassing and very upsetting to deal with, I can understand.
Waterbed for pressure spots
I have had fibro for many years but got diagnosed 6yrs ago.
The main thing for me and managing pain and inflammation is diet. Since cutting sugars and oils I have had a massive turn around in pain and fatigue. Nothing processed, all natural clean food, cuts of meat or chicken or fish and everything that has been grown naturally. I've stopped all meds and use tens machine when needed.
I got sent to rheumatologist as my RFS bloods came back at over 17 and the standard I believe was much much lower so that got flagged by GP, which I am very lucky to have a fantastic one.
I came here because my mother has fibromyalgia.Its really difficult to watch her be in pain all the time. She has gone to countless doctors, and none of them can help her. They will not give her pain medication. I wish I could tell them how difficult it is to watch her be in constant pain. I feel like no one really understands how tough it is on me! She always is in a horrible mood. She rarely leaves the house, because she has constant migranes, joint pain, fatigue, and the list goes on. I really need an option to help her. Ever since I was little she extremely rarely does anything with me. She can't sleep, so this makes her tired all the time. I have prayed my whole life that she would be healed to no avail. if you have fibromyalgia and you have a way to cope with it , please tell me! 🙏
Have flax and hemp. A lot of omega 3's with curcumin and MCT. Vit B + Vit D.
You said she has difficulty in sleeping. I get that. From what i have learnt from personal exp; it's not only enough we get adequate sleep but it's imp we sleep at the right time.
Check her blood sugar levels and thyroid (anti tpo). Stress is a inflammatory. Peace n Love is essential. takes time for what years of stress or crappy lifestyle n toxic relationships has done to our done to our bodies.
Pls do have lots of omega3's and see. I believe there will be a difference.
Do check for food sensitivities. That is a also a big factor. Some feel a lot better wen they drop lactose or gluten from their diet.
Duloxetine has been a God send to me for the pain!
I have been suffering with fibromyalgia for over 35 years. I am in constant pain also. Does your mother cook or do any household chores or does someone do them for her? My husband wasn’t much a help to me in my first years of fibromyalgia so I kept up with household chores for a long time. It was probably good for me in a way, as it gave me a purpose and forced me to move. It has become more difficult for me now. My husband passed a few years ago so I take care of myself. Does she like to swim. Swimming has saved my life. I go to the YMCA. I can’t do Aquafit exercises anymore, so I just put a water noodle between my legs to take the pressure of my painful hip and back. I swim gentle lengths for about 25 - 35 minutes. It feels so good. The water is so soothing. Even if she can’t swim, she can just do gentle stretching in the pool and even go into the children’s pool which is really warm. I always put my swimsuit on under my clothes before I go to make it easier on myself. I still. Try to do some things with my grown children and grandson. I really do feel bad that I can’t do much with my grandson, but we play cards and play games together. Maybe you two could just go out for a nice lunch or dinner somewhere nice. Or maybe go and see, or watch funny movies together. I just booked a hotel room about 45 minutes from where I live to get me out of the house for three nights. It has a lovely pool and restaurant and is close to things in the town. I know it is going to be really difficult for me to get ready to go and to get there, but I have to try and keep living the best as I can. Like your Mom, I a struggle every single day with exhaustion, pain everywhere. Most of us just want to give up sometimes. I feel so sad for you that you cannot make some good memories with your Mom. Where do you live? She has to get some kind of pain medication to give her some pain relief. The pain can be excruciating all over our bodies. You should search on Google for a fibromyalgia doctor or pain specialist in your area, and get a referral from her doctor for them. Her doctor can’t just leave her suffering like that. I am on a low dose opioid which is very controversial right now. My doctor is trying to get me off them. I can’t tolerate any other medication. I have tried them all. When my pain is at its worst, my blood pressure goes up, my blood sugar goes up, and so does my anxiety. I cannot function or take care of myself. When I take my low dose medication, I can go swimming, shopping and cook for myself. My medication doesn’t take all the pain away, but gives me enough relief that I can do things. Your poor Mom. She needs help. Has she gone to a pain clinic? You should go to her doctors appointments with her and explain that she has no quality of life. How old is she and how long has she been suffering? Hope you can get her some help. I am lucky that. Have never suffered with the headaches and I don’t suffer from depression. She is lucky to have you. Give her a very gentle hug from me. ❤️🇨🇦❤️🇨🇦. Just noticed that this posting is from nine months ago. Hope she has found someone to help her by now!
@@pamelasmith2625- LLP
I agree with you. I was married to a Balinese man so we would go to Bali often I’m from Australia. I always loved water & swimming. I found that it helps with my fibro tremendously. After 25yrs of marriage & 2 kids we seperated & I had a nervous breakdown also cause my childhood wasn’t easy. During my breakdown I experienced the most horrible chronic pain physically & mentally that I thought I would die. I was rushed to hosp cause I couldn’t walk, or move at all it crippled me. The hosp gave me morphine & not even that worked. After 5days of not barely eating or sleeping cause they wouldn’t give me much meds until they knew the problem. At first they thought I had a heart issue, but that wasn’t it. I would scream day & night to the point that I wanted to commit suicide, & I had nurse assistants next to me always to watch over me. Then I was moved to the neurological dept & on the 5th day I was diagnosed with rheumatoid arithritis due to stress. For 5yrs I went through hell cause meds & injections wouldn’t work due to high levels of inflammation. Prednisone swelled me up like a balloon when I use to be a petite 8 stones & people couldn’t recognise me. I ended up finding a great rheumatologist who organised infusions of ritaxamab every time my levels went up which after a few yrs they became normal. These infusions cost $20,000 each time but here in Australia cause I was a candid for it I didn’t have to pay a cent. Moving on abt 3yrs later while checking my wrists he found I had fibromaglia. I thought oh great it can’t be worse than rheumatoid but omg little did I know but now in 2024 & at 64yrs old I suffer pain every day & spend many days in bed. I can’t work hardly do anything. I even isolated myself & hardly see my friends or go out. The fatique is also unbearable. So many nights I cry myself to sleep thinking how I use to be with my own business & a great life. I don’t get support from my ex, my kids are fantastic & my mum but I feel so lonely yet I want to be alone. I’m on 90mgs daily of cymbalta & try to take 75mgs twice daily but I hate the side effects of sweating, dry mouth, my vision playing up & weight gain yet I have no appetite. I must admit lyrica helps but it’s a constant battle & unless you have it no one knows how bad it is. This all occurred cause of trauma & stress in my life, so plz everyone try to relax & be careful. The only hope I have now is that they find a cure. I’m really bad at the moment & due to go into hosp to have a brain & pet scan, but honestly if it fibro what can they do. Let’s all pray & hope that a discovery will be made on this cruel syndrome to live a normal life. I’m at my lowest point & sick of people saying but you look good, but most of all people not knowing abt fibro & esp doctors who don’t have a clue & won’t prescribe certain drugs. You become a dr to have compassion & help patients with pain, yet they worry abt losing their license & becoming addicted to meds. I instead believe that people are more likely to die from suicide due to chronic pain than taking a tablet that will save you from suffering. Think of alcoholics & smokers who can purchase them freely & die from it. The system is flawed & the fda should change its view on prescribing medication. We are not drug addicts just purely people suffering & hoping for some relief to put a smile back on our face.
My sister and I both developed fibromyalgia after having Lyme disease. When my children were young, I worked nights and lived totally sleep deprived. So that really sings with me. Things that have worked for me are Tai chi and walking. And I do have to take meds too to keep the pain at bay.
I've been living with fibro since 1981. Back then they called it fibrositis. I'm surprised at how little progress that has been made on treatment therapies. I also have osteoarthritis which will lead to joint replacement soon. I've sought help from many kinds of doctors. Who do you think should treat osteoarthritis? And fibromyalgia? My Rheumatologist told me that he can't treat OA--"no need to come back ." Of course, the Orthopedic doctors will do the joint replacements. 😢
This is a honest informative and excellently given overview and it decribes the treatments that should be given to any patient who has fibro very few doctors understand it
Hello thank you for your help I have had fibromyalgia for 31 years but the last 12years it's worse I take generic cymbalta
I got fibro in 93. It came from severe depression, from me not moving enough and not eating correctly or enough! I find hot weather helps, and by not over-exerting myself. I work for about 15 minutes then rest, work then rest! I find doing this stops me from having flare-ups, or a visit to the ER for a Demerol shot! I have developed TMJ, and had fibromyalgia in my eye before, and in my mouth! ( Per the dentist, and eye doctor!)
I am just now being treated with gabprentin.june23
Seems you give me an inspiration listening to your topic regarding Fibromyalgia. I am diagnosed with it for 13 years.until now, I am still having pain. I was given gabapentin for a long years from2008 to 2019 but nothing had happened.I had not taken my Duloxitine cap.for I had in mind it is for depression.what can you say so that I will be free from severe pain ,? Thanks if I can receive a reply from you.
Hello, I am so thankful for the comprehensive explanation! I finally got answers to some of my questions. Do you think fybro can be seen in scintigraphy?
It's an autoimmune disorder at it's cause - for sure, don't let anybody tell you otherwise; my specialist thinks I became vulnerable to it was when I had pneumonia at 17 - & unfortunately my mother only allowed me 5 working days & 2 weekends before she sent me back to College; but I was still v ill - & was completely exhausted (struggling to get up at all) but my mother was that way - you weren't allowed to be ill🙈🙈 - & she wouldn't listen to anybody; though even the College balked bc I was still so ill - & I'd had double Pneumonia & Pleurisy yet only had 9 days off when she sent me back - but she insisted I was back at College - & then it took me months until I was actually well again; still don't know how I got through it, & it was cold, damp weather then + a tough schedule, so the exhaustion got worse & worse - the Fibromyalgia symptoms began soon after & within a few years, the Fibromyalgia symptoms began to get worse & worse (+ getting it diagnosed was a struggle, eventually I went to a specialist, Privately, not NHS) I cannot take Duloxetine though or any of those (I struggle with a lot of meds & am often allergic to things) - currently Trazadone takes the place of Duloxetine (& causes horrible weight gain just horrendously, I was always so slender & this upsets me🙈🙈) - but it means I can actually sleep at least 6-8 hours. Am not depressed & never was - outside of one period in 2007-8 but Fibromyalgia is just horrible - & often miserable.🙏🇬🇧 (myself; I will NOT take Pregablin. I just t same painkillers they began giving me years ago, bc it's the lesser of two evils, I think. In this Country, certain "alternative lifestyle types" (i.e chavs) go mad for Pregablin, bc it makes them feel "drunk" - so I don't want that, sorry) - but flare-ups are just a nightmare, the weather - extreme heat, cold, humidity makes things worse, that much is clear - & importantly, you rlly need 8-9 (9 preferably) hours sleep - sleep is VERY important; it helps a lot (ofc without the Trazadone I literally cannot sleep at all, so they prescribe that) NB - without that sleep the Fibromyalgia gets worse & worse. Early on, I tried yoga, t'ai chi etc - but certainly cannot do those now - & while am not sure any of it helped - T'ai Chi is good for exercise/keeping your body moving, & is far better than any kind of running, or other impactful exercises etc. Am sure this may well be partly🤔🤔 a problem with the nervous system - but this is caused by autoimmune problems am sure - it cannot be otherwise, I think - & I think its a mistake to say it's entirely "oh the nervous system is out of whack" - bc that just cannot be all of it. Mental haalth is part of it - bc if you're depressed & sleepless it makes it worse - & if I stop the Trazadone, the pain is far worse, nevermind the insomina returns immediately - but I am v sure that this is mainly an autoimmune disorder; hv had it for years & know that much🙏🇬🇧
My mother sent me to work when I was ill She was a cow
I can recall learning of Covid symptoms & thinking, “Wow, it’s been Covid all these years😂
Gabapentin definitely works!! One minute you can be screaming from pain. You take Gabapentin, and 10 to 15 minutes later the thribb8ng, stabbing pain is gone. And you're back to normal.
Gabepentin does nothing for Me
Always on pain
@Valerie Molina It's not gor everyone. But there others non addictive pain killers out there.
@@mustbeheard9834 epilepsy drugs for fibromyalgia pain. Narcotics and Tylenol don’t work for fibromyalgia. If you’re pain goes away with narcotics or Tylenol you don’t have fibromyalgia pain.
Yes. Gabapentin and pregablin are fibromyalgia pain medications. I take pregablin. That’s how you know you have fibromyalgia.
@@Jayse39 because you don’t have fibromyalgia pain.
Fibromyalgia is almost always misdiagnosed myofascial pain syndrome.
Dry needling is the most effective treatment for chronic pain. Not every clinician is the same in their skill of dry needling.
Takes many years to reverse years of chronic or persistent pain
Thank you so much Dr Orti you have given so much help and ideas of changing lifestyle a bit especially diet. I have a husband who bakes and sweets will make me much worse. I have many things wrong and have to have surgery alot too, for hips, knees and spine and have' severe arthritis 'too, and everything is a big deal for me to do. I try hard to do my housework and things i can, and really itis not easy and scares me for my future. I have Leukemia with White cells they are low, so can get an infections easily now. Very hard as things just keep coming to me. But you have helped with your tips and it sounds like you have much more you can explain to us all. You sound alike a very wonderful physician.
Have you checked your iron levels had CFS 26 now.more fybry Asperger's add.OCD hypomobility
@@Truerealism747 Actually now that you mention this, my Iron was shown to be down on last blood test! Found it unusual. Potassium up. Red and White count down, and others messed up, but these are the ones I remember well.
Low dose naltrexone has been taking the edge off for opioids, but still not getting much sleep. I already know that I have sleep apnea.
I know this is an older video but I was wondering what is your opinion on past illnesses which could linger dormant in the body till years later. I ask this because I constantly have widespread muscle pain. I work as an occupational therapy assistant so muscle pain is not ideal for that line of work. I have trouble climbing steps and I have also noticed that my balance is much worse than it used to be due to not wanting to move properly to right myself when needed. The only other times in my life where I had this kind of muscle pain is three times. One- when I overwork my muscles and pay for it for a few days. Two - when I have had muscle pain from the flu. and Three- When I was a child and I got Rocky Mountain spotted tick fever, I just remember hurting all over and wanting my daddy to carry me everywhere for what seemed like a few weeks. Could these be related is there ever a study of any kind that recognizes this possiblility?
I was first diagnosed with west Niles which came from a mosquito bite and then came fibromyalgia. My doctor just came out and said that fibro was my secondary illness from having west niles and a low amount system.
(1) central sensitization (2) Auto immunity (3) Hyper active pain area (4). Life style aberration are the causative factors. Ayurveda is the choice of treatment
R u sure ? Ayurveda have medicines for Fibro and related brain fog, depression , chronic fatigue like related syndrome - which Ayurveda medicines and where it will get ?
I am planing to put produce for depression and anxiety and many , I develop many products after my 6 year full time college and 42 years of Ayurveda practice I developed Ayurveda management and medicine-on modern diagnosis
@@harendragoswami9144 I would imagine the doshas play part incredibly
@@harendragoswami9144 contact details pls
I think talking about fibromyalgia a lot triggers me more🥺 it's more severe when I listen to or talk about the pain😩.
It's tms Dr schubiner
What is your opinion on Ldn - low dose naltrexone for fibromyalgia?
My sleep is soooo garbage, no meds no sleep. Walking and exercise helps with pain a bit, but never with fatigue. I'm always tired and foggy.
Zyrtec please. Cut the brain fog and tired but wired histamine burning the midnight oil sickness. Yes please block the histamine 😊
Magnesium 🦋
How do you use the magnesium?
Duloxatine is what I take but I still have pain
I'm pretty sure I have it. I feel tired alot of times. Then other days I have a burst of energy. I do repetitive physical work and after about 4 hours into the job , my productivity tanks. It's almost feels like I have tired blood. Lose steam.Somedays im too tired to go to work. My bdisorder. And muscles and joint ppain all the time. It feels like my legs are tight. I know it's cause I stand for long periods. I used to do it 10-12 hours a day 2 -3 days a week. Everything is micromanage. I push myself to the limit. I was forced to get get used to the pain. I read that your environment plays a role inti the dosorder. It could be serious
I get a burst of energy but it’s not very often anymore. Usually I can’t hardly move.
I was just looking at the Mayo Clinic website about fibromyalgia and I came up with this all put it right here for you to look at:
Fibromyalgia
Fibromyalgia is a free 45-minute class. After completing this class, you should be able to:
Identify common characteristics of fibromyalgia
Describe lifestyle changes that may help manage fibromyalgia
Set goals for managing fibromyalgia
This class is open to people who have had a diagnosis of fibromyalgia or who've been referred by a health care provider. It includes instruction, a video presentation, discussion and an opportunity to ask questions. You'll receive a packet containing a summary of class content and related materials for future reference.
Classes are free and available to Mayo Clinic patients. To participate in a video education visit, you'll need to set up a Patient Online Services account. To register for a class, call 507-284-8140.
Sept. 28, 2022
What serious environment?
I have fibro and have had it for about 15 or maybe longer it started with leg pain then moved to full random body pain with fatigue. And now I have like 10 symptoms 😢. Life some days suck
I’m a nurse and worked 2 nights a week(11pm-7)while raising 4 busy children so I didn’t sleep much!
Which of the big 3 is best for night time to get sleep?
Good Day Dr .Elizabeth … thank You for this massage…… I am learning lots , from your Video ….I have Fibromyalgia on my Body , and for the last year , I being getting headaches and pain on my Temples…Everyday….being spending so much money on tests ..,.I need to know, if Fibromyalgia….., can be cause of cause of my problem??
Much appreciated,
Kind regards
What supplement would you recommend for low serontonin?
My daughter developed this after her HPV vaccine. We used holistic care through Bioreasoning. I highly recommend anyone with pain to check this route.
Overactive immune system. Don’t give anymore vaccines or stick with needle until you have anti histamine blockade up. Anaphylaxis is awful and you don’t cause it in anyone. The immune system runs the brain, apparently you don’t have one.
Where did you get the Bioreasoning treatment?
@@yellowtulips0427 from a holistic nurse we live in Vegas and she was here at the time now I believe she is in California. Is that something you’re interested in?
Unfortunately anything painful that doctors don't understand gets called Fibro. It's very frustrating. I have Psoriatic Arthritis and over the years many consultants have tried to tell me that I also have Fibro, or that Fibro should be my primary diagnosis. (I have visible bone spurs on my cervical spine!) Now my Sleep Apnea doc keeps telling me I have Fibro. I have LOTS of symptoms of Narcolepsy but at this point in time it really damn hard to get a diagnosis. My last sleep study, unfortunately fell upon my period. I'm 50 years old, my periods are irregular and I get INSOMNIA when I have my period. But I might as well save my breath to cool my porridge, because NOBODY LISTENS. I am at the point when I am protesting one hour a day outside my hospital because they just discharge me whenever I get a referral. A pituitary tumour showed up on an MRI, 5 years ago, nobody wants to investigate that, or the unruptured brain aneurysm on the same MRI. Pretty much done with doctors. 😥
Hi I'm going through a diagnosis period between a neurologist and now will be seeing a rheumatologist. Ana and dsdna both over expectation. The first thing I lost was sleep (although I have never been a very good sleeper). But I've had to succumb to daridoxerant which is a relatively new sleeping pill so I can get some respite and begin to focus on my other symptoms. I found trying to tackle all together very tough and stressful.
Could the inflammation relate to kidneys not working efficiently, and too much sugars/carbohydrates?
Appreciate ur efforts making this vids.
ive been Diagnosed with fibro and taking 1200 mg/d thou still feel not totally recovered from pain and other symptoms. Should i consider changing to another option?
Hi there unfortunately Fibromyalgia is incurable. I've had it for 41 years. It takes a long time to find the right set of medications that help you the best. Take care 🤗
@@fibrowarriors what has helped you to deal with this so long ?
@@lookup2094 Hi David it hasn't been easy that's for sure! There are a lot of elements for getting to a point where it's manageable I have started my own YT channel all about Fibromyalgia & CFS. You're more than welcome to come and join us
You’re taking 1200 mg of what? What is mgd?
@@JOY-ye2us I wonder if she’s talking about magnesium. I take two capsules of magnesium at bedtime. It relaxes your muscles and I think it helps me a little bit.
Can diplopia (strabismus) be a symptom of fibromyalgia?
I've had trigger point shots. Everything.. When I get the knots, my boyfriend takes
His thumb, and presses and wiggles it a little and you hear a pop. The blood, the little clot pops,, and the pain goes away.. immediately. It's wonderful. But the fatigue is crippling..
I remember going to a doctor recommended by my family doctor, because of pain all over my body,more on the left side of my body, also insomnia, depression ...5he doctor asked me questions, but never pressed on the areas more affected. Give me gabapentin,but after using it for a month I quit,because of its inefficient results! I guess I want to say that doctors think the pain is neurotic?! So it is a chronic disease with no treatment..
Dihydra codeine prozac and gabapentin are great and help also difene spray and magnesium spray. These all work on this disease that runs in families. The other advised meds are useless. For times of bad sleep or anxiety, diazapam or I prefer zanax. Really hot showers, hot water bottles heat pads or electric blanket great for fms pain. I am 70 and born with this
@@robartaquinn7258 May God Bless you
@@robartaquinn7258 I take two magnesium capsules at bedtime. I think it helps me.
@@Nan-59 Please, what type of magnesium (not brand) & what dosage amount? 🙏
Hi @@emeraldc.8796 You can take up to 1000 mg at night. It can help you get a good nights sleep.
I watched a video some years ago about how much magnesium to take and I honestly can’t remember. I think they said more than 1000 mg at night, but I just googled and it said 1000 mg. Start out slow and then go up to that much.
What I’m taking currently is “Buffered Magnesium Glycinate 665 mg”.
This bottle says to take three capsules a day. Good luck to you! I hope it helps!❤️❤️❤️✌🏻
Thank you I get it! I have been through so many doctors who cannot or refuse to help me! Who could care less! Lyrica was worse than the disease itself some drugs don't work! Some good doctors out there r outside my Medicare network! Gaba pentin put blood in my stool. I'm confused crying no solutions disappointed ☹️😤
Gabapentin made me fall asleep for long periods and would give diarrhea all day.
Gosh thanks for that info!! I've just been prescribed this but holding off as long as l can. Ialready have tummy problems!!
My heart goes out to you. I feel your pain. Where I live the Doctors won’t treat me because of all my health problems. They don’t care anymore.
My Primary is a FNP, PA. I’m finding that the PA’s are more compassionate towards me than the Physicians.
I only take my Trazodone after I have been up for 3 days of no sleep. I sit in my recliner with my iPad and do a lot of searching. That’s how I found this sight. I’m about ready to rent a RV and take off toward one of the University’s. I have looked at the Mayo Clinic. And there is one in Portland, OR. And Arizona. It just gets so tired and frustrating. I live by myself and don’t drive. But I hang in there and I know where I will be after life here. That gives me Hope. Just sick of hurting. But yea you hang in there. And keep your Spirits up. Life is still good. I have my son and daughter in law. I’m getting more and more stuff from Amazon. 🤓🤪😜. Been buying Christmas gifts. 🤫
@@shannontodd8996 I agree!!
Please do another video on this.
I have fibromyalgia and have had it for 30 years. I will not take anti depressants as I feel these mds have to many undesirable side effects, especially weight gain. I however use gabapentin 400 mg twice a day during flares and CBD edible chews when needed. Iam a chronic pain patient also with degenerative disk disease and arthritis and chronic migraines and spinal headaches due too head injury from car accident and prescribed hydrocodone 3 a day 5 mg 325 tynelol for my arthritis and disk issues.
I have fibromyalgia and finally can’t stand the pain anymore. I finally whet to a rheumatologist and she did blood work. My Ana was positive and it was speckled. I don’t see her until late march. What do you think. My urine wbc esterase was plus one. My createrine was 1.07 and egfr 55. I’m 63. I’ve had a lot of stress in my life. I also have had lesions on my face and shoulder and chest different times yrs ago.
Hey. You probably already got your diagnosis but I had the same thing...Diagnosed with Fibromyalgia (yes I still do have it) but I also got tested and my ANA was positive and speckled; My CRP and ESR elevated and positive for RNP and RF antibodies. Do some research on UCTD or Undifferentiated Connective Tissue Disease.
I forgot to mention I use exercise. Low impact and yes it makes all the difference
Ive been on cpap therapy 3 years and stil have it but not as bad, however ive had several surgerys,(spinal fusion. low back. lamanectomy, my neck hip replacemen 2 ankle surgery s and others, but weather seems to be the worse for me! thanks for this!😊
any comment to the Coimbra Protocol?
What can you tell me about low dose fluphenazine?
What about chiropractor treatment?
It helps me to keep moving. I have hyper joint mobility along with fibromyalgia so my back is always going out. I’m now in my 60s and have had fibromyalgia for 36 years. I feel very locked up without chiropractic. Been going regularly for 33 years.
Brilliant explanations
I have had fibromyalgia for 54 years
I'm on my feet all day. I started this after I got Covid. I try to stay away from inflammation causing foods. Tried turmeric this made it worse.
I’m getting all swollen I’m taking Zavella and plaquenil but is not helping what natural remedy can I take
what about amytriptaline>?
Do the doctors in the uk recommend this to?
I have fibromyalgia and the pain builds up to excrutiating i use a heatlamp to get rid of the pain i hold it at a bareable distance i have only had this for about perhaps s year now but in saying this i have heart and lung disease, ostoe arthritis ive had cardiac arrest and then pulmonary embolism within a space of 2 years i also have broken ribs twice on resuscitation ive had broken all 4 limbs separately i have insomnia also i also have anxitey depression multiple traumas i have 4 grownups all in their 40's they were all in the 8lb area my daughter being the youngest
All the best to doctors añd patients take great care y'all ❤
I do self management I would say a heat pad would be beneficial, it was weird I got off the bed but before I did about 4 of my fibromyalgia lumps all triggered at the same time while I was oñ my front but not lying down in this position it was a light feeling of pain not painful but if I'm sitting down 2 of the lumps may contract very painfully so I just try to breathe away a little then let go and even if it goes down I grab my heatlamp quickly to help alleviate the pain😅
Can you get ulcers on the tounge and nose
Ps Covid twice, no taste or smell (but weird smellsno taste ,72 years old! On anziety meds, and antidepressants @ Could not take gabapentant! No headaches!
Anxiety,depression, sleep are not the cause I believe,
It’s the other way round that you have all this because of the condition.
I still believe that some kind of low lying auto- immune is the cause of Fibromyalgia, before the Covid vaccine I was in a managing position, but after the Covid booster suddenly it flared up, it’s obvious that the immune system is working overtime, and suddenly in my case it went from bad to worse. I am not a doctor but I can see the difference, 20, 21 , 22, years were manageable, but by September after the booster, it came like a volcano I hope when the booster wears out I’ll have a relief, I am just hoping.
I've been prescribed Lyrica?
Hi dr., i am a fibromyalgia patient since long time. I tried madication : symbalta, prozac, amitriptiline lots of but no any medications work for me, my stomach is too sencetive. What shoud i do?
My inflammation is horrible!!! Horrible!!!
Thank you
My doctor hasn't recommended anything...I've been dealing with my own symptoms for well over 30+ years...
They just don’t know what to do with us. I think they will learn what fibro is when they get to the bottom of long Covid.
@@barbarabradley3765 NOT holding my breath for that, they put me on a long COVID referral well over 2 years ago, after several chase ups I'm still waiting 🤷
The truth of the fact is 50 years ago we had doctors checking our pulse, our tongues and our nails and were able to pin down what was going on in this day n age of technology no one is using their God given faculties of curiousity, reflection and wanting to truly find the cause NOT just plaster the symptoms and send you on your way...The duty of care doesn't exist anymore... Most doctors want to cram in as many patients as they can and look forwards the weekly check...It's extremely rare to find a practitioner who is working from the heart...💔
Hi Yasmin. I get it. I’ve got a little over 20 and I’ve had recommendations but nothing has worked. One of the 🎈suggestions was to go zip lining and you will forget about your pain.
Ooh that made me crazy.
Find a reasonably cheap plug, sadly people that are suffering legitimately are treated like liar s and left on their own. Be safe
I’ve been researching causation of nerve pain and headaches with fibromyalgia symptoms and strains of herpes viruses are linked to these conditions including MS. Something to look into
MCAS. is causation.
The doctor that diagnosed me with fibro some 30 yrs ago was Dr Gluck. He was helping set the parameters in diagnosing fibro at Baylor in Tx. Little was known then at all. He was so wise and determined...and passed away too early...have you heard of him? He lectured all over the world and was so full of energy.
I haven't but I'll look him up!
How very sad when we loose good people way too soon. I’m sorry 😢
@@ConnectedRheumatology One solution I’ve found effective for fibromyalgia and a ton of other conditions is Bemer vascular therapy. I’ve been distributing medical devices for 15 years and this is the first I’ve seen that helps at the root level, the blood flow and toxin elimination.
Eating right can help eliminate toxic buildup, however. If you don’t want to stop eating the foods you love, increasing blood flow and lymphatic draining by 30% will do the same.
PEMF technology is incredible, it’s Star Trek healing L😆L
Albert Einstein said
"Future Medicine will be the Medicine of Frequencies"
This quote is ringing through loudly now with Radiation therapy, X-ray machines, Magnetic Resonance Imaging (MRI) PET and CT scans, and ultrasound have all become commonplace and all fundamentally harness the power of different types of waves and their specific frequencies that occur in nature.
Bemer has been studied extensively and found to increase the ATP of the cells by 20%, creating energy at the source of the cells mitochondria itself, no need for coffee, drugs, or anything else.
No need to suffer any longer, if anyone wants help getting a hold of a bemer to try, I’m happy to help. 513-828-2277
Gut healing, paleo diet, weight lifting, healing Trauma response in your body. remission will be 💯
Are you in remmisiin
Almost forgot I tried kratom and it gave me constipation!
So sorry to hear about all your struggles. It can definitely be frustrating to find, not only the right provider, but the right combination of things (medications and lifestyle changes) that are going to work for you! Hang in there!
Well, im glad all that was available to you. But where I live, its a different story. When youre expected to get up without complaint, get out and start clearing land, you want a pain pill the size of a football, and take big bites out of it. But no, thats not an option either because some goody-goody two shoes decided it was bad! Bad! Or, some person who was tired of fighting pain with no help, ate all of his pain meds at once. So here we are.
I take 4000mg of turmeric every 3-4 hrs to help with inflammation & the water retention in the legs i use compression boots for 30 minutes 2-3xs a week. That greatly reduces the pain in my leg. I'm still working on trying to figure out how to manage the pain in the rest of my body. I do all of this because I have had very bad reactions to all of the other meds for Fibromyalgia.
I've delt with this disorder for about 30yrs now. I've tried all of the meds & the side effects are just as bad as the pain. From weight gain ( over 100lbs in 4-6wks) to memory loss, to my joints swelling so bad I wanted to die. There needs to be better options for people like me who seem to be allergic to these meds!
I want to be able to move but the pain doesn’t let me 😔. I used to go the gym 7 days a week to lift weights. After an injury I developed fibromyalgia and now it’s so hard to work out . I am taking amitriptiline 20mg at night and it helps with sleep. Can I add duloxetine in the morning for more pain relief? I want be able to back yo the gym again.
I’m not a Dr but the Dr that I see says you can’t take 2 different medications in fear of getting serotonin syndrome but if it were me I’d pick the duloxetine because I’ve been on that and I had a major life change and I felt as if I was going to spiral down into depression hell again that and an anti anxiety medicine like clonepin or if you don’t want depression/anxiety.
I don't know if you read this but most ppl are depressed because they are fatigued and in so much pain I don't think depression is a cause with fibromyalgia I've had it 20 yrs along with sjogrens now have EDS MCTD because of pain any type of movement is horrendous pregabin n all those meds put weight on then harder on joints ect never found med that works for fibromyalgia nerothopy I have to 😊
I have been diagnosed with fibromyalgia and me/cfs. It's seems to me that fibromyalgia is a symptom of Me/cfs.
That's what I say to I've had CFS after a fall now it's more fybromyalgia are you hypermobile?
I get relief from norspan patches, mercyndol if really bad. I have been diagnosed with FM but now 26 years later have been told I have Lupus which I disagree with. Then was told no you do have FM but maybe a little bit of lupus, then you have lupus but might have a bit of FM. When I am on my Prednisolone for my Crohns (and originally given it for FM) I became pain free within 3 days. The gp who said I have lupus said it cant be fibro because it doesnt respond to Pred. The rheumatologist who said a little bit of lupus said sometime people with FM do respond to Pred. You can see why we all get confused. But I stack on the weight with Pred its a catch 22. I was looking at another mecical site and that doctor - rheumatologist said opiod patches make FM worse but without it I wouldnt be able to get out of my chair...what are your thoughts on Norspan patches for fibro Dr E. Cheers from me in Western Australia
I had been taking Tylenol # 3 with codeine the last few years for the pain , I knew i was in trouble when my Dr. retired . A pain clinic took me on and dropped the amount i could have per month , makes me see somebody twice a month instead of once a month , and made me take a urine test to see if I'm taking the drug - or selling it ! I can barely walk , still working part time , responsibilities , etc. It's appalling to be treated like a drug addict and /or criminal . And now I'm getting worse , spending more time in bed , no extra pill to help me sleep , they don't care what I want or need . The war on drugs has taken away the option for older people who have terrible pain to be .treated respectfully .
With your symptoms responding so well to Prednisone, that sounds more like Polymyalgia Rheumatica (PMR). That was my first diagnosis but because the prednisone treatments did not help at all, the consensus was unanimous with 2 of my doctors that it wasn’t PMR. I joined a few PMR FB pages and with the majority of those people, prednisone significantly helps with the pain and stiffness. My rheumatologist said I was too young at 52, that I needed to be closer to 60 for PMR, however, there were hundreds of people my age and a tad over that were diagnosed with PMR and the prednisone did work for them. It’s all so confusing and it becomes so frustrating. I’ll be 54 in Sept and have had the worst almost 2 years of my life. I was diagnosed with Fibromyalgia 32 years ago, and though it was bad and disabling at times…it paled in comparison to whatever attacked my body 2 years ago…I can only surmise there’s various levels of this demon disease. I’m losing hope.
@@stephaniefeiockrealtor same here. Doctors don't understand or worried about the government regulation for drugs with those in chronic pain
..
@@sandym8787 😢. I understand. It sucks Most people in pain have to suffer because others are addicted. It just is not right. They are changing the what drugs are allowed & how much, but I don’t know when it will come through.
Hi, thats not true that theres no test. I had a test done in Neurology at Henry Ford Hospital in Detroit, MI some years ago. The Dr. used needles. It was very painful and I could only get through about half of the test, but I was definately diagnosed with Fibromyalgia then.
Oh yes there is a test. Inflammatory mediator testing. Mast cells and neuroendocrine tumor test.
You touch any tender points it hurts and more
You are smiling all the time , but the theme about fibromyalgia is so haevy, I am doctor to, neuropsychiatrist, and we col that syndrome of chronical pain...treatment is difficult, I have good results with pregabalin and duloxetin
I've found patients with SNRIs like Duloxetine & Venlefaxine to have severe withdrawal symptoms.
Thanks
Hi! What are your diet recommendations for fibromyalgia?
This is a giant topic! Everyone is different and foods that may trigger some people may not others. Many people find that added sugar or meals high in sugar can irritate their pain, but even this is nuanced, as fruit shouldn’t necessarily be avoided. Another aspect that needs to be considered is what is the patient’s relationship with food and dieting? If a person has a history of cutting out foods or food groups (either for health or weight loss), then it may be more beneficial to heal their relationship with food, as opposed to focusing on yet, another food to avoid. The mechanics of fibromyalgia is very individual and although food may play a role in any particular individual’s experience, being overly focused on food tends to distract from other beneficial habit changes, such as stress management and sleep/rest. This is a topic I plan to cover in more detail, so stay tuned! (Sorry couldn’t just provide you with a simple food list!)
@@ConnectedRheumatology I converted to veganism 2 years ago and try to limit sugar. I have found that it helps with pain but not so much with lethargy and/or motivation.
Reach out to salami_healing_herbs. For that
Gluten free diet
Gluten-free Atkins Diet.
Look into the Fibromyalgia doctor. Dr Murphree . Vita-nutrients are way better than taking toxic medications.
Throwing drugs at it doesn't help. I've had acupuncture and it has helped some. Please don't tell us it is just In our head
Can it cause tremors
I have fibromyalgia and I get shaky hands often right after waking up
I am in the UK - I have yet to meet a doctor who knows anything about this illness. they just prescribe paracetamols!
Paracetamol is for the headache that you have after the fibromyalgia pain subsides. I take pregablin and paracetamol, Tylenol here in us. Found headache underneath. Bloody hell!!!
Vicodin is the only thing that helped me I would cut in half and use if I needed to go somewhere
Vicodin is not for fibromyalgia.
Jokes on you. No one anywhere has recommended anything no matter how many times I ask
My doctor is saying I have this but I haven’t been referred to a specialist. I do not believe him.
My Rheumatologist told me to follow a healthy diet, and do more exercise, he said there was little else he could suggest.